MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'chronic illness'. Sat, 03 Sep 2011 01:59:57 +0100 http://www.medworm.com/index.php?rid=5139734&cid=t_102869_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fchronic-health-needs-must-be-addressed-after-a-natural-disaster%2F2011.08.18 Sichuan earthquake rescue workers carrying an injured person. In light of the widespread media coverage of natural disasters, such as the earthquake in Haiti and the tsunami in Japan, the public and medical professionals are aware of the anticipated immediate medical needs in these kinds of emergencies. However, it is less well known that after the initial management of life- and limb-threatening injuries, there may be an enormous need to provide care to persons with chronic illnesses. This is because they are displaced from their homes, become exposed to adverse environmental and socioeconomic hardships, lose access to healthcare, are deprived of their sources of medications, and so forth. Some of my colleagues were allowed to enter Japan after the tsunami, and their observations agree wi... Better Health blogs http://www.medworm.com/rss/comments.php?id=5139734 Thu, 18 Aug 2011 14:00:00 +0100 5139734 http://www.medworm.com/index.php?rid=5008508&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FkdB_uXaZ2bI%2F It’s no secret that Americans have an obesity problem, but since we’re awfully skilled at looking away from the scale and towards our next drive thru, it can’t hurt to take a moment to check in with the numbers: According to an annual report from the Trust for America’s Health, adult obesity rates have gone up in 16 states between 2008 and 2010 (and gone down in none). Which puts over two-thirds of U.S. states at obesity rates of over 25 percent, while only one state — Colorado — has a rate lower than 20 percent. You could roll your eyes and tell me you’ve heard it before; you could question all these studies’ definitions of “obese.” But if I told you that 25% of the population had AIDS, you’d be frantic. Everyone would freak out. T... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=5008508 Thu, 07 Jul 2011 22:29:07 +0100 5008508 http://www.medworm.com/index.php?rid=5008509&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2Fu6iLUvhK3-w%2F You know how you can sometimes get a feel for what kind of bugs are going around your city, school or social circle from tweets or Facebook status updates? Sickweather can too. The still-in-beta site —s ure to be a hypochondriac’s new favorite URL — aggregates illness-related data from social networks to produce real-time “weather maps” of flus, fevers and other reported symptoms like some sort of digital epidemiologist. Is this cool or creepy? Sickweather boasts that it can “forecast the movement of everything from stomach bugs to chronic illness and other sickness, including depression.” Someone should inform its copywriter that reflecting is not the same thing as ‘forecasting,’ which implies some sort of prescience with concern to mood disorders, as in, ‘Watch ou... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=5008509 Thu, 07 Jul 2011 20:55:16 +0100 5008509 http://www.medworm.com/index.php?rid=4984610&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F3uQnB31DzeI%2F Whether you were a pothead in college, enjoy an occasional toke, or are straight-laced and never touch the stuff, you’ve probably taken part in at least one debate about medical marijuana. Recently, during a girls’ night out, my fellow ladies and I somehow got onto this subject. What struck me as funny listening to everyone opine about the issue was not so much which side they were on, it was the fact that we were debating it over cocktails. So here we were saying whether or not someone with a serious illnesses should be allowed to get high when we were in fact getting high ourselves. Kind of ironic, I thought. There is a general acceptance in this country that people can consume as much alcohol as they want (providing they are over 21 and don’t drink and drive, of course... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4984610 Wed, 29 Jun 2011 18:13:15 +0100 4984610 http://www.medworm.com/index.php?rid=4976111&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2Fn5t1eQczI5w%2F You probably know him best as “Mr. Big,” but Chris Noth is putting his star power behind something other than Carrie Bradshaw these days in a new Diabetes Awareness campaign. The actor, who’s starred in Law & Order and The Good Wife, in addition to Sex and The City, told Huffington Post that “[diabetes] is a disease that’s way too much under the radar. We’re trying to get ahead of the game with people; … encouraging [them] to call [their] doctors and get a blood test.” According to recent CDC statistics, 25.8 million Americans, or just over eight percent of the population, is living with diabetes, which can be a life-threatening disease. If caught early, however, complications can be prevented or delayed, and all it takes to screen for diabetes is a simp... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4976111 Tue, 28 Jun 2011 21:57:30 +0100 4976111 http://www.medworm.com/index.php?rid=4976112&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FqyMhgUbUfzA%2F We were hoping that even though we spend the majority of our working hours tethered to our computer, the fact that we exercise each morning would negate the consequences of sitting all day. But, according to the release of a 13-year study, even us athletes-by-morning, desk-jobbers-by-day have a higher risk of death than slackers who don’t exercise yet don’t sit all day either. Pardon??? You mean, running, swimming and biking all those miles each morning aren’t buying us extra time? According to the study published in the latest American Journal of Epidemiology, no. Researchers from the American Cancer Society reported that those of us who sit for more than six hours a day have an increased risk of death over those who don’t sit as much — even if we exercise. A... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4976112 Mon, 27 Jun 2011 19:03:20 +0100 4976112 http://www.medworm.com/index.php?rid=4968761&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FT0Ftzoyx8Z8%2F As soda and potato chips spread through the world, so does diabetes. An international study published today in The Lancet found that as of 2008, 347 million adults have diabetes; far more than previously thought (other studies have placed estimates around 285 million), and more than double the number of adults with diabetes in 1980. The study, which was funded by the World Health Organization and the Bill and Melinda Gates Foundation, also found that average blood pressure and cholesterol levels actually dropped during the same time period, things that researchers say would actually be much easier to manage than diabetes. In 1980, data indicates that 153 million adults had diabetes; today’s numbers indicate a global epidemic. While they attribute 70% of the rise in diabetes rates to ... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4968761 Sat, 25 Jun 2011 15:33:31 +0100 4968761 http://www.medworm.com/index.php?rid=4968811&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F06%2Ftreatment-week.html If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4968811 Fri, 24 Jun 2011 19:10:00 +0100 4968811 http://www.medworm.com/index.php?rid=4953279&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F06%2Fshort-term-planning.html I kind of left you in suspense yesterday.I was sitting an exam room, waiting to see my oncologist to discuss whether I could continue my break from chemo. Here's what happened next:We waited.We played a little Lexulous.I knit. My hands shook a little. And then the door swung open and Dr. B. entered the room. Dr. B. is not my oncologist. The cancer centre has a title called GPO (which I assume means general practitioner - oncology) for doctors who work with the oncologists. I hadn't seen Dr. B. in more than a year and without hesitating, we hugged each other - something I've never done with any doctor. She's wonderful and she's the only doctor I trust as much as my oncologist.After a physical exam (liver is where it should be and the size it should be. Chest sounds fine) and looki... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4953279 Fri, 17 Jun 2011 13:00:00 +0100 4953279 http://www.medworm.com/index.php?rid=4934729&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F06%2Fnot-so-jaded-after-all.html Yesterday, I had an appointment with my oncologist, the first since our decision that I should take a break from chemo and do Herceptin only for three months.I usually do my appointments over the phone but I decided to go into the cancer centre so that I could have a physical exam and meet with him face to face. Also, I wanted Tim to come with me, so that he would get the same info as I did first hand and have a chance to ask questions. One of the great things about doing appointments on the phone is that I can carry on with my life around the house as I wait for my call. I was reminded of this after waiting first in the waiting area and then in the exam room for nearly an hour.But it was worth it.The first person I met was the nurse who works with my oncologist. It was the first time we m... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4934729 Thu, 16 Jun 2011 23:38:00 +0100 4934729 http://www.medworm.com/index.php?rid=4934646&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FDwssmUnlML8%2F Photo Via Ragesoss When men are diagnosed with iron-deficiency anemia, the first thing doctors usually do is check for internal bleeding. When women are diagnosed with iron-deficiency anemia, they’re given an iron supplement and told to eat more broccoli. Why the discrepancy? The main cause of iron deficiency in men is upper-gastrointestinal bleeding, so it makes sense for doctors to rule this out first. However, a 1999 study on anemia in women found that “on women for whom a gynecological source was diagnosed by a specialist” — i.e., women whose anemia was blamed on their periods — 86 percent actually had a gastrointestinal disease. “The majority of the women in that study were bleeding internally, and no one had figured it out until then because they had periods,” writes Pr... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4934646 Tue, 14 Jun 2011 16:35:04 +0100 4934646 http://www.medworm.com/index.php?rid=4921649&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2Fixas8kAPlD8%2F Alice Pyne is 15 years old and has been battling Hodgkin’s lymphoma for four years. As the cancer that attacks white blood cells began to spread, her mother encouraged her to write a bucket list of things she’d like to accomplish before the cancer wins the fight. It was only three days ago that she set up Alice’s Bucket List, but her brave face, and inspirational goals (which include increasing bone marrow donorship) have ignited social media sites, and her name has become a trending topic on Twitter. “I thought that I was just doing a little blog for a few friends!” she wrote, after the media caught wind of her blog and her name was mentioned across some of Britain’s most popular discussion and news shows. Her fast-spreading worldwide support has also i... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4921649 Thu, 09 Jun 2011 21:13:25 +0100 4921649 http://www.medworm.com/index.php?rid=4911734&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FNyEgYB8ud2E%2F Post from: BlissTree Sinus Headaches Are Just An Old Wives’ Tale (You Probably Have a Migraine) (Source: Genetics and Health) Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4911734 Tue, 07 Jun 2011 14:30:20 +0100 4911734 http://www.medworm.com/index.php?rid=4876484&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F05%2Fin-translation.html The cancer centre has implemented something new. When patients check in for treatment, we're asked to fill out a questionnaire related to our well-being (it has some acronym but I can't remember it). We're given the option of filling it in on a central computer but I'm really squeamish about germy public terminals. I always ask to fill the thing in manually (furthering my feeling that I am more of a Luddite than some of my seniors).Filling out the form involves reading statements such as "I am in pain" and then circling a number between 1 (no pain) and 7 (excruciating pain - or something like that). Most of my numbers were very low except for the ones about my emotional well being and sleep habits. My answers resulted in the following conversation with the well-meaning nurse who checked me... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4876484 Sat, 28 May 2011 17:00:00 +0100 4876484 http://www.medworm.com/index.php?rid=4853082&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FeFt62KIBwHU%2F There’s a book floating around the more “eccentric” health care circles called The Second Brain: A Groundbreaking New Understanding of Nervous Disorders of the Stomach and Intestine. Colon therapists quote it, and raw food fanatics cite it as proof that we should all be noshing on sprouts and probiotics; and lately, even functional medicine gurus draw on the same theory and research: Our brains are controlled by our stomachs, they say; things like depression, anxiety, and sleep disorders hinge on what we eat, and maintaining healthy gut bacteria is a far better treatment for mental health than Wellbutrin or Prozac. Of course, most people have yet to swap their chemical uppers for sprouts, but a recent study linking stomach bugs to Parkinson’s might make some people ... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4853082 Mon, 23 May 2011 18:30:49 +0100 4853082 http://www.medworm.com/index.php?rid=4841879&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F05%2Fnone-of-us-knows-when-we-are-going-to.html On April 25th, Alaina Giordano lost custody of her children. A North Carolina judge ruled that her two kids need to move to Chicago to live with Giordano's ex-husband. She based this decision, in large part, on the fact that Giordano has Stage 4 breast cancer.Visit msnbc.com for breaking news, world news, and news about the economyI can't be articulate about this story, except to say that I work very hard to make sure that my kids will be all right- no matter what happens. I wish I could protect them and all those who love me from the realities of cancer. But do I think that cancer makes me a less fit parent?Not on your life.Want to read more? I first read about this on BlogHer, where Jenna argued very articulately that anyone who has ever been ill or ever might be should care about this s... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4841879 Thu, 19 May 2011 18:52:00 +0100 4841879 http://www.medworm.com/index.php?rid=4841880&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F05%2Fselfish-dear-loved-one.html I'm sorry that my fear becomes yours.I regret that you get pulled into my panic.I feel ill when my every cough, ache or bump twists your insides the way it does mine.I would prefer to protect you.I want to watch you smile, hear your laugh, feel your heart thump with joy when you pull me to your chest.I don't want to make you scared, or sad or worried.But I can't wish you weren't ever scared or sad or worried.Because I need to share.Because I need not to feel alone.Because I need you.If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4841880 Wed, 18 May 2011 02:10:00 +0100 4841880 http://www.medworm.com/index.php?rid=4789492&cid=t_102869_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FEBRdSm55Mm0%2F Did you know that it’s North American Occupational Health and Safety Week? Neither did we, so don’t feel too badly. Even though we don’t happen to work in an inherently dangerous industrial factory, mine, on a construction site, or an oil rig, sometimes going to work can be a real pain. Meaning that, aside from the normal stresses that can surround our daily job, where and how we toil can actually cause serious chronic pain. And because most of us spend an inordinate amount of time at work, we’d prefer it to be a pleasant, rather than painful experience. So how can we avoid developing physical pain in the workplace? (Besides not tripping over that power cord.) For answers, I turned to Charles Friedman, a Florida-based doctor who specializes in pain management issues... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=4789492 Thu, 05 May 2011 16:32:44 +0100 4789492 http://www.medworm.com/index.php?rid=4762797&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2011%2F04%2F28%2Fintroducing-boomers-on-the-rise-aging-well%2F I’m pleased to introduce our newest blog, Boomers on the Rise: Aging Well with Tamara McClintock Greenberg, Psy.D. This blog will discuss the increasingly complicated landscape of modern day aging, because, let’s face it, none of us is getting younger. Topics relate to healthcare and medicine, gender differences related to aging, coping with illness, and the many demands today’s middle-aged and older adults face. We’re all getting older, and with a generation of baby boomers getting to retirement age, this is the largest group of individuals that will become seniors in our nation’s history. There is a lot to navigate as we age, and few of us get a handbook to help guide us on our journey. I hope this blog will help give us the valuable tips and information that will make ... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=4762797 Thu, 28 Apr 2011 22:02:31 +0100 4762797 http://www.medworm.com/index.php?rid=4720046&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F04%2Fi-can-relate-to-this.html ...and so can, I would wager, anyone who has been harassed by  condescended to infantilized by dealt with an insurance company on health related matters. Especially if you have been on long-term disability for any length of time, you can expect regular correspondence. Blogger Katherine describes this experience:"But as sure as the swallows return to Capistrano, every March CIGNA sends me information on its Cancer Support program. Last year’s began “Good health is a gift.” This year’s reads like a grade school report:Dear KATHERINE O’BRIEN:The American Cancer Society estimates that two men and one in three women will face cancer in their lifetime. Although these are scary statistics, CIGNA HealthCare wants you to know we’re here to help…"Most of us just sigh, groan, maybe... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4720046 Fri, 15 Apr 2011 13:00:00 +0100 4720046 http://www.medworm.com/index.php?rid=4664422&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F03%2Fill-take-it.html No nausea.No bad taste in my mouth.No rage or sadness.No aches and pains.I'm just very, very tired.I'm not complaining.If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4664422 Thu, 31 Mar 2011 13:41:00 +0100 4664422 http://www.medworm.com/index.php?rid=4653506&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F03%2Fwhat-if-nothing-changes.html Today is a treatment day.For the first time ever, I will have Herceptin on its own (if you don't count the Demerol and Gravol I get to keep the shakes and fevers at bay).Some people have almost no side effects with Herceptin. Some feel like they have the flu. Will the fact that my body has such a strong response to Herceptin mean that I feel more of its side effects?The break from chemotherapy is meant to help me heal and rebuild - physically and emotionally.The break from chemo is also a risk.Here's hoping it all works out for the best.If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4653506 Tue, 29 Mar 2011 13:00:00 +0100 4653506 http://www.medworm.com/index.php?rid=4642676&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2011%2F03%2F27%2F8-survival-tips-for-the-spouse-of-a-terminally-ill-person%2F The other day, I had the honor of interviewing Owen Stanley Surman, M.D., a practicing hospital psychiatrist known internationally for his work on psychiatric and ethical aspects of solid organ transplantation. Following the death of his wife, Dr. Surman devoted six years to writer a memoir, The Wrong Side of an Illness: A Doctor’s Love Story, which includes a deeply personal and unique view of events both tragic and transcendent. He now lives in Boston with his new wife. Question: What words of wisdom would you give the spouse of a person struggling with chronic illness or terminally ill? Dr. Surman: Chronic illness and terminal illness have a pervasive impact on how we live our lives and in our sense of identity. Loss of a loved one affects the part of ourselves that has led us to ... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=4642676 Sun, 27 Mar 2011 15:02:30 +0100 4642676 http://www.medworm.com/index.php?rid=4600580&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2011%2F03%2F16%2Ftips-to-find-a-good-enough-doctor-2%2F Inspired from all the comments she received from my interview with her on chronic illness, Dr. Elvira Aletta compiled some suggestions for finding a good-enough doctor. In her previous Psych Central post called Tips to Find a Good-Enough Doctor, she throws out three basic qualities she looks for in a doctor: Expertise, knowledge, intellectual curiosity and all the right credentials. Warm, receptive, a good listener and communicator. The bedside manner thing. A well-run office, with smart, efficient support & medical staff. Then she follows up with a few more points to keep in mind while shopping for a doctor… Here are a few more of Dr. Elvira Aletta’s tips to find a good-enough doctor: If you are in doubt, interview several doctors as if they were applying for a job an... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=4600580 Wed, 16 Mar 2011 17:23:01 +0100 4600580 http://www.medworm.com/index.php?rid=4570714&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F03%2Fmixed-but-good-i-think.html And I'm not talking about the weather, which while it has been mixed, has been pretty consistently bad for the last twenty four hours. We had a big dump of snow (the photo above was taken from my front door), followed by freezing rain, which will be followed by ordinary rain.Good thing I just bought rain boots.My GP called me last week to let me know the results of my endoscopy (I won't get in to see the gastroenterologist until March 21st). All my results were negative - no celiac, no bacterial infection, no cancer. It's all good.Then I talked to my oncologist on Friday. We discussed my scope results and my digestive symptoms (diarrhea, heartburn, abdominal pain). He expressed surprised that I was still feeling lousy on Friday after a Tuesday treatment. I told him that my recovery time ha... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4570714 Thu, 10 Mar 2011 18:07:00 +0100 4570714 http://www.medworm.com/index.php?rid=4478018&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F02%2Ffeeling-better.html Because I've been able to go out for walks and for runs with the dog.Because I had a really nice weekend and a very nice Valentine's Day (especially for someone who doesn't really celebrate it).Because I have so many wonderful people in my life.Because some of my symptoms have improved considerably (and they most definitely did not improve at all before I was diagnosed with the recurrence of cancer).Because I have survived experiences that have been far more physically traumatic (like giving birth. Twice) than an endoscopy could possibly be.I am feeling better today.If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4478018 Tue, 15 Feb 2011 16:10:00 +0100 4478018 http://www.medworm.com/index.php?rid=4464660&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F02%2Fwhen-google-is-not-your-friend.html So I've been having some (ahem) gastrointestinal issues for a while. Last spring, I was diagnosed with GERD. Things got better after I made some amendments to my diet and started taking meds (so much better that I got lazy about the diet and just took the meds). But now the issues are back in spades, along with abdominal discomfort and a feeling I can only discribe as "weasels chewing on my innards."A couple of weeks ago, I went to see my GP who doubled my dose of the meds, ordered some blood tests and other (ahem) samples and put in a referral to a gastroenterologist. She told me that it would likely be a six month wait. I had chemo on Tuesday, February 1st, which means I should have been feeling more or less like myself on the week end. I did not. By Saturday, I was still achy, weak, nau... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4464660 Fri, 11 Feb 2011 14:00:00 +0100 4464660 http://www.medworm.com/index.php?rid=4419136&cid=t_102869_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-hot-spotters-is-better-care-for-the-neediest-patients-the-answer-to-lower-healthcare-costs%2F2011.01.31 Author-physician Dr. Atul Gawande has done it again with a well-written article in The New Yorker magazine entitled, “The Hot Spotters.” It deals with the fact that 5 percent of people with chronic illness make up over 50 percent of all healthcare costs. If we can zero in on providing better preventive care for those people, we can finally get our arms around runaway healthcare costs. How great that you don’t even have to have a New Yorker subscription to read it. Here are a few cliff notes until you get to it: – In Camden, New Jersey, one percent of patients account for one-third of the city’s medical costs. By just focusing attention on the social and medical outpatient needs of those people, they not only got healthier but costs were cut in half. &#8... Better Health blogs http://www.medworm.com/rss/comments.php?id=4419136 Mon, 31 Jan 2011 23:00:00 +0100 4419136 http://www.medworm.com/index.php?rid=4405990&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2011%2F01%2Fwelcome-to-my-life.html Earlier this week, my friend K. sent me an article from the New York Times on metastatic breast cancer that was the best piece of journalistic writing on metastatic breast cancer I've ever read. And I've read a lot on this subject.I cried when I read it (but as I told K., in a good way) because it resonated so deeply with me, juxtaposing the facts and the experiences of women living with cancer that can never be considered cured. I started to highlight the best bits to share with you here but ended up cutting and pasting more than two thirds of the article.I've decided that it's best not violate copyright or my own ethics and just post the link and ask you to please go read this article:A Pink Ribbon Race, Years Long.If you are reading this post on a site other than Not Just About Cancer (... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4405990 Fri, 28 Jan 2011 02:14:47 +0100 4405990 http://www.medworm.com/index.php?rid=4281346&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F12%2F22%2Ftop-ten-depression-blogs-2010%2F The good (and bad) news about blogging about depression in 2010 is that there’s less of it. Bloggers who were solely devoted to writing personal posts about depression, psychic pain, melancholy and stress in their lives found themselves, for whatever reasons, with less to say on traditional blogs. But depression hasn’t vanished, and neither has blogging, so where’s it all going? Twitter, drop boxes, text, media, and mobile — watch for blogging to evolve across platforms. And there are professionals sharing tips, artists gathering, and advocates to support each other. Although it may seem a quiet time, under the surface it’s changing. Blogs most likely to be triggering if you’re in a fragile state are marked with a (T). So, without further adieu, here are the... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=4281346 Wed, 22 Dec 2010 11:20:44 +0100 4281346 http://www.medworm.com/index.php?rid=4277832&cid=t_102869_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fchronic-illness-and-%25e2%2580%259cthe-spoon-theory%25e2%2580%259d%2F2010.12.21 If you don’t truly understand how draining it can be to live with chronic illness, including chronic pain, go read The Spoon Theory right now. In five minutes it forever changed my own awareness of my wife’s arthritis and bone pain. On Twitter I saw “spoonies” raving about this months ago, but I finally took time to read it: 2,100 words and worth every second. Also, on Twitter follow @bydls – “But you don’t look sick!” – and explore their smart website, where they’re wisely selling posters of the story for doctors’ waiting rooms, and everything else imaginable in modern outreach through social media. These are smart people, and this is a powerful piece of writing. *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=4277832 Tue, 21 Dec 2010 20:00:16 +0100 4277832 http://www.medworm.com/index.php?rid=4230160&cid=t_102869_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2F5-reasons-why-patients-dont-mention-symptoms-to-their-doctors%2F2010.12.04 To com­plain or “be good” is an appar­ent dilemma for some patients with seri­ous illness. Yes­ter­day I received an email from a close friend with advanced breast can­cer. She’s got a lot of symp­toms: Her fatigue is so over­whelm­ing she can’t do more than one activ­ity each day. Yes­ter­day, for exam­ple, she stayed home all day and did noth­ing because she was sup­posed to watch a hockey game in the evening with her teenage son and other fam­ily mem­bers. Her voice is weak, so much it’s hard to talk on the phone. She has dif­fi­culty writ­ing, in the man­ual sense — mean­ing she can’t quite use her right arm and hand properly. “It’s some­thing I would never men­tion to the doc­tor because it is very sub­tle,” she wrote. “But it has no... Better Health blogs http://www.medworm.com/rss/comments.php?id=4230160 Sat, 04 Dec 2010 21:00:07 +0100 4230160 http://www.medworm.com/index.php?rid=4203283&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F11%2Fbut-i-have-excuse.html I bailed on National Novel Writing Month on the first day, having written just under 700 words.I felt like there were too many other interesting bits of writing that I wanted to do, including continuing to edit last year's novel.And then my life became insane. I've been really hard on myself for all the things I'm not doing lately. This week, though, I've had two people who are very important to me (my coach/therapist and my friend DM) listen to me unload and then tell me that I would have every right to feel overwhelmed with a fraction of what I've got on my plate.I tend to be hard on myself because I don't work outside the home right now. If I don't go to a job I feel like I should just sail through my other commitments. It felt really good to list everything going on in my life and have... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4203283 Thu, 25 Nov 2010 20:43:00 +0100 4203283 http://www.medworm.com/index.php?rid=4134141&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F11%2Fthis-is-kind-of-nice.html TopOnlineColleges.com as included Not Just About Cancer in their list of "15 Inspiring Breast Cancer Blogs."Get inspired by this breast cancer survivor, who turned her unfortunate situation into a book about defying the odds and beating cancer.Pretty cool, no? It's nice to know that someone's reading and finding resonance in my words. As for the "beating cancer" part - I know it lurks there somewhere and that we who have gone to Stage 4 are never, ever out of the woods but I do like to think I'm beating it.If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4134141 Wed, 03 Nov 2010 16:22:00 +0100 4134141 http://www.medworm.com/index.php?rid=4125064&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F11%2F01%2Fbad-mommy-the-baby-blues-and-postpartum-depression%2F Eighteen years ago, when I gave birth to my son, I was a wreck; depressed and racked with guilt over it. I learned later I wasn’t alone. Many mothers felt the same way when their kids were born, only they kept it quiet. Today, thank God, the silence is broken and women can admit just how imperfect their mommy-ness feels at times. Back in the old days, however, it was odd for a woman to confess that she didn’t feel a strong traditional pull to be a mother. We’re talking way back — before cell phones, before the Internet, before Facebook, even before reality television shows! For my husband and me, circumstances beyond our control forced us to consider life without children. Having the choice taken away from us because of my chronic illness was depressing and we had to wo... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=4125064 Mon, 01 Nov 2010 16:56:02 +0100 4125064 http://www.medworm.com/index.php?rid=4074343&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F10%2Fmaking-best-of-it.html I think I've coped with chemo week much better this time around (thanks in part to some good advice from a friend).If you are reading this post on a site other than Not Just About Cancer (besides Facebook or a feed reader), you are reading stolen content. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=4074343 Fri, 15 Oct 2010 23:14:00 +0100 4074343 http://www.medworm.com/index.php?rid=4045156&cid=t_102869_111_f&fid=34712&url=http%3A%2F%2Fdigitaldoorway.blogspot.com%2F2010%2F10%2Fbill-clinton-and-vegetarianism-on.html I recently wrote an editorial for BlackDoctor.org in reaction to Bill Clinton's announcement that he is now a vegetarian in the interest of his cardiovascular health and longevity. Celebrity diets are always something to take with a pinch of salt (no pun intended), but champions for vegetarianism and healthy lifestyle choices deserve some attention, in my humble opinion.As a newly minted and certified Health and Wellness Coach, eating low on the food chain combined with exercise and good habits will be two pillars of my health and wellness "platform", so citing Bill Clinton's healthy epiphany is certainly helpful to the cause.With heart disease still being the #1 killer of Americans of both genders, it's time for Americans to assess their predilection for fast food and processed food once ... Digital Doorway blogs http://www.medworm.com/rss/comments.php?id=4045156 Fri, 08 Oct 2010 22:05:00 +0100 4045156 http://www.medworm.com/index.php?rid=4022913&cid=t_102869_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fquality-of-life-and-the-importance-of-shay-days%2F2010.10.01 As a medical professional who often treats children with chronic diseases, my patients turn to me not only for treatment advice but often for advice on how to improve their quality of life. I often have difficulty addressing the latter as there is a paucity of research on quality of life outcomes as compared to biomedical outcomes. However, preliminary data from DR Walker et al. (1) have shown that comprehensive disease management improves quality of life and thereby reduces medical costs for some common chronic illnesses. Recently, a patient shared a story with me that was written by an anonymous author which demonstrates the powerful effect of seemingly small efforts on the quality of life of a disabled child. (more…) (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=4022913 Fri, 01 Oct 2010 15:00:25 +0100 4022913 http://www.medworm.com/index.php?rid=4013426&cid=t_102869_134_f&fid=35187&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FDiabetesDaily%2F%7E3%2Fn6YgZAj2hJE%2Fdiabetes-guilt.php At church this past Sunday we were talking about the missions opportunities we support. We have been training local leaders to establish small home churches in Asia and they are now expanding into Africa as well. It costs about $150 to fully support one of these churches.Later Sunday night all of my diabetes technology needed to be "changed". I refilled my reservoir, changed my infusion set, and inserted and calibrated a new CGM sensor.I was quickly struck by the amount of money involved - the cost of insulin, of my pump, reservoirs, infusions sets, medical tape, CGM sensor, CGM receiver, and test strips.To be totally honest, the feeling that struck me most was one of guilt. How do I reconcile the fact that the same amount of money I just used here (most of which will last for less than a ... Diabetes Daily blogs http://www.medworm.com/rss/comments.php?id=4013426 Wed, 29 Sep 2010 12:37:43 +0100 4013426 http://www.medworm.com/index.php?rid=4003293&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F09%2F27%2F10-challenges-for-parents-with-chronic-illness%2F In the Parents Magazine article, “Mommy Isn’t Feeling Well Today,” Sarah Mahoney interviews many experts: professionals, parents who have chronic illness and sometimes, as in my case, people who are both. I was honored to be among them. The article is impressive in how it covers many of the challenges parents face every day rearing their children while their health is seriously compromised. Below, I summarize the article’s most salient points and add my comments: 1. “Handling chronic illness is about learning to live in balance,” said Rosalind Doran, Psy.D. Many of us learn the hard way that if we don’t pay attention to what and how much we do in all spheres of our lives we can quickly over-do. The result is the same as when the tires on our car a... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=4003293 Mon, 27 Sep 2010 14:50:47 +0100 4003293 http://www.medworm.com/index.php?rid=3987200&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F09%2Fchronically-whiny.html I always think it's going to be different.I say to myself, "This round of treatment, I will exercise and write and continue with my daily routine and see if that makes me feel better."And thent, in the days that follow each dose of vinorelbine and Herceptin, I stay in bed too sick to do anything and lacking the self-discipline (motivation?) to try getting exercise, writing or going about my daily routine.I don't even bother to eat well (although the soup I made the night before chemo was delicious and easy to heat up, so I did eat lots of that) or even do the easy things that might help (I was on the phone with my writing buddy and she asked if I'd been drinking hot water with lemon and ginger. Easy to prepare and she swears by it, yet I had completely forgotten).I don't even drink enough ... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3987200 Mon, 20 Sep 2010 17:42:00 +0100 3987200 http://www.medworm.com/index.php?rid=3854710&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F08%2F43-things-part-three.html 22. One day, when I was small, my aunt bought me a Buster Bar. Before I could eat it, it fell off the stick. She didn't buy me another one. 23 I had Dilly Bars instead of cake on my birthday this year. I ate two.24. I also had a beer during the day on my birthday, something I consider very decadent. I usually only do this with my friends L. and K. (otherwise known as Sassymonkey).25. The day after a social gathering, I spend a lot of time second guessing my behaviour, even when especially when I had a good time.26. I feel guilty about something several times a day. Only recently did I discover that this is not a universal experience. I'm curious what it's like not to feel guilty. 27. My life in treatment is a constant tension between search for structure and then rebellion against sel... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3854710 Wed, 11 Aug 2010 00:35:00 +0100 3854710 http://www.medworm.com/index.php?rid=3849040&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F08%2Fi-get-personal-with-run-for-cure.html This is the text from my page at Run for the Cure site;Thanks for visiting my personal page.I was diagnosed with very agressive breast cancer in January 2006. In November of that year, I learned that it had spread to my liver.My oncologist told me that the were "more tumours than they could count" and when I asked how long I could expect to live, he reluctantly answered, "Years. Not decades."Fast forward to June 2007, when after several rocky months of treatments, I started feeling much better. Then, on June 30th 2007, a scan confirmed what my body had been telling me - there was no longer any sign of cancer in my body!I have been in remission for three years. I'll remain in treatment (chemotherapy and Herceptin every four weeks) for the forseeable future, though. There are so few women in... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3849040 Mon, 09 Aug 2010 17:18:00 +0100 3849040 http://www.medworm.com/index.php?rid=3798561&cid=t_102869_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Ffailure-for-a-doctor%2F2010.07.28 I went to a patient’s funeral this past weekend. I generally don’t do that for people whose relationship I’ve built in the exam room. It’s a complex set of emotions, but invariably some family member will start telling others what a nice doctor I am and how much the person had liked me as a doctor. It’s awkward getting a eulogy (literally good words) spoken about me at someone else’s funeral. This patient I had known prior to them becoming my patient, and his wife had been very nice to us when we first moved here from up north. But that’s not why I am writing this. As I was sitting in the service, the thought occurred to me that a patient’s funeral would be considered by many to be a failure for a doctor. Certainly there are times when that is the case — when the... Better Health blogs http://www.medworm.com/rss/comments.php?id=3798561 Wed, 28 Jul 2010 18:00:12 +0100 3798561 http://www.medworm.com/index.php?rid=3764185&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F07%2F18%2Fare-you-spiritual-or-psychotic%2F In his bestselling book, “Strong at the Broken Places,” Richard Cohen profiles, among five persons living with chronic illness, mental health advocate Larry Fricks. He writes: Larry had been to hell and back and now his spirit soared. “Religion is for people who fear hell,” Larry told me. “Spirituality is for those who have been there.” Life to Larry is not about a church but belief in the human spirit. “Richard, that spirit is why I get up each day.” For him, doctors did not understand this dimension. “Psychiatry tried to beat it out of me, to convince me this was just a symptom of my disease, a psychiatric disorder” “And that was not the whole story?” “No. Even in sickness, I see a spiritual realm that to me is... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3764185 Sun, 18 Jul 2010 12:09:59 +0100 3764185 http://www.medworm.com/index.php?rid=3702982&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F06%2F27%2Fstrong-at-the-broken-places-on-living-bravely-with-chronic-illness%2F I love this man. Richard Cohen. I love him. His mantra is mine. His hope I cling to. He inspires me. He tells the story of coping with his multiple sclerosis and colon cancer in his New York Times bestseller, “Blindsided: Lifting a Life Above Illness.” Awhile back, he came out with a fascinating book, “Strong at the Broken Places: Voices of Illness, a Chorus of Hope,” profiling five brave persons battling illness. Writes Richard, “These are the faces of illness in America. Do not look away. The characters may surprise you, even shatter a stereotype or two. They are people, not cases, survivors, not victims. Quite simply, they are us. they carry shared resolve, a determination to survive. To flourish.” I read parts of the book two years ago. I was especi... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3702982 Sun, 27 Jun 2010 19:27:10 +0100 3702982 http://www.medworm.com/index.php?rid=3666020&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F06%2F16%2Fif-you-build-it-he-will-come-on-pursuing-our-dreams%2F “If you build it, he will come” is the famous line in the classic 1989 flick, “Field of Dreams.” When Iowa corn farmer Ray Kinsella (Kevin Costner) starts hearing voices to build a baseball diamond in his fields — sacrificing all the income from his crop — everyone thinks he’s gone mad. He has. Sort of. But then he sees Shoeless Joe Jackson (Ray Liotta) on the field, and the details begin to fall into place. It’s funny how you pick up different things in a movie depending on where you are in life. The movie came out just as I was graduating from high school and figuring out how to live my life sober. My vision was very black and white then. It has to be in the early days of sobriety, or else you’ll end up drunk. So I remember the &#8220... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3666020 Wed, 16 Jun 2010 11:29:10 +0100 3666020 http://www.medworm.com/index.php?rid=3632401&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F06%2Fwell-hello-there.html Yikes!It's been a while, hasn't it?I seem to have lost my blogging mojo. I remember a while back when Average Jane wrote that her blogging had been derailed (my word, not hers) by Twitter and Facebook. I get that now. Whenever I have a quick observation or a link to share, I can gratify myself instantly with Twitter (I'm lauriek, by the way). And while each tweet does go to Facebook and the sidebar of Not Just About Cancer (on the right - see it there?), it hasn't done much for my blogging.I don't want to give up the blog though, so I'll try and re-commit to posting regularly (how's that for hedging my bets?).On the cancer front, there is a little news. I loved having a break in April. That month also brought another clean CT scan. My oncologist continues to be happy with how things are go... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3632401 Fri, 04 Jun 2010 17:09:00 +0100 3632401 http://www.medworm.com/index.php?rid=3526905&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F05%2Fwhat-we-can-learn-from-other-chronics.html Something else that struck me from my recent interview with D-psychologist Jessica Bernstein was her observation that “we diabetics tend to not see ourselves as part of the larger chronic illness community — which is unfortunate because we miss out on a lot.”  I am sure she is quite right. And yet… It’s simply human nature [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3526905 Mon, 03 May 2010 13:00:40 +0100 3526905 http://www.medworm.com/index.php?rid=3454139&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F04%2Fpictures-big-and-little.html I woke up yesterday morning with a sore throat and a headache.Here we go again. Having a compromised immune system is no picnic. In the last year, I missed my Toronto book launch because of the flu, got H1N1 on the day the vaccine became available, was hit by Norwalk virus when my spouse was away (and found myself crawling along my kitchen floor with a can opener to "make dinner", got pink eye and more little flus and colds than I want to count.Chemotherapy destroys cancer cells. It also destroys the cells that fight illness. Despite the fact that I try to limit my exposure to germs, wash my hands regularly, get enough sleep and eat well (not to mention the ten doses of Neupogen with which I inject myself after every treatment), I seem to fall prey to almost every little bug that passes my... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3454139 Fri, 09 Apr 2010 13:30:00 +0100 3454139 http://www.medworm.com/index.php?rid=3399131&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F03%2Fperspective-in-grey.html On June 30th it will be three years since my first clean scan, after the cancer had spread to my liver.For almost three years, I have had no evidence of disease (been NED, in cancer lingo).And yet I remain in treatment.I am asked frequently why I continue to receive chemotherapy and Herceptin, if there is no sign of cancer in my body. And the truth is that I often ask myself the same question. Certainly, I don't feel like I have cancer. And I do feel that the cumulative effects - both physical and emotional of ongoing treatment are wearing me down.I am stuck in cancer's grey area.My oncologist said to me last summer, "For all we know, you could be cured."We just don't know enough.Another oncologist I spoke to, hinted that some would take me out of treatment at this point. A third suggested... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3399131 Tue, 23 Mar 2010 19:20:00 +0100 3399131 http://www.medworm.com/index.php?rid=3359174&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2Fbasal-testing-a-new-kind-of-torture.html Just when I thought I’d experienced every indignity and inconvenience this disease could dish up, along comes basal testing. I’ve had the Big D for almost seven years now, and I’ve always been told never to skip meals (a good thing too, because I need my meals!). At the same time, I know you’re supposed to [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3359174 Fri, 12 Mar 2010 13:00:01 +0100 3359174 http://www.medworm.com/index.php?rid=3342703&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F03%2F08%2F5-tips-if-you-love-someone-with-mental-illness%2F The National Institutes of Mental Health reports that one in every four adults – approximately 57.7 million Americans – experience a mental health disorder in a given year. One in four, and that’s just the U.S.! And for every person in the world diagnosed with a mental disorder there is at least one, probably more, trying to help, cope and support that person any way they know how. Mental illness is often a family issue. Parents, siblings, spouses and extended family provide housing, care and support, emotional and financial, sometimes to the point of becoming proverbial case managers. It’s hard enough when the chronic illness is something everyone recognizes, like diabetes. It’s a whole other thing when the disease is a mental illness which is ripe for misunderstandi... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3342703 Mon, 08 Mar 2010 13:46:43 +0100 3342703 http://www.medworm.com/index.php?rid=3231742&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F02%2Ffive-things-i-learned-about-lyme-disease.html I know, I know, this is a diabetes blog. But those of you who follow me regularly are probably aware that a new chronic illness has entered our lives — Lyme disease. My husband was diagnosed shortly after we returned from Germany last summer, and it’s turning out to be a much more formidable opponent [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3231742 Tue, 02 Feb 2010 13:00:42 +0100 3231742 http://www.medworm.com/index.php?rid=3227963&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2010%2F02%2Fsoup-and-missing-muse.html I made three soups in January.Red lentil and carrot from Cooking With Foods That Fight Cancer.Broccoli cheddar from Looneyspoons.Jambalaya from Weight Watchers (heavily modified: I substituted white fish for shrimp, used more liquid and had sausage on the side, so folks could choose their level of spiciness. And I didn't use chicken. And I used different spices. This for me, was a wildly adventurous departure).If I don't run out of time today, I plan on making a pre-chemo Sweet potato and roasted garlic soup from the Eat Clean Diet. A friend gave this one to me. I recall it being time consuming but delicious..I have had a post on the tip of my fingers about my current highly ambivalent feelings about my life, identity and treatment but I can't seem to bring myself to write it.In fact, I ca... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3227963 Mon, 01 Feb 2010 17:15:00 +0100 3227963 http://www.medworm.com/index.php?rid=3212547&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F01%2Fwayback-wednesday-keeping-illness-secret.html My 12-year-old daughter’s become obsessed with a website called FMyLife, if you’ll excuse the expression.  It’s a collection of mishaps and hard luck stories that might not be a bad model for the StupidDiabetes.com concept we discussed here, come to think of it. But what I wanted to point out was an entry about diabetes that [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3212547 Wed, 27 Jan 2010 14:00:17 +0100 3212547 http://www.medworm.com/index.php?rid=3182345&cid=t_102869_136_f&fid=39025&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Feverythingchangesbook%2F%7E3%2F35Xz2Z3VC6U%2Fweddings-cancer-chronic-illness I love weddings (almost obsessively so) and am thrilled for anyone who is currently engaged.  But, sometimes it is damn hard dealing with wedding planning season when you’ve got cancer or a chronic illness. Being single with cancer and no date at my brother’s wedding was hard.  I was in the midst of breaking up with a guy who couldn’t say the word “cancer”.  I was so happy for my brother and didn’t want to feel like a self-pitying sister or that I was detracting from his moment.  I tried to keep my mouth shut about it all.  I also dreaded all of the guests telling me how grrrreat I looked in that wacko-cancer-pity-adoration way.  But for all of my angst leading up to it, I decided to go totally solo, not even bring a friend date and it was the most fun wedding I�... Everything Changes blogs http://www.medworm.com/rss/comments.php?id=3182345 Mon, 18 Jan 2010 12:57:33 +0100 3182345 http://www.medworm.com/index.php?rid=3172176&cid=t_102869_136_f&fid=39025&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Feverythingchangesbook%2F%7E3%2FeRIMicFz4UA%2Fpatients-for-a-moment-down-and-dirty Sifting through the emotional, administrative, and financial trauma of dealing with illness, being sick ultimately all comes back to the body.  So for this installment of Patients for A Moment, we asked that bloggers submit posts about the down and dirty physical world of their disease. Ever pulled a serious MacGyver providing your own home healthcare with saline solution and a turkey baster?  Duncan Cross has and writes about it in on the Duncan Cross post Duncan 1, Hospital 0. “I guess if I had a choice, I’d rather wake up next to some ugly guy that I don’t remember meeting – not that, that has ever happened to me before – because it’s really bad when the party you don’t want to wake up next to is yourself…”  Need I say more about Leslie Rott’s post The Ultimate Co... Everything Changes blogs http://www.medworm.com/rss/comments.php?id=3172176 Wed, 13 Jan 2010 23:33:42 +0100 3172176 http://www.medworm.com/index.php?rid=3153600&cid=t_102869_136_f&fid=39025&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Feverythingchangesbook%2F%7E3%2Fr6bpqInPPUk%2Fcommunication-cancer-friends It’s great to vent online with like minded patients about how we’d like to tell off the friend, family member, co-worker, or doctor who made the stupidest comment to us about our illness. But venting only goes so far.  I’m more interested in the realistic responses we can use that might make us feel better.  Fasten your seat belts, this post is gonna sound a bit therapisty, but screw it – it’s an important topic, so here I go! It’s so frustrating and soul corroding to have someone shower you with stupidity.  And it’s even worse to think of the perfect comeback three hours later when you are laying in bed.  So I’ve started to turn these situations around. Here’s an example: A friend recently said: “You gotta think positively and it will make your test results com... Everything Changes blogs http://www.medworm.com/rss/comments.php?id=3153600 Fri, 08 Jan 2010 12:59:17 +0100 3153600 http://www.medworm.com/index.php?rid=3118921&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2009%2F12%2F24%2F10-ways-to-bring-christmas-cheer-to-a-friend-in-the-hospital-for-the-holidays%2F Disease and trauma do not take a holiday. Many of us have loved ones in the hospital for all kinds of reasons. We want to do what we can for them, our brothers, sisters, friends, parents, children, who find themselves in strange surroundings during this supposedly most joyous of times. Fifteen years ago, a few weeks before Christmas, I was suddenly admitted to Women and Children’s Hospital. I was five months pregnant with my daughter and I was very sick. With my history of kidney disease and scleroderma, I chose a maternal-fetus specialist to be my OB-GYN. Trained in situations like mine, where the mother has chronic illness which makes the pregnancy high risk, I had every faith in Dr. Margaret McDonnell. My first pregnancy had gone off without so much as a cold. This time Margaret s... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3118921 Thu, 24 Dec 2009 14:37:27 +0100 3118921 http://www.medworm.com/index.php?rid=3108529&cid=t_102869_136_f&fid=39025&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Feverythingchangesbook%2F%7E3%2F-s_YGxiBiQg%2Fcancer-holidays I was asked to write a guest blog post for Dear Thyroid about having cancer around the holidays.  But being an atheist-Jew, I truly was at a loss for words. I had to pass. This is just not a subject I know much about. So I thought I would turn it over to you guys to educate me a bit more about what the holidays hold in store for anyone who is facing illness.  Have at it.  Leave a comment with stories, kvetching, tips, rants, or good memories about what it is like to be sick and dealing with: Family, food, lethargy, expectations, looking like crap, feeling like crap, feeling great when others think you should feel like crap, travel, germs, sibling rivalry, office parties, being broke, being grateful to be alive, wondering if this is your last Christmas, being on chemo or in the middle of... Everything Changes blogs http://www.medworm.com/rss/comments.php?id=3108529 Mon, 21 Dec 2009 07:07:32 +0100 3108529 http://www.medworm.com/index.php?rid=3092872&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F12%2Fwayback-wednesday-diab-entity-crisis.html As a sort of addendum to this Monday’s post, I can’t believe I wrote the following testimonial four whole years ago. Ever more confirmation that the more things change, the more they stay the same: Diab-entity Crisis Sometime in the middle of last week, as I was gazing at my blog banner and mulling over my next [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3092872 Wed, 16 Dec 2009 13:00:59 +0100 3092872 http://www.medworm.com/index.php?rid=3092891&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F12%2Foh-oh.html "CT scan radiation may cause cancers"but on the other hand"Study: Coffee and tea may lower diabetes risk" (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3092891 Tue, 15 Dec 2009 17:30:00 +0100 3092891 http://www.medworm.com/index.php?rid=3056838&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F12%2Fhello-again.html I'm back.All is well here, I just used up all my writing mojo in November writing a novel (more on that experience in a future post).Then I took a few days off to hang out with a wonderful friend and, well not write for a few days,And while I was gone from the blog November 24th (the anniversary of my diagnosis of metastatic breast cancer) and December 2nd (the anniversary of the night I found the first lump) came and went. I noted both events in passing, took the time to breathe deeply and be grateful, and then got on with my day.It's been four years since I found the lump. It's been three since the cancer spread to my liver. And it's been two and a half years since my first clean scan.I had an appointment with my oncologist yesterday. I had nothing to tell him. He said, "Shall we keep dr... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=3056838 Thu, 03 Dec 2009 20:03:00 +0100 3056838 http://www.medworm.com/index.php?rid=2984983&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F11%2Fmy-husbands-chest.html You don't need to tell me how lucky I am.I have a roof over my head, great medical care and I'm surrounded by people who love me.And don't think I forget how very lucky I am to be alive at all. Why did I get to go into remission? Why me? I am indeed very fortunate.But there are times when I do feel sad that I will never put this cancer behind me. I feel the toll ongoing treatment takes on my body and my emotional well being.So last night I stood in my kitchen, with my head on my husband's chest (we say we were built for each other. My head lands flat on his chest and tucks under his chin). He put his arms around me and we just stood there, breathing together.He didn't need to say anything. He understood my frustration. Only a few hours before I was finallly feeling sharp and healthy and en... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2984983 Wed, 11 Nov 2009 19:33:00 +0100 2984983 http://www.medworm.com/index.php?rid=2977528&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F11%2Faware-of-irony.html Life is funny.This morning was perfect weather for a bike ride. The sun was out and the temperature climbed to 17C (that's 62.6 in American). It was my first time on the bike in more than a week - since before the plague toppled my family, like a series of dominoes.It was a fun ride, and I didn't even mind the big hill I have to climb on my way to the hospital. I arrived twenty minutes after I set out, a little sweaty and with my heart pumping. As I locked up and headed into the cancer centre, I noted with pleasure that I hadn't been coughing."It feels good to be healthy."I very nearly said it out loud.I was suddenly struck by the absurdity of my situation. Here I was, going to get my bloodwork done the day before chemo and thinking about how healthy I am.Three years ago, at almost exactly... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2977528 Mon, 09 Nov 2009 19:26:00 +0100 2977528 http://www.medworm.com/index.php?rid=2939449&cid=t_102869_129_f&fid=36036&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fkelly-building-a-crohns-disease-community%2Fworking-from-home-with-chronic-illness%2F It is such a shame that working from home has such a bad stigma associated with it.  Managers feel like if they don’t see their employees sitting at their desk busily chugging away, then they are not working.  For me, sometimes I am a lot less efficient at work than if I just stayed home and worked – especially if it is a really bad day.  I read an article a while back about how workers who work from home really aren’t working, but instead are goofing off without being seen by the boss.  I got upset by this article because of all of the people (like me) who actually work when working from home and hate that it takes just a few losers to spoil things for those who really need it. When I worked in Europe, I was very fortunate to have a boss who didn’t care where I worked as long ... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2939449 Wed, 28 Oct 2009 19:59:58 +0100 2939449 http://www.medworm.com/index.php?rid=2934919&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F10%2Fchemotherapy-and-h1n1-vaccine.html As someone in ongoing chemotherapy, I have a compromised immune system. This puts me at increased risk for contracting H1N1.I am among the priority groups established by the City of Ottawa, as is my family, and were it not for the hours long lineups (several centres closed the lineups by late afternoon), I would have had my shot yesterday.I did call the oncologist yesterday to ask about interactions between Neupogen (the drug I take after chemo to boost my white blood cell count and fight infection). When I didn't hear back immediately I checked with the cancer centre receptionist who, told me (after checking with someone) that I should go ahead and get the shot.Today, the nurse who works with my oncologist called and told me to wait.The reasoning goes as follows:Chemotherapy suppresses th... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2934919 Tue, 27 Oct 2009 18:01:00 +0100 2934919 http://www.medworm.com/index.php?rid=2927536&cid=t_102869_136_f&fid=39025&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Feverythingchangesbook%2F%7E3%2FWA8FzyICK1M%2Faddicted-to-your-illness I have spent the last six years reading, researching, and writing about cancer.  I am so fulfilled by this work, but sometimes I wonder if it is always the healthiest choice of how to spend my time. My cancer has never been in remission and it could be with me for a long while yet. Cancer is an uninvited companion in my body, but that doesn’t mean it always has to be on my mind.  Usually my expertise about young adult cancer seems like a great asset that benefits my own care and helps others too.  But lately I’ve been wondering if I have built a little cancer trap for myself. Right now I have the luxury of feeling well.  I don’t look or feel like a cancer patient, but I think and write like one.  What would I write about and how would I spend my time if I moved cancer from the f... Everything Changes blogs http://www.medworm.com/rss/comments.php?id=2927536 Mon, 26 Oct 2009 12:00:37 +0100 2927536 http://www.medworm.com/index.php?rid=2814634&cid=t_102869_134_f&fid=35187&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FDiabetesDaily%2F%7E3%2FYtEMvTqxFVg%2Frosemary-ellis-good-housekeeping-has.php I was diagnosed with type 1 diabetes as a little girl. There isn't much I remember about life before this wonky auto-immune disease set in, especially since I've had it for twenty years now. Things have changed a lot in the past two decades, and the way we handle carbs and insulin and testing is much better in 2009, though the rigors of handling the ups and downs of the disease will not and have not changed. Believe it or not, the biggest advice I have to anyone newly diagnosed depends on what age they are. For me, I got diabetes as a kid and I handled it like a kid for a long time. It's just different getting type 1 as a little girl vs. as an adult. I'm often surprised how vigilant some recently dx'd adults are with handling their diabetes compared to how I handle it having been diagnosed... Diabetes Daily blogs http://www.medworm.com/rss/comments.php?id=2814634 Mon, 21 Sep 2009 18:38:08 +0100 2814634 http://www.medworm.com/index.php?rid=2814650&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F09%2Ftired.html I've been really struggling with insomnia lately. Falling asleep is tricky enough, but remaining asleep is the real challenge.Most nights, I find myself awake plagued by questions:Where do I know the actor from who played the handyman in The Waterhorse?Should we have washed the dogs before we cleaned the carpets?What if my oncologist ordered a thoracic CT scan so soon after my last abdominal one because they heard something during my last exam (and not just because I hadn't had one in a long time)?Is the hat I'm making for D. going to be too small?Was the other movie The Truth About Cats and Dogs? (I looked it up. His name is Ben Chaplin and it he was the actor in both movies).Was I sent for two CT scans two weeks apart because of poor planning (or poor communicaiton) or is there something... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2814650 Mon, 21 Sep 2009 17:30:00 +0100 2814650 http://www.medworm.com/index.php?rid=2809717&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2009%2F09%2F19%2F8-survival-tips-for-the-spouse-of-a-terminally-ill-person-an-interview-with-owen-surman-md%2F Recently I had the honor of interviewing Owen Stanley Surman, M.D., a practicing hospital psychiatrist known internationally for his work on psychiatric and ethical aspects of solid organ transplantation. Following the death of his wife, Dr. Surman devoted six years to writer a memoir, “The Wrong Side of an Illness: A Doctor’s Love Story,” which includes a deeply personal and unique view of events both tragic and transcendent. He now lives in Boston with his new wife.   Question: What words of wisdom would you give the spouse of a person struggling with chronic illness or terminally ill? Dr. Surman: Chronic illness and terminal illness have a pervasive impact on how we live our lives and in our sense of identity. Loss of a loved one affects the part of ourselves that... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=2809717 Sat, 19 Sep 2009 13:55:18 +0100 2809717 http://www.medworm.com/index.php?rid=2807843&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F09%2Ffrequent-flyer.html I had chemo on Tuesday. It was kind of a long day (I started with bloodwork at 8:30 and left the hospital at 3:30) which passed quickly due to the company of a really good friend. We had so much to say to each other that we needed the whole day to cover everything (except for when I was sleeping. The demerol/gravol combo really does knock me out).It would have been an even longer day if I hadn't been on the receiving end of a little preferential treatment. At one point, the nurse who coordinates the chemo floor came out to reception and wrote on the notice board that they were running an hour behind schedule. I happened to be standing nearby and she caught my eye and said to me, in French, "environ" (approximately). I was surprised, then, when my name was called a few minutes later. I pass... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2807843 Thu, 17 Sep 2009 18:59:00 +0100 2807843 http://www.medworm.com/index.php?rid=2796693&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F09%2Fanother-diagnosis-in-the-family-lyme-disease.html Up until now it’s been all about me and my #$%@ chronic illness. That wasn’t so bad, for me. Far tougher is the realization that someone you love — someone who’s been the rock of your existence — may not be so invincible after all. Although nothing truly catastrophic has happened, a little [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2796693 Tue, 15 Sep 2009 13:52:33 +0100 2796693 http://www.medworm.com/index.php?rid=2786243&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F09%2Fct-results.html "It's good news!" said the voice on the other end of the phone. She sounded ecstatic. When you are nurse working in oncology, relaying good news must come as a welcome change."You're kidding!" I exclaim. Then, "I don't know why I always say that."She laughs. "Well, there is no change. It's stable." Seriously, she sounded giddy. We giggled some more.She said, "You have a wonderful week end." She really sounded like she meant it.Suddenly, I'm in the mood to celebrate. I already have dinner plans. And I probably would have had a beer anyway (they have Beau's. How could I resist?).Now, I may have two. But I doubt it. I will just enjoy the beer, the food and the company (six people I love), even more. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2786243 Fri, 11 Sep 2009 18:17:00 +0100 2786243 http://www.medworm.com/index.php?rid=2768814&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F09%2Fi-do-run-on.html The echocardiogram was fine, the doctor found nothing unusual when she examined me, my butt is sore today from all the biking, the technician got the vein on the first try before the ct scan, I will have results in about a week, I got to go on a great walk with my sister today, my kids and spouse have just left on a two night canoe trip and this evening, I am going out for a grown-up dinner.Life. Is. Good. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2768814 Fri, 04 Sep 2009 21:30:00 +0100 2768814 http://www.medworm.com/index.php?rid=2762116&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F09%2Froutine-anxiety.html Today and tomorrow I will make a total of three trips to the General Hospital for tests and an appointment with my oncologist (I toyed with the idea of staying at the hospital all day today but, with 4 and half hours between appointments, I chose to come home. This will mean an extra bike ride up the big hill that is Smythe Rd but I have chosen that as the lesser of two evils).These appointments will probably never stop making me anxious but I am feeling especially stressed out right now, perhaps because the timing is so compressed.This morning, I had an echo-cardiogram. This afternoon, I see the oncologist (My appointment was set a week earlier than it usually is in the cycle and his nurse insisted that I come in for the appointment, as opposed to calling in. This can't have anything to d... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2762116 Thu, 03 Sep 2009 17:15:00 +0100 2762116 http://www.medworm.com/index.php?rid=2744161&cid=t_102869_117_f&fid=38158&url=http%3A%2F%2Famericanacupuncture.blogspot.com%2F2009%2F08%2Fliving-with-chronic-illness.html As a medical physician for over 50 years, I strive to give you the best medical information on controversial medical subjects and let you, the reader, come to your own conclusions. I have no ties to any organization, pharmaceutical, or lobby group. As an practicing medical acupuncturist since 1982, I find western medicine and medical acupuncture are very complimentary that results in astounding healing in pain management, addictions to cigarettes and food, and a host of other maladies. Let me know how we are doing. Your constructive comments are always appreciated. Click the RSS post button on the upper right hand corner if you would like to receive by email our future medical blogs. Visit http://www.americanacupuncture.com/ for more detailed information on healing.LIVING WITH CHRONIC ILLN... Dr. Needles Medical Blogs blogs http://www.medworm.com/rss/comments.php?id=2744161 Sat, 29 Aug 2009 01:39:00 +0100 2744161 http://www.medworm.com/index.php?rid=2741427&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2009%2F08%2F28%2Fself-esteem-the-great-weight-debate-acceptance-v-diet%2F Here’s the thing. There are people out there who hate their body for what it is. A lot of overweight people judge themselves in a way they would never judge anyone else. When we get like this, every ounce of our self-esteem is wrapped up in what the scale says. Our lives are measured by pounds lost and gained from day to day, week to week, month to month. At its worst, this way of thinking can lead to a serious, life-threatening eating disorder. But even at its best, self-esteem/weight dependency is not good. Yes, I struggle with being overweight, but I try not to hate myself for it. I am grateful for my body. It’s worked hard to keep me healthy over the years through all my relapses and dealings with chronic illness. God made us the stewards of the earth and our bodies. It&#82... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=2741427 Fri, 28 Aug 2009 10:51:45 +0100 2741427 http://www.medworm.com/index.php?rid=2716167&cid=t_102869_134_f&fid=35187&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FDiabetesDaily%2F%7E3%2FVA_2gplX7NY%2Fcan-you-see-me.php Did you know that September 14th to 20th is National Invisible Chronic Illness Awareness Week? I didn't know about it until recently, but now am thinking of what I can do to bring awareness to diabetes related issues specifically during that week. As a bit of a warm-up to the event, this week the Grand Rounds Blog Carnival focused specifically on invisible illness. Naturally there were a few mentions of diabetes. See if you can spot some familiar names and posts (hint: pay particular attention to the "tests and to-do lists" section). A special thanks to fellow Diabetes Daily blogger Rachel who told me about the blog carnival and encouraged me to submit my post. (Source: Diabetes Daily) Diabetes Daily blogs http://www.medworm.com/rss/comments.php?id=2716167 Wed, 19 Aug 2009 13:29:44 +0100 2716167 http://www.medworm.com/index.php?rid=2705107&cid=t_102869_86_f&fid=38272&url=http%3A%2F%2Flaikaspoetnik.wordpress.com%2F2009%2F08%2F17%2Finvisible-chronic-illness-addisons-disease%2F This week the Grand Round will be hosted by Invisible Illness Week, a blog dedicated to the National Invisible  Ilness Week, which runs September 14 -20, 2009. The purpose: National Invisible Chronic Illness Awareness Week  (..) is a worldwide effort to bring together people who live with invisible chronic illness and those who love them. Organizations [...] (Source: Laika's MedLibLog) Laika's MedLibLog blogs http://www.medworm.com/rss/comments.php?id=2705107 Mon, 17 Aug 2009 04:06:58 +0100 2705107 http://www.medworm.com/index.php?rid=2859076&cid=t_102869_136_f&fid=39025&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Feverythingchangesbook%2F%7E3%2FBKpoOcbFzoY%2Fcancer-sex-illness This post is much longer than usual but is so raw, eloquent, and well worth taking the time to read.  Leslie Rott is a 23 year-old lupus patient and grad student at University of Michigan.  She’s the creator of Getting Closer To Myself blog. Take it away Leslie: I have been struggling for a while, feeling like I needed to write a post about sex/relationships, but it never felt like the right time, until I read the book Everything Changes in which Kairol writes: “In my first two years of living with cancer, the number of men I slept with had more than doubled”. When I read this sentence, I stopped cold. This line got to me because it is me – the same thing happened to me in my first two years of living with lupus. Well, if you go from zero sexual partners in 23 years, ... Everything Changes blogs http://www.medworm.com/rss/comments.php?id=2859076 Fri, 14 Aug 2009 18:20:21 +0100 2859076 http://www.medworm.com/index.php?rid=2572978&cid=t_102869_111_f&fid=36048&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAHeartyLife%2F%7E3%2Fd4L-0ljAPxA%2F Reaction to illness depends on how severe the illness is, how long it lasts, and a variety of other things. Usually, if a good friend is diagnosed with an illness like cancer or has an unexpected surgery, friends come up with plans like helping with meals, transporting kids, and so on. Even the shorter-term illnesses, like pneumonia, are taken care of by people sending chicken soup or bringing you a book to read. But what happens when someone has a chronic illness, like fibromyalgia or chronic fatigue syndrome? When they’re not always in-your-face ill, but they have times when they feel desperately ill or just too ill to face the world? Since it’s a chronic illness that can literally last a lifetime, what is a well-meaning friend to do? There’s a great post over at But Yo... A Hearty Life blogs http://www.medworm.com/rss/comments.php?id=2572978 Mon, 06 Jul 2009 00:15:57 +0100 2572978 http://www.medworm.com/index.php?rid=2512857&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F06%2Fyou-cant-always-get-it-channelling.html Mixed results from my appointment with my oncologist yesterday. First of all, I was late. As I was riding to the hospital, I noticed that it was getting harder and harder to pedal. When it actually became impossible, I got off the bike and checked. My front brake was squeezing the front wheel. Hard. I think I had been riding like this for some time - and tightening every time I braked. I just thought I was tired and out of biking shape. I solved the problem by releasing the front brake entirely (I'm sure that's not the safest thing). This meant that when I hit the big hill before the hospital, I was already wiped out from pedalling with all that friction.I arrived at the cancer centre twenty minutes late and a hot, red, sweaty mess.When I finally saw my doc, he easily agreed to a break in ... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2512857 Thu, 18 Jun 2009 16:08:00 +0100 2512857 http://www.medworm.com/index.php?rid=2406029&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F05%2Fcash-would-be-nice.html The last time I checked in for chemo, I accidentally handed the receptionist my Subway card, instead of my green hospital card.She thought this was so funny, that she showed everyone in the room. I pretended to be angry, trying to grab the card back. It felt good to laugh in that, sometimes sad, place.I told her though, that my subconscious had been at play. I gave her the Subway card because I feel that after so many rounds of chemo, I should get some sort of bonus prize. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2406029 Wed, 13 May 2009 14:00:00 +0100 2406029 http://www.medworm.com/index.php?rid=2405953&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F05%2Fblogging-about-our-doctors.html Is it OK for patients to chatter away about their doctors online, while those doctors remain under oath not to disclose patient information?  And yet, some doctors do blog about interactions with their patients. Last Friday, I was a guest on a Podcast hosted by Albert Maruggi, creator of the Social Media Throwdown series, on this [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2405953 Tue, 12 May 2009 13:00:18 +0100 2405953 http://www.medworm.com/index.php?rid=2390147&cid=t_102869_129_f&fid=36036&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fkelly-building-a-crohns-disease-community%2Fliving-with-chronic-illness-during-the-swine-flu-era%2F Swine flu seems to be the new buzz words and there seems to be a lot of panic out there concerning this flu right now.  I would like to talk about this from the perspective of a mother, wife and Crohn’s disease patient. First thing I want to say is don’t panic! These are the words written on the front of the Hitchhikers Guide to the Galaxy and they are very appropriate today.  I also encourage you to get the facts.  Everyday Health has key facts about the swine flu. For some reason, the virus is a lot worse in Mexico than in the US.  I asked my general doctor on Friday if I needed to be concerned about this outbreak and if I should run out and get a supply of Tamiflu.  He told me that I actually should be a lot better off since I don’t have a normal immune system and am on immun... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2390147 Wed, 06 May 2009 21:38:37 +0100 2390147 http://www.medworm.com/index.php?rid=2365302&cid=t_102869_129_f&fid=36035&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Flife-with-chronic-pain%2Fplease-dont-ask-me-how-i-feel%2F Unfortunately, as far as I know, there is no rule book or manual on how healthy people should treat others who have chronic illness. I know it’s difficult for those who love us to see us suffer and live altered lives. I know they “mean well,” but come on. It really becomes irksome, tiring and aggravating. You’re allowed to ask me that question if you’re my husband, my daughter, one of my two sons named Jeff (son-in-law included) or one of my physicians. I find that, “How’re you feeling?” is the opening line of most of my conversations with well-meaning friends, acquaintances and even some more distant family members. I grow tired of answering. I’m fatigued from the repetition. I’m weary of the sense of expectation that accompanies each question about my health. I know I... Life with Chronic Pain blogs http://www.medworm.com/rss/comments.php?id=2365302 Fri, 24 Apr 2009 19:24:46 +0100 2365302 http://www.medworm.com/index.php?rid=2313539&cid=t_102869_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2009%2F04%2F07%2F8-ways-to-keep-going%2F A woman who lives with chronic pain said to my mom the other day, “You can’t sit around and wait for the storm to be over. You’ve got to learn how to dance in the rain.” That’s a perfect description of living with depression, or any chronic illness. But what do you do on the days you don’t think you can take the pain anymore? When you want so badly to be done with your life … or at least be done with the suffering? What do you do when anxiety and depression have spun a web around you so thick that you’re convinced you’ll be trapped forever in those feelings? I’ve compiled a few tools for moving past that harrowing darkness, suggestions on how to emerge from a place of panic, and techniques on how to dance in the rain. 1. Escape ... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=2313539 Tue, 07 Apr 2009 18:08:20 +0100 2313539 http://www.medworm.com/index.php?rid=2260489&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F03%2Fwhat-if.html "We have all the tools to eliminate mortality from Her2 positive breast cancers in the next 10 years."-Dr. Eric Winer, Director, Breast Oncology Centre, Dana-Farber Cancer Institute (February 28, 2009, 9th Annual Conference For Young Women Affected By Breast Cancer).Her2 is a protein. And it fuels cancer cells. Her2+ breast cancers are always very aggressive and, had I been diagnosed before Herceptin was widely available, I am sure that I would not be alive today. Now, a whole host of new drugs are being developed to attack this breast cancer that affects primarily younger women.Dr. Winer's words are among the most hopeful that I have heard in a long time.And then today, I heard a story on the CBC about a man who is being forced to choose between taking an oral chemotherapy drug for his br... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2260489 Wed, 11 Mar 2009 01:58:00 +0100 2260489 http://www.medworm.com/index.php?rid=2241118&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F03%2Fliving-with-it.html I have just come back from an echo-cardiogram appointment (I have regular echos to make sure that Herceptin isn't damaging my heart) or rather what I thought was an echo appointment. It had previouslybeen scheduled for Thursday, February 26 (when I was travelling to Dallas for the Conference for Young Women Affected By Breast Cancer) and I'd had to reschedule. I had entered the appointment (I use Google Calendar) for Friday, March 6 at 3pm. It turns out the appointment is for Tuesday, March 10th, at 3pm.Since I was told about the appointment over the phone, I have no idea where along the channel of communication the mistake was made - as it came out of the caller's mouth, or as it went through my (increasingly sieve-like) brain. I guess it doesn't really matter, though (and next time, I wi... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2241118 Fri, 06 Mar 2009 22:09:00 +0100 2241118 http://www.medworm.com/index.php?rid=2222552&cid=t_102869_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F02%2Fsurviving-on-hope.html Another post that first appeared on the Diabetes OC site when I was “Featured Blogger of the Week” over the holidays.  This one kind of sums up what keeps me going, even on the worst D-days… Hope If I’ve learned anything about living with diabetes (see my previous post here), it’s that attitude is everything. When other people [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2222552 Sat, 28 Feb 2009 19:56:55 +0100 2222552 http://www.medworm.com/index.php?rid=2173029&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F02%2F25-truly-random-things-about-me.html I am definitely on the mend but still sick (less nausea, light-headed and now sneezing my face off). It seems to me a good day to finally get to this "25 things" meme that I keep getting tagged for on Facebook. I just came back from getting some fresh air with the dogs and many of these are things I thought about when I was out. I make no promises about whether or not I have written any of this before. And since my mother reads my blog, I may engage in a bit of censorship (Hi Mom! I love you!).1. When I become interested in something, I tend to read everything I can on that subject.2. My current interest is Enneagrams.3. I am a 1.4. I am married to a 9.5. These two facts actually help me to understand my life a lot better.6. My spouse and I have been together almost 18 years.7. My longest ... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2173029 Mon, 09 Feb 2009 20:13:00 +0100 2173029 http://www.medworm.com/index.php?rid=2144653&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F01%2Fsalty.html Whenever I have bloodwork done before chemo, the nurse will flush out my port with saline. I always get a salty taste in my mouth and in the back of my throat.Lately, I have been getting that taste when I am out walking my dogs in the city. I have a lot of winters under my belt but this is the first time I have noticed this. I don't know whether there is more salt on the streets this year or if more of it is being churned up by the extra traffic (there certainly more, along with more pollution from exhaust since the bus trike started five weeks ago). It freaks me out a little.A couple of week ends ago, I woke up to find out that the power was out in half the house. The living room had no power, the dining room was fine. Our bedroom had no power. The other upstairs rooms were OK. The furnac... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2144653 Thu, 29 Jan 2009 18:49:00 +0100 2144653 http://www.medworm.com/index.php?rid=2141427&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F01%2Fsome-days-are-blue-some-days-are.html I have been feeling kind of blue these last few days. I'm always relieved after I get good scan results but a feeling of let-down seems to follow almost every time and I find myself, once again, channelling Peggy Lee and asking "Is that all there is?"I just finished the latest round of edits on my book (coming out this spring with Women's Press!) and I have been left wondering, 'so, what's next?'I haven't looked at the outline for my novel since I submitted it for my writing course on December 31st. The course is over and I am feeling kind of daunted. I've been asking myself, "Can I do this?" and "What purpose would it serve?"This morning, I had an appointment with my wonderful oncologist who confirmed my CT results. He also referred to my "normal" life.I told him that I have been feeling ... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2141427 Wed, 28 Jan 2009 20:19:00 +0100 2141427 http://www.medworm.com/index.php?rid=2115911&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F01%2Fright-to-point.html This blog is having an existential crisis. I don't seem to write that much about cancer these days. A more appropriate title might be in order ("Occasionally About Cancer?" "Not Just About Life, Kids, Dogs, Books, Weather Extremes and Cancer"?) but then how would people find me?I was interrupted by the phone ringing. This is the subsequent telephone conversation, transcribed pretty much verbatim:A (nurse who works with my oncologist, returning my call about my most recent CT scan results*): "May I speak to Laurie, please?"Me: "This is Laurie."A: "Hi, it's A. from the cancer centre."Me: "Hi A."A: "Everything's fine. No change."Me: "Yay! Yay! Yay! Thank you, A!"A: "You're welcome! Bye!"The cancer centre's stated policy is that they do not give out results over the phone but my oncologist has... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2115911 Mon, 19 Jan 2009 17:41:00 +0100 2115911 http://www.medworm.com/index.php?rid=2090065&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2009%2F01%2F2008-in-review-year-of-first-sentences.html I stole this idea from Average Jane. Her end result, however, was much more interesting than mine (I wrote 30 posts in November and all you get is "Happy November!"). I also seem to like starting my posts with very short sentences. And I believe that I wrote about American politics far less than you would think from what you read below.Anyway, here's my year in review, presented via the first sentence of the first post of each month.January: I am doneFebruary: I saw the doctor who works with my oncologist on Wednesday.March: The world lost a major talent yesterday.April: I have been thinking a lot lately about cancer as a chronic illness.May: I am not even supposed to know this yet.June: Meet Lucy (she's the furrier one, on the right).July: A few years ago, back in what seems another lifet... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2090065 Thu, 08 Jan 2009 21:44:00 +0100 2090065 http://www.medworm.com/index.php?rid=2067391&cid=t_102869_111_f&fid=34712&url=http%3A%2F%2Fdigitaldoorway.blogspot.com%2F2008%2F12%2Fpersonal-suffering-and-experience-of.html Compassion for those who are suffering is a very human emotion which, when filtered through the lens of one's own suffering, can be honed and developed into a powerful tool of perception and empathy. I have found that my work as a nurse has been directly informed by my ability to empathize with the suffering of others, and my own personal challenges do indeed increase my level of compassion for those with whom I come into contact.Grief, for example, is a universal human emotional experience common to anyone who has suffered a significant loss, and the nature of that loss is not necessarily a determining factor vis-a-vis the severity, breadth and depth of the suffering that thereby ensues. The loss of a job, a career, a pet, a loved one, a way of life, one's independence, a home, a long che... Digital Doorway blogs http://www.medworm.com/rss/comments.php?id=2067391 Sun, 28 Dec 2008 07:39:00 +0100 2067391 http://www.medworm.com/index.php?rid=2067392&cid=t_102869_111_f&fid=34712&url=http%3A%2F%2Fdigitaldoorway.blogspot.com%2F2008%2F12%2Fcost-of-chronic-disease.html A recent press conference sponsored by the Partnership to Fight Chronic Disease (PFCD) revealed a startling statistic: chronic disease costs the American taxpayer more than two Wall Street bailouts per year. (To listen to the press conference or download a transcript, click here.)According to PFCD, 45% of Americans live with a chronic illness; poorly controlled asthma sends 5,000 people to the ER every day; and obesity rates of American teenagers has tripled in the last 20 years.Perusing the PFCD website, it's obvious that there is a great deal of optimism being verbalized vis-a-vis the opportunity that Barack Obama and his administration have in terms of addressing chronic illness and health care reform. Improvement in the management of chronic illness is seen as a clearly bipartisan issu... Digital Doorway blogs http://www.medworm.com/rss/comments.php?id=2067392 Sat, 27 Dec 2008 18:28:00 +0100 2067392 http://www.medworm.com/index.php?rid=2033317&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F12%2Fboy-we-were-young.html In our early thirties but still so young, in hindsight. There are two kids now. The babe in this picture is just a head shorter than I am.I have not seen T. without a beard since shortly after this was taken. We have lots more gray hair between us.We still have that red couch. So much has happened since this picture was taken. There's not much I would change. Except for the cancer.But not much else. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2033317 Fri, 12 Dec 2008 18:24:00 +0100 2033317 http://www.medworm.com/index.php?rid=2027651&cid=t_102869_134_f&fid=36049&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FDiabetesNotes%2F%7E3%2FAdqaJZwG1z8%2F var iamInit = function() {try{initIamServingHandler(420,633,333374,"http://cdn.pis.picapp.com/IamProd/Resources/Css/css2.css")}catch(ex){}}() Depression is a big problem with diabetes. There have been times when I’ve gotten down about keeping my blood sugars in check. Anytime a chronic illness is involved, it becomes mentally taxing to deal with it every single day. According to BD Diabetes, “In a study of more than 11,000 U.S. veterans with type 2 diabetes, the investigators found that over a decade, those diagnosed with depression consistently had a higher average hemoglobin A1C level.” I’m not sure what to make of this study. As I said, I’ve experienced some down periods emotionally, but my blood sugars are always in the recommended range. I do think, howe... Diabetes Notes blogs http://www.medworm.com/rss/comments.php?id=2027651 Wed, 10 Dec 2008 12:17:48 +0100 2027651 http://www.medworm.com/index.php?rid=2028454&cid=t_102869_122_f&fid=36582&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FSharpBrains%2F%7E3%2F479667410%2F "If Dr. Rob can interview Santa, why can't I interview a select group of health & medical bloggers? They will have some good ideas to share". So did President-elect Obama came to realize a few days ago. After his people kindly contacted our people, we felt compelled to grant him open access to our collective wisdom. Without further ado, below you have Grand Rounds 5:12 - a Q&A session led by the incoming President on how to reform (for the better, we hope) healthcare. On Health Insurance Q:  How does the blogosphere perceive the problem of having a significant group of people uninsured? Health Insurance Colorado: a growing economic burden, which may lead to emergency rooms turning people away if they are unable to provide proof of health insurance. Dr Rich: well, ... SharpBrains blogs http://www.medworm.com/rss/comments.php?id=2028454 Tue, 09 Dec 2008 19:28:09 +0100 2028454 http://www.medworm.com/index.php?rid=2005959&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F12%2Fday-my-life-changed.html I had an echocardiogram today. They are a pretty routine part of my life; I have them every few months to make sure that the Herceptin isn't damaging my heart. So far, so good.It's kind of boring lying there, so I started to play a little game with myself. When I lay down at the beginning of the test, my resting hear rate had been 65 bpm (beats per minute), when I worried about my results, I noticed that it had shot up to 75 bpm (I could also see on the screen that my heart was whooshing away but I couldn't tell whether it was doing it's job efficiently). I took a few deep breaths and my bpm dropped again. I remembered that I have only bought one Xmas present and my rate went back up into the 70s. Up and down it went (I hope that I didn't affect my results by doing this). And then it occur... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=2005959 Wed, 03 Dec 2008 04:00:00 +0100 2005959 http://www.medworm.com/index.php?rid=1991312&cid=t_102869_134_f&fid=36049&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FDiabetesNotes%2F%7E3%2FCLwPuqhUgcY%2F var iamInit = function() {try{initIamServingHandler(420,280,303052,"http://cdn.pis.picapp.com/IamProd/Resources/Css/css2.css")}catch(ex){}}() Happy Thanksgiving to those celebrating today! I love this holiday for many reasons. First, it gives us a chance to sit down and focus on gratitude. How often do we really get to do that? It also gives us an opportunity to be with family and friends, and celebrate what life is really about: caring for one another. It’s truly a day to realize how lucky we have it. We are blest. There might be some diabetics out there who are sad because they have a disease which causes a lot of maintenance, pain, and restrictions. Beleive me, I am with you in all of that. There are days when I’m more positive, and some days when I feel defeated. But not ... Diabetes Notes blogs http://www.medworm.com/rss/comments.php?id=1991312 Thu, 27 Nov 2008 09:02:00 +0100 1991312 http://www.medworm.com/index.php?rid=1985015&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F11%2Fare-you-writer.html The guy at the UPS Store asked me this question (I was using UPS to send some photos to my publisher because PSAC members at Canada Post are on strike).I looked around to see to whom he was speaking.Then it dawned on me."Yes, I am."Or at least I'm working on believing it.I've mentioned before that I have been meeting with a coach since last January. Joyce has a Masters in Education and is part therapist and part life coach. She works with lots of struggling artists and writers, many people currently working in the labour movement and several cancer survivors.I have always made my living with words but this year I pledged to begin to think of myself as a writer. This need for this had become acute as I relinquished the sense of identity I had derived from full-time work and as the struggle ... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1985015 Mon, 24 Nov 2008 19:41:00 +0100 1985015 http://www.medworm.com/index.php?rid=1985095&cid=t_102869_134_f&fid=36049&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FDiabetesNotes%2F%7E3%2FL0H3unOYjsA%2F var iamInit = function() {try{initIamServingHandler(420,363,272924,"http://cdn.pis.picapp.com/IamProd/Resources/Css/css2.css")}catch(ex){}}() When a friend finds out they’re sick, they need your help more than ever before. Diabetes, especially, can be a frightening diagnosis. Your friend has to deal with a multitude of finger pricks, injections, and the occasional episode of low blood sugar. You probably feel for them and want to be supportive. However, there is a right and wrong way to let your friend know you’re there for him or her. Following are some tips on the best ways to support your friend. ~more Tags: challenges of diabetes, chronic illness, diabetic patients, family member with diabetes, help a friend, how to be supportive, show your support, someone has diabetesShare This ... Diabetes Notes blogs http://www.medworm.com/rss/comments.php?id=1985095 Sun, 23 Nov 2008 16:54:15 +0100 1985095 http://www.medworm.com/index.php?rid=1981204&cid=t_102869_134_f&fid=36049&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FDiabetesNotes%2F%7E3%2FhMlBJxLuIc0%2F My heart goes out to children who get diabetes. I always pray that the kids who get diabetes have wonderful moms and dads and help them out. Here is a video tribute to all those moms out there caring for a diabetic child. Thank you for all you do! Tags: caring for diabetic kids, children with diabetes, chronic illness, diabetic moms, family-life, mom caring for sick children, mothers, video tributeShare This (Source: Diabetes Notes) Diabetes Notes blogs http://www.medworm.com/rss/comments.php?id=1981204 Fri, 21 Nov 2008 16:07:16 +0100 1981204 http://www.medworm.com/index.php?rid=1975582&cid=t_102869_134_f&fid=36049&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FDiabetesNotes%2F%7E3%2FY8ediy2Jlc8%2F var iamInit = function() {try{initIamServingHandler(420,638,272927,"http://cdn.pis.picapp.com/IamProd/Resources/Css/css2.css")}catch(ex){}}() If you or a friend has diabetes, one of the best ways you can help in the cause for a cure is to become an advocate. There are numerous ways to get involved, whether it be with informing others about the disease, contacting lawmakers, or just spreading the word about the realities of living with this chronic illness. Here are some ways to get started as a diabetes activist. ~more Tags: ada, chronic illness, congress, contact legislatures, cure for diabetes, diabetes advocate, funding, get involve, inform people about diabetes, lawmakers, living with diabetes, spread the wordShare This (Source: Diabetes Notes) Diabetes Notes blogs http://www.medworm.com/rss/comments.php?id=1975582 Thu, 20 Nov 2008 12:00:04 +0100 1975582 http://www.medworm.com/index.php?rid=1939256&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F11%2Fit-is-what-it-is-and-its-all-so.html Every so often, someone will tell me they feel bad talking to me about their own cancer experiences because they have had an easier time than I have (because they didn't have a mastectomy, they didn't get sick from chemo, they sailed through radiation or they don't have mets).I always tell them that cancer is scary and traumatic now matter how you experience it.And besides, it wouldn't make things easier for me if someone else were sicker.Last night, I was at a beautiful event, celebrating the career of Deborah Bourque, the former President of the Canadian Union of Postal Workers (this is not a non-sequitur. Please bear with me). It was also an opportunity for women working in the labour movement to get together, celebrate our own achievements and commiserate on the challenges we face as w... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1939256 Wed, 05 Nov 2008 20:32:00 +0100 1939256 http://www.medworm.com/index.php?rid=1844837&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F09%2Fshifting-prioirities.html I have a new post up at MyBreastCancerNetwork.Com. It will also be my last for a while:I am very grateful for the opportunities I have had here at MyBreastCancerNetwork.Com to further extend my reach, to share my stories and reassure so many women that a diagnosis of metastasis is not without hope. For so many of us, metastatic breast cancer is treated like a chronic illness, one that must be managed but through which we can live active, healthy lives. However, as I have written before, when metastatic breast cancer is well managed, the stories one tells can start to be repetitive and even boring (Another clean scan! No new signs of cancer! Today, I felt like a normal person!). And while I vigorously embrace the lack of drama in this part of my life, I also find myself lacking in inspirati... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1844837 Wed, 01 Oct 2008 15:45:00 +0100 1844837 http://www.medworm.com/index.php?rid=1788777&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F09%2Fcircular.html Am I freaked out because I can feel a stitch or am I feeling a stitch because I am freaked out anxious about my CT next week and what it might reveal?Inside my head is not a fun place to be, today.These are the facts:Scarring causes tightness which can make me feel a bit of a stitch.I have been exercising hard and felt nothing.But as I type this, I feel a dull ache.I cannot tell if my liver is swollen because I a have too much belly fat (and lymphedema) and an inadequate sense of my own anatomy.If I press really hard, the area where I think my liver is, hurts. But if you press hard enough on any part of the body, it hurts.CT scan and blood tests on September 16, right before chemo. I will have the blood tests back on the same day but must wait a few days for the CT results.Until then, deep... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1788777 Fri, 12 Sep 2008 19:11:00 +0100 1788777 http://www.medworm.com/index.php?rid=1616206&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F07%2Fon-perspective.html I have a new post up at MyBreastCancerNetwork.Com:A shift in my priorities occurred when I found out that my cancer had metastasized. And those priorities have not really shifted back now that my prognosis is more hopeful. It's not so much a matter of living every day as if it could be my last (I don't actually think that would feel healthy or peaceful). It's more that I try and savour each new day like an ice cream sundae, appreciating each new flavour, right down to the last little bits in the bottom of the glass (I always did have a sweet tooth). Lately, I have been forgetting to live this way. It's time to slow down again, enjoy my life and take pleasure in the things that give me joy.You can read the rest of this post here. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1616206 Fri, 11 Jul 2008 13:32:00 +0100 1616206 http://www.medworm.com/index.php?rid=1593916&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F07%2Fon-being-brave.html My family and I went to a little party for brunch on Sunday. This would not have been a big deal except that it was going to mostly former co-workers in attendance and since the cancer returned I have been avoiding these kinds of events.But this brunch was different. It was a surprise in honour of a friend and former co-worker who is in ongoing breast cancer treament (she is also one of the women with whom I am involved in a writing project and that I wrote about in my post entitled "the building." There is a new building now but my friend still works for the organization). She has been treated quite shamefully by her employer (a supposed advocate for "workplace accomodation") who has consistently refused to accomodate her need for regular time off for treatment. The case will be decided o... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1593916 Mon, 07 Jul 2008 18:23:00 +0100 1593916 http://www.medworm.com/index.php?rid=1556421&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F06%2Fbetter.html I have a new post up at MyBreastCancerNetwork.Com.I wrote about pulling myself out of the emotional funk, with the help and support of so many of you. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1556421 Mon, 30 Jun 2008 16:26:00 +0100 1556421 http://www.medworm.com/index.php?rid=1551479&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F06%2Flooking-out-at-world.html My computer and my body are both still pretty sick. I have been thinking though about my tendency to become a hermit when I get to feeling low, missing work and my old life (or give in to the fear, as cancer is still very real presence and I know that I have not escaped it). Chemo weeks tend to be the worst but I will admit that I have been struggling a bit of late. I have this friend who refuses to stop calling me, though, even when I don't call back. A friend who calls and leaves me messages that say, "Just checking in!" A friend who refuses to let me turn completely inward. I am very grateful. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1551479 Fri, 27 Jun 2008 15:19:00 +0100 1551479 http://www.medworm.com/index.php?rid=1538054&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F06%2Fparadox.html I am afflicted with my usual pre-chemo malaise.And something else. I made it a goal this year to write as much as I could about cancer and living with mets and yet, today I am sick of being a cancer patient, sick of cancer and everything about it.Achieving balance has always been a challenge for me.My computer is sick today. The fan has died and it will only work for a few minutes at a time. Tomorrow it will go unto the shop (how realistic is it to think that I will get it back on the same day?). Hopefully, by Wednesday, my computer and I will both be up to writing again. (Source: Not just about cancer) Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1538054 Mon, 23 Jun 2008 17:29:00 +0100 1538054 http://www.medworm.com/index.php?rid=1531418&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F06%2Fcancer-is-chronic-illness.html My father-in-law, himself a cancer survivor, sent me a terrific article from the New York Times:"Cancer as a Disease, Not a Death Sentence"That about sums it up, for me.I particularly enjoyed the following anecdote, so reflective of my own experience (the drugs are different, except for the Herceptin):''Dr. Esteva described a breast cancer patient first treated with a mastectomy and the antiestrogen tamoxifen in 1995. Five years later, cancer had spread to her lungs, prompting treatment with a newer anticancer drug, an aromatase inhibitor. When that no longer worked, her cancer was found to possess a molecular factor, HER-2, and she began treatment with Herceptin, a designer drug tailor made to attack HER-2-positive breast cancer. Herceptin therapy was able to stabilize her metastases for ... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1531418 Fri, 20 Jun 2008 13:49:00 +0100 1531418 http://www.medworm.com/index.php?rid=1458628&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F05%2Fthumpity-thump-or-rather-whoosh-whoosh.html Last week, my appointment with my oncologist was cancelled. Apparently, he was very sick with a high fever. Having a cancer patient's selfishness, my first thought was, "Oh! It's good that I won't be coming into contact with him then!" Then, my more empathic self remonstrated and I wished him well, poor man.The nurse who works with him was kind enough to confirm my CT results. The tech who did the scan (or rather her radiologist boyfriend) was right. My scan was clean and there is still no sign of cancer on the liver.However, the nurse also told me that my heart scan revealed that my ejection fraction (the measurement of my heart's ability to pump blood) was down to 48%. Fifty-five per cent is considered normal (before I started treatment, my EF was 56%), so this is not as bad as it sounds... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1458628 Wed, 21 May 2008 16:04:00 +0100 1458628 http://www.medworm.com/index.php?rid=1419291&cid=t_102869_111_f&fid=34712&url=http%3A%2F%2Fdigitaldoorway.blogspot.com%2F2008%2F05%2Fpain-pain-go-away.html There comes a time in life when one decides to surrender to what is, to acknowledge that one has hit a wall. I have arrived at just such an impasse, and while it's not an easy thing to do, I finally have to admit that I feel powerless over my pain.Having worked with patients with chronic illness----including chronic pain---for years, I never saw myself as someone with chronic illness. People with intractable pain and multiple diagnoses were always separate from me, living in a world which I did not inhabit.Now, having quit my job due to the ravages of stress and chronic illness, I admit that I am---at least for the moment---struggling with chronic illness, and that its effect on my life is global and overwhelming.Up until now, I have consistently said that pain would not limit what I do, t... Digital Doorway blogs http://www.medworm.com/rss/comments.php?id=1419291 Sun, 04 May 2008 11:00:00 +0100 1419291 http://www.medworm.com/index.php?rid=1347452&cid=t_102869_136_f&fid=35316&url=http%3A%2F%2Fnotjustaboutcancer.blogspot.com%2F2008%2F04%2Fon-being-square-peg.html I have been thinking a lot lately about cancer as a chronic illness. This is how my oncologist defines my cancer. My illness will be with me for the rest of my life and I will likely always be in treatment. But my cancer is being managed and I am thinking about sticking around for a long time, and living really well while I'm doing it. And the truth is, that, much of the time, I feel very well indeed.Dr. G. often refers to the various tools at his disposal. Some day (hopefully a long time from now), this particular treatment regimen will stop working. When that happens, Dr. G. will use another combination of drugs to keep the cancer at bay. And the longer we can keep one regimen working, the greater the possibility for medical breakthroughs.More of us are developing cancer at younger ages.... Not just about cancer blogs http://www.medworm.com/rss/comments.php?id=1347452 Thu, 03 Apr 2008 17:01:00 +0100 1347452 http://www.medworm.com/index.php?rid=858692&cid=t_102869_136_f&fid=36051&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FCancerCommentary%2F%7E3%2F154590597%2F This week is the National Invisible Chronic Illness Week - a worldwide effort to bring together people who live with chronic invisible illness and those who love them.Yes, cancer is an invisible chronic illness, among others: multiple sclerosis, fibromyalgia, chronic fatigue syndrome, diabetes, arthritis, heart disease, autism, migraines, chronic back pain, endometriosis, eating disorders, mental illness and depression (anything else I missed out?). Read the online conference schedule to know more about this week’s events and activities; join the chat room and read all about invisible chronic illness. Thanks to Diabetes Notes and CFS Squared for the heads up. Share This (Source: Cancer Commentary) Cancer Commentary blogs http://www.medworm.com/rss/comments.php?id=858692 Mon, 10 Sep 2007 13:38:05 +0100 858692 http://www.medworm.com/index.php?rid=856850&cid=t_102869_111_f&fid=36048&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAHeartyLife%2F%7E3%2F154548326%2F Today kicks off National Invisible Chronic Illness Awareness Week. It runs September 10th through the 16th. What is an invisible chronic illness? If you have an illness and it can’t be seen from the outside, you have it. That would include diabetes, heart disease, arthritis, autism, chronic fatigue syndrome, fibromyalgia, migraines, chronic back pain, eating disorders, multiple sclerosis and mental illness, just to name a few.Actually over 95% of chronic illness is invisible. Laura from CFS Squared sent me a link to a great website that is officially hosting an area to come together and “feel that there is someone else that gets it”. Go check out all that it offers including… articles, things to buy, chat rooms and a very funny “10 things not to say to a chronically ill person”... A Hearty Life blogs http://www.medworm.com/rss/comments.php?id=856850 Mon, 10 Sep 2007 11:35:54 +0100 856850 http://www.medworm.com/index.php?rid=699263&cid=t_102869_135_f&fid=35274&url=http%3A%2F%2Facidrefluxweb.com%2F%3Fp%3D912 You know traveling would just not be the same if I were not falling apart one way or another. Yesterday I woke up and my eye was bugging me. So I put in some antibiotic drops; apparently the wrong thing to do as my eye became very irritated from it. Now, a day later, it is still all bloodshot. So this means instead of heading to the gym, I’ve got to find an eye doc. to take a look at it. Fortunately there is one around the corner from me, and I’m hoping that I can get in for him to have a look. There would be a time where I’d get all discouraged as this is what happens anytime anyone even mentions the word “travel”. For Ottawa I was just standing in the kitchen when something got into my eye causing me to cry on one side of my face for the next five hours. ... acidrefluxweb.com blogs http://www.medworm.com/rss/comments.php?id=699263 Wed, 27 Jun 2007 12:29:48 +0100 699263 http://www.medworm.com/index.php?rid=601906&cid=t_102869_87_f&fid=34867&url=http%3A%2F%2Fwww.thediabetesblog.com%2F2007%2F05%2F10%2Fwhat-came-first-the-diabetes-or-the-depression%2F Filed under: Type 2, ResearchSelf-report studies are known for sometimes being inaccurate, chiefly because too much responsibility is placed on the respondents. Oftentimes people forget, overestimate, underestimate or do a host of other things that result in partially or wholly inaccurate reporting. There's also something known as The Testing Effect; a situation wherein people answer a question a particular way because they feel it is the answer the test-giver is looking for. So, in sum, self-report studies aren't really the best source for data collection. I mention all of this because it was a self-report study that researchers recently used to link symptoms of depression with the development of diabetes in older adults. Researchers from Northwestern University studied a group of over 4,... The Diabetes Blog blogs http://www.medworm.com/rss/comments.php?id=601906 Thu, 10 May 2007 04:00:00 +0100 601906 http://www.medworm.com/index.php?rid=478812&cid=t_102869_87_f&fid=34882&url=http%3A%2F%2Fbreathspakids.blogspot.com%2F2007%2F03%2Ffood-intolerance-testing-and-migraine.html I have seen some extravagant claims about the value of food intolerance testing in reducing migraines, e.g., An appetite for migraine?. Barbara Lantin sums up the findings of a (then) recently released study by Rees, Watson, Lipscombe, Speight, Cousins, Hardman and Dowson:In the first study of its kind, 61 people with moderate to severe migraines were given a food intolerance test. Only one patient had no intolerances at all and the average participant had 5.3. Of those who eliminated the named foods from their diets, 80 per cent reported some improvement in their migraines and more than a third reported significant relief. More than 60 per cent of patients who reintroduced the suspect foods into their diets reported the return of their migraine symptoms.That is one interpretation of the p... Breath Spa for Kids blogs http://www.medworm.com/rss/comments.php?id=478812 Tue, 06 Mar 2007 10:52:00 +0100 478812 http://www.medworm.com/index.php?rid=478818&cid=t_102869_87_f&fid=34882&url=http%3A%2F%2Fbreathspakids.blogspot.com%2F2007%2F03%2Ftruthiness-and-referenciness-make-case.html And please let Shinga read some decent research papers before she explodes*.Prof. Ernst has frequently and elegantly rebutted the claim that CAM treatments and therapies are not amenable to standard forms of scientific investigation. However, hand in hand with the claims that CAM is not suited to scrutiny, it seems that there is a certain truthiness and referenciness that predominates in the claims of scientific support for some of these treatments.Dr Ben Goldacre, used this word to suggest a supposed scholarly reference that wasn't a real one: "The scholarliness of her work is a thing to behold: she produces lengthy documents that have an air of 'referenciness' ... but when you follow the numbers, and check the references, it's shocking how often they aren't what she claimed them to be." ... Breath Spa for Kids blogs http://www.medworm.com/rss/comments.php?id=478818 Sat, 03 Mar 2007 12:22:00 +0100 478818 http://www.medworm.com/index.php?rid=478820&cid=t_102869_87_f&fid=34882&url=http%3A%2F%2Fbreathspakids.blogspot.com%2F2007%2F03%2Fmore-allergy-and-intolerance-testing_01.html Allergy Magazine has recently published a feature on DIY Diagnosis. There is a reasonable introductory summary about the difficulties of gaining access to allergy diagnosis and management on the NHS. There is the usual sloppiness about referring to allergies and intolerance as if they are synonymous. The author uncritically reproduces a number of claims that are frequently repeated but I have yet to see substantiated:[h]aving an allergy is now one of the most common health complaints in the UK, affecting an estimated 23 million people and four out of ten school children. Up to 40 per cent of the population are sensitive to the three most common allergens: dust mites, pollen and pets. Millions more are intolerant to certain foods, most commonly wheat and dairy.There is the usual pop quiz wh... Breath Spa for Kids blogs http://www.medworm.com/rss/comments.php?id=478820 Thu, 01 Mar 2007 17:13:00 +0100 478820