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This page shows you the most recent publications within this specialty of the MedWorm directory. This is page number 13.

Hypertonic saline (hts) & electronics
My laptop bears the brunt of my nebulizing entertainment, and it holds up okay with me blowing salty air into it EXCEPT 1) when I leave it in front of an open window on a humid day  or 2) when I bring it to my IL's beachhouse where the ambient humidity is super high. My husband says that in high humidity, the salt is liquifying and screwing up the electronics.  So in these situations, the laptop spazzes and the keyboard barely works.  Sometimes, the whole thing doesn't work at all.  I've l...
Source: Cystic Fibrosis Adults Forum - April 10, 2012 Category: Respiratory Medicine Authors: Melissa75 Source Type: forums

White Blood Cell Count
My white blood cell count has been elevated as far back as 1995 (that is the earliest blood work i can find).  Anyone else have elevated white blood cell counts with CF?  is it b/c of CF?  Should I be worried-my CF doc doesn't seem to be worried about it....
Source: Cystic Fibrosis Adults Forum - April 10, 2012 Category: Respiratory Medicine Authors: nvbrame Source Type: forums

Calling all CF bloggers!
Hey all! I am trying to put together a "cf blogroll", hopefully to be a resource for those looking for CF blogs and bloggers. Right now there's nothing like that out there (that I've found, anyway!).    If you are a CF blogger (or a parent or spouse of a CFer who keeps a blog), I'd be happy to add your link to the list! Your blog does NOT need to be about CF to qualify, but it does need to be a public (i.e. not by invitation only) blog.   The blogroll address is http://cfblogroll...
Source: Cystic Fibrosis Adults Forum - April 10, 2012 Category: Respiratory Medicine Authors: cindylou Source Type: forums

Books for Sale
Books for collection from Royal Devon & Exeter Hospital only. Send me a PM if you're interested. Oxford Handbook for The Foundation Programme £10 Oxford Handbook of Clinical Medicine (Mini) £10 Oxford Handbook of Clinical Medicine £10 Oxford Handbook of Acute Medicine £10 Oxford Handbook of Clinical Diagnosis £10 Oxford Handbook of Clinical Specialties £10 Oxford Handbook of Emergency Medicine £10 Oxford Handbook of Respiratory Medicine £10 Oxford Handbook of Anaesthesia £10 Oxford Handbook of Emergencies in Anaesthesia £10 Differential Diagnosis (Churchills Pocketbooks...
Source: New Media Medicine - April 9, 2012 Category: Universities & Medical Training Authors: Sipadan Tags: Peninsula Medical School Source Type: forums

I need advice
I have a quick question... My 6 year old had gentic testing done in Dec.and it came back that he had 5t 7t. He has had respitory problems and family history that was the reason for the testing. He has never had a problem with his weight, he did have problems with constipation when he was a newborn but once we found the right formula he seemed to be fine. 2 years ago he was complaining of a stomach ache for a few days so I took him to the doctor and they said that he could tell that he was constipated he hasn't had any problems since than, until now. In Feb. he had 3 episodes of throwing up and only once he ha...
Source: Cystic Fibrosis Adults Forum - April 9, 2012 Category: Respiratory Medicine Authors: cgerhardt Source Type: forums

imipinem (thienam) with a cold - share your experiences
Hi all, I have now weighting (I can not find the right word, but I think you understand <img src="i/ex...
Source: Cystic Fibrosis Adults Forum - April 9, 2012 Category: Respiratory Medicine Authors: mariakom Source Type: forums

CF Pharmacy or Medicare Part B
I have been put back on Pulmozyme, hypertonic saline and Source CF vitamins and enzymes. The last time I was on any of these I was working and had insurance. I now have Medicare Part A, B, and D. with special medication assistance and then Medicaid as my secondary..or at least that is how I understand it. I am absoultely confused. I am still in Colorado because after I finished my two week evaluation they found I am shunting blood in my heart through a hole. Which may or may not be the reason I need oxygen so I am waiting for a surgery consult.. It is not re...
Source: Cystic Fibrosis Adults Forum - April 9, 2012 Category: Respiratory Medicine Authors: JennifersHope Source Type: forums

Sternum Pressure and Soreness
I have been having pressure and tightness in my sternum the past few weeks (where the ribs connect on the left side).  I get lots of muscle spasms on the left side of my chest.  My chest gets tight.... if I cough enough the tightness loosens in the sternum area.  I even have a sore (hot spot) on the sternum.   CF doc had no recommendations. 
Source: Cystic Fibrosis Adults Forum - April 9, 2012 Category: Respiratory Medicine Authors: mamerth Source Type: forums

How were you diagnosed with cf?
Just wondering...How were you diagnosed with cf?By accident or did you have symptoms?
Source: Cystic Fibrosis Families Forum - April 8, 2012 Category: Respiratory Medicine Authors: Eirin27 Source Type: forums

Skin cracking in fingers
So I started Voriconazole a month ago and have noticed that my whole body is extremely dry.  My hands, my lips.  Another interesting thing I have noticed that at the tip of my finger nails, the very end of my fingers, my skin is cracking.  It is ONLY on my right hand, and it is very painful...sometimes bleeding.  Its hard to type and do a lot of other things.     Does anyone know what this could mean?  Anyone else have this issue?  I get very dry lips on Zyvox too, but it could very well not be related at ...
Source: Cystic Fibrosis Adults Forum - April 8, 2012 Category: Respiratory Medicine Authors: MCGrad2006 Source Type: forums

Testing beyond OGTT?
Hi all,   I've got a question for you guys today! I have always had hypoglycemia (my mom has similar issues and it's not uncommon in CF, so I've never been surprised!). In recent years, I can tell that my sugars have gotten more "unstable" - both lows and (what feel like) highs. Also, I've always had a small bladder and ALWAYS woken up at least once a night to pee, but in the past few years I've considered myself lucky if I am only getting up twice a night (versus 4 or 5 times!). I eat a very healthy diet and take good care of myself...
Source: Cystic Fibrosis Adults Forum - April 8, 2012 Category: Respiratory Medicine Authors: cindylou Source Type: forums

Jasey was in hospital wed thru fri for c-diff colitis
Is c-diff common with cf?
Source: Cystic Fibrosis Families Forum - April 7, 2012 Category: Respiratory Medicine Authors: Mistyjo Source Type: forums

Septic and Drain Field Problem Due to Meds....
Have you ever had problems with your septic tank or drain field that may be due to CF meds entering the system??? We are having to replace our drain field due to a build up that has clogged our system causing it not to drain and back up in our house. The build up is caused by a biomat (dead bacteria building up through the system). All the antifungals and antibiotics (and maybe even the digestive enzymes) are killing the bacteria in our septic and drain field. Causing the bacteria to die off and form this biomat. You need bacteria in the septic and drain field to make things flow smoothly.</p...
Source: Cystic Fibrosis Families Forum - April 7, 2012 Category: Respiratory Medicine Authors: VickiN Source Type: forums

Free E-Book on Amazon
It's called "Cystic Fibrosis & the Brewer's Yeast".   One of the main characters in the novel has a son with CF.    The novel is "sciency" and has some information about medical research if anyone is interested.         http://www.amazon.com/Cystic-Fibrosis-Brewers-Yeast-ebook/dp/B006HDILUU/ref=sr_1_11?ie=UTF8&qid=1333772601&sr=8-11  
Source: Cystic Fibrosis Stories, Artwork and Photos Forum - April 7, 2012 Category: Respiratory Medicine Authors: dwooster Source Type: forums

High Risk OB
Can anyone recommend a High Risk OB in the Clermont/Orlando area?
Source: Cystic Fibrosis Pregnancy Forum - April 6, 2012 Category: Respiratory Medicine Authors: ambermarie03 Source Type: forums

Surprising results
Hi, I'm 28 and my FEV1 has been 35% for about 10 years. I can do a lot with it (work, lead an active life, etc) but of course am always afraid of it decreasing since it's already so low. (I do get tired a lot obviously). For this reason, I have always thought I had a 35% lung capacity. However, I did a very expensive, thorough test recently where they truly tested my lung capacity, heart, breath rate and even muscles and now we found out that my real lung capacity is 67%. This came as a massive surprise, of course, and went again...
Source: Cystic Fibrosis Adults Forum - April 6, 2012 Category: Respiratory Medicine Authors: nocode Source Type: forums

arm vs chest port
So I'm finally looking at getting a port after over 25 PICCs in my life and 3 of them were this winter alone. Does anyone have an arm port and would prefer it over a port in the chest and vice versa? I can't decide where I want to get mine placed so any pros/cons to your port would be appreciated. Thanks!
Source: Cystic Fibrosis Adults Forum - April 5, 2012 Category: Respiratory Medicine Authors: giantsfan91 Source Type: forums

DDF508
Just curious, who on this site is DDF508. Also,  if you don't mind telling me your age, fev1, and when you were diagnosed.  My hubby is DDf508, he is 43, and was diagnosed at 9 months. His fev1 is 55%.  He also has cfrd.  Thanks!
Source: Cystic Fibrosis Adults Forum - April 5, 2012 Category: Respiratory Medicine Authors: LMG453 Source Type: forums

Big advancement in the fight against cystic fibrosis
This is going to be a huge step in the screening of future cf drugs similar to kalydeco. They grew lung tissue containing the G551D gene and showed that kalydeco was effective at correcting the genetic dysfunction. They also know that they can grow DF508 tissue as well. This will speed up the development of new drugs because so many more compounds tested will prove to be effective in human airways. <a href="http://www.sciencecodex.com/big_advance_against_cystic_fibrosis-89352">http://www.sciencecodex.com/big_advance_against_cystic_fibrosis-89352</a> <a...
Source: Cystic Fibrosis Adults Forum - April 5, 2012 Category: Respiratory Medicine Authors: Anomie Source Type: forums

karate
Does anybody know if karate is permitted for patients with cystic fibrosis?will it be safe as an exercise for my 5 year old son?
Source: Cystic Fibrosis Exercise and Fitness Forum - April 5, 2012 Category: Respiratory Medicine Authors: Eirin27 Source Type: forums

Kinesitherapy - how?
Hello! I'm new here, thank you for this forum, it is very positive and life-affirming! I was surprised when I saw that there are people with CF who are 50, 60 and even 70 years! <span title="??? 40, ? ? ???? ????...
Source: Cystic Fibrosis Adults Forum - April 5, 2012 Category: Respiratory Medicine Authors: mariakom Source Type: forums

What to do between rounds of tobi?
My little D can't go off tobi for more than a week without getting the gunky green goo. We're waiting to try Cayston when it becomes available again but are looking for a solution in the short term. I left a message with the CF nurse today to see if we could start continually giving her bactrim. Does anybody else take bactrim continuously or in their off month? Thanks!
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: Anomie Source Type: forums

neuropathy?
Has anyone had this? What have you done for treatments, and have they helped at all?
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: mmmtat Source Type: forums

Wednesday Night Chat Time ...
Hope you can make it into chat.  Tonight, 8PM EST !  <img src="i/expressions/face-icon-small-smile.gif" border="0">  joni
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: BelEAche Source Type: forums

Oxygen Concentrator Question
I have been on night time oxygen for a couple of weeks. I am renting a concentrator..... When I go to bed I set the oxygen on 2 liters.  Some mornings  it is slight lower than 2 liters (more like 1.75 liters).  Why would the liter level drop during the night??  No one in my house is touching the concentrator during the night.  The liters don't always drop during the night.  Some morings I wake up and it is still on 2 liters. We had issues with the first concentrator that they brought out...it was less than 2 liters EVE...
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: mamerth Source Type: forums

to people with blogs
I want to say thank you to those people who update their blog and continue to keep your fellow patients, family members and care-givers in the loop. I find it rather helpful when individuals have blogs and continue to update and share information or your stories. Everyday or every week for that matter. It is really great. Thanks for sharing the information and please continue to use these lines of communication. Your diligence and courage is all our benefit.
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: musclemania70 Source Type: forums

backed up!
I have been on a twice a day myralax diet with go lightly every 3 weeks, but it doesn't seem to be ridding me of everything that has backed up.  The Dr. says it is med induced, but has not been too helpful on having any other answers. Just wondering if anyone else has or is in the same situation and wondering what they did.  I feel like they are playing a broken record, aferall I believe it was Einstein who said sanity is trying a million things to get an answer and insanity is doing the same thing a million times and expecting a new answer.  Appreciate anyone who can help!
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: aquafish2425 Source Type: forums

To all the bleeders out there...
I am a bleeder and I'm wondering how mine compare with others- what's the frequency of your bleeds? The amount? Always correlated with infection? What do you do to treat your bleeds? Unfortunately mine seem to be coming with increasing frequency and I'm wondering if that's normal. No infection brewing though.
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: jmiller Source Type: forums

Mucus in Upper Airways
Hi Everyone... i'm hoping someone can give me some tips for what i'm dealing with I just got out of USC's hospital two weeks ago, and i'm feeling good. I have one issue that has resurfaced: i've had crackling in my upper chest, seems like almost in my throat. Before my hospitalization, i had it pretty bad, then the meds cleared it up... for a few days. About 4 days after i got home, the creackling came back... it is mostly noticeable while i'm laying down. So today i went for my two-week follow up visit, and told them it had come back. The explanation was that mucus...
Source: Cystic Fibrosis Adults Forum - April 4, 2012 Category: Respiratory Medicine Authors: DjFunkyFife Source Type: forums

irregular/regular periods
I heard a lot of cf girls/woman have irregular periods...is this true????
Source: Cystic Fibrosis Pregnancy Forum - April 3, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

period question
My period is always on time every month, and has never been irregular from the time of when I turned 14. My period always lasts at least 6 days, and then dies down towards the 6th/7th...I got my period this Friday morning, and it is now tuesday, and its basically gone!? this has never happened to me before...whats wrong with me? I been having sex regularly with my boyfriend unprotected? could that alter it? 
Source: Cystic Fibrosis Pregnancy Forum - April 3, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

period questionn!
My period is always on time every month, and has never been irregular from the time of when I turned 14. My period always lasts at least 6 days, and then dies down towards the 6th/7th...I got my period this Friday morning, and it is now tuesday, and its basically gone!? this has never happened to me before...whats wrong with me? I been having sex regularly with my boyfriend unprotected? could that alter it?
Source: Cystic Fibrosis Adults Forum - April 3, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

Turning Point
  I am 33 going on 34 soon. =)  I have been dealing with a lot in my life over the past few years and I have figured it is time to make a change while I can.  I created a web page to start what would be my dream.  However I have always worked for everything in my life and am having trouble getting past the idea of asking others for help. <span style="font-family: 'Verdana','sans-serif';...
Source: Cystic Fibrosis Adults Forum - April 3, 2012 Category: Respiratory Medicine Authors: RunningMan Source Type: forums

one mutation but symptoms of CF-what to do?
Hi everyone, I'm new here. For the last 7 years, I have dealt with chronic sinus infections, headaches, stomach problems, and fatigue. I seem to catch everything that goes around, and one round of antibiotics almost never resolves infections.  I have discovered that I have a primary immunodeficiency (primary means I was born with it, as opposed to an acquired immunodeficiency), but I have been immunoglobulin replacement therapy for that for a year and a half, and I'm still having the same symptoms, just not catching as many viruses. My hematologist thought to have me checked for CF, so I found a...
Source: Cystic Fibrosis Newly Diagnosed Forum - April 2, 2012 Category: Respiratory Medicine Authors: daisy85 Source Type: forums

borderline sweat test results?
hello all, i was hoping for some guidance or advice here.  i am mom to 2 beautiful twins, a boy and girl, 4 years old.  my daughter has had resp problems since birth (frequent colds, hospitalizations for 2 documented pneumonias, allergies, etc.)  i have a severe asthma and allergy history, so we always assumed that she unfortunately took after me.  after her most recent hospitalization, her MD wanted her seen by a peds pulm/allergist.  plus, my son also had problems with allergies (not the recurrent illnesses though).  so they both went and as part of ...
Source: Cystic Fibrosis Newly Diagnosed Forum - April 2, 2012 Category: Respiratory Medicine Authors: mywombmates Source Type: forums

New Born Screening Positive
We just found out that our six week old baby girl tested positive with the Delta F508 gene and L967f. We have our sweat test scheduled for Wednesday. I have looked for information on L967f but could not find any. Counselor I spoke with told me that it was a rare gene that was usually benign but could cause mild symptoms such as asthma or sinus problems. I want to find out more information becasue I am worried she was just telling me best case scenario and trying not to freak me out before we have more testing done. Any information would help. Thanks!
Source: Cystic Fibrosis Newly Diagnosed Forum - April 2, 2012 Category: Respiratory Medicine Authors: juliettesmama Source Type: forums

Adoption
Hi all! My hubby and I have been looking into adoption for a while.  I am wondering if anyone out there adopted and if so, were there any issues with you having CF?  I have looked at international and domestic and they both seem to look at the adoptive parents health and i don't want to pay money and get in the process and then be thrown out because of my health issue.  Thanks Nicki Brame
Source: Cystic Fibrosis Pregnancy Forum - April 2, 2012 Category: Respiratory Medicine Authors: nvbrame Source Type: forums

Extremely Unhappy with CFRD Care
Hey All, I'll try to keep this history as brief as possible: I was diagnosed with CFRD in September, with a week long continuous meter revealing highs. I was undiagnosed for at least 5 years because my A1C is normal (it has been 6.0, 5.5 and 5.3 in the past year), and my OGTT comes back normal. I was started on novolog juniors pen (so I can use the half units), with a carb ratio of 1:50 with all meals (4-6 meals a day). I noticed my numbers getting significantly higer from Janury-March, so I went into see my Endo (Recommended by my CF doc as the best en...
Source: Cystic Fibrosis Adults Forum - April 2, 2012 Category: Respiratory Medicine Authors: mmmtat Source Type: forums

Should I push for testing?
I have lurked on this forum for awhile now & you all are a wealth of information!  My daughter is 6 months old and was 6lbs 6oz at birth.  She dropped to 5lbs 12oz. before leaving the hospital 48 hours after birth.  Since that time her doctor has been concerned over her slow weight gain.  She currently weighs 12lbs. 10oz and remains under the 5th percentile.  We take her in & weigh her monthly.  She is exclusively breastfed & just now starting to be introduced to solids. At her 2 month check up her doc mentioned CF but wasn't...
Source: Cystic Fibrosis Families Forum - April 1, 2012 Category: Respiratory Medicine Authors: mom24cjs Source Type: forums

Pulmonary Hypertension and CF
I have CF and PH and I find it is quite challenging. I've been to many CF events in which the keynote speakers have been CF patients. I hear several speakers share their stories particularly about some of their exercise routines, many of whom have FEV1 <35%-tile, to which I am surprised. I am at 40%-ile and I can do very little exercise even with O2. No way could I do anything without it. How about you? How many of you have CF and PH and how does it impact your ADLs or your exercise routines?   Thanks.
Source: Cystic Fibrosis Adults Forum - April 1, 2012 Category: Respiratory Medicine Authors: Beowulf Source Type: forums

Obama & Healthcare
Are you concerned with the Healthcare industry becoming socialized in the US? I have a degree in economics and I have lived in Europe under a socialized healthcare system and frankly I am quite concerned about healthcare in the US and where it will be going. If it is up to the government to determine if I need Pulmozyme or VX 770 Kalydeco, particularly given their expense I wonder if I will be receiving these meds or all the others I routinely use. I remember a thread here on Cysticfibrosis.com a couple of years ago in which a person living in Britain didn't have access t...
Source: Cystic Fibrosis Adults Forum - April 1, 2012 Category: Respiratory Medicine Authors: Beowulf Source Type: forums

Fundraising for my Run in the Boston Marathon
Please share this link, please donate or share. If I don't raise enough money I have to pay out of my pocket and I don't have the money. I need help!!! <a href="http://www.cff.org/LWC/dsp_DonationPage.cfm?idEvent=19980&idUser=442219">http://www.cff.org/LWC/dsp_DonationPage.cfm?idEvent=19980&idUser=442219</a> That link will bring you to my home page! My name is Michael Gulinello, People call me Mike and I was diagnosed with Cystic Fibrosis when I was 7months old. I'm 28 now and it hasn't been easy but I got to...
Source: Cystic Fibrosis Adults Forum - April 1, 2012 Category: Respiratory Medicine Authors: MikeG83 Source Type: forums

Blood sugar numbers..
Hey ! I've never had to take insulin before...and never really been prescribed it until a few months ago, starting from my stay in the hospital.. I never followed up with anything since I been home and its been almost a year now... They put me on a pill form, but that doesnt really work..   My numbers are perfect in the morning and before I eat...highest ever was 120. But, after I eat it goes up to 250/300...depending on what I eat. but then alot of times its 150/170!!!   Am I in...
Source: Cystic Fibrosis Adults Forum - April 1, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

SSI?
Just curious, how long did it take you to recieve your first SSI check since the time you applied? and what are your payments like...sorry not to get to personal.
Source: Cystic Fibrosis Adults Forum - March 31, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

E Flow cups and when to replace?
I was cleaning my E Flows today when I noticed that on the right hand side there seem to be these small areas of melted white plastic almost as if they have been burned or something. I have 4 cups on the go and they all have it. I even noticed the one I use for Pulmizyme has rust on where the medice should come out from.    How long do e flows last? Is it time for me to replace them? And does anyone have any idea whats going on with the melted parts? 
Source: Cystic Fibrosis Airway Clearance Techniques Forum - March 30, 2012 Category: Respiratory Medicine Authors: joedexter23 Source Type: forums

Tigacycline IV
I've been on Tigacycline IV for 3 weeks now and this past Saturday I got so dizzy that I fell right over flat to the floor. I have never had that happen before. Then again last night I got very dizzy twice! I looked up side effects and dizziness is a side effect of the medication. Has anyone else had a similar experience?
Source: Cystic Fibrosis Adults Forum - March 29, 2012 Category: Respiratory Medicine Authors: krisgabes Source Type: forums

hiatal hernia
I've been told I have a hiatal hernia. I have had my gall bladder out a few months ago and during the tests to figure that out, the docs discovered the hernia. I still get occasional bouts of serious pain and I believe it's because of the hernia. It's like heart burn and there is tenderness to the touch at the top of my stomach where my ribs meet. My gall bladder is out so this is the only thing I can think of thats causing this pain. It's not a typical heartburn and nothing relieves it but time. Has anyone had experience with this? Anyone had surgery? Any help would be great...
Source: Cystic Fibrosis Adults Forum - March 29, 2012 Category: Respiratory Medicine Authors: running4life Source Type: forums

Hypoglycemia before CFRD?
How many people have had hypoglycemia before their CFRD dx? Also if you have hypoglycemia how long have you had it?
Source: Cystic Fibrosis Adults Forum - March 29, 2012 Category: Respiratory Medicine Authors: Incomudrox Source Type: forums

Other daughter is getting tested.
The CF specialist is going to test my other daughter (McKenzie) colon for the decreased CFTR function. She is on 8.5 squares a day to have a bm, constant abd pain and numerous URI since infancy. She is 11 yo and has lost 10 pounds in the last few months. Her sweat tests were negative; the first one was 32 and insufficient on other site and the second was 11 and insufficient on other site. The CF dr is going to test her colon anyways. She is a lot like Jasey. I will not be surprised if she test positive in her colon. Any thoughts or similar stories?
Source: Cystic Fibrosis Families Forum - March 28, 2012 Category: Respiratory Medicine Authors: Mistyjo Source Type: forums