MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'costello'. Sat, 03 Sep 2011 02:55:10 +0100 http://www.medworm.com/index.php?rid=2236486&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FCostellokidsNews%2F%7E3%2FoGm2J-tahus%2F How hard can it be to take a good picture on demand. All though I consider myself to be quite a good snapper. I am always armed with the trusty digital camera, just in case a good shot comes along. Sometimes it can be very very difficult to get the picture that looks just right. We had a problem, my wife Cath needed a head and shoulder photograph for a press article. Simple enough, reach for the camera, snap, snap and snap again. Unfortunately it was not that simple. All the photographs I took were poor and looked wrong. The previous day my daughter Helaina had been taking some pictures. This is the picture Helaina took. That daughter of mine has a great eye for a good photo. Guess which picture will be sent to the reporter? Yes.. you guessed it will be the one Helaina took. (Source: Cost... CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2236486 Tue, 03 Mar 2009 13:25:26 +0100 2236486 http://www.medworm.com/index.php?rid=2236487&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FCostellokidsNews%2F%7E3%2FwOPLOfro-cE%2F I would like to say a BIG thank you to all our families who wrote letters and helped to promote rare diseases day. In the UK and USA we have had great success in raising awareness of Costello Syndrome. With only 300-400 known people diagnosed with this syndrome it is a very rare disorder indeed. Through mutual support our organisation learns from each other, a global community of knowledge, each individual able to help others. Please Drop by the USA  rare Disease day website http://www.rarediseases.org/ Or visit the  UK Rare Disease day website at http://raredisease.org.uk/ Take care and enjoy our site. (Source: CostelloKids News) CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2236487 Wed, 25 Feb 2009 00:52:50 +0100 2236487 http://www.medworm.com/index.php?rid=2178794&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F537929828%2F Attending a conference can be expensive! Click the link below and see if your state’s Council on Developmental Disabilities offers any assistance to families to attend  our conferences. State Councils on Developmental Disabilities Some states like Alabama do!  Every state is different and some may not even offer this type of assistance. It is easy to apply.  There are no financial criteria… you just have to be a person with a developmental disability or have a child who has a developmental disability! So go on, if you are thinking of attending the conference, apply now, and you may just get the financial support you need. (Source: CostelloKids News) CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2178794 Wed, 11 Feb 2009 21:45:33 +0100 2178794 http://www.medworm.com/index.php?rid=2169384&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F531025226%2F Zackary Adamsky was born on October 14, 2005. In 2006 he was diagnosed with Costello Syndrome, which is a multiple congenital malformation syndrome that has only been reported in about 300 people around the world. The gene that mutates in Costello Syndrome is the H-Ras gene which is a cancer gene. Zackary was diagnosed with Rhabdomyosarcoma of his abdomen and lung on May 9, 2007. Because of the complexity of Costello Syndrome, Zackary suffered many surgeries and other life threatening illnesses beside the cancer, such as Hypertrophic cardiomyopathy, 2 brain bleeds, 2 broken femurs, a tracheostomy and relied on a ventilator to help him breath. Zackary spent a year and a half at AI duPont Hospital for Children, only going home for a total of 3 weeks. Zackary endured so much pain and sufferin... CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169384 Mon, 02 Feb 2009 11:14:18 +0100 2169384 http://www.medworm.com/index.php?rid=2169386&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F523935775%2F For Halloween 2008 we took a family trip to Cardiff . Part of the day we spent at the hands on Centre, where we all had lots of fun exploring all the great things to do. Then it was off to do spooky things at the party. Mark Twain sums up our view of life with the following words of wisdom:- “Twenty years from now you will be more disappointed by the things that you didn’t do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbour. Catch the trade winds in your sails. Explore. Dream. Discover.” Enjoy the video. (Source: CostelloKids News) CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169386 Tue, 27 Jan 2009 00:17:42 +0100 2169386 http://www.medworm.com/index.php?rid=2169387&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F523878378%2F Caring for a medically fragile child is one of the most difficult things a parent can do. Not only do you have to do all of the parenting day to day work. Like feeding and day to day care, you quickly have to lean many roles that most parents would not even know excited. Within days of your child being born you start to get training for all of the roles you will quickly develop. As well as being a parent, you become an occupational therapist, a feeding therapist, among many other roles. Most children, who have a genetic disorder, or are medically fragile in some way, and  some families  may be lucky to have a support network within their own community, Doctors and care workers who have a knowledge of the medical condition and all of the of the health implications that will effect the chi... CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169387 Mon, 26 Jan 2009 17:42:28 +0100 2169387 http://www.medworm.com/index.php?rid=2169388&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F521189759%2F January 19th 2009 commemorated Martin Luther King, Jr., which has become a day of civic voluntarism here in the US. Barack Obama, the day before becoming President, spent it volunteering, along with his family. He also asked that we extend it beyond just this day. I thought about it a bit, and wondered how to apply the idea to our efforts. Both the International Costello Syndrome Support Group (ICSSG) in the UK,  and the Costello Syndrome Family Network (CSFN) in the US rely solely on voluntarism. I recognize that caring for a medically fragile, developmentally delayed/disabled child is like walking along the top of a tall wall. It doesn’t take much to cause us to stumble, so easy to fall off. Anything that would cause a family caring for a typical child to stumble (a car breaks dow... CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169388 Thu, 22 Jan 2009 23:40:18 +0100 2169388 http://www.medworm.com/index.php?rid=2169389&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F521189760%2F Where:- Berkeley, California When:- July 30 to August 2, 2009 How to book:- Families - Toll Free in the US: (800) 243-0625 or (510) 665-7141 Ask for the Costello Family Conference Rate or “3NN” or go to http://doubletree.hilton.com/en/dt/groups/personalized/JBKCADT-3NN-20090729/index.jhtml Professionals - Please book your rooms through the symposium weblink: http://cancer.ucsf.edu/raspathway2009 or contact the hotel directly (see “Families” above)and ask for the RAS/MAPK Symposium Rate or “3CN” Click Here to Download the Conference Poster (Source: CostelloKids News) CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169389 Mon, 19 Jan 2009 13:17:22 +0100 2169389 http://www.medworm.com/index.php?rid=2169390&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F521189761%2F Many doctors feel that a g-tube and fundoplycation are what children need…and then there are those who don’t. Many families feel that a g-tube and fundoplycation are what their child need…and many don’t. Not only are the needs of each child different…but doc’s have different opinions and experiences and the demographics of each family are different too.  So…we will all inevitably treat our child’s medical, nutritional, social and developmental needs differently. For my daughter…the g-tube and fundoplycation were life savers, recommended by her doctors and after much research, consideration and prayer…approved by us! Because of the g-tube and fundo, she was a happier child! She wasn’t hungry any more, slept better and she di... CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169390 Sun, 18 Jan 2009 23:45:55 +0100 2169390 http://www.medworm.com/index.php?rid=2169391&cid=t_225240_81_f&fid=38248&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FCostellokidsNews%2F%7E3%2F521189762%2F The support group is a great way for families to get assistance with problems that they are having with their Costello people and the families of younger people seem to find it marvellous in that respect. Like anything, there are two sides. I strongly feel that we also need to learn the good things that occur. I have been told that some people feel uncomfortable about passing on the good things as they can feel bad because their child is doing so much better than some others. One Mum asked me when she could expect her child to get the problems that she reads about. I told her that her child probably won’t be affected in those ways as the child hasn’t had certain problems. Personally I would have loved to have had positive feedback when my daughter was small. Apart from when she was na... CostelloKids News blogs http://www.medworm.com/rss/comments.php?id=2169391 Wed, 14 Jan 2009 12:14:26 +0100 2169391 http://www.medworm.com/index.php?rid=1225336&cid=t_225240_145_f&fid=35710&url=http%3A%2F%2Fstoryofhealing.com%2F2008%2F02%2F12%2Fmedia-in-medicine-what-of-the-insurance-companies-other-issues%2F The Lost Angeles Times recently reported more of these online consults. Doctor visits in the United States have surged 20% in the last five years to more than 1.2 billion visits annually, according to the Centers for Disease Control and Prevention. Even as the population ages, the number of doctors is falling across the country, and experts predict that office wait times will increase in the coming years. — “People can wait a long time to get in to see their primary-care doctor and longer for a specialist. . . . To have immediate access is huge,” said Dr. Melissa Welch, Aetna’s Northern California medical director. Insurance companies apparently opened up and expanded coverage to these web-based services, according to the same article. …Aetna Inc., the natio... the story of healing blogs http://www.medworm.com/rss/comments.php?id=1225336 Tue, 12 Feb 2008 21:14:57 +0100 1225336 http://www.medworm.com/index.php?rid=716534&cid=t_225240_87_f&fid=34867&url=http%3A%2F%2Fwww.thediabetesblog.com%2F2007%2F07%2F05%2Fdiabetes-epidemic-brings-prosthetic-industry-boom%2F Filed under: Daily News, Products, SupportDiabetes-related health complications can cause severe nerve and tissue damage to the lower limbs. In the worst cases (and, unfortunately, this happens all too often), this necessitates amputation. The medical research field is working on ways to prevent or heal such damage before such drastic action is required. But what of those who do lose feet or legs? The next step is learning to use prosthetics. And, as the LA Times reports today, the prosthetic industry is experiencing a boom as diabetes rates soar.Let's look at some numbers to illustrate just how much demand has grown: there are now 1.9 million amputees in the US, reports the Times article, and approximately sixty percent of those are diabetes-related. Compare this, says reporter Daniel Cos... The Diabetes Blog blogs http://www.medworm.com/rss/comments.php?id=716534 Thu, 05 Jul 2007 04:00:00 +0100 716534