MedWorm.com provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest items from the 'Dementia' source. Wed, 08 Feb 2012 16:54:23 +0100 http://www.medworm.com/index.php?rid=5583280&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F11%2F1%2F132%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5583280 Thu, 12 Jan 2012 05:00:00 +0100 5583280 http://www.medworm.com/index.php?rid=5583279&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F11%2F1%2F131%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5583279 Thu, 12 Jan 2012 05:00:00 +0100 5583279 http://www.medworm.com/index.php?rid=5583278&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F113%3Frss%3D1 Conclusions: The findings contribute to the development of interventions for the support of informal caregivers. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5583278 Thu, 12 Jan 2012 05:00:00 +0100 5583278 http://www.medworm.com/index.php?rid=5583277&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F95%3Frss%3D1 The incidence of Alzheimer's disease (AD) is predicted to grow by multiples in the coming decades, and today's young adults will be formal and/or informal caregivers in unprecedented numbers. Their ability to support the independence and well-being of people with AD will depend on their ability to identify intact social and cognitive abilities, selfhood, and needs of people with AD. This case study, conducted in an undergraduate seminar, provides preliminary, suggestive evidence for the educational advantages of a Bio-Psycho-Social approach to understanding these aspects of people with AD. Findings revealed a striking increase in students’ accurate understanding of: (1) the losses due to AD; (2) intact positive qualities in and inaccurate negative stereotypes about people with AD; an... Dementia journals http://www.medworm.com/rss/comments.php?id=5583277 Thu, 12 Jan 2012 05:00:00 +0100 5583277 http://www.medworm.com/index.php?rid=5583276&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F75%3Frss%3D1 A literature review highlighted the importance of understanding the subjective experience of spirituality and dementia. Two research aims were identified: to build an understanding of how older people's experience of spirituality, religion or faith is affected by having dementia and to understand how the spiritual aspects of their lives affect the experience of dementia. Six older people with mild to moderate dementia were interviewed about their experience of spirituality and dementia. Interview transcripts were analysed using Interpretive Phenomenological Analysis. Five superordinate themes were identified: experience of faith; searching for meaning in dementia; ‘I'm not as I was’ – changes and losses in experience of the self; staying intact; and current pathways to sp... Dementia journals http://www.medworm.com/rss/comments.php?id=5583276 Thu, 12 Jan 2012 05:00:00 +0100 5583276 http://www.medworm.com/index.php?rid=5583275&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F61%3Frss%3D1 The aim of this qualitative study was to describe and investigate the effects of a programme of stand up comedy and improvisation workshops on people with early stage dementia. Interviews from participants (n = 6), their carers (n = 6), and the comedian facilitator were analysed using constant comparative analysis. The findings indicated that dementia did not prevent participants from laughing appropriately or successfully creating and performing comedy. The data suggest that the programme may have therapeutic benefits as improvements in memory, learning, sociability, communication and self esteem were demonstrated. The study also develops a set of hypotheses for further research which includes: that active participation by people with dementia (PWD) in performing to create laughter is mor... Dementia journals http://www.medworm.com/rss/comments.php?id=5583275 Thu, 12 Jan 2012 05:00:00 +0100 5583275 http://www.medworm.com/index.php?rid=5583274&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F49%3Frss%3D1 This article focuses on garments used in care environments. We investigate a patient overall, developed for the care of people with severe memory problems, severe learning difficulties and brain injuries. The aim of the use of a patient overall is to prevent undressing in socially inappropriate situations and/or to stop the user from removing an incontinence pad. This article is based on interviews of designers of medical textiles and patients and family carers in Finland. Both designers and patients found patient overalls to be infantilizing and stigmatizing for the user but accepted the basic functions of the product. We report results of a design project aimed at designing a new type of garment that takes into account the technical requirements but provides a more dignified look and opp... Dementia journals http://www.medworm.com/rss/comments.php?id=5583274 Thu, 12 Jan 2012 05:00:00 +0100 5583274 http://www.medworm.com/index.php?rid=5583273&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F31%3Frss%3D1 This article discusses the staff's view on dementia and its impact on the care delivered arising out of a qualitative comparative study focusing on long-term care of older people in France, Portugal and Sweden. The aim was to explore the staff's view on the illness dementia; on older people suffering from dementia; the care provided and the impact of various views on the care. The care was studied through observations at 22 care settings in the three countries and the staff's attitudes were explored by means of interviews with 79 people. A relation-oriented phenomenological approach was used. Great differences appeared regarding the various staff groups’ views. The findings also indicated that the staff's view; the cultural context and the organizational environment might have an imp... Dementia journals http://www.medworm.com/rss/comments.php?id=5583273 Thu, 12 Jan 2012 05:00:00 +0100 5583273 http://www.medworm.com/index.php?rid=5583272&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F19%3Frss%3D1 Nurses sometimes fail to understand the behaviour of individuals with severe dementia. Information from a next of kin may help to bridge this communicative gap. One factor that influences a person's reaction to a disease is their personality and ability to cope with stress. The aim of this study was to evaluate the inter-rater agreement between healthy elderly people's self-assessment and the assessment made by a next of kin concerning personality and sense of coherence. The participants (n = 154) answered questions from the Eysenck Personality Inventory (EPI) and the Antonovsky Sense of Coherence (SOC) scale. The study shows high or moderate agreement in ratings when analysed by means of an intra-class correlation coefficient (range between r = .57 and r = .72) and the results indicate th... Dementia journals http://www.medworm.com/rss/comments.php?id=5583272 Thu, 12 Jan 2012 05:00:00 +0100 5583272 http://www.medworm.com/index.php?rid=5583271&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F11%2F1%2F5%3Frss%3D1 This study examined the impact of two neurological diseases on access to semantic knowledge and the status of semantic representations. Patients with Alzheimer's disease (AD) and Aphasia (APH) were compared with control groups using the supermarket fluency task. We measured several aspects: number of category names produced, number of categories sampled to produce the words, the number of words per category sampled, number of exemplars and kinds of errors recorded. Both AD and APH groups produced significantly fewer words on the fluency task than control groups. As compared with the APH and control groups, in the AD group verbal fluency was characterized by a tendency to generate more category names with fewer exemplars within a category. The findings are consistent with the view that a bo... Dementia journals http://www.medworm.com/rss/comments.php?id=5583271 Thu, 12 Jan 2012 05:00:00 +0100 5583271 http://www.medworm.com/index.php?rid=5583270&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F11%2F1%2F3%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5583270 Thu, 12 Jan 2012 05:00:00 +0100 5583270 http://www.medworm.com/index.php?rid=5388588&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F625%3Frss%3D1 Screening tools are created and administered within specific political, cultural and clinical contexts that problematize their supposed universality. This paper, drawing on interviews and participant observation undertaken in 2008 in New Delhi in India, examines how clinical environments influence the interpretations and use of the Mini Mental State Examination (MMSE), a popular screening instrument for dementia. Findings indicate that while doctors recognize the limitations of the MMSE in theory, its continued use in practice is because of time shortages and competing work demands. Yet misdiagnosis or even false-positive screening has implications for service delivery and quality of care. Further research is necessary into how diagnoses are made, which account for cultural and structural ... Dementia journals http://www.medworm.com/rss/comments.php?id=5388588 Wed, 09 Nov 2011 05:00:00 +0100 5388588 http://www.medworm.com/index.php?rid=5388587&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F603%3Frss%3D1 Some types of formulaic (routine and familiar) language seem to remain fairly intact in people with language and memory disturbances, making it a useful tool for both testing language skills and supporting language retention and use. Proverbs can reasonably be considered a subset of formulaic language, and while it is known that the ability to understand proverbs is compromised in dementia, completing them ought to be relatively easy, if proverbs are stored holistically like other kinds of formulaic language. However, this study reports how three people with dementia often struggled to complete proverbs in a game used in a day-care centre to stimulate the memory and language skills. By examining their responses and relating them to the causes of formulaic language patterns, it is argued th... Dementia journals http://www.medworm.com/rss/comments.php?id=5388587 Wed, 09 Nov 2011 05:00:00 +0100 5388587 http://www.medworm.com/index.php?rid=5388586&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F587%3Frss%3D1 Most people with dementia remain living at home as long as possible after being diagnosed, and hence their lives also include activities in the public space. The aim of this study was to illuminate experiences of accessibility in public space in people with Alzheimer’s disease. A qualitative grounded theory approach with repeated in-depth interviews was used. The core category, accessibility as a constantly changing experience, was characterized by changes in the relationship between informants and public space. Changes in the relationship took place in activities and use of place and related to familiarity and comfort, individual motives and interests, and planning and protecting. Other changes occurred in places and problematic situations related to everyday technologies, crowded p... Dementia journals http://www.medworm.com/rss/comments.php?id=5388586 Wed, 09 Nov 2011 05:00:00 +0100 5388586 http://www.medworm.com/index.php?rid=5388585&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F571%3Frss%3D1 This article is based on two Norwegian case studies of spouses and adult children who give care to elderly people – both males and females – with dementia. Nine families were included in these studies, and a total of 27 persons were interviewed (husbands, wives, sons and daughters). Central topics discussed in this article are the initial phases of the illness, the heavy demands of home care, and dilemmas associated with multiple caregiving roles. The analyses demonstrate the many challenges encountered by people with family members who suffer from dementia. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5388585 Wed, 09 Nov 2011 05:00:00 +0100 5388585 http://www.medworm.com/index.php?rid=5388584&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F555%3Frss%3D1 Here we present the timeline for those who reach a memory assessment service based on research conducted with 31 people living with dementia and 49 carers in one area of the UK. The study develops the findings of earlier timeline work by illuminating other stages on the journey as events and decision points. Two key stages of delay are exposed. Firstly, the period from first thinking something may be amiss to the point of first talking to someone about it. Secondly, the period from first talking to someone, to first contact with a healthcare professional (HCP). A third period emerged where delays may occur once contact with the healthcare system is made. The mean journey time from thinking that something may be amiss to beginning the formal process of diagnosis was around three years. On a... Dementia journals http://www.medworm.com/rss/comments.php?id=5388584 Wed, 09 Nov 2011 05:00:00 +0100 5388584 http://www.medworm.com/index.php?rid=5388583&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F539%3Frss%3D1 This research sought to understand how people with dementia perceive interaction in the context of their service experience. Using the client data from a qualitative study that was conducted over three years and employed both inductive and deductive techniques, the data from 22 client interviews were consolidated and then analysed. Seven themes related to service experience were identified: Awareness; Communication; Dependency; Expectations; Experience; Position; and Relationship. These themes provide insights that could assist service providers to better understand and facilitate interaction with their clients. The study highlights that clients with dementia wish to be given the opportunity to have input to the creation of their service. Itpoints out that service organizations need to dev... Dementia journals http://www.medworm.com/rss/comments.php?id=5388583 Wed, 09 Nov 2011 05:00:00 +0100 5388583 http://www.medworm.com/index.php?rid=5388582&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F523%3Frss%3D1 This ethnography describes how persons with dementia interact with cognitively intact persons in housing with care for the elderly. The results, drawing upon 31 observation sessions and nine interviews, are described under the following themes, which were interpreted from the standpoint of social interaction theory: interaction with expression of satisfaction, disorientation, and dissociation. Interaction provided satisfaction, but did not always reflect a positive experience. Awareness in persons with dementia seemed to be greater than others perceived and, as a result, interaction was adversely affected by frequent well-intentioned corrections and comments. Participation in interaction can be encouraged and feelings of indignation avoided by assuming that persons with dementia are aware ... Dementia journals http://www.medworm.com/rss/comments.php?id=5388582 Wed, 09 Nov 2011 05:00:00 +0100 5388582 http://www.medworm.com/index.php?rid=5388581&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F509%3Frss%3D1 Loss of self is widely regarded to be a consequence of dementia, and this perceived loss presents a variety of problems – not least because a clear understanding of the concept of self is elusive. This paper suggests a way to cut through problems that arise because we rely on conceptions of self in our understanding of the effects of dementia. It is proposed that we can avoid reliance on the concept of self through an approach based in bio-phenomenology. Such an approach would help us better understand the inner life of those with dementia and assist us to recognize that even in late stage dementia they are semiotic subjects with unique value. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5388581 Wed, 09 Nov 2011 05:00:00 +0100 5388581 http://www.medworm.com/index.php?rid=5388580&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F499%3Frss%3D1 Coping and Quality of Life (QoL) of dementia caregivers has not been studied in the Indian context. Thirty two patients with dementia of Alzheimer’s type were assessed for level of cognitive functioning using Hindi mental state examination and for severity of dementia using Clinical dementia rating. Their key caregivers were assessed using the Coping checklist and WHO-QoL (BREF) Hindi version. Education was positively correlated to total coping score (p = 0.02), problem-solving (p < 0.01), positive distraction (p = 0.04) and acceptance (p = 0.02) and negatively correlated with religion (p = 0.01) and denial (p = 0.01). Use of social support as coping was found to be positively correlated with domains of QoL. Problem-solving was seen to have a significant positive correlation with ... Dementia journals http://www.medworm.com/rss/comments.php?id=5388580 Wed, 09 Nov 2011 05:00:00 +0100 5388580 http://www.medworm.com/index.php?rid=5388579&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F487%3Frss%3D1 With dementia ever-increasing in prevalence and cost on society, and with recent reports emphasizing the need for improved and standardized diagnosis and care for patients with dementia, the National Dementia Strategy (NDS) has been published by the English Department of Health. The NDS encourages the identification of successful innovations to implement on a wider scale. This paper uses case studies to describe some examples of innovative practice in the diagnosis and management of patients with dementia in primary care. It goes on to discuss methodological problems in the evaluation and comparison of innovations in practice, focusing on the potential to compare complex with simple interventions, and recognizing the role that commissioners play in making decisions about the choice and imp... Dementia journals http://www.medworm.com/rss/comments.php?id=5388579 Wed, 09 Nov 2011 05:00:00 +0100 5388579 http://www.medworm.com/index.php?rid=5388578&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F475%3Frss%3D1 In 2004, the label for dementia was officially changed in Japan as part of a publicity campaign to raise public awareness about dementia and replace the previously stigmatizing word ‘chiho’, which translates as a ‘disease of cognition associated with idiocy’. The aim of this study is to examine the name-changing process and to explore its implications for Japan and the field of dementia studies in general. First, this article explains the process through which the new name for ‘dementia’, ‘ninchisho’, was selected and why. It then addresses Alzheimer’s Association Japan (AAJ), describing the influence of this organization on the name-changing process. Finally, the article delineates how an educational initiative was developed in respons... Dementia journals http://www.medworm.com/rss/comments.php?id=5388578 Wed, 09 Nov 2011 05:00:00 +0100 5388578 http://www.medworm.com/index.php?rid=5388577&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F4%2F459%3Frss%3D1 This study reports on the process of developing a maintenance programme manual following the Medical Research Council guidelines representing the ‘phase I’ or modelling. This study uses an inductive thematic analysis approach to examine user perceptions on the maintenance cognitive stimulation therapy (CST) programme. Three focus groups were carried out with people with dementia, three with staff, and three with family carers of people with dementia. In total 17 people with dementia, 13 staff and 18 family carers took part in separate focus groups. The main findings from the user focus clearly supports the recent draft NICE guidelines on dementia (NICE-SCIE, 2006) that states that all people with mild/moderate dementia should be ‘given the opportunity to participate in a ... Dementia journals http://www.medworm.com/rss/comments.php?id=5388577 Wed, 09 Nov 2011 05:00:00 +0100 5388577 http://www.medworm.com/index.php?rid=5388576&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F4%2F457%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5388576 Wed, 09 Nov 2011 05:00:00 +0100 5388576 http://www.medworm.com/index.php?rid=5053607&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F435%3Frss%3D1 A psycho-educational intervention focused on communication was conceived for caregivers of family members in the early stage of Alzheimer’s disease (i.e., persons with dementia), and tested on five proximal outcome variables: caregiver knowledge, perceptions of communication difficulties and degree of perceived disturbance related to these difficulties, self-efficacy and skills. Guided by a theoretical framework that encompassed geragogy, the McGill model of nursing and self-efficacy theory, the intervention was evaluated via an experimental design with pre-post tests. Fifty family caregivers were randomly assigned to an experimental group (intervention program), or to a control group (information flier on communication and memory). Statistically significant effects were found on fou... Dementia journals http://www.medworm.com/rss/comments.php?id=5053607 Thu, 21 Jul 2011 23:00:00 +0100 5053607 http://www.medworm.com/index.php?rid=5053606&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F415%3Frss%3D1 This study investigated the StoryCorps interview experience for storytellers who self identify with early stage memory loss and the persons who interviewed them. StoryCorps interviews took place in Milwaukee, Chicago, and New York. Follow-up interviews were conducted with 42 persons with memory loss, along with 27 family members who participated in the StoryCorps interviews. Results revealed that the StoryCorps experience was a meaningful activity that allowed participants to acknowledge the beauty of the present moment, to reflect and engage in meaningful conversations, to re-affirm both the selfhood of individuals with memory loss and their relationships with family members, and to and be a part of national history while leaving a legacy for future generations within families. The findin... Dementia journals http://www.medworm.com/rss/comments.php?id=5053606 Thu, 21 Jul 2011 23:00:00 +0100 5053606 http://www.medworm.com/index.php?rid=5053605&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F399%3Frss%3D1 This study explored the meaning of spiritual care from the perspectives of patients living with moderate to severe dementia, their families and their care providers. Using a hermeneutic phenomenological approach, open-ended interviews were conducted in a dementia care unit with 29 participants, including patients, families, RNs, LPNs, and hospital chaplains. Interviewees were asked to share their stories and insights about spiritual care in dementia. Using hermeneutic analysis, the central theme of ‘little things’ was identified. Recognition and attendance to ‘little things’ promoted patients’ sense of personhood and connectedness to self and others. Barriers to spiritual care in dementia were also identified. These findings inform our understanding about effe... Dementia journals http://www.medworm.com/rss/comments.php?id=5053605 Thu, 21 Jul 2011 23:00:00 +0100 5053605 http://www.medworm.com/index.php?rid=5053604&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F379%3Frss%3D1 Research suggests that the onset and progression of dementia may pose a threat to a person’s sense of identity. This qualitative study used Interpretative Phenomenological Analysis to explore participants’ perceptions of the impact of dementia on their identity. Participants were ten people with dementia. The four themes emerging from the data represented participants’ views on aspects of their current identities, whether they believed that dementia would alter their identities in the future, perceptions of how dementia had affected their lifestyle, and relationships with friends and family. The analysis suggested that for the most part, participants felt that little had changed with respect to their identities as a whole, but most identified features of themselves that w... Dementia journals http://www.medworm.com/rss/comments.php?id=5053604 Thu, 21 Jul 2011 23:00:00 +0100 5053604 http://www.medworm.com/index.php?rid=5053603&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F361%3Frss%3D1 We conducted face-to-face, semi-structured interviews with six white men with early-onset dementia (EOD) and supplemented the interviews with a focus group with six wives of the men to document perceptions of a weekly, supervised volunteer program for the men at the local zoo. The program, ‘Get Out of the House,’ is designed to provide individuals with EOD a weekly opportunity to participate in meaningful, supervised volunteer work in the community. Interviews with participants revealed that they strongly identify with the program and are eager to share their experiences, about which they show some depth of insight. The focus group revealed that the program represents a break in the day-to-day routine for spouses and families, as well as participants, and has benefits that exte... Dementia journals http://www.medworm.com/rss/comments.php?id=5053603 Thu, 21 Jul 2011 23:00:00 +0100 5053603 http://www.medworm.com/index.php?rid=5053602&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F341%3Frss%3D1 This study characterizes the use of CCBs (e.g., accounts and humor) by persons with CI in clinical interviews and provides important insight on how to improve doctor—patient communication involving people with CI. In order to describe and compare CCBs used by persons with cognitive impairment, and those used by cognitively normal individuals, verbatim, in-office transcripts from both groups were analyzed. Results showed that participants with CI used more memory accounts than cognitively normal individuals and similar amounts of humor in order to save face and construct a normal identity. These data help to inform doctors and caregivers regarding the ways in which persons with CI construct and preserve a positive sense of self-identity through communication. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5053602 Thu, 21 Jul 2011 23:00:00 +0100 5053602 http://www.medworm.com/index.php?rid=5053601&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F325%3Frss%3D1 The focus of this paper is the experiences and needs of family carers of people with end-stage dementia. The project involved in-depth, qualitative interviews with 15 carers. The major themes emerging from the accounts of participants’ experiences were: getting support; having to trust others with care; managing the loneliness of being a carer; witnessing a loved one fade away; anticipating and experiencing death; and re-establishing life after the funeral. Carers expressed a range of instrumental and psychosocial needs. The study has provided a more personal account of the caring experience than much of the related literature. It has emphasized the need of carers for genuine understanding and connection — from family and friends as well as healthcare staff. The study highlight... Dementia journals http://www.medworm.com/rss/comments.php?id=5053601 Thu, 21 Jul 2011 23:00:00 +0100 5053601 http://www.medworm.com/index.php?rid=5053600&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F317%3Frss%3D1 This study reports on the experiences of 25 family carers of the hospital discharge planning process for their family member with a dementia. Analysis of the data indicates that the needs of family carers were not always addressed in the hospital discharge process and that discharge planning and execution is in need of improvement. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5053600 Thu, 21 Jul 2011 23:00:00 +0100 5053600 http://www.medworm.com/index.php?rid=5053599&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F299%3Frss%3D1 This article draws on empirical and theoretical literature to propose a model for preventing and treating agitation non-pharmacologically. A literature review finds agreed, coherent definition and measurement of agitation to be absent despite numerous agitation remedies having been suggested, yet sufficient material to support evidence-based care planning. Agitation is revealed as resulting from a resident’s interactions with the environment or their internal state, giving rise to unmet needs that attentive care can treat. Agitation treatments are reviewed to find no single effective remedy and a lack of quality evaluation. A higher-order, problem-solving approach is proposed. The described system consists of sequential diagnosis, decision making and treatment options, commencing wit... Dementia journals http://www.medworm.com/rss/comments.php?id=5053599 Thu, 21 Jul 2011 23:00:00 +0100 5053599 http://www.medworm.com/index.php?rid=5053598&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F3%2F283%3Frss%3D1 This article reports on research that forms part of a five year programme exploring evidence-based interventions in dementia and this article draws on part of the research that was designed to identify issues relating to implementation of the Act. Specific research questions for this study pertain to staff abilities to incorporate a new legal framework addressing mental capacity into care of people with dementia. Qualitative interviews with 32 staff in one group of care homes in Southern England demonstrated that, regardless of knowledge of MCA, the daily working ethos of staff appeared to be within the remit of Act. Training could therefore continue to build on these principles. However, considerable variation in understanding of terms and principles of the MCA was found. Few participants... Dementia journals http://www.medworm.com/rss/comments.php?id=5053598 Thu, 21 Jul 2011 23:00:00 +0100 5053598 http://www.medworm.com/index.php?rid=5053597&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F3%2F281%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=5053597 Thu, 21 Jul 2011 23:00:00 +0100 5053597 http://www.medworm.com/index.php?rid=4806841&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F276%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806841 Tue, 10 May 2011 23:00:00 +0100 4806841 http://www.medworm.com/index.php?rid=4806840&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F275-a%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806840 Tue, 10 May 2011 23:00:00 +0100 4806840 http://www.medworm.com/index.php?rid=4806839&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F275%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806839 Tue, 10 May 2011 23:00:00 +0100 4806839 http://www.medworm.com/index.php?rid=4806838&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F274%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806838 Tue, 10 May 2011 23:00:00 +0100 4806838 http://www.medworm.com/index.php?rid=4806837&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F273%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806837 Tue, 10 May 2011 23:00:00 +0100 4806837 http://www.medworm.com/index.php?rid=4806836&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F272-a%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806836 Tue, 10 May 2011 23:00:00 +0100 4806836 http://www.medworm.com/index.php?rid=4806835&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F272%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806835 Tue, 10 May 2011 23:00:00 +0100 4806835 http://www.medworm.com/index.php?rid=4806834&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F271%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806834 Tue, 10 May 2011 23:00:00 +0100 4806834 http://www.medworm.com/index.php?rid=4806833&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F257%3Frss%3D1 Few studies have systematically documented the psychological effects of exposure to aggression on healthcare workers. In 2007 an exploratory study invited 96 nurses and 228 care assistants from nine care homes to complete a questionnaire that incorporated the Impact Events Score — Extended (IES-E). Of the 112 returned (response rate 34.56%), 77 (68.8%) staff had been involved in an incident where they feared for their personal safety and 80 (71.4%) witnessed an incident where they feared for the safety of a colleague. Over the previous year 34% felt ‘very unsafe’ and almost 18% felt ‘terrified’. Violence against care home staff are not isolated incidents and irrespective of length of time working in dementia care staff lack the skills to identify triggers fact... Dementia journals http://www.medworm.com/rss/comments.php?id=4806833 Tue, 10 May 2011 23:00:00 +0100 4806833 http://www.medworm.com/index.php?rid=4806832&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F249%3Frss%3D1 This is an autoethnography written by a daughter whose mother developed Alzheimer’s dementia a few years ago. In the writing, a shifting nature of relationships is described between the daughter, her mother and the dementia. As a form of self-narrative where the author is placed within a social context, the writing within the autoethnography follows Ellis (1999) who suggests seeing through a wide-angled lens. This lens has been focused outwards and inwards with the aim of creating an evocative text about shifting relationships and dementia. In its construction, meaning has been extracted from these experiences that help the author to stay aware of these relationships that can shift even further as her mother’s dementia moves on in time. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806832 Tue, 10 May 2011 23:00:00 +0100 4806832 http://www.medworm.com/index.php?rid=4806831&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F235%3Frss%3D1 People with learning disabilities are living longer and are increasingly developing age related conditions including dementia. If this occurs, their medical and social needs pose many challenges for services. A literature review was undertaken of articles published between 1996— 2006. Data was collected relating to the needs of people with learning disabilities and dementia, their carers and their peers. The primary medical need is for timely and accurate diagnosis. There is a multitude of diagnostic tools and advice is available as to which are most suitable for different client groups. The needs of carers are intertwined with those of people with learning disabilities and dementia and meeting their needs for education, training and increased staff numbers, has proved beneficial. Al... Dementia journals http://www.medworm.com/rss/comments.php?id=4806831 Tue, 10 May 2011 23:00:00 +0100 4806831 http://www.medworm.com/index.php?rid=4806830&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F217%3Frss%3D1 Recognizing the impact of marriage commitment to living with early-stage dementia has important implications for developing proactive care for individuals with dementia and their families. This mixed method study of six couples experiencing early-stage Alzheimer’s dementia explored how married couples experienced the meaning of commitment through memory loss represented by the transitional process of pre-diagnosis, diagnosis, and post-diagnosis. Narrative analysis was used to identify shared themes from couples’ accounts through semi-structured interviews and supported by questionnaires related to commitment and marriage satisfaction. Couples’ commitment was expressed by four major themes: ‘partnership for life’, ‘reciprocity’, ‘resilience&rs... Dementia journals http://www.medworm.com/rss/comments.php?id=4806830 Tue, 10 May 2011 23:00:00 +0100 4806830 http://www.medworm.com/index.php?rid=4806829&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F203%3Frss%3D1 In this study, the Photovoice method was used with a group of participants in early stages Alzheimer’s disease to explore the use of Photovoice as a methodology with this population. Specifically, I was hoping to understand how Photovoice could be used as a methodology with this group, and to examine the benefits and challenges of using Photovoice with people with Alzheimer’s disease. This paper discusses some of the practical challenges arising out of using this methodology with people with early stage Alzheimer’s disease as well as some of the issues surrounding research ethics, consent, and capacity. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806829 Tue, 10 May 2011 23:00:00 +0100 4806829 http://www.medworm.com/index.php?rid=4806828&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F185%3Frss%3D1 The following describes a conceptual model for dementia caregiving. The interdisciplinary model proposes that a caregiver’s confrontation with existential loss plays a determining role in the well-being of the dementia care dyad. The paper describes how existential threats can affect a caregiver’s appraisal of the care situation, and thus how a caregiver copes. Still further, it is speculated that caregiver coping (as manifested primarily through avoidance or acceptance of loss) will influence behavioral interaction within the caregiving dyad, where communication and decision making between caregiver and the person with dementia is predominantly inequitable (e.g., authoritarian) or equitable (e.g., negotiated). Lastly, it is proposed that the type of dyadic behavior is an antec... Dementia journals http://www.medworm.com/rss/comments.php?id=4806828 Tue, 10 May 2011 23:00:00 +0100 4806828 http://www.medworm.com/index.php?rid=4806827&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F165%3Frss%3D1 This paper discusses the experiences of dementia family caregivers in Malta. The study design was essentially exploratory as this is the first funded social research on dementia in the island of Malta. In-depth semi-structured interviews were conducted in October 2008 with 17 caregivers. Identification of caregivers was through their relatives’ attendance at a hospital based outpatient memory clinic. Interviews were recorded, transcribed and when required, phrases were translated from Maltese to English. A thematic analysis was guided by the questions; What are the experiences of family caregiving in Malta? And what impact does caregiving have for individual/family life? Three key findings are discussed, namely: the organization of family care in Malta; the use of formal services; an... Dementia journals http://www.medworm.com/rss/comments.php?id=4806827 Tue, 10 May 2011 23:00:00 +0100 4806827 http://www.medworm.com/index.php?rid=4806826&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F2%2F149%3Frss%3D1 There are complex relationships between alcohol use; processes of ageing both social and biological; and cognitive impairment. This paper takes Scotland as a case study to begin to unpick and explore these relationships and their implications for people who drink as they age. In recent years several policy documents have been published in Scotland that acknowledge the increasing prevalence of alcohol problems among people as they age. This paper is based on a review of the literature, analysis of recent Scottish policy documents and two research projects undertaken by the author. The links between alcohol use and dementia are discussed, focusing on biological and social implications for individuals as they age. Current responses in Scotland to these different issues are examined from indiv... Dementia journals http://www.medworm.com/rss/comments.php?id=4806826 Tue, 10 May 2011 23:00:00 +0100 4806826 http://www.medworm.com/index.php?rid=4806825&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F2%2F145%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4806825 Tue, 10 May 2011 23:00:00 +0100 4806825 http://www.medworm.com/index.php?rid=4562178&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F1%2F141%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562178 Tue, 08 Mar 2011 00:00:00 +0100 4562178 http://www.medworm.com/index.php?rid=4562177&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F1%2F140%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562177 Tue, 08 Mar 2011 00:00:00 +0100 4562177 http://www.medworm.com/index.php?rid=4562176&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F1%2F138-a%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562176 Tue, 08 Mar 2011 00:00:00 +0100 4562176 http://www.medworm.com/index.php?rid=4562175&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F1%2F138%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562175 Tue, 08 Mar 2011 00:00:00 +0100 4562175 http://www.medworm.com/index.php?rid=4562174&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F112%3Frss%3D1 This article reviews the literature on the inclusion of the perspective of people with dementia when evaluating quality of care. The few identified relevant studies suggest that there is consensus that people with mild to moderate dementia are able to talk about their experiences with care with clarity and insight. A minimum level of orientation to place, attention and language skills in the person with dementia are important for a successful subjective evaluation. On the basis of the relevant literature, we additionally formulated practical guidelines useful when one aims to collect information with interviewing, self-administered questionnaires, or focus groups from people with dementia to assess quality of care. In people with mild to moderate dementia, assessment of quality of care can... Dementia journals http://www.medworm.com/rss/comments.php?id=4562174 Tue, 08 Mar 2011 00:00:00 +0100 4562174 http://www.medworm.com/index.php?rid=4562173&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F98%3Frss%3D1 ‘Music therapeutic caregiving’ (MTC), when caregivers sing for or together with persons with dementia (PWDs) during caring situations, has been suggested as a way to reduce PWDs’ behavioral and psychological symptoms of dementia (BPSD). An intervention was designed to elucidate what influences MTC might have on PWDs and their caregivers. The aim was to describe professional caregivers experiences of caring for PWDs during morning care situations without and with MTC. Group interviews were conducted, and a qualitative content analysis was performed. Two themes were revealed. The first (without MTC), Struggling for care in communion, encompassed four sub-themes: Hampered communication; Physical and mental struggle with aggression; Struggling with ethical demands; and The re... Dementia journals http://www.medworm.com/rss/comments.php?id=4562173 Tue, 08 Mar 2011 00:00:00 +0100 4562173 http://www.medworm.com/index.php?rid=4562172&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F81%3Frss%3D1 In this qualitative, longitudinal case study, spanning close to three years, the dynamic experience of a spousal caregiver of a man diagnosed with dementia is examined. Frequent email communication constituted the main source of education, counseling and psychosocial support provided to the caregiver who, initially, experienced feelings of helplessness, frustration, low self-esteem and great stress. During the years of this ongoing study, she experienced a flourishing of the self, despite the fact that her husband was placed in a nursing home approximately seven months after our association began. Critical aspects of her evolving experience included her developing an understanding of her husband’s intact memory making abilities and selfhood, his subjective experience and point of vie... Dementia journals http://www.medworm.com/rss/comments.php?id=4562172 Tue, 08 Mar 2011 00:00:00 +0100 4562172 http://www.medworm.com/index.php?rid=4562171&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F59%3Frss%3D1 Discussion of personhood, spiritual/ religious coping, and meeting spiritual care needs led to conclusions about the role of professional chaplaincy in educating and modeling for staff and others appropriate behaviors for providing spiritual support as well as the importance of accommodating diversity and maximizing resources. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562171 Tue, 08 Mar 2011 00:00:00 +0100 4562171 http://www.medworm.com/index.php?rid=4562170&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F35%3Frss%3D1 In this study, two complementary approaches were used to explore positioning in the family of a woman with dementia. The first used interviewing to reveal how family members positioned themselves and each other in their conscious reflections about dementia. The second, drawing on conversation analysis, highlighted how they positioned themselves and each other in their everyday conversations together. Implications for the study of dementia in the family are discussed. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562170 Tue, 08 Mar 2011 00:00:00 +0100 4562170 http://www.medworm.com/index.php?rid=4562169&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F19%3Frss%3D1 This article explores the potential for rehabilitative approaches in dementia care. On the basis of a structured literature review that focused on the current state of research evidence for rehabilitation related to Alzheimer’s Disease (AD) implications will be discussed for future research in this area and the translational challenges in terms of making findings applicable to care organization and delivery. The article further sets out to critically appraise the concept of ‘evidence’ in the context of rehabilitation methodology. Translational challenges in the application of research evidence in clinical and social care practice are discussed. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562169 Tue, 08 Mar 2011 00:00:00 +0100 4562169 http://www.medworm.com/index.php?rid=4562168&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F10%2F1%2F7%3Frss%3D1 Large numbers of people with dementia live in care homes. Decisions about permanent care are usually made by family members and professionals with little involvement from people with dementia. This qualitative paper explores the personal experience of this move among people with dementia. Eighteen people with dementia were interviewed before and after a move into permanent care. Before moving into permanent care, a realization of one’s own difficulties, clearly expressed hopes and fears, and a wish for a role in preparation for the move were identified. After the move, both positive and negative experiences of the process were recalled, with participants clearly identifying what had helped them most in the process. Moving to a care home need not be a depressing process for people wit... Dementia journals http://www.medworm.com/rss/comments.php?id=4562168 Tue, 08 Mar 2011 00:00:00 +0100 4562168 http://www.medworm.com/index.php?rid=4562167&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F10%2F1%2F3%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4562167 Tue, 08 Mar 2011 00:00:00 +0100 4562167 http://www.medworm.com/index.php?rid=4209416&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F569%3Frss%3D1 This article gives an account of the counselling service for people with Creutzfeldt-Jakob Disease (CJD) at the National Prion Clinic which is based in the National Hospital for Neurology and Neurosurgery in the UK and aims to provide information, advocacy and support from diagnosis through bereavement for people with a diagnosis of Creutzfeldt-Jakob Disease (CJD) and their families. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209416 Mon, 29 Nov 2010 00:00:00 +0100 4209416 http://www.medworm.com/index.php?rid=4209415&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F558%3Frss%3D1 This article describes the process of developing and implementing a psycho-educational intervention for African American caregivers which was informed by a review of the caregiving and intervention literature, and stress, appraisal, and coping theory. The intervention included 12 modules that lasted approximately 90 minutes each. Participants were recruited from the local Alzheimer’s Association, local area churches and social clubs, and primary care physicians. The article discusses issues that came up during the pilot test and highlights the importance of participant input, in the design, implementation, and evaluation of intervention programmes. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209415 Mon, 29 Nov 2010 00:00:00 +0100 4209415 http://www.medworm.com/index.php?rid=4209414&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F549%3Frss%3D1 This article provides a description of a newly designed intervention that includes both care partners. Using a Strength-Based Approach, the dyadic intervention identifies and builds upon both care partners’ current abilities to address their specific care needs. Two case examples are presented to illustrate the flexibility and advantages of using a Strength-Based Approach. The discussion highlights the extent to which core intervention skills can be tailored to fit a range of care needs. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209414 Mon, 29 Nov 2010 00:00:00 +0100 4209414 http://www.medworm.com/index.php?rid=4209413&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F4%2F548%3Frss%3D1 (No abstract is available for this citation) (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209413 Mon, 29 Nov 2010 00:00:00 +0100 4209413 http://www.medworm.com/index.php?rid=4209412&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F535%3Frss%3D1 This article describes the context, processes and influences of its creation and a discussion of how this type of development might increase knowledge and understanding around the issues of a carer’s world and also provide a tool for embedding into the higher educational health curriculum. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209412 Mon, 29 Nov 2010 00:00:00 +0100 4209412 http://www.medworm.com/index.php?rid=4209411&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F517%3Frss%3D1 This study describes how the participants in a singers’ master class weekend collaborated with their teacher, an internationally renowned former opera singer in her mid-80s, to compensate for the difficulties in communication caused by her dementia. The workshop’s success was due to the teacher’s professionalism and personal dignity; the high esteem and affection in which she was held by the participants; the shared assumption that she had information to impart; her unimpaired musical abilities; the scope for singing, text recitation and gesture to convey complex ideas; and the legitimate formulaicity of the teaching activity. The nature and role of her predominantly formulaic language is examined from the perspective of its function in the very specific context of her te... Dementia journals http://www.medworm.com/rss/comments.php?id=4209411 Mon, 29 Nov 2010 00:00:00 +0100 4209411 http://www.medworm.com/index.php?rid=4209410&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F509%3Frss%3D1 Conclusion: Ambulatory actigraphy could be a simple technique to assess apathy objectively as part of routine assessment of AD patients. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209410 Mon, 29 Nov 2010 00:00:00 +0100 4209410 http://www.medworm.com/index.php?rid=4209409&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F490%3Frss%3D1 This study sought to understand the ways in which family caregivers to institutionalized relatives with dementia perceived and experienced the relocation of their relative to a more home-like setting of care. Twenty-nine family members were interviewed through focus groups and individual interviews following the closing of two traditional care facilities and the subsequent migration of all residents to dementia cottages. Questions focused on the assessment and evaluation of quality of care. Results of this qualitative study pointed to the centrality of relationships in creating a truly homelike environment, in addition to what constitutes effective relational practice from the family perspective. We argue that the creation of a meaningful home for persons with dementia must encompass a rel... Dementia journals http://www.medworm.com/rss/comments.php?id=4209409 Mon, 29 Nov 2010 00:00:00 +0100 4209409 http://www.medworm.com/index.php?rid=4209408&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F473%3Frss%3D1 The article starts out by describing the suffering and problems confronting people with dementia and their families, elaborating various factors that determine how they cope with the trauma of the disease. Against this background, the tasks for professional care-givers are then identified. Care-giving in dementia is a specialty that should be based on a high level of expertise and a professional approach - but changes are essential if we want to provide ‘good care’ and ensure support for the increasing number of people with dementia. Core topics are then set out, forming the building blocks for a curriculum, with contours based on the relational perspective of caring for people with dementia. To ensure a high standard of professional care-giving in dementia, such training is ne... Dementia journals http://www.medworm.com/rss/comments.php?id=4209408 Mon, 29 Nov 2010 00:00:00 +0100 4209408 http://www.medworm.com/index.php?rid=4209407&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F4%2F454%3Frss%3D1 This study involved 31 people at different stages of dementia who were each interviewed about their well-being using Talking Mats, a low-tech communication framework, and usual communication methods. The communication effectiveness of each method was compared. This study found that the Talking Mats framework was associated with better communication at all stages of dementia compared to usual communication methods. Better communication effectiveness was evident in the participants’ understanding, engagement, keeping on-track and ability to make their views understood. There was also less repetitive behaviour and less distractibility when using the Talking Mats framework. The findings suggest that the Talking Mats framework can play an important role in improving communication by provi... Dementia journals http://www.medworm.com/rss/comments.php?id=4209407 Mon, 29 Nov 2010 00:00:00 +0100 4209407 http://www.medworm.com/index.php?rid=4209406&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F4%2F451%3Frss%3D1 (No abstract is available for this citation) (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=4209406 Mon, 29 Nov 2010 00:00:00 +0100 4209406 http://www.medworm.com/index.php?rid=3905074&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F427%3Frss%3D1 Between 2001 and 2006 UK guidance recommended that people with mild to moderate Alzheimer’s disease were eligible for treatment with donepezil, rivastigmine and galanatamine on the National Health Service (NHS). However, there was considerable variation in uptake of and access to treatment. This qualitative study aimed to understand which factors influence decisions to initiate, continue and discontinue treatment with the drugs. The views and experiences of 12 older people referred for memory problems or receiving treatment, 11 family carers and 16 health and social care professionals were obtained using a combination of semi-structured interviews and focus groups. Four factors outside UK guidance and prescribing budgets influence decisions to utilize the drug treatments, namely: per... Dementia journals http://www.medworm.com/rss/comments.php?id=3905074 Thu, 26 Aug 2010 10:26:09 +0100 3905074 http://www.medworm.com/index.php?rid=3905073&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F409%3Frss%3D1 Although heralded as a major breakthrough in the treatment of Alzheimer’s disease the experience and impact of using cholinesterase inhibitors (CHEIs) from the perspective of people with Alzheimer’s disease has not been widely reported. This qualitative study reports the lived experience of CHEI users and the perceived impact of the treatment. The views and experiences of 12 older people referred for memory problems or receiving treatment and 11 associated family carers were obtained using a combination of semi-structured interviews and focus groups. A key theme that emerged from the qualitative analysis was the belief that any new treatment ‘is worth a try’. For some participants the benefits of using CHEIs were ‘difficult to say’. Others reported seein... Dementia journals http://www.medworm.com/rss/comments.php?id=3905073 Thu, 26 Aug 2010 10:26:09 +0100 3905073 http://www.medworm.com/index.php?rid=3905072&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F391%3Frss%3D1 The authors studied a group of older carers of aging adults with Down syndrome (DS) to ascertain what effects such caregiving may have on them given the presence or possibility of age-associated decline or dementia. The study also examined the comparative levels of care provided, key signs noted when decline was beginning, the subjective burden experienced, and what were the key associated health factors when carers faced a changed level of care. The authors found that this group was made up of long-term, committed carers who have decided early on to look after their relative with DS over their lifetime. When faced with the onset and ongoing progression of dementia, their commitment was still evident as evidenced by adopting physical accommodations and finding ways to continue to provide c... Dementia journals http://www.medworm.com/rss/comments.php?id=3905072 Thu, 26 Aug 2010 10:26:09 +0100 3905072 http://www.medworm.com/index.php?rid=3905071&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F375%3Frss%3D1 Conclusions: The RAI is useful to identify patterns but insufficient in itself for pain management purposes in this vulnerable group. Pain assessment tools developed for this population must be employed. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3905071 Thu, 26 Aug 2010 10:26:09 +0100 3905071 http://www.medworm.com/index.php?rid=3905070&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F355%3Frss%3D1 A growth model within the framework of hierarchical linear modeling was used to assess the impact of visiting a wander garden on monthly agitation levels of a group of elderly veterans diagnosed with dementia, with attention to their ambulatory ability. A sample of 34 veterans residing in a locked ward in a dementia unit was observed for a baseline period and for twelve months after a wander garden was opened in their facility. Findings suggest that visiting the wander garden helped lower agitation levels in the dementia patients and that there was a differential effect based on the patient’s ability to walk unassisted. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3905070 Thu, 26 Aug 2010 10:26:09 +0100 3905070 http://www.medworm.com/index.php?rid=3905069&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F327%3Frss%3D1 This article proposes a conceptual framework of the positive aspects of caregiving based on an integrative literature review. This conceptual framework provides a comprehensive model that should improve understanding of positive aspects of caregiving. It could also contribute to the development of innovative support programs based on the positive aspects instead of the negative aspects of caregiving. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3905069 Thu, 26 Aug 2010 10:26:09 +0100 3905069 http://www.medworm.com/index.php?rid=3905068&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F3%2F311%3Frss%3D1 This study used a standardized instrument, the Royal Free Interview for Religious and Spiritual Beliefs, to investigate the spirituality of a population of people with dementia who scored 12 or more on the Mini Mental State Examination and their carers, who were attending a West Midlands Memory Clinic. Study patients were more likely to be well preserved cognitively, be female, and to be living with their spouse at home, than the clinic population as a whole. The population was predominantly white British and Christian. Both patients and carers found the Royal Free Interview acceptable: they rated their beliefs as strong and considered practices associated with their beliefs to be very important. Both groups described spirituality as evident in everyday experiences and as supportive in rel... Dementia journals http://www.medworm.com/rss/comments.php?id=3905068 Thu, 26 Aug 2010 10:26:09 +0100 3905068 http://www.medworm.com/index.php?rid=3905067&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F3%2F307%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3905067 Thu, 26 Aug 2010 10:26:09 +0100 3905067 http://www.medworm.com/index.php?rid=3650123&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F2%2F285%3Frss%3D1 Discussion: Four underlying issues that emerged in this study offer clues to solutions: (a) differences in staff preparation associated with settings, (b) lack of understanding and lack of collaboration with palliative care services, (c) uncertainties about the ability to transfer existing palliative care models to persons with ID and dementia and (d) the need to develop training on end stage dementia and related care approaches. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3650123 Thu, 10 Jun 2010 13:15:29 +0100 3650123 http://www.medworm.com/index.php?rid=3650122&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F2%2F259%3Frss%3D1 The end of life care received by patients with advanced dementia and their carers is of increasing importance as the incidence of dementia is set to rise in the next 30 years. Currently, inappropriate admissions to hospital are common in the UK and patients are less likely to be referred to palliative care services, receive less pain control but undergo more invasive interventions compared to their cognitively intact counterparts. Patients and families are seldom informed of the terminal nature of dementia and advance care planning discussions are rare. The aim of this study was to improve the understanding of end of life care needs for this patient group and their carers, and to use this information to devise an intervention to improve care. Qualitative data were obtained from relatives o... Dementia journals http://www.medworm.com/rss/comments.php?id=3650122 Thu, 10 Jun 2010 13:15:29 +0100 3650122 http://www.medworm.com/index.php?rid=3650121&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F2%2F237%3Frss%3D1 This study explored spouse carers’ experiences. Semi-structured interviews were conducted with seven spouses, recruited though local Alzheimer’s Societies, who were caring for their partners with mid-stage dementia at home. The data were analysed using interpretative phenomenological analysis. Four overarching themes emerged: ‘connectedness and separateness’; ‘tension between meeting own needs and meeting needs of spouse’; ‘knowing and not knowing the future’; and ‘seeking control — emotional and practical strategies’. With the progressive decline in their partners’ functioning, spouse carers experienced an ongoing process of re-evaluation and re-positioning of themselves in relation to their partner and their couple r... Dementia journals http://www.medworm.com/rss/comments.php?id=3650121 Thu, 10 Jun 2010 13:15:29 +0100 3650121 http://www.medworm.com/index.php?rid=3650120&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F2%2F215%3Frss%3D1 This study investigated the needs, burden, and extent of depression and anxiety in carers of people with FTD (n = 30) compared to carers of people with AD (n = 30). Findings indicated that needs of carers of people with FTD were significantly higher than those of the carers of people with AD. The elevated needs were related to the younger onset of FTD, financial dissatisfaction, typical FTD characteristics, and access to appropriate services, information and support. Results also suggested that female carers were more likely to report a greater severity and impact of disruptive symptoms associated with FTD. No significant differences were found between the two groups on carers’ levels of burden, depression or anxiety. In order to address the needs of carers of people with FTD, we rec... Dementia journals http://www.medworm.com/rss/comments.php?id=3650120 Thu, 10 Jun 2010 13:15:29 +0100 3650120 http://www.medworm.com/index.php?rid=3650119&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F2%2F191%3Frss%3D1 This article focuses on three ways in which Being Connected occurs at mealtimes: being face to face, participating psychologically, and getting and giving support. Understanding the role that mealtimes play in promoting improved connections and thus relationships within the dementia context has important implications for both formal and family care partners. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3650119 Thu, 10 Jun 2010 13:15:29 +0100 3650119 http://www.medworm.com/index.php?rid=3650118&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F2%2F169%3Frss%3D1 This qualitative study explores spouse caregivers’ understanding of and responses to partners with dementia. Six wives who had been providing care to their husbands in the community for at least two years were interviewed. Transcripts were analysed using Interpretative Phenomenological Analysis (IPA) and four interconnected themes were proposed: same person or different; relational change; emotional responses to behaviours; and impact on day-to-day life. Participants’ sense of continuity with the past was suggested to influence each theme. The construct of continuity was proposed to be elastic, with both intra-psychic and inter-psychic factors impacting upon its elasticity. Broadly, a sense of continuity seemed to be associated with better adjustment to caregiving. (Source: Dem... Dementia journals http://www.medworm.com/rss/comments.php?id=3650118 Thu, 10 Jun 2010 13:15:29 +0100 3650118 http://www.medworm.com/index.php?rid=3650117&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F2%2F163%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3650117 Thu, 10 Jun 2010 13:15:29 +0100 3650117 http://www.medworm.com/index.php?rid=3400786&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F1%2F156%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3400786 Thu, 25 Mar 2010 10:15:14 +0100 3400786 http://www.medworm.com/index.php?rid=3400785&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F1%2F155%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3400785 Thu, 25 Mar 2010 10:15:14 +0100 3400785 http://www.medworm.com/index.php?rid=3400784&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F9%2F1%2F153%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3400784 Thu, 25 Mar 2010 10:15:14 +0100 3400784 http://www.medworm.com/index.php?rid=3400783&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F1%2F129%3Frss%3D1 A person-centred assessment and problem-solving approach is acknowledged widely as the preferred method for managing the behavioural and psychological symptoms of residents with dementia (BPSD). Currently this is not well implemented in residential dementia care. In this paper concept mapping is discussed critically as a process that has the potential to improve the quality of resident care by providing an efficient framework for problem-solving. It facilitates data analysis, a missing link in problem-solving BPSD. Overtime concept mapping may also reduce the burden on individual staff, improve the skills and knowledge of all levels of staff and foster learning organizations. Potential challenges to the implementation and success of the process, which include staff shortages, the need for ... Dementia journals http://www.medworm.com/rss/comments.php?id=3400783 Thu, 25 Mar 2010 10:15:14 +0100 3400783 http://www.medworm.com/index.php?rid=3400782&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F1%2F79%3Frss%3D1 We present an overview of evidence for dementia related interventions that correspond with the current developments in health care (i.e. environmental, activity-based and psychosocial interventions), and that are relevant for day care. We subsequently focus on the differences between day care at GCF and RDCS with regard to these interventions, and describe the integrative framework for the expected health benefits of GCF for older people with dementia. We conclude that at GCF interventions are naturally integrated in the environment. They are present simultaneously and continuously, which is more difficult to realize in RDCS. We hypothesize that GCF have more health benefits for older people with dementia than RDCS. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3400782 Thu, 25 Mar 2010 10:15:14 +0100 3400782 http://www.medworm.com/index.php?rid=3400781&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F1%2F61%3Frss%3D1 This case study describes a person in the moderate stage of Alzheimer’s disease (AD) and examines her intact social cognition and healthy, appropriate social behavior as reflected by the existence of Kitwood and Bredin’s indicators of relative well-being. The subject of the study was observed over the course of four months at an adult day center. Findings (1) reveal that an apparent dissociation exists between cognitive function as measured by standardized assessments and cognitive function as revealed in social situations, and (2) call into question the notions that (a) cognitive losses, as measured by neuropsychological tests, cause defective social behavior and (b) standard tests are, generalizable ways of measuring different aspects of cognitive function. The meaning of the... Dementia journals http://www.medworm.com/rss/comments.php?id=3400781 Thu, 25 Mar 2010 10:15:14 +0100 3400781 http://www.medworm.com/index.php?rid=3400780&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F1%2F45%3Frss%3D1 Drivers with dementia, like most other drivers, are reluctant to relinquish their driving privileges, making discussions about driving cessation difficult and of great concern to family. To better understand how driving decisions are made 13 focus groups were held with 65 participants including current drivers with dementia, their spouses, and spouses of former drivers with dementia. Results documented the use of compensation strategies by drivers with dementia and their families to maintain safe driving behaviors given declining skills, identified a lack of planning for driving cessation even in light of expectations of cessation, confirmed a desire that driving decisions be a responsibility shared between families and professionals, and showed that diagnostic delays hamper families in ma... Dementia journals http://www.medworm.com/rss/comments.php?id=3400780 Thu, 25 Mar 2010 10:15:14 +0100 3400780 http://www.medworm.com/index.php?rid=3400779&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F1%2F21%3Frss%3D1 Disorientation as experienced by persons with progressive dementia diseases involves both existential and social dimensions. Based on video observations from a small residential care unit and exploring social interaction on a micro-level, this case study focuses on how a woman with vascular dementia actively tries to make sense of an everyday lunch situation. The analysis addresses strategies used by her to contextualize where she has ended up, and also how the meaning of the place is altered in communication. Findings point to social interaction between residents as an important resource to help maintain continuity with previous social life. However, there also seems to be an impending need for caregivers to help residents patch up their broken life-stories to render everyday situations c... Dementia journals http://www.medworm.com/rss/comments.php?id=3400779 Thu, 25 Mar 2010 10:15:14 +0100 3400779 http://www.medworm.com/index.php?rid=3400778&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F9%2F1%2F5%3Frss%3D1 The following paper concerns culturally Deaf people, who are Sign Language users, and who develop dementia. A first person narrative account from a Deaf daughter of her Deaf mother’s dementia (‘My Mum’s Story’) is the main focus of the paper. It is preceded by a Foreword designed to equip the reader with the background to Sign Language and Deaf culture, in order better to contextualize the significance of dementia and its effects for this community. Both pieces, from different perspectives, focus on: the problematic nature of recognizing dementia amongst Deaf people; the paucity of appropriate diagnostic, care and support services; the different considerations for Deaf people approaching dementia as patient or carer; the challenges to service providers and researche... Dementia journals http://www.medworm.com/rss/comments.php?id=3400778 Thu, 25 Mar 2010 10:15:14 +0100 3400778 http://www.medworm.com/index.php?rid=3058367&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F4%2F563%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058367 Fri, 04 Dec 2009 16:02:22 +0100 3058367 http://www.medworm.com/index.php?rid=3058366&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F4%2F562%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058366 Fri, 04 Dec 2009 16:02:22 +0100 3058366 http://www.medworm.com/index.php?rid=3058365&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F4%2F561%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058365 Fri, 04 Dec 2009 16:02:22 +0100 3058365 http://www.medworm.com/index.php?rid=3058364&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F4%2F543%3Frss%3D1 This study is guided by a conceptual model that draws upon the broader stress literature to examine predictors of IWD quality of life. Relying primarily on IWD self-reported data (n = 211), multivariate ordinary least squares regression analysis was used to determine the predictors of IWDs’ quality of life. Results indicate that IWDs who report poorer quality of life are more likely to be African-American, have a non-spousal caregiver, have more depressive symptoms, be less involved in daily decision-making, and have more negative strain with their caregiver. These findings are discussed in the context of current and practical interventions that address the strengths and needs of IWDs and their family caregivers. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058364 Fri, 04 Dec 2009 16:02:22 +0100 3058364 http://www.medworm.com/index.php?rid=3058363&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F4%2F515%3Frss%3D1 People working in the helping professions have been found to be vulnerable to the development of burnout and research has suggested a relationship between dementia care and burnout. Literature suggests that the development of burnout may be linked to a number of factors, including lack of reciprocity, low self-efficacy and organizational factors. The study explored burnout in staff for older people with dementia and examined the roles of reciprocity, self-efficacy and organizational factors and aimed to identify which of these variables was the greatest predictor of burnout. Sixty—one members of staff in continuing care homes for people with dementia completed self-report questionnaires. Self-efficacy was found to be the greatest predictor of burnout. Findings from the study also emp... Dementia journals http://www.medworm.com/rss/comments.php?id=3058363 Fri, 04 Dec 2009 16:02:22 +0100 3058363 http://www.medworm.com/index.php?rid=3058362&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F4%2F501%3Frss%3D1 Mapping the patient journey is a way of investigating the experiences of people using older people’s mental health services, particularly those with a dementia. It is a useful concept for patients and their families and enables them to tell their stories in a way which carries the potential for improving and developing the service. Similarly it is a useful concept for health and social care professionals in giving them the opportunity to understand, and reflect on, how their services work in practice for users and carers and how they might be improved. The collaboration between patients, carers and professionals may itself bring about broader benefits and changes in culture for the individuals and services involved. The West Midlands Older People’s Mental Health Collaborative h... Dementia journals http://www.medworm.com/rss/comments.php?id=3058362 Fri, 04 Dec 2009 16:02:22 +0100 3058362 http://www.medworm.com/index.php?rid=3058361&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F4%2F481%3Frss%3D1 Conclusions: The view of life of the participants with mild to moderate dementia was vital for their life story and was not erased by dementia.Implications: In order to respect people with dementia as persons, caregivers should strive for gaining some knowledge of their view of life. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058361 Fri, 04 Dec 2009 16:02:22 +0100 3058361 http://www.medworm.com/index.php?rid=3058360&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F4%2F455%3Frss%3D1 This study interviewed 12 participants aged 13 to 23 years, whose father had younger onset dementia. Grounded theory methodology identified five major themes: damage of dementia, reconfiguration of relationships, caring, strain and coping. An overarching theme of one day at a time, reflecting a response to the perception of severe threats in the future, appeared to run throughout the young people’s experiences. It is suggested that the emergent grounded theory has some similarity to stress-process models of caregiving with distinctive features arising from the interaction of young onset dementia and the developmental stage of the young people. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058360 Fri, 04 Dec 2009 16:02:22 +0100 3058360 http://www.medworm.com/index.php?rid=3058359&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F4%2F451%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=3058359 Fri, 04 Dec 2009 16:02:22 +0100 3058359 http://www.medworm.com/index.php?rid=2551309&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F3%2F443%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551309 Sun, 28 Jun 2009 23:00:00 +0100 2551309 http://www.medworm.com/index.php?rid=2551308&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F435%3Frss%3D1 The St. Christopher's Hospice Palliative Care in Dementia Project, funded for 3 years by the King's Fund, aims to investigate the palliative care needs of patients with advanced dementia and their families; to clarify the role of specialist palliative care for this patient group; and to examine the usefulness of one model of working. This interim report outlines findings from the first 50 patients taken on by the project. Early results indicate that both patients and their carers have a high level of unmet need. The model of care chosen for this project appears to meet many of these needs, and appears to be both cost efficient and effective in terms of improving end of life care for dementia patients and their carers. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551308 Sun, 28 Jun 2009 23:00:00 +0100 2551308 http://www.medworm.com/index.php?rid=2551307&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F3%2F431%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551307 Sun, 28 Jun 2009 23:00:00 +0100 2551307 http://www.medworm.com/index.php?rid=2551306&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F424%3Frss%3D1 This paper reports on the background and design of an innovative study seeking to develop and test a dementia specific approach to palliative care for older people in care homes, entitled Evidence-based interventions in dementia towards the end of life (EVIDEM EoL). The study uses a two-phase prospective design. Phase I intends to explore and document characteristics and support needs for people with dementia in care homes towards the end of life. Data from phase I informs phase II, the development and testing of a dementia specific education and support tool for palliative care in care homes. This paper reports on the study's background and phase I design. The study is part of the EVIDEM research programme (Evidence-based Interventions in Dementia) (www.evidem.org.uk). (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551306 Sun, 28 Jun 2009 23:00:00 +0100 2551306 http://www.medworm.com/index.php?rid=2551305&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F419%3Frss%3D1 Many people want to be able to plan ahead, so that if in the future they cannot make decisions or do things, their wishes will be known. This is called Advance Care Planning (ACP). Although it is part of official NHS policy (NHS End of Life Care Planning), ACP is hardly ever done, and it may become more difficult once a person has memory problems. In the UK, there is very little research into ACP. By the time someone has signs of dementia, families often become involved. We are uncertain how this affects ACP and the views of the person with dementia, particularly with the new Mental Capacity Act which allow families to comment on health, as well as financial, issues. Our study will be exploring the area of ACP, especially in dementia, by• looking at the experience of other countries t... Dementia journals http://www.medworm.com/rss/comments.php?id=2551305 Sun, 28 Jun 2009 23:00:00 +0100 2551305 http://www.medworm.com/index.php?rid=2551304&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F417%3Frss%3D1 Although two thirds of people with dementia live in the community, a recent report from the Alzheimer's Society concluded that current health and social care systems are failing to support people with dementia and their families to continue to live at home, despite the fact that family carers of people with dementia save the UK over £10 million a year (Alzheimer's Society, 2007). If there are few examples of innovative care packages within dementia care, research evaluating such new approaches is even more limited (Robinson et al., 2005; Sampson et al., 2006). This section of the Dementia journal contains some examples of projects which have the potential to improve end of life care for people with dementia and their families. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551304 Sun, 28 Jun 2009 23:00:00 +0100 2551304 http://www.medworm.com/index.php?rid=2551303&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F407%3Frss%3D1 This paper proposes a new, alternative approach and setting for end-stage dementia patients with Aminoff Suffering Syndrome (ASS) that could pertain to the Israeli setting and could possibly also be acceptable in other countries. Short hospitalization periods of approximately 1 month and treatment in Relief of Suffering End-of-Life with Dementia Units may be a new palliative approach and present a possible solution for coping with the horrendous burden of the suffering of dementia patients, their families, and the medical and nursing staff. Aminoff Suffering Syndrome (ASS) in advanced dementia is the proposed symptomatology and pathological entity that is characterized by a high Mini Suffering State Examination (MSSE) scale score, <6 months survival, irreversible and intractable aggrava... Dementia journals http://www.medworm.com/rss/comments.php?id=2551303 Sun, 28 Jun 2009 23:00:00 +0100 2551303 http://www.medworm.com/index.php?rid=2551302&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F391%3Frss%3D1 This paper outlines the development of an advance care planning service, in partnership with general practitioners, specialists and facility staff that supports Nursing Home (NH) residents with dementia and their families. The aim of the service is to put a process in place whereby treatment options for residents, who have lost decision-making ability, can be considered in advance of any further episodes of illness. A 10 step plan was developed to implement Advance Care Planning within high level residential aged care facilities. Issues that arose during the course of the project are also discussed. The legal context for substitute decision-making is explained. Issues such as when to have these conversations, how to approach families, are discussed (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551302 Sun, 28 Jun 2009 23:00:00 +0100 2551302 http://www.medworm.com/index.php?rid=2551301&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F377%3Frss%3D1 The number of persons diagnosed with and dying from dementia continues to climb. Research corroborate that persons dying from dementia receive poor end of life care including the use of procedures or tests with little or no benefit, un- or undertreated physical and psychological symptoms, and futile care. This is in contrast to the patient's perspective on quality end of life care — adequate pain and symptom management, avoidance of prolongation of dying, achieve a sense of control, relieve burden, and strengthening relationships with loved ones. Hospice, initially developed to improve the end of life care for persons dying from cancer, represents an existing care model that can bridge these differences in experiences and wishes. Expansion of hospice services for persons dying from d... Dementia journals http://www.medworm.com/rss/comments.php?id=2551301 Sun, 28 Jun 2009 23:00:00 +0100 2551301 http://www.medworm.com/index.php?rid=2551300&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F363%3Frss%3D1 Drawing on the experience of looking after 50 patients with dementia, this paper describes a practical approach by one GP to making a difference for people with dementia in care homes especially at the end of life. Included is the use of advance care plans and enhanced annual reviews drawing on GSF prognostic indicator guidance. Using case studies, the following topics are discussed: pain assessment, end of life care, emergency situations, hospital admission avoidance, swallowing difficulties, acute agitation and cardiopulmonary arrest. The forms and protocols which have been developed to support decision making in these situations, along with details of the website on which they can be found, are discussed. The potential benefits of significant event meetings and a GP practice to care hom... Dementia journals http://www.medworm.com/rss/comments.php?id=2551300 Sun, 28 Jun 2009 23:00:00 +0100 2551300 http://www.medworm.com/index.php?rid=2551299&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F349%3Frss%3D1 This article describes the development of a locally based project funded by the BigLottery for 5 years from May 2008 to support five families at any one time caring for a relative with late stage dementia at home. The outcomes centre on improving the well-being of both the person with dementia and their caregivers. The assumption is that the principles of palliative care that have so sensitized the end of life care for people with cancer can be applied to improve the lot of people with dementia and their caregivers. Development of the project therefore entailed bringing together staff across dementia care, palliative care practitioners and crucial generalist community staff, such as GP's and District Nurses. A team with representation from these various professionals and care staff is now ... Dementia journals http://www.medworm.com/rss/comments.php?id=2551299 Sun, 28 Jun 2009 23:00:00 +0100 2551299 http://www.medworm.com/index.php?rid=2551298&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F3%2F335%3Frss%3D1 Even though palliative care of dementia and care at home are key NHS priorities, services that set out specifically to support palliative care of dementia at home are virtually non-existent. We studied a novel service that has supported many people with advanced dementia at home through till death. Key factors for success include the right equipment, expertise around relevant medication, food, and social care needs, as well as understanding and support for funding care commissioning and informal care. The study revealed blockages to accessing support as a result of poor understanding of the needs of advanced dementia care as well as organizational prejudice. We demonstrate that good, home based palliative care of dementia can be achieved with very positive outcomes. Bereavement may be help... Dementia journals http://www.medworm.com/rss/comments.php?id=2551298 Sun, 28 Jun 2009 23:00:00 +0100 2551298 http://www.medworm.com/index.php?rid=2551297&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F3%2F331%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2551297 Sun, 28 Jun 2009 23:00:00 +0100 2551297 http://www.medworm.com/index.php?rid=2355071&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F2%2F326%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2355071 Wed, 22 Apr 2009 04:00:00 +0100 2355071 http://www.medworm.com/index.php?rid=2355068&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F2%2F325%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2355068 Wed, 22 Apr 2009 04:00:00 +0100 2355068 http://www.medworm.com/index.php?rid=2355066&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F317%3Frss%3D1 This study evaluated its feasibility. An expert panel created six scenarios using standardized patients to portray dyads of dementia patients/caregivers, plus instructions for actors. Three research assistants trained in administering the Hamilton Depression Rating Scale portion of the Structured Interview for the Clinical Assessment of Depression in Dementia administered it to each dyad. An expert panel member telemonitored each session and scored pairs using the same instrument. Sessions were videotaped, watched and scored by research assistants. Their scores were compared with expert ratings, and deviation scores were calculated, with mean item deviation scores compared using analysis of variance. Interclass correlations and analysis of variance revealed no differences between research-... Dementia journals http://www.medworm.com/rss/comments.php?id=2355066 Wed, 22 Apr 2009 04:00:00 +0100 2355066 http://www.medworm.com/index.php?rid=2355064&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F293%3Frss%3D1 The vast majority of older adults want to remain living independently at home, with or without a sufficient amount of professional home care, even when overall health is starting to decline. The ageing of society and the increase in the number of very old elders goes together with an increase in the number of people with dementia. About two thirds of the diagnosed people in the Netherlands live at home. Dementia has severe implications to the quality of daily life, in particular to independent functioning. This sets extra demands to living environments. Older adults with dementia and their partners ask for living environments that support independence, compensate for declining vitality, and lower the burden of family care. For this purpose, a first concept of a design for a dementia dwelli... Dementia journals http://www.medworm.com/rss/comments.php?id=2355064 Wed, 22 Apr 2009 04:00:00 +0100 2355064 http://www.medworm.com/index.php?rid=2355062&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F263%3Frss%3D1 The purpose of this qualitative study was to understand the meaning of living alone for older people with dementia. Fourteen audio-taped open-ended interviews were conducted with eight such older women in Ontario, Canada. The data were analyzed using an adaptation of van Manen's method. Heidegger's philosophy informed interpretation of the findings through the theme living on the threshold. The study findings deepen understanding of `space' and `place' in the experience of living alone with dementia. Participants sought the middle-ground of dialectical tensions within the threshold space and shared insights about their spatial experience of: (a) being here, (b) being there, (c) being out, and (d) keeping out. These older women risked losing their threshold space when admitting to mistakes ... Dementia journals http://www.medworm.com/rss/comments.php?id=2355062 Wed, 22 Apr 2009 04:00:00 +0100 2355062 http://www.medworm.com/index.php?rid=2355060&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F245%3Frss%3D1 Discussion: This research supports a shift from the conventional focus on burdens to a more holistic approach that considers how caregivers can grow and emerge stronger from the caregiving experience. This has implications in the design and delivery of services as utilizing these gains as a coping resource may enable better support for caregivers. It is pertinent that professionals supporting caregivers internalize the perspective of gains so that it becomes a natural way of seeing their clients and in the process help caregivers find meaning and enrichment in their caregiving journey. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2355060 Wed, 22 Apr 2009 04:00:00 +0100 2355060 http://www.medworm.com/index.php?rid=2355058&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F223%3Frss%3D1 This study examines the psychometric properties of the Values and Preferences Scale (VPS) and compares the responses of 267 persons with cognitive impairment with the responses of their family caregivers to determine the accuracy of the caregivers' perceptions of their relatives' care values and preferences.Design and Methods: Exploratory factor analyses examined whether a consistent factor structure could be found for the VPS for both persons with cognitive impairment (PWCIs) and family caregivers. Analyses also determined whether family caregivers were accurate in their perceptions of their relative's care preferences.Results: Results indicated that the VPS was best divided into four factors or subscales (i.e., Burden, Safety/Quality of Care, Autonomy, and Social Interactions) all of whi... Dementia journals http://www.medworm.com/rss/comments.php?id=2355058 Wed, 22 Apr 2009 04:00:00 +0100 2355058 http://www.medworm.com/index.php?rid=2355056&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F205%3Frss%3D1 Aiming to provide insight into a growing area of aged care services this article reports on five practitioners' perspectives of what were the key elements of their practice in community care for older persons with dementia who live alone. It draws on the findings from the first of two research projects undertaken collaboratively with Mercy Community Care (MCC), a non-profit community care agency, in Sydney, Australia and the University of Sydney in 2003 and 2006. The first project was a pilot qualitative research study focusing on practices of staff who were involved in the Dementia Monitoring Program (DMP), a specialist service for older persons living alone with dementia. Reducing risk is a major consideration driving policy development in community care of people with dementia in Austra... Dementia journals http://www.medworm.com/rss/comments.php?id=2355056 Wed, 22 Apr 2009 04:00:00 +0100 2355056 http://www.medworm.com/index.php?rid=2355054&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F185%3Frss%3D1 This article argues that the experience of the person with dementia should frame the perspective brought to built design and the philosophy of care — in essence, `looking out from the inside'. Shifting the emphasis from condition to experience encourages the culture change needed to create environments that allow the person with dementia to be an active participant in everyday life rather than a passive recipient of care. Based on the development of a resource for residential and respite facilities in Australia, seven living experiences are identified: the presentation of self-experience, eating experience, personal enjoyment experience, bedroom experience, family and community connections experience, end-of-life experience and the staff experience. Each is discussed to show how cons... Dementia journals http://www.medworm.com/rss/comments.php?id=2355054 Wed, 22 Apr 2009 04:00:00 +0100 2355054 http://www.medworm.com/index.php?rid=2355051&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F2%2F167%3Frss%3D1 Spiritual care has become an integral part of the care package offered to older people who move to residential care. However, spirituality is a word that can mean everything or nothing and as such becomes difficult to define. Assessment of `spiritual care' becomes a real challenge, because it raises important questions. These are as follows: the nature of spiritual care; how it is offered; and who takes responsibility for it. This is especially true in dementia care homes where residents cannot normally take part in evaluation. This paper offers a model of evaluation of spiritual care by using reflection, relationship and restoration, and through observing the virtues described in the Biblical concept of `fruit of the spirit'. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2355051 Wed, 22 Apr 2009 04:00:00 +0100 2355051 http://www.medworm.com/index.php?rid=2355049&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F2%2F163%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2355049 Wed, 22 Apr 2009 04:00:00 +0100 2355049 http://www.medworm.com/index.php?rid=2139924&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F154%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139924 Wed, 28 Jan 2009 05:00:00 +0100 2139924 http://www.medworm.com/index.php?rid=2139923&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F153%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139923 Wed, 28 Jan 2009 05:00:00 +0100 2139923 http://www.medworm.com/index.php?rid=2139922&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F148%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139922 Wed, 28 Jan 2009 05:00:00 +0100 2139922 http://www.medworm.com/index.php?rid=2139921&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F142%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139921 Wed, 28 Jan 2009 05:00:00 +0100 2139921 http://www.medworm.com/index.php?rid=2139920&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F140%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139920 Wed, 28 Jan 2009 05:00:00 +0100 2139920 http://www.medworm.com/index.php?rid=2139919&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F139%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139919 Wed, 28 Jan 2009 05:00:00 +0100 2139919 http://www.medworm.com/index.php?rid=2139918&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F1%2F117%3Frss%3D1 This study has implications for how hospice social workers and other healthcare professionals provide end-of-life care for patients and families who are dealing with dementia and the types of training that should be implemented in hospice agencies to strengthen end-stage dementia care. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139918 Wed, 28 Jan 2009 05:00:00 +0100 2139918 http://www.medworm.com/index.php?rid=2139917&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F1%2F95%3Frss%3D1 Despite the significance of an early diagnosis of Alzheimer's disease (AD), African Americans are diagnosed in later stages of the disease and present with greater cognitive impairment at the time of diagnosis when compared to Euro-Americans. To this end, there exists a paucity of research on diagnostic pathways among African Americans with dementia. More specifically, few studies have explored help-seeking pathways from the initial manifestation of symptoms until an actual diagnosis of Alzheimer's disease was received from the perspective of African American caregivers. Thus, the present study examined the retrospective experiences of 17 African American caregivers who were given a diagnosis of Alzheimer's disease for a family member with dementia. Participants completed face-to-face semi... Dementia journals http://www.medworm.com/rss/comments.php?id=2139917 Wed, 28 Jan 2009 05:00:00 +0100 2139917 http://www.medworm.com/index.php?rid=2139916&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F1%2F79%3Frss%3D1 The aim of this study was to explore the experiences of men caring for spouses suffering from dementia from a salutogenic perspective. The study focused on the experiences of ten men caring for a spouse with dementia. Primarily qualitative analysing methods were utilized. Data were obtained from semi-structured interviews conducted with male spouses of patients with dementia. An orientational analysis approach was followed and the data was analysed in terms of Antonovsky's sense of coherence construct. Qualitative findings were compared to participant responses to quantitative measures. Stressors most often reported were cognitive impairment, behaviour problems, a lack of free-time, erosion of the relationship, family conflict and financial concerns. Factors facilitating caregiver coping i... Dementia journals http://www.medworm.com/rss/comments.php?id=2139916 Wed, 28 Jan 2009 05:00:00 +0100 2139916 http://www.medworm.com/index.php?rid=2139915&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F1%2F61%3Frss%3D1 This study identifies differences between in-home FTD patients and their caregivers (FTDH) and institutionalized FTD patients (FTDN) and their caregivers. Twelve in-home and 24 institutionalized FTD patients in the final stages of the disease, and their spousal caregivers, were observed. Neuropsychiatric function disorders, dementia duration and severity, burden, mental and physical health, quality of the current and premorbid relationship and caregiver motivation were analysed. The majority of FTDH patients had dementia of shorter duration and showed residual independence. In FTDH patients, neuropsychiatric symptoms were more often present whereas apathy and disinhibition were more intense in FTDN patients. FTDH caregivers felt more emotionally burdened but had better mental health. Careg... Dementia journals http://www.medworm.com/rss/comments.php?id=2139915 Wed, 28 Jan 2009 05:00:00 +0100 2139915 http://www.medworm.com/index.php?rid=2139914&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F1%2F39%3Frss%3D1 The persistence of self in individuals with probable Alzheimer's disease was investigated via language and visual self-recognition. Seventy-eight adults (ages 66—103) participated: 26 with mild cognitive impairments, 26 with moderate cognitive impairments, and 26 without impairment. Although frequency of language usage (during an interview) declined across impairment levels, there were no significant differences in either rates or proportions of pronoun and attribute usage. When asked to identify themselves in photographs taken with an instant camera, cognitively impaired individuals — in spite of forgetting the photographic session only minutes earlier — exhibited unimpaired self-recognition, a dissociation consistent with a preserved self. Taken together, these findings... Dementia journals http://www.medworm.com/rss/comments.php?id=2139914 Wed, 28 Jan 2009 05:00:00 +0100 2139914 http://www.medworm.com/index.php?rid=2139913&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F8%2F1%2F17%3Frss%3D1 This study strongly emphasises the value of health professionals seriously and empathically hearing and acting upon family carers' requests for information and prompt diagnosis of dementia. In addition, there is a significant need to improve access and organization of information and services for people with dementia and their family carers. (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139913 Wed, 28 Jan 2009 05:00:00 +0100 2139913 http://www.medworm.com/index.php?rid=2139912&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F9%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139912 Wed, 28 Jan 2009 05:00:00 +0100 2139912 http://www.medworm.com/index.php?rid=2139911&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F8%2F1%2F5%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=2139911 Wed, 28 Jan 2009 05:00:00 +0100 2139911 http://www.medworm.com/index.php?rid=1954145&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F7%2F4%2F561%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=1954145 Wed, 12 Nov 2008 05:00:00 +0100 1954145 http://www.medworm.com/index.php?rid=1954144&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F7%2F4%2F560%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=1954144 Wed, 12 Nov 2008 05:00:00 +0100 1954144 http://www.medworm.com/index.php?rid=1954143&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Freprint%2F7%2F4%2F559%3Frss%3D1 (Source: Dementia) Dementia journals http://www.medworm.com/rss/comments.php?id=1954143 Wed, 12 Nov 2008 05:00:00 +0100 1954143 http://www.medworm.com/index.php?rid=1954142&cid=s_28400_18_f&fid=28400&url=http%3A%2F%2Fdem.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F7%2F4%2F545%3Frss%3D1 The objectives of the study were to identify, compare and contrast the expectations of key stakeholders regarding cholinesterase inhibitor treatments prescribed to people with Alzheimer's Disease (AD), and to examine those expectations in the light of recent findings regarding the efficacy and effectiveness of this class of drug. Participants were four older women diagnosed with early stage AD, their lay caregivers, their professional healthcare providers, and pharmacists and policy makers, making a total of 23 participants. Semi-structured interviews were performed in a conversational style designed to elicit accounts of expectations of cholinesterase inhibitors in relation to diagnosis and treatment for AD. The interviews were carried out in the participants' own homes, their places of w... Dementia journals http://www.medworm.com/rss/comments.php?id=1954142 Wed, 12 Nov 2008 05:00:00 +0100 1954142