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This page shows you the most recent publications within this specialty of the MedWorm directory. This is page number 21.

Implications of bodybuilding and Pseudomonas!
<p>So as always I've been digging deep through the NIH and putting links together elsewhere. Generally speaking those with CF who bodybuild fairly well and some even come back from situations with the odds fairly against them. None the less I started to ask WHY is this?</p> <p>I believe I may have found ONE of the reasons why, be it there are most likely others that I will uncover over time. Shall we begin? Let's talk for a minute about our friend PA. Scientists have discovered that mucoid PA, has one weakness - an akilees heel if you will. 87% of mucoid PA has a defect in its genetic code, whic...
Source: Cystic Fibrosis Adults Forum - January 28, 2012 Category: Respiratory Medicine Authors: Incomudrox Source Type: forums

Bleed lungs with exercising?
Hey! I recently had my 2nd lung embolization in December. Since then I have felt amazing & I have been working out 5-6 times per week. But last week, I noticed some blood in my mucus as I was running on the treadmill. Has this happened to anyone else? Am I doing too much too soon? But on the other hand I feel like the cardio keePs me from having exacerbations. I feel great minus the small bleeds. Thanks!
Source: Cystic Fibrosis Exercise and Fitness Forum - January 27, 2012 Category: Respiratory Medicine Authors: KLeigh Source Type: forums

This could be it...
<p>Hello everyone.</p> <p>So my little brother's girlfriend of 7 years was admitted to the hospital about 2 weeks ago. The first week she was doing okay and they were talking about releasing her soon. Then something happened. I'm not entirely sure what, just that her lungs stopped a week ago. It was incredibly sudden. They hooked her to a machine and put her under and she's been like that for almost a week now. Someone said she had an infection and that's what caused her to decline the way she did. The transplant surgeon had "the talk" with my brother I believe yesterday and ...
Source: Cystic Fibrosis In The Hospital Forum - January 27, 2012 Category: Respiratory Medicine Authors: Ellipsis Source Type: forums

girls onlyy please!!
<p>I hear a lot of Cf girls have problems getting pregnant due to there cervical mucus??</p> <p>How do we know if ours is to thick, or we have a problem with it and etc//</p> <p>&nbsp;</p> <p>SOrry if this is wierd queston hahaha</p>
Source: Cystic Fibrosis Pregnancy Forum - January 27, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

Pathological Blood Sugar-Level
<p>I am not yet&nbsp;on Insulin-medication, but I would like to know, if you get it via shots or as a pill medication and on what does it depend, that u get pills or the shots?</p> <p>my highest level was at 211 but doc means, I dont need medication yet.&nbsp; I mean I feel the probs, I have with the sugar, but if he means that I dont need.. hmm... I hope I wont break down with a sugar-shock.</p> <p>Thank u 4 readin my postings.</p>
Source: Cystic Fibrosis Adults Forum - January 27, 2012 Category: Respiratory Medicine Authors: 2DIE4Corey Source Type: forums

wondering if i am almost there for a transplant
<p>I was in the hospital in October because by functions were at 35%. I was in the hospital again in December with a 25%. Got a check up and my functions were at 32% about a week and half ago. I am still tight and short of breath after being on steriod, four treatments daily, and exercise. I am not on oxygen or have a fever. i guess that's a good thing. it's hard to not be negative or alarmed. just want to know if this is a start to think about transplant. talked to my doctor to and he told me that since i am not on oxygen or going to the hospital alot more than he wants to do other things like steriods.<...
Source: Cystic Fibrosis Transplants Forum - January 26, 2012 Category: Respiratory Medicine Authors: Iamqueenofeverything Source Type: forums

First stay, does it get any easier?
<p>Seeing our 7 week old daughter attached to machines is a bit unerving to say the least...does it get any easier after the first initial stay? Any tips for making the stay easier?</p>
Source: Cystic Fibrosis In The Hospital Forum - January 26, 2012 Category: Respiratory Medicine Authors: MamaBear5604 Source Type: forums

Sinus Surgery... Good or Evil??
<p>My daughter is 7 and has DDF508, She has had 2 sinus surgeries (the latest 3 months ago).</p> <p>She was hospitalized 3 days ago and on Friday the dr.s want to do another sinus surgery (with a g-tube, tonsils out, adenoids out, and place a ph probe).</p> <p>The adult CF pulminologist at our center came to our room to warn me against the sinus surgery. He feels sinus washes as well as optimizing medications are a safer route.</p> <p>It is obvious the surgery didn't work last time and he says that with the sinus surgery the ENT will essentially drill open the sinus cavity and...
Source: Cystic Fibrosis In The Hospital Forum - January 26, 2012 Category: Respiratory Medicine Authors: myohmymary Source Type: forums

G-tube.... Mickey, one-step, or the button?
<p>My daughter allissa is getting her g-tube on friday.</p> <p>a nurse came in and went over things with us, I am a bit overwhelmed. They showed us the button, the mic-key and the one step.</p> <p>Does anyone have any advice, pointers or recommendations as to which works best?</p> <p>Allissa is only 7 and I need something functional for an active climbing dancing child.</p> <p>Any advice or insight&nbsp;would be appreciated. Thanks!</p>
Source: Cystic Fibrosis In The Hospital Forum - January 26, 2012 Category: Respiratory Medicine Authors: myohmymary Source Type: forums

Cf & school... 504, public, charter, private...???
<p>My daughter is 7 w/CF, I just removed my little social butterfly from 2nd grade because the public school wasn't delivering meds right and refused to change procedure. I am homeschooling now, but am&nbsp;considering a college prep charter school. If I go this route, what should be in a CFer's 504 plan?</p> <p>What have you done with your CFer?</p>
Source: Cystic Fibrosis Families Forum - January 26, 2012 Category: Respiratory Medicine Authors: myohmymary Source Type: forums

Off topic Working from home
<p>Just wondering if any of you work from home and what do you do? &nbsp;Just thinking about things I could do from home to earn some extra money while also being there to manage my daughter's illness. &nbsp;Currently I am an RN working per diem. &nbsp;Just finding it draining to go from one caring profession and then be the full time care giver to my daughter. &nbsp; &nbsp;I do not need benefits.</p>
Source: Cystic Fibrosis Families Forum - January 26, 2012 Category: Respiratory Medicine Authors: Rebjane Source Type: forums

Don't what to do..
<p>Hi guys,</p> <p>I don't post here too often but I check the site daily and find everything you guys say to be valuable so I just want to explain my situation to who ever will listen..</p> <p>The last year and a half of my life has been extremely difficult health wise for me. I went from having a mid 70's fev1 senior year of high school and now I'm lucky to see 49% after a round of IV's. I have no clue what's causing my drop in functions. My last dr. appointment about 2 weeks ago my fev1 was down to 34% and I knew it wasn't going to be good before I even did the...
Source: Cystic Fibrosis Adults Forum - January 26, 2012 Category: Respiratory Medicine Authors: giantsfan91 Source Type: forums

Allergic against cats
<p style="padding-left: 60px; text-align: justify;">Hey guys. Does anyone has a good advice for me, what I can do!!!</p> <p style="padding-left: 60px; text-align: justify;">I was diagnosed on allergic reactions against cats. There r 5 classes on testing allergies.</p> <p style="padding-left: 60px; text-align: justify;">Unfortunately I got class 5 (the worst) at testing me against cats.</p> <p style="padding-left: 60px; text-align: justify;">Does anyone know a good medication?? Dont want to give my cat away... :-((</p> <p style="...
Source: Cystic Fibrosis Adults Forum - January 26, 2012 Category: Respiratory Medicine Authors: 2DIE4Corey Source Type: forums

My foundation needs your Votes
<p>My foundation the Breathe Easy Foundation.. www-breathe-easy.org</p> <p>Is a finalist to win a autographed guitar signed by the American Idol Judges. If we win we will auction off the guitar and all the proceeds will go directly to providing financial assistance to people with Cystic Fibrosis. We only have 24 hrs left, voting is unlimited... please send this link to anyone you know and help us win !!!</p> <p><a href="http://mix1051.radio.com/2012/01/26/vote-for-your-favorite-charity-to-get-the-american-idol-autographed-guitar/" rel="nofollow" target="_blank"...
Source: Cystic Fibrosis Adults Forum - January 26, 2012 Category: Respiratory Medicine Authors: minimedic304 Source Type: forums

I wanted to mention...
<p>... I am a 26 years old woman now and got CF since I was 3 months old.</p> <p>So if anyone wants to know something about me , or needs help or some advice. PLEASE, dont hesitate contactin me. There are so many parents here who need some Info or stuff. Would love to give my knowledge/experience further to other ppl.</p> <p><a href="mailto:thejokerd@gmx.at">thejokerd@gmx.at</a></p> <p>greez from Austria, D.!!</p>
Source: Cystic Fibrosis Adults Forum - January 26, 2012 Category: Respiratory Medicine Authors: 2DIE4Corey Source Type: forums

nervous about my health
<p>I was in the hospital in October because by functions were at 35%. I was in the hospital again in December with a 25%. Got a check up and my functions were at 32% about a week and half ago. I am still tight and short of breath after being on steriod, four treatments daily, and exercise. I am not on oxygen or have a fever. i guess that's a good thing. it's hard to not be negative or alarmed. just want to know if this is a start to think about transplant. talked to my doctor to and he told me that since i am not on oxygen or going to the hospital alot more than he wants to do other things like steriods.<...
Source: Cystic Fibrosis Adults Forum - January 26, 2012 Category: Respiratory Medicine Authors: Iamqueenofeverything Source Type: forums

How do you respond to IV treatment
<p>Just curious about how people respond to IV treatment. When I started I was producing lots of mucous and coughing a lot. 3 weeks in and I barely cough and have very little mucous (usually only comes out during treatments). Is this normal? It feels weird for me to not have much "gunk" to cough out, and I think I'm convincing myself that I'm sick/congested because I barely cough anything up.</p> <p>So basically, how do your lungs respond to IV treatments?</p>
Source: Cystic Fibrosis Adults Forum - January 26, 2012 Category: Respiratory Medicine Authors: cfsucks Source Type: forums

Being a more efficient parent.
<p>I posted this under Families / Time Management. But also wanted to ask the question from a different angle -</p> <h6 class="uiStreamMessage" data-ft="{"type":1}"><span class="messageBody" data-ft="{"type":3}">Looking for tips on managing your day with 2 lpwcf in the house. Where both parents work out of necessity ,balancing the day, physio,nebs,school run, work etc is challenging.wonder if someone out there has created an efficient routine? Thanks for your thoughts.</span></h6> <p>&nbsp;</p> <p>Is there ...
Source: Cystic Fibrosis Parenting Forum - January 25, 2012 Category: Respiratory Medicine Authors: MDad Source Type: forums

Short Gut
<p>Hi there, my daughter was born Aug 2011, she is now 6 months old and diagnosed with cf. she was diagnosed at birth due to a bowel obstructon caused by MI. she had part of her small intestine removed and is now short gut. im seeking for advise as a new diagnosed and if there is any families whos experienced the short gut as well. what can i expect? we've been in the nicu most of the time. from birth till 4 1/2 months, its been a tough road, any advice and guidence will be highly appriciated. god bless</p> <p>&nbsp;</p>
Source: Cystic Fibrosis Families Forum - January 25, 2012 Category: Respiratory Medicine Authors: MiahsMommy Source Type: forums

Please help www.dafcf.org keep its doors open in 2012
<p>As&nbsp;some of you might know,&nbsp;DAFCF is struggling to keep their doors open for 2012. <br /><br />DAFCF is a nonprofit 501(c)(3) that provides a number of legal advocacy services for persons/families with CF, who need assistance in navigating a number of services inclu<span class="text_exposed_show">ding insurance, state medical, food stamps, GHPP, social security disability benefits and other related issues.<br /></span></p> <p><span class="text_exposed_show">Last month DAFCF was nominated by friends and family and made it into the ...
Source: Cystic Fibrosis Adults Forum - January 25, 2012 Category: Respiratory Medicine Authors: julie Source Type: forums

tobramycin, ceftazidime, and insulin
<p>Since being aware of CFrD and treating with insulin, I've had two pulmonary exacerbations since October 2010 for which I've been treated with tobramycin and ceftazidime via PICC and homecare.</p> <p>&nbsp;</p> <p>After about 5 to 7 days of treatment, my insulin needs are altered dramatically. &nbsp;I must nearly halve my basal rate and almost double my I:C rate.</p> <p>&nbsp;</p> <p>I've attempted to google for this phenomenom, but with no success.</p> <p>&nbsp;</p> <p>Does anyone else experience this?</p> ...
Source: Cystic Fibrosis Adults Forum - January 25, 2012 Category: Respiratory Medicine Authors: vbs420 Source Type: forums

Pneumothorax (Collapsed lung)- whos had one?
<p>So I had a small pneumothorax in mid December, which was accompanied by subcutaneous ephysema (air bubbles in tissue).</p> <p>Anyways was just wondering if anyone else has experienced one? I've read some stats on people with CF having them and they really freaked me out. I've also read things like avoiding weight lifting and running which I have been avoiding (just starting running on treadmill again) but I'm afraid of it happening again.</p> <p>Can you tell me your experience with them?</p>
Source: Cystic Fibrosis Adults Forum - January 25, 2012 Category: Respiratory Medicine Authors: cfsucks Source Type: forums

Wednesday night chat !!
<p>Tonight, 8PM EST !! &nbsp;Hope you can make it !!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> &nbsp;joni</p>
Source: Cystic Fibrosis Adults Forum - January 25, 2012 Category: Respiratory Medicine Authors: BelEAche Source Type: forums

medic alert
<p>Hi all,</p> <p>Just wondering...do you wear a medic alert tag?&nbsp; I have been considering getting one, but I'm just not sure.&nbsp; I feel that having CF isn't enough reason to wear one for me because I wouldn't suspect any emergency situation to arise because of my CF at this point.&nbsp; However, I got to thinking about it after I had hemoptysis because I was worried about it happening when I was by myself - and what if I was by myself and had a large bleed.&nbsp; I also am a little worried too because of my frequent low blood sugars.&nbsp; I have not been diagno...
Source: Cystic Fibrosis Adults Forum - January 25, 2012 Category: Respiratory Medicine Authors: rubyroselee Source Type: forums

Pancreatic Questions - Help!!
<p>Hi,</p> <p>My beautiful 7 year old son is being evaluated (and currently treated for possible) atypical CF.&nbsp; He&nbsp;had a normal sweat test and one confirmed mutation (associated with negative sweat tests.)&nbsp; &nbsp;</p> <p>His plancreatic function declined quite rapidly from January to July of last year (fecal elastase 148, 70 in the end of Feb and 25 in July) with drop of bmi to less than 3%.&nbsp; He has been on creon with excellent improvement in weight gain (3 1/2 to 4 lbs - put him&nbsp; back to the 25% where he has always been for weight) and reductio...
Source: Cystic Fibrosis Families Forum - January 24, 2012 Category: Respiratory Medicine Authors: Justinsmom Source Type: forums

Please read
<p>Hello,&nbsp;</p> <p>My name is MacKenzie and I am writing on this forum because I want to get my sisters story out there so we can save her life. Both of my sisters were born with Cystic Fibrosis... when my eldest sister Lindsey reached 15 she was told she needed a double lung transplant or she wouldn't survive, my parents donated each a lobe of their lung to her and it was a successful operation. 4 years later Ashley turned 15 and was told also that she would need a double lung transplant or she would not survive...everyone in my family got tested and my aunts were a perfect match to donate. ...
Source: Cystic Fibrosis Families Forum - January 24, 2012 Category: Respiratory Medicine Authors: MacKenzieD123 Source Type: forums

Just for fun but CF related - Real things doctors have said to me in the hospital
<p>There is a cute site where you can make videos with animated characters. I am not advertising the site, but wanted to share the video I made.</p> <p>&nbsp;</p> <p><a href="http://www.xtranormal.com/watch/12953949/are-you-sure-that-you-have-cystic-fibrosis">http://www.xtranormal.com/watch/12953949/are-you-sure-that-you-have-cystic-fibrosis</a></p>
Source: Cystic Fibrosis Adults Forum - January 24, 2012 Category: Respiratory Medicine Authors: CFkitty Source Type: forums

has anyone else gotten mixed up while in the hospital
<p>Ok this is gonna sound strange but has anyone else gotten mixed up with another&nbsp; patient while admitted to the hoapital</p>
Source: Cystic Fibrosis Adults Forum - January 24, 2012 Category: Respiratory Medicine Authors: live2breath Source Type: forums

Run the NYC 1/2 Marathon for cystic fibrosis
<h1>New York City Half-Marathon 2012</h1> <div class="subtitle team-boomer-events-subtitle">03/18/2012</div> <p>For the second year in a row, the Boomer Esiason Foundation is proud to be among the New York Road Runners&rsquo; official charity partners for the&nbsp;<a href="http://www.nyrr.org/races/2012/nychalf/apply_2012.asp" target="_blank">2012 New York City Half-Marathon</a>.</p> <p>The Foundation will provide guaranteed entries for the&nbsp;<a href="http://www.nyrr.org/races/2012/nychalf/apply_2012.asp" target=...
Source: Cystic Fibrosis Adults Forum - January 24, 2012 Category: Respiratory Medicine Authors: BigAir Source Type: forums

Please help me (husband needs transplant)
<p>I'm going through a really hard time right now & my husband is too. He is the one with CF. We went to the Doctor today and he wasn't feeling well in the first place, but his lung function is 19%. We are both really scared, I sometimes think I am more so than him, but I don't think he wants to show he is scared. He isn't on an transplant list. About a year and a half ago he was, and they called him telling him they had a pair of lungs for him and he declined them...he said he wasn't ready. His doctor felt at that time, that he made the right choice. His lung function has been about 26% ...
Source: Cystic Fibrosis Transplants Forum - January 24, 2012 Category: Respiratory Medicine Authors: Cbegley Source Type: forums

Infant NG Feeding Tube and Vomiting
<p>Hello All,</p> <p>My daughter is 7.5 months old, we have been supplementing her with tube feeds for almost 2 months trying to get her into the 50th percentile. Recently, since colds and flus have really taken off (runny nose etc), she has been&nbsp; vomiting her feeds. There appears to be lots of mucous in it so we are happy about that, but lots of formula also comes out. My question is, is&nbsp;this a common problem, and if so any suggestions to try and get the food to stay in her. Also what order is most effective for airway clearance and feeding...ie Neb, PT, then eat...and how long to wait ...
Source: Cystic Fibrosis Families Forum - January 23, 2012 Category: Respiratory Medicine Authors: KristenLilysMom Source Type: forums

Need help with MAC(Mycobacterium avium complex)
<p>I looked back at old post to see if I could get my questions answered but none seemed to work.</p> <p>Has anyone else gone through this??&nbsp;</p> <p>Do you just feel like crap everyday and is it worth going thru the 18 months of treatment?</p> <p>I have spent about the past year in and out of the hospital every month to every other month because I have just felt so sick that I knew I needed IV's, finally I cultured MAC. &nbsp;I have had it before but it didn't grow as fast as they would have liked to start treatment right away but now I am at that point where...
Source: Cystic Fibrosis Adults Forum - January 23, 2012 Category: Respiratory Medicine Authors: cfkellygirl Source Type: forums

Reactions to Vancomycin?
<p>My son just got home from a 10 day stay in the hospital for iv vancomycin.&nbsp; He had the usual mrsa/staff infections causing pft's to decline, felt like crap, hurt all over, low energy, no appetite, the usual.&nbsp; Every couple of years my son would go in, have 10-14 days of vancomycin and be happy, healthy and bouncing off the walls.&nbsp; Last vanc. was 2 yrs ago.&nbsp; Never any issues.</p> <p>This time Joe developed "red man syndrome" where he threw up, turned red in splotches and was extremely itchy.&nbsp; I was told it was very common, they treated with bena...
Source: Cystic Fibrosis Adults Forum - January 23, 2012 Category: Respiratory Medicine Authors: TreasureGoddess Source Type: forums

Has this ever happend
<p>I was taking colisten and thought it was why I was so dizzy but I have not taking it for a while and am getting dizzy should i start with oxgen levels? if any one can give me a direction or feed back I would be grateful thanks so much</p>
Source: Cystic Fibrosis Adults Forum - January 23, 2012 Category: Respiratory Medicine Authors: kgfrompa Source Type: forums

Microcyn
<p>Just wondering if anyone here had inhaled microcyn to try and kill bactreia in the lungs?</p> <p>regards peter</p>
Source: Cystic Fibrosis Adults Forum - January 23, 2012 Category: Respiratory Medicine Authors: petersymons Source Type: forums

ESPN and Inifiti charity event! VOTE!
<p><span>Infiniti has teamed up with ESPN to donate $100,000 to a NCAA Men's Basketball coach based on votes the coach gets.&nbsp;<strong>Kevin Willard</strong>&nbsp;of Seton Hall has chosen the CFF as his charity. So vote for him in the East Bracket to get to the "Final Four" where he'll face-off against three other coaches for the 100K prize. Infiniti has already donated $5K to the CFF due to his participation in this. You do have to join ESPN.com to vote though.</span><br /><br /><a href="http://promo.espn.go.com/espn/contests/infiniti/2012/in...
Source: Cystic Fibrosis Families Forum - January 22, 2012 Category: Respiratory Medicine Authors: Incomudrox Source Type: forums

VRE
<p>My 20 yr old daughter cultured VRE (vancomycin resistant enterococci) from her last sinus surgery. She has not had any vancomycin given to her. &nbsp;The clinic and ID docs are not concerned and do not recommend any treatment. They are not concerned about her transmitting it to a non-CFer. She will be put in iso rooms from now on while in the hospital. She has not had to do this previously. The docs are also not concerned that her SA (staph. aureus) and PA (pseudomonas aureginosa) will convert to vanc resistant. Those two orginisms are already multiple drug resistant.&nbsp;</p> <p>I am concerne...
Source: Cystic Fibrosis Adults Forum - January 22, 2012 Category: Respiratory Medicine Authors: valshingle Source Type: forums

Bloodsugar got to 347 tonight
I know it was the right thing to do being on prednisone..not sure if anyones been reading my other posts but i cried cause i dont want my body dependent on it ya know <img src="i/expressions/face-icon-small-sad.gif" border="0"> realy didnt feel good though stupid steroid!
Source: Cystic Fibrosis Adults Forum - January 22, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

A thank you to all
<p>I don't post much, but read the forum quite regularly. &nbsp;We just had our first hospital admission and are currently finishing up home IV's with a picc line. &nbsp;Because of the information I have read on this forum, I think I was much more prepared for this than I otherwise would have been.</p> <p>&nbsp;</p> <p>It certainly has not been a smooth experience by any means. &nbsp;I think we have experienced more difficulties than usual, but because I had already read on here of some of the problems and solutions we are making it through ok.</p> <p>&...
Source: Cystic Fibrosis Adults Forum - January 22, 2012 Category: Respiratory Medicine Authors: 2005CFmom Source Type: forums

Introduction and Symptoms of Chronic Asthma
Breathing is a vital function for every living being on this planet and is the most basic need for all living organism. Human Respiratory system is responsible for the breathing function of the body. It is composed of Lungs and tubes also called airways. The widespread disease that affects our breathing system is chronic asthma. Chronic asthma is a long term disease which affects the functioning of respiratory system. In chronic asthma the airways of respiratory system become narrowed, and in some cases completely blocked and inflamed. People of all age groups can be the victim of chronic asthma but in most cases it starts...
Source: New Media Medicine - January 21, 2012 Category: Universities & Medical Training Authors: focusapps Tags: Weblogs Source Type: forums

Fev1 30's
<p>I cant stop crying as I write this. 14 years have gone by so fast and I am running all my memories of my daughter Alyssa in my mind so I never forget. Doctors told me that he is hitting a brick wall and does not know what to do anymore. Her Fev1 is not comming up even after a bronch. He says she is clinically a candidate for lung transplant, but CHOP will not accept her because of her "attitude". She was evaluated for lung transplant and 4 psychol.ogists could not "crack" her so they stated. She did not cry, she showed hardly any emotion. I am her mother I know her she is just not that type of ...
Source: Cystic Fibrosis Families Forum - January 21, 2012 Category: Respiratory Medicine Authors: cbritton Source Type: forums

CFRD questions
<p>Last year my son had a borderline 2 hour glucose tolerance test.&nbsp; His numbers were higher than they would like but after taking sugars at home over many days - it was decided he has cfrd but to only treat with insulin if over 200 or on steroids.&nbsp; Neither of which has happened over the past year.</p> <p>This year we are re-checking with an Ipro blood glucose sensor for a 3 day period.&nbsp; I am a type I diabetic without cf so my interpretation of his numbers would still be to treat the same way.&nbsp; Just curious to hear from those dealing with glucose issues.&nbsp; His f...
Source: Cystic Fibrosis Families Forum - January 21, 2012 Category: Respiratory Medicine Authors: JoAnn Source Type: forums

Travel Compressors and Airway Clearance Devices
<p>Hi.&nbsp; I want to get my family back out to nature...the way we were pre-diagnosis.&nbsp; Anyway, if you wouldn't mind, could you share your experiences with what the best battery operated compressors and airway clearance devices are?</p> <p>1.) My daughter is almost 5 and experiments with the acapella.&nbsp; I would like to get more use out of this one.&nbsp; Does it really work well if done correctly?</p> <p>2.) What about the battery compressors?&nbsp; Are any of them "good enough" to use for a few days?&nbsp; Do you have to find a power source an...
Source: Cystic Fibrosis Families Forum - January 21, 2012 Category: Respiratory Medicine Authors: edan Source Type: forums

Crushing Enzymes?
<p>I was reading around on a CFers question somewhere about how many enzymes to take with tube feeds. While I could not answer the question I was reading some of the responses. Apparently there used to be a powder called Viokase but it isn't made anymore or at least sellable in the US because of the same reasoning you can get Ultrase. That being said, one of the guys said he takes his Zenpep and grinds it up in a coffee grinder and adds it to his feed mix. Has anyone ever done thing? I'm assuming it would worse as enzymes need heat (i think) to start working as well as stomach acid? Someone anyone have any ...
Source: Cystic Fibrosis Adults Forum - January 21, 2012 Category: Respiratory Medicine Authors: Incomudrox Source Type: forums

Admitted into hospital yesterday
I was admitted yesterday got a good chest infection and been very short of breath and would get burning in my neck and would start to sweat and couldnt think straight...realizing my oxygen level was proly very low..started runnin low fevers and nt sleeping at all in the night..so i realize my oxygen was low and that thats what the burning feeling was posibly?..i also had very high heart rate of 140bpm.. Havent got my sputum bloodwork etc. havent had results on those yet..did find out that i was 85 with my oxygen off when i went to the bathroom cause i have a heart monitor on/oxygen number reader for ur finger..we also did...
Source: Cystic Fibrosis Adults Forum - January 21, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Anyone in the hospital?
Just seein if anyone else is in hospital to <img src="i/expressions/face-icon-small-smile.gif" border="0"> lol
Source: Cystic Fibrosis Adults Forum - January 21, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

High blood sugars wolst on prednisone..
Ok so i refused the insulin because i jus started diabetes education and when i went there we said we werent starting insulin just yet..also my cf doc said she didnt want to start that either..well this on call doctor thats covering for the weekend called it in.. I refused because i didn feel right and wanted to ask her first if it was necessary since it is only that crazy high cause of the prednisone..i have not been diagnosed as diabetic as of now an we have been just checking blood sugars an loggin 2hour after each meal as weve done the readings before meals and they were normal..so with that bein said did i do the rig...
Source: Cystic Fibrosis Adults Forum - January 21, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

INHALED AMIKACIN?? LOST VOICE .. MAC/MAI TREATMENT .. 5 ANTIBIOTICS INCLUDING INHALED AMIKACIN
<p>LOST VOICE .. MAC/MAI TREATMENT .. 5 ANTIBIOTICS INCLUDING INHALED AMIKACIN</p> <p>I had never lost my voice in my life.&nbsp; I began MAC/MAI treatment of 5 antibiotics (Ethambutol 800mg/Azithromycin 250mg/Avelox 400mg/Rifampin 300mg/Amikasin 2ml-inhaled). I then began a journey of first a sore throat .. not feeling well .. then complete loss of my voice.&nbsp; This happened 3 times in about a month.&nbsp; I then went 1.5 months just fine.&nbsp; I now have lost my voice a 4th time since 11/1/11.&nbsp; When it happened a 2nd time in 2 weeks I went to my Internist. She took an Xray ....
Source: Cystic Fibrosis Adults Forum - January 21, 2012 Category: Respiratory Medicine Authors: katemn Source Type: forums

30 weeks Pregnant
<p><strong>So here is my list of problems</strong></p> <p><strong>1. MRSA and Staph curently on bactrim until 34 weeks when doc is taking me off incase of delivering baby boy early</strong></p> <p><strong>2. Aspergillus- the devil! currently taking over my lungs causing a dry hacking cough that throws me into puking almost every time! If I have nothing to throw up its dry heaving <img src="i/expressions/face-icon-small-sad.gif" border="0"></strong></p> <p><strong>3. Weight gain- I have only gained 5 lbs with this p...
Source: Cystic Fibrosis Pregnancy Forum - January 20, 2012 Category: Respiratory Medicine Authors: alluneedislove Source Type: forums