MedWorm.com provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest items from the 'Journal of Pediatric Oncology Nursing' source. Wed, 08 Feb 2012 21:54:52 +0100 http://www.medworm.com/index.php?rid=5539446&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F6%2F363%3Frss%3D1 Professional registered nurses (RNs) are active participants in seeking and interpreting research evidence. To facilitate knowledge transfer for RNs at the bedside, it behooves researchers to present their findings in a format that facilitates understanding. There is also an expectation that clinicians are capable of interpreting results in a meaningful way. It is important to be able to understand and interpret research reports where statistical methods are used as part of providing the safest and best care for patients. The purpose of this article is to describe the basic concepts of odds ratios and confidence intervals used in research. These statistical measures are used frequently in quantitative research and are often the principle measure of association that is reported. The more co... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5539446 Thu, 22 Dec 2011 05:00:00 +0100 5539446 http://www.medworm.com/index.php?rid=5539445&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F6%2F355%3Frss%3D1 To describe parent preference for treatment of febrile neutropenia and the key drivers of parental decision making, structured face-to-face interviews were used to elicit parent preferences for inpatient versus outpatient management of pediatric febrile neutropenia. Parents were presented with 4 different scenarios and asked to indicate which treatment option they preferred and to describe reasons for this preference during the face-to-face interview. Comments were recorded in writing by research assistants. A consensus approach to thematic analysis was used to identify themes from the written comments of the research assistants. A total of 155 parents participated in the study. Of these, 80 (51.6%) parents identified hospital-based intravenous treatment as the most preferred treatment sce... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5539445 Thu, 22 Dec 2011 05:00:00 +0100 5539445 http://www.medworm.com/index.php?rid=5539444&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F6%2F344%3Frss%3D1 Pediatric cancer patients and their families face significant physical, emotional, and psychosocial challenges. Few studies have investigated how children manage these challenges and how parents may help in the process. This qualitative study aimed to explore common cancer-related stressors for children and to examine child coping and parental assistance in coping with these stressors during treatment. Fifteen children undergoing cancer treatment and their parents participated in semistructured interviews. Four themes emerged capturing cancer-related stressors: cancer treatment/side effects, distressing emotions, disruption in daily routines, and social challenges. Six themes emerged regarding child coping strategies that were classified within an approach/avoidance coping framework. Appro... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5539444 Thu, 22 Dec 2011 05:00:00 +0100 5539444 http://www.medworm.com/index.php?rid=5539443&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F6%2F336%3Frss%3D1 Hematopoietic stem cell transplants are procedures with curative potential for patients with diseased, damaged, or absent stem cells. Because a sibling has the best chance of immunocompatibility with one in need of a transplant, siblings are the most suitable donors of stem cells. However, when siblings are stem cell donors, various ethical issues arise concerning the risks and benefits to the pediatric donor. Because of the critical and potential rapid deterioration of the recipient’s condition, the needs of the sibling donor may be overlooked. This potential lack of advocacy for the pediatric sibling donor creates a role for the primary care provider to assess the child’s physical and psychological ability to undergo the donation procedure, examine the ethical issues in choos... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5539443 Thu, 22 Dec 2011 05:00:00 +0100 5539443 http://www.medworm.com/index.php?rid=5539442&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F6%2F326%3Frss%3D1 Neuroblastoma is a common malignant tumor among children. Seventy percent of children with neuroblastoma have metastatic disease when the diagnosis is established. The aim of this study was to understand the main caregivers’ lived experiences in managing pain for children with neuroblastoma. A descriptive qualitative design was used. Twelve main caregivers of children with neuroblastoma were interviewed. Two themes evolved: experiences of pain and coping with pain. Three subthemes were found under the theme "experience of pain": pain assessment based on language expressions and behavioral observations, tendency of misdiagnosing tumor metastasis–related pain, and unique manifestations of pain at various phases. Four subthemes evolved under the theme "coping with pain": utilizati... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5539442 Thu, 22 Dec 2011 05:00:00 +0100 5539442 http://www.medworm.com/index.php?rid=5539441&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F6%2F319%3Frss%3D1 In children 18 years and younger with cancer and no reasonable chance for cure the authors used a cross-sectional study design to (1) describe concordance between fathers’ and mothers’ evaluation of quality of life (QoL) and (2) determine parental correlation for how factors such as hope, anticipated QoL, and prolonged survival time influence decisions between supportive care alone versus aggressive chemotherapy. Both parents of 13 children performed PedsQL 4.0 Generic Core Scales, Acute Cancer Module, and Multidimensional Fatigue Scale. Concordance was assessed using intraclass correlation coefficient (ICC). Parents reported preferences of supportive care versus aggressive chemotherapy in a hypothetical scenario and rated factors that influenced decision making. Concordance wa... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5539441 Thu, 22 Dec 2011 05:00:00 +0100 5539441 http://www.medworm.com/index.php?rid=5262858&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F5%2F306%3Frss%3D1 In the past 40 years, outcomes for children with cancer have changed considerably. The survival rate has increased to approximately 80%. With success and survival come detriments that often occur over time called late effects of cancer treatment. When the central nervous system is treated with radiation or chemotherapy, we often see impairment to the senses, cognition, and learning. For children who receive central nervous system treatment, follow-up with a neuropsychological evaluation is an excellent tool to evaluate learning and behavior in relationship to a child’s brain. The authors’ research examined neuropsychological evaluations for common themes related to diagnosis, age, sex, and/or treatment received, and the authors investigated whether the families implemented reco... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5262858 Mon, 26 Sep 2011 04:00:00 +0100 5262858 http://www.medworm.com/index.php?rid=5262857&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F5%2F300%3Frss%3D1 This article critically reviews the current literature surrounding the approaches and methods used by nursing staff to educate families to perform this care within the context of a planned first discharge from hospital. Twenty-two relevant articles were identified covering different aspects of education and discharge planning, including the following: facilitation of education and discharge planning, collaboration between professional disciplines and family, responsibilities and contractual agreements, timing and approach, care planning, and the information needs of families. Only 4 articles discussed what the family felt they needed to know and be prepared for prior to discharge. This review indicates that further research is required to establish the needs of parents and caregivers with ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5262857 Mon, 26 Sep 2011 04:00:00 +0100 5262857 http://www.medworm.com/index.php?rid=5262856&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F5%2F295%3Frss%3D1 The aim of this literature review was to evaluate the effectiveness of chlorhexidine mouthwash as an intervention in children receiving chemotherapy, with a focus on randomized clinical trials. A literature search was performed between 1980 and 2010. The control groups consisted of placebo, no intervention, or another intervention group. Oral mucositis was scored by either the World Health Organization scale or modified Oral Assessment Guide. The review of literature included 5 studies fulfilling the inclusion criteria, in which chlorhexidine was evaluated and 4 studies showed a significant preventive effect on the development or severity of oral mucositis; the remaining study showed no benefit of using chlorhexidine mouthwash when compared with the placebo group. Ultimately, it can be sug... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5262856 Mon, 26 Sep 2011 04:00:00 +0100 5262856 http://www.medworm.com/index.php?rid=5262855&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F5%2F287%3Frss%3D1 Fatigue is one of the most common and distressing symptoms experienced by adolescents during and after treatment for cancer. The lack of reliable and valid instruments has prevented an accurate assessment of the trajectory of fatigue among adolescent oncology patients. The purposes of this study were to identify the items on the Fatigue Scale–Adolescent (FS-A) that distinguished adolescents with high fatigue and to identify the most sensitive and specific score ("cut score") in order to identify those in need of a fatigue intervention. Rasch methods were used to identify FS-A items that distinguished adolescents with high cancer-related fatigue, and results indicated that the 14-item FS-A could be reduced to 13 items. The 13-item FS-A was assessed for its psychometric properties, wit... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5262855 Mon, 26 Sep 2011 04:00:00 +0100 5262855 http://www.medworm.com/index.php?rid=5262854&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F5%2F273%3Frss%3D1 This study showed that patients who were most in need of NS were more likely to receive the full dose. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5262854 Mon, 26 Sep 2011 04:00:00 +0100 5262854 http://www.medworm.com/index.php?rid=5262853&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F5%2F263%3Frss%3D1 This study is a secondary data analysis from previous research evaluating symptom clusters and carnitine plasma levels in 67 children and adolescents aged between 7 and 18 years, before and after receiving ifosfamide, doxorubicin, or cisplatin chemotherapy. In preparation for cluster analysis, fatigue, nausea and vomiting, depression, and performance status symptoms were rated in categories of none, mild, moderate, or severe. A conceptual approach was used to evaluate the identification of unique patterns of symptoms that cluster as well as what subgroup members of pediatric oncology patients assemble together. Comparison of symptoms is made with the recent literature on sickness behavior symptoms. The hierarchical agglomerative cluster analysis was used to identify and classify variables ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5262853 Mon, 26 Sep 2011 04:00:00 +0100 5262853 http://www.medworm.com/index.php?rid=5001559&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F3%2F179%3Frss%3D1 Pneumocystis pneumonia (PCP) can be life threatening for children receiving chemotherapy and immunosuppressive medication, including high-dose steroids. Although there are no current guidelines for prophylaxis in pediatric oncology patients, ongoing studies are evaluating the efficacy, side effects, ease of administration, and compliance of drugs used for PCP prophylaxis. Drugs currently being prescribed in practice include Bactrim, pentamidine, dapsone, and atovaquone. Bactrim remains superior for preventing PCP, but alternatives are being analyzed and investigated for those unable to tolerate Bactrim because of drug allergy or side effects. Educating patients and families about the importance of PCP prophylaxis and compliance should be a priority for all health care providers caring for ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001559 Tue, 05 Jul 2011 23:00:00 +0100 5001559 http://www.medworm.com/index.php?rid=5001558&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F3%2F169%3Frss%3D1 The purpose of this study is to describe cultural beliefs and coping strategies related to dealing with childhood cancer identified through a qualitative study of the caregiving experiences of first-generation South Asian immigrant parents of children with cancer. A constructivist grounded theory approach was employed. Families with a child at least 6 months postdiagnosis were recruited from 5 Canadian pediatric oncology centers. In-depth semistructured interviews were conducted in English, Hindi, Punjabi, or Urdu with a sample of 25 South Asian parents. Analysis of interviews involved line-by-line coding and using the constant comparison method. The following 2 central themes related to culture and coping emerged: (a) cultural beliefs about childhood cancer being incurable, rare, unspeaka... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001558 Tue, 05 Jul 2011 23:00:00 +0100 5001558 http://www.medworm.com/index.php?rid=5001557&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F3%2F154%3Frss%3D1 This study suggests that most parents of cancer survivors tend to perseverate, ruminating on the idea that their child’s cancer will return; as a result, they remain in a heightened state of alertness and develop uncontrollable thoughts, or inconsolable worry, about the recurrence of the disease. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001557 Tue, 05 Jul 2011 23:00:00 +0100 5001557 http://www.medworm.com/index.php?rid=5001556&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F3%2F143%3Frss%3D1 Children and adolescents with cancer are increasingly treated and cared for at home; hospital stays are reduced to a minimum. Taking care of a sick child at home has an impact on the entire family: the sick child, the siblings, and the parents. This qualitative study examines the experiences of parents taking their child home for the first time after the diagnosis. Parents of 10 children newly diagnosed with cancer were interviewed twice around the time of the first discharge; data were analyzed using content analysis methodology. Findings illustrated parents’ preparation of and experiences around their child’s first discharge, the huge amount of new and changed tasks parents have to fulfill at home when caring for their child with cancer, and consequences for the parents. By p... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001556 Tue, 05 Jul 2011 23:00:00 +0100 5001556 http://www.medworm.com/index.php?rid=5001555&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F3%2F137%3Frss%3D1 Siblings of pediatric cancer patients experience difficulties coping and adapting to the experience of a cancer diagnosis. A variety of emotional and behavioral changes as well as somatic complaints have been reported. Children describe many negative changes after their sibling is diagnosed with cancer. Many social supports and therapeutic interventions have been proposed for siblings, one of which is a camp experience. The literature has demonstrated that camps have a positive impact and offer siblings of children with cancer a supportive peer environment. Camp encourages discussion with peers and health care providers and facilitates participation in activities that improve knowledge, social confidence, and self-esteem. Nurses can help siblings by recommending camp experiences, volunteer... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001555 Tue, 05 Jul 2011 23:00:00 +0100 5001555 http://www.medworm.com/index.php?rid=5001554&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F3%2F123%3Frss%3D1 Although increasing numbers of studies have examined late effects in survivors, there is a paucity of long-term outcome studies in their siblings, so-called sibling survivors. Our aim was to provide a review of publications relevant to survivorship and its impact on the long-term psychosocial health of sibling survivors using a family systems framework. A review of publications identified 19 articles that reported findings suggesting that aspects of psychosocial health may be impaired in sibling survivors. Baseline functioning of sibling survivors may be altered at the start of survivorship secondary to apprehension, memories, and emotions. New demands are placed on sibling survivors, including doubts, questions, and worries due to survivorship. Survivor disfigurement may also place demand... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001554 Tue, 05 Jul 2011 23:00:00 +0100 5001554 http://www.medworm.com/index.php?rid=5001553&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F28%2F4%2F252%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001553 Tue, 05 Jul 2011 23:00:00 +0100 5001553 http://www.medworm.com/index.php?rid=5001552&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F4%2F244%3Frss%3D1 Parents of children with cancer use information to create knowledge about their child’s disease. Information can help parents reduce chaos and create a feeling of control, but there are often obstacles to its acquisition, which has been described as similar to learning a new language. The purpose of this study was to describe parents’ experiences of acquiring and using information to create knowledge about their child’s cancer during the course of the illness. The authors used qualitative content analysis on data from focus groups and individual interviews with 14 parents of children with cancer. Two themes were constructed: (a) feeling acknowledged as a person of significance included feeling safe and secure in spite of uncertainty, having one’s hopes supported, an... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001552 Tue, 05 Jul 2011 23:00:00 +0100 5001552 http://www.medworm.com/index.php?rid=5001551&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F4%2F231%3Frss%3D1 Much research has been directed at childhood cancer survivors and their families to learn how to best provide care. However, little is known about parents’ experiences of transitioning to a time when their child has completed treatment for cancer when living at a distance to the tertiary cancer center. The purpose of this study was to talk to such parents about their experiences. Five Canadian parents of children who had completed treatment for cancer in the past 3 months to 5 years took part in qualitative opened-ended interviews using a phenomenological hermeneutic approach. Data analysis revealed the essence of the parents’ lived experience as a journey within a journey; 4 themes characterized the essence. Parents living a 2.5- to 5-hour drive from the cancer center expresse... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001551 Tue, 05 Jul 2011 23:00:00 +0100 5001551 http://www.medworm.com/index.php?rid=5001550&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F4%2F224%3Frss%3D1 Persistent anxiety is common among parents of children with cancer and may affect the family’s well-being and adjustment. The goals of this pilot study are to determine the feasibility and potential efficacy of a brief cognitive-behavioral parent intervention aimed at reducing parental distress and anxiety related to their child’s cancer diagnosis. Parents of children with cancer, at least 1 month postdiagnosis, were screened at an outpatient oncology clinic, and those reporting elevated levels of distress were offered a 4-session cognitive–behavioral intervention based on a modified version of the Surviving Cancer Competently Intervention Program–Newly Diagnosed. Five parents reporting persistent distress received the intervention. Results revealed decreases in par... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001550 Tue, 05 Jul 2011 23:00:00 +0100 5001550 http://www.medworm.com/index.php?rid=5001549&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F4%2F203%3Frss%3D1 This study used Straussian grounded theory methodology to develop and validate a model to explain the process of adherence to oral chemotherapy in children and adolescents with ALL. Thirty-eight semistructured interviews (with 17 patients and 21 parents/caregivers) and 4 focused group discussions were conducted. Three stages were identified in the process of adherence: (a) Recognizing the Threat, (b) Taking Control, and (c) Managing for the Duration. Doing Our Part was identified as the core theme explaining the process of adherence and involves the parent (or patient) taking responsibility for assuring that medications are taken as prescribed. Understanding the association between taking oral chemotherapy and control/cure of leukemia (Making the Connection) appeared to mediate adherence b... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001549 Tue, 05 Jul 2011 23:00:00 +0100 5001549 http://www.medworm.com/index.php?rid=5001548&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F4%2F191%3Frss%3D1 The notion of health-related quality of life (HRQoL) holds unique significance in the treatment of patients who have undergone hematopoietic stem cell transplantation (HSCT). Not only is transplant procedure inevitably associated with immediate and late medical effects along with high mortality and morbidity rates, but it can also significantly affect the HRQoL for the patient and family. This review of literature will assist advanced practice nurses and pediatric oncology nurses in distinguishing and targeting interventions for patients and families who are at high risk of encountering distress during and following HSCT. It provides information on the assessment of pre-HSCT variables to identify patient subgroups in need of more aggressive supportive care to improve HRQoL during transplan... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=5001548 Tue, 05 Jul 2011 23:00:00 +0100 5001548 http://www.medworm.com/index.php?rid=4485631&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F2%2F107%3Frss%3D1 The care of a child/adolescent with cancer or a blood disorder is complex and often long term, involving many interdisciplinary team members across services and geographical boundaries. This experience can be overwhelming for patients and their families, highlighting the need for a family care coordinator (FCC) to help them navigate their care path. The purpose of this article is to illustrate the concept of family care coordination as experienced by the IWK Health Center in Nova Scotia, Canada, with the intent of sharing a valuable model of care with other pediatric hematology/oncology services. Key components of the role are ongoing assessment, education, partnerships, communication, support, and advocacy. Essential resources and pathways are required to implement the role and optimize p... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4485631 Wed, 16 Feb 2011 00:00:00 +0100 4485631 http://www.medworm.com/index.php?rid=4485630&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F2%2F100%3Frss%3D1 Three stories of children with advanced cancer are presented in this article. The goal was to ascertain what these children were experiencing and thinking as well as what interventions were helpful. Interviews used open-ended questions as well as the Memorial Symptom Assessment Scale, Symptom Management Record, the Body Outline, Child Depression Inventory, Revised Children’s Manifest Anxiety Scale, Pediatric Quality of Life Inventory, Common Toxicity Criteria, Lansky’s Play Performance Scale, and Spirituality quality of life (QOL) and provided an opportunity for the children to describe their symptoms and QOL. The findings illustrated that the child’s social, psychological, and spiritual concerns are important for nurses to address along with the child’s physical ne... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4485630 Wed, 16 Feb 2011 00:00:00 +0100 4485630 http://www.medworm.com/index.php?rid=4485629&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F2%2F93%3Frss%3D1 There has been an increased interest in the grief experiences of nurses. Unacknowledged, unaddressed compound grief can have devastating consequences on professional nurses and the patients and families under their care. A telephone survey was conducted using the current Children’s Oncology Group institutions in the United States to ascertain what education and support is available to pediatric oncology nurses regarding professional grief. Three questions were asked of the person contacted at the participating institutions regarding grief education during orientation, grief education beyond orientation, and support mechanisms for staff experiencing professional grief. Out of the 176 eligible Children’s Oncology Group institutions that were invited to participate in the survey, ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4485629 Wed, 16 Feb 2011 00:00:00 +0100 4485629 http://www.medworm.com/index.php?rid=4485628&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F2%2F83%3Frss%3D1 Pediatric oncology has emerged as one of the great medical success stories of the last 4 decades. The cure rate of childhood cancer has increased from approximately 25% in the 1960’s to more than 75% in more recent years. However, very little is known about how children actually experience the diagnosis and treatment of their illness. A total of 9 families in which a child was diagnosed with cancer were interviewed twice over a 12-month period. Using the qualitative methodology of interpretative phenomenological analysis (IPA), children’s experiences of being patients with a diagnosis of cancer were explicated. The results revealed 5 significant themes: the experience of illness, the upside of being sick, refocusing on what is important, acquiring a new perspective, and the exp... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4485628 Wed, 16 Feb 2011 00:00:00 +0100 4485628 http://www.medworm.com/index.php?rid=4485627&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F2%2F75%3Frss%3D1 This narrative review summarizes the state of the evidence about the phenomenon of health-related quality of life (HRQOL) among survivors of childhood cancer. A major strength of the state of the evidence on the HRQOL among survivors of childhood cancer is the availability and quality of the data generated from the Childhood Cancer Survivor Study (CCSS). Findings from most studies find comparable levels of HRQOL among survivors and constructed cohort samples; however, a poorer level of HRQOL exists among female survivors. Factors that predict a lower or poorer level of HRQOL among survivors include age at diagnosis, age attained, time since diagnosis, socioeconomic status (education level, household income, and employment status), physical role functioning, and health insurance. Those surv... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4485627 Wed, 16 Feb 2011 00:00:00 +0100 4485627 http://www.medworm.com/index.php?rid=4485626&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F2%2F67%3Frss%3D1 Sickle-cell disease is the most prevalent genetic hematologic condition in the United States. Numerous studies have demonstrated poor growth and delayed maturation in children with homozygous sickle-cell disease; however, the pathophysiology remains inadequately understood. Affected children have normal weight and length at birth, and then around 6 months of age their growth patterns begin to diverge from the norm. The growth deficits experienced by these children remain a problem with clinical significance and intangible consequences. A review of literature has provided insight into the multifactorial basis of the growth failure experienced by this population. It is important that nurses and health care providers are familiar with the growth patterns unique to sickle-cell disease and reco... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4485626 Wed, 16 Feb 2011 00:00:00 +0100 4485626 http://www.medworm.com/index.php?rid=4301280&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F1%2F53%3Frss%3D1 In the health care community, nurses are important agents of change and vehicles for improvements in clinical practice and policy. Pediatric nurses empowered with the tools of evidence-based practice and clinical expertise collaborated in 2007 with other health care professionals to make changes in clinical practice for pediatric patients with vascular access devices (VADs). Nurses recognized that there was a need for a change in the heparinization policy for children with short- and long-term VADs. Data were methodically collected over a 1-year period on 500 VAD. Data collection demonstrated a range of VAD volumes that did not exceed 2 mL. The group analysis of the results gave support for changes in the volumes needed for heparinization. Establishment of appropriate heparin dosing based ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301280 Fri, 31 Dec 2010 00:00:00 +0100 4301280 http://www.medworm.com/index.php?rid=4301279&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F1%2F43%3Frss%3D1 Family-centered care (FCC) is important within pediatric oncology nursing. However, pediatric oncology nurses often face challenges and barriers when attempting to provide FCC. The purpose of this study was to understand the experiences of pediatric oncology nurses in relation to FCC; identify how pediatric oncology nurses implemented FCC into their practice; identify what facilitated and enabled pediatric oncology nurses to implement FCC; and discern the barriers and challenges that were present in their setting when implementing FCC. A qualitative approach utilizing person-centered interviewing was used to collect data. Nurses (N=20) from a western Canadian children’s hospital were recruited through purposeful convenience sampling and were then interviewed. Five major themes were i... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301279 Fri, 31 Dec 2010 00:00:00 +0100 4301279 http://www.medworm.com/index.php?rid=4301278&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F1%2F34%3Frss%3D1 This study aims to illuminate professional caregivers’ perceptions of providing information to parents of children with cancer. Twenty caregivers at a Swedish pediatric oncology ward participated in four focus group interviews. The interviews were transcribed verbatim and subjected to qualitative content analysis. Two themes were found: Matching the amount of information to the parents’ needs concerned situations where the amount of information provided according to the caregivers’ assessment is deemed too small, appropriate, or too large. Navigating through a vague structure dealt with a disrupted setting, unclear responsibilities within the team, difficult timing, unintelligible information, and underused tools for communication. Implications for intervention developmen... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301278 Fri, 31 Dec 2010 00:00:00 +0100 4301278 http://www.medworm.com/index.php?rid=4301277&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F1%2F27%3Frss%3D1 The objective of the current study was to pilot a computerized cognitive training program, Captain’s Log, in a small sample of survivors of childhood cancer. A total of 9 survivors of acute lymphoblastic leukemia and brain tumors with attention and working memory deficits were enrolled in a home-based 12-week cognitive training program. Survivors returned for follow-up assessments postintervention and 3 months later. The intervention was associated with good feasibility and acceptability. Participants exhibited significant increases in working memory and decreases in parent-rated attention problems following the intervention. Findings indicate that home-based, computerized cognitive intervention is a promising intervention for survivors with cognitive late effects; however, further s... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301277 Fri, 31 Dec 2010 00:00:00 +0100 4301277 http://www.medworm.com/index.php?rid=4301276&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F1%2F16%3Frss%3D1 The psychosocial needs of young people (aged 12-24) who have a sibling with cancer are still comparatively underresearched and largely underserviced. Steps taken in the development of a needs-based measure, the Sibling Cancer Needs Instrument (SCNI), are presented, involving a qualitative exploration of needs (focus group with 4 young people, telephone interviews with 7 young people, and a staff survey) and a quantitative piloting of the resulting first version of the SCNI on 71 young people. Results are explored in relation to the 10 identified domains of need (information, peer support [friends], peer support [similar experience], sibling relationship/support, expressing/coping with feelings, access to support services, respite/recreation, acknowledgement/attention for self, instrumental... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301276 Fri, 31 Dec 2010 00:00:00 +0100 4301276 http://www.medworm.com/index.php?rid=4301275&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F28%2F1%2F6%3Frss%3D1 This review presents a summary of the research literature related to the incidence and risk factors for chronic graft-versus-host disease in children following allogeneic hematopoietic stem cell transplantation. The range of incidence of chronic graft-versus-host disease in children found in this review was large, from 0% to 46%. Incidence of chronic graft-versus-host disease was influenced by sample size, time posttransplantation, and stem cell source. Characteristics of the person (eg, child’s age and gender) and disease/treatment (eg, sources of transplant) are associated with chronic graft-versus-host disease in children after stem cell transplantation. Person and disease/treatment characteristics provide a framework for understanding the factors associated with chronic graft-ver... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301275 Fri, 31 Dec 2010 00:00:00 +0100 4301275 http://www.medworm.com/index.php?rid=4301274&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F28%2F1%2F5%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4301274 Fri, 31 Dec 2010 00:00:00 +0100 4301274 http://www.medworm.com/index.php?rid=4091797&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F6%2F344%3Frss%3D1 This article explores the role of E-mentorship in virtual environments. Most specifically, by analyzing data from a study conducted with the Zora virtual world with pediatric transplant recipients, suggestions and recommendations are given for conceiving the role of virtual mentors and allocating the needed resources. Zora is a graphical virtual world designed to create a community that offers psychoeducational support and the possibility of participating in virtual activities following a curriculum explicitly designed to address issues of school transition and medical adherence. Activities are designed to foster relationships, teach technological skills, and facilitate the formation of a support network of peers and mentors.This article addresses the research question, "What makes a succe... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4091797 Wed, 20 Oct 2010 23:00:00 +0100 4091797 http://www.medworm.com/index.php?rid=4091796&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F6%2F338%3Frss%3D1 The pediatric oncology nursing unit at the Alberta Children’s Hospital experienced a large influx of new staff nurses between May 2008 and November 2008. There were 16 in total, and only a few had previous experience, whereas the majority was newly graduated nurses. As a solution to the high numbers of new staff nurses, the role of a Resource Nurse was developed as a temporary position to assist new staff nurses with their patient assignment, prioritize their day, and deal with complex patient procedures/treatments. Also, the Resource Nurse assisted all staff on the unit in dealing with increased patient acuity, chemotherapy administration, acuity issues, family teaching, and complicated family situations. A total of 55 prebooked shifts were scheduled from November 2008 to January 20... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4091796 Wed, 20 Oct 2010 23:00:00 +0100 4091796 http://www.medworm.com/index.php?rid=4091795&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F6%2F330%3Frss%3D1 This article describes the findings from a survey evaluating how health professionals (n = 56) at the Pediatric Oncology Centers in Izmir currently define and assess cancer-related fatigue. The results demonstrate that while the problems associated with fatigue are acknowledged, assessment tools are not widely used, and the majority of health professionals report that they would benefit from further education on the subject to assist in the care of patients. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4091795 Wed, 20 Oct 2010 23:00:00 +0100 4091795 http://www.medworm.com/index.php?rid=4091794&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F6%2F325%3Frss%3D1 This study set out to ascertain the prevalence of DVT among pediatric inpatients who neither have contraindications to nor absolute indications for prophylactic therapy. A prospective surveillance of at-risk children plus a retrospective chart review were conducted. Patients were considered to be at risk after the first 2 days of their admission. Of 1,637patients reviewed, 198 patients met criteria; among these, 84% did not receive prophylaxis. Of 2,354 observed days at risk for nonprophylaxed patients (including days at risk prior to initiating prophylaxis among prophlyaxed patients), there were 9 DVT events, for a rate 3.82/1,000 days observed. A total of 31 patients received prophylaxis. Three of these patients experienced a DVT. One patient had a bleeding event, hematuria. These result... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4091794 Wed, 20 Oct 2010 23:00:00 +0100 4091794 http://www.medworm.com/index.php?rid=4091793&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F6%2F316%3Frss%3D1 Symptom management research is a priority for both children and adults with cancer. The UCSF Symptom Management Theory (SMT) is a middle range theory depicting symptom management as a multidimensional process. A theory analysis using the process described by Walker and Avant evaluated the SMT with attention to application in research involving children with cancer. Application of the SMT in studies involving children has been limited to descriptive studies testing only portions of the theory. Findings of these studies have provided empiric support for the relationships proposed within the SMT. Considerations for future research involving children include attention to measurement of symptoms and clarity regarding the location of the parents and family within the model. With additional testi... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4091793 Wed, 20 Oct 2010 23:00:00 +0100 4091793 http://www.medworm.com/index.php?rid=4091792&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F6%2F307%3Frss%3D1 The purposes of this study in children who underwent a cycle of myelosuppressive chemotherapy were to describe changes in symptom occurrence and severity during the chemotherapy cycle. Patients (N = 66) 10 to 18 years of age completed the Memorial Symptom Assessment Scale for 10- to 18-year-olds (MSAS 10-18) at the start of a chemotherapy cycle (T1) and weekly for the next 2 weeks (T2 and T3). More than 30% of children reported 10 or more symptoms at all 3 time points. Symptom occurrence trajectories were tested with multilevel logistic regression. In all, 6 symptoms (ie, fatigue, sadness, irritability, worrying, weight loss, sweating) showed a decreasing linear trend. Significant quadratic patterns of change were found for feeling drowsy, nausea, and vomiting. Changes in symptom severity ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=4091792 Wed, 20 Oct 2010 23:00:00 +0100 4091792 http://www.medworm.com/index.php?rid=3897804&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F5%2F285%3Frss%3D1 The overall objective of this exploratory research was to examine the lived experiences of female caregivers of children with cancer during diagnosis, treatment, and the period thereafter. Specifically, the authors examined factors that affected mothers’ abilities to cope with a diagnosis of cancer. The interviews were completed with 9 mothers of children who had been treated for pediatric cancer, in addition to 3 health care workers who provided care for families with children with cancer. From this process, a number of salient issues were identified, one of which was factors that assisted or hindered mothers’ abilities to cope. The subthemes of this theme consisted of: (1) support; (2) faith, positive thinking, and hope; (3) taking care of self; (4) being fearful and protecti... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3897804 Tue, 24 Aug 2010 23:17:11 +0100 3897804 http://www.medworm.com/index.php?rid=3897803&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F5%2F276%3Frss%3D1 Children with a cancer diagnosis experience symptom distress, including anxiety, because of the disease and its treatment. Parents experience stress and anxiety because of the uncertainty of the disease as well as the suffering of their children. Yoga is a complementary intervention that has physiological and psychological benefits in healthy children and healthy and chronically ill adults. On an inpatient hematology/oncology unit, 11 children aged 6 to 12 years, 5 adolescents aged 13 to 18 years, and 33 parents participated in a single yoga session tailored to the needs and abilities of the patients and parents. Sense of well-being pre- and postclass was measured with the Spielberger State Anxiety Scale. Children had normal anxiety scores preclass that did not change. Adolescents and pare... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3897803 Tue, 24 Aug 2010 23:17:11 +0100 3897803 http://www.medworm.com/index.php?rid=3897802&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F5%2F266%3Frss%3D1 The aim of the study was to describe parents’ narratives concerning what they find comforting when they have a child suffering from cancer. Interviews were conducted with 9 parents—8 mothers and 1 father—of children aged 3 to 9 years who were admitted to a pediatric oncology ward and had undergone their first treatment. The findings showed that the parents derived comfort from being close to their child, perceiving the child’s strength, feeling at home in the ward, being a family and being at home, and receiving support from their social network. Comfort experienced in communion with the child and others became important and helped the parents build a new normality perceived as being at home in life despite all their difficulties. Within the frame of communion, the ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3897802 Tue, 24 Aug 2010 23:17:11 +0100 3897802 http://www.medworm.com/index.php?rid=3897801&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F5%2F259%3Frss%3D1 Conclusions: Adolescents receiving chemotherapy experience multiple symptoms that persist over time. Implications for nursing: In monitoring for symptoms, nurses need to be aware of the extent to which symptoms are present throughout treatment, as evidenced by these findings that symptom occurrence was significant even prior to receiving a subsequent course of chemotherapy. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3897801 Tue, 24 Aug 2010 23:17:11 +0100 3897801 http://www.medworm.com/index.php?rid=3897800&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F5%2F253%3Frss%3D1 Cytokine storm is an immune reaction to an acute or chronic injury and may be caused by a disease itself or by treatment directed at an underlying disease. The result is an overwhelming release of cytokines which can cause a sepsis-like response and may lead to multi-system organ failure and even death. Because it occurs in various settings, oncology nurses need to be aware of this process when assessing the pediatric oncology patient. Early recognition and treatment initiation is imperative and may lead to better outcomes for the patient. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3897800 Tue, 24 Aug 2010 23:17:11 +0100 3897800 http://www.medworm.com/index.php?rid=3674175&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F4%2F229%3Frss%3D1 Despite improved outcomes for pediatric Hematology/Oncology patients over the past 15-20 years, sepsis and other acute events continue to cause serious illness in these children. Implementing a pediatric early warning scoring tool (PEWS) with an associated multi-disciplinary action algorithm in a pediatric Hematology/Oncology unit helped to remove barriers that prevented timely referral of children who are clinically deteriorating and requiring immediate help, enhanced multi-disciplinary team communication, and has led to a more than 3-fold increase in days between codes on the Hematology/Oncology unit. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3674175 Fri, 18 Jun 2010 23:12:54 +0100 3674175 http://www.medworm.com/index.php?rid=3674174&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F4%2F217%3Frss%3D1 This study also described sleep habits, sleep disturbance, and fatigue of parents of children and adolescents with ALL and determined if relationships existed between parent and child sleep disturbance and fatigue. Using a descriptive, cross-sectional design, children aged 4-18 years receiving maintenance chemotherapy for ALL and their parents completed questionnaires about their sleep and fatigue. Sleep disturbance was common in both children (87%) and parents (48%) and sleep disturbance scores were positively correlated with fatigue scores. From qualitative written responses to open-ended questions, 9 themes emerged related to sleep for children undergoing maintenance chemotherapy for ALL. Sleep differences noted since diagnosis included (1) sleep is disturbed, (2) sleep habits have chan... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3674174 Fri, 18 Jun 2010 23:12:54 +0100 3674174 http://www.medworm.com/index.php?rid=3674173&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F4%2F209%3Frss%3D1 Despite many advances in symptom management, children and adolescents with cancer still have trouble maintaining adequate oral intake during routine chemotherapy treatment. The purpose of this qualitative study was to explore the eating experiences of children and adolescents receiving chemotherapy when they had problems with nausea and mucositis. Eight children and adolescents and their caregivers were interviewed to describe how and what the children and adolescents ate when they were nauseated and/or had a sore mouth. Findings reveal that these children and adolescents all experienced nausea and frequently preferred not to eat during these periods. Eating problems related to mucositis also limited oral intake in this sample. These children and adolescents and their caregivers tried a va... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3674173 Fri, 18 Jun 2010 23:12:54 +0100 3674173 http://www.medworm.com/index.php?rid=3674172&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F4%2F196%3Frss%3D1 The present study examined physical activity levels within young families of pediatric cancer survivors and the relationship between physical activity and health-related quality of life (HRQL). Nineteen families were recruited, including 33 parents, 17 pediatric cancer survivors, and 10 siblings. Families completed a self-report survey on background information, physical activity levels, and PedsQL generic core scale for child HRQL. Results of this cross-sectional study indicate that families were generally active, with mothers more frequently participating in overall physical activity (P < .001). Within families, parent—child physical activity levels were associated, but not survivor—sibling physical activity. Survivors and siblings did not differ in their self-reported phy... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3674172 Fri, 18 Jun 2010 23:12:54 +0100 3674172 http://www.medworm.com/index.php?rid=3674171&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F4%2F190%3Frss%3D1 For parents of children with cancer, the experience of completing treatment can be a time of celebration and hope as well as anxiety and fear. Previous research has identified the time immediately following completion of therapy as one of the most difficult and anxiety producing periods in parents’ trajectory of cancer treatment. A gap in knowledge exists to guide nursing practice regarding parents’ educational needs. The purpose of this study was to (a) determine the educational needs of parents as their children completed cancer treatment and (b) assess the feasibility of measuring parental educational needs, anxiety, and family management styles as treatment ends. The results support previous findings that parents are anxious at the end of therapy. Fear of relapse was their ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3674171 Fri, 18 Jun 2010 23:12:54 +0100 3674171 http://www.medworm.com/index.php?rid=3674170&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F27%2F4%2F189%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3674170 Fri, 18 Jun 2010 23:12:54 +0100 3674170 http://www.medworm.com/index.php?rid=3461851&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F3%2F168%3Frss%3D1 Using combined qualitative data from multiple case study interviews and an online survey, this study explored the impact of appearance change on 22 adolescents receiving cancer treatment aged 13 to 18 years and six of their parents. Data were analyzed using template analysis. Appearance changes were a major concern. Adolescents typically struggled to adapt to new experiences and concerns related to this highly sensitive issue. Many felt anxious and self-conscious and were reluctant to reveal appearance changes in public. These feelings were compounded by the negative reactions of others (e.g., staring, teasing, and inappropriate questioning), which sometimes lead to avoidance of social activity and threats of noncompliance. Parents of these children felt ill-prepared to manage appearance-r... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3461851 Mon, 12 Apr 2010 22:24:41 +0100 3461851 http://www.medworm.com/index.php?rid=3461850&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F3%2F164%3Frss%3D1 The authors studied pediatric patients with B-precursor acute lymphocytic leukemia (ALL) to determine whether Mississippi’s gender incidences correlate with national statistics. Furthermore, data on gender incidences in each of the risk categories of low, standard, and high were collected. A retrospective chart review was performed of pediatric B-precursor ALL patients diagnosed at the Children’s Cancer Clinic at the University of Mississippi Medical Center from 1995 to 2005. The gender incidences in Mississippi were found to be comparable with the national average for ALL (1.34:1 vs 1.3:1) overall. However, the national average includes T-cell ALL, which is known to be significantly more prevalent in boys. Of greater significance, boys were noted to present with high-risk B-pr... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3461850 Mon, 12 Apr 2010 22:24:41 +0100 3461850 http://www.medworm.com/index.php?rid=3461849&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F3%2F156%3Frss%3D1 Children with brain tumors are at risk for a number of cognitive, academic, and social difficulties as a consequence of their illness and its treatment. Of these, the least is known about social functioning, particularly over the course of the illness. Thirty children with brain tumors were evaluated using neurocognitive and psychological measures, including a measure of perceived competency. Results indicated that off-therapy brain tumor patients reported more concerns about their social competence than both a normative sample and children on treatment. Findings highlight the need for more research aimed at helping survivors cope with long-term stressors associated with their illness. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3461849 Mon, 12 Apr 2010 22:24:41 +0100 3461849 http://www.medworm.com/index.php?rid=3461848&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F3%2F146%3Frss%3D1 A nonpharmacological method can be an alternative or complement to analgesics.The aim of this study was to evaluate if music medicine influences pain and anxiety in children undergoing lumbar punctures. A randomized clinical trial was used in 40 children (aged 7-12 years) with leukemia, followed by interviews in 20 of these participants. The participants were randomly assigned to a music group (n = 20) or control group (n = 20). The primary outcome was pain scores and the secondary was heart rate, blood pressure, respiratory rate, and oxygen saturation measured before, during, and after the procedure. Anxiety scores were measured before and after the procedure. Interviews with open-ended questions were conducted in conjunction with the completed procedures. The results showed lower pain sc... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3461848 Mon, 12 Apr 2010 22:24:41 +0100 3461848 http://www.medworm.com/index.php?rid=3461847&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F3%2F133%3Frss%3D1 This mixed methods pilot study evaluated the effects of the creative arts therapy (CAT) on the quality of life (QOL) of children receiving chemotherapy. A 2-group, repeated measures randomized design compared CAT with a volunteer’s attention (n = 16). Statistical analysis of the randomized controlled phase of the study suggested an improvement in the following areas after the CAT: parent report of child’s hurt (P = .03) and parent report of child’s nausea (P = .0061). A nonrandomized phase, using a different instrument showed improved mood with statistical significance on the Faces Scale (P < .01), and patients were more excited (P < .05), happier (P < .02), and less nervous (P < .02). Provider focus groups revealed positive experiences. Case studies are inclu... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3461847 Mon, 12 Apr 2010 22:24:41 +0100 3461847 http://www.medworm.com/index.php?rid=3296504&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F2%2F119%3Frss%3D1 Children with sickle cell disease (SCD) are surviving past childhood and well into adulthood. Concerns are raised as to who is going to care for these children as they reach adulthood. We have developed a 2-part transition program. We have transitioned 20 of our 18- to 27-year-old patients to adult providers recognizing that early preparation is essential. At the newborn’s initial visit or transfer from another clinic the transition program is explained to the family. At age 13 years, all our patients are given a "Preparation for Transition" binder. This binder is reviewed in detail with the patient and parent on a regular basis. At 18 years of age, coordinating with the milestone of graduating from high school and depending on developmental age, the transition is completed. The goal... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296504 Mon, 22 Feb 2010 19:30:37 +0100 3296504 http://www.medworm.com/index.php?rid=3296503&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F2%2F109%3Frss%3D1 Survivorship has been described in a variety of ways. Understanding how survivorship is applied in the context of childhood cancer survivors is important to the practice of pediatric nursing because it will offer nurses new possibilities for providing guidance, support, and assistance in enhancing outcomes for childhood cancer survivors and their families. Accordingly, the purpose of this article is to provide a conceptual framework that will assist nurses in their efforts to attain the common goal of successful survivorship in childhood cancer survivors. The method of concept analysis developed by Walker and Avant is used. The result is a definition of survivorship that is relevant and useful for research and clinical practice in pediatric oncology. (Source: Journal of Pediatric Oncology ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296503 Mon, 22 Feb 2010 19:30:37 +0100 3296503 http://www.medworm.com/index.php?rid=3296502&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F2%2F94%3Frss%3D1 It is well established that pediatric oncology is perceived as a setting that is personally and professionally demanding. Many sources acknowledge the development of conditions, such as burnout, compassion fatigue and vicarious traumatization, as a result of being continuously subjected to highly stressful circumstances in a professional capacity. There are a myriad of individual and collaborative factors that are known to mediate stress in the oncology setting. One such factor is resilience. The purpose of this literature review is to investigate what is known about coping and its relationship with resilience in assisting pediatric oncology nurses to manage work-related stressors. From the themes identified within the reviewed studies, it is clear that the applicability of resilience in p... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296502 Mon, 22 Feb 2010 19:30:37 +0100 3296502 http://www.medworm.com/index.php?rid=3296501&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F2%2F73%3Frss%3D1 This study suggests that an understanding of individual and cultural differences is important to improve resilience in adolescents with cancer. Because of the small sample surveyed by this research, further studies are needed to validate these conclusions and develop appropriate nursing intervention techniques. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296501 Mon, 22 Feb 2010 19:30:37 +0100 3296501 http://www.medworm.com/index.php?rid=3296500&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F2%2F65%3Frss%3D1 Bone marrow transplant (BMT) is a common treatment option for adolescents with various diseases; however, the aggressive therapy often causes significant side effects that can lead to poor eating. There is little documentation of eating experiences and necessary support needed after the initial BMT hospitalization. This phenomenological study, guided by Martin Heidegger’s philosophical influences, revealed the meaning of adolescents’ eating experiences, eating strategies, and the impact of eating on the adolescents’ quality of life during the first 100 days post-BMT. Individual interviews were conducted at 50 and 100 days post-BMT. Data analysis used the hermeneutic circle and revealed 5 themes. Adolescents discussed the slow return of eating, barriers that affected their... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296500 Mon, 22 Feb 2010 19:30:37 +0100 3296500 http://www.medworm.com/index.php?rid=3296499&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F27%2F2%2F64%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296499 Mon, 22 Feb 2010 19:30:37 +0100 3296499 http://www.medworm.com/index.php?rid=3296498&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F27%2F2%2F63%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3296498 Mon, 22 Feb 2010 19:30:37 +0100 3296498 http://www.medworm.com/index.php?rid=3233657&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F5%3Frss%3D1 This editorial has been retracted from the January 2010 issue (Vol. 27, No. 1) of the Journal of Pediatric Oncology Nursing (JOPON) because it was intended for publication in JOPON’s March 2010 issue (Vol. 27, No. 2). The editorial has been published in its entirety in the March 2010 issue under the following DOI: 10.1177/1043454210363572. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3233657 Mon, 28 Dec 2009 18:19:52 +0100 3233657 http://www.medworm.com/index.php?rid=3125748&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F48%3Frss%3D1 This article describes the transition of an in-person journal club to an electronically delivered "Article of the Month." The "Article of the Month" is offered six times each year and is posted on the service line’s password-protected intranet website. Oversight of the "Article of the Month" is provided by the service line clinical nurse specialist who selects articles based on an annual learning needs assessment and develops a quiz to assess learning and promote critical thinking among nursing staff. Outcomes include anecdotal reports of increased staff confidence in managing emergent patient care needs and greater appreciation of nursing care issues for children with cancer. Areas for future development include exploring options for increasing in-person discussion of issues address... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125748 Mon, 28 Dec 2009 18:19:52 +0100 3125748 http://www.medworm.com/index.php?rid=3125747&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F40%3Frss%3D1 This study is a retrospective audit of the nutritional supplementation of 34 pediatric patients admitted to a pediatric oncology unit for a blood and marrow transplantation. All patients received parenteral nutrition (PN) as their standard nutritional therapy with an average of 79 ± 10.6% of their estimated requirements given over the transplant period. The glucose/amino acid infusion was inadequate on 40% of PN days mainly because of fluid overload causing a reduction in infusion rates. The lipid infusion was inadequate on 60% of PN days mainly because of stoppages when drugs and/or blood were infused. The mean percentage weight change on discharge was +0.3 ± 4.7%. This had a large range of between –9.9% and +7.9% of body weight and did not seem to be related to adequa... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125747 Mon, 28 Dec 2009 18:19:52 +0100 3125747 http://www.medworm.com/index.php?rid=3125746&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F33%3Frss%3D1 The authors examined the prevalence of respiratory symptoms and determined whether respiratory symptoms were associated with prevalence of chest pain and number of acute painful episodes in children and adolescents with sickle cell disease. Participants (N = 93; 44 females, 49 males; mean age 9.8 ± 4.3 years) reported coughing in the morning (21.5%), at night (31.2%), and during exercise (30.1%). Wheezing occurred both when they had a cold or infection (29.0%) and when they did not have (23.7%) a cold or infection. Sleep was disturbed by wheezing in 20.4%. Among the 76 patients who were school-age (>5 years), 19.7% of patients missed more than 4 days of school because of respiratory symptoms. The majority of patients reported having acute painful episodes (82.8%), and most (66.7%... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125746 Mon, 28 Dec 2009 18:19:52 +0100 3125746 http://www.medworm.com/index.php?rid=3125745&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F24%3Frss%3D1 This study investigates how well children with cancer and healthy children understood 44 symptom terms; their thoughts about these symptoms in terms of causes, consequences, and cures; and what other terms the children use to express these symptoms. It also explores if there are differences in understanding and thoughts about symptoms between children who have the experience of cancer and those who do not. In all, 6 children with cancer and 8 healthy children participated in semistructured interviews. Results. Children demonstrated a good understanding of symptom terms, yet were not always able to explain the symptoms. They had a rich vocabulary to talk about symptoms but did not use childish terms. Children with cancer had a more varied vocabulary for symptoms, but they did not use more m... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125745 Mon, 28 Dec 2009 18:19:52 +0100 3125745 http://www.medworm.com/index.php?rid=3125744&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F21%3Frss%3D1 This study suggests that children with resections of suprasellar or hypothalamic tumors need specialist attention in postoperative management of fluid and electrolytes. The nurse is in the ideal role to monitor closely the pediatric brain tumor patient at high risk for abnormal sodium levels. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125744 Mon, 28 Dec 2009 18:19:52 +0100 3125744 http://www.medworm.com/index.php?rid=3125743&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F10%3Frss%3D1 Uncertainty is a central feature of long-term childhood cancer survivorship during which time it principally has to do with late effects. Therefore, the purposes of this article are (a) to assess feasibility of a randomized clinical trial of a telephone-delivered coping skills training (CST) intervention in terms of recruitment, retention, and timeline, as well as the performance of the study measures; and (b) to demonstrate trends in change on outcomes within the context of a small pilot study. The results of this pilot study suggest that HEROS PLUS CST has clinical relevance and that in-person long-term follow-up plus telephone-delivered psychosocial care is a practical way to deliver integrated care to adolescent—young adult childhood cancer survivors and their parents. (Source: J... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125743 Mon, 28 Dec 2009 18:19:52 +0100 3125743 http://www.medworm.com/index.php?rid=3125742&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F27%2F1%2F6%3Frss%3D1 This article reports the results of the APHON workshop which utilized the evidence from adult ambulatory oncology literature and standards and the recommendations of the expert pediatric oncology nurse participants to develop global statements about pediatric oncology ambulatory practice standards. The energy and productivity of the group was evidence of a common theme and demand for attention to the ambulatory nursing staff and practice. The ability to identify common threads and reach consensus with powerful statements of practice supports the continued use of such forums to move practice forward. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125742 Mon, 28 Dec 2009 18:19:52 +0100 3125742 http://www.medworm.com/index.php?rid=3125741&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F27%2F1%2F5%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3125741 Mon, 28 Dec 2009 18:19:52 +0100 3125741 http://www.medworm.com/index.php?rid=3117146&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F6%2F377%3Frss%3D1 Children who have undergone bone marrow transplantation (BMT) often have decreased growth. Growth is a multifactorial process, and the factors that influence growth after BMT are not completely understood. The authors hypothesized that donor type may be a factor influencing growth. Sixty-five children and adolescents who underwent BMT (32 related matched, 33 unrelated matched) were evaluated. Growth velocity (height standard deviation) was assessed prior to and 2 years following BMT. The results indicated that children and adolescents who underwent unrelated matched transplants had lower growth velocity (P < .059) than those with related matched transplants. Those who received the standard conditioning regimen that included total body irradiation (TBI) had a significantly lower growth v... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3117146 Wed, 23 Dec 2009 21:17:24 +0100 3117146 http://www.medworm.com/index.php?rid=3117145&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F6%2F369%3Frss%3D1 This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18 years). Individual interviews were completed at home approximately 10.68 months (SD = 3.48) after the child’s death. Content analysis of interviews indicated that many children living with cancer did specific things to be remembered, such as making crafts for others, willing away belongings, writing letters to loved ones, and giving special gifts. Some children, particularly those who were very ill or died unexpectedly, did not intentionally do or say anything to be remembered. Legacies included bereaved individuals rememberin... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3117145 Wed, 23 Dec 2009 21:17:24 +0100 3117145 http://www.medworm.com/index.php?rid=3117144&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F6%2F362%3Frss%3D1 Down syndrome (DS), which occurs once in every 800 births, is associated with a trisomy on locus 21. Among the many aberrations caused by DS, including shortened stature and distorted facies, are several blood dyscrasias, including childhood leukemias—namely, acute myeloid leukemia (AML) and acute lymphoblastic, or lymphocytic, leukemia (ALL). One focus of the diagnosis of ALL is to distinguish it from AML.The benefits of immunophenotyping extend to treatment as well. ALL is associated with an inherited trisomy 21 in DS children (ALL-DS) and with acquired trisomies, +21, 8, and 13, in non-DS children (ALL-NDS). The differences in treatment, outcome, and prognosis between ALL-DS and ALL-NDS can be attributed to the interaction of their respective trisomies with several genetic mutatio... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3117144 Wed, 23 Dec 2009 21:17:24 +0100 3117144 http://www.medworm.com/index.php?rid=3117143&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F6%2F354%3Frss%3D1 To determine the incidence, timing, and characteristics of headaches in a population of off-therapy pediatric brain tumor patients, a retrospective chart review was conducted on 3 subpopulations of children followed in a multidisciplinary neuro-oncology clinic in the Southeastern United States. Data collected included tumor type and location, treatment, associated symptoms, and description and timing of headaches. In all, 81 charts were reviewed from which headaches in 3 subtypes of tumors were identified (29 medulloblastomas, 36 cerebellar juvenile pilocytic astrocytomas [JPAs], and 16 craniopharyngiomas). Off-therapy headaches were noted in 6 (21%) of medulloblastomas, 10 (28%) of JPAs, and 19 (56%) of craniopharyngiomas. Almost half of those patients with prediagnosis headaches had recu... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3117143 Wed, 23 Dec 2009 21:17:24 +0100 3117143 http://www.medworm.com/index.php?rid=3117142&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F6%2F340%3Frss%3D1 Children with cancer and their families benefit from both social interaction and privacy in attempting to cope with the stresses of a child’s hospitalization and illness. An analysis of findings from a study of stress and coping for children with cancer evaluated design features affecting social interaction and privacy at a hospital in the United Kingdom and a hospital in the United States and some of the ways in which these features and related hospital policies uphold the philosophy of family-centered care and support coping. Implications of these findings with the current call for single occupancy rooms in both countries are explored. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3117142 Wed, 23 Dec 2009 21:17:24 +0100 3117142 http://www.medworm.com/index.php?rid=3117141&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F6%2F325%3Frss%3D1 Clinical experience suggests that children with cancer experience multiple symptoms as a result of their disease and/ or its treatment. These symptoms may have a negative impact on children’s ability to function and on their quality of life. No systematic review has summarized the findings from studies that assessed multiple symptoms in these patients. The purposes of this article are to summarize the findings from the studies of multiple symptoms in pediatric oncology patients and to describe directions for future research. Although there has been a recent increase in the studies of the multiple symptoms in pediatric cancer patients, only 9 studies were found that met the inclusion criteria for this review. Thus, little is known about the relationships between demographic and clinic... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=3117141 Wed, 23 Dec 2009 21:17:24 +0100 3117141 http://www.medworm.com/index.php?rid=2900688&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F5%2F303%3Frss%3D1 In this report, 2 hypothetical, contrasting case studies of family management are used to illustrate family management within the context of brain tumor survivors. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2900688 Fri, 16 Oct 2009 20:06:48 +0100 2900688 http://www.medworm.com/index.php?rid=2900687&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F5%2F295%3Frss%3D1 Central nervous system tumors are the most common solid tumor diagnosed in children under the age of 14 years. Chronic health conditions related to endocrine and metabolic late effects are one of the most common medical late effects seen in childhood cancer survivors. Over the past 2 decades, outcomes have improved significantly for children diagnosed with a brain tumor. Curative therapy for childhood brain tumors survivors places them at significant risk for complex multi-organ medical late effects.These late effects can create a negative effect on cognition, growth, organ function, body image, sexual function and quality of life. Treatment related complications can occur many years after completion of therapy. Close monitoring is necessary so that early detection and intervention can hop... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2900687 Fri, 16 Oct 2009 20:06:48 +0100 2900687 http://www.medworm.com/index.php?rid=2900686&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F5%2F280%3Frss%3D1 Survivors of central nervous system tumors (SCNST) are a growing group of cancer survivors who require risk-based, long-term health care due to the chemotherapy, surgery, and radiation they have received.Although treatment strategies are being developed to reduce morbidity and mortality, ultimately this subgroup of pediatric cancer survivors often faces moderate to severe late effects of their treatment.As a result, they will need lifelong health care that includes risk-based health care due to cancer treatment exposures as well as primary adult health care, including primary and secondary preventative care. The best way to accomplish lifelong health care for SCNST as they enter adulthood is not clearly defined. In this article, the authors plan to (1) present an overview of the complexiti... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2900686 Fri, 16 Oct 2009 20:06:48 +0100 2900686 http://www.medworm.com/index.php?rid=2900685&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F5%2F266%3Frss%3D1 Although progress has been made in the treatment of childhood brain tumors,work remains to understand the complexities of disease, treatment, and contextual factors that underlie individual differences in outcome. A combination of both an idiographic approach (incorporating observations made by adult survivors of childhood brain tumors) and a nomothetic approach (reviewing the literature for brain tumor survivors as well as childhood cancer survivors) is presented. Six areas of concern are reviewed from both an idiographic and nomothetic perspective, including social/emotional adjustment, insurance, neurocognitive late effects, sexuality and relationships, employment, and where survivors accessed information about their disease and treatment and possible late effects. Guidelines to assist ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2900685 Fri, 16 Oct 2009 20:06:48 +0100 2900685 http://www.medworm.com/index.php?rid=2900684&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F5%2F255%3Frss%3D1 This article highlights these contributions to the body of survivorship knowledge and quality of care, as well as areas of ongoing challenge and future directions suggested by thought leaders in our specialty. Key contributions are examined decade by decade and against the six recommendations for health care policy and practice delineated in the two recent IOM survivorship reports: evidence-based guidelines for follow-up care, standards and models of care, increasing awareness of late effects and needed follow-up care, improving professional education and training, improving access to care for survivors, and increasing research to prevent or manage late effects. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2900684 Fri, 16 Oct 2009 20:06:48 +0100 2900684 http://www.medworm.com/index.php?rid=2900683&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F26%2F5%2F253%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2900683 Fri, 16 Oct 2009 20:06:48 +0100 2900683 http://www.medworm.com/index.php?rid=2760183&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F4%2F230%3Frss%3D1 Educating patients is a primary responsibility of all nurses; however, because of time constraints and staff shortages, pediatric oncology nurses are often unable to adequately prepare patients for cancer treatment. Instead, patients frequently rely on the Internet as a source of information about cancer, some of which can be outdated and inaccurate. Adolescents regard the Internet as a valuable source of health information as it is easily accessible, less threatening, and confidential. Considering the need for accurate, readily available information for adolescents with cancer, the purpose of this study was to develop and validate an innovative, interactive Web-based educational program to prepare early and middle adolescents for cancer treatment. Titled "Coping With Cancer," this program... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760183 Tue, 01 Sep 2009 23:00:00 +0100 2760183 http://www.medworm.com/index.php?rid=2760182&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F4%2F223%3Frss%3D1 Hematopoietic stem cell transplantation (HSCT) is used to eradicate disease and restore normal hematopoietic, immunologic, and/or metabolic functioning. HSCT is a complex treatment that is physiologically and psychologically demanding on the recipient, caregiver, and family. The purpose of this study was to identify needs and resources of family caregivers of pediatric HSCT recipients during the first year after transplant. Parental caregivers (n = 161) completed an online survey. The most cited sources of information were the HSCT team (87.7%), books and other print materials (83.1%), and the Internet (81.5%). However, more than half of the respondents reported that finding resources and services was a problem. More than half identified managing the emotional and social impact of the tran... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760182 Tue, 01 Sep 2009 23:00:00 +0100 2760182 http://www.medworm.com/index.php?rid=2760181&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F4%2F217%3Frss%3D1 Data were collected prospectively on 100 consecutive invasive procedures, that is, lumbar and bone marrow punctures (alone or in combination), in 16 patients less than 21 years of age with acute lymphoblastic leukemia (ALL). Efficacy of sedation and the need for restraint were graded according to 2 multiple-point scales. All invasive procedures were successfully performed. Oxygen by face mask was needed in 5 cases, whereas no patient required sedation reversal; 92% of the time, the patient was calm, cooperative, and responding to verbal commands, whereas in 97 procedures, there was no or only minimal patient movement that did not interfere with the completion of the procedure. Inpatient administration of midazolam and fentanyl by trained pediatric providers is safe and effective for invasi... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760181 Tue, 01 Sep 2009 23:00:00 +0100 2760181 http://www.medworm.com/index.php?rid=2760180&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F4%2F208%3Frss%3D1 This article also reviews treatments for high-risk neuroblastoma patients and analyzes recent research studies that used 131I-MIBG to better define the role of this treatment in high-risk neuroblastoma patients. In addition, this article explores the role of the advanced practice nurse to serve at the forefront in the implementation of a multidisciplinary 131I-MIBG treatment program. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760180 Tue, 01 Sep 2009 23:00:00 +0100 2760180 http://www.medworm.com/index.php?rid=2760179&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F4%2F198%3Frss%3D1 Noncompliance with prescribed medication has been associated with increased chance of relapse and poor outcome. Side effects may be an important cause of noncompliance. Fifty-one parents of children with acute lymphoblastic leukemia in a tertiary care hospital in Indonesia were interviewed about their perception of side effects and their impact on treatment noncompliance and daily activities. A symptom checklist assessing 13 common symptoms was used to examine side effects. During chemotherapy, childhood acute lymphoblastic leukemia patients suffered from psychological as well as physical side effects. The most frequent side effect reported by parents was behavior alteration (92%). Second and third in frequency were increased appetite and infections, reported by 88% and 83% of parents, res... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760179 Tue, 01 Sep 2009 23:00:00 +0100 2760179 http://www.medworm.com/index.php?rid=2760178&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F4%2F186%3Frss%3D1 Regardless of which parts of the world they live in, most children will develop and grow at a similar rate if proper nutrition is ensured. Children from developing countries are at risk for primary malnutrition. Children undergoing anticancer therapy are at higher risk for secondary malnutrition, including obesity and growth retardation. Periodic nutritional assessments are important for planning effective dietary interventions for such children. In this review, we describe malnutrition as it occurs in children with cancer and various ways of assessing the nutritional status of these children, depending on the availability of resources in their local hospitals. Objective and subjective data should be used to complete the nutritional assessment. We discuss screening methods, including the u... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760178 Tue, 01 Sep 2009 23:00:00 +0100 2760178 http://www.medworm.com/index.php?rid=2760177&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F26%2F4%2F185%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2760177 Tue, 01 Sep 2009 23:00:00 +0100 2760177 http://www.medworm.com/index.php?rid=2444564&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F3%2F167%3Frss%3D1 This study used qualitative analysis of 24 sessions from 3 Latina and 3 European American mothers of children recently diagnosed with cancer. The session transcripts were divided into a total of 2328 thought segments that were then analyzed for themes using a collaborative iterative process. Analysis identified 9 shared coping themes that included, with some variations: gathering information, professional help-seeking, activities, problem solving, positive thinking, present orientation, reframing, avoidance, and religion. Three themes were culture specific: only European American mothers discussed compromise, whereas normalization and perspective taking were unique to the Latina mothers and suggest that the cultural value of simpatía influences coping. Clinical and research recommen... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2444564 Fri, 29 May 2009 04:00:00 +0100 2444564 http://www.medworm.com/index.php?rid=2444563&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F3%2F158%3Frss%3D1 Several investigations have found support for the role of behavioral inhibition in the etiology of childhood anxiety and depression disorders. However, nothing is known about how this relation extends to children with a chronic, life-threatening illness. The purpose of the current study was to examine behavioral inhibition and its relation to anxiety and depression symptoms among 30 adolescents with sickle cell disease (SCD). Adolescents with SCD and their primary caregivers completed instruments assessing demographic information, behavioral inhibition, and anxiety and depression symptoms. A majority of adolescents with SCD classified themselves as middle or low on behavioral inhibition. Adolescents with SCD who classified themselves as high on behavioral inhibition displayed higher levels... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2444563 Fri, 29 May 2009 04:00:00 +0100 2444563 http://www.medworm.com/index.php?rid=2444562&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F3%2F150%3Frss%3D1 The purpose of this study was to assess the types of social support received by children attending a week-long residential summer camp for children with cancer. Following the camp, families were sent a social support questionnaire (for the child to complete) and the Child Behavior Checklist (for parents to complete). Analyses evaluated children's adjustment rated by parents, support reported by children, and the relationship between adjustment and support. Girls reported receiving more support than boys, and both genders reported receiving more support at camp than children in the general population. Ratings of adjustment were not different from normative data for boys or girls. No relationship was found between adjustment and support. The camp environment is very supportive and may offer ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2444562 Fri, 29 May 2009 04:00:00 +0100 2444562 http://www.medworm.com/index.php?rid=2444561&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F3%2F142%3Frss%3D1 One of 5 pediatric cancers occurs within the central nervous system. Although outcomes have improved, the greatest challenge with these patients remains the balance between cure and long-term morbidity. Patients who have undergone radiation therapy remain at high risk for developing a multitude of severe long-term sequelae. As radiation therapy remains a mainstay of treatment much attention has gone into improving its quality and precision. Multiple options exist for these patients, including conventional photon radiotherapy, conformal radiation, and now, proton beam radiotherapy. Proton beams are able to provide utmost precision for targeting the site of the tumor while decreasing radiation doses to surrounding tissues. Studies are showing that the benefits of proton therapy surpass both ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2444561 Fri, 29 May 2009 04:00:00 +0100 2444561 http://www.medworm.com/index.php?rid=2444560&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F3%2F136%3Frss%3D1 Solitary fibrous tumors (SFTs) are rare spindle cell neoplasms that originate from mesothelial-lined surfaces, mainly the pleura and peritoneum. SFT is a distinctive mesenchymal neoplasm of the pleura but can be found in extrapleural sites. The treatment of SFT is simple excision or wide local resection. This is the case study of a 14-year-old girl who presented with a large diffuse swelling in the left submandibular region, ultimately diagnosed with SFT and surgically excised. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2444560 Fri, 29 May 2009 04:00:00 +0100 2444560 http://www.medworm.com/index.php?rid=2444559&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F3%2F125%3Frss%3D1 Oral complications are commonly seen in pediatric oncology patients. Induced by chemotherapy or radiation, oral mucositis is a debilitating side effect that has much clinical significance. Oral mucositis may decrease the effectiveness of treatment as well as decrease the quality of life in the pediatric oncology patient. Therefore, it is our responsibility as health care professionals to reduce the incidence and/or severity of mucositis as much as possible. One intervention that has been proven to be successful is basic oral hygiene implemented through an oral care protocol. It is important that nurses are educated on the significance of adequate dental hygiene and the process and need for institutional change of protocols. Nurses and other health care professionals can positively influenc... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2444559 Fri, 29 May 2009 04:00:00 +0100 2444559 http://www.medworm.com/index.php?rid=2313345&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F2%2F107%3Frss%3D1 Whether to suggest enrollment of pediatric oncology patients with advanced or refractory disease into a Phase I clinical trial may present a significant ethical dilemma for health care professionals. Phase I trials are experimental and unpredictable by nature, yet health care professionals must ensure the trial's therapeutic intent as well as address the many vulnerabilities of the child with terminal cancer. After reviewing the role and phases of clinical research in pediatric oncology, this article discusses ethical considerations in Phase I clinical trials according to The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects in Research and discusses specific applications of these key ethical principles. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313345 Tue, 07 Apr 2009 04:00:00 +0100 2313345 http://www.medworm.com/index.php?rid=2313341&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F2%2F100%3Frss%3D1 Children in the terminal stage of cancer may experience intractable pain despite the use of high doses of opioids. The resultant sedating effect of the opioids limits the child's ability to communicate and participate in activities, thereby negatively affecting quality of life. Ketamine, an intravenous (IV) anesthetic with analgesic properties, when used in low doses, may be useful in managing pediatric cancer pain at the end of life. Ketamine can prevent the development of opioid tolerance and provide additional analgesia without an increase in sedating effects. At the authors' institution, 2 children with end-stage cancer were started on continuous infusion low-dose ketamine to help achieve adequate pain control and allow the children to be home and interactive for the last weeks of thei... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313341 Tue, 07 Apr 2009 04:00:00 +0100 2313341 http://www.medworm.com/index.php?rid=2313337&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F2%2F86%3Frss%3D1 Conclusions were that communication among nurses, school personnel, and parents was a major barrier to providing effective services to students and their parents. Nurses were unsure of how to help parents navigate the school bureaucracy, school personnel felt they needed more information, and parents felt that their children were not receiving all the school reentry services needed. Individuals in this study recommended that a liaison position be created to coordinate services. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313337 Tue, 07 Apr 2009 04:00:00 +0100 2313337 http://www.medworm.com/index.php?rid=2313332&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F2%2F81%3Frss%3D1 Approximately 50% to 60% of children with cancer require radiation therapy. Radiation is one modality of treatment for pediatric malignancies and is used as complementary, palliative, emergency, or sole treatment. The goal of this program was to provide the child and family with coping strategies and minimize the necessity for anesthesia during radiation treatment. Since the beginning of the project, 55 children have participated in the preparation program. The developers of the program have found it worthwhile for the program to be flexible and matched to each child's and family's specific needs and capabilities. It has been found that the radiation therapy preparation program minimizes anxiety and increases satisfaction with care among the child, family, and staff involved. (Source: Jour... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313332 Tue, 07 Apr 2009 04:00:00 +0100 2313332 http://www.medworm.com/index.php?rid=2313327&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F2%2F75%3Frss%3D1 The adolescent life stage encompasses unique developmental challenges. Little is known about the experience of receiving a cancer diagnosis during this already demanding life stage. The aim of this study is to explore the lived experience of being diagnosed with cancer from the perspective of the adolescent. A phenomenological approach is used to perform semistructured interviews with 10 adolescents who have been diagnosed with cancer within the previous 4 to 6 months. Colaizzi's method of analysis is used to allow themes to emerge from these data. Six themes capture the essence of being diagnosed with cancer from the perspective of the adolescent: (1) the stunning loss of normalcy, (2) gaining information, (3) the importance of friends and their reactions, (4) getting used to it, (5) givi... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313327 Tue, 07 Apr 2009 04:00:00 +0100 2313327 http://www.medworm.com/index.php?rid=2313322&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F2%2F68%3Frss%3D1 The objective of this study is to portray the ill- ness-related threats experienced by parents of children after the diagnosis of central nervous system (CNS) tumor. Parents were asked to rate the extent to which they experienced a set of specific fears related to their child's brain tumor and its treatment. Outcomes for parents of CNS tumor patients (n = 82) were compared with those of reference parents of patients treated for acute lymphoblastic leukemia (n = 208). The fears about an illness recurrence and the late effects of treat- ment were most prominent among parents of CNS tumor patients. For 7 out of 11 kinds of fear, parents of CNS tumor patients expressed a stronger fear than the reference group. More than a quarter of the parents of children treated for CNS tumors feared a compl... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313322 Tue, 07 Apr 2009 04:00:00 +0100 2313322 http://www.medworm.com/index.php?rid=2313317&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F26%2F2%2F67%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2313317 Tue, 07 Apr 2009 04:00:00 +0100 2313317 http://www.medworm.com/index.php?rid=2044983&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F1%2F48%3Frss%3D1 The purpose of this review is to discuss the role of the pediatric nurse practitioner (PNP) surrounding the survivorship issue of infertility. The author outlines the effects of treatment, examines available options, explores ethical and legal issues, discusses the role of the PNP, and addresses areas of further research. The issue of postcancer reproductive health is increasing in importance as both the number of cancer survivors and length of survival increases. Approximately 1 out of every 900 individuals in the United States between the ages of 15 and 45 years is a survivor of childhood cancer. In fact, the survival rates for childhood cancer have improved dramatically. Sexual function and fertility in children and adolescents has become a prominent issue, and this review illustrates t... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2044983 Wed, 17 Dec 2008 05:00:00 +0100 2044983 http://www.medworm.com/index.php?rid=2044982&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F1%2F41%3Frss%3D1 This article provides nurses with insight about the pathophysiology and treatment modalities of LCH and prepares the nurse to provide confident comprehensive nursing care and to educate patients and families. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2044982 Wed, 17 Dec 2008 05:00:00 +0100 2044982 http://www.medworm.com/index.php?rid=2044981&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F1%2F29%3Frss%3D1 As the number of specialty pediatric oncology units increases, many units are hiring increasing numbers of newly graduated registered nurses. Intense specialty training and an emotionally demanding work environment place new nurses at risk for job frustration and early job resignation. The purpose of this study is to investigate experiences of pediatric oncology nurses during their first year of hire using a phenomenological approach. Participants were 6 nurses employed on an inpatient pediatric oncology unit in a tertiary care center located in the Intermountain West. A purposive sampling approach was used. Data were collected via semistructured interviews, which were analyzed for specific statements and themes providing description and meaning to nurses' experiences. Eleven themes in the... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2044981 Wed, 17 Dec 2008 05:00:00 +0100 2044981 http://www.medworm.com/index.php?rid=2044980&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F1%2F16%3Frss%3D1 This pilot study aimed to determine the feasibility of providing massage to children with cancer to reduce symptoms in children and anxiety in parents. Twenty-three children/parent dyads were enrolled; 17 completed all data points. Children with cancer, ages 1 to 18 years, received at least 2 identical cycles of chemotherapy, and one parent, participated in the 2-period crossover design in which 4 weekly massage sessions alternated with 4 weekly quiet-time control sessions. Changes in relaxation (heart and respiratory rates, blood pressure, and salivary cortisol level) and symptoms (pain, nausea, anxiety, and fatigue) were assessed in children; anxiety and fatigue were measured in parents. Massage was more effective than quiet time at reducing heart rate in children, anxiety in children le... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2044980 Wed, 17 Dec 2008 05:00:00 +0100 2044980 http://www.medworm.com/index.php?rid=2044979&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F26%2F1%2F7%3Frss%3D1 This study confirms that within the same geographic region, children with chronic and life-threatening illness use more CAM therapies than children seen in primary care clinics. Children with cancer use CAM for different reasons than children with non-life-threatening illnesses. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=2044979 Wed, 17 Dec 2008 05:00:00 +0100 2044979 http://www.medworm.com/index.php?rid=1923412&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F6%2F340%3Frss%3D1 Although pediatric cancer treatment has been reviewed by several authors, the lived experiences of children undergoing this process have seldom been discussed in the literature. The data for this article were obtained from a larger qualitative study that provided a collective view of the pediatric cancer experience at San Jorge Children's Hospital in Puerto Rico. In this article, findings that are directly related to the hospitalization process of these young patients are described, including the hospital as a safe haven, dealing with pain, taking control, and thriving in adversity. These findings provide a rationale for the development of a biopsychosocial model of health that emphasizes reciprocal interactions among the biological, psychological, social, cultural, and spiritual dimension... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1923412 Fri, 31 Oct 2008 04:00:00 +0100 1923412 http://www.medworm.com/index.php?rid=1923411&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F6%2F331%3Frss%3D1 This study explores the experiences of children, youth, and their families as they seek to reintegrate into mainstream educational systems. Despite the variable experiences, there are many common strategies that could positively influence the child's success in school. Strong communication between parents, school, and health professionals is paramount. Preparing parents to advocate for their children's academic and social needs and developing an awareness of the challenges among school staff has potential to improve outcomes for these children. Equipping the children with the social skills needed to manage social situations will strengthen their ability to overcome the challenges that they face. These study findings shed light on the academic experiences of these children and can lead to t... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1923411 Fri, 31 Oct 2008 04:00:00 +0100 1923411 http://www.medworm.com/index.php?rid=1923410&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F6%2F323%3Frss%3D1 A literature review was performed to explore the experiences of parents during their child's diagnosis of leukemia. The findings revealed that anxiety is a major reaction to the diagnosis. Because of the parents' reactions, communication barriers and parental role changes are established between the parent and child. The lack of communication between the parent and child during diagnosis and treatment and parental role changes produce negative outcomes. Negative outcomes place the parent and child at risk for experiencing anxiety years after the illness is treated. This literature review describes positive outcomes that can be accomplished by decreasing the anxiety of parents, which leads to a decrease in communication barriers and parental role changes during the new diagnosis of leukemia... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1923410 Fri, 31 Oct 2008 04:00:00 +0100 1923410 http://www.medworm.com/index.php?rid=1923409&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F6%2F312%3Frss%3D1 The purpose of this article is to describe the results of a study examining the relationship between nurses' management of pediatric oncology patients' symptoms and job satisfaction. Surveys were mailed to a national sample of pediatric oncology nurses to assess the presence of symptoms in their patients, the nurses' distress from the patients' symptoms, the interventions used to manage the symptoms, the perceived effectiveness of the interventions, and the nurses' job satisfaction. Based on the stress response sequence model, study hypotheses proposed that nurses' symptom management affects nurses' distress and, in turn, job satisfaction. Hierarchical regression analyses were used to evaluate the hypotheses and study model. Results demonstrated that both the number of nursing intervention... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1923409 Fri, 31 Oct 2008 04:00:00 +0100 1923409 http://www.medworm.com/index.php?rid=1923408&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F6%2F303%3Frss%3D1 The purpose of this article is to describe the results of a national descriptive survey of 509 pediatric oncology nurses' interventions for managing patients'symptoms. The Nurses' Distress and Interventions for Symptoms Survey (NDISS) is used to assess nurses' management of patients' 7 most distressing symptoms. The average number of symptoms reported as being present is 6.0 (SD 1.3; range, 0-7). Pain is the most commonly reported symptom; trouble sleeping is the least common. The mean score for nurses' distress is 2.9 (SD 0.8; range, 0-4); nurses' distress is greatest with trouble sleeping and lowest with hair loss. Nurses use an average of 12.7 interventions to treat each symptom; pain has the greatest number of interventions to treat and hair loss the least. The average perceived effect... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1923408 Fri, 31 Oct 2008 04:00:00 +0100 1923408 http://www.medworm.com/index.php?rid=1923407&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F6%2F295%3Frss%3D1 Pleuropulmonary blastoma (PPB) is a dysontogenetic neoplasm of childhood that involves lung and/or pleura. There is an increased incidence of neoplasias and dysplasias among young relatives of children with PPB. Pathophysiologically, PPB evolves from a cystic to solid state over time. It is subclassified as type I (purely cystic), type II (both cystic and solid elements), and type III (completely solid). Type II and type III may be associated with metastasis, with the brain being the most common metastatic site. The absence of epithelial malignancy in PPB is a feature that distinguishes it from the adult-type pulmonary blastoma. The clinical presentation includes signs and symptoms associated with various respiratory disorders. To make a definitive diagnosis of PPB, an examination of the c... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1923407 Fri, 31 Oct 2008 04:00:00 +0100 1923407 http://www.medworm.com/index.php?rid=1753585&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F5%2F275%3Frss%3D1 The purpose of this secondary analysis was to describe the relationships of friend, family, and health care provider social support to pain, fatigue, depressed mood, and insomnia in adolescents and young adults with cancer using the Adolescent Resilience Model. Specific aims of the study were to describe the relationships of 3 separate sources of perceived support—friends, family, and health care providers to the symptom-related distress of pain, fatigue, depressed mood, and insomnia. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1753585 Tue, 02 Sep 2008 04:00:00 +0100 1753585 http://www.medworm.com/index.php?rid=1753584&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F5%2F265%3Frss%3D1 The aims of this study are to follow health-related quality of life (HRQOL), school attendance, and social interaction with friends in children with cancer and to explore potential relationships between HRQOL and school attendance. The study also describes self-reported reasons for not attending school and not meeting friends. During a 2-year period, all schoolchildren in Sweden starting treatment for cancer were invited to participate in the study. Participants (N = 101) were assessed 3 times during the first 5 months of treatment using 2 questionnaires: DISABKIDS Chronic Generic Module (DCGM-37) and a study-specific questionnaire. The results indicate a diminished HRQOL that remained stable over the study period, with girls rating worse HRQOL compared with boys. School attendance signifi... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1753584 Tue, 02 Sep 2008 04:00:00 +0100 1753584 http://www.medworm.com/index.php?rid=1753583&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F5%2F254%3Frss%3D1 This article synthesizes the bone marrow transplant (BMT) literature regarding adolescents' nutritional needs, etiologies of altered oral intake, GI symptoms, nutritional assessments, nutritional interventions, and quality of life associated with poor nutrition. In addition, gaps in knowledge in the literature are identified. To provide effective and thorough care to patients during their BMT recovery, the knowledge base of nutritional and eating issues after transplant needs to become more comprehensive. Nurses play an important role in gathering and reporting clinical information. By anticipating potential risk factors, assessing and identifying symptoms, and initiating appropriate interventions promptly, patients can experience a more positive BMT experience. (Source: Journal of Pediatr... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1753583 Tue, 02 Sep 2008 04:00:00 +0100 1753583 http://www.medworm.com/index.php?rid=1753582&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F5%2F247%3Frss%3D1 This study was conducted to determine the depression, anxiety (state and trait), hopelessness, and perceived social support levels of 94 parents of children with cancer followed up at a university hospital. Data were collected using a questionnaire form and included descriptive characteristics, Beck Depression Inventory, Multidimensional Scale of Perceived Social Support, State—Trait Anxiety Inventory, and The Hopelessness Scale. A positive relationship was found between depression and hopelessness scores and between state and trait anxiety scores for both mothers and fathers. Also, a negative relationship was found between social support and depression scores and between hopelessness and social support scores. Apart from fathers, a positive relationship between depression and trait ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1753582 Tue, 02 Sep 2008 04:00:00 +0100 1753582 http://www.medworm.com/index.php?rid=1753581&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F5%2F240%3Frss%3D1 Hematopoietic stem cell transplant (HSCT) recipients are at increased risk of viral, bacterial, fungal, and parasitic infections both pretransplant and post-transplant. One of the most dangerous infections that can be acquired during this time is aspergillosis. Several drugs are available for prophylaxis, though no particular regimen has been proven to be superior; although the CDC has clear recommendations regarding prophylaxis for many other infections (such as cytomegalovirus, herpes simplex, toxoplasmosis, and Candida) for HSCT patients, there are none for aspergillosis. Researchers have varying opinions as to which drugs are best for prophylaxis. In this article, pharmacologic and environmental options for prophylaxis are discussed as well as antifungals currently in use, and recommen... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1753581 Tue, 02 Sep 2008 04:00:00 +0100 1753581 http://www.medworm.com/index.php?rid=1753580&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Freprint%2F25%2F5%2F239%3Frss%3D1 (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1753580 Tue, 02 Sep 2008 04:00:00 +0100 1753580 http://www.medworm.com/index.php?rid=1534394&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F227%3Frss%3D1 This study, investigating treatment with central nervous system (CNS) stimulants for cognitive changes related to pediatric cancer treatment, confirmed a common concern. How should neurocognitive decline be measured and followed up after cancer therapy? Multiple pediatric standardized cognitive tests are available, but there is no consensus on an efficient way to measure the most common areas of decline, specifically impaired concentration, memory, and mental processing speed. The authors' report recognized 12 pediatric patients at risk for cognitive dysfunction, of whom 3 tested positive for early neurocognitive deficits using 3 subscales of the Wechsler Intelligence Scale for Children—III (WISC-III), which measure working verbal memory (Digit Span), mental processing speed (Symbol ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534394 Fri, 20 Jun 2008 04:00:00 +0100 1534394 http://www.medworm.com/index.php?rid=1534393&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F220%3Frss%3D1 Writing in plain language makes it easier for patients to read, understand, and make informed decisions about sperm banking. Greater attention to the issue and properly designed educational brochures for use by nurses in oncology and reproductive health is of evident importance but of unknown impact. A multidisciplinary clinical team followed an evidence-based, patient-centered approach to develop "plain language" patient education materials about sperm banking for adolescent and young adult (AYA) males with cancer. A patient education booklet was produced and implemented as part of the planned patient education for AYA male oncology patients at McMaster Children's Hospital, Hamilton Health Sciences, in Hamilton, Ontario, Canada. The patient education booklet for use by health professional... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534393 Fri, 20 Jun 2008 04:00:00 +0100 1534393 http://www.medworm.com/index.php?rid=1534392&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F213%3Frss%3D1 This article presents 2 young adult survivors who displayed subtle signs of impaired cerebral blood flow due to carotid artery stenosis many years after being treated with neck irradiation. When the first patient presented nearly a decade ago in the clinic with symptoms, premature carotid artery disease was not a radiation-related late effect that had been reported previously in survivors of childhood cancer. These cases are used to illustrate the key role of long-term follow-up clinics in identifying new and emerging treatment-related late effects and underscore the importance of lifetime surveillance and the need for collaboration between pediatric and adult health care providers. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534392 Fri, 20 Jun 2008 04:00:00 +0100 1534392 http://www.medworm.com/index.php?rid=1534391&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F208%3Frss%3D1 Infections are the most common complication in patients receiving treatment for cancer with neutropenia being the primary risk factor for the development of an infection. In the neutropenic patient, bacteremia remains a significant cause of mortality. Although the literature reports that prompt empiric antibiotic therapy to prevent death caused by virulent organisms is the standard of care, the literature fails to identify what prompt antibiotic administration means. Door/fever-to-patient antibiotic delivery was evaluated as a quality control measure in a new children's hospital. Initially, door/fever-to-patient time was significantly delayed. Collaboration between pharmacy, hospital bed control, medical, and nursing staff resulted in many changes in practice by all groups. As a result, th... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534391 Fri, 20 Jun 2008 04:00:00 +0100 1534391 http://www.medworm.com/index.php?rid=1534390&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F200%3Frss%3D1 The placement of a central venous access device (CVAD) has revolutionized supportive care for pediatric cancer patients. The CVAD is used to administer chemotherapy/biotherapy, blood products, total parenteral nutrition, antibiotics, and many other supportive medications. CVADs also provide the ability to obtain blood samples without the trauma associated with venipuncture. Frequent blood sampling is often needed to monitor the side effects and response of the cancer treatment. Unfortunately, the most common method requires discarding blood (0.5-10 mL, depending on the institution's protocol) with each lab draws, for various reasons. For pediatric oncology patients, this can result in a large volume of blood being discarded and subsequently increase the need for blood transfusions. Repeate... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534390 Fri, 20 Jun 2008 04:00:00 +0100 1534390 http://www.medworm.com/index.php?rid=1534389&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F193%3Frss%3D1 Adolescents with cancer have social support needs that are challenging to meet. A qualitative descriptive study was done using in-person interviews with 11 participants between the ages of 14 and 20. The purpose of the study was to explore and describe adolescent's perceptions of a teen support group. Two main themes emerged: Satisfying Elements and Challenges in the teen group. The subthemes under Satisfying Elements include participants being able to talk to others who "just know," sharing experiences while having fun as a normal teenager, and giving or receiving inspiration. Subthemes under Challenges as identified by participants include ensuring that activities during teen events meet the needs of all participants and dealing with the death of a group member. Study findings suggest th... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534389 Fri, 20 Jun 2008 04:00:00 +0100 1534389 http://www.medworm.com/index.php?rid=1534388&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F4%2F185%3Frss%3D1 What does it mean to have cancer as a child or adolescent? To understand this, researchers must study the illness from the child's point of view and listen to these children's descriptions of their "lived world." Phenomenology is a qualitative research methodology that can be used to discover and interpret meaning. To use phenomenology congruently, the philosophical background must be understood as well as the adaptation of the philosophical basis to research in the caring sciences. Only when clinicians truly understand the meaning of this illness to the child can they design nursing interventions to ease suffering and increase quality of life in children and adolescents with cancer. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1534388 Fri, 20 Jun 2008 04:00:00 +0100 1534388 http://www.medworm.com/index.php?rid=1379020&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F3%2F164%3Frss%3D1 This article addresses findings specific to the unique experience of childhood cancer survivors as they transition from adolescence to adulthood. Qualitative methods involving focus groups and in-depth interviews with 14 childhood cancer survivors and 22 family members were used. The dialectic of incompetence/competence pervaded all narratives. Contradictory concepts of integration/ isolation, realistic/unrealistic goals, and the need for special help/no help were underscored by respondents. The struggle to deal with these contradictory factors led to the simultaneous resistance and acceptance of feelings of competence. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1379020 Thu, 17 Apr 2008 04:00:00 +0100 1379020 http://www.medworm.com/index.php?rid=1379019&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F3%2F148%3Frss%3D1 This study examines peer-supported storytelling for grieving pediatric oncology nurses using a mixed methods single-group descriptive repeated measures design. Participants were 6 registered nurses from a tertiary care pediatric hospital inpatient oncology unit who self-identified as experiencing grief. Participants met in self-selected dyads for 2 storytelling sessions. Questionnaires were completed at baseline, midpoint, and study end. Sessions were audio-recorded. Participants reported (1) receiving and providing support during sessions; (2) that sessions had an impact on their grief; (3) that sessions had an impact on their meaning-making, and the explicit session focus on making sense of and identifying benefit in their experiences was particularly helpful. There was a significant pos... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1379019 Thu, 17 Apr 2008 04:00:00 +0100 1379019 http://www.medworm.com/index.php?rid=1379018&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F3%2F139%3Frss%3D1 The objectives of this systematic review were to describe literature-based items that should be considered for a pediatric mucositis scale and other issues that should be considered when assessing mucositis in children. Literature search of PubMed and bibliography searches identified articles relevant to the assessment of mucositis and mucositis assessment studies in children. The elements established from the literature were grouped under objective, subjective, and functional items. Other issues that require consideration include the conditions for the assessment of the oral cavity and the etiology of OM. The resultant list included 23 items that have been used in mucositis assessment scales. This list of items may be used as an initial step in developing a new pediatric OM scale that par... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1379018 Thu, 17 Apr 2008 04:00:00 +0100 1379018 http://www.medworm.com/index.php?rid=1379017&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F3%2F127%3Frss%3D1 The death of a child is painful to all witnesses, but the experience varies among individuals, and differing perspectives lead to a variety of definitions for a good death. This analysis is undertaken to clarify the dimensions involved in a good death of a child with cancer and to examine them from 3 perspectives: the dying child, the child's family, and the health care providers. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1379017 Thu, 17 Apr 2008 04:00:00 +0100 1379017 http://www.medworm.com/index.php?rid=1312212&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F112%3Frss%3D1 Few research studies have obtained data directly from the adolescent with cancer regarding decision making. The developmental stage of these patients focuses on developing independence, yet the health care decisions required for cancer treatment preclude independent decision making. The purpose of this pilot, or exploratory, study was to determine whether the research question is appropriate and whether participants between 13 and 15 years of age were capable of providing rigorous data. The results suggest that treatment decision making was not a concern for these patients and that they were capable and appropriate study participants. Semistructured interviews were performed with 3 adolescents diagnosed with cancer within the previous 3 to 6 months. These data were qualitatively analyzed u... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312212 Tue, 18 Mar 2008 04:00:00 +0100 1312212 http://www.medworm.com/index.php?rid=1312211&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F107%3Frss%3D1 Oral mucositis research in children receiving anticancer therapy has been impeded by the lack of an acceptable, appropriate assessment scale. Some scales attempt to measure subjective symptoms associated with mucositis such as pain and difficulty swallowing. These types of patient-reported outcomes are gaining prominence in clinical trials because they capture the perspective of the patients in whom the intervention is designed to benefit. In mucositis research, very few patient-reported outcome measures have been developed. The aim of this study was to determine whether an adaptation of the adult-validated Oral Mucositis Daily Questionnaire is understandable and acceptable for use in the pediatric oncology/hematology population. Twelve subjects were asked to rate their opinion of understa... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312211 Tue, 18 Mar 2008 04:00:00 +0100 1312211 http://www.medworm.com/index.php?rid=1312210&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F102%3Frss%3D1 With improved survival rates among cancer patients, attention to fertility preservation is of paramount importance. An open-ended survey was used to question oncology and reproductive health nurses regarding their interactions with male adolescents and young adults with cancer about sperm banking. Four main areas of interest were identified: (a) key staff need to be identified to initiate discussions about sperm banking, (b) most staff felt unprepared for these discussions, (c) staff education was needed, and (d) provision of educational materials would benefit both staff and patients. The use of sperm banking, as part of the treatment protocol for adolescent and young adult males with cancer, requires the expertise and cooperation of a multidisciplinary team of experts from both oncology ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312210 Tue, 18 Mar 2008 04:00:00 +0100 1312210 http://www.medworm.com/index.php?rid=1312209&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F97%3Frss%3D1 Recent advances in diagnostic and therapeutic methods in pediatric oncology have led to greater survival rates in children with malignancies. However, major long-term complications can occur that limit the quality of survival, infertility being one of them. Chemotherapy, radiation treatment, surgery, and combinations of these treatments have been implicated in causing infertility, with males being especially sensitive to therapy. Cryopreservation of semen, or sperm banking, is an easy, widely available means to preserve fertility for adolescent and young adult males with cancer. In this article, the pertinent literature is reviewed, and a sperm-banking program is described. Recommendations are offered for institutions attempting to develop a successful program, and the nurse's role in educ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312209 Tue, 18 Mar 2008 04:00:00 +0100 1312209 http://www.medworm.com/index.php?rid=1312208&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F86%3Frss%3D1 The aim of this research is to examine the experience and impact of chemotherapy-related fatigue in recently diagnosed pediatric oncology patients. A repeated-measures, within-subjects, mixed (quantitative plus qualitative) design was used to prospectively assess fatigue during early chemotherapy cycles and to compare fatigue to depressive symptoms. Parental interviews collected concurrently were analyzed for descriptions of the child's fatigue and mood states and for strategies to cope with fatigue. Results indicated a significant correlation between fatigue and depression, but qualitative analyses suggested that the 2 phenomena may be unique and distinguishable. Qualitative analyses of parent interviews also identified specific strategies that were frequently used in response to high lev... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312208 Tue, 18 Mar 2008 04:00:00 +0100 1312208 http://www.medworm.com/index.php?rid=1312207&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F79%3Frss%3D1 This article reviews the literature on skeletal complications associated with allogeneic bone marrow transplant and identifies incidence, etiology, symptoms, monitoring, and treatment of specific complications. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312207 Tue, 18 Mar 2008 04:00:00 +0100 1312207 http://www.medworm.com/index.php?rid=1312206&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F2%2F67%3Frss%3D1 Although skin cancer is an easily preventable disease, self-directed prevention behaviors in children are difficult to achieve. The purpose of this article is to evaluate the status of primary prevention interventions and identify gaps in national and international research in order to make suggestions for further intervention design. A comprehensive search of MEDLINE, CINAHL, and PSYCHinfo databases was conducted to collect published research used in this review. The most effective interventions used multicomponent curricula administered over an extended period of time. Younger children were more receptive to interventions than were older children, who had stronger attitudes against sun-protective behaviors. Interventions in Australia have been more successful than interventions in North ... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1312206 Tue, 18 Mar 2008 04:00:00 +0100 1312206 http://www.medworm.com/index.php?rid=1142011&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F1%2F44%3Frss%3D1 This research was conducted at a summer camp for siblings of children with cancer. Participants included 77 siblings (ages 6-17 years) and their parents. Before attending camp, 18 of the siblings had experienced the death of their brother or sister with cancer. Projective measures were administered before attending camp and 3 months after camp. These included the Human Figure Drawing (HFD) and the Kinetic Family Drawing-Revised (KFD-R). Siblings were administered both the HFD and KFD-R; parents were given the KFD-R. On the HFD, siblings' emotional distress scores decreased significantly pre- to postcamp. On the KFD-R, nonbereaved siblings and parents showed significant improvement in family environment scores. Bereaved siblings and parents also showed improvement (although nonsignificant).... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1142011 Thu, 10 Jan 2008 05:00:00 +0100 1142011 http://www.medworm.com/index.php?rid=1142010&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F1%2F34%3Frss%3D1 Although the concept of anticipatory guidance has long been used in general pediatrics to help prepare parents for what to expect in the coming months or year, this educational concept has not been transplanted for use in other contexts. The intervention described in this article uses the principles of anticipatory guidance in an effort to prepare parents of children with newly diagnosed acute leukemia for their upcoming discussions with their child's physician. Parents of children recently diagnosed with leukemia frequently feel overwhelmed and are anxious to discover what can be done to cure their child. By using the abilities of already medically trained oncology nurses and orienting them to conduct an intervention to educate, empathize, and prepare parents for the informed consent conf... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1142010 Thu, 10 Jan 2008 05:00:00 +0100 1142010 http://www.medworm.com/index.php?rid=1142009&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F1%2F24%3Frss%3D1 This article discusses mixed methods terminology, designs, and key design features. Specific areas addressed include the myths about mixed methods research, types of mixed method research designs, steps involved in developing a mixed method research study, and the benefits and challenges of using mixed methods designs in pediatric oncology research. Examples of recent research studies that have combined quantitative and qualitative research methods are provided. The term mixed methods research is used throughout this article to reflect the use of both quantitative and qualitative methods within one study rather than the use of these methods in separate studies concerning the same research problem. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1142009 Thu, 10 Jan 2008 05:00:00 +0100 1142009 http://www.medworm.com/index.php?rid=1142008&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F1%2F14%3Frss%3D1 This study suggests that nurses' perceptions of pediatric oncology phase I clinical trials are diverse and mixed but are more likely to be positive than negative. Improving future treatments, medical benefit, improved quality of life, and hope were cited as potential benefits of phase I clinical trials, but nurses felt that families were hoping for a cure. Toxicities, false hope, and decreased quality of life were perceived as potential negative outcomes. Acting as a patient advocate was viewed as the most important nursing role, and providing information was identified to be the most important purpose of informed consent. Although not statistically significant, data suggest that age, experience, and practice setting may influence nurses' perceptions. Younger or less experienced nurses wer... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1142008 Thu, 10 Jan 2008 05:00:00 +0100 1142008 http://www.medworm.com/index.php?rid=1142007&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F25%2F1%2F7%3Frss%3D1 Long-term survival for children with cancer is often achieved at a considerable cost in terms of medical and psychological sequelae. Although many survivors are well and require only routine follow-up and surveillance, a cohort of survivors require comprehensive management of complex, chronic medical issues by multiple subspecialists. For these survivors, care delivered within the context of an annual visit to a traditional hospital—based late effects clinic or by a primary care physician in the community is often not adequate. A specialized clinic was implemented at The Children's Hospital of Philadelphia that crosses disciplines and provides same-day, same-clinic access to oncology/survivorship, endocrinology, pulmonology, cardiology, nutrition, and psychology. This multidisciplina... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1142007 Thu, 10 Jan 2008 05:00:00 +0100 1142007 http://www.medworm.com/index.php?rid=1023760&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F24%2F6%2F350%3Frss%3D1 This article discusses the role of self-designed questionnaires in simple research studies. Suggestions for designing questions and answers that are adequate measures of the topic of interest are offered. Examples of questionnaires from recent pilot surveys and evaluation projects are presented. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1023760 Tue, 13 Nov 2007 05:00:00 +0100 1023760 http://www.medworm.com/index.php?rid=1023759&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F24%2F6%2F340%3Frss%3D1 This study explores the effect of the CSN role on the nurses' work-related stress using the Stressor Scale for Pediatric Oncology Nurses. A total of 58 nurses participated in this study for a response rate of 86%. The results show that the intensity of work-related stress experienced by nurses in this study is significantly less (P < .001) on shifts staffed with a CSN compared with shifts without a CSN. (Source: Journal of Pediatric Oncology Nursing) Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1023759 Tue, 13 Nov 2007 05:00:00 +0100 1023759 http://www.medworm.com/index.php?rid=1023758&cid=s_32618_27_f&fid=32618&url=http%3A%2F%2Fjpo.sagepub.com%2Fcgi%2Fcontent%2Fabstract%2F24%2F6%2F334%3Frss%3D1 A single-case study approach was used to provide an in-depth examination of the special events that take place in an early adolescent's family as the adolescent attempts to adapt to living with life-limiting cancer. Through symptom control, hope, denial, and the achievement of developmental tasks such as peer group identification, independence, and autonomy, the early adolescent was able to demonstrate positive coping and adaptation. In the context of the Calgary Family Systems Model, the adolescent achieved individual system balance, which in turn enabled his family's systems to balance. The health care professional played an integral role in enabling the adolescent to accomplish his developmental tasks, which translated into facilitating adaptation. (Source: Journal of Pediatric Oncology... Journal of Pediatric Oncology Nursing journals http://www.medworm.com/rss/comments.php?id=1023758 Tue, 13 Nov 2007 05:00:00 +0100 1023758