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Kidney transplant advice?
Forum: Advice on Everyday Issues Posted By: TheGuy117 Post Time: 21-02-2013 at 23:22 (Source: The Student Room)
Source: The Student Room - February 22, 2013 Category: Universities & Medical Training Source Type: forums

And you thought you were a big shot anesthesiologist
.... because you do heart/liver/lung transplants? Have you done one of these? Quote: Fecal transplant from mom cures ailing toddler http://vitals.nbcnews.com/fecal-transplant (Source: Student Doctor Network Forums)
Source: Student Doctor Network Forums - December 28, 2012 Category: Universities & Medical Training Authors: urge Tags: Anesthesiology Source Type: forums

Immunosuppressed patients and sushi?
One of my patients asked if they could still eat sushi and sashimi now that they are on immunosuppressants for a heart transplant. I was actually stumped by this, never heard of anyone getting an infection off of sushi? :confused: (Source: Student Doctor Network Forums)
Source: Student Doctor Network Forums - December 12, 2012 Category: Universities & Medical Training Authors: Sparda29 Tags: Pharmacy Source Type: forums

Transplant update....
Hey everyone! I know I haven't been on in a while but I thought I'd update you all in my transplant journey. I'm about 3/4 through all the paperwork. The next step is waiting for the call to go down to Mayo Clinic, Jacksonville, FL for evaluations and then I'll be added to the list! I'm a little anxious, a little nervous, a little scared. Ultimately, I can't wait at my second chance at life! Last month, I was hospitalized for hepatic ensephalopathy- a bad sign that my liver is declining. My liver got backed up in metabolizing things and the toxins went into my blood stream and went to my bra...
Source: Cystic Fibrosis Adults Forum - August 2, 2012 Category: Respiratory Medicine Authors: krisgabes Source Type: forums

Allergic to Anitibiotics!?!?!
So Dr. is saying i have this delayed serum sickness. A week after coming off antibiotics esp sulfa i get really sick like flu symptoms! Absolutlely miserable! Joints ache, fever, chills, sweats, coughing tons, lots of mucus. So now he has switched me to Minocycline and Cipro with prednisone for 10 days. But i am gettting super dizzy and nauseaous. What can i do?? this is miserable. He says if im not better by monday then picc line, but none of the meds are working.....they are making me more sick then if i wasnt on them. Plus my lung function is dropping from 50's 4 months ago to the low 30's!! I have ne...
Source: Cystic Fibrosis Adults Forum - July 29, 2012 Category: Respiratory Medicine Authors: alluneedislove Source Type: forums

For those who experienced a lung colapse
Ive noticed ever since my lung colapsed that now i have his weird spasm seems like over my heart or maybe its a muscle around there its anoying i get it when i wear oxygen as well when on the treadmill..i just got out of hospital i did my treadmill in there and always had the heart monitor on and nothing was ever alerted as abnormal..when i had done the heart part on transplant work up they said my heart was great for transplant and no known problems were detected..so with thats bein said what is this? If you get it can you explain what it is :-) (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - July 20, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Jerry Cahill - Double Lung Transplant - runs 10K
http://news.runnersworld.com/2012/07/20/a-double-lung-transplant-then-a-10k/ (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - July 20, 2012 Category: Respiratory Medicine Authors: BigAir Source Type: forums

Transplant
My son 19 with cirrohsis of the liver, enlarged spleen with low platelet count, hemolosis, insulin diabetic, and acites.  He was doing very well until age 17, FEV1 was 130% now it is 30%.  I have no idea why things had to wait until now.  I believe his liver was the cause of lung function going down, but the doctors do no think so.  His attitude is horrible for all that he has been through especially this year in for the 7th time with one by helicopter because potassium was 7.9 from previous discharge on diaretic for acites.  He go to dehydrated.  He constantly...
Source: Cystic Fibrosis Transplants Forum - July 19, 2012 Category: Respiratory Medicine Authors: yogibear1967 Source Type: forums

I have a Free Therapy Vest for someone who can't afford one
I have a Therapy Vest (American Bio Systems) from the late 90's.  It is an adult size vest.  I am 5'1" and was around 130 lbs when I was using it.  It has not been used in the 8 years since I had my lung transplant.  I am moving soon and do not wish to store it any longer, so I wanted to help someone who could not afford one.  All I ask is that you pay for the shipping fees.  When my insurance company paid for it, it was a $20,000 machine.  I have no idea what it would cost today as it is an older model.  Therapy vests aren&apos...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - July 18, 2012 Category: Respiratory Medicine Authors: drlaura Source Type: forums

Metoprolol and advair
Just seeing if anyone takes both of these together and is it ok?..reason i ask is because when i went and seen my cf doctor they started me on advair but was un aware that the transplant doc started me on metoprolol. When i had called my transplant doc she said that if i had asthma that maybe metorpolol wasnt a good idea?..but it was not confirmed i have asthma. Im being prescribed metoprolol because i have a high heart rate even before i started advair but my oxygen is normal..so they want me to take half a 25mg pill twice a day so yes its a low dose i think the lowest as i know people who take alot more higher dose..so i...
Source: Cystic Fibrosis Adults Forum - June 17, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Doctor suggesting evaluation for transplant
We are in the hospital in New Orleans for a "tune up" and Parker's doctor is talking about having him evaluated for a lung transplant once he is doing better.  He wants them to make the evaluation to see if it is time to start looking at those ideas or do we still have some time to wait and see if we can move on without needing a transplant.  Does anyone have suggestions, ideas or feedback?  I am not even sure where to go from here other than collecting information from every possible source I can find. (Source: Cystic Fibrosis Families Forum)
Source: Cystic Fibrosis Families Forum - June 12, 2012 Category: Respiratory Medicine Authors: jimiv Source Type: forums

Liver Transplant
Hi guys.. I haven't logged on to this in a while but was just wondering if anyone has had a liver transplant? I am 20 yrs old have severe CF related liver disease and hepatocellular carcinoma (Cancer) on my liver and have been waiting almost 6 months for a transplant. I'm really frustrated now because while I am at the very top (No.1) on the list for my size, blood group and priority, I am getting sicker in the mean time. I am in and out of hospital every 2 weeks or so with recurrent chest infections and am just so fed up of it all!  I'm supposed to be working at keeping ...
Source: Cystic Fibrosis Transplants Forum - June 11, 2012 Category: Respiratory Medicine Authors: xxlilmissmorrisseyxx Source Type: forums

Fertility question about my son DDF508 mutation
We found out my son had CF at 4 months.  He will be 16 in 2 weeks.  We just learned he has the DDF508 mutation.   I tried to research this answer and I see a lot of different answers out there.  I know there is no clear way to answer as well because I know that each individual is different.  I know some men that have CF and they have natural children (actually I know two personally).  I also understand that its quit possible that he does not even have a vas deferens gland.   But, I will go ahead and ask an...
Source: Cystic Fibrosis Pregnancy Forum - May 16, 2012 Category: Respiratory Medicine Authors: Allansarmy Source Type: forums

Weight
Hello all,  I've recently lost about 30lbs in the past 7, or so, months. I went from 107 to 75. Now, keep in mind, this is 4 1/5 years post double lung transplant.  Before my transplant, I was 4'10", and weighed 85lbs. I couldn't gain weight at all before transplant. After transplant I gained well over 40 lbs and got up to 130lbs but got told by my doctors to lose some weight so I wasn't overweight for my height.  In October 2011, my health changed drastically, and with my lungs working much harder and havi...
Source: Cystic Fibrosis Adults Forum - May 16, 2012 Category: Respiratory Medicine Authors: kallaart Source Type: forums

Becoming a surrogate for my sister
Hello everyone,  my sister just recently recieved a double lung transplant about 3 weeks ago. So far she's having an amazing recovery, and I'm really excited for her and her future. She's been wanting kids for years and has tried for so long, but never successfully got pregnant. Now that she's had transplant the chances of her getting pregnant seems more unlikely (or does it?) Anyway, I would love nothing more than to be her surrogate. I was just wondering if it's possible for her to give eggs? Does anyone know the process?<br /...
Source: Cystic Fibrosis Pregnancy Forum - May 11, 2012 Category: Respiratory Medicine Authors: MsBumba Source Type: forums

CF guidance/advice
Hi all, I'm new to this forum and have spent all morning reading! My husband and I are the legal guardians of our grandson. He is 4 years old and his mom (my stepdaughter) recently passed away from complications relating to CF. She was post double lung transplant and the official cause of death was sepsis due to rejection of transplanted lungs. My grandson has undergone testing for CF. He had 2 borderline tests in 2009 (45 and 45, then 55 and 59). He has the genetic mutation 3120+1G>A. Unfortunately my stepdaughter opted to not do further testin...
Source: Cystic Fibrosis Families Forum - May 7, 2012 Category: Respiratory Medicine Authors: alittleazfamily Source Type: forums

Exercising???
I'm having a very difficult time getting out and exercising. The past few months my lung function has been steadily declining, and I'm being evaluated for transplant. I'm trying desperately to not only gain weight, but still keep active. I know I need the muscle to keep me strong for surgery, it helps my lungs and it would help with my depression. Problem is, I'm so tired most of the day and just taking my dog outside twice a day is exhausting. I still have a gym membership. I used to go walk on the treadmill about three times a week, and now I haven't been there in abou...
Source: Cystic Fibrosis Exercise and Fitness Forum - May 5, 2012 Category: Respiratory Medicine Authors: MeasureInLove Source Type: forums

Pseudomonas in CF lung transplant patients?
My wife is a CF patient and had a bilateral pulmonary transplant 10 years ago. Recently (about 7 weeks ago) she contracted the first serious infection since the transplant procedure. She was hospitalize 10 days ago (after consistent drop of her physical ability) had a bronchoscopy done and the histologic examination determined she has Gram-negative bacteria (most probably pseudomonas). She was discharged 5 days ago with a PICC line for IV piperacillin treatment. Her peak flow went from her normal 380mL to 200-240 mL and has not improved even after she started to receive the piperacillin (it actually dropped a bit ...
Source: Cystic Fibrosis Transplants Forum - May 1, 2012 Category: Respiratory Medicine Authors: arijec Source Type: forums

I have been posting alot and im sorry if i sometimes dont make sense..i do this on my iphone :) ..i had rapid response called in my room last night
So an update i did end up having a blood patch placed and a new chest tube thanks to my transplant team!..my cf doctor told me there was nothing they could do for me to help my lung..and i just knew that wasnt true after all the responses i was recieving on here and im so thankful!..i was persistant and kept saying i want transplant as a last resort because nothing else we tried worked..and at first even the transplansplant team thought i was crazy..but then something clicked with them..all of a sudden one morning my surgeon came and saw me an said they had a meeting last night and wanted to do more for me since it was a c...
Source: Cystic Fibrosis Adults Forum - April 30, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option?
Just over a week ago i i was told i didnt need to start transplant evaluation because i was to healthy and theyd just continue to see me every time i saw my cf doctor..well just over a week ago i had this spontaneous pneumo happen and now there telling me transplant is the only answer?...i feel my pneumo happend because i was deprived my pulmozyme for two weeks and in those two weeks was when i was waking up very wheezy and was clogged because of no pulmozyme <img src="i/expressions/face-icon-small-sad.gif" border="0"> and i was without it because medicare decided it was to expensive to cover two ...
Source: Cystic Fibrosis Transplants Forum - April 27, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Result from the pneumathorax is i need a lung transplant
I need alot of support..my lung has healed 80% but 20% is still not reinflating there looking at taking me off suction tomorow to see how i tolerate that..id i tolerate that ok then ill have a smaller tube put in and be sent home as well tomorow im starting my transplant evaluation so il be dealing with all that to..this is all so scary for me..just over a week ago i was told i was to healthy and didnt need to start transplant eval now i need it to live..amazing how quick things can change and i am so emotionally stirred up yesterday i was balling my eyes out all day.. My question is though i wander if there is anything e...
Source: Cystic Fibrosis Adults Forum - April 23, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

I need a change ...
Hello everybody, I really need to ease my mind and to arrange my thoughts! Around three years ago my FEV dropped to the mid-thirties: From an original around 50% to max. 30 - 35%. That was a huge shock for me. Before that drop I used to lead a normal life. Doing the household was no big effort and in my freetime I loved doing sports like climbing, jogging and similar stuff. Now that my FEV is so much lower, my life is NOT the way it has been before! I still do the household, but EVERYTHING has become a struggle for me. I can´t be spontaneous an...
Source: Cystic Fibrosis Transplants Forum - April 23, 2012 Category: Respiratory Medicine Authors: juliemarie Source Type: forums

getting irritated by people who say this to me
i know my loved ones mean well but what gets on my nerves is when people say to me "you can not do that because it will be too hard on your health". what irritates me more is when they say  that when i offer to help them move or tell them one of my dreams which is to travel around the usa in a rv so i can explore, have fun adventures, and see the historical sites. the people who say these things are more "unhealthy" than me. my lung functions are in the low 30s but i can do 3 miles in 25 minutes plus walk a mile in 20 minutes. this is more than wha...
Source: Cystic Fibrosis Adults Forum - April 21, 2012 Category: Respiratory Medicine Authors: Iamqueenofeverything Source Type: forums

My lung collapsed
I been doing great feeling fine..well i was deprived my pulmozyme for two weeks because medicare decided they werent going to cover two boxes a month because its to expensive?..so cause i was short of the medicene i was without for two weeks..i then start it back up started running the fevers and feeling like flu cause thats how i always get and then this time though my lung colapses..ive never had this and it was scary i thought i was going to die..i told the ambulance people when they showed up as i was laid out on the floor wearing oxygen..i have cystic fibrosis please dont let me die ..so it was shown only a 1/3 of my ...
Source: Cystic Fibrosis Adults Forum - April 16, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

Other/Not applicable Heart Transplant and Sympathetic/Parasympathetic Nervous systems
Forum: Biology Posted By: crazycake93 Post Time: 14-04-2012 at 12:41 (Source: The Student Room)
Source: The Student Room - April 14, 2012 Category: Universities & Medical Training Source Type: forums

Feel Like He's Killing Himself- Please Please Help
I'm in a commited relationship with someone who has CF. For some quick background information my partner is in his late twenties and has already recieved a liver and lung transplant and has CF diabetes.   I need help. I need answers. Please read this and give me any information you can pass along to ease my mind or steer me in the right direction. My partner is very good about taking his morning and night time medication, granted, I remind him every chance I get just as a back up so he doesnt accidently forget (his lungs are still very new so I d...
Source: Cystic Fibrosis Adults Forum - March 23, 2012 Category: Respiratory Medicine Authors: CFstubborn Source Type: forums

Looking for some insight
I am currently going through my workup for a double lung transplant. While I have had long discussions with my transplant team, I'm looking for insight from those of you who have gone through the process. I am most concerned about my time in the hospital (waking up, daily activities in the hospital, what to bring, etc.). If anyone would like to private message or email, please let me know <img src="i/expressions/face-icon-small-smile.gif" border="0"> (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - March 21, 2012 Category: Respiratory Medicine Authors: MeasureInLove Source Type: forums

Fundoplication, Reflux, and CF Lungs
I have CF, CFRD, Gastroparesis, and for the last year severe reflux. I had a pH-impedence test which came back normal, other than regurgitation being associated with cough. My gastroparesis is severe and I take two medications to treat delayed gastric emptying: Motilium alternated every other week with Ganaton. I am considering having a nissen fundoplication to prevent reflux. My GI doctor, whom I respect, does not recommend a nissen fundoplication. He said that my pH-impedence test was normal and does not indicate a need for fundoplication (stomach wrap). However, I do have symptoms of ref...
Source: Cystic Fibrosis Adults Forum - March 19, 2012 Category: Respiratory Medicine Authors: UNCLoveCF Source Type: forums

Advice on the flu
Last tuesday during my sons spring break he started to run a fever.  We went to the hospital and he was diagnosed with the flu.  When we were admitted into the hospital we found out that 12 other CF kids were admitted on the same floor for the same thing.  I begged to go home with my son since he does have a port and a home nurse that could come out and see us.  I just didnt think that being there would br good for us.  Now that we're home and hes starting to feel better, When do I send him back to school? I'm terrified ri...
Source: Cystic Fibrosis Families Forum - March 19, 2012 Category: Respiratory Medicine Authors: JORDANSMOM Source Type: forums

Reeling tonight
I don't know what to say, or even if it should be said; but I & my family are reeling from the realities that are hard to swallow.   We were told 2 weeks ago that we were/had run out of options to prolong the life of Micah's liver and we needed to start considering our plans as he is not a candidate for a transplant.   Today, after over an hour meeting with an amazing doctor & nurse with the Peds Palliative care team we have put our wishes and plans into writing.   &...
Source: Cystic Fibrosis Families Forum - March 6, 2012 Category: Respiratory Medicine Authors: just1more Source Type: forums

Can someone help me
I am F508 and other one is 3272-26A>G. Can someone find info about this seems like oddball genotype? I can't find much at all about it. I have done pretty well w my cf thx to God! My pft's started falling in dec and I was working out 4 times a week. Was stressed out when moved in w my mom. Pft's kept falling so Vandy docs put picc in dec 31 came back n thy were down even more but I didn't feel bad n could get an app w doc!! Tht made me mad! I started getting sick bout week later n had to be put on oxygen for first time ever! Pft's kept falling so put another picc in n thy still fell. So at this ...
Source: Cystic Fibrosis Newly Diagnosed Forum - March 4, 2012 Category: Respiratory Medicine Authors: BleedOrange1968 Source Type: forums

Stage 3 chronic kidney disease
Discussion Boards)
Source: MD Health Forum - Medical Discussion Boards - February 28, 2012 Category: Consumer Health Advice Authors: doublel Tags: Patient Experiences Source Type: forums

Question
I posted this a few days ago but my post got transferred to the "Transplants" board and I only got one response.  Anyways...I'm on the list for a double lung and liver transplant. I was wondering if there is a list of things that a transplant patient cannot do or have after the transplant? I know that patients can't eat grapefruit and should avoid big crowds. I'm sure there's things that I should avoid due to the immunosuppressants but I'm not sure what that would be. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 28, 2012 Category: Respiratory Medicine Authors: randomgirl Source Type: forums

What can't you do after a transplant?
I'm on the list for a double lung and liver transplant.  I was wondering if there is a list of things that a transplant patient cannot do or have after the transplant?  I know that patients can't eat grapefruit and should avoid big crowds.  I'm sure there's things that I should avoid due to the immunosuppressants but I'm not sure what that would be. (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - February 27, 2012 Category: Respiratory Medicine Authors: randomgirl Source Type: forums

CF documentary on Tlc Wednesday at 9pm(central)10pm (eastern)
Cf documentary on Tlc wednesday! The girl is told she has 6months to live and needs her double lung transplant and shes fixing to be married. Was making this aware for everyone who may have not known!  (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - February 27, 2012 Category: Respiratory Medicine Authors: carly23 Source Type: forums

What can't you do after a transplant?
I'm on the list for a double lung and liver transplant.  I was wondering if there is a list of things that a transplant patient cannot do or have after the transplant?  I know that patients can't eat grapefruit and should avoid big crowds.  I'm sure there's things that I should avoid due to the immunosuppressants but I'm not sure what that would be. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 27, 2012 Category: Respiratory Medicine Authors: randomgirl Source Type: forums

Need a Lung Transplant
Hi everyone. I know I havent been up here much. I've been quite sick in the last year. I am now on O2 24/7 at 4-6 lpm. I now have CFRD. My FEV1 have dropped to 24-27% (depending on the day). I am constantly on IVs. My CF has progressed much faster than we anticipated. The Drs have told me I am in my transplant window & it is time for a lung transplant. In March, I will have to relocate to be closer to my transplant clinic at Duke Hospital & unfortunately my insurance does not cover the cost of relocation. I know everyone ...
Source: Cystic Fibrosis Adults Forum - February 22, 2012 Category: Respiratory Medicine Authors: blindhearted Source Type: forums

Jerry Cahill got the call for Lung Transplant
Good luck to Jerry who got the call for his new lungs. 9pm he was awaiting the news of whether or not the lungs were any good. The lungs are in another state. (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - February 21, 2012 Category: Respiratory Medicine Authors: LouLou Source Type: forums

recieving benefits
Hello,   I have asked a question like this a few weeks ago, but I am just so lost and not sure where to go...everybody keeps making me run laps to find the answers I need.... I am a 19 year old girl with CF..I recieved a lung transplant 5 years ago. I currently just lost my job a few weeks ago, as they went out of businuss. I need to leave my house and establish my own household..my parents will no longer assist me with financial help...I do not have insurance on my own so I am trying to apply for medicaid but I am not sure how to get approved for that being that my p...
Source: Cystic Fibrosis Adults Forum - February 17, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

How many of you underwent an abortion
I had sex with this guy last night, we used a condemn and of course it broke and he came in me...im very afraid i may be pregnant, im not on birth control or anything..hopefully my cf will make it harder to become pregnant..but if i were, i would get an abortion considering my situations..sorry if some of you dont agree..........but would this harm my health?? has anyone here had 1?? I had a lung transplant years ago... (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - February 10, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

Husbands in Hospital
Last time he was in the hospital was back September 2011. He is in again. His lung function is 17% and we are going to talk to the lung transplant specialists today so that he can be listed as active again on the list. I'm worried right now because his x-ray showed a pocket of something in his chest. His Dr. just sent him for a CT scan to see if it is an infection of something or pnemonia. They said that if the pocket gets too much bigger and is an infection that they might have to go in and drain it (which poses the risk of punctering a lung she said) So that made me worry even more. I would just like if I c...
Source: Cystic Fibrosis In The Hospital Forum - February 7, 2012 Category: Respiratory Medicine Authors: Cbegley Source Type: forums

Buffalo Wild Wings
All, Wanted to let you all know that I've been asked to share my Julie's story of battle with CF and her recent double-lung transplant at the National Convention being held by Buffalo Wild Wings in the first week of March. Why? In October of 2011, I asked our Louisville area stores (8 total) to allow Julie's Dream Team to have 10% of all our purchases be donated directly to the CF Foundation.  Those most passionate about helping us find a cure FLOCKED to Buffalo Wild Wings resulting in a donation of $2500 at the end of the 2011 year.  Our team ...
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: juliesdreamteam Source Type: forums

Social Security
Hey guys. I am currently on my parents insurance as all my medications are very costly. My mom just lost her job and my job does not supply me with many hours, I also attend school. I never explored the idea of social security benefits for my CF...but is this possible? would I be able to recieve any such help? I am not in bad condition, i have recieved a lung transplant 5 years ago and am doing wonderful. What type of financial help can I recieve (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - February 1, 2012 Category: Respiratory Medicine Authors: Angel2393 Source Type: forums

Transplant specifics - before and after
Hi all,  I'm coming here again in hopes of gaining some insight from you all about the gritty details of transplants (for my novel)- both before and after. Your lung % levels before treatment, how long it took for you to get the transplant after being put on the waiting list, treatments before/after, symptoms, side effects, quality of life before/after, and recovery time are kind of what I'm looking for, but the full story about you and your CF leading up to your lung transplant would be great. If you are willing to help me out, could you please PM or otherw...
Source: Cystic Fibrosis Transplants Forum - January 28, 2012 Category: Respiratory Medicine Authors: victoriathewriter Source Type: forums

This could be it...
Hello everyone. So my little brother's girlfriend of 7 years was admitted to the hospital about 2 weeks ago. The first week she was doing okay and they were talking about releasing her soon. Then something happened. I'm not entirely sure what, just that her lungs stopped a week ago. It was incredibly sudden. They hooked her to a machine and put her under and she's been like that for almost a week now. Someone said she had an infection and that's what caused her to decline the way she did. The transplant surgeon had "the talk" with my brother I believe yesterday and ...
Source: Cystic Fibrosis In The Hospital Forum - January 27, 2012 Category: Respiratory Medicine Authors: Ellipsis Source Type: forums

Please read
Hello,  My name is MacKenzie and I am writing on this forum because I want to get my sisters story out there so we can save her life. Both of my sisters were born with Cystic Fibrosis... when my eldest sister Lindsey reached 15 she was told she needed a double lung transplant or she wouldn't survive, my parents donated each a lobe of their lung to her and it was a successful operation. 4 years later Ashley turned 15 and was told also that she would need a double lung transplant or she would not survive...everyone in my family got tested and my aunts were a perfect match to donate. ...
Source: Cystic Fibrosis Families Forum - January 24, 2012 Category: Respiratory Medicine Authors: MacKenzieD123 Source Type: forums

Please help me (husband needs transplant)
I'm going through a really hard time right now & my husband is too. He is the one with CF. We went to the Doctor today and he wasn't feeling well in the first place, but his lung function is 19%. We are both really scared, I sometimes think I am more so than him, but I don't think he wants to show he is scared. He isn't on an transplant list. About a year and a half ago he was, and they called him telling him they had a pair of lungs for him and he declined them...he said he wasn't ready. His doctor felt at that time, that he made the right choice. His lung function has been about 26% ...
Source: Cystic Fibrosis Transplants Forum - January 24, 2012 Category: Respiratory Medicine Authors: Cbegley Source Type: forums

Fev1 30's
I cant stop crying as I write this. 14 years have gone by so fast and I am running all my memories of my daughter Alyssa in my mind so I never forget. Doctors told me that he is hitting a brick wall and does not know what to do anymore. Her Fev1 is not comming up even after a bronch. He says she is clinically a candidate for lung transplant, but CHOP will not accept her because of her "attitude". She was evaluated for lung transplant and 4 psychol.ogists could not "crack" her so they stated. She did not cry, she showed hardly any emotion. I am her mother I know her she is just not that type of ...
Source: Cystic Fibrosis Families Forum - January 21, 2012 Category: Respiratory Medicine Authors: cbritton Source Type: forums

Success at University of Kentucky
On December 19th, my Julie was successfully transplanted at the University of Kentucky.  I can't tell you the happiness in my heart for her.  I wanted to share a couple of things with you all:<div> </div><div>1)  In our CF community, we MUST change our mindset in so far as when we seek transplant options.  For 40 years, Julie did as doctors ordered.  Through no fault of her own, she arrived at UK in dire need of a transplant.  Her score was 81.  We, as a CF community, have to find a way to get to the transplant docs early enough....
Source: Cystic Fibrosis Transplants Forum - December 21, 2011 Category: Respiratory Medicine Authors: juliesdreamteam Source Type: forums

Aging with cf
<div>Trying to get on the transplant list. They do a bunch of evaluations. Found that my aortic valve is calcified, (needs replacement) and arteries are hardened a bit. They won't move ahead with the transplant till heart issues are fixed. </div><div> </div><div>Any other "older" cf'ers out there with heart issues? </div><div> </div><div>Dietitians? Any advice on diet now that cholesterol has become an issue?</div><div> </div><div> </div> (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - December 20, 2011 Category: Respiratory Medicine Authors: 1BumLung Source Type: forums