Journal of Policy and Practice in Intellectual Disabilities via MedWorm.com

Erratum

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin From San Raffaele Foundation and Tosinvest Sanità (No. 21). A New Quantitative Approach of the Evaluation of "Tonic" Cortical EEG Rhythms in Adults With Down Syndrome and in Adults With an Impairment of Awareness—Persistent Vegetative State (PVS)

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Aging in Down Syndrome: Morbidity and Mortality

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

The life expectancy of adults with Down syndrome has increased dramatically over the last 30 years, leading to increasing numbers of adults with Down syndrome now living into middle and old age. Early-onset dementia of the Alzheimer type is highly prevalent in adults with Down syndrome in the sixth decade, and this has overshadowed other important conditions related to aging among adults with Down syndrome. The authors' aim was to update and summarize current knowledge on these conditions, and examine causes of morbidity and mortality in older people with Down syndrome by conducting a systematic review of the published literature for the period: 1993[ndash]2008. They reviewed English-language literature drawn from searches in the electronic databases Medline, CINAHL, and PsycINFO, as well ...

Major Health Risks in Aging Persons With Intellectual Disabilities: An Overview of Recent Studies

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

The authors examined the health-related literature on aging and intellectual disabilities (ID) published since 1999, with specific focus on examining findings on age-associated health risk factors, such as cardiovascular, gastrointestinal, and musculoskeletal system health issues, and age-related oral health. They also examined studies of lifestyle health risks, primarily the contributions to overweight or obesity. Although the review revealed varying differences in the prevalence of health risk factors, significant evidence is emerging that cardiovascular disease is as prevalent among people with ID and is as common a cause of death as in the general population. However, the review showed that the variations in prevalence were culturally dependent. Digestive system problems were evident w...

Frailty vs. Disability Distinctions in People With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

While the extent of research on age-related frailty among adults in general has increased substantially during the past two decades, there has been a void in equivalent research with respect to adults with intellectual disabilities (ID). While frailty and disability have been seen as different, but overlapping, concepts in the field of ID, the concept of frailty is missing an empirical foundation. The authors define the concept of frailty as applied to adults with ID, using indicators based on Fried's definition (i.e., a physiological state of increased vulnerability to stressors that follows from decreased physiological reserves and dysregulation of a physiological system) and Rockwood's frailty criteria (multisystemic instability, change over time, allowance for heterogeneity, associatio...

Carer Knowledge and Experiences With Menopause in Women With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

This study investigated carer knowledge of how menopause affects women with ID under their care and how they may help them to cope with it. One-to-one interviews were undertaken with 69 carers (7 male/62 female) from a range of backgrounds, all with current responsibility for the care of one or more pre-, peri-, and/or postmenopausal women with ID. Carers reported difficulty in disentangling the psychological and physical consequences of the menopause from behaviors and symptoms arising from other causes. There was general recognition of the transitional importance of menopause and a widespread acknowledgment of the resilience that many women with ID show in coping with it. However, carers emphasized the need for health resources to be better tailored to the women's needs and for more rele...

Reliance on Carer Reports of Early Symptoms of Dementia Among Adults With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

As clinicians often rely on carer reports to identify adults with intellectual disabilities (ID) with early signs of dementia, this study focused on carer-reported symptoms to ascertain whether carer reports of decline in everyday function would be a more effective screening method to detect possible cases of dementia than reports of memory decline in older adults with ID. Subjects were 154 participants who were reassessed along with their carers two to three years after baseline. A questionnaire for carer-reported change in everyday function and the Dementia Questionnaire for Persons with Mental Retardation (DMR) were used to assess carer views of everyday function and memory. The diagnosis of dementia was confirmed by two psychiatrists working independently. Participants who developed de...

Caregiving and Adults With Intellectual Disabilities Affected by Dementia

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

Authors conducted a systematic review of the available Dutch, English, and German language literature for the period 1997[ndash]2008 on the current knowledge on social-psychological and pharmacological caregiving with respect to older adults with intellectual disabilities (ID) affected by dementia. Authors note that caregiving occurs on a personal level between the person and their carer and organizational and interorganizational supports have an impact on the quality of care provided. However, the lack of robust evidence to meet the needs of adults with ID affected by dementia means that service organizations often have to extrapolate from the evidence base of dementia care practices in the general population. The review showed that concerns over staff burden, behavioral interventions, an...

Siblings of Adults With Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

As siblings play an increasing role in the lives of people with intellectual and developmental disabilities as a result of the longer lifespan of this population and the aging of their parents, more investigative work in this area is warranted. To lay a foundation for this, the authors reviewed the English-language literature on siblings of adults with intellectual and developmental disabilities, focusing on three main questions: (1) what are the psychosocial outcomes of having a sibling with an intellectual and developmental disabilities on the sibling without a disability?; (2) what factors relate to the nature of the sibling relationship?; and (3) what factors relate to future planning, including expected and future relationships when parents can no longer provide care? This literature ...

A Five-Country Comparative Review of Accommodation Support Policies for Older People With Intellectual Disability

Journal of Policy and Practice in Intellectual Disabilities — Wed, 03 Mar 2010 00:00:00 +0100

This article compares the development and implementation of accommodation support policies for people aging with intellectual disabilities in five liberal welfare states. It describes the limited development of policies in this area and suggests possible reasons why this is the case. A review of the peer reviewed and grey or unpublished advocacy and policy literature on aging policies for people with intellectual disability was conducted which covered Australia, Canada, Ireland, the UK, and the U.S. Despite consistent identification of similar broad policy issues and overarching goals, little progress has been made in the development of more specific policies or implementation strategies to address issues associated with accommodation support as people age. Policy debates have conceptualiz...

Aging . . . A Continuing Challenge

Journal of Policy and Practice in Intellectual Disabilities — Mon, 01 Mar 2010 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Minutes

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin From San Raffaele Foundation and Tosinvest Sanità (No. 20). A New Protocol for the Quantitative Evaluation of Graphic Gesture: First Application in Subjects With Parkinson's Disease

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Achievement and Inclusion in Schools

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Defining "Sexualized Challenging Behavior" in Adults With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

Inappropriate sexual behaviors are a subset of challenging behaviors that limit the community integration of individuals with intellectual disabilities. Despite the stigmatizing effect of problematic sexual behavior, research efforts in this area have been limited and often used narrow prospective definitions. As such, research has been limited to a focus on "sexual offending" and "abuse," terms which are often criticized in their applicability to people with intellectual disabilities given their connotations of criminal intent or insight. The authors propose adopting the term "sexualized challenging behavior" and define it by using empirical methods. Using a qualitative methodology, they examined a six-month sample of service-based documentation reporting sexual behaviors that were proble...

Experience in Cambodia With the Use of a Culturally Relevant Developmental Milestone Chart for Children in Low- and Middle-Income Countries

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

The awareness and knowledge of developmental milestones among health practitioners need to be enhanced to better enable early identification and intervention with children who have delays in development, intellectual deficit, and developmental disabilities and are residents in low-and middle-income countries. To meet this end, a simple one-page check-off developmental milestone chart for age groups birth to eight years was developed as an outgrowth of a training program for pediatricians in Cambodia. Expected milestones for gross motor, fine motor, language, and social development were charted for each age group, and then validation trials were performed in an outpatient clinic over two years. It was observed that 25% and 31.5% of children failed to achieve one or more age-appropriate deve...

Health Status and Activities of Daily Living and Walking in Older People With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

This study's aim was to describe the association between health status and activities of daily living (ADLs) in older adults with intellectual and developmental disabilities (I/DD). Health status and level of independence associated with ADLs and walking were surveyed in a cohort of 1,371 adults over age 40 years from two regions of upstate New York using the Rochester Health Status Survey. Multiple logistic regression analyses were conducted to assess the association between number of organ system disorders (OSDs) and level of independence in eating, bathing, dressing, toileting, and walking. Increasing numbers of comorbidities correlated with impairments in ADLs and walking, which were independent of increasing age. The severity of I/DD was correlated with impairments in some ADLs regard...

Eight Years of Specialist Training of Dutch Intellectual Disability Physicians: Results of Scientific Research Education

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

Training in scientific research methods and skills is a vital part of Dutch specialist training in intellectual disability medicine. The authors evaluated results of such training at one Dutch university medical facility that had an obligatory research program involving projects conducted by the physicians-in-training (topics, teamwork, acquired competencies, and products). Since 2000, 28 research projects were started, and 24 of them were completed by teams made up of two to five trainees. Project topics included syndrome-related comorbidity (n = 8), lifestyle (n = 2), specific medical conditions (n = 5), diagnostic methods (n = 5), and care by intellectual disability physicians (n = 8). Sixteen of the study designs were cross-section observational, five were retrospective file reviews, o...

Developing an Education Intervention for Staff Supporting Persons With an Intellectual Disability and Advanced Dementia

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

Generally, staff working in settings that provide care for adults with intellectual disabilities (ID) have not received specific education with respect to extended care for terminal illnesses or late-stage dementia. Equally, staff working in specialist palliative care often are not familiar with the unique issues of supporting persons with intellectual disabilities affected by dementia. To understand care concerns with respect to supporting persons with ID and advanced dementia, and to develop, deliver, and evaluate an educational intervention with staff in ID settings and specialist palliative care services, 14 focus group interviews were conducted with staff across six ID services and one specialist palliative care provider in the greater Dublin (Ireland) area. Qualitative descriptive an...

Choices for People With Intellectual Disabilities: Official Discourse and Everyday Practice

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

Official policy talk of "choice" for people with intellectual impairments tends toward fundamental life choices (e.g., who to marry, what job to work at) at the expense of the minor but more frequent concerns of daily living (when to wash, what to eat, where to go in the evening). Statutes and mission statements are unspecific about how any such choices, big or small, are, or should be, offered. They are also silent on the relation of exercising "choices" to institutional imperatives. To examine these particulars the authors undertook an examination of how choice policies are actualized in day-to-day activities in two group homes. Data were drawn from a broader ethnographic study of residential services for people with intellectual disabilities serviced by National Health Service Trust in ...

Solution-Focused Brief Therapy With Persons With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

Solution-Focused Brief Therapy (SFBT) is a short-term, goal-focused, and client-directed therapeutic approach that helps the client construct solutions rather than dwell on problems. SFBT has rarely been used with clients with intellectual disabilities (ID). The authors discuss how this relatively new form of therapy in an adapted form can be made suitable for clients with ID. The assumptions of this therapeutic approach, the types of problems and settings addressed by SFBT, and a description of the interventions used in SFBT are considered. Indications and contraindications for SFBT and empirical data on the effectiveness of the therapy are discussed both with regard to clients with or absent ID. The authors suggest that tailoring SFBT to clients with ID can be done by using simple langua...

Including Adults With Intellectual Disabilities in Research: Scientists' Perceptions of Risks and Protections

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

Social and cognitive characteristics of adults with intellectual disabilities (ID) place them at risk for inappropriate inclusion in or exclusion from research participation. As we grapple with how to include adults with ID in research in order to secure their right to contribute to scientific advancements and be positioned to derive benefit from ensuing knowledge, it is critical to consider scientific gatekeepers' perspectives on risks of and protections for including adults with ID in research. We surveyed 199 Institutional Review Board members and intellectual disability researchers in the United States to identify their perceptions of specific risks and necessary protections in (hypothetical) research studies. The research studies varied as to whether they included adults with ID in th...

A Personal Note on Eunice Kennedy Shriver—A Legacy in Ireland

Journal of Policy and Practice in Intellectual Disabilities — Tue, 08 Dec 2009 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

In Memoriam: Eunice Kennedy Shriver

Journal of Policy and Practice in Intellectual Disabilities — Tue, 01 Dec 2009 00:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Errata

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Understanding Learning Disability and Dementia: Developing Effective Interventions

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 19). A Brief Report on Research Activities at the Scientific Research Institute

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Effects of the Changes in Legislation Governing Offenders with Intellectual Disabilities in Norway: A Descriptive Study

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

A recent change in legislation in Norway redefined which persons with an intellectual disability (ID) are considered as "offenders" within the judicial system. After that change, the number of adults with ID convicted of a crime and subject to forensic services decreased from 27 in 2002 to 13 in 2006. Crimes considered under the statue include those of a violent nature, sexual offenses, or life-threatening arson. Persons falling under provisions of the statue include those identified as non-responsible with intellectual functioning corresponding to moderate or severe ID (IQ < 55). The new statue includes a provision of sentence to mandatory care (MC) for those with a high risk of recidivism. The aim of this study was to compare offenders with ID adjudicated before and after the legislation...

Impact of Social Advocacy on Updating Incapacity Determination Procedures for People With Intellectual Disabilities in Poland

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

The authors discuss the antecedents to recent changes in Poland's guardianship laws. These include a review of: (1) historical procedures in place for adjudicating incapacity; (2) research carried out in 2000 on the initiative of the Polish Association for Persons with Mental Handicap (PAPMH) on judicial practices in Polish courts with respect to adjudicating persons with intellectual disabilities (ID) as legally incapable; and (3) a successful lobbying campaign conducted by the PAPMH to institute changes in the law. The research involved a review by law students of 393 cases of capacity adjudications conducted between 1998 and 2000 in six district courts in various parts of Poland. The review revealed extensive irregularities in judicial practice, including that: (1) decisions about legal...

Autonomy Markers in Brazilian Adults With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

The objective of the study was to investigate the relationship between autonomy markers in adult people with intellectual disabilities (ID) and variables such as intelligence quotient (IQ), early aging, and literacy. Participants were 47 adults with ID (33 men; aged 28[ndash]58 years with nonspecific etiology, 34 literate). All participants were trainees at the Center for Training of Capacity and Orientation for Employment at Associação de Pais e Amigos dos Excepcionais de São Paulo, São Paulo State, Brazil. They were divided into two age groups: younger (n = 27, mean age 31.85; ±2.23), and older (n = 38, mean age 41.84; ±5.54). They were administered intelligence scales twice, and answered questions related to social participation, community integration, and choice-making; the perce...

Diverse Conceptualizations of Deinstitutionalization as a Barrier to the Implementation of Discharge Policies

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

There are various reasons why the regular movement of people with intellectual disabilities from the institution to the community has been impeded in the United Kingdom. Some of these include the lack of a formal national policy, the difficulty of forming joint planning groups, fiscal difficulties, the lack of appropriate accommodation, inadequate development of services in the community, and resistance from the community. Using a case study approach, the author undertook to identify the particular barriers that arose in one specific discharge program, and to produce guidelines for avoiding such difficulties in future projects. Data were collected by means of interviews, and a grounded theory approach was employed for their analysis. It was found that the main obstacles to deinstitutionali...

Quality of Life of Australian Family Carers: Implications for Research, Policy, and Practice

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

As part of an international, multicentered project, the burden of care, health, and subjective well-being experienced by select Australian family carers supporting a relative with disability at home were investigated. Some 448 family carers residing in New South Wales and Tasmania completed a battery of instruments, including a self-report demographic survey, the Family Caregiver Burden Inventory, the General Health Questionnaire, and the Personal Wellbeing Index. Respondents were predominantly females (mean age = 48 years), married, and supporting a son or daughter with an intellectual disability (mean age = 18 years). Although caring for their family member was not perceived to be a burden, respondents reported notable limitations on their social networks and social activities. They repo...

Current and Future Concerns of Older Parents of Sons and Daughters With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

Increasingly greater numbers of older parents are providing care at home for their sons and daughters with intellectual disabilities. As attention needs to be paid to the supports needed by such families to assist them with their caregiving activities, it is prudent to identify the types of supports that will be needed when the parents are no longer able to provide care. Working with a cohort of older parent carers in Prince Edward Island, Canada, the authors undertook to examine older carer concerns and planning issues. Using both qualitative and quantitative methods to explore the key issues that older parents of sons and daughters with intellectual disabilities are currently facing and their preferences for care in the future, the authors initiated a population-case-finding process, und...

Psychosocial Factors Affecting Adults With Intellectual Disabilities With Psychiatric Disorders in Cali, Colombia

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

The objective of this study was to describe the psychosocial factors associated with the comorbidity between ID and psychiatric disorder of adults in the city of Cali, Colombia. Subjects were 50 dyads consisting of a carer and a person with ID. The Caregivers Questionnaire and the Integral Quality of Life Scale were adapted for use in the study. The analysis of information was based on three factors: person, family, and society. In the case of the personal factor, an adequate level of physical well-being and a good level of self-care were found in more than 60% of the adults with dual diagnosis, good adherence to treatment in 82%, and medium satisfaction in the individual-context relationship in 54%. With regard to the family factor, a high level of satisfaction of needs (84%) was found. G...

Care and Service Trajectories for People With Intellectual Disabilities: Defining Its Course and Quality Determinants From the Client's Perspective

Journal of Policy and Practice in Intellectual Disabilities — Mon, 31 Aug 2009 23:00:00 +0100

Care and service trajectories are identifiable routes through service systems that consist of all steps that people with intellectual disabilities (ID) and their families have to take to realize the care and services they need. Trajectories are especially prominent during the transitions from children's services to adult services. Within a service system in Noord-Brabant (in the Netherlands), the authors examined the course of such trajectories and their main bottlenecks and sought to identify their quality determinants. The first research question was addressed by an exercise in document analysis and the holding of semistructured interviews with key informants within the healthcare sector specialized for serving people with ID. A second research question was addressed by means of a litera...

IASSID Fellows

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Call for SubmissionsSpecial Issue on Transition & Employment

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Abstracts from the 2nd IASSID Asia-Pacific Regional Conference Singapore, June 24–27, 2009

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Challenging Behavior: A Barrier to Inclusion?

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

Arguably, the most important outcome measure for services to people with intellectual disabilities is quality of life. Quality of life has been defined in numerous ways and may consist of many aspects, including physical, material, and emotional well-being, as well as interpersonal relationships, personal development, self-determination, social inclusion, and civic rights. However, the most important aspect is social inclusion. People with intellectual disabilities who show challenging behavior, however, often make other people uncomfortable so that social inclusion is more difficult, and evidence suggests that both children and adults with intellectual disabilities and challenging behavior (and their families) have poorer quality of life and more restrictions in their lives than others wi...

Challenging the Myths and Redressing the Missteps in Family Research

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

Families of children with disabilities have been the subject of a number of myths, some of which have been introduced and promulgated by researchers influenced by cultural norms that may incline them to ask questions in particular ways and which may result in the institutionalization of ideas and methods, rather than subjecting established beliefs and perspectives to scrutiny. Only relatively recently, for example, has the conviction that only negative consequences will be experienced by families with a child with a disability been challenged. Research questions and instruments or approaches must allow for positive experiences and outcomes. In addition, often family research has failed to recognize the importance of cultural differences. One example of this can be found in assumptions of t...

Possibilities for an Inclusive Society in Singapore: Becoming Inclusive Within

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

The envisioning of Singapore as an inclusive society has witnessed the most progressive systemic and policy developments concerning people with disabilities in recent years. The building of "heartware" in society (as in the will, values, and attitudes of its citizens) in order to realize the vision of an inclusive society, however, requires both change from within and change from without. For the vision of an inclusive society to be realized, an inclusive system needs to be upheld and supported by people who are inclusive within. The seeds for the possibilities of change in society toward inclusivity of diverse others (e.g., persons with intellectual disabilities) lie within the individual and imply that at the core of such change is personal interior growth and transformation. The sustain...

Persons With Intellectual and Multiple Disabilities in Japan

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

The author outlines the history, current situation, and the future of the care and support system for people with intellectual and multiple disabilities in Japan. He describes how the service system has been shaped from within by Japanese legislation dating back to the Child Welfare Act of 1947, and how international events such as the "International Year of Persons with Disabilities" have influenced both legislation and service development in Japan. The author also outlines how researchers and lecturers are contributing to the development of services and educating the workforce, which provides the critical supports for people with disabilities in Japan. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Healthy Persons With Intellectual Disabilities in an Inclusive Society

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

Persons with intellectual disabilities (ID) have twice as many health problems than the general public. The author discusses evidence-based research on prevalence and best treatment of primary and secondary health problems in persons with ID. Citing the pan-European Pomona project, European data were collected on training for health professionals regarding health of persons with ID. International cooperation in research and transport of expertise through exchange of students and professionals in this field are recommended. (Source: Journal of Policy and Practice in Intellectual Disabilities)

The Aging Dilemma: Is Increasing Longevity Among People With Intellectual Disabilities Creating a New Population Challenge in the Asia-Pacific Region?

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

The Macau Declaration on Ageing for Asia and the Pacific and the Plan of Action on Ageing for Asia and the Pacific provide a framework for defining the needs of the aging population in the Asia-Pacific region. It also served as a stimulus for planning and public commitment to addressing the needs of the region's elderly population, including the needs of each of the nation's adult and aging populations of persons with intellectual disabilities. Within the Asia-Pacific region, the diversity of cultural and economic interests often combines to define how services are provided to their aging populations and both how disabilities are perceived and how national policies reflect these interests in serving people with disabilities. Reports issued by the World Health Organization on improving long...

ICF-CY: A Universal Tool for Documentation of Disability

Journal of Policy and Practice in Intellectual Disabilities — Tue, 09 Jun 2009 23:00:00 +0100

The International Classification of Functioning, Disability and Health[mdash]ICF (ICF-CY) conceptual framework offers a new paradigm and taxonomy of human functioning disability, which can be used to guide holistic and interdisciplinary approaches to assessment and intervention. In settings serving children, youth, or adults with disabilities, the ICF-CY can provide comprehensive documentation of its involvement in special education and rehabilitation. Implementation of the ICF-CY in early intervention, special education, and habilitation settings should build on the adoption of the dimensional framework for practice and corresponding applications in assessment and intervention practices. An important priority in such applications is the identification and development of instruments and as...

Creating Possibilities for an Inclusive Society: A Commentary on the Second Asia-Pacific Conference

Journal of Policy and Practice in Intellectual Disabilities — Sun, 31 May 2009 23:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Diagnostic Manual-Intellectual Disability: A Textbook of Diagnosis of Mental Disorders in Persons With Intellectual Disability

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Person-Centered Planning and Care Management With People With Learning Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Quality of Life: From Concept to Future Applications in the Field of Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

The authors consider conclusions reached with respect to quality of life (QoL); these are examined in terms of both the past and present developments and within the context of three major areas. These three are (1) application of QoL through support and intervention; (2) the application to family QoL and the development of a working model; and (3) application of QoL for policy and evaluation. These conclusions are examined in relation to implications for public policy in terms of support and intervention, measurement and evaluation, with particular focus on a greater understanding and acceptance of the implications and structure involved in the QoL model and the importance of family QoL. The authors maintain that this should entail the development of applications that are empirically based...

Utility of Logic Models to Plan Quality of Life Outcome Evaluations

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

Quality of life is widely accepted as an important concept in the evaluation of health and social services provided to persons with intellectual disabilities. While quality of life has been studied as a service outcome and measure of program improvement, its application to multiple levels of program delivery and evaluation remain unclear and can be difficult for community-based agencies that lack resources. An approach using program logic models and including program staff can build evaluation capacity. Logic models can be used to link service components with relevant quality of life outcomes at short-term, intermediate, and long-term points in service delivery. The models can then guide the development of evaluation plans. A case example of how this approach is being used at a service age...

Using Quality of Life to Evaluate Outcomes and Measure Effectiveness

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

Evaluating the outcomes achieved by service providers who assist people with intellectual disabilities is extremely important in terms of ascertaining whether service providers achieve their goals. Furthermore, knowledge of the outcomes achieved by service providers better equips those charged with managing them to make strategic decisions to fulfill their accountability obligations for the best use of limited resources. The authors provide support for the emerging view that quality of life is an outcome measure that can be utilized to assess service providers' performance. To do this they modified a performance measurement framework to illustrate how quality of life can be incorporated in a comprehensive analysis of the outcomes achieved by various stakeholders of the service provider. Th...

Family Quality of Life Before and After Out-of-Home Placement of a Family Member With an Intellectual Disability

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

The effect of out-of-home residential placement on families has been previously studied. However, no study has examined this issue through the lens of "family quality of life" (FQoL). The aim of this study was to produce a picture of FQoL among families with a member with an intellectual disability (ID) who has multiple diagnoses (i.e., an additional condition such as a behavioral or emotional disturbance). FQoL before and after residential placement was examined. Sixteen family carers with family members with an ID participated in an in-depth interview focusing on five areas of FQoL: stress, coping, emotional impact, family relationships, and overall FQoL. The authors found that most families reported positive emotional changes after the placement occurred, except for lingering guilt and ...

Family Quality of Life: Moving From Measurement to Application

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

Noting the absence of sound theoretical underpinnings for family quality of life (FQoL) research and work, the authors note that, to guide FQoL practice, research findings must be schematically organized so as to enable practitioners to implement empirical findings effectively. One way to meet this goal is to introduce a theoretical model that clearly displays and describes the relationships among variables that explain FQoL. Thus, the authors propose a theory of FQoL designed to explain how various concepts[mdash]systems, performance, individuals, and family units[mdash]influence variations in FQoL. In defining each of the concepts, they describe the theory's application within the context of a family vignette, illustrating how professionals might apply theoretical propositions to their p...

Family Quality of Life Empowered by Family-Oriented Support

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

Professional services for persons with intellectual disabilities (ID) have begun to attach more importance to their environment. The concept of (family-related) quality of life proved to link very well with this idea and lent itself to constructing and evaluating services. One outcome was the emergence of equal partnerships between families, service providers, and other parties in the community. Within this context, the authors explored and described positive practices in supporting young adults with IDs by realizing their personal future plans based on partnerships, the concept of quality of life, and community support. Nine families were followed over a 2-year period (2004[ndash]2006). Face-to-face interviews and a survey were conducted with young adults, family members, and professional...

Choice as an Aspect of Quality of Life for People With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

Choice, a concept included in the quality of life approach, is frequently referred to in quality of life and related literature, but its components have not been described clearly. Drawing on conceptual considerations and research reports, the authors review and extend what is known about choice, and set out a conceptualization of its two main components: available opportunities and choice-making. The most important characteristics of opportunities are breadth and familiarity, and the most important characteristics of choice making are freedom, initiative, and skill. The authors consider the application of choice to supports and services by discussing numerous practical issues and providing suggestions for application. These are summarized as an overall four-step strategy for moving forwar...

Survey Outcomes and Cross-National Comparisons of Quality of Life With Respect to People With Intellectual Disabilities in Taiwan

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

As studies of the quality of life (QoL) of adults with intellectual disabilities (ID) in Taiwan have been limited, the authors assessed how Taiwanese adults with ID experience their QoL, including comparisons with their counterparts in other countries. The study involved administering the Cross-Cultural QoL Indicators Survey and the Quality of Life Questionnaire in 2004 and 2005 to a total of 481 adults with ID who either were living with their family or residing within a facility. Results indicated that the domain of "social inclusion" was the lowest for both adults using residential services or living with family. In addition, Taiwanese residents with ID have lower levels of overall QoL, particularly among those living in institutions; although they were easily satisfied with their lives...

Quality of Life: Its Application to Persons With Intellectual Disabilities and Their Families—Introduction and Overview

Journal of Policy and Practice in Intellectual Disabilities — Wed, 18 Mar 2009 04:00:00 +0100

The authors provide an overview of quality of life (QoL) conceptualization in the field of intellectual disabilities (ID), provide background information, and set an organizing framework for presenting concepts and concrete ideas for applying QoL. This framework is useful for three broad categories of application in the field of ID that form the application of QoL to individuals, groups of individuals, and to families. QoL thus can be used as a sensitizing notion that gives a sense of reference and guidance from the individual's perspective, focusing on the person and the individual's environment and provides a framework for conceptualizing, measuring, and applying the QoL construct. The applications also frame evaluation strategies for QoL research. The authors conclude that there is a ne...

Guest Editorial on Quality of Life and Its Application

Journal of Policy and Practice in Intellectual Disabilities — Sun, 01 Mar 2009 05:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Attitudes of Community Developmental Services Agency Staff Toward Issues of Inclusion for Individuals With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Thu, 27 Nov 2008 08:04:09 +0100

This study highlights the need for education and training targeted at particular "at-risk" staff groups in order to ensure the successful implementation of the goals of the inclusion movement. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 18). A New Research Project in Rome Between San Raffaele Research Institute and Faculty of Education at the Università degli Studi Roma Tre

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Minutes

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Minutes

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

A Comprehensive Guide to Intellectual and Developmental Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Brief Report: State of the Science Symposium on Aging and Developmental Disabilities1

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

The overall goal of the 2007 State of the Science Symposium on Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living (held in Atlanta, Georgia, U.S.A.) was to increase the understanding and definition of how to improve the health, psychosocial well-being, and community participation of older adults with intellectual and developmental disabilities. The symposium consisted of four main tracks (neurodevelopmental conditions; health care services, health promotion needs, and health literacy; family support and intergenerational caregiving; and environmental barriers and supports to community living). The symposium's participants recommended a greater focus on a research agenda that would serve to increase the knowledge on...

Enhancing Personal Outcomes: Organizational Strategies, Guidelines, and Examples

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

Education and rehabilitation programs in the field of intellectual disabilities are developing specific strategies related to demonstrated personal outcomes, quality of life (QOL)-related services and supports, evidence-based practices, and quality improvement. The purpose of this article is to summarize key aspects of these strategies within a two-component framework: the concept of QOL and systems thinking. Based on our collective experiences and published literature, four specific strategies are presented and discussed: mental models, assessment, service delivery practices, and quality improvement (QI). Essential guidelines for the successful implementation of these strategies are then presented, along with an exemplary application of each strategy. Each example shows the significant ro...

Colleagues' Perception of Supported Employee Performance

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

The authors investigated whether supported employees are perceived on an equal basis within the workplace by their nondisabled worker colleagues. Three types of social relationships were considered in a workplace context ("work acquaintances,""work friends," and "social friends") in order to examine whether the types of social relationships that develop between supported employees and their coworkers may reveal information regarding the level of equality between them and the level of integration enjoyed by the supported employees. Semi-structured interviews were held with coworkers of supported employees and were used to determine the extent to which supported employees become socially integrated. Specifically examined was the progression from "work acquaintances" to "work friends" and ult...

Psychologists' Clinical Practices in Assessing Dementia in Individuals With Down Syndrome

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

This study set out to examine the clinical practice of one key professional group, namely clinical psychologists. A national survey of clinical psychologists in ID services in the United Kingdom was undertaken. Detailed descriptions of clinical practice were obtained from 64 psychologists. Responses were further explored in focus groups. The results suggest marked variability in practice, assessment methods, and explanations clinicians give to service users and carers. Clinicians described struggling with the ethics and practicalities of how to present dementia assessments to individuals with ID and highlighted a need for more research, debate, and guidance. They also noted numerous shortfalls in service provision once aging individuals with ID show signs of dementia. Further research and ...

Relationship Between Mobility Limitations and the Places Where Older Adults With Intellectual Disabilities Live

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

As the population ages, mobility limitations are associated with increased mortality and negative health-related states both in the general population and among people with intellectual disabilities. The influence of mobility limitations upon the lives and lifestyles of people with intellectual disabilities remains poorly understood. Specifically, the extent to which mobility limitations might limit residential options for individuals and families has not been evaluated. To determine the relationship between mobility limitations and place of residence for adults with intellectual disabilities, age 45 and older, a proxy-response telephone survey was completed for 128 adults with intellectual disabilities in Southeastern Ontario. A participant's place of residence was categorized as being "h...

Adaptation of Flemish Services to Accommodate and Support the Aging of People With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

The authors attempted to find out to what extent and in which ways, in Belgium, have Flemish services for people with intellectual disability adapted to the specific needs of aging people. A study was undertaken and a questionnaire was developed to address the following research topics: (1) accommodations and personnel, (2) staff working methods, and (3) staff views and attitudes. The questionnaire was completed by 66 coordinating staff members in as many facilities. At the time of our study, these services supported 310 (27%) persons with Down syndrome age 40 years and older and 833 (73%) persons with intellectual disability (other than Down syndrome) age 55 years and older. Adaptations in accommodation and personnel management were obvious in the majority of the participating services. T...

Public Special Services Provided to People With Intellectual Disabilities in Sweden: A Life-Span Perspective

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

This study describes public special services, support, and health care provided to an administratively defined county sample of people with intellectual disabilities from early childhood to adult age. Comparisons were made on the variables year of birth, sex, and assessed level of intellectual disabilities in 1974. Information was obtained from case files and included the period from year of birth of the participants (between 1959 and 1974) to 2005. All participants were provided public special services, support, and health care either periodically or throughout the study period. Changes in legislation were reflected in the type of services, support, and health care provided to the target group. Type and amount of special services and support were related to year of birth. Only a few diffe...

Relationships Among Risk, Sense of Coherence, and Well-Being in Parents of Children With and Without Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 26 Nov 2008 05:00:00 +0100

The authors studied the nature and function of the relationships of the comparative level of risk, sense of coherence (SOC), and well-being, over time, in mothers and fathers of preschool children with and without intellectual disabilities (IDs). The hypothesis that SOC functions as a moderator between risk and well-being was tested. Parents of children with IDs (mothers: n = 62 (46 at follow-up) and fathers: n = 49 (37 at follow-up)) and control parents (mothers: n = 178 (131 at follow-up) and fathers: n = 141 (97 at follow-up)) answered self-report measures on risk factors (i.e., child behavior problems, negative impact on the family and socioeconomic situation) and sense of coherence. Well-being and quality of life were used as outcomes, and were measured at baseline and at a one-year f...

In Memoriam: Kenneth A. Day (1936–2008) Consultant Psychiatrist

Journal of Policy and Practice in Intellectual Disabilities — Fri, 29 Aug 2008 08:47:08 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin From San Raffaele Foundation and Tosinvest Sanità (No. 17). Electroencephalogram in Children and Adolescents With Down Syndrome

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

International Association for the Scientific Study of Intellectual Disabilities (IASSID) Meetings 2009

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Gerontology International Synthesis Conference—India 2009

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

White Book on Physical and Rehabilitation Medicine in Europe

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Using Medication to Manage Behavior Problems among Adults With An Intellectual Disability

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Getting IT: Using Information Technology to Empower People with Communication Difficulties

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

(Source: Journal of Policy and Practice in Intellectual Disabilities)

Brief Report: Applying an Indicator Set to Survey the Health of People With Intellectual Disabilities in Europe*

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

This report gives an account of applying a health survey tool by the Pomona Group that earlier documented the process of developing a set of health indicators for people with intellectual disabilities in Europe. The Pomona health indicator set mirrors the much larger set of health indicators prepared by the European Community Health Indicators group for the general population in Europe. The 18 indicators are classified under four categories: demographic characteristics, health status, health determinants, and health systems. After 3 years of collaborative project activity, key areas have been identified to heighten the visibility of people with intellectual disabilities in the public health domain so as to address evident health inequalities or disparities. (Source: Journal of Policy and P...

Influences on Mothers' Employment When Children Have Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

Empirical research has highlighted the constraints on mothers' workforce participation when children have disabilities, but the policies and associated strategies needed to address these issues have received less attention. Greater attention to explanatory theory and associated research is needed. The authors' paper identifies major explanatory concepts in studies of women's workforce participation, and examines the extent to which these have been tested in studying the workforce participation of mothers of children with disabilities. They also identify constructs and empirical research findings from the latter body of research that have implications for theories of all women's workforce participation. The analysis demonstrates that there are many potentially relevant constructs from theor...

"Healthy Start." A National Strategy for Parents With Intellectual Disabilities and Their Children

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

Parents with intellectual disabilities, like all other parents, need support with child rearing. Often this support comes from family and friends, but in the case of parents with intellectual disabilities, they are more likely to have to rely on the service system. Research from a number of countries demonstrates that there is limited system capacity to support these parents. There are few appropriate services, and practitioners are generally ill-equipped to meet the parents' particular learning and support needs. In response, the Australian government has funded a capacity-building model known as Healthy Start: A national strategy for children of parents with intellectual disabilities, as part of its Stronger Families and Communities Strategy. This paper presents this model for building s...

Demographics of African-American vs. European-Heritage Mothers of Newborns With Down Syndrome

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

This study compared 144 African-American mothers with 726 European-heritage mothers of newborns with Down syndrome using official birth records in one American state from 1990 through 2002; outcome measures included maternal age at infant's birth, education levels, marital status, and neighborhood median family income. Compared with European-heritage mothers, African-American mothers of newborns with Down syndrome were of lower socioeconomic levels and were younger, with many more African-American (vs. European-heritage) mothers giving birth at 23 years or younger (37.5 vs. 22.8%). In both groups, the young mothers (i.e., [le]23 years) showed the highest percentages of women who had not graduated high school and who were unmarried. As one of few studies focusing on ethnic-racial issues in ...

New Public Management and Public Services for People With an Intellectual Disability: A Review of the Implementation of Valuing People in England

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

Public policy for people with an intellectual disability has been shaped since 1945 by universalistic ideas of human rights and social inclusion. These universalistic ideas are increasingly under challenge from consumerist ideas, which is reflected in public policy in the New Public Management (NPM). NPM involves a critique of poor coordination and quality in public services, and proposes the enhancement of consumer choice through a greater diversity of providers and market mechanisms to allow consumers to select between them, partnership arrangements to improve coordination, and target-setting and monitoring by governments. NPM has been widely applied internationally in the reform of public services, and has been implemented for services for people with an intellectual disability in Engla...

Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults With Intellectual Disability

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

This study focused on assessing whether such risk factors are being identified in adults with ID who are receiving their healthcare in community settings, and comparing the rates of risk factors and appropriate preventive interventions with a sample of adults without ID from the same community. OS/O rates and CHD risk factors were ascertained in a sample of 100 adults with ID from a medical chart review. All participants were residing in group homes in Monroe County, New York. These rates were compared with age-peer rates in the local general population. In addition, physician practices regarding weight and CHD risk factors were compared in the two study groups. As expected, rates of OS/O were high in both groups. However, rates of obesity were proportionally higher in adults with ID. Hype...

To Test or Not to Test? Metabolic Testing in Adolescents and Adults With Intellectual Disability

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

In order to add to the knowledge on adult phenotypes of metabolic disorders associated with intellectual disability (ID) and to evaluate criteria for recommending metabolic testing of adolescents and adults with unexplained ID, the authors analyzed retrospectively the outcome of metabolic investigations performed during a 10-year period on 256 people with ID aged 16 years or older from 245 families. A metabolic disorder was found in 13 people from 10 families, in some cases only after a second investigation. One diagnosis (homocystinuria) would have been missed if clinical selection had been performed. The present cases illustrate a broad clinical spectrum. The authors propose an adapted list of clinical findings that may indicate the need for metabolic testing of adolescents and adults wi...

Aggression, Sociability, and Roommate Friendship: New Findings Translated Into a Resource for Self-Determined Choices

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

Many individuals with intellectual disabilities (ID) live with others, but little is known about roommate compatibility, and there are no resources available to assist in the selection process. People with ID and those who support them need practical information in order to make more informed and therefore better choices. Self-determination also should play an increased role in this complicated choice. This paper provides a practical, data-based resource that can be incorporated into a self-determined process of roommate selection. We conducted two studies, uncovered new information, and translated the findings into something that individuals and their supporters can use. The first study examined data from a community sample. In the second investigation, we replicated and expanded key find...

Outcomes Important to People With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Thu, 28 Aug 2008 04:00:00 +0100

An emphasis on the outcomes of health and social care services has become increasingly apparent within public policy in the United Kingdom. Alongside this, working in partnership has been a key theme, despite a relatively underdeveloped evidence base. Of central importance, however, must be whether directives toward partnership working are delivering improved outcomes, and in particular, the outcomes that are valued by service users. The authors describe a project that sought to identify the outcomes important to people with intellectual disabilities, and where possible, whether partnerships delivered these outcomes. The research was primarily based on interviews with service users and carers, and involved people with intellectual disabilities as both researchers and research subjects. The...

Editorial: Intellectual Disability in a Global Context

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 18:43:05 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 79-80, June 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Book Review: Sensory Perceptual Issues in Autism and Asperger's Syndrome. Different Sensory Experiences—Different Perceptual Worlds

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:52 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 145, June 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in Jamaica

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:52 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 125-128, June 2008. Abstract A population-based prevalence study in one region of Jamaica in 1987–1989 indicated that about 8% of the childhood population had cognitive (intellectual) disability. Some harmful beliefs and practices persist about child rearing, violence ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in the Republic of Poland

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:51 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 137-141, June 2008. Abstract The prevalence of intellectual disability (ID) in Poland is estimated at 47.8/10,000 among the population aged over 15 years. Although progress has recently been documented in the development of more positive attitudes toward integration of ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Effects of a Parent Training Program on the Interactive Skills of Parents of Children with Autism in China

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:51 +0100

This study evaluated the effects of a parent training program on the interactive skills of parents of children with autism in the People's Republic of China. Twenty-seven families of children with autism in a northeastern city of China were ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in the Republic of Zambia

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:50 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 142-144, June 2008. Abstract In the Republic of Zambia, an estimated 256,000 persons have some form of disability, and of these, 5.4% have intellectual disabilities. Even now, traditional beliefs about the etiology of intellectual disabilities persist and considerable ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in the Republic of Cuba

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:49 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 118-121, June 2008. Abstract It is estimated that 3.2% of Cuba's population of 11.4 million persons has a severe disability of some kind. Recent economic difficulties have, it may be assumed, had a negative impact on health service provision – which is free to all – and ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

China-Sweden Partnership: Areas of Ongoing Development in Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:49 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 112-117, June 2008. Abstract At the initiative of the Government of the People's Republic of China, a letter of intent concerning a joint undertaking for studying children with intellectual disability in China was formulated together with the Swedish Government's Ministry ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in Nepal

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:48 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 133-136, June 2008. Abstract In Nepal, the estimates of the prevalence of disabilities vary, and there is sparse information specifically about people with intellectual disabilities (ID). Existing data suggest higher rates of prevalence of ID in the more remote northern ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Intellectual Disability in the Context of a South African Population

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:47 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 89-95, June 2008. Abstract Childhood disabilities, including intellectual disabilities (ID), are thought to occur in 5–17% of children in developing countries around the world. In order to identify and describe the childhood disabilities occurring in a rural South ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in the Islamic Republic of Iran

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:46 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 129-132, June 2008. Abstract In the Islamic Republic of Iran, considerable stigma is attached to the presence of a family member with intellectual disabilities, and even in Iran's new constitution, a word with traditional, negative connotation has been retained to refer to ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Comparative Policy Brief: Status of Intellectual Disabilities in the Republic of Haiti

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:46 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 122-124, June 2008. Abstract An estimated 800,000 persons have disabilities in Haiti, but there are no data that refer specifically to those with intellectual disabilities. Traditional fears and stigma about disability are widespread. While the constitution supports the ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

WHO Atlas on Global Resources for Persons with Intellectual Disabilities 2007: Key Findings Relevant for Low- and Middle-Income Countries

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:45 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 81-88, June 2008. Abstract The World Health Organization (WHO) Atlas-ID project was designed to collect, compile, and disseminate information on intellectual disabilities (ID) services and resources from across the world. This paper aims at selecting findings in the ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Growth of an NGO: The Indian Institute of Cerebral Palsy from 1974 to 2006

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:44 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 105-111, June 2008. Abstract The Indian Institute for Cerebral Palsy (IICP) has been providing education and other services in Kolkata, Eastern India, for children and young adults with cerebral palsy and related disabilities for over 30 years. IICP started by providing ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 16). Videoconference Network Between the Child Developmental Center in Rome and Families at Home

Journal of Policy and Practice in Intellectual Disabilities — Thu, 05 Jun 2008 03:34:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 2, Page 146-147, June 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Evaluation of a Bereavement Training Program for Staff in an Intellectual Disabilities Service

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 20:11:54 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 1-5, March 2008. Abstract The impact of a staff-training program on knowledge and confidence in supporting people with intellectual disabilities (ID) at the time of bereavement was examined. Thirty-three staff members from a Dublin, Ireland-based ID support service ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Staff Carers' Understanding of End of Life Care

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:51:31 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 56-64, March 2008. Abstract Staff carers in pediatric skilled nursing facilities (PSNF) deal directly with dying residents, and are on the forefront of communication with families. These providers have expressed misunderstandings regarding the meaning of resuscitation ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Abstracts from the 16th Annual Roundtable of the IASSID Special Interest Research Group in Aging and Intellectual Disabilities1

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:51:30 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 24-32, March 2008. The 16th Annual Roundtable of the International Association for the Scientific Study of Intellectual Disability's Special Interest Research Group on Aging and Intellectual Disability was held May 31 and June 1, 2007 in Oslo, Norway, with over 50 ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Ascertaining Health-Related Information on Adults With Intellectual Disabilities: Development and Field Testing of the Rochester Health Status Survey

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:51:26 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 12-23, March 2008. Abstract There is a growing need for researchers and service providers to ascertain and track health status and health care utilization among adults with intellectual disabilities as they pass through the lifespan. This paper reports the development and ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Impact of Dementia Upon Residential Care for Individuals With Down Syndrome

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:51:07 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 33-38, March 2008. Abstract Despite the increased prevalence of dementia in individuals with Down syndrome, relatively little is known about its impact upon care provision. Carers may be familiar with the demands of assisting a person with Down syndrome, but generally ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Teaching Language Arts, Math, & Science to Students With Significant Cognitive Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:51:05 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 73-74, March 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Organization of a Family Training Service Pertaining to Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:41 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 69-72, March 2008. Abstract The authors present the outcomes of three parent training experiences carried out at the Research Institute "OASI MARIA SS" in Troina, Italy, which were designed to facilitate the acquisition of specific competencies and to promote educational ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Changes in Accommodation Experienced by People with Down Syndrome and Dementia in the First Five Years After Diagnosis

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:40 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 65-68, March 2008. Abstract Research that has tracked living situation changes is lacking for people with Down syndrome post-diagnosis of dementia. Extant studies have not considered reasons for a move, the stage at which it happened, and how involved in the decision the ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Neurological Disorders: Public Health Challenges

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:39 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 75, March 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Impact of Mental Health Training for Frontline Staff Working With Children With Severe Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:27 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 6-11, March 2008. Abstract The risk factors for young people with intellectual disabilities developing a mental health disorder are higher than those found in the general population, yet training is very rarely available to frontline staff. A recent study in the United ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

The Principles and Framework for Interdisciplinary Collaboration in Primary Health Care

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:23 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 75, March 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 15). Pediatric Rehabilitation Department

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:22 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 77-78, March 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Reflections on Deinstitutionalization in the United Kingdom

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:19 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 47-55, March 2008. Abstract Deinstitutionalization has been the hallmark of public policy for people with intellectual disabilities within many countries in the developed world for the past 40 years. Although within Britain deinstitutionalization is set to be completed by ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Minor Adaptations Without Delay

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:18 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 76, March 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Students With Disabilities' Perspectives of the Role and Impact of Paraprofessionals in Inclusive Education Settings1

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:18 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 39-46, March 2008. Abstract Over the past few decades, the role and presence of the paraprofessional, that is the educational assistant, within the classroom has evolved from providing teacher and student support to involving greater decision-making concerning ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Adults With Learning Difficulties in England 2003/4

Journal of Policy and Practice in Intellectual Disabilities — Tue, 04 Mar 2008 09:50:16 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 5, Issue 1, Page 75-76, March 2008. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Continuity of Care to Prevent Emergency Room Use Among Persons With Intellectual and Developmental Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 13 Nov 2007 21:02:02 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 219-228, December 2007. Abstract The study explored the relationship between the level of primary and specialty care continuity and the likelihood of subsequent emergency room use for persons with intellectual and/or developmental disabilities (I/DD). Administrative files from ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Exploring the Absence of High Points in Story Reminiscence With Carers of People With Profound Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:44 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 252-260, December 2007. Abstract Narrative, central to the interactions that take place within families, is a way that experiences are recalled and shared, family relationships are actualized, and individual and group identities are exemplified and constructed. People with ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

White Supplement on Physical and Rehabilitation Medicine in Europe

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 265, December 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin From San Raffaele Foundation and Tosinvest Sanitá (No. 14). Review of Most Recent Publications, 2007

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 263-264, December 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Minutes

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 261-262, December 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Considerations on Supports That Can Increase the Quality of Life of Parents of Children With Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 248-251, December 2007. Abstract The birth of a child with a disability entails the revision of roles and a consideration of the partners’ tasks and activities, the reallocation of financial resources, and a whole range of new behaviors to cope with the needs of the newcomer. ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Improving the Transfer of Care to General Practice for People With Intellectual Disabilities: Development of a Guideline

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 241-247, December 2007. Abstract In the Netherlands, a public policy shift has led to a movement of people with intellectual disabilities (ID) from residential congregate care facilities to normative housing in their communities. Along with these physical transfers, medical ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Community-Based Day Services for Adults With Intellectual Disabilities in the United Kingdom: A Review and Discussion

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 235-240, December 2007. Abstract Recent policy statements about services for adults with intellectual disabilities in the UK have pushed for a reoriented day services model. However, there is comparatively little research into new models of day service provision. Drawing on ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Surveying Supported Employment in Finland: A Follow-up

Journal of Policy and Practice in Intellectual Disabilities — Mon, 12 Nov 2007 20:09:43 +0100

Journal of Policy and Practice in Intellectual Disabilities, Volume 4, Issue 4, Page 229-234, December 2007. Abstract The longitudinal status of supported employment in Finland was examined via a 2003 nationwide survey sent to job coaches involved in supporting workers with intellectual and other disabilities. Sustained supported employment, defined as "paid ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Detection of Childhood Visual Impairment in At-Risk Groups

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 18:14:50 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 165-169, Sep 2007. Abstract Children with intellectual disabilities have an increased risk of visual impairment, caused by both ocular and cerebral abnormalities, but this risk has not been quantified. The same applies to preterm children and children with cerebral palsy w... (Source: Journal of Policy and Practice in Intellectual Disabilities)

The International Family Quality of Life Project: Goals and Description of a Survey Tool

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:48 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 177-185, Sep 2007. Abstract The International Family Quality of Life Project, begun in 1997, involves the collaboration of a team of researchers from Australia, Canada, Israel, and the United States whose aim was to conceptualize "family quality of life" and develop a surv... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Who Cares About Disabled Victims of Crime? Barriers and Facilitators for Redress

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:48 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 170-176, Sep 2007. Abstract The author identified and discusses barriers and facilitators for public action after the occurrence of abuse against an adult with an intellectual disability (ID). Data were collected via a postal survey sent to guardians in one Swedish region ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin From San Raffaele Foundation and Tosinvest Sanità (No. 13). The Participation of IRCCS San Raffaele as a Partner to the TRAMA (TRAining in Motion Analysis) Project

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:47 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 216-217, Sep 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Going to College: Expanding Opportunities for People with Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:47 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 213-214, Sep 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Personal vs. Proxy Focus Groups' Perspectives on Quality of Life

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:47 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 210-212, Sep 2007. Abstract The authors present a finding from a larger study that investigated variation in perspective among different stakeholder focus groups about enhancing quality of life (QoL) of individuals with intellectual disabilities living in group residences ... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Why Are People With Intellectual Disability Moved "Out-of-Area"?

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:47 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 203-209, Sep 2007. Abstract Some people with intellectual disabilities (ID) continue to be provided with accommodations that are outside their local area, away from familiar people and places. Although studies have been scarce on this topic, there is evidence to suggest th... (Source: Journal of Policy and Practice in Intellectual Disabilities)

"Parenting With Support": The Views and Experiences of Parents With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:47 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 194-202, Sep 2007. Abstract The international literature on parents with intellectual disabilities (ID) has focused on concerns about their ability to parent and strategies to enable them to develop parenting skills. Traditionally, the views and experiences of parents them... (Source: Journal of Policy and Practice in Intellectual Disabilities)

The Male Workforce in Intellectual Disability Services

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:47 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 186-193, Sep 2007. Abstract Staff shortages are predicted in community social care sector services for people with intellectual disabilities (ID). One option is to attract more men to the workforce, which would also counter the present sex-ratio (gender) imbalance among wo... (Source: Journal of Policy and Practice in Intellectual Disabilities)

Erratum

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:46 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 218-218, Sep 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Neurological Disorders. Public Health Challenges.

Journal of Policy and Practice in Intellectual Disabilities — Tue, 21 Aug 2007 00:58:46 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 3, Page 215-215, Sep 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Complex Needs and Complex Solutions: The Challenge of Profound Intellectual and Multiple Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 18:19:12 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 79-82, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Integration of Education and Care Given to Children With Profound Multiple Disabilities in Switzerland

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:09 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 141-151, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 12). "My Name Is Alex"

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 160-163, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Extent, Duration, and Content of Day Services’ Activities for Persons With Profound Intellectual and Multiple Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 152-159, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Self-Efficacy and Quality of Life of Professionals Caring for Individuals With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 129-140, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Carer-Reported Contemporary Health Problems in People With Severe and Profound Intellectual Disability and Genetic Syndromes

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 120-128, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Behavioral and Psychosocial Outcomes of a 16-Week Rebound Therapy-Based Exercise Program for People With Profound Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 111-119, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Support Characteristics Associated With the Quality of Life of People With Profound Intellectual and Multiple Disabilities: The Perspective of Parents and Direct Support Staff

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 104-110, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Becoming Aware of What You Know or Need to Know: Gathering Client and Context Characteristics in Day Services for Persons With Profound Intellectual and Multiple Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 97-103, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Developing Good Practice in the Clinical Assessment of People With Profound Intellectual Disabilities and Multiple Impairment

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 88-96, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

A Need for a Taxonomy for Profound Intellectual and Multiple Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 30 May 2007 06:29:08 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 2, Page 83-87, Jun 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)

Self- and Proxy Reports Across Three Populations: Older Adults, Persons With Alzheimer's Disease, and Persons With Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities — Wed, 21 Feb 2007 19:22:30 +0100

Journal of Policy and Practice in Intellectual Disabilities Volume 4, Issue 1, Page 1-10, Mar 2007. (Source: Journal of Policy and Practice in Intellectual Disabilities)