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This page shows you the most recent publications within this specialty of the MedWorm directory. This is page number 7.

Nurse Case Manager through the ins.company
<p>Hi everyone,</p> <p>I changed to United Healthcare through my husband's employer in January.&nbsp; Yesterday I got a letter from a Nurse Case Manager saying she had been assigned to my case and is available to help me "manage my disease". Ha.&nbsp; It also said she has been trying to reach me by phone, which she hasn't.&nbsp; Neither my husband nor myself have received any calls/messages from them.&nbsp; I guess that's neither here nor there, but I guess the point is the letter just kind of irked me. <img src="i/expressions/face-icon-small-smile.gif"...
Source: Cystic Fibrosis Adults Forum - May 28, 2012 Category: Respiratory Medicine Authors: triples15 Source Type: forums

Book Recommendations for new CF Parent
<p>I am the mother of a 2 month old little girl who was diagnosed with CF at 3 weeks old. So far I have been trying to absorb as much information as I can, but I have found that the technical books I am reading aren't giving me a very real sense of what I can expect my daughter to experience over her lifetime. So....I have &nbsp;read a few autobiographical books to get a better idea of what hospital stays are like, what a daily routine is like, etc. The problem that I am finding is that they are too emotionally overwhelming for me at this point. When I tell my husband about what I am reading, he reminds me t...
Source: Cystic Fibrosis Families Forum - May 27, 2012 Category: Respiratory Medicine Authors: harrabell Source Type: forums

Everybody watch this video this kid is awesome.
<p><a href="http://www.youtube.com/watch?v=NSLx89Wx8MY">http://www.youtube.com/watch?v=NSLx89Wx8MY</a></p> <p>&nbsp;</p> <p>Dave 37 w/cf</p>
Source: Cystic Fibrosis Adults Forum - May 27, 2012 Category: Respiratory Medicine Authors: Daverog75 Source Type: forums

new, pls help
<p>Hello,</p> <p>My brother is 46 and has been sick for years; diagnosed with CF via sweat test yesterday.</p> <p>He has lost so much weight, has circulation problems, abdominal pain&nbsp;and just copious amounts of thick mucus. He has no insurance. He lost his job and also kicked out of National Guard 2 years ago bc he was too sick to work and has been looking for diagnosis since 2006.&nbsp; He is not on any medication and does not as of yet have a doctor to follow up on the CF.&nbsp; He has been to the emergency room multiple times over the last few years and they say they can&ap...
Source: Cystic Fibrosis Adults Forum - May 27, 2012 Category: Respiratory Medicine Authors: cmiller Source Type: forums

Research shows how estrogen in women causes an increase in mucoid infections.
This study opens the way to a new understanding and potentially new therapies in the treatment of cystic fibrosis, a condition in which Ireland has the highest incidence in the world. This research study is among the first examples which shows the effects of gender hormones on infections and therefore has major implications for conditions beyond cystic fibrosis including other respiratory diseases such as asthma." Dr. Sanjay Chotirmall, a Molecular Medicine Ireland (MMI) Clinician-Scientist fellow is the first author on the paper and Dr. Catherine Greene is the joint senior author. The clinical research was carried ou...
Source: Cystic Fibrosis Adults Forum - May 26, 2012 Category: Respiratory Medicine Authors: sdelorenzo Source Type: forums

What allergy medicenes do you take that helps?
So i never knew we can take allergy medicenes..iv always sufferd and been tight chested thinking its just apart of my low fev..my doctor told me to try Clairitin or Zyrtec..so i trie clairitin 24hour 10mg white small tablet...i felt great within 45 mins!..i didnt feel the tight wheeziness and could breathe so much better. Now i ended up reading reviews on Clairitin that concened me..people were saying it made them very angry, depressed, hi anxiety, rapid heart rates, etc. With that being said there were like only two comments that were good out of 50 everyone was sayig the same..now i know we are all different but have any...
Source: Cystic Fibrosis Adults Forum - May 26, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Vitamin D = IBS symptoms?
<p>I have been taking 10,000 Units of Vitamin D daily since my last hospitalization (almost 2 months) because my levels very very, very low. For the past 3-4 weeks, I have been having severe IBS (irritable bowel) type symptoms - gas, stomach bloating, cramping pain and painful BM. I've had IBS in the past and have taken Bently for it, but it has been years and years since then. The only difference in my life is taking the Vitamin D.</p> <p><br />Has anyone else experienced these issues and found that large amounts of Vitamin D were related? My doctor said that Vitamin D often HELPS IBS.</p&g...
Source: Cystic Fibrosis Adults Forum - May 25, 2012 Category: Respiratory Medicine Authors: CFkitty Source Type: forums

IUI- advice please
<p>Hi,</p> <p>Been a while since I posted on here.</p> <p>So here an update, I have had 2 failed IUI's so far and I am going for my third IUI this month, here's hoping it work!</p> <p>My question is to other cf women who have become sucessfully pregnant through IUI.</p> <p>What other helpful things did you try while going through IUI (apart from sex) to improve the chances of a pregnancy?</p> <p>&nbsp;</p> <p>Thanks for your help in advance.</p>
Source: Cystic Fibrosis Pregnancy Forum - May 25, 2012 Category: Respiratory Medicine Authors: Shine Source Type: forums

Appartments & smokers....
<p>Has anybody else had issues with living in appartment buildings and nabors who smoke? If so did you have any luck with recorse or working with the rental office to decrease the problem..</p> <p>Currently I live in an appartment building all extiror doors/walk ways. And I've got a nabor below me and beside me that while this tennent hasn't done it yet, the last guy mannaged to cause me to seaze so badly that I had an ambulence out to get me.</p> <p>I know some states have laws on the books that it basicly falls under the nusence adendum. Sadly doesn't look like it for WA state...
Source: Cystic Fibrosis Adults Forum - May 25, 2012 Category: Respiratory Medicine Authors: Hardak Source Type: forums

weird symptoms near my port
<p>Hello all,</p> <p>&nbsp;</p> <p>So I don't know if I pulled a muscle or what (maybe I should just stop doing chores...<img title="Laughing" src="include/wysiwyg/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-laughing.gif" alt="Laughing" border="0" />) or if this is related to my port. &nbsp;My port is on the right upper chest...the pain is is behind my armpit (same side), at the crease where shoulder meets arm. &nbsp;It is only when I move or lift things. &nbsp;Which makes me think it is muscle. &nbsp;BUT I am als...
Source: Cystic Fibrosis Adults Forum - May 25, 2012 Category: Respiratory Medicine Authors: MCGrad2006 Source Type: forums

Can't keep up- exhausted
I have been doing cardiac rehab. Tomorriw is my second exercise session at hospital. All if a sudden this week my hip has been bothering me... Old joint problem The past two days my left knee is giving me fits. I officially tweaked it tonight while cooling down from walking. On top of the exercise 5 days a week, I am trying to keep up with house work. So tired! My body is worn out. How do I keep up and finish with the rehab and keep up with regular life. I am normally tired so this tired is at a new level. I don't have family in the area to get me through the rehab schedule. I am on my own. Husband is working lot...
Source: Cystic Fibrosis Adults Forum - May 25, 2012 Category: Respiratory Medicine Authors: mamerth Source Type: forums

picc line help
<p>Hi everyone</p> <p>We are not new to picc lines...this is my son's 10th I think.&nbsp; But the past few years they have been falling in the summer, and because we treat m. abcessus, he's on ivs for 8 weeks...pretty much eating up the entire summer.</p> <p>I've posted here before and read others' answers about skin irritation with picc dressing.&nbsp; Andrew is very sensitive and his skin 'weeps' under his dressings.&nbsp; We have finally found a good combo that gives him a little relief but it's still not great and he is preoccupied with that d...
Source: Cystic Fibrosis Adults Forum - May 25, 2012 Category: Respiratory Medicine Authors: TonyaH Source Type: forums

Coughing
<p>We all know coughing can get pretty intense, loud and violent. My coughing once a while ends up giving me back pains. Sooo my question is, what are some ways you guys have found to ease the coughing problem. Medicine or not, i still cough. I wake up my boyfriend, Vaul, when i cuddle with my son.</p> <p>Also, side note, my son was tested for CF, and doesn't have it. Though he has the most common cf gene, g551d i think its called. And he has a chronic cough hes had since he was born and has salty sweat, i wonder if he could get these as a side effect of just having that 1 gene. Thoughts?</p>
Source: Cystic Fibrosis Adults Forum - May 24, 2012 Category: Respiratory Medicine Authors: Vampy Source Type: forums

Daughter Needs Scandishakes
<p>Does anyone have any skandishakes you aren't needing if so Please contact me we are in desparte need of some. Insurance will not cover them.</p>
Source: Cystic Fibrosis Families Forum - May 24, 2012 Category: Respiratory Medicine Authors: Terrie Source Type: forums

CT scans and our little CFers
<p>Hi. My daughter just had a CT scan that showed moderate to severe bronchiectasis in her right middle lobe and lingula. Just curious to know if other parents have received similiar results from their own childrens CT scans. Thanks!</p>
Source: Cystic Fibrosis Families Forum - May 24, 2012 Category: Respiratory Medicine Authors: ponytails Source Type: forums

HTS ineffective
<p>http://www.nih.gov/news/health/may2012/nhlbi-21.htm</p> <p>&nbsp;</p> <p>I have a feeling this will be proven mostly true for adults too.&nbsp; I think it's a good sputum induction agent, but not the miracle it's being promoted as.</p>
Source: Cystic Fibrosis Families Forum - May 24, 2012 Category: Respiratory Medicine Authors: Havoc Source Type: forums

In need of Scandishakes
<p>Does anyone have shakes and don't want them. Insurance will not cover them. Please let me know.&nbsp;</p>
Source: Cystic Fibrosis Adults Forum - May 24, 2012 Category: Respiratory Medicine Authors: Terrie Source Type: forums

CT scans and our little CFers
<p>Hi everyone. My daughter just had a CT sacn which showed moderate to severe bronchiectasis in the right middle lobe and lingula. Just curious what other parents of young kids have found out from their own kids CT scans. Thanks!</p>
Source: Cystic Fibrosis Adults Forum - May 24, 2012 Category: Respiratory Medicine Authors: ponytails Source Type: forums

Vest and postural drainage
<p>Has anyone tried their vest while in a postural drainage position? &nbsp;Just wondering if there would be a benefit, or does the vest do a good enough job without? &nbsp;I did postural drainage and percussion up until I went to college and responded well to it, but haven't done it since then (almost 20 years). &nbsp;I think the vest and drainage would kind of be like old school CPT. &nbsp;Would love some input if anyone has done this with success. &nbsp;Thanks!&nbsp;</p>
Source: Cystic Fibrosis Adults Forum - May 24, 2012 Category: Respiratory Medicine Authors: anonymous345 Source Type: forums

Airline travel
<p>Hi, All,<br />We are taking a vacation in&nbsp;a few days, and it is our first time on an airplane with a child with CF, also an albuterol puffer.&nbsp; I want to carry the meds with me in a small lunch bag.&nbsp; Sam takes Tobi, HTS, Pulmozyme and enzymes daily.&nbsp; I don't want the medicine with the other luggage because I am afraid it will get lost.&nbsp; I know there are rules about what you can have on an airplane.&nbsp; Anyone have advice?&nbsp; How have you traveled the most easily in the past?<br />Thanks,<br />rosesixtyfive,<br />mother of Sam (DD...
Source: Cystic Fibrosis Families Forum - May 24, 2012 Category: Respiratory Medicine Authors: rosesixtyfive Source Type: forums

Cystic fibrosis related Narcolepsy????
<p>Someone enterain me here.... this is my running theory.</p> <p>&nbsp;</p> <p>Narcolepsy is believed to be caused by hypocretin cell death in the brain. It is also believed that this happens in some cases due to a autoimmune response.&nbsp;</p> <p>Cystic Fibrosis can someone have autoimmune issues as we well know. A lot of us have issues sleeping or staying a sleep for one reason or another.</p> <p>&nbsp;</p> <p>My theory is that CF's autoimmune "feature" is killing off hypocretin cell receptors in the brain, thus resulting in &q...
Source: Cystic Fibrosis Adults Forum - May 23, 2012 Category: Respiratory Medicine Authors: Incomudrox Source Type: forums

New CF Clinical Trial Alert Tool
<p>Here is something new and interesting from the CFF: <br /><br />To help keep the CF community informed about CF clinical trials, the Foundation recently launched a new online tool that generates an email alert whenever new CF clinical trials and trial results are posted. Please share this news with your patients and families and sign up today at <a href="http://www.cff.org/research/ClinicalResearch/Find/ClinicalTrialAlerts">www.cff.org/research/ClinicalResearch/Find/ClinicalTrialAlerts</a></p> <p><br />&nbsp;</p>
Source: Cystic Fibrosis Families Forum - May 23, 2012 Category: Respiratory Medicine Authors: LisaGreene Source Type: forums

Liver Issues
<p>Andrew was just discharged after a 5 day admit to get started on iv therapy.&nbsp; While there initial labs (before meds were started) showed increased liver function.&nbsp; This has happened before, but only after he has been on antibiotics, not before they even started.&nbsp; They ran a liver ultrasound while we were in the hospital and it did show an enlarged liver and spleen, but nothing the doctors felt needed treatment yet..&nbsp;</p> <p>I was just curious as to others who have had frequent high liver function lab results and enlarged liver on ultrasound..how high were your number...
Source: Cystic Fibrosis Adults Forum - May 23, 2012 Category: Respiratory Medicine Authors: TonyaH Source Type: forums

acinetobacter baumanii
<p>Hi,</p> <p>My husband has acinetobacter baumanii in his last sputum culture. &nbsp;He used to only culture s. aureus that has been treated with oral augmentine and he has a pretty good fev (around 85-89%%). He is 40 diagnosed as an adult (33). &nbsp;He had some cough increase lately due to a virus we all had, and he was started on augmentine. &nbsp;He took a sputum sample to the lab before starting the treatment (white sputum). &nbsp;He has been on augmentine (oral) for five days and is doing very well. &nbsp;The cough has almost disapear, but his culture came back positive for s. a...
Source: Cystic Fibrosis Adults Forum - May 23, 2012 Category: Respiratory Medicine Authors: rvm1212 Source Type: forums

genetic sequencing
<p><a href="http://www.sciencedaily.com/releases/2012/05/120522152655.htm?utm_source=twitterfeed&utm_medium=twitter">http://www.sciencedaily.com/releases/2012/05/120522152655.htm?utm_source=twitterfeed&utm_medium=twitter</a></p>
Source: Cystic Fibrosis Adults Forum - May 23, 2012 Category: Respiratory Medicine Authors: Imogene Source Type: forums

Disability (SSI)
<p>Anyone receiving SSI for disability related to CF? I'm fixing to turn 18 and have not had a job. I was told if I got a job then my SSI would be cut out and I receive that through my insurance. Problem being, I NEED INSURANCE. What is a good alternative? I'm a bit confused. I was told that I may never have to get a job in order to keep receiving payment for my meds and stuff. I need help/advice. Thanks!!</p>
Source: Cystic Fibrosis Adults Forum - May 23, 2012 Category: Respiratory Medicine Authors: Robinranae Source Type: forums

Anesthesia issues?
<p>Something I've always wonderd, does CF have an affect on anasthesia? Do we metabolize it faster/different? The reason I ask is 3 times I've had anasthesia "issues" (well, <em>I</em> call them issues...). Time #1 and #2 I was getting a bronchoscopy and I bit down on the scope. The first time they had to give me a ton of extra anasthetic to get my jaw to relax and I was bed bound for 3 days with a massive headache and dizzyness. The 2nd time I <em>dented the scope. </em>Oops. The #3rd instance, I was getting my 1st PICC placed and it was one of the worst things I've e...
Source: Cystic Fibrosis Adults Forum - May 23, 2012 Category: Respiratory Medicine Authors: SIcklyhatED Source Type: forums

Looking for a CF Center in Northern NJ or NYC
<p>I am searching for a CF center for my 15 year old daughter who has just been diagnosed. She has &nbsp;M470v an 7T/7T. &nbsp;Her physicians said her variants an polymorphisms have nothing to do with her illness. &nbsp;They just Rx'd HyperSal and Pulmozyne due to her Bronchiectasis, and constant productive cough and fevers. &nbsp;She also has chronic sinus infections,ear infections and thank goodness no GI symptoms. &nbsp;I want to make an appointment ASAP. &nbsp;We are also going for her Nasal Potential test as soon as school gets out for the summer. &nbsp;Could someone please recom...
Source: Cystic Fibrosis Newly Diagnosed Forum - May 22, 2012 Category: Respiratory Medicine Authors: momofmia Source Type: forums

Before trying to get pregnant
<p>I think my husband and I are going to start trying to have a baby soon. &nbsp;I am sincerely ready and would love one. &nbsp;He is a little more hesitant, but I know he will be fine. &nbsp;So I am still on BC, probably won't go off of that for a few more months. &nbsp;Is there anything you ladies did at this point to get your body ready? &nbsp;I am hoping to start trying maybe in the fall or winter. &nbsp;How did you know the time was right for you? &nbsp;Was there a better season of the year for your health? &nbsp;I would much rather be pregnant during the winter months I thin...
Source: Cystic Fibrosis Pregnancy Forum - May 22, 2012 Category: Respiratory Medicine Authors: MCGrad2006 Source Type: forums

Advice?
<p>I've been married for 4 years and together for 8 years with my husband. He's always been supportive of me and my CF and has really inspired me to take good care of myself. I'm a bit of an anomaly in the CF world...my FEV1's tend to be 101-115% and I've never had problems with my weight. I've always struggled with the idea of having kids, my husband definately wants them, but when we got married we decided that it would be something that was a possibility but we would wait and see how things would pan out. There's just so many worries that I can't seem to really get over. To ...
Source: Cystic Fibrosis Pregnancy Forum - May 22, 2012 Category: Respiratory Medicine Authors: kchat17 Source Type: forums

Pneumonia Vaccine Shown to Actually Increase Bacterial Infections It Is Supposed to Prevent
<p>Pneumonia Vaccine Shown to Actually Increase Bacterial Infections It Is Supposed to Prevent</p> <h5>&nbsp;</h5> <div class="article-date"> <h5>May 22 2012 <span class="gray">|</span><span id="ctl00_ctl00_ctl00_tr_tr_tr_TotalViews">4,216</span><span class="contentText">views</span></h5> </div> <div class="hr">&nbsp;</div> <div class="clear">&nbsp;</div> <div class="side-panel"> <div id="ctl00_ctl00_ctl00_bcr_bcr_bcr_pnlS...
Source: Cystic Fibrosis Adults Forum - May 22, 2012 Category: Respiratory Medicine Authors: rmotion Source Type: forums

suggestions for a good CF center and transplant center?
<p><span class="hps">Hi,</span> <span class="hps">I</span><span>'ve been thinking about</span> writeing <span class="hps">my</span> <span class="hps">final exam</span> (<span class="hps">university</span>) <span class="hps">in another country</span>&nbsp;U<span class="hps">sa, Canada.</span> <span class="hps">any</span> <span class="hps">suggestions for</span> <span class="hps">a good&l...
Source: Cystic Fibrosis Adults Forum - May 22, 2012 Category: Respiratory Medicine Authors: Swedishstar84 Source Type: forums

Increasing eFlow efficiency with easyCare
<p>Hello!</p> <p>Some of you already know, for sure, but I didn't until a couple weeks ago and some other people don't know either. I remember reading a post,&nbsp;time ago, where somebody said after a while of using the eFlow (in particular with hypertonic saline), the nebulization time had increased so it wasn't so much better than any other nebulizer. Unfortunately I don't recall who said this, to tell her personally.</p> <p>As it turns out, when nebulizing 5 ml takes longer than 4 minutes with the eFlow, it is due to the small openings in the metal part becoming clo...
Source: Cystic Fibrosis Adults Forum - May 22, 2012 Category: Respiratory Medicine Authors: Tisha Source Type: forums

What's a healthy weight?
Hiya <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just wondering the height and weight of some of you cfers <img src="i/expressions/face-icon-small-smile.gif" border="0"> and what's a good weight to be. Iv spent ages trying to get my weight up and the doctors still want it higher haha! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm 16 years old 157cm and 60kg Xx
Source: Cystic Fibrosis Adults Forum - May 22, 2012 Category: Respiratory Medicine Authors: Musicgirl Source Type: forums

CF Fundraiser... This Thursday May 24TH.
<p>If you want some info about it check out my blog .. &nbsp;Hope to see some NJ folks <img src="i/expressions/face-icon-small-smile.gif" border="0"> &nbsp;Joni</p>
Source: Cystic Fibrosis Adults Forum - May 22, 2012 Category: Respiratory Medicine Authors: BelEAche Source Type: forums

Newly diagnosed 20 yr old
<p>Hi</p> <p>My newly diagnosed 20 yr. old started taking antibiotics/anti inflammatory meds and inhalation of hypertonic saline. He says it is making him weak and he wants to stop. The doctor says he isn't taking anything that should make him tired.</p> <p>His is VERY active and his FEV1 was 126. The clinic said his results were the highest they have seen. (He only got the diagnosis because of a sick sibling.</p> <p>Any advice?</p> <p>Thanks!</p>
Source: Cystic Fibrosis Newly Diagnosed Forum - May 21, 2012 Category: Respiratory Medicine Authors: JustaCFmom Source Type: forums

Daughter Exposed to TONS of dry dirt in the air camping
<p>Hi.&nbsp; Not sure if I am acting like a proactive parent or a nut job, but....</p> <p>We went camping with another family this weekend.&nbsp; The campsite was SUPER dusty.&nbsp; When the children were running around, they were kicking up so much dirt (so dry it was powdery) that it would hover in the air.</p> <p>Needless to say that through this and the hiking, DD breathed in a TON of dirt.&nbsp; I was trying to let her live life (she loves the kids that were camping with us), but I wanted to pull her out of there as fast as possible.</p> <p>My question is, did ...
Source: Cystic Fibrosis Families Forum - May 21, 2012 Category: Respiratory Medicine Authors: edan Source Type: forums

Digestive Care, Inc. Announces FDA Approval for PERTZYE
<p>Here is an announcement from Digestive Care about finally getting FDA approval for their enzymes. For some kids (and adults), these are the only ones that work. Here's the announcement:&nbsp;</p> <p>I am pleased to inform you that Digestive Care, Inc. just received FDA approval for our pancreatic enzyme Pertzye (formerly marketed as Pancrecarb). As many of you know, this has been a very challenging task for us. It took a lot of hard work from many individuals to finally clear this hurdle and we are looking forward to getting Pertzye on the market. Our product has been off the market since Apri...
Source: Cystic Fibrosis Families Forum - May 21, 2012 Category: Respiratory Medicine Authors: LisaGreene Source Type: forums

Family Support program in Iowa
<p>The University of Iowa has a program to provide family support for cystic fibrosis through social media.</p> <p class="default"><strong>We have four goals: </strong></p> <p class="default" style="text-indent: -0.25in; margin: 0in 0in 1.9pt 0.5in;"><span style="font-family: Symbol;">&middot;</span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Build relationships among families with each condition</p> <p class="default" style="text-indent: -0.25in; margin: 0in 0in 1.9...
Source: Cystic Fibrosis Families Forum - May 21, 2012 Category: Respiratory Medicine Authors: acrotty Source Type: forums

Digestive Care, Inc. Announces FDA Approval for PERTZYE
<p>Here is an announcement from Digestive Care about finally getting FDA approval for their enzymes. For some people with CF,&nbsp;these are the only ones that work so it's been hard on alot of people over the last 2 years. Here's the announcement:</p> <p>I am pleased to inform you that Digestive Care, Inc. just received FDA approval for our pancreatic enzyme Pertzye (formerly marketed as Pancrecarb). As many of you know, this has been a very challenging task for us. It took a lot of hard work from many individuals to finally clear this hurdle and we are looking forward to getting Pertzye on...
Source: Cystic Fibrosis Adults Forum - May 21, 2012 Category: Respiratory Medicine Authors: LisaGreene Source Type: forums

Rallying the troops.... we need to get together on this
<p>Hi everyone~</p> <p>I have some crazy news that I think we all need to be aware of as we go forward in our agreement to take the vertex drugs. &nbsp;I had become increasingly concerned about CFers getting sick and experiencing more exacerbations as the vertex drugs were being discontinued after Phase II trials. &nbsp;While the vertex scientists are not all doctors, some of them are and I feel &nbsp;and felt like they were completely falling away from one of the principal precepts of medical ethics taught to doctors: First, Do no harm. &nbsp;Yes, the drugs are life-changing in a positive...
Source: Cystic Fibrosis Adults Forum - May 21, 2012 Category: Respiratory Medicine Authors: dramamama Source Type: forums

How often are you seen in clinic?
Please vote.
Source: Cystic Fibrosis Adults Forum - May 21, 2012 Category: Respiratory Medicine Authors: Incomudrox Source Type: forums

CF participation art!
<p>Like my Facebook page to participate in Art projects.&nbsp;</p> <p>www.facebook.com/becomingpart</p> <p>Also, Does anyone have copies of their xrays they could email to me? I am trying to collect as many CF xrays as possible and assemble them!&nbsp;</p> <p>Message me for more details if you'd like.</p> <p>vicki@becomingpart.com</p> <p>Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0"></p> <p>Vicki</p>
Source: Cystic Fibrosis Stories, Artwork and Photos Forum - May 20, 2012 Category: Respiratory Medicine Authors: vthomp11 Source Type: forums

NPR podcast
<p>http://www.npr.org/blogs/money/2012/05/18/153004617/how-do-you-decide-who-gets-lungs</p>
Source: Cystic Fibrosis Transplants Forum - May 20, 2012 Category: Respiratory Medicine Authors: Rebjane Source Type: forums

Getting pregnant while awaiting Disability approval
<p>Im just curious if anyone got pregnant while on disability or awaiting approval? I am considering trying again while I am still some what healthy. I am awaiting a decision from disability. Im just not sure if they would appreciate the pregnancy lol The fortunate thing is since Ive been out of work and home doing my med regiment my FEV has improved and my weight gain hasnt been an issue. I feel now is the best time before getting sick again but am affraid it will cause disability to decline my request. Any thoughts or opinions??? Thanks in advance</p>
Source: Cystic Fibrosis Pregnancy Forum - May 20, 2012 Category: Respiratory Medicine Authors: semnle34 Source Type: forums

Having another baby
<p>We are discussing having another child, Lucas is on this kick lately that he wants a sibling..he says baby Sister. He even told my mom (my mom was picking on him bc i have a bottle of smironoff in my fridge) she told him she was gonna beat my butt because i drank it, and he yelled "Nu uh because mommy and vaul tryin to have a baby" lol we laughed. I have no idea where that came from or HOW my five year old knows that you can't consume alcohol while pregnant. Surprising to&nbsp;me. I got into my new clinic and i LOVE it. and the dr was impressed with what he observed and told me if i ever wanted ...
Source: Cystic Fibrosis Families Forum - May 18, 2012 Category: Respiratory Medicine Authors: Vampy Source Type: forums

Becoming pregnant w medical help :)
<p><strong><em>I already have one son that i had no problem getting pregnant for. And hes about five now, hes been on this kick that he wants a sister and i do want another child. So Me and My boyfriend, Vaul, decided that we are set in life with money, a home big enough, to have another baby. So after talking with my cf dr and clarifying that it would be ok to try for another, and that he would be happy to help us in achieving this goal, i would like to know from a patients perspective any advice, tips and ideas that might help.</em></strong></p> <p><strong><em><img...
Source: Cystic Fibrosis Pregnancy Forum - May 18, 2012 Category: Respiratory Medicine Authors: Vampy Source Type: forums

FDA Approval of PERTZYE
<p><a href="http://www.marketwatch.com/story/digestive-care-inc-announces-fda-approval-of-pertzyetm-pancrelipase-delayed-release-capsules-2012-05-18">http://www.marketwatch.com/story/digestive-care-inc-announces-fda-approval-of-pertzyetm-pancrelipase-delayed-release-capsules-2012-05-18</a></p>
Source: Cystic Fibrosis Adults Forum - May 18, 2012 Category: Respiratory Medicine Authors: Ratatosk Source Type: forums