MedWorm.com provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest items from the 'Journal of Intellectual Disability Research' source. Tue, 07 Feb 2012 11:41:30 +0100 http://www.medworm.com/index.php?rid=5645428&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01522.x Conclusions  Parent reports of ADHD symptoms in children with ID may be positively associated with data derived using clinical interview methods, but they may be less sensitive to developmental expectations when compared with observed child behaviour. Practical implications include the need for multiple sources of information and normative data for children with ID on simple experimental tasks that can be used to aid diagnosis of ADHD in clinical settings. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645428 Wed, 01 Feb 2012 05:00:00 +0100 5645428 http://www.medworm.com/index.php?rid=5645427&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01523.x Conclusions  We found these results surprising and at odds with the majority of studies carried out in the general population and propose several reasons for the differences found. We believe that the results and further studies in this area will help inform health service provision for those with ID who live in different geographical areas. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645427 Wed, 01 Feb 2012 05:00:00 +0100 5645427 http://www.medworm.com/index.php?rid=5645426&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01524.x Conclusions  This study has shown that it is necessary to control for intercorrelation between potential risk factors for challenging behaviour and to explore how interaction between them might moderate associations. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645426 Wed, 01 Feb 2012 05:00:00 +0100 5645426 http://www.medworm.com/index.php?rid=5645425&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01527.x Conclusions  Our findings suggest that despite ethical challenges, researchers can and should pursue research that has the potential to improve the lives of persons with intellectual and developmental disabilities. Such research is more likely to be both ethical and successful if researchers pay attention to enhancing autonomy and person‐centredness, while at the same time engendering participant trust. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645425 Wed, 01 Feb 2012 05:00:00 +0100 5645425 http://www.medworm.com/index.php?rid=5645431&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01508.x Conclusion  The field as a whole will advance if the recent theoretical and technical advances outlined in this paper are employed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645431 Sun, 29 Jan 2012 05:00:00 +0100 5645431 http://www.medworm.com/index.php?rid=5645430&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01515.x Conclusions  The interactional patterns found in this study suggest that staff and clients can face difficulties establishing collaborative dialogues on shared topics. Future research should take account of what staff and clients want to achieve in dialogues, along with the nature of their non‐verbal communication. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645430 Sun, 29 Jan 2012 05:00:00 +0100 5645430 http://www.medworm.com/index.php?rid=5645429&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01519.x Conclusions  We can use available information from clinical and animal models to make more precise hypotheses regarding the particular pathophysiology driving SIB. The results of testing such hypotheses should generate pharmacological strategies that may prove efficacious in reducing SIB. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5645429 Sun, 29 Jan 2012 05:00:00 +0100 5645429 http://www.medworm.com/index.php?rid=5618503&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01525.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5618503 Sun, 22 Jan 2012 17:39:39 +0100 5618503 http://www.medworm.com/index.php?rid=5618502&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2012.01538.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5618502 Sun, 22 Jan 2012 17:39:37 +0100 5618502 http://www.medworm.com/index.php?rid=5579498&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01501.x Conclusions  Caring for an adult with ID had both positive and negative effects on parents' QOL. Improving services and service delivery, including the provision of residential services and respite, would address many of the issues that were reported to have a negative impact on parents' QOL. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5579498 Wed, 11 Jan 2012 05:00:00 +0100 5579498 http://www.medworm.com/index.php?rid=5579497&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01516.x Conclusions  Visual perceptual strengths and weaknesses in persons with ID were difficult to explain on the basis of two visual streams. An interpretation originating in a different research context (e.g. frontal‐lobe dysfunction) appears to be required for explaining visual perceptual weaknesses in persons with ID. For persons with DS, strong frontal‐lobe dysfunction with atypical lateralisation might be the pathological determinant of visual perceptual weaknesses. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5579497 Wed, 11 Jan 2012 05:00:00 +0100 5579497 http://www.medworm.com/index.php?rid=5579496&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01517.x Conclusions  The data suggest additional research is needed to understand what factors impact post‐school outcomes for students with moderate/severe ID. Yet – and regardless of the lack of impact – additional work is needed to help students achieve better post‐school outcomes, including further examination of curriculum and instructional environments. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5579496 Sun, 01 Jan 2012 05:00:00 +0100 5579496 http://www.medworm.com/index.php?rid=5570830&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01506.x Conclusion  In summary, both BPI versions were found to be equally sound psychometrically and can be endorsed for future use. However, independent future studies are needed to replicate the psychometrics of the BPI‐S with new data. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5570830 Sun, 01 Jan 2012 05:00:00 +0100 5570830 http://www.medworm.com/index.php?rid=5513837&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01486.x AbstractHistorically, intervention programmes in intellectual and developmental disabilities have targeted the individual's special needs independent of the family and environmental context. This trend has been changing over the past two decades. This paper presents a literature review on changing trends in family support and the development of family quality of life (FQOL) and intellectual disability from a construct to a theory. The evolution of research in quality of life from the perspective of the individual with the disability to the family is described. A description of the development of FQOL measures is included, specifically an introduction and comparison of the two leading comprehensive initiatives on measuring FQOL – international FQOL project and the FQOL initiative of the B... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5513837 Sun, 18 Dec 2011 04:42:32 +0100 5513837 http://www.medworm.com/index.php?rid=5502910&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01507.x Conclusion  In summary, the BPI‐S is a very useful alternative to the BPI‐01, especially for research and evaluation purposes involving groups of individuals. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5502910 Mon, 12 Dec 2011 05:00:00 +0100 5502910 http://www.medworm.com/index.php?rid=5502909&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01513.x Conclusions  Despite differences in the availability of communication skills, both student and teacher were able to make their respective contributions to the interaction during classroom activity. Features of the student–teacher interface retained critical features seen in studies of more able individuals with intellectual disability. Scaffolding provided by teachers appears to be relevant to the communicative contributions of individuals functioning at the earliest stages of communication. The coding framework based on structural‐functional linguistics provides some new potential for examining and enhancing the communication interface between individuals with S‐PMID and the people who support them. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5502909 Mon, 12 Dec 2011 05:00:00 +0100 5502909 http://www.medworm.com/index.php?rid=5485069&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01503.x Conclusion  This study highlights the need to exercise caution when ascertaining the reliability of observational studies and demonstrates the value in using multiple methods for calculating inter‐rater reliability. The paper concludes with an examination of the potential merits of using consensus coding in observational studies of interactions with people with congenital deafblindness or profound intellectual and multiple disabilities. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5485069 Tue, 06 Dec 2011 05:00:00 +0100 5485069 http://www.medworm.com/index.php?rid=5485068&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01481.x Conclusions  Findings underscore the need for resources to empower families and the value of using the FQOLS‐2006 to ascertain the service support needs and strengths of families. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5485068 Tue, 06 Dec 2011 05:00:00 +0100 5485068 http://www.medworm.com/index.php?rid=5485067&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01510.x Conclusions  This is the first study to characterise the impact of a diagnosis of this representative microdeletion syndrome on adult patients and their families. The results both validate and expand on the theoretical benefits proposed by clinicians and researchers. The use of genome‐wide microarray technologies will provide an increasing number of molecular diagnoses. The importance of a diagnosis of 22q11.2DS demonstrated here therefore has implications for changing attitudes about molecular genetic diagnosis that could benefit individuals with ID of currently unknown cause and their families. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5485067 Tue, 06 Dec 2011 05:00:00 +0100 5485067 http://www.medworm.com/index.php?rid=5485066&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01505.x Conclusions  The annotation highlights research describing disturbances in excitatory and inhibitory neurotransmitter systems, neuronal ion channel and glial functions that provide possible explanations for the co‐occurrence of seizures within several ID syndromes, in some cases suggesting possible avenues for research into novel therapeutic targets. Phenotypic overlaps between syndromes may also relate to roles for the implicated genes in different disturbances in linked biochemical pathways. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5485066 Tue, 06 Dec 2011 05:00:00 +0100 5485066 http://www.medworm.com/index.php?rid=5485065&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01511.x Conclusions  The LDLN Services were valued by stakeholders by achieving person‐centred outcomes. With their expert knowledge and skills, the liaison nurses had an important role in developing effective systems and processes within general hospital settings. The outcomes highlight the importance of supporting and promoting LDLN Services and the challenges in delivering the multifaceted elements of the role. There is a need to take account of the complex and multidimensional nature of the LDLN role and the possible tensions between achieving clinical outcomes, education and practice developments and organisational strategic initiatives. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5485065 Tue, 06 Dec 2011 05:00:00 +0100 5485065 http://www.medworm.com/index.php?rid=5502908&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01486.x AbstractHistorically, intervention programmes in intellectual and developmental disabilities have targeted the individual's special needs independent of the family and environmental context. This trend has been changing over the past two decades. This paper presents a literature review on changing trends in family support and the development of family quality of life (FQOL) and intellectual disability from a construct to a theory. The evolution of research in quality of life from the perspective of the individual with the disability to the family is described. A description of the development of FQOL measures is included, specifically an introduction and comparison of the two leading comprehensive initiatives on measuring FQOL – international FQOL project and the FQOL initiative of the B... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5502908 Thu, 01 Dec 2011 05:00:00 +0100 5502908 http://www.medworm.com/index.php?rid=5485064&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01512.x Conclusion  Regularly placed children with Down syndrome learn more academics. However, this is not a straight consequence of inclusive placement and age alone, but is also determined by factors such as cognitive functioning, non‐academic skills, parental educational level and the extent to which parents worked at home on academics. Nevertheless, it could be proven that the more advanced academic skills of the regularly placed children are not only due to selective placement. The positive effect of regular school on academics appeared to be most pronounced for reading skills. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5485064 Thu, 01 Dec 2011 05:00:00 +0100 5485064 http://www.medworm.com/index.php?rid=5439127&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01509.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5439127 Thu, 24 Nov 2011 04:37:06 +0100 5439127 http://www.medworm.com/index.php?rid=5380265&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01490.x Conclusion  Our findings are then discussed with reference to the Rakic radial‐unit hypothesis of cortical development, arguing that WS gene deletions may spare Cth yet affecting the number of founder cells/columns/radial units, hence decreasing the SA and CV. In essence, cortical brain structure in WS may be shaped by gene‐dosage abnormalities. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380265 Wed, 02 Nov 2011 04:00:00 +0100 5380265 http://www.medworm.com/index.php?rid=5380264&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01494.x Conclusions  People with ID from two ethnic groups were able to successfully complete a Delphi consultation regarding their experiences of mental health services. Broad consensus on positive experiences of services was reached in the White group but not for the Black participants. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380264 Wed, 02 Nov 2011 04:00:00 +0100 5380264 http://www.medworm.com/index.php?rid=5380263&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01495.x Conclusion  We were able to demonstrate that a proof of principle study incorporating a novel brain scanning technique in a group of volunteers with ID was feasible, safe and well tolerated, despite the vulnerabilities of the study cohort and the intrusive nature of the research. We consider the study within an ethical and historical discourse about the principles that define current ‘best practice’ in ID research and propose a number of key recommendations for making intrusive research acceptable in people with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380263 Wed, 02 Nov 2011 04:00:00 +0100 5380263 http://www.medworm.com/index.php?rid=5380262&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01496.x Conclusions  The findings are consistent with other research that finds few advantages to diagnostic grouping. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380262 Wed, 02 Nov 2011 04:00:00 +0100 5380262 http://www.medworm.com/index.php?rid=5380261&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01497.x Conclusions  Inclusive education is an appropriate educational option for primary pupils with ID who require extensive support in school. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380261 Wed, 02 Nov 2011 04:00:00 +0100 5380261 http://www.medworm.com/index.php?rid=5380260&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01498.x Conclusion  The results suggest that the visual calculator has practical applicability to support decision making by people with mild ID in community settings. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380260 Wed, 02 Nov 2011 04:00:00 +0100 5380260 http://www.medworm.com/index.php?rid=5380259&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01499.x Conclusions  Poor sleep in children/adolescents with Angelman syndrome was associated with poor parental sleep and higher parental stress. Further work is warranted to identify the underlying causes of the poor sleep, and to relate these findings to daytime functioning, behaviour and the family unit. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380259 Wed, 02 Nov 2011 04:00:00 +0100 5380259 http://www.medworm.com/index.php?rid=5380258&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01500.x Conclusion  Direct‐care staff of older adults with IDs have a vital role to play in encouraging and facilitating active ageing, as well as informing strategies that need to be implemented to ensure appropriate care for this diverse group as they proceed to old age. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380258 Wed, 02 Nov 2011 04:00:00 +0100 5380258 http://www.medworm.com/index.php?rid=5380257&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01502.x Conclusions  Future training needs to focus on differentiating between mental illness and ID, techniques for enhancing identification and communication, and the inclusion of hands‐on scenario‐based sessions involving an interdisciplinary approach. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380257 Wed, 02 Nov 2011 04:00:00 +0100 5380257 http://www.medworm.com/index.php?rid=5380256&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01487.x Conclusions  The results of this study suggest that some areas of family life contribute to quality of life for Nigerian families and other areas of life are problematic for families. Although this study is not representative of all Nigerian families that have a son or daughter with ID, it provides important initial information on the family experience with disability in Nigeria. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5380256 Tue, 01 Nov 2011 04:00:00 +0100 5380256 http://www.medworm.com/index.php?rid=5312474&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01483.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5312474 Wed, 12 Oct 2011 04:00:00 +0100 5312474 http://www.medworm.com/index.php?rid=5312473&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01485.x Conclusions  A broad sampling of regional metabolic activity indicates that the pemoline regimen produces enduring changes that are localised to specific limbic, hypothalamic and striatal structures. The potential role of limbic function in aetiology of SIB is further supported by the finding that pemoline‐induced self‐injury is exacerbated by prior exposure to social defeat stress. Overall, the results suggest brain targets that should be investigated further, and increase our understanding of the putative role that stress plays in the pathophysiology of SIB. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5312473 Wed, 12 Oct 2011 04:00:00 +0100 5312473 http://www.medworm.com/index.php?rid=5312472&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01488.x Conclusions  These findings not only highlight the need for a multidisciplinary approach to mealtime interventions (paying particular attention to psychological and environmental as well as physical issues), but also signal the daily difficulties faced by carers and paid support workers providing such support and illustrate their potentially crucial role in managing the serious health risks associated with eating and drinking difficulties in this population. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5312472 Wed, 12 Oct 2011 04:00:00 +0100 5312472 http://www.medworm.com/index.php?rid=5312471&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01489.x Conclusion  Implications of results for technology use of people with disabilities are discussed through the lens of frequency of use and needs for individuals with disabilities. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5312471 Wed, 12 Oct 2011 04:00:00 +0100 5312471 http://www.medworm.com/index.php?rid=5312470&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01491.x Conclusions  All three measures showed sufficient reliability, validity and responsiveness in preschoolers with ID, but the PDMS‐2 is recommended for its superior psychometric properties. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5312470 Wed, 12 Oct 2011 04:00:00 +0100 5312470 http://www.medworm.com/index.php?rid=5312469&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01493.x Conclusions  The prevalence of burnout in this North American sample is comparable to what has been reported in similar populations in other locations, although these staff may have a higher sense of accomplishment with regard to their work. Findings from this large sample support the evidence that exposure to client aggression affects staff emotional well‐being but is by no means the only important factor. Further study is needed to explore the differences and similarities reported here as well as other contributing factors which will guide the implementation of effective strategies to improve staff well‐being. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5312469 Sat, 01 Oct 2011 04:00:00 +0100 5312469 http://www.medworm.com/index.php?rid=5271473&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01492.x Conclusions  These results support some of the findings of Symons et al. and they raise questions about the blunted nociception hypothesis of self‐injury. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5271473 Sat, 01 Oct 2011 04:00:00 +0100 5271473 http://www.medworm.com/index.php?rid=5271477&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01469.x Conclusions  In spite of the limited effectiveness of a one‐session staff training workshop, continued staff training is still necessary for the improvement of service quality. Further exploration on how to change emotion response of staff is important. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5271477 Thu, 29 Sep 2011 04:00:00 +0100 5271477 http://www.medworm.com/index.php?rid=5271476&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01472.x Conclusions  Developing diabetes information together with the people concerned is an important step towards engagement in self‐management activities. At the same time, the professional staff in living arrangements should stimulate and support the development of self‐management skills in people with diabetes, by providing opportunities to learn and develop. Therefore, the professional staff also need skills and information to be able to support people with ID in building the skills and confidence they need to lead active and fulfilling lives, despite having diabetes. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5271476 Thu, 29 Sep 2011 04:00:00 +0100 5271476 http://www.medworm.com/index.php?rid=5271475&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01479.x Conclusion  Genotype/phenotype correlation is discussed and the importance of a molecular study of MECP2 gene in patients with very mild features or a regression after the age of 2 is raised. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5271475 Thu, 29 Sep 2011 04:00:00 +0100 5271475 http://www.medworm.com/index.php?rid=5271474&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01475.x Conclusion  The Family Quality of Life Survey‐2006 was found to be a valuable tool for identifying and evaluating factors that enhance FQOL. Further research is needed to develop application models for integrating this instrument into the agency's service and evaluation repertoire. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5271474 Thu, 29 Sep 2011 04:00:00 +0100 5271474 http://www.medworm.com/index.php?rid=5248090&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01471.x AbstractAcross many academic disciplines visualisation and notation systems are used for modelling data and developing theory, but in child development visual models are not widely used; yet researchers and students of developmental difficulties may benefit from a visualisation and notation system which can clearly map developmental outcomes and trajectories, and convey hypothesised dynamic causal pathways. Such a system may help understanding of existing accounts and be a tool for developing new theories. We first present criteria that need to be met in order to provide fully nuanced visualisations of development, and discuss strengths and weaknesses of the visualisation system proposed by Morton. Secondly, we present a tool we have designed to give more precise accounts of development wh... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5248090 Sat, 24 Sep 2011 05:03:10 +0100 5248090 http://www.medworm.com/index.php?rid=5248089&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01474_2.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5248089 Sat, 24 Sep 2011 05:03:09 +0100 5248089 http://www.medworm.com/index.php?rid=5248088&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01474_1.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5248088 Sat, 24 Sep 2011 05:03:07 +0100 5248088 http://www.medworm.com/index.php?rid=5248087&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01473.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5248087 Sat, 24 Sep 2011 05:03:05 +0100 5248087 http://www.medworm.com/index.php?rid=5222022&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01470.x Conclusions  There is a significant relationship between sociodemographic factors and ID. Similar patterns were found for both mild and severe ID. Recommendations are given for preventing ID in Chinese children. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222022 Thu, 15 Sep 2011 04:00:00 +0100 5222022 http://www.medworm.com/index.php?rid=5222021&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01476.x Conclusions  The research suggests that numerous factors, including the role of emotional experience and a number of environmental aspects, need to be considered in the context of providing mental health services to adults with ID to ensure the highest quality. Research limitations and clinical implications of the study are also considered. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222021 Thu, 15 Sep 2011 04:00:00 +0100 5222021 http://www.medworm.com/index.php?rid=5222020&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01478.x Conclusions  We highlight strategies which produce answers satisfactory to both parties, and improve the quality of interaction between staff and people with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222020 Thu, 15 Sep 2011 04:00:00 +0100 5222020 http://www.medworm.com/index.php?rid=5222019&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01480.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222019 Thu, 15 Sep 2011 04:00:00 +0100 5222019 http://www.medworm.com/index.php?rid=5222018&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01482.x Conclusions  The results of this study indicate the CBIM program was effective in increasing HIV/AIDS knowledge and skills among women with ID, who live both semi‐independently and independently, in a single‐session intervention. As the CBIM program is not dependent on staff for instructional delivery, it is a highly efficient teaching tool; and CBIM is an efficacious means to provide behavioural health content, compensating for the dearth of available health promotion materials for people with ID. As such, it has a potential for broad distribution and implementation by medical practitioners, and public health offices. People with ID are part of our society, yet continue to be overlooked, particularly in the area of health promotion. Special tools need to be developed in order to add... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222018 Thu, 15 Sep 2011 04:00:00 +0100 5222018 http://www.medworm.com/index.php?rid=5222017&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01467.x Conclusions  ABA appears to be no more effective than standard care in improving social outcomes in people with intellectual disabilities and challenging behaviour but this requires further examination in a larger trial. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222017 Thu, 15 Sep 2011 04:00:00 +0100 5222017 http://www.medworm.com/index.php?rid=5222016&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01484.x Conclusions  There is evidence that pain pathways and pain amplification mechanisms are altered in several preclinical models of developmental disorders that cause ID. We present hypotheses regarding how impaired pain pathways or chronic pain might contribute to self‐injurious behaviour. Studies evaluating the relationship between pain and self‐injurious behaviour will provide better understanding of the mechanisms underlying self‐injurious behaviour in the ID population and may lead to more effective treatments. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5222016 Thu, 01 Sep 2011 04:00:00 +0100 5222016 http://www.medworm.com/index.php?rid=5181615&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01477.x Conclusion  Our results indicate that social skills in children with 22q11DS are associated with behaviour/emotional functioning and not with neurocognition. Thus, treating the behaviour or emotional problems such as attention deficit hyperactivity disorder and anxiety disorders may provide a pathway for improving social skills in these children. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181615 Wed, 31 Aug 2011 23:00:00 +0100 5181615 http://www.medworm.com/index.php?rid=5181616&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01468.x Conclusions  The rate of obesity in our sample was higher than in previous studies. The most predictive combination of predictors to predict BMI was ID level, gender and serum triglyceride levels. Serum triglyceride and cholesterol levels did not appear to be unduly affected by first‐ or second‐generation antipsychotic medication or by antiepileptic medication. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181616 Tue, 30 Aug 2011 23:00:00 +0100 5181616 http://www.medworm.com/index.php?rid=5181622&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01457.x Conclusions  The reversed handedness effect during bimanual coordination suggests a complex relationship between handedness and task requirements in adults with Down syndrome. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181622 Mon, 29 Aug 2011 23:00:00 +0100 5181622 http://www.medworm.com/index.php?rid=5181621&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01462.x Conclusions  The FQOLS‐2006 provided a comprehensive measure of FQOL, which, with some additional modifications, could be used to better inform service provisions and ultimately enhance the quality of life of people with intellectual/developmental disabilities and their families. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181621 Mon, 29 Aug 2011 23:00:00 +0100 5181621 http://www.medworm.com/index.php?rid=5181620&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01463.x Conclusions  As family researchers continue their mission to conceptualise and theorise about FQOL, they should also promote the refinement of FQOL measurements and consider the implications from family instruments used in the healthcare and general family fields from the following aspects: (1) domains of FQOL; (2) units of analysis; (3) response format; (4) scoring choice; and (5) psychometric evaluation. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181620 Mon, 29 Aug 2011 23:00:00 +0100 5181620 http://www.medworm.com/index.php?rid=5181619&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01464.x Conclusions  The results of this study suggest that QoL is perceived somewhat differently by individuals with ID and by members of their families. This difference could negatively impact QoL of people with ID, if their views are not taken into account when planning for family support. The relationships between individual and family QoL appear to be quite complex, and such complexity needs to be clarified in future research. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181619 Mon, 29 Aug 2011 23:00:00 +0100 5181619 http://www.medworm.com/index.php?rid=5181618&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01465.x Conclusions  Our unbiased, DSM‐independent analyses, using a rating scale specifically designed for individuals with severe intellectual disability, demonstrated that DSM‐based criteria of ASD are applicable to DS individuals despite their cognitive impairments. Two DS + ASD clusters were identified and supported the existence of at least two subtypes of ASD in DS, which deserve further characterisation. Despite the prominence of stereotypic behaviour in DS, the SMD diagnosis was not identified by cluster analysis, suggesting that high‐level stereotypy is distributed throughout DS. Further supporting DSM diagnoses, typically behaving DS participants were easily distinguished as a group from those with maladaptive behaviours. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181618 Mon, 29 Aug 2011 23:00:00 +0100 5181618 http://www.medworm.com/index.php?rid=5181617&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01466.x Conclusion  Ethnic influences on mental health service utilisation were identified. Understanding their significance and potential negative consequences requires further investigation. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5181617 Mon, 29 Aug 2011 23:00:00 +0100 5181617 http://www.medworm.com/index.php?rid=5125667&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01461.x AbstractThis paper seeks to examine a number of issues which relate to the provision of appropriate and high‐quality residential and community care for people with an intellectual disability. A number of key themes emerging from this Special Issue of the Journal of Intellectual Disability Research are identified and explored: (1) normalisation; (2) inclusion; (3) choice; and (4) regulation. It is concluded that the research community has an obligation to assume a higher profile at a time when the quality of life of people with an intellectual disability and their families is under threat. This can be done in a number of ways through: (1) the establishment of demonstration projects, either independently or in association with the voluntary and statutory sector, to explore innovative and p... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5125667 Sat, 13 Aug 2011 12:47:58 +0100 5125667 http://www.medworm.com/index.php?rid=5095914&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01461.x AbstractThis paper seeks to examine a number of issues which relate to the provision of appropriate and high‐quality residential and community care for people with an intellectual disability. A number of key themes emerging from this Special Issue of the Journal of Intellectual Disability Research are identified and explored: (1) normalisation; (2) inclusion; (3) choice; and (4) regulation. It is concluded that the research community has an obligation to assume a higher profile at a time when the quality of life of people with an intellectual disability and their families is under threat. This can be done in a number of ways through: (1) the establishment of demonstration projects, either independently or in association with the voluntary and statutory sector, to explore innovative and p... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5095914 Sun, 31 Jul 2011 23:00:00 +0100 5095914 http://www.medworm.com/index.php?rid=5086069&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01452.x AbstractIn some neuro‐developmental disorders, the combined effect of intellectual disability and atypicalities of social cognition may put individuals at increased vulnerability in their social environment. The neuro‐developmental disorders Williams syndrome, characterised by ‘hypersociability’, and autism spectrum disorders, characterised by ‘social withdrawal’, are at two extremes of atypical social functioning in humans. In this article, we use Williams syndrome and autism spectrum disorders as exemplars to demonstrate how atypicalities of social cognition may contribute to social vulnerability in these populations. The lives of individuals with both these disorders are marred by an increased risk of social isolation, bullying, unsteady relationships, employment difficultie... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086069 Sun, 31 Jul 2011 23:00:00 +0100 5086069 http://www.medworm.com/index.php?rid=5086068&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01453.x Discussion  The results are consistent with findings in other family quality of life studies in terms of family experience, and the types of challenges faced when the child was at home, including when excluded from the regular education system. Extensive support in raising children is required by parents and without this there is a deleterious effect on family life. Many families experienced exclusion within their home communities. Full‐time day and residential support were provided, allowing the family to function more effectively and later to provide a more natural home environment for the child. The article raises questions of policy concerning family well‐being, as well as the needs of the child. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086068 Sun, 31 Jul 2011 23:00:00 +0100 5086068 http://www.medworm.com/index.php?rid=5086067&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01455.x Conclusion  The PAMS programme has a positive and indirect influence on QoL by reducing CB. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086067 Sun, 31 Jul 2011 23:00:00 +0100 5086067 http://www.medworm.com/index.php?rid=5086073&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01450.x Conclusions  The BRP seems a feasible approach with this client group and gave insights into their feelings and opinions on CBT. Clinical implications of the results and the potential for further developments are discussed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086073 Sat, 30 Jul 2011 23:00:00 +0100 5086073 http://www.medworm.com/index.php?rid=5086072&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01456.x Conclusions  The results support earlier findings that suggest people with ID have only a partial understanding of the concept of death leaving them vulnerable to factually incorrect thoughts. The study highlights the considerable scope for making sense of death using religious and spiritual themes and emphasises the need for teaching individuals biological explanations of the life cycle. The results also provide some insight into the views of individuals with ID for carers involved in providing post‐bereavement support. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086072 Sat, 30 Jul 2011 23:00:00 +0100 5086072 http://www.medworm.com/index.php?rid=5086071&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01458.x Conclusions  Further research is needed into the validity of objective sleep parameters, as measured with the Actiwatch, for screening and epidemiological research in older people with ID. It needs to be investigated which sensitivity setting of the Actiwatch gives most valid results in this specific group, whereas reference data on sleep parameters and cut‐off values are to be obtained. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086071 Sat, 30 Jul 2011 23:00:00 +0100 5086071 http://www.medworm.com/index.php?rid=5086070&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01459.x Conclusion  Personal digital photography appears to be a feasible, reliable and valid method for assessing dietary quality in people with mild to moderate ID, who have daily staff support. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5086070 Sat, 30 Jul 2011 23:00:00 +0100 5086070 http://www.medworm.com/index.php?rid=5069336&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01454.x Conclusions  These findings are discussed in terms of there implications for reward‐based educational intervention programmes. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5069336 Wed, 27 Jul 2011 20:54:44 +0100 5069336 http://www.medworm.com/index.php?rid=5069338&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01449.x Conclusions  Participants with an ID and their carers want housing and support that enable people with an ID to maintain and enhance their social networks with their peers as they grow older and require transition to formal housing and support services, and to be able to ‘age in place’. A preference was expressed for models of housing that provide the opportunity for people with an ID to live in close proximity to their peers and in large groups in the community rather than in small, dispersed community housing. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5069338 Mon, 25 Jul 2011 23:00:00 +0100 5069338 http://www.medworm.com/index.php?rid=5069337&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01451.x Conclusions  Systematic collection of developmental and behavioural data in very rare entities such as MSS allows recognition of specific patterns in these qualities. Clinical recognition of physical,developmental and behavioural features is important not only for diagnosis, prognosis and counselling of families, but also increases our understanding of the biological basis of the human physical and behavioural phenotype. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5069337 Mon, 25 Jul 2011 23:00:00 +0100 5069337 http://www.medworm.com/index.php?rid=5050373&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01460.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5050373 Fri, 22 Jul 2011 14:33:20 +0100 5050373 http://www.medworm.com/index.php?rid=5050372&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01442.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5050372 Fri, 22 Jul 2011 14:33:14 +0100 5050372 http://www.medworm.com/index.php?rid=5008003&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01435.x Conclusions  Children with DS are at risk for developing symptoms of sleep disordered breathing, and may have additional sleep problems that are unrelated to sleep disordered breathing. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5008003 Mon, 04 Jul 2011 23:00:00 +0100 5008003 http://www.medworm.com/index.php?rid=5008002&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01436.x Conclusions  Health checks are effective in identifying previously unrecognised health needs, including life‐threatening conditions. Future research should consider strategies for optimising the cost‐effectiveness or efficiency of health checks. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5008002 Mon, 04 Jul 2011 23:00:00 +0100 5008002 http://www.medworm.com/index.php?rid=5008001&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01437.x Conclusion  Efforts need to be made to provide parents of adolescents with ID tailored information about how they can assist their child in managing their weight. This information should emphasise to parents the important part they play as role models and as providers for healthy choices for physical activity as well as nutrition. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5008001 Mon, 04 Jul 2011 23:00:00 +0100 5008001 http://www.medworm.com/index.php?rid=5008000&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01438.x Conclusions  The results show evidence that there is a relationship between challenging behaviour and burnout that is mediated by negative emotion, namely the fear of potential assault. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5008000 Mon, 04 Jul 2011 23:00:00 +0100 5008000 http://www.medworm.com/index.php?rid=5007999&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01443.x This study has examined whether or not self‐regulatory strategies vary depending on pretend play situations in 40 children with intellectual disability and 40 typically developing children.Method  Their cognitive, linguistic and individual symbolic play levels were assessed in order to match the children of the two groups. During two dyadic pretend play sessions (Itinerary, Creativity), their abilities in dyadic pretend play and in self‐regulation were assessed by coding their behaviour via two validated grids.Results  The results showed similar overall levels in dyadic pretend play in both groups but a lower involvement was observed in disabled children. Some specific deficits and strengths in self‐regulatory strategies were highlighted in children with intellectual disability. ... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007999 Mon, 04 Jul 2011 23:00:00 +0100 5007999 http://www.medworm.com/index.php?rid=5007998&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01444.x AbstractBackground  Recent studies have shown that individuals with Down syndrome (DS) are poorer than controls in performing verbal and visuospatial dual tasks. The present study aims at better investigating the dual task deficit in working memory in individuals with DS.Method  Forty‐five individuals with DS and 45 typically developing children matched for verbal mental age completed a series of verbal and visuospatial working memory tasks, involving conditions that either required the combination of two tasks in the same modality (verbal or visual) or of cross‐modality pairs of tasks.Results and conclusions  Two distinct deficits were found in individuals with DS: impairment in verbal tasks and further impairment in all dual task conditions. The results confirm the hypothesis o... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007998 Mon, 04 Jul 2011 23:00:00 +0100 5007998 http://www.medworm.com/index.php?rid=5007997&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01445.x Conclusions  There is a tension between the duty of care and the duty to recognise autonomy at the level of service delivery in residential homes. Support workers attempt to manage this tension; however, further work needs to be done by both residential services and policy makers to facilitate the reconciliation of the duty of care with the duty to recognise service users' autonomy in practice. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007997 Mon, 04 Jul 2011 23:00:00 +0100 5007997 http://www.medworm.com/index.php?rid=5007996&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01446.x Conclusions  It is concluded that interpersonal relationships between neighbours with and without ID should not be simplified in terms of attitudes that would be primarily prejudiced/stigmatising versus entirely accepting. Rather, our studies paint a more complex picture of sometimes ambivalent thoughts, feelings and interaction needs that all should be taken into account to make social integration a success. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007996 Mon, 04 Jul 2011 23:00:00 +0100 5007996 http://www.medworm.com/index.php?rid=5007995&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01447.x Conclusions  Self‐esteem is a complex personal concept with many influencing factors. Cognitive behaviour therapy has a unique role in realising and overcoming negative core beliefs and feelings of low self‐worth. The offence types concurred with previously noted patterns of offending within the intellectually disabled forensic population. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007995 Mon, 04 Jul 2011 23:00:00 +0100 5007995 http://www.medworm.com/index.php?rid=5007994&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01448.x Conclusions  The Maternal Behavior Rating Scale contributes to our understanding of staff interactive style during activities with people with PIMD. Specifically for MSST, the moderate scores on the interactive style dimensions were unexpected, because the individualised MSST activity created an optimal situation for high‐quality interaction with people with PIMD. Because the interactive style did not improve through the repetition of the activity either, these results might point to a need for staff training in achieving high‐quality interaction during activities like MSST. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007994 Mon, 04 Jul 2011 23:00:00 +0100 5007994 http://www.medworm.com/index.php?rid=5007993&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01440.x Conclusions  As a result of the psychometric properties illustrated, this study supports the use of the BSI as a screener for psychopathology and a general outcome measure in people with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007993 Mon, 04 Jul 2011 23:00:00 +0100 5007993 http://www.medworm.com/index.php?rid=5007992&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01439.x Discussion  Particular illnesses were found to be highly prevalent in PWID. There were important differences between different living arrangements depending on the level of formal support available and the stage of deinstitutionalisation. PWID are in need of tailored primary health programs that guarantee their access to quality health and health promotion and the preventative health actions of vaccination programs, systematic health checks, specific screenings and nutritional controls. Extensive national health surveys and epidemiological studies of PWID in the EC member states are urgently needed in order to reduce increased morbidity rates among this population. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007992 Mon, 04 Jul 2011 23:00:00 +0100 5007992 http://www.medworm.com/index.php?rid=5007991&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01441.x Conclusion  The incidence rate calculated as a result of the present study indicates that approximately 2.12 per 1000 children are born per year to women with ID. For the whole of Sweden that rate indicates an incidence of approximately 225 children each year. On the basis of this, the prevalence of children (aged 0–18 years) being born to women with ID is estimated at about 4050. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=5007991 Thu, 30 Jun 2011 23:00:00 +0100 5007991 http://www.medworm.com/index.php?rid=4945043&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01428.x Conclusions  Some specificity of childhood abuse was evident in the male cohorts suggesting limited evidence of a developmental pathway to offending, while the women were a group highly vulnerable to all forms of abuse. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4945043 Sun, 19 Jun 2011 14:44:13 +0100 4945043 http://www.medworm.com/index.php?rid=4933920&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01434.x Conclusions  This research provides initial data for family quality of life in Bosnia and Herzegovina. It also provides suggestions for improving quality of life for families that have one or more members with ID. The results should also contribute to rejecting stereotypes and promoting inclusion of children with ID as well as the rights of their families. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4933920 Fri, 17 Jun 2011 03:16:35 +0100 4933920 http://www.medworm.com/index.php?rid=4945044&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01427.x Conclusions  More instruments that measure QOL need to be developed and rigorously validated. This is especially the case for high‐needs disability populations like those individuals that exhibit challenging behaviour or have severe to profound ID, as it is questionable whether existing measures can be used with these populations. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4945044 Thu, 16 Jun 2011 23:00:00 +0100 4945044 http://www.medworm.com/index.php?rid=4933924&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01431.x Conclusions  This study provides preliminary evidence of the 6‐month maintenance effect of CBT groups for the Melbourne‐resident Chinese parents of children with intellectual disabilities. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4933924 Sun, 12 Jun 2011 23:00:00 +0100 4933924 http://www.medworm.com/index.php?rid=4933923&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01432.x Conclusion  The health, employment and social needs of the majority of people with DS in the city of Rome are not being met. The findings of this study underscore the urgent need for more comprehensive inclusion in society of adults with DS and for the provision of support services to create an enabling environment for inclusion. Because of the variability of performance among individuals with DS, there is a need to create more case‐specific options in terms of work, living arrangements, social networking and medical services. Schooling and social inclusion in childhood alone do not guarantee a satisfactory quality of life in adulthood. It is argued herewith that policy of inclusion and support should extend over the entire lifetime of people with DS. (Source: Journal of Intellectual D... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4933923 Sun, 12 Jun 2011 23:00:00 +0100 4933923 http://www.medworm.com/index.php?rid=4933922&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01430.x This article provides a synthesis of literature pertaining to the development of haptic exploratory strategies in children who have visual impairment and intellectual disabilities. The information received through such strategies assumes particular significance for these children, given the restricted information available through their visual modality, often in combination with additional sensory and/or physical impairments. The literature reviewed from early child development highlights the importance of independent activity in the development of exploratory strategies, as well as the pivotal role of vision in ‘mediating’ information received through the haptic modality. In translating these findings to children who have visual impairment and intellectual disabilities, the role of th... Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4933922 Sun, 12 Jun 2011 23:00:00 +0100 4933922 http://www.medworm.com/index.php?rid=4933921&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01433.x Conclusions  The quantitative data from the FQOLS‐2006 were supported and further explained by the qualitative data. These findings highlight the importance of adequate professional support, which is a flexible and capable answer to each family's individual needs. The authors warn of the dangers of ‘handicapism’ and plea for a family‐centred support approach that takes the whole family into account. Finally, they indicate the benefits of increased practical‐pedagogical support. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4933921 Sun, 12 Jun 2011 23:00:00 +0100 4933921 http://www.medworm.com/index.php?rid=4802954&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01422.x Conclusion  Directions for future research are discussed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4802954 Mon, 09 May 2011 23:00:00 +0100 4802954 http://www.medworm.com/index.php?rid=4802953&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01423.x Conclusions  High rates of clinically significant psychiatric problems were detected in ASD children, with anxiety and attention deficit hyperactivity disorder being the most frequently detected syndromes. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4802953 Mon, 09 May 2011 23:00:00 +0100 4802953 http://www.medworm.com/index.php?rid=4802952&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01425.x Conclusions  The results highlight the important role of families in determining how much physical activity children with Down syndrome undertake and the effect that common characteristics associated with Down syndrome can have on maintaining an active lifestyle. Future research needs to concentrate on successful methods of encouraging physical activity, such as ensuring social interaction is part of the activity, and eliminating barriers to physical activity such as the a lack of appropriate programmes for children with Down syndrome. Implementing these strategies may encourage children with Down syndrome to participate more frequently in a physically active lifestyle. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4802952 Mon, 09 May 2011 23:00:00 +0100 4802952 http://www.medworm.com/index.php?rid=4802951&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01426.x Conclusion  These results are consistent with previous work showing a configural face processing approach in WMS, a strategy that is also utilised by normal controls. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4802951 Mon, 09 May 2011 23:00:00 +0100 4802951 http://www.medworm.com/index.php?rid=4802955&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01405.x Conclusion  Overall, the majority of out‐of‐area providers appear to supply a good standard of care but there are many factors that continue to hinder the local treatment of individuals who present with challenging behaviour. There is an imperative to identify poorly performing providers as well as exploring ways in which service users, out‐of‐area, can be supported effectively. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4802955 Sun, 08 May 2011 23:00:00 +0100 4802955 http://www.medworm.com/index.php?rid=4802950&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01429.x Conclusion  The findings of this review stress the need to improve the knowledge, competence and attitudes of practitioners within the DD field via training and practice opportunities. In light of this review, recommendations for improving training opportunities and for conducting future research are made. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4802950 Sat, 30 Apr 2011 23:00:00 +0100 4802950 http://www.medworm.com/index.php?rid=4733857&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01421.x Conclusions  In clinical practice, most prescriptions for antipsychotic drugs in people with ID are consistent with the evidence base and the overall quality of prescribing practice, as measured against recognised standards, is good, although in some patients potentially remedial side effects may not be detected and treated. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4733857 Thu, 21 Apr 2011 16:57:07 +0100 4733857 http://www.medworm.com/index.php?rid=4733860&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01392.x Conclusions  The conceptual model of the FQOLS‐2006 was supported with some qualifications. Each domain on the survey can be reliably measured by four dimensions Opportunities, Initiative, Attainment and Satisfaction. The dimensions of Importance and Stability, however, did not fit. Data reported on these dimensions from past and current studies should be interpreted with caution. The construct of FQoL is also reliably measured by the domains of the FQOLS‐2006. Further research into the psychometric properties of the survey, particularly from a cross‐cultural perspective, is needed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4733860 Tue, 19 Apr 2011 23:00:00 +0100 4733860 http://www.medworm.com/index.php?rid=4733859&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01419.x Conclusions  The results of this study indicate that the ETUQ generates a valid measure of perceived difficulty in using everyday technology including adult persons with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4733859 Tue, 19 Apr 2011 23:00:00 +0100 4733859 http://www.medworm.com/index.php?rid=4733858&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01424.x Conclusions  It is proposed that efforts to evaluate dementia‐related care provision with respect to quality need to consider quality of care provision components such as (1) clinically relevant early and periodic assessment; (2) functional modifications in the living setting; (3) constructive staff education and functionality for stage‐adapted care; and (4) flexible long‐term services provision that recognises and plans for progression of decline and loss of function. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4733858 Tue, 19 Apr 2011 23:00:00 +0100 4733858 http://www.medworm.com/index.php?rid=4714641&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01418.x Conclusions  Impulse control, mood dysregulation and perceived threat appear to underlie most of the aggressive behaviours reported. Psychosis and depression appeared to have been over‐diagnosed in persons with mild to moderate ID and under‐diagnosed in persons with severe and profound ID. These findings replicate and extend findings from previous studies. The pattern of associations reported can be used as helpful indicators by professionals involved in the treatment of aggressive behaviours in persons with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4714641 Fri, 15 Apr 2011 11:54:14 +0100 4714641 http://www.medworm.com/index.php?rid=4714644&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01420.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4714644 Wed, 13 Apr 2011 23:00:00 +0100 4714644 http://www.medworm.com/index.php?rid=4714643&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01417.x Conclusions  Six specific life events were found to be associated with use of emergency departments in response to crisis. We suggest intervention efforts be targeted towards people who experience life events, particularly these events, as they may be a risk factor for hospital visits. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4714643 Wed, 13 Apr 2011 23:00:00 +0100 4714643 http://www.medworm.com/index.php?rid=4714642&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01416.x Discussion  Children with ID appear to be at heightened risk for ADHD and they may experience a longer and more persistent course of the disorder. These findings highlight the need for making interventions available for early treatment of this condition in children with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4714642 Wed, 13 Apr 2011 23:00:00 +0100 4714642 http://www.medworm.com/index.php?rid=4636352&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01408.x Conclusions  The importance rating can be viewed as a determining factor in terms of quality of life, and it played a critical role in supporting attainment of, and satisfaction with, family quality of life, assuming opportunities, initiative and stability are adequate. The need for a broader sample including families that were not receiving services was noted. Future research questions based on the results of the current study and some of the dynamics impacting Malaysian society are also suggested. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4636352 Sat, 26 Mar 2011 09:34:37 +0100 4636352 http://www.medworm.com/index.php?rid=4631402&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01415.x Conclusions  Parents of children with DS tailor home literacy environments to their children's developmental levels. Confirming earlier studies, children with DS achieved some higher literacy skills than what was expected for their MA, emphasising the importance of early reading interventions for this population. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4631402 Fri, 25 Mar 2011 05:40:28 +0100 4631402 http://www.medworm.com/index.php?rid=4631406&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01412.x Conclusions  Initial validity tests indicated that the Chinese Quality of Life Questionnaire – Intellectual Disabilities may be a useful instrument for measuring the quality of life of Chinese people with ID. Cultural issues are discussed and recommendations for future research and service development are made. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4631406 Thu, 24 Mar 2011 00:00:00 +0100 4631406 http://www.medworm.com/index.php?rid=4631405&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01414.x Conclusions  The start of the Contact programme coincided with improved quality of interaction between professional caregivers and clients with visual and intellectual disabilities in group homes. Further research is necessary regarding the generalisability, long‐term effects and effects on quality of life. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4631405 Thu, 24 Mar 2011 00:00:00 +0100 4631405 http://www.medworm.com/index.php?rid=4631404&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01401.x Conclusion  Instead of the 5‐point scale, a 3‐point scale could be used for IDs in the field test of developing the module WHOQOL‐DIS. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4631404 Thu, 24 Mar 2011 00:00:00 +0100 4631404 http://www.medworm.com/index.php?rid=4631403&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01409.x Conclusions  Children with CP aged between 5 and 9 years show different developmental trajectories for non‐verbal intellectual capacity, which are associated with the severity of CP. The development of non‐verbal intellectual capacity in children with less severe CP seems to resemble that of typically developing children, while children with more severe CP show a limited intellectual development compared to typically developing children. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4631403 Thu, 24 Mar 2011 00:00:00 +0100 4631403 http://www.medworm.com/index.php?rid=4600460&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01413.x Conclusions  The use of the MBI‐HHS as an instrument for measuring burnout among ID workers has its attraction but also its limitations. In particular, the DP sub‐scale should be used with caution because there appear to be wording issues for staff in ID settings that may lead to inconsistent responses. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4600460 Thu, 17 Mar 2011 04:45:09 +0100 4600460 http://www.medworm.com/index.php?rid=4600462&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01410.x Conclusion  implicit learning is variable in genetic syndromes and therefore relatively independent of general intellectual capacities. The results are discussed together with previous reports. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4600462 Tue, 15 Mar 2011 00:00:00 +0100 4600462 http://www.medworm.com/index.php?rid=4600461&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01411.x Conclusions  These results suggest that alterations in sensitivity to input mediate atypical pathways for language development in WS, where hyperacusis exerts an important influence together with other non‐auditory factors. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4600461 Tue, 15 Mar 2011 00:00:00 +0100 4600461 http://www.medworm.com/index.php?rid=4565829&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01399.x Conclusions  It is possible to recruit community‐dwelling women with intellectual disabilities into randomised controlled trials at relatively high participation rates. Recruiting women who have guardians poses additional challenges for researchers. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4565829 Tue, 08 Mar 2011 00:00:00 +0100 4565829 http://www.medworm.com/index.php?rid=4565828&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01407.x Conclusions  Compared to other working Australians, mothers in this study had higher education yet reported poorer health, lower family income and lower workforce participation. Respondents reported that service system limitations were the main barriers to participation in the paid workforce. Investigation of service changes such as increased respite care, availability of outside hours school care, improved professional competency and family‐centred services is recommended in order to improve maternal participation in paid work. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4565828 Tue, 08 Mar 2011 00:00:00 +0100 4565828 http://www.medworm.com/index.php?rid=4565827&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01404.x Conclusions  Our data suggest that in RTT, autistic behaviour persists after the period of regression. It also demonstrated that neurological and behavioural impairments, including autistic features, are relatively independent of one another. Consistent with previous reports of the RTT phenotype, individual MECP2 mutations demonstrate complex associations with autistic features. Evidence of persistent autistic behaviour throughout childhood, and of a link between hand function and social skills, has important implications not only for research on the RTT behavioural phenotype, but also for the clinical management of the disorder. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4565827 Tue, 08 Mar 2011 00:00:00 +0100 4565827 http://www.medworm.com/index.php?rid=4554560&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01396.x Discussion  After careful choice of appropriate initial test, stability of IQ in children with developmental delay was noted from pre‐school through early childhood. In addition, the translated version of cognitive assessment was valid for the required context of an Asian developing country. With the current emphasis on early identification and intervention for pre‐school children with developmental delay, this information bears merit in clinical practice. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4554560 Sun, 06 Mar 2011 00:00:00 +0100 4554560 http://www.medworm.com/index.php?rid=4554559&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01397.x Conclusion  This study highlights the imperative for researchers and practitioners alike to develop a focus on strengths, generalisation and the quality of life of adolescents with ASD. The APRS also shows promise in helping document outcomes for adolescents with ASD in Asia and further development of this instrument is needed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4554559 Sun, 06 Mar 2011 00:00:00 +0100 4554559 http://www.medworm.com/index.php?rid=4554558&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01398.x Conclusion  In spite of expansion of antenatal screening in the Netherlands, Down syndrome live birth prevalence has risen in the last two decades as a result of rising maternal age. This increase in Down syndrome birth prevalence is in contrast to studies from other European countries. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4554558 Sun, 06 Mar 2011 00:00:00 +0100 4554558 http://www.medworm.com/index.php?rid=4544882&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01391.x Conclusion  The preliminary findings of this study suggest a cross‐cultural factor structure comparability of FQOL between samples in the USA and China. Results call for further examination of the family‐centred service and support as a mediator on the interactive relationship between family characteristics, family needs and FQOL outcomes. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544882 Thu, 03 Mar 2011 00:00:00 +0100 4544882 http://www.medworm.com/index.php?rid=4544881&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01393.x Conclusions  This study shows not only that siblings can define their quality of life, but also that this definition of sibling quality of life differs from the family quality of life concept. Therefore, it may be not only a valuable addition to the family quality of life concept but also an appropriate concept to describe siblings' experience. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544881 Thu, 03 Mar 2011 00:00:00 +0100 4544881 http://www.medworm.com/index.php?rid=4544880&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01390.x Conclusion  Medical conditions can play a role in challenging behaviour, and this should be evaluated in the clinical setting. So far, the level of evidence is generally low, and longitudinal studies are completely lacking. We recommend a systematic approach to research examining the role of physical conditions in challenging behaviour, the ultimate aim being to establish a basis for the development of clinical guidelines. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544880 Thu, 03 Mar 2011 00:00:00 +0100 4544880 http://www.medworm.com/index.php?rid=4544879&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01394.x Conclusion  Results revealed that further policy changes and financial support including service quality assurance are required in order to improve service outcomes for adults living in the new residential scheme. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544879 Thu, 03 Mar 2011 00:00:00 +0100 4544879 http://www.medworm.com/index.php?rid=4544878&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01395.x Conclusions  Further studies should focus on the development and implementation of adequate health promotion materials on this subject. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544878 Thu, 03 Mar 2011 00:00:00 +0100 4544878 http://www.medworm.com/index.php?rid=4544877&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01402.x Conclusion  Family home visiting appears to be effective in assisting parents with ID to have improved outcomes in many domains. These results provide an opportunity for service providers, home visiting nurses and public health agencies to understand the unique needs of mothers with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544877 Thu, 03 Mar 2011 00:00:00 +0100 4544877 http://www.medworm.com/index.php?rid=4565826&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01406.x Conclusions  Taken together, these results suggest that depression symptoms and low organisational support were frequently concurrent with burnout symptoms. Furthermore, worker's personal and organisational supports may have helped bolster their sense of personal accomplishment, and buffered against the potential for emotional exhaustion. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4565826 Tue, 01 Mar 2011 00:00:00 +0100 4565826 http://www.medworm.com/index.php?rid=4554557&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01400.x Conclusions  The family members rated Importance high for all of the quality of family life domains, but it appears from the lower Opportunities scores that their opportunities are limited; this may result in fewer possibilities for attaining a better quality of life. The results of our research are useful to Slovene researchers who work in the areas of special pedagogy and rehabilitation, politicians, non‐governmental organisations and social services. The quality of life of families with children with disabilities, their empowerment and their inclusion into community life should be significantly enhanced when consideration is given to all the family members' support and service needs. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4554557 Tue, 01 Mar 2011 00:00:00 +0100 4554557 http://www.medworm.com/index.php?rid=4544876&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01403.x Conclusions  Grandparents are central to family functioning and quality of life, but this contribution comes with a significant cost to their own personal well‐being. Implications for policy, practice and research are discussed, particularly grandparents' fear that their family could not cope without their support. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4544876 Tue, 01 Mar 2011 00:00:00 +0100 4544876 http://www.medworm.com/index.php?rid=4482690&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01388.x Conclusion  The process of developing intimate voice and political voice can be regarded as a concretisation of enclave deliberation among disempowered groups. These steps are necessary to initiate a process towards establishing a broad consultation between different stakeholders about research on ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4482690 Wed, 16 Feb 2011 15:52:21 +0100 4482690 http://www.medworm.com/index.php?rid=4482692&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01386.x Conclusions  Parents of children with rare genetic syndromes are at risk for high levels of stress and mental health problems. Methodological issues and the practical applications of these results are discussed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4482692 Tue, 15 Feb 2011 00:00:00 +0100 4482692 http://www.medworm.com/index.php?rid=4482691&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01389.x Conclusions  Extra supports (e.g. increased respite care, planning for movement of the family member into out‐of‐home permanent accommodation and case management) and positive interventions such as parent training were highlighted as potential strategies to achieve more lasting benefits from short‐stay out‐of‐home respite care. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4482691 Tue, 15 Feb 2011 00:00:00 +0100 4482691 http://www.medworm.com/index.php?rid=4405664&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01384.x Conclusions  The incidence of thyroid dysfunction is markedly less than would be expected from prevalence studies. Subclinical hypothyroidism is not necessarily a precursor to definite hypothyroidism. Prevalence studies have overstated the association between thyroid dysfunction and Down syndrome. Routine screening for adults with Down syndrome who are euthyroid can be reduced to every 5 years rather than the 1–2 years, as is the present policy. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4405664 Fri, 28 Jan 2011 01:52:02 +0100 4405664 http://www.medworm.com/index.php?rid=4399430&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01383.x Conclusions  It appears that even in the absence of knowledge of whether a child does or does not have ID, this factor still affects perceptions of credibility among mock jurors. Our findings suggest that fundamental differences in the quality of the witness transcripts lead to lower perceptions of credibility for children with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4399430 Wed, 26 Jan 2011 18:49:08 +0100 4399430 http://www.medworm.com/index.php?rid=4399431&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01382.x Conclusions  The findings replicated previous research conducted with middle school‐aged youth in the USA and are discussed from a cultural perspective and in terms of the current special education policies and practices in China. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4399431 Tue, 25 Jan 2011 00:00:00 +0100 4399431 http://www.medworm.com/index.php?rid=4389136&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2010.01364.x Conclusions  In Angelman syndrome, looking at adults, laughing and smiling appear to be unaffected by the familiarity of the adult. However, approach behaviours are more common with mothers than strangers. The function of the approach behaviours might be to increase investment from the primary caregiver. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4389136 Mon, 24 Jan 2011 08:25:24 +0100 4389136 http://www.medworm.com/index.php?rid=4360869&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01387.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360869 Tue, 18 Jan 2011 23:54:19 +0100 4360869 http://www.medworm.com/index.php?rid=4360868&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2011.01385.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360868 Tue, 18 Jan 2011 23:54:18 +0100 4360868 http://www.medworm.com/index.php?rid=4360860&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2010.01375.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360860 Tue, 18 Jan 2011 23:54:01 +0100 4360860 http://www.medworm.com/index.php?rid=4360864&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2010.01365.x (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360864 Tue, 18 Jan 2011 00:00:00 +0100 4360864 http://www.medworm.com/index.php?rid=4360863&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2010.01363.x Conclusions  Findings support the theory that low to moderate levels of negative expression may be less beneficial or detrimental for children with ID compared to children with TD. Implications for further research and intervention are discussed. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360863 Tue, 18 Jan 2011 00:00:00 +0100 4360863 http://www.medworm.com/index.php?rid=4360862&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2010.01366.x Conclusion  The results suggest prevention and intervention targets. The need for epidemiological research appears particularly clear in light of the fact that below‐average intellectual functioning has been identified as a risk factor for homelessness and a predisposing factor for vulnerability among street people. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360862 Tue, 18 Jan 2011 00:00:00 +0100 4360862 http://www.medworm.com/index.php?rid=4360861&cid=s_32224_179_f&fid=32224&url=http%3A%2F%2Fdx.doi.org%2F10.1111%252Fj.1365-2788.2010.01372.x Conclusions  The carer‐completed DBC‐A provides a broad and comprehensive survey of the emotional and behavioural problems of adults with ID. It has satisfactory psychometric properties, which have been further extended. The DBC‐A can be used in clinical, research and service settings to assess psychopathology across the adult life span in people with ID. (Source: Journal of Intellectual Disability Research) Journal of Intellectual Disability Research journals http://www.medworm.com/rss/comments.php?id=4360861 Tue, 18 Jan 2011 00:00:00 +0100 4360861