MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'condition'. Sat, 03 Sep 2011 01:52:58 +0100 http://www.medworm.com/index.php?rid=5181753&cid=t_104529_87_f&fid=36438&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FCato-at-liberty%2F%7E3%2FI4ZJoHiyeGU%2F By Andrew J. CoulsonAdam Schaeffer has just blogged about the massive increase in public school facilities spending of the past two decades, and about President Obama’s likely call to throw even more money at the problem of decrepit schools (in his address on the economy, next week). Adam argues that money hasn’t fixed the problem, but it isn’t hard to imagine that a true believer in the status quo (paging Matt Damon…) might conclude that we simply haven’t increased facilities spending enough. I addressed this counterargument a few years ago, using federal government data on the condition of U.S. public schools and data from a survey of Arizona private schools. What I found is that public schools were four times more likely than AZ private schools to have a bu... Cato-at-liberty blogs http://www.medworm.com/rss/comments.php?id=5181753 Fri, 02 Sep 2011 13:18:24 +0100 5181753 http://www.medworm.com/index.php?rid=5159793&cid=t_104529_147_f&fid=39273&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FePharmaSummit%2F%7E3%2F2JOQfNG6sY8%2Fonline-games-promotes-teen.html Source: MiniClip Funky Nurse, an online game built by Miniclip in coordination with the Teenage Cancer Trust in the UK, is an online game that sets out to spread awareness of the 2100 teens a year who are told they have cancer.  Funky Nurse sets the player in the shoes of a nurse, and they must keep patients happy and fed, provide sufficient medical care and look for bonuses to upgrade the hospital.  According to Mashable, Teenage Cancer Trust and Miniclip have worked together since 2009, creating fund raising events and online opportunities. Teenage Cancer Trust's goal is to create cancer wards for the teenagers where they feel welcome, in addition to providing funding for clinical trials and educating the community. Do you think online gaming is a good way... ePharma Summit blogs http://www.medworm.com/rss/comments.php?id=5159793 Mon, 22 Aug 2011 16:59:00 +0100 5159793 http://www.medworm.com/index.php?rid=5125695&cid=t_104529_86_f&fid=36669&url=http%3A%2F%2Ffadelibrary.wordpress.com%2F2011%2F08%2F12%2Fnursing-times-2011-vol-107-no-26-2%2F This article looks at the prevalence of depression in long-term conditions and why people with long-term conditions get depressed. It also examines how nursing staff can support people with depression as part of their long-term condition. Contact the Library for a copy of this article. Filed under: Journals Tagged: Depression, Long Term Conditions, Long-term Condition, Mental Health Service Users, Nursing (Source: Fade Library) Fade Library blogs http://www.medworm.com/rss/comments.php?id=5125695 Fri, 12 Aug 2011 14:37:00 +0100 5125695 http://www.medworm.com/index.php?rid=4704731&cid=t_104529_111_f&fid=39123&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Fnursingcomments%2Ftdtc%2F%7E3%2FEbYgSeOQGHs%2F This is a guest post by Maria Rainier, a freelance writer and blogger. _____________________________________________________________________________ While not heavily studied or well-known, Meniere’s disease can be a debilitating, painful, and dangerous condition of the inner ear.  Named after 19th century French physician Prosper Meniere who studied the inner ear, it is a chronic condition most often found with varying symptoms in people in their 40s and 50s but not unheard of in other age groups, even children. Maria Rainier While symptoms may be relieved via various treatment methods, this chronic condition can leave lasting marks on one’s life if left untreated. Causes and Symptoms Although physicians don’t know for sure what causes Meniere’s disease, the most obvious hint is ... Nursing Comments blogs http://www.medworm.com/rss/comments.php?id=4704731 Tue, 12 Apr 2011 14:37:02 +0100 4704731 http://www.medworm.com/index.php?rid=4450359&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2011%2F02%2F08%2Fnew-condition-scores-to-compare-your-severity-to-others-at-curetogether%2F New Feature at CureTogether: Scores for Your Conditions Ever wonder how you compare to other people with your condition? Are your symptoms worse than the average, or better? Well, now you can find out. We’ve just released a major update to CureTogether that gives you a score for each condition you reported and compares you to all other members with those conditions at CureTogether. In the screenshot above, you can see that for each condition, there are two blue gradients. The one on the left indicates your severity score (how mild or severe your condition is), and the one on the right shows your percentile (how your score compares to other CureTogether members). So for Depression, if you have a score of 65, that indicates a moderate severity, which is more severe than 89% of people a... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=4450359 Tue, 08 Feb 2011 21:57:51 +0100 4450359 http://www.medworm.com/index.php?rid=3998959&cid=t_104529_87_f&fid=36438&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FCato-at-liberty%2F%7E3%2FmP4je9Jwvv4%2F By Michael F. CannonFrom the Minneapolis Star-Tribune: Two of Minnesota’s biggest health plans said Thursday they have temporarily suspended sales of individual health insurance policies because of uncertainty related to the new federal health reform law. The moves by Blue Cross and Blue Shield of Minnesota and HealthPartners came on the same day some of the federal government’s most-heralded consumer protections came into effect… The insurers that have suspended individual sales say they are awaiting guidance on new rules, including those around coverage of kids with pre-existing conditions… Pam Lux, a spokeswoman for Eagan-based Blue Cross, said she expects the suspension of individual sales to be brief but could not say if it would be days or weeks. (Source: Cato... Cato-at-liberty blogs http://www.medworm.com/rss/comments.php?id=3998959 Fri, 24 Sep 2010 14:09:13 +0100 3998959 http://www.medworm.com/index.php?rid=3831398&cid=t_104529_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F08%2F06%2Fbest-of-our-blogs-august-6-2010%2F I remember being in my early twenties sitting in my beat-up Nissan right in the peak of traffic hour. I had no air conditioning. The music was not on. I think the only people who owned cell phones back then were doctors and dentists. It was so hot that my palms were sweaty and slippery against the hot steering wheel. The unforgiving heat from the cars all around me felt suffocating. This was an ordinary day and I was just on my way home from work. I would not have remembered it other than the fact that I had an extraordinary experience sitting there being very ordinary. Suddenly, I just felt plain loved. I felt grateful for being me, for every hardship I had ever endured, for every fear I had, for every imperfection that made me unique. In the midst of all that traffic while people were ho... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3831398 Fri, 06 Aug 2010 12:23:27 +0100 3831398 http://www.medworm.com/index.php?rid=3823006&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2010%2F07%2F14%2Fjust-released-%25e2%2580%2593-curetogether-guide-to-back-pain%2F . . You are a part of this. It’s a new kind of health book that puts real-world data before authority, and teaches you how to make better decisions for your health. Inside, you’ll find 7 insight-filled sections to help you navigate your way through Back Pain. Download your copy here, or read on for more details. . The Story Health books are usually written by experts who offer authoritative information about conditions, symptoms and treatments – people who usually don’t live with the condition themselves, but nevertheless tell you what you should do because they know best. This book is different. It’s based on the real-world experiences of patients. Our approach is not to tell you what to do, but to give you the hard data and the education to help you make your own decisions �... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=3823006 Wed, 14 Jul 2010 19:41:45 +0100 3823006 http://www.medworm.com/index.php?rid=3753915&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2010%2F07%2F14%2Fjust-released-%25e2%2580%2593-curetogether-guide-to-back-pain%2F . . You are a part of this. It’s a new kind of health book that puts real-world data before authority, and teaches you how to make better decisions for your health. Inside, you’ll find 7 insight-filled sections to help you navigate your way through Back Pain. Download your copy here, or read on for more details. . The Story Health books are usually written by experts who offer authoritative information about conditions, symptoms and treatments – people who usually don’t live with the condition themselves, but nevertheless tell you what you should do because they know best. This book is different. It’s based on the real-world experiences of patients. Our approach is not to tell you what to do, but to give you the hard data and the education to help you make your own decisions �... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=3753915 Wed, 14 Jul 2010 19:41:45 +0100 3753915 http://www.medworm.com/index.php?rid=3718325&cid=t_104529_83_f&fid=34856&url=http%3A%2F%2Finsidesurgery.com%2F2010%2F07%2Fhealth-insurance-preexisting-conditions-starting-today%2F Jay Angoff, the Director of the Office of Consumer Information and Insurance Oversight of Health and Human Services, discusses the start of the Pre-existing Condition Health Insurance Plan for patients who have pre-existing conditions but who have been without health insurance for at least six months. (Source: Inside Surgery) Inside Surgery blogs http://www.medworm.com/rss/comments.php?id=3718325 Thu, 01 Jul 2010 11:20:22 +0100 3718325 http://www.medworm.com/index.php?rid=3714272&cid=t_104529_111_f&fid=39123&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Fnursingcomments%2Ftdtc%2F%7E3%2FGXVkVfXULRU%2F           Disseminated intravascular coagulation (DIC) is a disorder characterized by massive systemic activation of coagulation with consumption of platelets and coagulation proteins.  Normally, when you are injured, certain proteins in the blood become activated and travel to the injury site to help stop bleeding.  However, in persons with DIC, these proteins become abnormally active.  The disorder presents in a very ill patient as bleeding into the skin (purpura) and other tissues.  It arises as a complication of different serious and life-threatening diseases.  It covers the continuum of events that occur in the coagulation pathway.  Initially there is uncontrolled activation of clotting factors in the blood vessels, causing clotting of blood throughout the whole body. �... Nursing Comments blogs http://www.medworm.com/rss/comments.php?id=3714272 Wed, 30 Jun 2010 12:42:50 +0100 3714272 http://www.medworm.com/index.php?rid=3699486&cid=t_104529_87_f&fid=36941&url=http%3A%2F%2Fwww.mazecordblood.com%2Fblog%2F%3Fp%3D525 Chances are most of us have sorted this out; but there are always potholes that pop up (down?) and throw us off, particularly in this economic environment.  So, here’s a brief write up on health insurance companies and what they can and cannot do regarding the expected – or unexpected – pregnancy. (Source: Cord Blood News) Cord Blood News blogs http://www.medworm.com/rss/comments.php?id=3699486 Fri, 25 Jun 2010 16:08:15 +0100 3699486 http://www.medworm.com/index.php?rid=3695528&cid=t_104529_87_f&fid=36050&url=http%3A%2F%2Fblisstree.com%2Flive%2Fface-your-skin-daily-health-quiz%2F Ready to get schooled about your health? Our Daily Health Quiz will test your know-how. Answer our question, below, and check back tomorrow for the answer and your next pop quiz. photo: Thinkstock Today’s Question: Now that we’ve got you checking up on your nails, let’s direct your attention to the skin. Skin issues don’t always mean that anything’s wrong with you, but some skin conditions can be clues to more serious health problems. If you have a “butterfly” rash on your face, spreading across your cheeks and nose, what could it mean? #MicroPollDiv_262777 { width: 250px; margin: 0px auto; } Answer to Yesterday’s Question: If your nails aren’t hidden behind some kind of fly nail art, you’ve got a pretty good view of them. Are t... Breastfeeding 1-2-3 blogs http://www.medworm.com/rss/comments.php?id=3695528 Thu, 24 Jun 2010 22:37:49 +0100 3695528 http://www.medworm.com/index.php?rid=3573775&cid=t_104529_111_f&fid=39123&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Fnursingcomments%2Ftdtc%2F%7E3%2FQ4Reaa85lRs%2F           Tourette syndrome (TS), or Tourette disorder, is more common Origins of Tourette Syndrome than doctors once thought.  It affects at least 1 in 1,000 to 2,000 people and maybe more.  It is believed that about 100,000 Americans have the disorder. Many more may have other tic disorders that are less severe.  Tourette syndrome is more common in boys than in girls.  It almost always starts before age 18 – usually between ages 5 and 7.  Even though kids with Tourette syndrome can get better as they get older, many will always have it.  The good news is that it won’t make them sick or shorten their lives.  The syndrome is a condition that affects a person’s central nervous system and causes tics.  Tics are unwanted twitches, movements or sounds that ... Nursing Comments blogs http://www.medworm.com/rss/comments.php?id=3573775 Tue, 18 May 2010 09:35:04 +0100 3573775 http://www.medworm.com/index.php?rid=3529786&cid=t_104529_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fwhen-a-patient-outgrows-a-childhood-disease%2F2010.05.04 At a [recent] session on caring for adult survivors of pediatric diseases, Bradley J. Benson, FACP, and Niraj Sharma, FACP, had some interesting statistics to share. For example, more than 90% of children with a chronic or disabling health condition are expected to live more than 20 years, meaning they’ll eventually need an internist’s care, and every year more than 500,000 children with special healthcare needs turn 18. As Dr. Sharma noted, “We’re not talking about a handful of folks.” (more…) *This blog post was originally published at ACP Internist* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=3529786 Tue, 04 May 2010 14:00:00 +0100 3529786 http://www.medworm.com/index.php?rid=3526824&cid=t_104529_111_f&fid=39123&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Fnursingcomments%2Ftdtc%2F%7E3%2FY2IUIXhIKu0%2F           Atrial fibrillation (AF) is an irregular heartbeat that may be very fast.  Your heart has 4 compartments called chambers.  The top 2 chambers are called the atria.  The bottom 2 chambers are called the ventricles.  In atrial fibrillation, the atria stop beating regularly.  Instead, they tremble (fibrillate) in a disorganized way.  This can cause an irregular, and sometimes very fast, heartbeat.  Atrial fibrillation is most common in people older than 60 years of age.  However, you can get AF at any age.  Sometimes, atrial fibrillation has no cause, but your risk goes up if you have any of the following conditions: heart disease caused by high cholesterol, a larger heart size caused by high blood pressure, damage to a heart valve, an overactive thyroid gland, lun... Nursing Comments blogs http://www.medworm.com/rss/comments.php?id=3526824 Sun, 02 May 2010 20:31:39 +0100 3526824 http://www.medworm.com/index.php?rid=3508290&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2010%2F04%2F27%2Fautism-study%2F This press release went out this morning: CureTogether, an online social health community, announced today the launch of its Autism treatment study. CureTogether will provide an online venue for parents with Autistic children to anonymously share and rate the success of their treatments. “CureTogether is here to do good; we’ve adopted an open-source philosophy for health research,” said CureTogether co-founder Daniel Reda. “Patients and parents have so much knowledge and expertise to share with each other and with the world.” CureTogether is interested in collecting information about any and all treatments tried including: Anxiety and Depression medications, Chelation and IV therapies, Glutathione, Naltrexone, EDTA, DMPS, DMSA, Detoxification, vitamins B-12, ... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=3508290 Tue, 27 Apr 2010 18:51:40 +0100 3508290 http://www.medworm.com/index.php?rid=3490704&cid=t_104529_111_f&fid=39123&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Fnursingcomments%2Ftdtc%2F%7E3%2F4s8IJdYx6fs%2F           Retinal detachment will affect about one out of 10,000 people each year in the United States.  The retina is a thin layer of light-sensitive nerve fibers and cells that covers the inside and back of the eyeball.  For us to see, light must pass through the lens of the eye and focus on the retina.  The retina then acts like a camera, taking a picture and transmitting the image through the optic nerve to the brain.  The vitreous fluid, the gel-like material that fills the eyeball, is attached to the retina around the back of the eye.  If the vitreous changes shape, it may pull a piece of the retina with it, leaving a retinal tear.  Once a retinal tear occurs, vitreous fluid may seep between the retina and the back wall of the eye, causing the retina to pull away.  Th... Nursing Comments blogs http://www.medworm.com/rss/comments.php?id=3490704 Wed, 21 Apr 2010 00:59:52 +0100 3490704 http://www.medworm.com/index.php?rid=3471888&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2010%2F04%2F15%2Fannouncing-the-curetogether-guide-to-depression%2F You are a part of this, too. Just like for Anxiety, this crowdsourced guide to depression is based on input from 1000 CureTogether members with Depression. Inside the book are insights about how to find out if you’re depressed, getting diagnosed, how to find a treatment that is most likely to work for you, running self-experiments, understanding cognitive bias in decision-making, and the latest discoveries from both patients and scientists around the world. The CureTogether Guide will help you navigate your way through Depression. Download your copy here. We hope it helps! (Source: The Collective Well) The Collective Well blogs http://www.medworm.com/rss/comments.php?id=3471888 Thu, 15 Apr 2010 13:47:40 +0100 3471888 http://www.medworm.com/index.php?rid=3448916&cid=t_104529_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F04%2F08%2Fmoebius-syndrome-facial-paralysis%2F Moebius syndrome is the name given to facial paralysis, and is characterized by an individual who is incapable of expressing their emotions or any kind of reaction through their face because of it. It is a rare congenital condition that only affects about 1 in 100,000 children at birth. Moebius syndrome typically results in total or near total paralysis of the face, including eyes that don’t blink. The New York Times has the story of researcher Kathleen Bogart, who was disappointed to learn of the dearth of psychological research into this condition. Having it herself, she decided to help fill the gap, and began researching people with Moebius syndrome. In a new study, the largest to date of Moebius syndrome, Ms. Bogart and David Matsumoto, a psychologist at San Francisco State, foun... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3448916 Thu, 08 Apr 2010 11:46:10 +0100 3448916 http://www.medworm.com/index.php?rid=3432875&cid=t_104529_87_f&fid=38368&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FDisruptiveWomenInHealthCare%2F%7E3%2Ft8RF0ckq3_A%2F By Santi Bhagat, MD, MPH. Health Care Reform is off to a good start.  A couple of days ago, I blogged on the debate between the insurance industry and the administration about the interpretation of this new law.  Hats off to insurers for making the right choice, right away, to heed regulations that are forthcoming from Health and Human Services.   I first heard this through the grapevine at the Disruptive Women Breakfast Series this week from Stephanie Cohen, the expert panelist representing the insurance industry. The law is intended to require insurers to issue policies that provide a full range of benefits for all children with pre-existing conditions starting in September 2010.  That means insurers can no longer refuse to cover children with pre-existing conditions under their par... Disruptive Women in Health Care blogs http://www.medworm.com/rss/comments.php?id=3432875 Fri, 02 Apr 2010 12:07:29 +0100 3432875 http://www.medworm.com/index.php?rid=3429137&cid=t_104529_87_f&fid=34872&url=http%3A%2F%2Fblisstree.com%2Ffeel%2F172701%2F It’s Expensive To Be a Lady: And not just because we like pretty shoes. New York Times Well Blog on why being female is a pre-existing condition. Post from: BlissTree (Source: Healthbolt) Healthbolt blogs http://www.medworm.com/rss/comments.php?id=3429137 Wed, 31 Mar 2010 16:36:56 +0100 3429137 http://www.medworm.com/index.php?rid=3408438&cid=t_104529_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F03%2F26%2Fpsychotherapy-the-active-treatment%2F My friend Anne and I were talking the other day when the conversation turned to a recent airplane flight she was on. She recounted how it was on one of those smaller, turboprop planes with just 3 seats per row: “We hit some turbulence and then it was like we were free-falling. It was only a few seconds, but it was the scariest moment in my life. I felt so helpless and out of control. I know it was irrational to think anything bad would happen, but still …” When a person isn’t in control of his or her own destiny, most people feel powerless. Powerlessness can lead to feelings of helplessness as well. Most people prefer to be able to exert some influence on their destiny, on their future. We’d like to think that we actually have something to do with the way our ... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3408438 Fri, 26 Mar 2010 10:06:18 +0100 3408438 http://www.medworm.com/index.php?rid=3403981&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2010%2F03%2F24%2Fjust-released-the-curetogether-guide-to-anxiety%2F . You are a part of this. It’s a new kind of health book that puts real-world data before authority, and teaches you how to make better decisions for your health. Inside, you’ll find 7 insight-filled sections to help you navigate your way through Anxiety. Download your copy here, or read on for the juicy details. . The Story Health books are usually written by experts who offer authoritative information about conditions, symptoms and treatments – people who usually don’t live with the condition themselves, but nevertheless tell you what you should do because they know best. This book is different. It’s based on the real-world experiences of patients. Our approach is not to tell you what to do, but to give you the hard data and the education to help you make yo... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=3403981 Wed, 24 Mar 2010 23:57:33 +0100 3403981 http://www.medworm.com/index.php?rid=3366261&cid=t_104529_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2010%2F03%2F14%2Fwhat-works-for-you-in-bipolar%2F Bipolar disorder is a serious mental health condition, and while not as common as depression or anxiety disorders, it remains one of the most challenging to treat. That’s largely because it’s characterized by its wide mood swings. When a lot of people first hear about bipolar disorder, it doesn’t sound like it should be such a problem. For instance, mania can be characterized by intense creative spurts and periods of productivity. But those periods are often followed by a crash into depression. After having reached such “highs,” the lows may feel especially dark and lonely. Indeed, there are some who believe that bipolar disorder should be viewed in a different light, with an understanding and appreciation for the positive side. Bipolar Advantage is our blog t... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=3366261 Sun, 14 Mar 2010 21:00:58 +0100 3366261 http://www.medworm.com/index.php?rid=3311670&cid=t_104529_87_f&fid=38368&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FDisruptiveWomenInHealthCare%2F%7E3%2FYc8iDrs7xx8%2F In case you don’t have a TV in your office and weren’t glued to C-SPAN all day yesterday, we asked Disruptive Women’s Wendy Grossman to take a minute to recap a few of the highlights. She spoke with several Disruptive Women and had this to say: Democrats: We want to get this done by the end of March. We have 9 out of 10 of your wish-list items. Let’s do this. Republicans: No. We don’t like it. Let’s trash it and start over from scratch. Democrats: Not possible. Republicans: Seriously. Let’s start over. Clean page. Fresh slate. Throughout the day, President Obama pointed out that people on both sides of the table want the same things. He gets letters every day from hard-working people who have lousy (or no) health insurance — people who are losing... Disruptive Women in Health Care blogs http://www.medworm.com/rss/comments.php?id=3311670 Fri, 26 Feb 2010 14:50:20 +0100 3311670 http://www.medworm.com/index.php?rid=3079426&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F12%2F10%2Fvulvodynia-sufferers-8x-more-likely-to-have-interstitial-cystitis%2F 1 in 6 women have vaginal pain in their lives. (Photo: hyperscholar)                 . I lived with vulvodynia for 10 years. You’ve probably never heard of it, even though it’s so common. Basically chronic vaginal pain, to put it mildly. I never had interstitial cystitis, but it’s chronic bladder pain. These two kinds of pain tend to run together. We found a strong association between the two, which independent studies published this year also confirm. Here’s what we found… . . Women at CureTogether who report vulvodynia are eight times more likely to report interstitial cystitis than women with no vulvodynia. This comes from a study of 724 women sharing data online for the past year. For details on this finding and how it matches up with other... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=3079426 Thu, 10 Dec 2009 16:00:32 +0100 3079426 http://www.medworm.com/index.php?rid=2989202&cid=t_104529_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2009%2F11%2F13%2Ffirst-impressions-count-even-online%2F We already know that first impressions can tell a lot about a person. You meet someone, you shake their hand, they smile, you smile back, you introduce yourself. Prior psychological research has suggested that even such a simple, basic interchange creates first impressions that are then difficult to change once made. But did you know that even a photo of you can create a first impression? New research discussed over at one of Newsweek’s blogs demonstrates how easily — and accurately — photos can convey information about our personalities. Simply by just looking at natural photos of other people, you can usually do a pretty good job of accurately gauging 9 out of 10 personality characteristics: In the study, observers looked at full-body photos of 123 people they had neve... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=2989202 Fri, 13 Nov 2009 14:01:10 +0100 2989202 http://www.medworm.com/index.php?rid=2920372&cid=t_104529_125_f&fid=34820&url=http%3A%2F%2Fwww.dentalblogs.com%2Farchives%2Fadministrator%2Fdental-%25e2%2580%2593-overall-health-link-extends-past-periodontal-disease%2F A recent study published in Journal of Dental Research, held by the Indiana University School of Dentistry, evaluated a group of people with healthy gum tissue to study the differences between people with good and poor oral hygiene. The subjects were from various ethnic groups and included women and men. Black, male participants who neglected daily oral care showed a unique response. Those in this group who accumulated plaque were found to have a white blood cell response (neutrophils). When an infection exists in the body, neutrophils move from bone marrow to the affected part of the body as a defensive measure. A person with a high white blood cell count is at greater risk of heart attack. Researchers hope that the finding will help medical professionals identify patients at increased ri... dental blog for dentists about dentistry blogs http://www.medworm.com/rss/comments.php?id=2920372 Fri, 23 Oct 2009 14:24:03 +0100 2920372 http://www.medworm.com/index.php?rid=2744253&cid=t_104529_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FvOmV_OHO5s8%2F If you’re looking for some date night romantic flick this weekend, I suggest watching THE TIME TRAVELER’S WIFE. But leave your genetics behind the theater door. THE TIME TRAVELER’S WIFE is a movie-adaptation of the novel by Audrey Niffenegger. I just saw the movie and I loved the idea of a love so deep and true that it endures beyond time… Or in geekspeak – the space-time continuum known as time travel.     The movie revolves around Claire’s love for a man named Henry, who has a genetic condition that causes him to involuntarily travel in time. His condition is called Chrono-Displacement Disorder, which is apparently heritable. I don’t want to spoil the movie too much, so I won’t give away the storyline (you can Google it up). But if you’re like me who w... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=2744253 Sat, 29 Aug 2009 06:33:04 +0100 2744253 http://www.medworm.com/index.php?rid=2511368&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F06%2F17%2Fwayne-cho-depressionanxiety-hero%2F This is an amazing story. A man who suffered from anxiety for many years has run across the entire country of Canada. His name is Wayne Cho. His mission is to raise awareness for anxiety and depression, and eliminate the stigma around these illnesses. His message is one of inspiration and hope. Here’s what he wrote to his Facebook followers after the successful completion of his run last week: Dear all, I have completed the run across Canada to raise awareness of anxiety and depression on June 11, 2009 and I would like to thank you for your support. Once we have taken the first step, the next step becomes easier. Keep making small steps and we will reach the world! I cannot change the world as I am just one man. But with you, we can! Love led me to this journey. Love gave me strengt... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=2511368 Wed, 17 Jun 2009 23:37:06 +0100 2511368 http://www.medworm.com/index.php?rid=2464210&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F06%2F08%2Finspiration-and-free-stuff-for-national-headache-awareness-week%2F For all of you out there with headaches, this week is National Headache Awareness Week. Here are some inspiring campaigns going on (and free stuff!) to celebrate everyone living with tension headaches, chronic headaches, migraines, and cluster headaches. Wishing you a pain-free week! American Academy of Neurology Foundation The AANF has two websites to share for its “Buy a Brain” and BrainMatters campaigns: https://www.TheBrainMatters.org/buyabrain Buy a virtual brain online for as little as $5 through the American of Neurology Foundation in honor of a friend or family member. Your virtual brain will then float on the AAN Foundation’s wall of donations. Your donation will make a difference in the lives of people affected by a neurologic disorder because 100% of your gift... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=2464210 Mon, 08 Jun 2009 22:35:32 +0100 2464210 http://www.medworm.com/index.php?rid=2464268&cid=t_104529_117_f&fid=36026&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fzimney-health-and-medical-news-you-can-use%2F16-reasons-not-to-use-someone-elses-prescription-medicine%2F Using someone else’s prescription medicine is a lot like playing Russian roulette – you might get away unscathed, and then again you might not. And it could have devastating consequences. Just because we see prescription medicines advertised on TV doesn’t mean they are safe for everyone. There are good reasons why you can’t buy them over the counter. A physician takes many factors into account before prescribing a medication for you, including your current condition, your past medical history, your other medications and the likely risks and benefits of the drug to you as an individual. After making this decision he or she will then explain how to take the medication, when to take it, how much and how long to take it, what else you can and can’t take with it, and what to expect af... Dr. Z's Medical Report blogs http://www.medworm.com/rss/comments.php?id=2464268 Mon, 08 Jun 2009 16:56:42 +0100 2464268 http://www.medworm.com/index.php?rid=2452768&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F06%2F03%2Ffirst-crowdsourced-book-on-migraine-released%2F We are excited to announce today the release of “Migraine Heroes: 271 People Share Their Experiences and Treatments.” . What’s Inside? 271 people share stories, symptoms, and resources Surprising data on co-morbid conditions Detailed comments on treatments by real patients . Please spread the word! Blog or tweet http://www.curetogether.org/MHeroes/ All proceeds from Migraine Heroes go to fund the migraine data community at CureTogether.org. . What People Are Saying “The best Observations of Daily Life (subjective, ‘real-world’) I’ve seen!” — Jen McCabe (@jensmccabe on Twitter) “Interesting crowdsourced clinical data.” — Chris Hogg (@cwhogg on Twitter) “The book is excellent! So many people suffer from this debilitating condition. The information i... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=2452768 Wed, 03 Jun 2009 19:34:24 +0100 2452768 http://www.medworm.com/index.php?rid=2441854&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F05%2F26%2Fmigraine-study-69-of-patients-have-co-morbid-conditions%2F In the live, ongoing Migraine study at CureTogether, 271 people have so far been surveyed for having other, co-morbid conditions. 186 (69%) of the respondents reported having at least one other condition. A chart of conditions co-morbid with migraine is shown below (click on the chart for a larger view). We define a condition to be co-morbid with migraine if more than 5 people reported having both migraine and the condition. . .Click on the graph above to see a larger version. . Here is a list of the conditions found to be co-morbid with migraine in this survey, in order of prevalence. Anxiety (102 people) Depression (98) Back pain (85) Allergies (75) Insomnia (69) Common Cold (69) Irritable Bowel Syndrome (68) Acne (61) Vulvodynia (59) Acid Reflux (55) Bladder Infection (49) Endometriosi... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=2441854 Tue, 26 May 2009 18:04:09 +0100 2441854 http://www.medworm.com/index.php?rid=2442310&cid=t_104529_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2Fzy4jy2NE4Io%2F Otherwise known as the Victorian Ape Woman, “Bearded Lady” Julia Pastrana was a circus act in 19th century Europe. Hers was an extremely rare genetic syndrome that baffled and fascinated the public since she was first exhibited by her husband. Pastrana has a genetic syndrome known as hypertrichosis terminalis where straight coarse hair covered her entire face and body, and her teeth and gums were irregular. "Bearded Lady" Julia Pastrana has rare genetic condition. Image: Public Domain New research released Thursday uncovered the exact genetic mutation responsible for  conditions similar to Pastrana’s. Published in the May 12st issue of the American Journal of Human Genetics, the study looked into three large Chinese Han families with autosomal-dominant congenital generali... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=2442310 Fri, 22 May 2009 03:41:00 +0100 2442310 http://www.medworm.com/index.php?rid=2376296&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F04%2F28%2Fstop-the-pain-a-post-for-migraine-sufferers%2F I wrote a post today about how self-tracking can help migraines at the Quantified Self blog. It talks about research showing headache diaries to be effective in predicting and diagnosing migraine, shares a story of a migraineur who tracks herself, and calls for participants to join the CureTogether migraine study. Please read and share with any loved ones who suffer with migraine pain! Another recent mention of migraine was by Josh Bernoff of Forrester Research at the recent HealthCamp Boston. One of his slides, shown below, suggests that migraine sufferers and people with chronic pain conditions are most likely to benefit from and to participate in online social networks (top right quadrant). On the one hand, it’s great to see so much increasing attention on migraine and chronic pai... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=2376296 Tue, 28 Apr 2009 20:35:37 +0100 2376296 http://www.medworm.com/index.php?rid=2365182&cid=t_104529_113_f&fid=38494&url=http%3A%2F%2Fcuretogether.com%2Fblog%2F2009%2F03%2F04%2Ftop-10-conditions-at-curetogether-chronic-womens-health%2F What do the 10 most active conditions at CureTogether have in common? As you can see from the chart below, most of them are chronic conditions, and many affect more women than men.* To learn more about what these conditions are, read on below the chart. Vulvodynia saw a big surge in data around the release of the crowdsourced book, Vulvodynia Heroes, compiled by CureTogether with input from 190 women. This chart also only captures a representative portion of the data recorded by people with these conditions. So what are these conditions? While they are all common, some of them are not commonly known, so you may not have heard of them. Here’s a quick run-down: — Vulvodynia Affects: 16% of women at some point in their lives. That’s 48 million women in the US alone. What it... The Collective Well blogs http://www.medworm.com/rss/comments.php?id=2365182 Wed, 04 Mar 2009 15:27:11 +0100 2365182 http://www.medworm.com/index.php?rid=2121513&cid=t_104529_125_f&fid=34820&url=http%3A%2F%2Fwww.dentalblogs.com%2Farchives%2Fadministrator%2Flisten-to-patients-who-feel-lightheaded-in-the-dental-chair%2F If you have ever had a patient complain of feeling lightheaded, you’re not alone. According to a study (AGD May/June 2008), this complaint is the most common emergency occurrence at the dentist’s office. About 3.5% of people suffer from vasovagal syncope. It can lead to loss of consciousness. People experience this condition as a result of stress, anxiety, fatigue, pain, or at the sight of blood. Vasovagal syncope can begin with dizziness, whitening of the face, heart palpitations, a heated sensation, cold and clammy sweating, nausea, vision changes, hyperventilation, and lightheadedness. MayoClinic.com defines vasovagal syncope as “…the most common cause of fainting… The trigger results in a sudden drop in your heart rate and blood pressure, which reduces blood flow... dental blog for dentists about dentistry blogs http://www.medworm.com/rss/comments.php?id=2121513 Wed, 21 Jan 2009 16:04:36 +0100 2121513 http://www.medworm.com/index.php?rid=2035831&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F12%2F14%2Fgene-genie-41-carnivalome%2F Gene Genie is the blog carnival of clinical genetics and personalized medicine. I’ve received more than 25 submissions for this edition which is dedicated to the human genome and videos in clinical genetics. Many thanks to Ricardo Vidal for the logo! The molecular level: Daniel MacArthur at Genetic Future wrote about Genetics of gene expression in African-Americans: ominous news for personal genomics? Alex Palazzo at The Daily Transcript analyzed 100 years of genetic research. Greg Laden’s submission was The Scientific, Political, Social, and Pedagogical Context for the claim that “Race does not exist.” Larry Moran at Sandwalk talked about Genes and Straw Men The clinical level: Chavonne Jones at Human Genetics Disorders shared Muscular Dystrophy Gene Therapy Vide... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2035831 Sun, 14 Dec 2008 11:06:04 +0100 2035831 http://www.medworm.com/index.php?rid=1825799&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F09%2F23%2Fpotential-new-treatment-for-cystic-fibrosis%2F I just found an interesting article at the PHG Foundation about a new potential treatment for cystic fibrosis, a genetic condition affecting the exocrine (mucus) glands of the lungs, liver, pancreas, and intestines. It is caused by a mutation in the CFTR gene. The product of that gene is a a chloride ion channel that plays role in creating digestive juices and mucus. If there is no normal copy of the gene, the person will be affected by CF. The new drug VX-770 was developed by the Cystic Fibrosis Foundation in collaboration with Vertex Pharmaceuticals; it targets the defective CFTR protein to improve chloride transport. The Cystic Fibrosis Trust supports a group at the University of Bristol in investigating how new drugs restore function to defective CFTR proteins; group leader Dr David Sh... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1825799 Tue, 23 Sep 2008 20:12:40 +0100 1825799 http://www.medworm.com/index.php?rid=1660892&cid=t_104529_111_f&fid=36048&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAHeartyLife%2F%7E3%2F348903030%2F Remember when beloved Cheers and Frasier star Kelsey Grammer had a ’small’ heart attack last month. Well, he is back in the hospital. It is so scary. Even for celebrities- remember they are real people as well.  He had just come out last week and stated how scary his heart attack was. Mr. Grammer said that he almost died and that his heart actually stopped and needed to be hit twice to revive him. Television star Kelsey Grammer is back in hospital with an irregular heartbeat, two months after suffering a heart attack the actor has said nearly killed him. Kelsey presented to the hospital feeling faint and tired. Most likely his irregular heart beat is caused by his medication he is taking to help with his heart muscle and post MI effects. Good luck to him- hope he is back on hi... A Hearty Life blogs http://www.medworm.com/rss/comments.php?id=1660892 Tue, 29 Jul 2008 00:04:30 +0100 1660892 http://www.medworm.com/index.php?rid=1615970&cid=t_104529_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2008%2F07%2F11%2Fdepression-is-real%2F But you already knew that, because you read this blog. For millions of people in the world, however, depression still isn’t viewed as a “real” health problem. These people think it’s just something you have to “get over.” Some even think you can “catch” depression, like you can catch a cold. The number of misconceptions out there is amazing. Anchor Magazine recently published an article on this topic, basically reminding us that mental illness is still not as widely accepted as we would like, but how much progress we’ve made in just the past 20 years. It starts by describing the story of Keith Anderson, a Canadian lawyer who grappled with depression: Anderson’s depression affected every aspect of his life, including his family, his... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=1615970 Fri, 11 Jul 2008 13:46:27 +0100 1615970 http://www.medworm.com/index.php?rid=1446827&cid=t_104529_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHEALTH%2F%7E3%2F291438557%2F This article was published on Highlight HEALTH. Related articlesCancer Research Carnival #7Cancer Research Carnival #7 Call for SubmissionsMedicine 2.0 #10 - Medicine and the Second Generation of Internet-based ServicesMedicine 2.0 #10 Call for SubmissionsHEALTH Highlights - September 10th, 2007 (Source: Highlight HEALTH) Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=1446827 Fri, 16 May 2008 06:00:19 +0100 1446827 http://www.medworm.com/index.php?rid=1287785&cid=t_104529_86_f&fid=36669&url=http%3A%2F%2Ffadelibrary.wordpress.com%2F2008%2F03%2F08%2Fdisease-management-information-toolkit-dmit%2F DMIT (All the information and files on this page form the DMIT toolkit) is a voluntary good practice tool that the NHS may wish to use to strengthen their approach to Disease Management, by presenting data at Primary Care Trust (PCT) level on conditions contributing to high numbers of emergency bed days.  It models the effects of possible interventions which may be commissioned at a local level. It aims to support decision-makers, commissioners and deliverers of care for people with LTCs. DMIT will help users to analyse and consider the likely impact of possible commissioning options before they are taken. This information can then be used to inform commissioning decisions at local level by planning appropriate interventions, matching care to need. (Source: Fade Library) Fade Library blogs http://www.medworm.com/rss/comments.php?id=1287785 Sat, 08 Mar 2008 07:45:16 +0100 1287785 http://www.medworm.com/index.php?rid=1236969&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F02%2F16%2Fyoutube-top-10-videos-about-genetic-conditions%2F We all know how important it is to inform people about genetic conditions. I’ve created several articles and tried to list several sites and resources that could be useful for people with genetic conditions and for their relatives (see below). One of these resources is Youtube where I found some interesting videos focusing on the genetics of medical conditions. Please let me know if you happen to know more. Phenylketonuria: Haemochromatosis: Fragile X Syndrome: Huntington’s disease: Dystrophic Epidermolysis Bullosa: Neurofibromatosis: Alpha 1 Antitrypsin Deficiency: Cystic Fibrosis: Cri Du Chat: Duchenne’s Muscular Dystrophy: Further reading: 10 Tips: how to search for genetic conditions New Tips: How to search for genetic ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1236969 Sat, 16 Feb 2008 15:47:30 +0100 1236969 http://www.medworm.com/index.php?rid=1156815&cid=t_104529_151_f&fid=36047&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FADozenSteps%2F%7E3%2F218011139%2F I received a comment into moderation the other day relating to an older post on Clubs In AA. I haven’t approved it because I doubt its sincerity. It says: “Recently a AA club moved into a building that has a bar on the second floor. This to me is completely unacceptable.” Really??? Think about this. Unacceptable to you??? I thought we stopped playing God in recovery. From page 100; “Assuming we are spiritually fit, we can do all sorts of things alcoholics are not supposed to do. People have said we must not go where liquor is served; we must not have it in our homes; we must shun friends who drink; we must avoid moving pictures which show drinking scenes; we must not go into bars; our friends must hide their bottles if we go into their houses; we mustn’t think... A Dozen Steps blogs http://www.medworm.com/rss/comments.php?id=1156815 Thu, 17 Jan 2008 04:03:00 +0100 1156815 http://www.medworm.com/index.php?rid=1136897&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F01%2F08%2Fnewborn-screening-for-bubble-boy-disease-interview%2F On the 1st of January, the state of Wisconsin made a major step in the field of newborn screening. The collaboration of Wisconsin State Laboratory of Hygiene, Children’s Hospital of Wisconsin and the Jeffrey Modell Foundation resulted in screening newborns for Severe Combined Immune Deficiency (SCID). According to the Wikipedia article this is: …a genetic disorder in which both B and T cells of the adaptive immune system are crippled, due to a defect in one of several possible genes. SCID is a severe form of heritable immunodeficiency. It is also known as the “bubble boy” disease because its victims are extremely vulnerable to infectious diseases. I’ve already presented The Jeffrey Modell Foundation (headquarters in New York) to you in June. Now, to know more abo... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1136897 Tue, 08 Jan 2008 21:39:14 +0100 1136897 http://www.medworm.com/index.php?rid=1132175&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F01%2F06%2Fgene-genie-23-paradise-of-genomics%2F Is it a paradise? You can decide after going through all the submitted articles. It’s my pleasure to host the newest edition of Gene Genie, the blog carnival of clinical genetics and personalized medicine. Many thanks to Ricardo Vidal for the logo! Let’s start with some clinical genetics-related news: Terra Sigillata talks about the genetics of autism. Don’t forget to check out the comments as well! Walter Jessen at Highlight Health focuses on the genetics of panic disorder. I must agree with the opinion of Misha Angrist at Genomeboy: God forbid an Alzheimer’s diagnosis ever bums anyone out. Elaine Warburton at Genetics and Health shares a new finding with us: Genetic manipulation ‘fixes’ Fragile X syndrome I’m pretty optimistic as we can see some steps forwa... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1132175 Sun, 06 Jan 2008 21:40:31 +0100 1132175 http://www.medworm.com/index.php?rid=1131709&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F01%2F05%2Fnew-tips-how-to-search-for-genetic-conditions%2F Last year, I came up with a list containg 10 tips on how to search for genetic conditions. Now, after weeks of tagging and browsing, I’d like to improve that list with some new tips. But this time, I’d like to show you databases dedicated not only to genetic conditions, but gene-disease associations and human genome epidemiology as well. Human Genome Epidemiology Network (HuGENet™ ): A global collaboration of individuals & organizations committed to the assessment of the impact of human genome variation on population health & how genetic information can be used to improve health & prevent disease. HuGE Navigator: It provides access to a continuously updated knowledge base in human genome epidemiology, including information on population prevalence of gen... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1131709 Sat, 05 Jan 2008 20:01:14 +0100 1131709 http://www.medworm.com/index.php?rid=1121736&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F12%2F29%2Fsteps-forward-in-clinical-genetics%2F As I promised I’m here again to keep you up-to-date about the wonderful realm of clinical genetics. While there is a shortage of geneticists in the US and in other parts of the world as well, we can see some improvements regarding certain medical conditions. Let’s start with fragile X syndrome. Fragile X syndrome is the most common cause of mental retardation. As Wikipedia says: Mutation of the FMR1 gene leads to the transcriptional silencing of the fragile X-mental retardation protein, FMRP. In normal individuals, FMRP binds and facilitates the translation of a number of essential neuronal RNAs. In fragile X patients, however, these RNAs are not translated into proteins. Original source: Wikimedia Commons under Free Art License The researchers of the Picower Institute for Lea... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1121736 Sat, 29 Dec 2007 17:23:27 +0100 1121736 http://www.medworm.com/index.php?rid=1097237&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F12%2F15%2Freggie-bibbs-and-the-just-ask-neurofibromatosis-campaign%2F Fellow Wikipedia editor and friend, Michaël Laurent, has recently asked me to take part in a great project: to interview Reggie Bibbs on his life with neurofibromatosis. I only wrote a short description of the condition, the work was totally done by Michaël and the interview was conducted by Lou Congelio. You should check out the whole story at WikiNews. Here is an excerpt. Reggie Bibbs is a 42-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumours on his body. NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a succesful campaign... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1097237 Sat, 15 Dec 2007 22:19:27 +0100 1097237 http://www.medworm.com/index.php?rid=2512235&cid=t_104529_129_f&fid=36041&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fchrista-life-with-psoriasis%2Fsurveying-the-changes-in-psoriatic-arthritis%2F I was surfing the web looking for anything of interest, as you do, and I came across the published results of a survey: “The study of impact of psoriasis/psoriatic arthritis on lifestyle choices” conducted by the PAA (Psoriatic Arthritis Alliance) in 2005. The main conclusions of the survey were that: • Early diagnosis and appropriate interventions remain key to long term positive outcomes • Education on psoriasis of healthcare providers is still perceived to be low • Awareness of psoriasis should be more visible and positive • Many people cope well and do not let the conditions affect their lifestyle choices • Psychological impact should not be underestimated; physical disease severity is only one aspect How have things changed since 2005? It is clear that individual psoria... Life with Psoriasis blogs http://www.medworm.com/rss/comments.php?id=2512235 Fri, 30 Nov 2007 20:13:56 +0100 2512235 http://www.medworm.com/index.php?rid=1044231&cid=t_104529_129_f&fid=36041&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-psoriasis%2Fchrista%2Fover-the-counter-psoriasis-lotions-have-you-tried-them%2F While we were in the States I was amazed at the wide range of over the counter products are available there. In one supermarket alone there were aisles of things we can either only get on prescription or can’t get at all. I was really interested to see that there are a number of creams available for sale aimed at psoriasis ‘sufferers.’ I must add here, as an aside, that I don’t actually like the term sufferer, although it probably technically is correct because we do suffer at time with this stuff…but it makes us sound more like victims and I hope that is not the case. But back to the tropic; over the counter creams and lotions. I peered at a few and read the labels. There didn’t seem to be too much to choose between them. Many contained little that I could see would be of any ... Life with Psoriasis blogs http://www.medworm.com/rss/comments.php?id=1044231 Wed, 21 Nov 2007 18:59:22 +0100 1044231 http://www.medworm.com/index.php?rid=1002517&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F11%2F04%2Fgene-genie-19-geneticalization%2F Many thanks to Ricardo Vidal for the logo! Gene Genie is the blog carnival of genes and gene-related diseases. Our plan is to cover the whole genome before 2082 (it means 14-15 genes every two weeks). But we also accept articles on the news of genomics and personalized genetics. Let’s get ready to the geneticalization: DNA: Hsien-Hsien Lei at Eye on DNA tells us that New Line Genetics and SellMyDNA.com Offer $5,000 for Your DNA. Would you sell it? Nature’s Nascent has a short report about the amazing story of Hugh Rienhoff, his daughter and her DNA. Misha Angrist at Genomeboy comments the same story in the Don’t try this at home, kids post. Genes: Matt Mealiffe at DNA and You talks about several genes linked to eye color. Steve Murphy, our Gene Sherpa, expresses his opinio... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1002517 Sun, 04 Nov 2007 10:10:37 +0100 1002517 http://www.medworm.com/index.php?rid=1001163&cid=t_104529_129_f&fid=36041&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-psoriasis%2Fchrista%2Fthe-eyes-have-itpsoriasis-that-is%2F I have psoriasis in my eyes. It forms on the underside of my eyelids and does its utmost to drive me crazy. Thankfully it doesn’t itch like the rest of me, but it does feel like I have a whole handful of grit in my eye. This first came to light when I started methotrexate. Aside from all the usual charming side effects, I also experienced blisters in my mouth and eventually in my eyes. These horrid little things would chaff my eyes and would then burst filling my eyes with stinging liquid. They would be sore for an hour or two afterwards and then would clear up…only to return again with the next weekly injection. Imagine my delight when I was told that these little monsters were just another of the joys of my disease and that I could expect them to be regular visitors from this time an... Life with Psoriasis blogs http://www.medworm.com/rss/comments.php?id=1001163 Fri, 02 Nov 2007 21:01:00 +0100 1001163 http://www.medworm.com/index.php?rid=822316&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F08%2F25%2Fnew-clues-for-down-syndrome%2F An excerpt from a recent article at Medical News Today: Scientists in Portugal and the US have discovered a key mechanism involved in the correct separation of chromosomes during the formation of eggs and sperm. The research about to be published in the journal Current Biology shows that BubR1 a gene recently shown to affect cell division maintains the cohesion of paired chromosomes (until their time to divide) during the production of reproductive cells. Because BubR1 mutations can result in cells with abnormal numbers of chromosomes, the research has potential implications for human disorders resulting from loss or gain of chromosomes such as Down Syndrome, a disease caused by an extra copy of chromosome 21. As Claudio Sunkel says, “our observations suggest for the first time that ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=822316 Sat, 25 Aug 2007 17:24:30 +0100 822316 http://www.medworm.com/index.php?rid=780406&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F08%2F05%2Fmendels-garden-17-blog-carnival-of-genetics%2F This time, it’s the honor of Scienceroll to host Mendel’s Garden, the blog carnival totally devoted to all the fields of genetics. I thought I couldn’t find enough articles as most of the bloggers were on their vacation. But I have to share 30(!) blogposts with you and as I would like to make it easier to go through all the submissions, I also present some funny videos on genetics. Enjoy and welcome in Mendel’s Garden! Let’s listen to music while reading the articles! Mendel-rap? Plants/animals: Trevor Covert at Epigenetics presents Epigenetic Natural Variation in Arabidopsis thaliana. Jonathan A. Eisen at The Tree of Life mentions Metagenomics Based Discovery Highlight: Novel Photosynthetic Organism Discovered. GrrlScientist at Living the Scientific Life has an... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=780406 Sun, 05 Aug 2007 08:25:40 +0100 780406 http://www.medworm.com/index.php?rid=749046&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F07%2F21%2Fweb-20-and-clinical-genetics-in-practice%2F Ramūnas Janavičius at cancer-genetics.com sent me some exceptional links to resources of clinical genetics. Why is it important? Once I wrote that: Look, we can’t expect physicians (from any kind of medical specialties) to know everything about all the cc. 4000 genetic conditions. But we can help them how to find relevant information and quickly understandable material on genetic conditions. Last week, I got a chance to see how our geneticists work at the department of pediatrics. I admire their work, but in special cases, they had to search for syndromes in books! I mean they had to go through it page by page. I always dream about a software (a Diagnosaurus-like gadget) with which we could make it easier for physicians to diagnose a genetic condition. You just enter the symptoms and ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=749046 Sat, 21 Jul 2007 16:37:45 +0100 749046 http://www.medworm.com/index.php?rid=744849&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F07%2F19%2Fgenetic-testing-blogmix-and-a-funny-video%2F I’ve been totally busy because of my summer practice at the department of pediatrics. I’ve seen many cases when genetic tests are needed (a strange haemophilia-related case, hereditary spherocytosis, etc.). I thought I should be your aggregator for today, so I tried to collect the most interesting posts on genetic testing, and I also present a new genetic blog. Then after reading all of these, don’t miss the funny video about a parody of a public service announcement on genetic testing. Source Medicine 2.0 means that you can read valuable comments and opinions which are unlikely to be published in a scientific paper. Hsien-Hsien Lei greatly answers common questions about genetic testing. Steven Murphy, the Gene Sherpa always informs us about new techniques and procedures... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=744849 Thu, 19 Jul 2007 21:11:16 +0100 744849 http://www.medworm.com/index.php?rid=719823&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F07%2F07%2Ftowards-a-world-without-genetic-diseases%2F I always dream about it. I really believe that in the next decades, we’re going to find a cure or at least a proper treatment for all the important genetic conditions/diseases. Until then, people struggling with these disorders have to learn how to handle their problem. First, here is a beautiful example: Now, let’s see how we can get closer to that dream-world. I know it’s not going to be a patient-based post, but please forgive me this time. Here are 3 major improvements around muscular dystrophies, the first two articles present new diagnostic possibilities, while the third one is about the therapy: Detection And Diagnosis Of Muscular Dystrophy Advanced By New Genetic Test A new genetic test targeting the most common types of muscular dystrophy–those caused b... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=719823 Sat, 07 Jul 2007 20:14:51 +0100 719823 http://www.medworm.com/index.php?rid=707380&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F07%2F01%2Fpseudomonas-infections-and-cystic-fibrosis%2F Pseudomonas infection causes serious problems in people with cystic fibrosis. Check out MicrobiologyBytes for more! (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=707380 Sun, 01 Jul 2007 05:16:55 +0100 707380 http://www.medworm.com/index.php?rid=707186&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F06%2F30%2Fface-to-face-gaucher-disease%2F Some months ago, I wrote about Pompe disease, a rare, but important genetic disorder. I wanted to build awareness on the diagnostic delay, the cause of many misdiagnoses. Now, here is an other outstanding project about Gaucher disease. First, an excerpt from the Wikipedia article: Gaucher’s disease is the most common of the lysosomal storage diseases. Symptoms may include enlarged spleen and liver, liver malfunction, skeletal disorders and bone lesions… A journal-blog called Face to face, My journey for the Gaucher Initiative says: Through this journal I will be documenting my journey to meet the faces behind the Gaucher Initiative, a humanitarian program that provides Gaucher patients in developing countries with the enzyme replacement therapy, Cerezyme, free of charge. I have... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=707186 Sat, 30 Jun 2007 19:26:05 +0100 707186 http://www.medworm.com/index.php?rid=675547&cid=t_104529_87_f&fid=34866&url=http%3A%2F%2Fwww.thecardioblog.com%2F2007%2F06%2F15%2Ffitness-and-a-heart-condition-can-they-go-together%2F Filed under: ExerciseIt may seem like once you're diagnosed with a chronic heart condition (or other illness for that matter) the idea of fitness and good health go right out the window, and that really shouldn't be the case. It may be more challenging, but it certainly is possible to exercise and get in better shape while working around a chronic illness.Your doctor can go over with you exactly what your physical limitations are in regards to what you should and shouldn't be doing. He may also recommend physical therapy, depending on your situation, or he may just recommend specific guidelines for exercising. If you decide to go the route of hiring a personal trainer, which is a good idea for many, be sure to find one that has experience working with your particular health condition or co... The Cardio Blog blogs http://www.medworm.com/rss/comments.php?id=675547 Fri, 15 Jun 2007 04:00:00 +0100 675547 http://www.medworm.com/index.php?rid=675989&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F06%2F13%2Fgiving-babies-a-chance-to-survive%2F I got a letter from Natalie Maniscalco who is working at The Jeffrey Modell Foundation. She asked me to post this message about the Foundation and the importance of avoiding diagnostic delay: Mission The Jeffrey Modell Foundation (JMF) was established by Vicki and Fred Modell in memory of their son, Jeffrey, who died at the age of 15 of a Primary Immunodeficiency (PI). The Foundation is dedicated to early and precise diagnosis, meaningful treatments and ultimately cures for Primary Immunodeficiencies. What you need to know: PI is a genetic defect in a child’s immune system. It’s more common than you think, it’s chronic, and if untreated, it can be deadly. It affects as many as 1 million children and young adults – more common than childhood leukemia and lymphoma combined. PI causes... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=675989 Wed, 13 Jun 2007 19:10:16 +0100 675989 http://www.medworm.com/index.php?rid=658876&cid=t_104529_87_f&fid=34866&url=http%3A%2F%2Fwww.thecardioblog.com%2F2007%2F06%2F04%2F10-things-you-need-to-know-about-your-heart-problems%2F Filed under: Drugs, Women Heart Health, Men Heart Health, Aging Heart Health, SurgeryYou've been diagnosed with a heart problem. You have a lot of questions but you can't seem to get your head around this, this thing that's just been dropped on you like bomb. You probably feel very alone but believe it or not, situations like this are pretty common so WebMD has come up with this handy list of things you should ask your doctor about your heart condition. You need to know the facts, what can be done and where you'll end up on this roller coaster of life--and you might not know which questions to ask. Either that or you're too overwhelmed to think it through. You can even print the list out and take it to your doctor. If you've gone through this before, what information did you find the m... The Cardio Blog blogs http://www.medworm.com/rss/comments.php?id=658876 Mon, 04 Jun 2007 04:00:00 +0100 658876 http://www.medworm.com/index.php?rid=645145&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F28%2Fgenetic-breakthroughs-for-today%2F Three announcements that could have a big impact on genetic testing: New breast cancer genes discovery Scientists have developed a new technique to identify genes that increase the chance of women developing breast cancer. They hope it will lead to a single blood test which would reveal a woman’s risk of getting the disease. Scientists found two genes responsible for breast cancer two years ago. But now new research led by Cancer Research UK’s Cambridge Research Institute, published in the Nature journal, has found five more. Sweden approves embryo screening to save dying siblings The Swedish National Board of Health and Welfare has approved the highly-controversial procedure for three families whose children risk dying unless they receive a transplant of healthy st... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=645145 Mon, 28 May 2007 19:45:09 +0100 645145 http://www.medworm.com/index.php?rid=645146&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F27%2F10-tips-how-to-search-for-genetic-diseases%2F Some months ago, I wrote about Juan Magdaraog who is blogging about his struggle with Pompe disease, a rare, but important genetic condition. He let me know about an essential problem: the diagnostic delay. The diagnosis often poses a dilemma due to the rarity of the disease, the variable rates of progression and the unspecific phenotypic features… Just take a look at the diagnostic delay diagram, there are from 2 to 4 years between the first symptoms and the diagnosis! Look, we can’t expect physicians (from any kind of medical specialties) to know everything about all the cc. 4000 genetic conditions. But we can help them how to find relevant information and quickly understandable material on genetic conditions. I know that there are hundreds of great resources on the net, but ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=645146 Sun, 27 May 2007 20:12:21 +0100 645146 http://www.medworm.com/index.php?rid=629254&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F20%2Fpersonalized-geneticsgenomics-blogterview-with-steven-murphy-md%2F I’ve recently decided to deepen my knowledge on the field of personalized genetics/genomics as it has an exceptional future in the realm of medicine (and business). And who is the right person to answer my geek questions? Of course, Steven Murphy, MD, the blogger of the Gene Sherpa. He is the Clinical Genetics Fellow at Yale University and is also the founder of a Personalized Medicine practice. We’ve heard a lot about personalized medicine, but please tell us more about personalized genetics. Sure. There are some fundamental differences here. When I think about personalized genetics (Which is different than personalized genomics) I think about modifier genes involved in single gene disorders such as Cystic Fibrosis. A few months ago, I diagnosed a 70 year old woman with CF.... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=629254 Sun, 20 May 2007 20:53:00 +0100 629254 http://www.medworm.com/index.php?rid=623623&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F19%2Fgene-genie-7-is-up-at-the-gene-sherpa%2F One of the best editions ever has been posted at the Gene Sherpa. The topic is (surprising, right?) personalized genetics. Steve Murphy covered the subject with interesting descriptions and collected about a dozen of submissions. Still we must never forget the roots of genetics. I am all too aware of the struggle people with metabolic diseases go through every day. We hear about this at Fight Pompe I am not surprised by the struggle to keep up with costs of this horrible disease. Thank you, Steve for hosting! Next time, we’re going to Eye on DNA! Visit the official website of the carnival at genegenie.wordpress.com and let us know if you plan to host an edition! Here are all the issues of Gene genie: First issue: Scienceroll Second issue: Sciencesque Third issue: Genetics and Health... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=623623 Sat, 19 May 2007 13:41:29 +0100 623623 http://www.medworm.com/index.php?rid=612325&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F15%2Fnews-of-genetics-and-some-words-about-genetic-education%2F I’ve recently found some interesting genetic blogposts, articles and sites that can be useful for users seeking genetic information. A Better Chromosome Map Will Be Produced Using New Technique (MedicalNewsToday.com) Researchers at the University of Illinois have developed a simple and economical technique for imaging and mapping fruit fly chromosomes. This new approach will enable them to construct the first accurate map of the chromosomes and tease out the secrets hidden in their stripes… The new approach will allow scientists to answer fundamental questions about chromosome structure… The Genomic Revolution AKA the birth of Personalized Medicine (Gene Sherpas) Steve Murphy talks about personalized medicine and the problems of genetic education: The solutions? Ar... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=612325 Tue, 15 May 2007 06:51:34 +0100 612325 http://www.medworm.com/index.php?rid=603758&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F13%2Fworld-community-grid-help-medicine-at-home%2F Sometimes a good idea and the participation of crowds can make a project fantastic. The World Community Grid has a beautiful mission: to create the largest public computing grid benefiting humanity. I’ve already installed it on my computer and it looks great. The official site says: Our work is built on the belief that technological innovation combined with visionary scientific research and large-scale volunteerism can change our world for the better. Our success depends on individuals - like you - collectively contributing their unused computer time to this not-for-profit endeavor. How can you help? Join as a member Join as a partner Find a team Or donwload the program and donate the time your computer is turned on, but is idle, to this project Where can you help? FightAIDS@Hom... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=603758 Sun, 13 May 2007 07:18:41 +0100 603758 http://www.medworm.com/index.php?rid=591204&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F05%2Fgene-genie-a-famous-blog-carnivals-sixth-issue%2F You may realized that our favourite blog carnival, Gene Genie has been mentioned in the last issue of Cell. So as it became a famous blog carnival with the goal of covering the whole genome before 2082, in the sixth issue, I’m going to mention at least a dozen of posts, articles focusing on genes and gene-related diseases. If you happen to remember the time when I hosted Grand rounds, the weekly blog carnival of the best of the medical blogosphere, you’ll not be astonished by these weird videos of genetics. So let’s get ready to the genes… My Biotech Life presents a gene called Tbx1 whose inactivation leads to DiGeorge syndrome, a rare congenital disease. He also describes Tbx2/3 transcription factors and their role in embryonic development. The SciencetificBlogging... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=591204 Sat, 05 May 2007 19:31:41 +0100 591204 http://www.medworm.com/index.php?rid=589750&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F05%2F04%2Fptc124-a-drug-against-genetic-diseases-overview%2F I’ve already written about the Times Online article (Daily pill to beat genetic diseases), but I would like to give a clear overview of this “miracle-drug”. The story of PTC124 is not new, it goes back to 2004. Anyway, what is it about? PTC124 is a novel, orally administered small-molecule compound that targets a particular genetic alteration known as a nonsense mutation. Genetic disorders occur as a consequence of mutations in an individual’s DNA. Nonsense mutations are alterations in the DNA that, when transcribed into mRNA, introduce a premature translation termination codon. This change halts the ribosomal translation process at an earlier site than normal, producing a truncated, non-functional protein. So PTC124 binds to the ribosome, ignores the nonsense muta... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=589750 Fri, 04 May 2007 16:37:06 +0100 589750 http://www.medworm.com/index.php?rid=570100&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F04%2F25%2Fnews-of-genetics-lets-beat-genetic-diseases%2F I’m just back from a poker tournament, and I can’t stop posting the most interesting and promising genetic news and announcements from the recent days: Daily pill to beat genetic diseases (Times Online) A pill that can correct a wide range of faulty genes which cause crippling illnesses should be available within three years, promising a revolution in the treatment of thousands of conditions. The drug, known as PTC124, has already had encouraging results in patients with Duchenne muscular dystrophy and cystic fibrosis. The final phase of clinical trials is to begin this year, and it could be licensed as early as 2009. I must write more about PTC124 and the possible therapeutic possibilities. A great topic. New Test May Allow Population Screening For Fragile X Syndrome A n... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=570100 Wed, 25 Apr 2007 19:45:50 +0100 570100 http://www.medworm.com/index.php?rid=560422&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F04%2F22%2Fthe-best-genetics-of-the-week-and-a-medstudent-who-loves-vagina%2F Here are the best genetic and clinical genetic blogposts and news of the week with a superb animation about stem cells. Let’s start with two major findings, two hopes for two serious genetic conditions. DNA repair as key to Huntington’s disease Mayo Clinic researchers, along with collaborators from the National Institutes of Health (NIH) and University of Oslo, Norway, have discovered that a miscue of the body’s genetic repair system may cause Huntington’s disease, a fatal condition that affects 30,000 Americans annually by destroying their nervous system. Restoration of muscle function in muscular dystrophy Using a new type of drug that targets a specific genetic defect, researchers at the University of Pennsylvania School of Medicine, along with colleagues at PTC The... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=560422 Sun, 22 Apr 2007 19:33:26 +0100 560422 http://www.medworm.com/index.php?rid=530927&cid=t_104529_87_f&fid=34865&url=http%3A%2F%2Fwww.thecancerblog.com%2F2007%2F04%2F09%2Fa-different-shade-of-chemo%2F Filed under: Chemotherapy, Cancer SurvivorsIt feels like summer here in Florida. Our temps topped 86 degrees last week and this kind of heat prompts my little boys to request their favorite summertime activity: swimming.My kids don't quite understand that the temperature outside is not the same as the temperature of unheated water. And so as soon as warm weather arrives, they dash for their suits and insist we make a trip to the neighborhood pool. I oblige, convinced they'll want to head home once they submerge their piggy toes in pure ice.But somehow, the temperature doesn't register. They plunge right in, dunk their heads and kick and flop and float. They are happy as clams, quivering lips and all. I am happy too as I watch their joyous moments from the privacy of my lounge chair, tucked... The Cancer Blog blogs http://www.medworm.com/rss/comments.php?id=530927 Mon, 09 Apr 2007 04:00:00 +0100 530927 http://www.medworm.com/index.php?rid=528958&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F04%2F08%2Fnews-of-the-world-of-medicine-20%2F After my successful urology exam, let’s take a tour into the realm of web 2.0 an medicine. First, I show you some useful sites, then we’re going to continue with blogposts and finally, a great video about genetic screening. DNATube: a scientific research site providing video based studies, lecturers and seminars. In the genetics category, there are plenty of interesting videos such as the 3D structure of chromosomes. PubMed Reader: a free web-based research program for displaying PubMed / Medline search results on an individual basis. Create your own uptodate Medline and PubMed literature search! YourSciCom: Science 2.0, a completely open research project’s blog. Placebo Journal Blog: an extension of the Placebo Journal. Wikipedia: We aren’t Citizendum: a... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=528958 Sun, 08 Apr 2007 09:11:15 +0100 528958 http://www.medworm.com/index.php?rid=506833&cid=t_104529_87_f&fid=34865&url=http%3A%2F%2Fwww.thecancerblog.com%2F2007%2F03%2F28%2Fthought-for-the-day-inflammatory-breast-cancer-often-undiagnose%2F Filed under: Breast Cancer, Prevention, Daily news, Thought for the DayMore than 200,000 American women are diagnosed with breast cancer every year. And about six percent of all invasive breast cancer cases involve a condition called inflammatory breast cancer (IBC), the most aggressive and often undiagnosed form of the disease.IBC does not present itself in the form of a lump or mass and is typically not detected by self-examination, mammogram, or ultrasound.IBC is a misunderstood disease. But if women learn to recognize some of the symptoms, there is a better chance for better diagnosis, treatment, and survival. Think about this, a list of early symptoms of IBC: o. One breast rapidly becomes larger than the other o. Breast has a rash, redness, or blotchiness o. Breast and/or nipple persi... The Cancer Blog blogs http://www.medworm.com/rss/comments.php?id=506833 Wed, 28 Mar 2007 04:00:00 +0100 506833 http://www.medworm.com/index.php?rid=486294&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F03%2F21%2Fgenetics-for-the-public%2F Marie Godfrey has left a comment on one of my posts recently, and asked me whether I’d like to write about her blog and the Genetic Alliance non-profit organization. They both try to make genetics more readable and understandable for laymen and people with genetic conditions. So first, let’s take a deeper look at GeneForum and the Genetizen blog: Advances in genetics and biotechnology are impacting society in provocative ways. The Genetizen is written by a select group of scientists, bioethicists, and healthcare professionals who provide you with expert analysis and commentary on many important issues. I can’t admire enough the goals like that: Geneforum strives to promote civic discourse about genetic policy through public education, public engagement, and public consul... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=486294 Wed, 21 Mar 2007 08:29:44 +0100 486294 http://www.medworm.com/index.php?rid=489979&cid=t_104529_87_f&fid=34865&url=http%3A%2F%2Fwww.thecancerblog.com%2F2007%2F03%2F21%2Fson-of-denver-nuggets-coach-battles-cancer%2F Filed under: Thyroid Cancer, Daily news, Sports, SurgeryBoise State basketball player Coby Karl, son of Denver Nuggets coach George Karl, had surgery 13 months ago to remove his thyroid after he was diagnosed with papillary carcinoma, a form of treatable cancer. And while Karl received chemotherapy to kill off any lingering cancer cells, he must undergo cancer surgery once again.Karl, who plans to play in the NABC All-Star game in Atlanta on March 31, will return to Boise on April 2 for surgery to remove cancerous lymph nodes.The lymph node cancer was identified in January, but Karl, 23, kept his condition private until his team lost to New Mexico State in the Western Athletic Conference tournament semifinals. This ended the Broncos' season. And now begins Karl's second go-round with cance... The Cancer Blog blogs http://www.medworm.com/rss/comments.php?id=489979 Wed, 21 Mar 2007 04:00:00 +0100 489979 http://www.medworm.com/index.php?rid=486299&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F03%2F17%2Fnewborn-screening-in-the-us-a-mothers-story-about-how-to-improve-a-whole-system%2F Some time ago, in one of my posts I noted that I was looking for a newborn screening specialist. Then I got a letter from a mother of a boy with MCAD (medium chain acyl CoA dehydrogenase defect) from Texas and I had to realize how incredible story she had. Laura Clow who is also a member of www.savebabies.org website, kindly answered my questions. Please tell us the story of your boy! How was he diagnosed with medium chain acyl CoA dehydrogenase defect? Brickman was a full-term, seemingly perfect, healthy baby & toddler, hitting every developmental milestone ahead of schedule. When he was 19 months old, he became ill with a stomach virus. He went 18 hours without food because of the illness. He began having seizures and slipped into a coma. The doctors at the E.R. could not determ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=486299 Sat, 17 Mar 2007 11:04:33 +0100 486299 http://www.medworm.com/index.php?rid=482080&cid=t_104529_87_f&fid=34969&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FUnboundedMedicine%2F%7E3%2F102110590%2F Via Boingboing Link WFMU’s A missionary in Eastern Europe recently reported an extremely rare (condylomatosis) skin condition. This disease is called Lewandowsky-Lutz dysplasia. This missionary wrote: I found this man, and other than his hands and feet, he looked and seemed in good health. As best as I could gather these growths began when he was 14 years old, and began in the area of his wrists. The skin on his wrists and the back of his hands resembles that of a hedgehog - hundreds of spike like growths. The problem is much more severe on his palms and fingers where the growths resemble very much that of nails infected with a fungus. The growths have that same texture, smell and feel. I cut a number of the largest growths off, most of witch did not bleed. Some of the smaller growth... Unbounded Medicine blogs http://www.medworm.com/rss/comments.php?id=482080 Fri, 16 Mar 2007 07:48:41 +0100 482080 http://www.medworm.com/index.php?rid=486313&cid=t_104529_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2007%2F03%2F04%2Fthe-gene-genie-issue-2%2F Our gene-related blog carnival is up at Sciencesque. Tim has made a great job, collected all the important gene and genetic condition related articles from the past 2 weeks. Take a look at his work in case you don’t want to miss the genetic cause of agressive gum disease IQ related genes ABO genes Tim’s random word generator result Pompe disease or the DNA of Jesus! The next issue is due to be published in two weeks. If you have a gene-related article or want to host a Gene Genie, then contact me (berci.mesko [at] gmail.com). (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=486313 Sun, 04 Mar 2007 08:00:45 +0100 486313 http://www.medworm.com/index.php?rid=485752&cid=t_104529_109_f&fid=35044&url=http%3A%2F%2Fadultaddstrengths.com%2F2007%2F03%2F02%2Fadhd-is-treatable-a-point-some-people-forget%2F Healthoma has a blog post titled ADHD is treatable. Great title and great point. via Your ADD/ADHD news ADD blog carnival The causes are linked to genes and to the environment—they are not caused by an excessive intake of sugar or by any other medication. Typically, another family member may have also suffered from it and this is also a sign. Some people especially men with ADHD stay in denial about having ADHD, in some cases they need to be on their 2nd or 3rd wife until they clue in. Or their 4th or 5th job they’ve been fired from/had to quit before getting fired. Adults with ADHD have higher divorce rates and higher rates of maritial instability. Some of the adult ADD clients I’ve coached have high stimulation jobs and excel at work but are on the verge of divorce at home ... Adult ADD Strengths blogs http://www.medworm.com/rss/comments.php?id=485752 Sat, 03 Mar 2007 00:07:11 +0100 485752 http://www.medworm.com/index.php?rid=463416&cid=t_104529_113_f&fid=34649&url=http%3A%2F%2Ftechnhealth.blogspot.com%2F2006%2F09%2Fwireless-monitors-helping-heat-patients.html Wireless monitors helping heart patientsSeattlepi.com is reporting on a new wireless device that collects data from a heart patient and sends the information back to the physician.The data is transferred to a website that is then checked daily by staff for alerts and monitors trends. For the patient, they have peace of mind knowing that someone is monitoring their heart condition and for the physician, ensures quality and consistency of care.tags technorati : wireless device heart disease heart condition (Source: Tech 'n' Health) Tech 'n' Health blogs http://www.medworm.com/rss/comments.php?id=463416 Wed, 13 Sep 2006 04:00:00 +0100 463416