MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'crohns'. Sat, 03 Sep 2011 02:39:23 +0100 http://www.medworm.com/index.php?rid=4847958&cid=t_164870_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Finflammatory-bowel-disease-puts-patients-at-risk-for-some-skin-cancers%2F2011.05.20 I stumbled across this review article (first full reference below) earlier this week. Skin cancer is the most common form of cancer in the United States.  Most skin cancers form in older people on parts of the body exposed to the sun or in people who have weakened immune systems (such as inflammatory bowel disease patients on immunosuppressive therapy). According to the National Cancer Institute (NCI), in there were more than one million new cases of nonmelanoma skin cancers (NMSC) in the United States in 2010.  There were less than 1,000 NMSC deaths during the same time. NMSC includes  squamous cell carcinoma (SCC) and basal cell carcinoma (BCC).   Both occur more frequently on sunlight-exposed areas such as the head and neck. BCC is far more common than SCC and accounts for approxim... Better Health blogs http://www.medworm.com/rss/comments.php?id=4847958 Fri, 20 May 2011 14:00:00 +0100 4847958 http://www.medworm.com/index.php?rid=3687247&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fkelly-building-a-crohns-disease-community%2Ftake-steps-for-crohn%25e2%2580%2599s-and-colitis-2010%2F Hello Everyone!  How are you doing today?  I hope that you find yourself well and in good health.  Hopefully you participated or will participate in the annual Crohn’s and Colitis Foundation of America’s (CCFA) Take Steps for Crohn’s and Colitis walk.  In case you didn’t know, each year the CCFA holds a fund-raising walk – “Take Steps” –  to raise much-needed money for the cure to these horrible digestive diseases. The Houston walk was this past weekend, but I was unable to go due to a sinus infection and bad cough.  Of course, the first antibiotic did not work, so instead of getting better, I just kept getting worse.  I started my new antibiotic on Monday and it seems to be helping.  Although, I think that I pushed myself too hard and too fast so today I was ba... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=3687247 Tue, 22 Jun 2010 15:32:36 +0100 3687247 http://www.medworm.com/index.php?rid=2737945&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fkelly-building-a-crohns-disease-community%2Fhow-is-your-crohn%25e2%2580%2599s-today%2F We haven’t had a “How is your Crohn’s today” blog in a while and I think we are past due. I want to know how you are doing and how you are handling your disease. Since I am writing the post that means that I get to go first:) I have been doing pretty well lately.  I had my colonoscopy a few weeks ago with very good results.  He said that I had no active Crohn’s in my colon and that was the best news that I have heard in about 10 years - or more.   Since I had such good results, I decided to try lowering my prednisone (the Doctor concurred), and so I have gone from 8mg everyday to 8mg, 8mg, 7mg, 8mg, 8mg 7mg, ect… After I am sure that my body can adjust to this level I will go to 8mg, 7mg, 8mg, 7mg, etc… Doing my tapering this way keeps my body confused as ... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2737945 Wed, 26 Aug 2009 17:32:31 +0100 2737945 http://www.medworm.com/index.php?rid=2695541&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fwww.everydayhealth.com%2Fblog%2Fkelly-building-a-crohns-disease-community%2Fa-firsthand-account-of-a-colonoscopy-prep%2F Conclusion to Colonoscopy Prep: Moral to the story: Don’t NOT follow the instructions.  I usually follow them to the ‘T’ but this time decided to see if I could not stay up all night.  Next time, I will just have to take the two pills earlier so that I can start the drinking process earlier so I can go to bed earlier.  This time, I didn’t have a choice on starting earlier since I was coming back from a business trip from Florida and arrived just in time to start the prep (lucky me). Good luck with your next prep! Kelly (Source: Life with Crohn's) Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2695541 Wed, 12 Aug 2009 22:01:43 +0100 2695541 http://www.medworm.com/index.php?rid=2637951&cid=t_164870_131_f&fid=35743&url=http%3A%2F%2Fthegenesherpa.blogspot.com%2F2009%2F07%2Fgo-see-gastro-doc.html I am so blown away at the desperation (def: recklessness arising from despair) of the DTC companies. Recently my iPhone has been flooded with all sorts of clinically inaccurate information designed to make people think that something miraculously has changed with DTC genomics tests. A change so impressive that it now appears as if you can actually do something about the results. The best is a video now on Navi's website2 sisters on the site taking about their results......likely plants...... The transcript includes these misleading words.......Sister 1: We both tested "High" For Colon Cancer! Sister 1: But the Crohn's disease was "really high" on my results. Which is interesting because, I didn't know we had that disease in our family...... Sister 2: It is a disease that is 75% genetic but... Gene Sherpas: Personalized Medicine and You blogs http://www.medworm.com/rss/comments.php?id=2637951 Fri, 24 Jul 2009 14:32:00 +0100 2637951 http://www.medworm.com/index.php?rid=2301653&cid=t_164870_150_f&fid=34889&url=http%3A%2F%2Fpharmamkting.blogspot.com%2F2009%2F03%2Ffaux-social-marketing-have-your-cake.html Pharmaceutical marketers want their cake and eat it too when it comes to social media marketing. That is, they want to engage in patient communities but they don't want to hear what some patients have to say about their products -- it might be an adverse event that they will have to report to the FDA.Now, thanks to The CementWorks -- UCB's agency of record for its Crohn's disease drug Cimzia -- pharma companies have a way to build a "community" online and NOT worry about pesky comments from patients.What CementWorks did was to create an unbranded disease awareness campaign called Crohn's and Me. Its digital agency partner Heatbeat Digital created a website (www.crohnsandme.com) that it calls a "faux community," which "gives visitors a feeling of community without the risks of open-ended so... Pharma Marketing Blog blogs http://www.medworm.com/rss/comments.php?id=2301653 Tue, 31 Mar 2009 11:41:00 +0100 2301653 http://www.medworm.com/index.php?rid=2129418&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fif-life-with-crohns-disease-could-be-plotted-on-a-graph%2F If life with Crohn’s disease could be plotted on a graph, it would look like a sine wave.  In case you don’t know what a sine wave looks like, or have forgotten, here is a diagram: You see, the top of the wave would be when I am in remission and the top of the bottom wave would be when I am in the apex of a flare. Instead of degrees on the x-axis, lets put weeks.  So, where you see 90 it is 90 weeks instead of 90 degrees, and 180 weeks and so on.  You see, nothing happens fast.  It is very slow.  Healing takes a long time and it often seems like I am sick forever (especially to my husband!).  When I am feeling good, I want it to last a lot longer than it does and I forget all the good times more easily than the bad (again giving the impression of being sick forever).  I... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2129418 Fri, 23 Jan 2009 17:57:49 +0100 2129418 http://www.medworm.com/index.php?rid=2090243&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fnew-years-resolutions-and-crohns-disease%2F Happy New Year, all! Wow, I cannot believe that it is 2009 already. I hope that you took some time off during the holidays and were able to relax. I took almost two weeks off and for the first time in a few years, was able to relax and enjoy myself. Of course, a few nights my family had no dinner prepared for them because I was too busy playing video games and reading books (which usually never happen). But my family managed without the prepared food just fine (there is a lesson in here somewhere I think…). My sister and her family were here until the 29th and it was so great to see them and hang out (at our house for once!). We lived in Europe for the last 5.5 years but now that we have a house in the United States, it is easier for people to come and stay with us. We are very happy... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2090243 Wed, 07 Jan 2009 19:00:11 +0100 2090243 http://www.medworm.com/index.php?rid=2047803&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fthe-colors-of-your-poop-and-what-it-means%2F There are many things that you can learn about the status of your health just by observing the color and texture of your poop and the frequency with which you go. All of you veteran Crohnies out there know exactly what I am talking about. For all of you newly diagnosed Crohn’s patients, I hope this will help you a little. And, everyone, please provide your insight as well! Brown Brown is the normal color of poop. There is a pigment called bilirubin that is formed when the red blood cells in the liver and bone marrow break down. This ends up (by a complicated process) in the intestines where bacteria begins to form and eat which turns the poop brown. When iron in the red blood cells combine with bilirubin, it turns brown and when the iron influenced bilirubin combines with the poop,... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2047803 Wed, 17 Dec 2008 18:47:51 +0100 2047803 http://www.medworm.com/index.php?rid=2013913&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fdecember-check-in-how-is-your-crohns-today%2F Hello, everyone! I hope that you made it through the Thanksgiving holiday better than I did. It is time for another installment of “How is your Crohn’s today?” and I want to hear how all of you are and how your holiday went. The day started out badly for me because I woke up with cramping and diarrhea and spent most of the morning on the toilet. I even told my husband that I wanted to stay home because I was really not feeling well and couldn’t imagine eating or socializing and was thinking that I wouldn’t mind being alone in my misery. We were going over to his parent’s house to celebrate with his family and some friends. But, of course, he told me that I cannot be all alone on Thanksgiving, so I reminded myself of all that I am thankful for and tried t... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=2013913 Thu, 04 Dec 2008 18:30:09 +0100 2013913 http://www.medworm.com/index.php?rid=1991743&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fholiday-parties-and-crohns-diseaseavoid-if-possible%2F It’s that time of year again for parties, celebrating, shopping and being thankful. What are you thankful for this year? I am thankful for so many things, and I am going to put these things into the forefront whenever I am feeling bad about not being able to eat anything but plain boring food. No matter, at least I will not gain weight. I have been in a funky mood lately. I think that it has more to do with going down on the prednisone than anything else. I am now on 12mg of prednisone and hope to keep going down. I am trying not to get too excited or look forward to getting lower too much so that way I don’t get too disappointed. But, I am happy to be at 12mg and maybe will get to 11mg by Christmas. And then, maybe 10!!! I haven’t been to 10mg in a long time. This year I... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1991743 Wed, 26 Nov 2008 19:27:11 +0100 1991743 http://www.medworm.com/index.php?rid=1975922&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fa-web-site-that-finds-toilets-anywhere-in-the-world%2F I was driving to work in the morning the other day, and on the radio they were talking about situations when you had to go to the bathroom at a time that was really inconvenient. They had the listeners call in with their stories. I didn’t call because I have way too many stories to tell as most of you probably do too (unfortunately)! But the radio announcer started talking about this Web site that maps all of the toilets all around the world. And, even better, you can add in a toilet so that everyone else will know where it is. Isn’t that great? We can surely add a lot of information into this tool The Web site is called SitorSquat.com, let me know what you think.  But don’t click on any of the links that say that you have won anything - a lot of times people are just p... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1975922 Wed, 19 Nov 2008 18:55:04 +0100 1975922 http://www.medworm.com/index.php?rid=1955589&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fspirituality%2F When I was growing up, we didn’t really attend church on a regular basis. My mother is a very spiritual person and taught me about God and religion, but my father at that time was not a big believer. In high school and at the beginning of college, I declared myself an agnostic. I am not sure if I ever really truly was agnostic of if I just went along with the idea because I thought it was cool. It wasn’t until after a few years with Crohn’s that I really became in touch with my spirituality and my religion. It wasn’t like I came down with the disease and suddenly came to God. It was a very slow process with me not understanding what was awakening within me. But slowly, with time, I could feel that God was in my life and guiding me on a path. Where this path would eventually lead m... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1955589 Wed, 12 Nov 2008 18:05:34 +0100 1955589 http://www.medworm.com/index.php?rid=1902233&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Foctober-check-in-how-is-your-crohns-today%2F Hello everyone! Hope you are feeling hopeful today. Today’s blog’s topic is our monthly tag-up to let each other know how we are doing and feeling. I hope that you write in, and I look forward to your comments! I will start by telling you how I have been doing this month. Awful!! Okay, it is not so bad, but still, I would not mark this month up as being one of the good ones. I have been in a really bad mood about everything lately. I am very tired from all of this hurricane business and just plain tired of everything. We finally got our power back – after two weeks – and moved back into our house (Yay!). We were staying with my in-laws because I had moved over there before the storm and there was really no reason to come back to an un-powered home when my husband finally returned.... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1902233 Wed, 22 Oct 2008 23:19:45 +0100 1902233 http://www.medworm.com/index.php?rid=1826318&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fchronic-disease-and-natural-disaster-preparedness%2F We have made it through the storm and, all in all, feel very lucky. My daughter and I evacuated our house and went to stay at my in-laws’ house on the west side of town. My husband had been in Indonesia during the ordeal but came home last Thursday- which made me feel better. We were lucky that there was a cold front that moved through the area and I know everyone in Houston was grateful for that. Our house has suffered some damage from water (only in one room) and I hope that our wood floor is not ruined. The wood in the other rooms may be at risk too without the power because of the humidity. At least it is not as hot and humid as it could be. Our fence is gone, and our trees are down, but that’s about all. We are lucky compared to a lot of people. On top of everything that i... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1826318 Wed, 24 Sep 2008 20:07:55 +0100 1826318 http://www.medworm.com/index.php?rid=1802966&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fpreparing-for-hurricane-ike-during-a-storm-of-fears%2F Editor’s Note: Kelly wrote this post last week before Hurricane Ike hit her hometown of Houston. I was laying here trying to sleep, and I couldn’t help thinking about stress management. I am laying here thinking about stress management because I have been under a lot of stress this last week, and I am in need of some sort of stress management. Last Sunday, my husband left for Indonesia and since he is so far away (12 hours ahead) I have been a little anxious. He is also in a remote area, so it is not easy to get in touch with him. Before he left, hurricane Ike was still far away and forecasted to hit in Mexico. Now, on the Thursday night before Ike is to hit, he is projected to come right over us. They have evacuated my county and so my daughter and I are at my in-law’s h... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1802966 Thu, 18 Sep 2008 00:04:05 +0100 1802966 http://www.medworm.com/index.php?rid=1783013&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fhow-can-we-get-crohns-disease-on-a-postage-stamp%2F I was in the post office this Friday and I noticed that there was a stamp for breast cancer that cost a little bit more than the normal postage stamp, but the extra funds would go towards breast cancer research. And I thought, “Why is there no stamp for Crohn’s disease?” I know that our disease is not as widely known as cancer, but there must be a way that we can start changing that. How can we get a stamp? Is it even possible to get a stamp for Crohn’s disease similar to the stamp for breast cancer? I tried looking around to see how to even begin the process but didn’t find anything. I am sure that we will have to spread the word and get Crohn’s disease to be a household name, or at least more widely known before anyone makes a dedicated postage stamp about it. I took part in ... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1783013 Wed, 10 Sep 2008 22:44:15 +0100 1783013 http://www.medworm.com/index.php?rid=1739552&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Ffrustrations-and-feelings-about-my-crohns-disease%2F I guess that I still have not completely accepted my Crohn’s disease because I spent last weekend feeling completely frustrated about everything. It started out with a huge fight between me and my husband Friday night. We always fight when I start feeling bad. I say he doesn’t care and is not sympathetic enough and he says that I am whiny and in a bad mood. I was in bad shape on Friday (I think now that maybe it was bad tuna fish or the mayo) and had a horrible day at work. I was really tired when I came home and was not looking forward to the evening of packing for our trip to Washington DC. I was really just not looking forward to the trip at all and then we have a fight, which makes everything worse. It seems that we fight when we are stressed. I wanted to just get my stuff ... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1739552 Thu, 28 Aug 2008 16:30:50 +0100 1739552 http://www.medworm.com/index.php?rid=1705049&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fwhat-spices-can-your-crohns-disease-tolerate%2F Today I thought we could make a running list of what spices other people with Crohn’s disease can tolerate. I can’t seem to tolerate much, and pretty much stick to the same old spices. Problem is, everything starts to taste pretty similar and I am always looking for ways to make my boring food more interesting without upsetting by insides. Here is the list of spices/ingredients that I tolerate well and use very frequently: Parsley Salt Olive Oil (a lot) Oregano Lime - juice or crystallized lime powder Lemon Soy sauce Basil (not a lot) Chives Celery salt My list of spices is pretty short. I cook a lot of fish in olive oil with salt and parsley. I will often throw some tomatoes and some onions (for the flavour - I don’t eat them) on top of the fish with some oregano, sal... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1705049 Wed, 13 Aug 2008 18:35:39 +0100 1705049 http://www.medworm.com/index.php?rid=1686621&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Faugust-check-in-how-is-your-crohns-today%2F I missed our July edition of “How is your Crohn’s Today?” The month of July just seemed to fly by so fast and now it is already August. I just don’t know where the time went. Before I know it, 2009 will be here and I will have to learn to write a new date on my checks (it took me months to write 2008 instead of 2007). So…how is your Crohn’s today? I hope well, or at least better than yesterday. As for me, I am doing better than last week. I think I have made it through the lowering of the prednisone and will stay at this level for another two weeks. Mostly because I have a class in Washington D.C. on the 18th and I don’t want to rock the boat until after that. I really don’t want to get up to go to the bathroom 100 times during the class (oka... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1686621 Thu, 07 Aug 2008 03:56:16 +0100 1686621 http://www.medworm.com/index.php?rid=1668785&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Ftaking-the-occasional-sick-day-because-of-crohns%2F Tonight I am having insensitivity issues, so instead of brewing about all of it I will just share with you. I know that my feelings are wrong but that doesn’t stop me from feeling them. This last week I have had what I guess was a cold and now my husband says that he has a cold, which I apparently gave to him. I have a hard time telling what exactly is wrong with me since I have a lot of sinus problems and get these bouts of pain throughout my body (like a flu). I only know if I had something for sure if my husband or daughter starts to feel bad too. I am working on my sensitivity, but sometimes I think that my husband can be such a baby when he doesn’t feel good. I know that this is wrong, but I want to scream - why can’t I lie around and do nothing at all and lie in my ... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1668785 Wed, 30 Jul 2008 23:16:32 +0100 1668785 http://www.medworm.com/index.php?rid=1631708&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fwhat-its-like-to-be-pregnant-with-crohns-disease%2F Since I was talking about my daughter last week, I thought that I would continue that theme this week and tell you about my pregnancy. We had only been married for three months and never planned to have a baby so quickly. In fact, we were going to wait two years to get accustomed to being married while we investigated the risks associated with having Crohn’s disease and being pregnant. The year of our wedding, I was really adamant about getting off the steroids and not being fat-faced for my wedding day. I had been recovering from a flare when he proposed and when he told me he wanted to get married in six months, the only thing I could think of was “how will I ever get low enough on the prednisone to look normal for my wedding?” But I did it! I managed to get down to 5 mg and wa... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1631708 Wed, 16 Jul 2008 19:55:20 +0100 1631708 http://www.medworm.com/index.php?rid=1606285&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fcrohns-can-bring-out-the-best-and-worst-in-us%2F I have been on 15 mg of prednisone for over a month now, so now I have to decrease my level of dosage. I hate doing this because I was just starting to feel good and felt like my brain was no longer in a fog. Right after we got back from San Francisco, I started the decrease of prednisone and have been feeling the effects ever since. Friday I was just plain emotional, needy and cranky. It also doesn’t help when I am stressed and tired, which is what I have been. I haven’t been able to sleep (even with a sleeping pill) and I know that lack of sleep plays a big part in my mood. Everything was great in San Francisco, but when we came home my Crohn’s started reacting on top of not being able to sleep. I wanted my husband to just do all the chores because can’t he see that I need to res... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1606285 Thu, 10 Jul 2008 20:19:27 +0100 1606285 http://www.medworm.com/index.php?rid=1516505&cid=t_164870_112_f&fid=34799&url=http%3A%2F%2Fmwwak.blogspot.com%2F2008%2F06%2Fexcuses-excuses.html Interesting conversation with my gastroenterologist. I saw him because I was having a flare of whatever IBD it is I have (he now thinks it's Crohn's Disease, and at this point I don't care what I have, as long as it can be treated; the repeat scope and upper gi can wait for now, because the treatment of an acute flare is usually the same). Well, long story short, my hemoglobin got down to 9 (sort of mild-moderate anemia), I dropped 10 lbs in 5 days (much of which, I'm sure, is water), and I was having such a hard time eating and drinking that I ended up in caffeine withdrawal (which always makes me particularly pathetic). So my gi doc said to me, "You need to be admitted to the hospital for 3-4 days for high dose IV steroids", at which point I said, "No, thanks, I really don't have time to... Midwife with a Knife blogs http://www.medworm.com/rss/comments.php?id=1516505 Thu, 12 Jun 2008 22:18:00 +0100 1516505 http://www.medworm.com/index.php?rid=1509263&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fhow-is-your-crohns-today-the-june-edition%2F Today has been miserable for my Crohn’s, but I can’t complain too much because I had four really good days in a row (and on travel)! It was a miracle. I have never felt so good on travel before. This time I took extra precautions and was really strict with my diet. I didn’t even care if the waiter thought that I was crazy for wanting nothing except some salt on any of my food. I told them that I was allergic to pepper and seasonings. The first night, we went out to a restaurant that made grilled items. I told them specifically to not put anything on it and when they served it to me, it had garlic mashed potatoes instead of the white rice I ordered as well as pepper. We sent it back and they gave me a new one. When the new plate came back the dish still had pepper on it. I thi... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1509263 Wed, 11 Jun 2008 22:47:22 +0100 1509263 http://www.medworm.com/index.php?rid=1494645&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fdoes-this-argument-sound-familiar%2F My husband is traveling to San Francisco and he wants me and my daughter to join him for the weekend. The plan is to leave tomorrow and come back on Sunday night. When he first proposed this idea, we had an argument about it because he thinks I am “being difficult,” while I think he is making things too complex. He wanted a decision right away and I was stalling. The thing is, I want to go. I have always wanted to go to San Francisco and ride on that trolley that goes down that great big hill. But truth be told – I am afraid to go. I want to get off my prednisone really badly, and because I am on the path to recovery I don’t want anything to get in the way of that. Travel usually means not sleeping well and eating foods that don’t agree with me, and I usually don’t feel all tha... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1494645 Wed, 04 Jun 2008 21:47:22 +0100 1494645 http://www.medworm.com/index.php?rid=1213373&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fis-it-a-kidney-stone-or-is-my-pain-crohns-related%2F Now I am really confused and frustrated. I still have this terrible pain in my right side, and it feels exactly like a kidney stone, but the urologist said today that my kidneys looked good and that the pain was not coming from there. Two weekends ago, I went to the urgent care facility because of this pain and they did a CT scan. The doctor there was a bit wishy-washy and told me that there was a stone in the kidney but there shouldn’t be any pain. He diagnosed me with a kidney stone, gave me a prescription for the pain and sent me on my way. And as usual, I left and then thought of all the questions that I should have asked, for example, how big was the stone? They said that there was blood in my urine and thought that one might have already passed. But the pain kept up, so on Friday I... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1213373 Wed, 06 Feb 2008 23:47:18 +0100 1213373 http://www.medworm.com/index.php?rid=1173537&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fterrorized-by-a-kidney-stone%2F I had a couple of pain-free days last week but have been getting pounded by pain with a kidney stone this week. I’ve been in a pretty bad mood because I’ve been in a lot of pain lately. I started to feel the pain last Wednesday but wasn’t sure if it was a stone or just my Crohn’s disease flaring. Then Thursday it was a little worse but not too bad. Friday was the worst, but I still thought that it could be something else. I was in a meeting all day and hate using my sick time. So by the time time I decided to go to the doctor, it was too late. I figured that it would probably go away anyway. Then Saturday rolled around, I couldn’t stand the pain anymore and wound up in the urgent care facility. They did a CT scan and told me that I had a stone inside my kidney but they didn�... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1173537 Wed, 23 Jan 2008 22:35:59 +0100 1173537 http://www.medworm.com/index.php?rid=1156110&cid=t_164870_129_f&fid=36036&url=http%3A%2F%2Fblog.healthtalk.com%2Flife-with-crohns%2Fkelly%2Fon-the-road-to-withdrawal-and-a-couple-of-crohns-free-days%2F Well, here I go again. I am going down on my prednisone. I hate going through withdrawal, I hate the prednisone, and I can’t wait to get so low that I won’t have to deal with it so much. It is really easy to go up but very difficult to go down. When I moved back to Texas, I had to go way up on the prednisone due to all the change and all the stress. Every time I had to go up, I got so depressed because I knew that it would be that much longer before I could go back down. I just can’t wait to be completely off prednisone or at least below 10mg. I am now on 20 mg and will stay at this level for a few weeks. It seems that just when I am getting used to being on a lower dose and my emotions are under control and I feel like I can think clearly again, I have to lower my prednisone again... Life with Crohn's blogs http://www.medworm.com/rss/comments.php?id=1156110 Wed, 16 Jan 2008 21:29:57 +0100 1156110