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insurance question
If you have private insurance (with a deductible) AND medicare part D, do you notice that medicare ends up picking up most of the deductible?
Source: Cystic Fibrosis Adults Forum - February 4, 2012 Category: Respiratory Medicine Authors: musclemania70 Source Type: forums

Has your Cf child had whooping cough?
I imagine that whooping cough would be a tough thing for a CFer to get, and since even vaccinated kids can get it, I imagine some of you have had to deal with this one. How did it go? If you have non-CF kids who got it, how did it differ for them?   I'm learning as much as I can about the infection (and others) so I can be as prepared as possible when and if the time comes. I'm also learning about nutrition and supplements that can reduce symptoms and help the body recover. Ascorbic acid (Vitamin C) sounds particularly helpful. Anyone have any info or experience?
Source: Cystic Fibrosis Families Forum - February 3, 2012 Category: Respiratory Medicine Authors: Helenlight Source Type: forums

AquaDEK
..I am just wondering, how many ppl use it here. I got it the first time in my life last week. Sounds like a good vitamin-medication. I used to take ELEVIT before. greez, D.
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: 2DIE4Corey Source Type: forums

Training for a 5k!
Hello, I am not really someone who does any kind of exercising. This year for our cf walk they are also doing a 5k run. I have been training to try to do it, the walk is in May & I just started last week, but reallllly started this week. I want to prove to everyone, including myself, that I can do it! Anyone who has any ideas on a good way to do this feel free to let me know! I WILL do this & I will do great! Andrea  26 yrs old married for 4 years!
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: alavoie2 Source Type: forums

CF adults w/ chronic joint & mucle pain
Now there are several threads out there that touch on this issue but I felt it would be best to to start new one posing a few simple questions for those to answer.  1. Have you had your joint & muscle pain diagnosed? If so, how? 2. How do you treat your pain? 3. Is there anything that makes your pain worse? 4. How long has this been a problem for you? 5. Do you feel your pain could be related to CF and or a treatment regime in some way?   I ask these questions t...
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: abnormal Source Type: forums

G551d kalydeco/vx770
With all the frenzy of the 770 getting passed through the FDA rumors are rampant. I have read in blogs and forums everything from people claiming to feel "normal" and come off of other treatments (it is to my understanding that this is strongly discouraged) to a NY Times article that says patients "have been able to shovel snow for the first time" to people claiming that it is more of a research and development victory than it is a miracle pill and is just "another pill". I'm not sure if the study subjects are allowed to talk about the resul...
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: robert321 Source Type: forums

CFRD and hypoglycemia
Hey everyone, So I'm 23 with CF and have CF related diabetes. I was diagnosed with CFRD at 18 and get pretty crazy spikes and drops in bloodsugar every day. I wanted to put a question out there in case anyone has this problem and might be able to help. I've been getting worsening episodes of hypoglycemia every day and am practically attached to glucose tablets, I'm on hardly any insulin  2.5 u novolog in the morning for breakfast and that's it. I crash several times throughout the day and have to take loads of sugar just to come back up to normal, on the other side I hit 200 pretty con...
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: Sralidar Source Type: forums

Late Diagnosis of atypical or "variant" CF questions-late onset PI?
Hello, I am looking for help. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just received my results from a standard mutation screen (50 mutations?) and they were negative. I would think this would be good, but I'm still without answers. I am feeling a bit lost <img src="i/expressions/face-icon-small-sad.gif" border="0"> History: Asthma diagnosed in infancy. No family history of asthma but cousin on father's side has "mild" CF (Sorry, I know the term is contro...
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: Ringer Source Type: forums

Vx-770 and hemoptysis
Something I've always wondered is if drugs like vx-770 that address the underlying cause of cf will decrease hemoptysis episodes... Anyone on here have frequent hemoptysis and participate in the vx770 trials? Did you see a decrease in bleeds?
Source: Cystic Fibrosis Adults Forum - February 3, 2012 Category: Respiratory Medicine Authors: jmiller Source Type: forums

Do you ever feel inadequate?
This is the third hospitalization within the past 12 months. My boys are 11 and 4...both CFers.  It seems like no matter how hard I try, my boys keep getting sick.  I am super-compliant, but I have a nagging feeling that maybe I could have done more.  I have Crohn's and I am  experiencing a 'flare-up", I am dealing with it by taking Prednisone.  I know Prednisone makes my emotions go insanely crazy, having said that....I am having a horrific guilt trip.  I just want to hear, from anybody, that this isn't my fault. I try sooooo hard and I fee...
Source: Cystic Fibrosis Families Forum - February 3, 2012 Category: Respiratory Medicine Authors: shelij Source Type: forums

Now that VX770 is FDA approved...
Now that it's through trials an FDA approved, does everyone with the G551D mutation go on it? For anyone who is on it or has a child on it, have you noticd any differences? My kids do not have the G551D mutation, they have DF508 and Q493X. When(if) VX-809 is approved for the DF508 mutation, are we expecting similar results? I have been really keeping an eye out for news on VX-809 and Alturen as well. Thanks guys!  
Source: Cystic Fibrosis Families Forum - February 2, 2012 Category: Respiratory Medicine Authors: amber682 Source Type: forums

Parents of CF child
I am wondering after a child is diagnosed with CF did any of the parents then find out that they too had CF.  I think I have read at least one story on the forum like this.  I have one child with G542X and one child with a 5T variant.  After reading the carriers with symptoms posting recently I thought that could definately explain my symptoms.  Then it hit me that a Cf mutation and the 5T variant together causes mild CF and if I passed both of these to my children rather than my husband having one and me having one of these to pass on then that could explain my symptoms&nbs...
Source: Cystic Fibrosis Adults Forum - February 2, 2012 Category: Respiratory Medicine Authors: Beccamom Source Type: forums

Drug trials...NOT at your clinic
So Since 770 got approved I have been researching a bit.  I had read on here that they are doing a trial for those patients with one copy of deltaF508...which I have...and N1303K as my other one.  On CFF.org it lists the sites that are doing the 770/809, but my clinic is not listed. Childrens Boston is listed, but not MGH.  Has anyone ever done a trial at another clinic?  Did your doctor allow that?  How did it work with your records?  Did you have be evaluated at the new clinic?  I am VERY interested in more information.  Please let me know i...
Source: Cystic Fibrosis Adults Forum - February 2, 2012 Category: Respiratory Medicine Authors: MCGrad2006 Source Type: forums

Is there a way to gain strength back and not need oxygen help wolst exercising?
Ive just recently got out of the hospital and on home iv's ..im earning my strength back workn out and doing cardio..i had the typical mrsa infection..im pretty good and only go in hospital twice a year sometimes only once..but i do find i can do a little more running with oxygen on..only i dont want to become dependent on it..so question is getting over this chest infection and getting my strength back..can i get away from oxygen wolst exercising or is that not posible <img src="i/expressions/face-icon-small-sad.gif" border="0">
Source: Cystic Fibrosis Adults Forum - February 2, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Cystic Fibrosis/Great Strides 2012 Video!
So, this is a little piece I put together the other day for my Great Strides 2012 campaign. If you could watch it, pass it on and possibly donate, that would be AWESOME. <img src="i/expressions/face-icon-small-smile.gif" border="0"> http://youtu.be/4K-OGMj2DRs 
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: CystikOne Source Type: forums

Buffalo Wild Wings
All, Wanted to let you all know that I've been asked to share my Julie's story of battle with CF and her recent double-lung transplant at the National Convention being held by Buffalo Wild Wings in the first week of March. Why? In October of 2011, I asked our Louisville area stores (8 total) to allow Julie's Dream Team to have 10% of all our purchases be donated directly to the CF Foundation.  Those most passionate about helping us find a cure FLOCKED to Buffalo Wild Wings resulting in a donation of $2500 at the end of the 2011 year.  Our team ...
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: juliesdreamteam Source Type: forums

1717-1G>A
Could only find a thread 6 years ago on this mutation- and very little online. All I found is this site... http://www.genet.sickkids.on.ca/MutationDetailPage.external?sp=588 <blockquote> Found once in an individual who is a compound heterozygote for the 1717-1G->A. This mutation results in the increase of a string of A's into five which is expected to lead to the premature termination of product due to the formation of a TAA stop codon four codons downstream at codon position 381. Detection by SSC/HA. This mutation was shown to have been in...
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: cfsucks Source Type: forums

Sleep Issues
     I've been thinking about some of my sleep issues lately and was wondering if anyone else had any input or wanted to share thier experiences with sleep.       First off I noticed a few years ago that i felt better lung wise when i didn't sleep much and since the wife left i can sleep what ever hours without distractions.  Also i work nights and my work schedule changes a lot, but has been stable lately, so the last few months has been the first time in a long time i have had a sleep s...
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: icefisherman Source Type: forums

Vertex and our costs
Just saw a wonderful news article on wallstreet journal... The cost per year per patient for the rest of your life ...$294k per year... Most insurance companies will only cover 80%. That's $492 million profit per year.
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: minimedic304 Source Type: forums

Social Security
Hey guys. I am currently on my parents insurance as all my medications are very costly. My mom just lost her job and my job does not supply me with many hours, I also attend school. I never explored the idea of social security benefits for my CF...but is this possible? would I be able to recieve any such help? I am not in bad condition, i have recieved a lung transplant 5 years ago and am doing wonderful. What type of financial help can I recieve
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

please help..IRT levels elevated-DNA mutation negative
Hello everyone, I live in Italy and when my daughter was born almost two months ago she was screened for CF and her IRT levels were elevated. Then theyy tested DNA mutation and there was nothing found... Once she weighs about 5kg we are due to get a sweat test done. I noticed that the most common mutation is F508 which was also on her pannel and they she tested negative. What are the chances her sweat test will be positive? What else could cause anincrease in IRT levels? What symptoms should i be looking for in a newborn who may have CF?
Source: Cystic Fibrosis Newly Diagnosed Forum - January 31, 2012 Category: Respiratory Medicine Authors: enzvel Source Type: forums

Duocal
Is anyone using Duocal for their toddlers?  We're struggling with increasing his volume and wondering if this is a possible option.  He also has a milk allergy, so many of the easier options are off the table. Just wondering if anyone has used this with toddlers. Thank you!
Source: Cystic Fibrosis Families Forum - January 31, 2012 Category: Respiratory Medicine Authors: CJPsMom Source Type: forums

VX-770 - APPROVED!
For those of you this helps - congrats! For those of us 508ers - we're halfway there!
Source: Cystic Fibrosis Families Forum - January 31, 2012 Category: Respiratory Medicine Authors: CJPsMom Source Type: forums

arthritis anyone??
I am a troubled mom to a 8 year old daughter dx with JRA in 2010.. Previously healthy, then in 2010 dx with horrible resp issues, chronic cough, ear infections, sinus infections, treated her for asthma, was put on steroids for most of 2010-11 for her lungs and asthma.. she is very small for her age, always has been, and pulmonary wanted to check for CF due to chronic cough, small stature etc.. Sweat tests + and intermediate. Genotyping revealed Df508 one mutation only. She got the "whole 9 yards" of genetic work up that is available, I am told.  I just read recently that CF pa...
Source: Cystic Fibrosis Families Forum - January 31, 2012 Category: Respiratory Medicine Authors: canilucas Source Type: forums

What song do you relate your CF fight to
Hey all I have always wonderd of there are other people out there who relate a  song to there battle with CF for me its Down with the sickness by Disturbed and one else Do this
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: live2breath Source Type: forums

Insurance Coverage and Divorce (TriCare)
In a nutshell, I am a parent to a 20 year old daughter with Cystic Fibrosis. She was always covered by my BC/BS in MA, with a secondary of MassHealth, and treated at Childrens-Boston. 18 months ago, her high school sweetheart joined the military and moved to Buckley AFB, Aurora CO. Jacqui decided to marry him and follow him to Colorado to live her own life. At that time, she was placed under TriCare as his spouse, and began recieving treatments at the University of Colorado and National Jewish. In the months and years to follow, a pattern of physical abuse emerged - this was documented by the Ar...
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: vze2372e Source Type: forums

Doing cayston on the go
Currently doing month on/month off Cayston. Figuring out how to handle it when I'm out is tough. There's alot of conflicting info on how to sanitize properly, how long is ok to wait before cleaning the Altera, etc. The CFF's Altera cleaning video and Cf pharms instructions state washing with clear dish soap and tap water is fine, then sterilizing. That's what I do. When out though, sometimes I can't clean the Altera for hours. Should I be wiping down with alcohol then washing and sterilizing when I get home? I'm going on a small vaca to Disney and...
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: mamaScarlett Source Type: forums

770 approved!!!!!!!!!
Approved for G551D.  And, to make it even more exciting, it is going to work on other gating mutations...
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: dramamama Source Type: forums

Embolization question
I am considering having a (preventative) embolization.  I’ve been coughing up relatively small amounts of blood (~1T) every couple weeks for a few months now.  I’ve done IVs, have been doing all the “right” stuff, tried continuous hormone stuff, my lung function is stable around 100%, and still having the bleeds- so I’m thinking it is an enlarged artery/vein that can’t be helped.  Fortunately I am at a center with a great IR team that is on board with preventative embolizations (before you are in crisis and coughing up cups of b...
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: jmiller Source Type: forums

Genotype
F508/3272-26A>G   Anyone have these genotypes? This is what I am   Darryl  44  dx age 24    email address:    <a href="mailto:collinsd1968@gmail.com">collinsd1968@gmail.com</a>
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: BleedOrange1968 Source Type: forums

scopulariopsis species
Just wondering if anyone has any experience with this fungus.....
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: TonyaH Source Type: forums

anti-biotic usage...
Anyone experience any "side effects" from an extended and/or continous usage on anti-biotics? I know there are good bacteria throughout the body that are killed when one is on anti-biotics...especially in the stomach..so has anyone had a side effect as a direct result of that? Thanx.   PS: How many trials are left in that complement drug to the 770? That's the big one,right?
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: cmorgan Source Type: forums

Question for NAC users
Can you tell that it helps you? If so, how? Do you cough less? Get sick less often? Have more energy? I have been taking PharmaNAC for about 6 months, and I can't really say that I am noticing a difference in my health. Other things, like hypertonic saline and pulmozyme, I can definitely tell help because I can breath better and cough less. I know the Stanford study showed it reduced markers of inflammation, so I'm hesitant to stop taking it, but, at the same time, it's not exactly cheap am I'm not sure it's worth it if I don't notice it helps. Is...
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: Kristen Source Type: forums

Traveling With Cystic Fibrosis
Hi everyone! I'm 17 years old and have CF, and this summer I'll be traveling with my theater group to London for 10 days. I'm really excited for the trip, but I'm also a little worried about traveling with all of my medications. I'm currently doing Pulmozyme, Toby, and Hyper Saline, and I take 3 oral antibiotics daily, plus, of course, Enzymes and daily vitamins. For those of you that have traveled (especially out of the country), what have you done to keep your medications cold during the flight, deal with airport security, etc? If you have any tips, please share them with me! Thanks guys!
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: LilyKate Source Type: forums

Most infections at once?
I am 14 and when I was 13 I had Bronchitis, Pnuemonia, Psuedomonus, MRSA, and the flu (I know it's not an infection but thought I would add it in) and my FEV1 dropped from 100% to 68%.   So what is the most infections in your lungs you have ever had at once? What were they? How much did your FEV1 drop?
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: CFtori Source Type: forums

New drug--Kalydeco--Approved
My lovely pharmacist sister, who's always researching and keeping us up to date on CF med stuff, just sent me this email about the new drug Kalydeco, which targets the G551D CF mutation. It was just approved by the FDA a few hours ago I believe, and this could lead to the approval/release of a drug to target F508 Here's a link to the article: <a href="http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm289633.htm">http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm289633.htm</a> They're making progress!
Source: Cystic Fibrosis Adults Forum - January 31, 2012 Category: Respiratory Medicine Authors: SIcklyhatED Source Type: forums

Anyone with a tortuous sigmoid colon?
I have had MANY years of digestive issues, pain, bloating, etc.  I finally got a doctor to quit saying you have CF and IBS...what do you want me to do?  I ask the doctor to ignore the CF and pretend that I could have a problem other than CF.  He ordered a barium enema and I could see that my insides did not match the textbook pictures.  I have a spastic and tortuous (twisted) sigmoid colon.  It looks like a ball of twisted snakes.  Now they want a SITZ test to see how long it takes for markers to make it out of my system when I am not on laxatives....can anyone...
Source: Cystic Fibrosis Families Forum - January 30, 2012 Category: Respiratory Medicine Authors: Swallowtail66 Source Type: forums

Pediasure 1.5 vs Carnation
Just realized Carnation has a lot more calories per 8oz - 560 vs 350! DDs weight is okay on Pediasure, but why didn't her dietician recommend Carnation first (i.e., when she was severely underweight)? Which do you use? Why one over the other?
Source: Cystic Fibrosis Families Forum - January 30, 2012 Category: Respiratory Medicine Authors: kitomd21 Source Type: forums

Cystic Fibrosis Research Opportunity
Cystic Fibrosis Parents or caregiver with children between 6 - 17 and patients between 14+ interesting in taking an online survey, please contact me at ennio@cysticfibrosis.com or PM me. If you qualify for the study you will be compensated $30.00 for your time. Any questions, comments or concern fell free to email me ennio@cysticfibrosis.com
Source: Cystic Fibrosis Adults Forum - January 30, 2012 Category: Respiratory Medicine Authors: Ennio Source Type: forums

5 transplant anniversary
Hey the 2th of feb. Going to be a day i will light acandle for My donor and his/ her family. It going to be 5 yrs anniversary. Hugs
Source: Cystic Fibrosis Adults Forum - January 30, 2012 Category: Respiratory Medicine Authors: Swedishstar84 Source Type: forums

For those with CFRD (diabetes)
I am curious as to how others manage their diabetes and the severity of their diabetes?  I have been diabetic for over ten years and insulin dependent the whole time.  While I always need insulin it seems like I need more or less just given the season or day of the week or anything and this is hard to factor in.  I assume that for PwCF their need for insulin varies more than it does for regular disabetics.    ?????
Source: Cystic Fibrosis Adults Forum - January 30, 2012 Category: Respiratory Medicine Authors: franzie2984 Source Type: forums

Intense pain in upper back...?
Once again I'm getting this pain in my upper bck, I'd say along the medial border of my scapula. Every time I cough it's a horrible, stabbing pain, so I'm not able to cough right now, at all. This happened once before a few weeks ago, and it's sudden onset. It feels like a pleurisy, only on my upper back instead of around the front ribs. I don't know if it's due to muscle strain or what, because I've had some pretty instense, day-long coughing fits where my ribs are sore, but have never experienced this. My cough as increased over the last week or so an ca...
Source: Cystic Fibrosis Adults Forum - January 30, 2012 Category: Respiratory Medicine Authors: SIcklyhatED Source Type: forums

Shortness of breath with Bactrim
I have been taking 800 mg of bactrim 3x a day for almost a week now. I have noticed that I have shortness of breath ( and heart is racing) that I didnt have before. It's not the same mucos stuck in there and i need to get it out . And does anyone else have reoccuring UTI . My PCP said it was probably due to all the meds that I'm on. But I dont think I believe that . The only oral meds I'm on  are Nexium, Synthroid , Aquadeks & Creon  . I do take ibuprofin maybe 1 time  a day . I try to not take it every day but I have joint pain and some fever . I dont think inhaled&am...
Source: Cystic Fibrosis Adults Forum - January 30, 2012 Category: Respiratory Medicine Authors: regina65 Source Type: forums

I know this is my second child with cystic fibrosis but...
So my daughter is one week old today. She had bowel surgery to fix complicated meconium ileus on Tuesday last week and now is eating and pooping.  My question is what do cf babies poop look like before starting enzymes? My son had multiple surgerys, had an ileostomy, and didn't poop normally for a few months so I never really got a chance to see typical cf baby poo. My daughter had only been eating for three days and her poop is a sticky dark green. She is currently getting breast milk. I know as of yesterday afternoon she was still passing some left over meconiu...
Source: Cystic Fibrosis Families Forum - January 30, 2012 Category: Respiratory Medicine Authors: jacksmom Source Type: forums

Foods that are good for working out but not losing weight
I'm trying super hard to get fit at the moment, have taken up running, and am swimming twice a week. I'm in the early stages but I'm worried I'm going to lose a lot of weight. I want to take something along the lines of scandishake but I've read that that is mostly sugar really.  Has anyone any suggestions for what I could do? I'm a full time student so I don't really have time to be eating meals all through the day, but I'm worried I'm not getting in enough cals. here is my diet at the moment: Breakfast: Two slices toast w...
Source: Cystic Fibrosis Adults Forum - January 30, 2012 Category: Respiratory Medicine Authors: shamrock Source Type: forums

Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up?
Anyone with some advice or what you do is beneficial to me!..Im wanting to gain back some muscle and get my shape back..as well bringing that fev %up!..i understand it could take me some good time but thats ok with me <img src="i/expressions/face-icon-small-smile.gif" border="0">
Source: Cystic Fibrosis Adults Forum - January 29, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Transplant specifics - before and after
Hi all,  I'm coming here again in hopes of gaining some insight from you all about the gritty details of transplants (for my novel)- both before and after. Your lung % levels before treatment, how long it took for you to get the transplant after being put on the waiting list, treatments before/after, symptoms, side effects, quality of life before/after, and recovery time are kind of what I'm looking for, but the full story about you and your CF leading up to your lung transplant would be great. If you are willing to help me out, could you please PM or otherw...
Source: Cystic Fibrosis Transplants Forum - January 28, 2012 Category: Respiratory Medicine Authors: victoriathewriter Source Type: forums

Who conceived naturally?
Hi everyone, We have been ttc for a year & a couple of months. We have tried 6 months of Clomid & an IUI with Clomid. Nothing has worked. I am just curious, how many CF women actually conceived naturally? No fertility drugs, no IUIs. Also, has anyone used Vitex or any natural supplements to lengthen their cycle? I am just wondering if we should even keep trying the natural way & just stick to IUIs!? Thanks!
Source: Cystic Fibrosis Pregnancy Forum - January 28, 2012 Category: Respiratory Medicine Authors: KLeigh Source Type: forums

tiny arms
hey guys...soo i know im not the only on out there with this SUPER thin arms and a bigger chest and body...well i also have pretty tiny legs too. haha! so my question is how do i get my body more proportionate...i know this is because of malnourishment because of enyzym pancreatic problems etc..but what can i do to make my arms and legs bigger..just exercise? maybe mess around with enzymes? im not too certain what to do honestly besides build muscle. i have absolutely NO fat either of those places either...help anybody?
Source: Cystic Fibrosis Adults Forum - January 28, 2012 Category: Respiratory Medicine Authors: falloutboygurl16 Source Type: forums

CF and...
You may have guessed by my username that I have albinism in addition to CF. Anyone else have a condition that's unrelated to your CF?
Source: Cystic Fibrosis Adults Forum - January 28, 2012 Category: Respiratory Medicine Authors: albino15 Source Type: forums