MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'chiari'. Sat, 03 Sep 2011 02:29:29 +0100 http://www.medworm.com/index.php?rid=4304837&cid=t_115671_83_f&fid=34856&url=http%3A%2F%2Finsidesurgery.com%2F2011%2F01%2Facute-chronic-presentation-buddchiari-syndrome%2F Although the “classic” presentation of Budd-Chiari syndrome is an acute venous outflow obstruction of the hepatic veins or inferior vena cava resulting in fulminant liver failure and liver transplantation, the more common occurrence is a more chronic or subacute presentation with the formation of gradually increasing ascites and hepatic dysfunction. (Source: Inside Surgery) Inside Surgery blogs http://www.medworm.com/rss/comments.php?id=4304837 Sun, 02 Jan 2011 20:46:11 +0100 4304837 http://www.medworm.com/index.php?rid=3454023&cid=t_115671_115_f&fid=34670&url=http%3A%2F%2Fsumerdoc.blogspot.com%2F2010%2F04%2Farnold-chiari-malformation.html From Sumer's Radiology Site http://www.sumerdoc.blogspot.com -The Top Radiology Magazine. Teleradiology Providers at www.teleradproviders.com Mail us at teleradproviders@gmail.com (Source: Sumer's Radiology Site) Sumer's Radiology Site blogs http://www.medworm.com/rss/comments.php?id=3454023 Fri, 09 Apr 2010 13:40:00 +0100 3454023 http://www.medworm.com/index.php?rid=2894637&cid=t_115671_122_f&fid=34755&url=http%3A%2F%2Fneuropsychological.blogspot.com%2F2009%2F10%2Ffourth-plinth-one-other-project-ends.html The One & Other Antony Gormley project ended today in Trafalgar Square, London.Among the many media reports and summaries of the project, Laura Hickman who represented Chiari Malformation awareness efforts during her hour on the Fourth Plinth has received additional attention.The Times (UK) cites her hour as being on of the best of the 2400 individual hours in the project and says this about her:"Laura Hickman: held up placards carrying the words of 30 sufferers of rare brain condition Chiari Malformation. Has since persuaded the NHS to recognise the condition, started work for Chicago's Chiari Centre Foundation, and plans to open a UK branch of the charity."Excellent work!Here is a link to the full report: Best of the Trafalgar Square plinthers (14th October, 2009). (Source: BrainBlog) BrainBlog blogs http://www.medworm.com/rss/comments.php?id=2894637 Thu, 15 Oct 2009 02:31:00 +0100 2894637 http://www.medworm.com/index.php?rid=2699733&cid=t_115671_122_f&fid=34755&url=http%3A%2F%2Fneuropsychological.blogspot.com%2F2009%2F08%2Fchiari-malformation-awareness-in-uk.html On Saturday, the 15th, one of the plinthers in the One&Other art project in Trafalgar Square will be promoting Chiari Malformation awareness.The Chiari Center FoundationChiari Malformation information page (Source: BrainBlog) BrainBlog blogs http://www.medworm.com/rss/comments.php?id=2699733 Fri, 14 Aug 2009 01:36:00 +0100 2699733 http://www.medworm.com/index.php?rid=1525904&cid=t_115671_115_f&fid=34670&url=http%3A%2F%2Fsumerdoc.blogspot.com%2F2008%2F06%2Fchiari-malformation-mri_18.html MRI images showng lumbosacral myelomeningocele, dorsal syringohydromyelia and tonsillar herniation, classical Chiari II malformation.Dr.Sumer K Sethi, MDConsultant Radiologist ,VIMHANS and CEO-Teleradiology Providers Editor-in-chief, The Internet Journal of Radiology Director, DAMS (Delhi Academy of Medical SciencesFrom Sumer's Radiology Site http://www.sumerdoc.blogspot.com -The Top Radiology Magazine (Source: Sumer's Radiology Site) Sumer's Radiology Site blogs http://www.medworm.com/rss/comments.php?id=1525904 Wed, 18 Jun 2008 06:10:00 +0100 1525904 http://www.medworm.com/index.php?rid=693300&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F06%2Fclozaril-lack-of-speech.html I have been researching Clozaril and lack of speech as a side effect. When I typed the phrase "clozaril lack of speech" into Google and Google Advanced Search, I found my blog.To the depths of reading abstracts I go, reading into the night.Also, several school administrators told me that they see an "organic" reason for what is happening and "none of us believe Chiari's just go away, who have you contacted for another opinion?"The answer is the question.~Questions and statements said to me by medical professionals and psychiatrists the last 2 weeks: 1. What should we do?2. You know more about the system than I do, now what?3. What is Prodrome?[schizophrenia]4. I need to get the DSM out, I don't know how Clozaril works, the laws or any of it, let me call the pharmacist.5. We didn't want to ... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=693300 Mon, 25 Jun 2007 02:04:00 +0100 693300 http://www.medworm.com/index.php?rid=645393&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F05%2Ftransportation-trauma.html This was Lindsay's gurney. I need to check the date, but it was either at mental health court or the one that took her to Western State Hospital. I've got it noted that she was in the bathroom when this photo was taken. AMR, the ambulance company that transports patients to and from hospitals from E.R.'s, mental health court, etc. was one of the highest medical bills accrued.[that was unexpected.Children's was 1/4 million $, paid via uncompensated funds] One way trips were at the minimum 800.00. It took me 6 months after her return home to finally get that account settled. The paperwork is beyond belief, and just another factor many people do not know is part of the mental health system. Because she was I.T.A.[involuntary admit]she was strapped down at the wrists and ankles and across her ... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=645393 Mon, 28 May 2007 21:21:00 +0100 645393 http://www.medworm.com/index.php?rid=620650&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F05%2Fnami-and-new-advocate-culture.html NAMI-Seattle-TorreyTaking a look at the NAMI Seattle website, I came across the year in review[2006] in the newsletter. Click on Jan/Feb 2007, it's in PDF format.Here's a bit from the newsletter, "Spotlight":"Community Education"--NAMI Seattle:We held 2 comprehensive seminars educating nearly 200 people. The first events were with Dr.E. Fuller Torrey Of the Treatment and Advocacy Center [TAC];a sit down dinner [$50.00 a person held the night before the public lecture, at Eleanor Owen's home]hosted by Eleanor Owen[NAMI] and Gerry Tarutis[Gerald Tarutis is Treasurer, on the Board of Directors of TAC [Fuller Torrey is President] followed by and outstanding[the next day]seminar on the latest research on Schizophrenia at Northwest Hospital.[$10.00 entry fee]"The problem I have with this communi... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=620650 Sun, 13 May 2007 16:55:00 +0100 620650 http://www.medworm.com/index.php?rid=592163&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F05%2Fepilepsy-seizures-or-bipolar-disorder.html I am not the only one asking complex questions. Thank God.Time for a Specialist"Based on Patient's unique symptoms and poor response to medications prescribed up to this point, and nothing hopeful from Patient's doctors, we have reached a point of frustration. it appears we've exhausted our options locally with respect to finding a Physician with expertise in dealing with Patient's unique blend of symptoms. Considering the delicate nature of the situation with respect to potential damage occurring from taking wrong medications, we cannot afford to keep Patient on current medication for psychosis for long when we know Patient's seizures aren't being addressed and cognitive abilities are being strongly compromised by the current drug."--Orthomolecular Schizophrenia Protocol blog.Orthomolecul... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=592163 Sun, 06 May 2007 01:06:00 +0100 592163 http://www.medworm.com/index.php?rid=590563&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F05%2Fclarity-or-chiari-mental-illness-or.html Once again, thank you to my email buddy helping me sort out the Chiari and Autism connection. In other words, the person is reminding me not to stop seeking an answer, until it is defined.Help me think.That's what I need. I've been thinking so long, and the Chiari was found after the PDD/Asperger's diagnosis. Anyone who knows Chiari and the brain; here is a quote from one letter I received from the last neurosurgeon. It appears to shift all "thought" back to the psychiatric field."In fact, she only had approximately 2.9mm of tonsillar herniation below the basion opisthion line. Therefore, I would not even call this a Chiari 1 malformation.This high-quality MRI basically clarified everything for us."--neurosurgeon.If everything was clarified, then why isn't she talking, or reading, or livin... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=590563 Sat, 05 May 2007 02:35:00 +0100 590563 http://www.medworm.com/index.php?rid=577921&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fi-heard-it-i-finally-heard-it.html The day started off with my personal quest, to maintain my own bipolar and everything else.First off, made sure I wasn't going to stay in the house, and if Lindsay couldn't handle going out, I would find someone to sit in the house with her instead of me.I've been reminding her with gentle pressure to maintain what the case manager and I talked to her about last week, was the basic daily self care stuff. Brush teeth, meds, etc. She was on track this morning, and then looked at me and said, "I need to be electrocuted."You know what? I said, "I can assure you that is not what normal minds think, so if you really believe that; then rest assured and find comfort in the fact that I can tell you that is an abstract thought."I also went on to say that I had to go run errands, buy hand lotion, and... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=577921 Mon, 30 Apr 2007 00:39:00 +0100 577921 http://www.medworm.com/index.php?rid=577923&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fi-have-good-news-part-2.html I received this in my email box regarding the mysterious removal of the Chiari and my daughter:" ..assure you that you and your daughter are going through what many many many families with Chiari go through. The ignorance about Chiari is astounding."The person advised me to look at this website The Chiari InstituteIronically last June of 2006, this was the first place I called after looking on the Internet for information. At the time, Lindsay was still inpatient in the psych ward and the kind nurse in NY told me they would help me figure out how to transport her there; being we were talking about an inpatient psych patient.Then I consulted 2 neurosurgeons, and the one Lindsay just saw, was the one I felt confident working with due to his impressive background. He also made sure I knew Chi... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=577923 Sun, 29 Apr 2007 16:01:00 +0100 577923 http://www.medworm.com/index.php?rid=575571&cid=t_115671_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2F112593670%2F I’m an advocate for education, first and foremost. I always have been, long before my son Charlie was diagnosed with autism, long before he was born. While the subjects of the classes I teach are the languages of Latin and classical Greek, and of the ancient culture of the Greeks and Romans, at the core of my teaching efforts is to teach students to think, to use their minds, to figure things out, to draw on what they have learned to learn more. However “severe” or “high” or “low” functioning a child is, she or he needs to be taught and—though the process can be slow, and progress measure in small gains (a child can zip up his own sweatshirt; a child knows how to find the front and back of a t-shirt)—learning can and does happen. Howeve... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=575571 Sat, 28 Apr 2007 05:56:13 +0100 575571 http://www.medworm.com/index.php?rid=574550&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fif-you-knew-you-only-had-17-years-how_27.html When Lindsay was inpatient at all of the hospitals; her clothes and belongings were constantly stolen.Some items made it home. Some did not.There is one shirt that made it the entire absurd trip from hell; and she wears it every single day. When it is being laundered, she waits for it to be washed and dried. It is a victory shirt. Just like her, she made it out. Worn, and faded.Still here.During those days, and months, I basically lived in my car. I had scissors, sharpies, notepads, files and poster boards of photos of Lindsay.I replaced lost and stolen clothing so many times, that by the time she came home, she had no clothes in her possession. I had to replace it all. But there was that shirt.I was tired of her things being stolen. Her dignity was already removed, and her youth stolen, a... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=574550 Sat, 28 Apr 2007 01:52:00 +0100 574550 http://www.medworm.com/index.php?rid=558045&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fi-have-good-news-part-1.html There is no evidence of Chiari malformation. The CSF flow is normal. The report states that what was seen last year is completely gone. Normal MRI.~Two years, and one concrete thing that became more than hope for a future for Lindsay.The neuro doc shook my hand and hugged me. I left the building smiling. It took a couple of hours for the real set back, and devastation to sink in, that I am exactly where I was 2 years ago [since 1999], yet she is not the same person at all.I have called the psychiatrist, and am now on the road to continue to seek the answers I have been searching.One thing you can count on in life is change.One thing my daughter can count on, is me.~peace. (Source: soulful sepulcher) soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=558045 Sat, 21 Apr 2007 02:46:00 +0100 558045 http://www.medworm.com/index.php?rid=552126&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fthinking-blogger-award-5-more-blogs-to.html Jon, author of the blog, Living With A Purple Dog was kind enough to add me to his 5 choices for Thinking Blogger Award. Thank you.I am continually inspired by bloggers and their stories. The more I read, the more I learn, and the blogosphere just keeps expanding my understanding of real people, out there somewhere, constantly amazing me with personal stories and life happenings. From mental health to disability, brain malformations and feminism--well I could spend hours reading and learning, and most of all really thinking quite a bit as a result. I am happy to be chosen again, not for myself--but so I can highlight a few more blogs I have come across the last month or so and share them here. Thanks for enriching my life with your stories everyone, I am honored to be a part of this world.... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552126 Wed, 18 Apr 2007 10:07:00 +0100 552126 http://www.medworm.com/index.php?rid=552129&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fmri-of-brain-and-spine-complete-and-she.html More later, but she did the MRI on her own, no medication, no IV.I wore earplugs and held her legs and stood there for 45 minutes. Watching this young woman show me the true definition of courage. She cried. She did it.We walked to the gift shop, and she picked out a plush kitty that looks like our tabby cat.I reside under her shadow. (Source: soulful sepulcher) soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552129 Tue, 17 Apr 2007 01:41:00 +0100 552129 http://www.medworm.com/index.php?rid=552133&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fempty-roads.html Today.~In the early morning light,you left and walked awayI just watched the empty road behind you.When you glanced over your shoulder,I watched you from the window.when you walk down those empty roadsmy heart shattersReverse your road, walk toward the goalfind that spirit that has been lostShine your brilliant lightMy heart shines a light for your pathI am always behind youthough you may not see meI watch for you.~stephany (Source: soulful sepulcher) soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552133 Sun, 15 Apr 2007 22:41:00 +0100 552133 http://www.medworm.com/index.php?rid=552132&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fcome-back-road-is-this-way.html "In the quiet afternoon you left and went down into townAnd I just watched the empty road behind youWhere the fog lies kissing the mountainsideYou want to lie sleeping, deep inside.."heart, "how deep it goes" (Source: soulful sepulcher) soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552132 Sun, 15 Apr 2007 00:26:00 +0100 552132 http://www.medworm.com/index.php?rid=552138&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fgratitude.html I have so many nice comments, and I have been mentally challenged of late to figure out my sidebar thing to add a rolling comment thing. I am actually one of those people who look at copy machines and they break and need toner or something dramatic. Slowly, I am evolving here. The more I think, the more I remember and the more I write, the more friends show up here and remind me I am not alone in this big atmosphere; called the blogosphere. I find it humorous, that I even can type, and just for the record, the little bit of HTML shit I know was taught to me by Lindsay when she was 12! I had saved a cheat sheet she typed me, and seriously, this is why I know how to "live link."! haha. God, Lindsay is so smart.I need to thank everyone and I'm starting with a new blogger who left me kind comm... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552138 Sat, 14 Apr 2007 23:25:00 +0100 552138 http://www.medworm.com/index.php?rid=552155&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fchiari-research-genetics-and-me.html Establishing the Physiology of Syringomyelia"The brain and spinal cord are surrounded by fluid called cerebrospinal fluid (CSF). The CSF flows through channels in the brain and around the spinal cord. Occasionally, people are born with malformations of these channels. Syringomyelia is a pocket within the CSF channels that results from abnormal CSF flow. Syringomyelia is associated with problems in the nervous system. Patients with syringomyelia may be unable to detect sensations of pain and heat. If the condition is not treated it can worsen."Establishing the Physiology of SyringomyeliaPathophysiology of syringomyelia associated with Chiari I malformation of the cerebellar tonsils. Implications for diagnosis and treatmentWhen Lindsay has her new MRI completed; her spine is included in the ... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552155 Sun, 08 Apr 2007 17:20:00 +0100 552155 http://www.medworm.com/index.php?rid=552161&cid=t_115671_140_f&fid=35439&url=http%3A%2F%2Fbipolarsoupkitchen-stephany.blogspot.com%2F2007%2F04%2Fwinter-left-spring-behind.html Well I thought I might need to pack a brown bag to breathe into this morning. This was just a review of the last MRI so Linds could meet the neuro doc again, since July was a long time ago for her to remember him.We had quite a wait. She was restless, and started pacing. 2.5 hours after arriving for her appointment, it was finally her turn. That was way too long for her to wait anywhere, and she started crying.He showed her the MRI on the computer, and printed off a copy of her brain for her. It's very cool, in that respect. Dozens of angles of the brain and inside of her head."You have a size 10 brain in a size 9 skull." [I sat wondering how many times he says that to people, he is the best neuro-doc on West Coast for the Chiari surgery. I have confidence in this doc. He is nice, and if s... soulful sepulcher blogs http://www.medworm.com/rss/comments.php?id=552161 Sat, 07 Apr 2007 00:10:00 +0100 552161