MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'e patient'. Sat, 03 Sep 2011 02:11:55 +0100 http://www.medworm.com/index.php?rid=5130747&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fshould-doctors-want-their-patients-to-use-the-web-to-stay-informed%2F2011.08.15 Recently, I’ve had an interview with a national newspaper and the woman who performed the interview told me she was surprised that I seemed to be the first doctor in her life who was happy about patients using the internet. Well, she surprised me with this statement as I’ve never thought about that before. But she must be right. There are many doctors who get upset when they find out the patient tried to find information online. They are frustrated as they don’t even know how to use these online tools and have no idea how to help the patients in this perspective. Myself, I’m pretty much happy about it. I love to hear patients (more…) *This blog post was originally published at ScienceRoll* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=5130747 Mon, 15 Aug 2011 14:00:41 +0100 5130747 http://www.medworm.com/index.php?rid=5096840&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2011%2F08%2F05%2Fim-happy-that-patients-use-the-internet%2F Recently, I’ve had an interview with a national newspaper and the woman who performed the interview told me she was surprised that I seemed to be the first doctor in her life who was happy about patients using the internet. Well, she surprised me with this statement as I’ve never thought about that before. But she must be right. There are many doctors who get upset when they find out the patient tried to find information online. They are frustrated as they don’t even know how to use these online tools and have no idea how to help the patients in this perspective. Myself, I’m pretty much happy about it. I love to hear patients use mobile apps to track their health; use Webicina.com and Honcode for assessing quality online; write blogs about their health management o... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=5096840 Fri, 05 Aug 2011 15:53:41 +0100 5096840 http://www.medworm.com/index.php?rid=5086447&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2011%2F07%2F30%2Fe-patient-rap-gimme-my-damn-data%2F E-Patient Dave has recently given a presentation about the importance of online available data of e-patients and performed a short rap about this issue. And now he is remixed, watch it and enjoy!   (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=5086447 Sat, 30 Jul 2011 14:46:57 +0100 5086447 http://www.medworm.com/index.php?rid=5028870&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2011%2F07%2F12%2Ffrom-digital-canes-to-e-patients-and-the-unknown-killer-infographics%2F Discussion on Physician Social Media Use Healthcare associated infections: Infographics by GE (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=5028870 Tue, 12 Jul 2011 06:46:38 +0100 5028870 http://www.medworm.com/index.php?rid=5028700&cid=t_153075_122_f&fid=34736&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FChannelN-PodcastsPoweredByOdiogo%2F%7E3%2Foc0WLJr5AZU%2F Dave deBronkart: Meet e-Patient Dave Participatory medicine and patients’ access to their own health data are subjects in a powerful talk by a pioneering e-patient (empowered and engaged patient). Features an interactive transcript. Subtitles available in English, Spanish, French, Romanian, Italian and Dutch. e-Patient Dave describes his experience with cancer and how learning about his condition online and networking with peers saved his life. Although his focus is cancer, mental health also has e-patients including here at PsychCentral, a member organization in the Society for Participatory Medicine. Personally, I’ve been an e-patient and peer advocate for over a decade, online and off. It’s encouraging to watch the movement grow, both informally and in organizations, b... Channel N blogs http://www.medworm.com/rss/comments.php?id=5028700 Mon, 11 Jul 2011 12:30:59 +0100 5028700 http://www.medworm.com/index.php?rid=5028874&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2011%2F07%2F09%2Fan-online-community-for-mayo-clinic%2F As you may know it, I’m a big admirer of what Mayo Clinic does online and not just because I’m a member of the external advisory board of the Mayo Clinic Center for Social Media. Now they launched a community site with great goals: We’re pleased to now be taking the next step, creating an online site to connect the global Mayo Clinic community. When you’re facing a health concern, sometimes, what you really need is someone who has already been there. That’s what this community is all about: connecting people who have been through the Mayo Clinic experience with others facing a similar health concern. Each year, more than 500,000 unique patients from every U.S. state and nearly 150 countries visit one of our Mayo Clinic campuses in Arizona, Florida or Minnesota for diagnos... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=5028874 Sat, 09 Jul 2011 10:35:50 +0100 5028874 http://www.medworm.com/index.php?rid=4992884&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2011%2F07%2F02%2Fdave-debronkart-meet-e-patient-dave%2F A fantastic TED talk from my friend, E-Patient Dave: (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=4992884 Sat, 02 Jul 2011 09:43:53 +0100 4992884 http://www.medworm.com/index.php?rid=4883706&cid=t_153075_113_f&fid=34634&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FEmrAndHipaa%2F%7E3%2F83qsSKCLxg8%2F The following is the fourth video in my inaugural run of EMR and Healthcare IT related videos. In this video I talk about some of the ways healthcare IT can help a patient be more active in their care. I’m sure there’s a number of e-Patients out there that can hop in and add a lot more to the discussion I start in this video. I must admit that as a relatively healthy individual I have a hard time really getting into the active patient (e-Patient if you like). However, I love the idea of patients being respectfully involved in their patient care. The following video is in response to this question: How can Healthcare IT help patients take a more active role in their care? View the Healthcare IT and Active Patient Care Video Here Related posts:EMR Scanning and Chart Retention ... EMR and HIPAA blogs http://www.medworm.com/rss/comments.php?id=4883706 Sun, 29 May 2011 16:25:46 +0100 4883706 http://www.medworm.com/index.php?rid=4771025&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fa-physician-with-neck-cancer-just-as-frightened-as-any-other-patient%2F2011.04.30 Two years ago we wrote “Let’s hear it for the ‘d-patients’” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation movement.” A new article in our Journal of Participatory Medicine provides a compelling example: A Physician’s Experience as a Cancer of the Neck Patient: The Importance of Patient Participation. The author, Itzhak Brook MD, makes our point: I am telling my personal story in the hope that health care providers will realize the difficult challenges faced by a patient diagnosed with cancer and undergoing extensive surgeries. I am also discussing the importance of active participation of the patient and their family members in all phases of care. Jo... Better Health blogs http://www.medworm.com/rss/comments.php?id=4771025 Sat, 30 Apr 2011 16:00:00 +0100 4771025 http://www.medworm.com/index.php?rid=4575059&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fhow-e-patients-find-answers-and-each-other-online%2F2011.03.11 [Recently] NPR’s popular program “Talk of the Nation” covered something we discuss often: How e-patients find information and find each other online. Featured guests were Pat Furlong, mother of two boys with a rare disease who started an online community, and Susannah Fox of the Pew Internet and American Life Project, a frequent contributor here. The audio is here. It’s a good combination: Pat speaks from the heart about her own experience and her passion for community, and Susannah, as usual, speaks as an “internet geologist” — as she once put it, “A geologist doesn’t have opinions about the rocks, she just observes and describes them.” Susannah spoke about her newly-released report “Peer-To-Peer Healthcare,” about which she recently wrote here. L... Better Health blogs http://www.medworm.com/rss/comments.php?id=4575059 Fri, 11 Mar 2011 14:00:52 +0100 4575059 http://www.medworm.com/index.php?rid=4424233&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fe-patient-goes-mainstream%2F2011.02.01 I have a Google alert for “e-patient,” and sometimes I’m surprised what it catches. [Recently] it was this: 3 Reasons Steve Jobs Will Be The Ultimate e-Patient Steve Jobs’ medical leave sets the stage for the upcoming revolution in the production and delivery of medical information at time of diagnosis. 3 things you need to know. So I’m thinking: “Oh, wow: Is the term ‘e-patient’ going mainstream?” That would be a hoot, because indeed the Society for Participatory Medicine is engaged in spreading the word. *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=4424233 Tue, 01 Feb 2011 22:00:04 +0100 4424233 http://www.medworm.com/index.php?rid=4382762&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Frealistic-medicine-the-kind-of-thinking-to-look-for%2F2011.01.21 There are several stages in becoming an empowered, engaged, activated patient — a capable, responsible partner in getting good care for yourself, your family, whoever you’re caring for. One ingredient is to know what to expect, so you can tell when things seem right and when they don’t. Researching a project today, I came across an article* published in 2006: ”Key Learning from the Dana-Farber Cancer Institute’s 10-Year Patient Safety Journey.” This table shows the attitude you’ll find in an organization that has realized the challenges of medicine and is dealing with them realistically: “Errors are everywhere.” “Great care in a high-risk environment.” What kind of attitude is that? It’s accurate. This work began after the death of Boston Globe healt... Better Health blogs http://www.medworm.com/rss/comments.php?id=4382762 Fri, 21 Jan 2011 22:00:29 +0100 4382762 http://www.medworm.com/index.php?rid=4355717&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fmedical-errors-should-doctors-always-fess-up%2F2011.01.16 From the Medscape Medical Ethics article entitled “‘Some Worms Are Best Left In The Can’: Should You Hide Medical Errors?“: Consequences aside, from a strictly ethical perspective, if a patient doesn’t realize that his physician made a mistake, should the physician fess up? Before you jump to conclusions (as I did), look at the article’s three parts. It’s about a survey. The title is on the inflammatory side; the article is a window into physicians’ views. The introduction continues: Evidence of the complex prisms through which physicians view these issues was apparent in the replies to four questions asked in Medscape’s exclusive ethics survey. More than 10,000 physicians responded to the survey in 2010. Subheads: – Mistakes that don’t harm p... Better Health blogs http://www.medworm.com/rss/comments.php?id=4355717 Sun, 16 Jan 2011 20:00:12 +0100 4355717 http://www.medworm.com/index.php?rid=4302124&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fpractice-variation-essential-to-e-patient-awareness%2F2010.12.31 This is the first of the follow-up posts I hope to write from participating in the Salzburg Global Seminar titled “The Greatest Untapped Resource in Healthcare? Informing and Involving Patients in Decisions about Their Medical Care.” One of our purposes on this site is to help people develop e-patient skills, so they can be more effectively engaged in their care. One aspect is shared decision making, which we wrote about in September. A related topic, from August, is understanding the challenges of pathology and diagnosis. Both posts teach about being better informed partners for our healthcare professionals. I’ve recently learned of an another topic, which I’m sure many of you know: Practice variation. This is a big subject, and I’ll have several posts about it. It’s complex, ... Better Health blogs http://www.medworm.com/rss/comments.php?id=4302124 Fri, 31 Dec 2010 18:00:02 +0100 4302124 http://www.medworm.com/index.php?rid=4277832&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fchronic-illness-and-%25e2%2580%259cthe-spoon-theory%25e2%2580%259d%2F2010.12.21 If you don’t truly understand how draining it can be to live with chronic illness, including chronic pain, go read The Spoon Theory right now. In five minutes it forever changed my own awareness of my wife’s arthritis and bone pain. On Twitter I saw “spoonies” raving about this months ago, but I finally took time to read it: 2,100 words and worth every second. Also, on Twitter follow @bydls – “But you don’t look sick!” – and explore their smart website, where they’re wisely selling posters of the story for doctors’ waiting rooms, and everything else imaginable in modern outreach through social media. These are smart people, and this is a powerful piece of writing. *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=4277832 Tue, 21 Dec 2010 20:00:16 +0100 4277832 http://www.medworm.com/index.php?rid=4230157&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fpatient-centered-outcomes-research-will-patients-be-involved%2F2010.12.05 A year ago Gangadhar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant issue through empowered, engaged research. As today’s guest post shows, he’s now actively engaged in thinking about healthcare at the level of national policy, as well – and he calls for all patients to speak up about this new issue. – Dave I recently came across a Pauline Chen piece in the New York Times, “Listening to Patients Living With Illness.” It refers to a paper by Dr. Wu et al, ”Adding The Patient Perspective To Comparative Effectiveness Research.” According to the paper and the NY Times article, Dr. Wu and his co-authors propose: Making patient-reported outcomes a more routine part of clinical studi... Better Health blogs http://www.medworm.com/rss/comments.php?id=4230157 Sun, 05 Dec 2010 19:00:34 +0100 4230157 http://www.medworm.com/index.php?rid=4190254&cid=t_153075_112_f&fid=34971&url=http%3A%2F%2Fdoctorandpatient.blogspot.com%2F2010%2F11%2Fe-patients.html I am now seeing a new class of patients - the e-patients. ( Many of these come from Pune and Bangalore, the Silicon Valley of India !)Initially, e-patients stood for patients who used email and the web. Today, the epatient has become much more powerful !Epatients are engaged - with their doctor; with their health; and with their healthcare system. They do not just read content - they create it as well . "User generated content" is very powerful and moving , because it provides a first hand view straight from the horse's mouth !They have blogs and post on forums and some of them can be very prolific !They are empowered ; knowledgeable - and articulate. They have an opinion and are happy to express it !They are experts . They realise that they are the experts on their own illness - and are h... The Patient's Doctor blogs http://www.medworm.com/rss/comments.php?id=4190254 Tue, 23 Nov 2010 04:58:00 +0100 4190254 http://www.medworm.com/index.php?rid=4172061&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Famia-board-%25e2%2580%259chold-harmless%25e2%2580%259d-clause-in-emr-contracts-is-unethical%2F2010.11.16 Last Friday the board of the American Medical Informatics Association (AMIA) published a position paper in its journal saying that the “hold harmless” clause is unethical. One of the paper’s authors is Dr. Danny Sands, currently President of the Society for Participatory Medicine. I hope to write more about it this week, after attending the AMIA conference in DC, but here’s the basic issue: – For ages, makers of electronic medical record systems (EMR) have insisted on a “hold harmless” clause in the contracts a system buyer must sign. It says, in essence, that if any harm comes to anyone because of a system problem, the buyer (the hospital) will hold the manufacturer harmless. – In other words, if anything goes wrong with the system and someone gets hurt, it’s not... Better Health blogs http://www.medworm.com/rss/comments.php?id=4172061 Tue, 16 Nov 2010 15:00:17 +0100 4172061 http://www.medworm.com/index.php?rid=4134090&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F11%2F02%2Finternet-in-medicine-university-course-e-patients-and-medical-communities%2F The 5th week of the Internet in Medicine university accredited course was focusing on e-patients and medical communities. First slideshow: The world of e-patients Who is a good patient? (referring to I am a good patient, believe it or not; Alejandro R Jadad, Carlos A Rizo, Murray W Enkin; BMJ  2003;326:1293-1295 (14 June), doi:10.1136/bmj.326.7402.1293 ) Types of patients: the powerful other; external controller, internal controller or google patient or brainsucker or googlers An e-patient is equipped, enabled, empowered, engaged, equal and expert. Examples (several stories) including maartensjourney.com, Jen, Kerri and many more What do e-patients use? Websites (Web MD), blogs (fightpompe.com, sixuntilme.com); Second Life (Healthinfo Island), services (sugarstats.com or traineo.com) Com... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=4134090 Tue, 02 Nov 2010 14:20:54 +0100 4134090 http://www.medworm.com/index.php?rid=4105668&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-lies-of-medical-science-whats-an-e-patient-to-do%2F2010.10.25 There’s an extraordinary new article in The Atlantic entitled “Lies, Damned Lies, and Medical Science.” It echos an excellent article in our Journal of Participatory Medicine (JoPM) a year ago by Richard W. Smith, 25-year editor of the British Medical Journal, entitled ”In Search Of an Optimal Peer Review System.” JoPM, Oct 21, 2009: “….most of what appears in peer-reviewed journals is scientifically weak.” The Atlantic, Oct. 16, 2010: “Much of what medical researchers conclude in their studies is misleading, exaggerated, or flat-out wrong.” JoPM 2009: “Yet peer review remains sacred, worshiped by scientists and central to the processes of science — awarding grants, publishing, and dishing out prizes.” The Atlantic 2010: “So why are doctors — to... Better Health blogs http://www.medworm.com/rss/comments.php?id=4105668 Mon, 25 Oct 2010 16:00:09 +0100 4105668 http://www.medworm.com/index.php?rid=4031243&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fmarketing-direct-to-e-patient%2F2010.10.04 Patients are the new darling of the medical-industrial complex. If you look around you will see patients advocating for one another. If you click a little closer you’ll find some with relationships to industry. It makes perfect sense that the manufacturer of a drug or medical device would want the blessings of our nascent cybercelebs. Some want genuine patient input.  Some, however, want to curry their favor. Chock up influence of the patient population as evidence of social health’s evolving maturity. A couple of questions: Will industry be required to publicly list monies used for sponsorship, travel and swag support of high profile patients in the social sphere? Should high visibility patients who serve as stewards and advocates disavow themselves of contact with pharma just as... Better Health blogs http://www.medworm.com/rss/comments.php?id=4031243 Mon, 04 Oct 2010 20:00:52 +0100 4031243 http://www.medworm.com/index.php?rid=3998987&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fdeceptive-health-websites-are-all-too-plentiful%2F2010.09.24 By Lisa Neal Gualtieri. (Her earlier much-commented post on this subject is here.) The Boston Globe reported this month on the sentencing of a former US Airways Express pilot, Stephen Sharp, “for selling a powdered drink mix over the Internet that he claimed was ‘100 percent’ effective in helping drug-using truck drivers, pilots, and train engineers pass federally mandated drug tests.” The ungrammatically-named “yourintheclear.com” no longer seems to exist. Mindful of ongoing debate by Gilles Frydman and others about indicators of health website credibility, I searched for other sites selling similar products (there is no shortage) and looked on sites like Craigslist where people post questions about how to pass drug tests and how to detoxify. Based on a quick perusal, I found ... Better Health blogs http://www.medworm.com/rss/comments.php?id=3998987 Fri, 24 Sep 2010 18:00:42 +0100 3998987 http://www.medworm.com/index.php?rid=3994197&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F09%2F22%2Fthe-future-of-patients-video-back-and-forth%2F “E-Patient Dave” deBronkart published a great and smart video in which if you read the text in the opposite direction, it has a very different meaning. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3994197 Wed, 22 Sep 2010 07:09:07 +0100 3994197 http://www.medworm.com/index.php?rid=3946454&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-e-patient-revolution-is-it-over%2F2010.09.08 There’s a conversation brewing over use of the term “e-patient.” The online health revolution is over, it’s been suggested. Web use, after all, has become so widely adopted  that the term “e-patient” may have more historical meaning. Dropping the “e” might indicate that we’ve arrived. I’m not so sure. Perhaps the revolution we thought was going on never entirely took off. Or maybe it’s all about how you define the revolution. Here’s what I see: Day in and day out, over weeks and months, hundreds of patients visit my clinic. I talk to them candidly about the tools they use and how technology and community is changing how they see their problems. I do the same with friends and family members. And like it or not, they’re a lot closer to ... Better Health blogs http://www.medworm.com/rss/comments.php?id=3946454 Wed, 08 Sep 2010 15:00:48 +0100 3946454 http://www.medworm.com/index.php?rid=3902897&cid=t_153075_87_f&fid=39187&url=http%3A%2F%2Fwww.edocamerica.com%2Faudio%2FBecome_A_More_Effective_ePatient-Pt4.mp3 Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke entitled, “How to Become a More Effective e-Patient.” Here it is, in four video segments. “Charlie” (as we all call him) is a wonderful guy. He’s co-editor-in-chief of the Journal of Participatory Medicine and was Doc Tom Ferguson’s physician. He’s been walking this walk for many years, and here he shares his personal advice –- not just for patients, but for health professionals who want to learn this participatory thing. (The “Joe & Terry” he mentions are our founders Joe and Terry Graedon of People’s Pharmacy, longtime Duke associates.) PART 1 An audio-only version is also available (see below). (more…) *This blog post w... Better Health blogs http://www.medworm.com/rss/comments.php?id=3902897 Thu, 26 Aug 2010 00:07:03 +0100 3902897 http://www.medworm.com/index.php?rid=3858310&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F08%2F11%2Fdrugs-and-pills-best-apps-and-tools-online%2F Last week I shared two applications that let users check potential side effects and drug interactions, and based on the comments, here are some more. The first is Surveyor Health: The second is WorstPills: Pillbox is the result of a partnership between the National Library of Medicine and the Food and Drug Administration. It helps you identify unknown pills and tablets by parameters such as form, color, size or imprint. Epocrates free mobile drug reference: MedScape Drug Interaction Checker: If you know more, please don’t hesitate to let us know. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3858310 Wed, 11 Aug 2010 10:49:46 +0100 3858310 http://www.medworm.com/index.php?rid=3831509&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F08%2F06%2Flets-find-out-if-google-is-watching-you%2F When you’re browsing the web and personal information is being sent to Google servers, it means some kind of a risk for you. How can you find out when it’s happening? Google Alarm that works with Firefox and Chrome, will let you know now. So how does the plugin work? “[It] inspects each page you visit for Google-related URLs: googleanalytics.com/ga.js for Google Analytics, doubleclick.net/googlesyndication.com URLs for AdSense, youtube.com/v/ for YouTube embeds, and many more,” Wilkinson says. “Each service triggers an individual visual and audible alert to help you become more aware of when you’re transmitting data to Google.” If you’re into the idea, the source code is currently open, and Wilkinsen welcomes suggestions. Check out the video below for more info: ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3831509 Fri, 06 Aug 2010 13:28:44 +0100 3831509 http://www.medworm.com/index.php?rid=3827289&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F08%2F05%2Fdrug-side-effects-and-interactions-online%2F There are two sites I know about and regularly use that provide drug side effects and interactions, or detailed information about the drugs you have been prescribed. The first is Surveyor Health: The second is WorstPills: If you know about other similar sites, please let us know. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3827289 Thu, 05 Aug 2010 14:21:17 +0100 3827289 http://www.medworm.com/index.php?rid=3798730&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F07%2F28%2Fcrohns-disease-and-web-2-0%2F There is an incredible amount of stories, resources and links related to Crohn’s disease, which affects more than half million people only in the US, online so Webicina.com selected the most relevant blogs, journals, news sites, Twitter users, mobile apps, Youtube channels and many more in the new Crohn’s disease and Web 2.0 collection. If you also want to follow easily these selected resources in a personalized way, here is PeRSSonalized Crohn’s disease, the simplest medical information aggregator. Here is table of contents: News and Information on Crohn’s Disease Crohn’s Disease in the Blogosphere Crohn`s Disease Podcasts and Interviews Crohn`s Disease Community Sites, FaceBook Groups and Forums Microblogging: Twitter and Friendfeed Crohn`s Disease Wiki... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3798730 Wed, 28 Jul 2010 21:47:46 +0100 3798730 http://www.medworm.com/index.php?rid=3798731&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F07%2F28%2Fmy-bookshelf-laugh-sing-and-eat-like-a-pig%2F I’ve recently started a new series called My Bookshelf in which I post short reviews of the new books I finish. The second book I review is written by fellow blogger and e-patient superstar, Dave deBronkart. First I read the story of Dave years ago, and actually, he is now included in my Internet in Medicine university accredited course. I describe his story to my students as he is THE example of how e-patients can leverage the potential advantages of web 2.0. His recent book, Laugh, Sing, and Eat Like a Pig, How an empowered patient beat stage IV cancer (and what healthcare can learn from it) is just fantastic. 1) I’m sure it’s a golden mine of information for patients dealing with similar health issues; 2) it’s more than useful for doctors who really want to know ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3798731 Wed, 28 Jul 2010 10:36:59 +0100 3798731 http://www.medworm.com/index.php?rid=3750201&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F07%2F13%2Ffinding-your-voice-online-slideshow-2%2F Kerri Morrone Sparling from Sixuntilme.com is one of the most influental and famous diabetes bloggers in the world, she helped us a lot with the Diabetes and Social Media selection on Webicina as well. Now she posted a great slideshow focusing on the approach empowered patients should use when accessing or creating medical content online. She  provides patients with tips about comfort level online and what I really liked was the closing slide: “Once published, forever public.” (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3750201 Tue, 13 Jul 2010 15:53:47 +0100 3750201 http://www.medworm.com/index.php?rid=3733220&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F07%2F07%2Fhow-e-patients-can-help-heal-healthcare-new-book%2F ePatient Dave who shared his story (video below) with my students in the “Internet in Medicine” course this semester, is about to publish his own book, Laugh, Sing, and Eat Like a Pig: How an Empowered Patient Beat Stage IV Cancer. Now three of his friends wrote essays about this important issue: We who’ve worked on it hope it will provoke thought about how healthcare is changing because of what e-patients can contribute, empowered as individuals and enabled by the internet. To start that process, we’re publishing the introduction. Three friends and mentors generously offered introductory essays. These essays they have little to do with my story, and everything to do with how e-patients can help heal healthcare: Part 1, by Dr. Danny Sands: Putting Informatio... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3733220 Wed, 07 Jul 2010 14:15:37 +0100 3733220 http://www.medworm.com/index.php?rid=3730018&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F07%2F06%2Fpink-glove-dance%2F is a really nice initiative created by the Providence Health & Services in order to generate breast cancer awareness. This is the original video. Now several other healthcare institutions joined this movement: (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3730018 Tue, 06 Jul 2010 14:54:10 +0100 3730018 http://www.medworm.com/index.php?rid=3706838&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F06%2F28%2Faidshiv-in-social-media-2%2F AIDS/HIV affects millions of people worldwide and the number of related social media resources is also growing, though the quality is often questionable. The new selection on Webicina.com, AIDS/HIV in Social Media, helps you find the most relevant blogs, podcasts, community sites, mobile apps and other useful resources. If you also want to follow easily these selected blogs, news, journals and Twitter users in a personalized way, here is PeRSSonalized AIDS/HIV. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3706838 Mon, 28 Jun 2010 15:13:36 +0100 3706838 http://www.medworm.com/index.php?rid=3648718&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F06%2F10%2Farthritis-and-web-2-0%2F The number of arthritis-related blogs, podcasts, mobile apps, community sites and Twitter users is growing, but Webicina.com, the first medical social media guidance service, helps you find the most relevant resources in the new Arthritis in Social Media collection. If you also want to follow easily these selected social media resources focusing on arthritis, arthralgia or rheumatoid arthritis, among others, in a personalized way, here is PeRSSonalized Arthritis. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3648718 Thu, 10 Jun 2010 15:49:42 +0100 3648718 http://www.medworm.com/index.php?rid=3644932&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F06%2F08%2Fpersonalized-genomics-news-from-virtuality-to-the-streets%2F DNA As Crystal Ball: Buyer Beware (Newsweek): A genome-wide association study identified a new gene variant associated with Alzheimer’s disease but it turned out clinically it’s not useful. “Adding these genes to traditional risk factors, such as age and sex, does nothing to aid prediction” of whether someone will develop Alzheimer’s, she told me. “Knowing your genetic status will not help. We may still be in the Stone Age when it comes to gene-based prediction.” Breaking: Congress to Investigate DTC Genetic Testing (Genomics Law Report): A really detailed and interesting review. The United States House of Representatives Committee on Energy and Commerce today launched an investigation into direct-to-consumer (DTC) genetic testing, sending letters to three promine... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3644932 Tue, 08 Jun 2010 16:43:26 +0100 3644932 http://www.medworm.com/index.php?rid=3621886&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F06%2F02%2Fhealth-2-0-news-ipad-i-patients-wii-and-computer-viruses%2F E-Patients & I-Patients?: A nice overview about the definition of empowered patients or e-patients. WebMD iPad App Is A Hypochondriac’s Nightmare (Gizmodo): They conclude that it’s even easier to navigate in the iPad application than on the regular WebMD website. Wii can do better (Spoonful of Medicine): The potential benefits of using Nintendo Wii in health management and medicine/rehabilitation. Games For Health 2010: “Disney-esque” Laparoscopy Game to Train Our Surgeons of Tomorrow… Today! (Medgadget) Could humans be infected by computer viruses? “Our research shows that implantable technology has developed to the point where implants are capable of communicating, storing and manipulating data,” he said. “They are essential... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3621886 Wed, 02 Jun 2010 12:26:54 +0100 3621886 http://www.medworm.com/index.php?rid=3529943&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F05%2F04%2Fsurprisingly-effective-treatments-for-depression-infographics%2F Curetogether.com, one of the most famous patient community sites, has been doing research for a long time. They use the data patients share anonymously about their symptoms, treatments and experiences. Now using the profiles of 944 members dealing with depression, they created this infographics that shows a few surprisingly effective treatments for depression. While exercise and meditation are great treatment options, light therapy and massage seem to be effective alternative solutions. It’s a nice way to mine the data e-patients share about their health management. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3529943 Tue, 04 May 2010 11:38:05 +0100 3529943 http://www.medworm.com/index.php?rid=3529944&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F05%2F04%2Fsocial-media-and-healthcare-market-research-reports%2F EPG Health Media just published market research reports about social media in healthcare that can be donwloaded in PDF format for free. This 25 page report is based on market research conducted by EPG during Feb-March 2010 comparing HCP, patient/consumer and Pharma responses to 10 questions related to their use of social media for health. It provides a snap-shot of both current and future trends and opportunities in the digital social space. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3529944 Tue, 04 May 2010 10:49:41 +0100 3529944 http://www.medworm.com/index.php?rid=3505069&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F04%2F26%2Fwhat-motivates-the-empowered-patient-slideshow%2F Chris Schroeder who is the CEO of HealthCentral and James Burroughs, Associate Professor of Commerce, University of Virginia gave this presentation on the 8th of April, 2010 in Washington D.C. For the most detailed report on e-patients, see this (pdf). (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3505069 Mon, 26 Apr 2010 16:50:08 +0100 3505069 http://www.medworm.com/index.php?rid=3490801&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F04%2F20%2Fseizuretracker-com-tracking-epilepsy-online%2F I’ve already written about several sites that let users track parameters related to their health management. Here is another example, SeizureTracker.com, that tracks seizure activity, appointments, and medication schedules through a simple calendar interface. You can download printable seizure logs or receive customized reports which include graphs comparing seizure activity and medication dosages. SeizureTracker.com is dedicated to providing people living with epilepsy and their doctors with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic medications. Our hope is that this website will empower people with epilepsy to become active leaders in their own treatment, working hand-in-hand with doctors. The reports generated by Seizure... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3490801 Tue, 20 Apr 2010 15:48:45 +0100 3490801 http://www.medworm.com/index.php?rid=3416232&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F03%2F28%2Finternet-in-medicine-course-e-patients-and-medical-communities%2F I launched the world’s first elective course at a medical university focusing on web 2.0 and medicine for medical students in 2008. This is the 4th semester and the 5th week was dedicated to e-patients and medical communities. Here is the outline of my presentations. First slideshow: The world of e-patients Who is a good patient? (referring to I am a good patient, believe it or not; Alejandro R Jadad, Carlos A Rizo, Murray W Enkin; BMJ 2003;326:1293-1295 (14 June), doi:10.1136/bmj.326.7402.1293 ) Types of patients: the powerful other; external controller, internal controller or google patient or brainsucker or googlers An e-patient is equipped, enabled, empowered, engaged, equal and expert. Examples (5 stories) including maartensjourney.com and youtube.com/user/geriatric1927 What d... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3416232 Sun, 28 Mar 2010 20:02:55 +0100 3416232 http://www.medworm.com/index.php?rid=3378667&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F03%2F18%2Fe-patients-please-have-your-voices-heard%2F On the 5th week of my Internet in Medicine university accredited course, I talk about e-patients and how they will change medicine. Last semester, Kerri Morrone Sparling kindly accepted my invitation and uploaded a video to Youtube which students could watch during and after the course. It was a personal message for them about how to become patient-centric doctors. Dear empowered patients, feel free to upload your 1-2 minute-long messages to Youtube so students can hear how to become good doctors from the best sources. Please upload it before the 25th of March. Thank you! (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3378667 Thu, 18 Mar 2010 00:34:57 +0100 3378667 http://www.medworm.com/index.php?rid=3327219&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F03%2F03%2Fan-e-patient-twitter-success-story%2F In the fifth week of my Internet in Medicine university credit course, the focus is on the world of e-patients when I present several real e-patients stories, examples when patients could successfully improve their health by using online pieces of information or communities. Here is a new story I will have to mention this March. Erin Turner suffered with pain in her right wrist on a daily basis, despite regular treatment from an orthopedic surgeon for years. Then she found a solution via Twitter: First, my mother told me she saw something about wrist ligament damage in USA Today. Second, I noticed an alert on my Twitter aggregator: In coordination with the USA Today article, @MayoClinic was hosting a #wristpain Twitter chat with Dr. Richard Berger, the surgeon who discovered the UT split t... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3327219 Wed, 03 Mar 2010 00:47:47 +0100 3327219 http://www.medworm.com/index.php?rid=3273047&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F02%2F14%2Fasthma-in-social-media-the-collection%2F It takes plenty of time and effort to find quality content in social media regarding medical conditions or specialties. Outstanding asthma-related web 2.0 tools and applications are collected in Webicina’s Asthma and Web 2.0 guide. Let’s see a few examples that have been included: AsthmaMom, a fantastic blog about raising a young kid with persistent asthma. Here are other selected asthma blogs. Asthma UK provides patients with useful information through a Youtube channel. Other channels were also included. Asthma, MD is a free application that allows users to easily and quickly log their asthma activity, their medications, causes of their asthma in the form of a diary. More asthma mobile apps. You can find hundreds of examples on Asthma and Web 2.0. We also help you follow the b... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3273047 Sun, 14 Feb 2010 21:16:25 +0100 3273047 http://www.medworm.com/index.php?rid=3254644&cid=t_153075_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F02%2Fweight-diet-and-writing-things-down-is-this-what-you-call-health-2-0.html There is a VERY interesting discussion going on over at the e-Patients.net blog about what the heck “Health 2.0″ actually means, and whether it can really help people. I’ve spoken and written a lot on Health 2.0 myself, and when people ask me what the term means, I usually give them this simple two-part explanation: 1) Health [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3254644 Tue, 09 Feb 2010 13:00:22 +0100 3254644 http://www.medworm.com/index.php?rid=3231734&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F02%2F01%2Fleukemia-and-web-2-0-selected-online-resources%2F Webicina, the first medical web 2.0 guidance service, comes up with 3-4 selections every week in order to assist empowered patients in their health management. The newest one is dedicated to Leukemia and Web 2.0. Such a selection is a free comprehensive resource containing all the web 2.0 tools from quality blogs and communities to online slideshows and mobile applications. It was designed to help patients by providing medically reliable information and websites. Please take a look at the table of contents: News and Information on Leukemia Leukemia in the Blogosphere Leukemia Podcasts and Intrerviews Leukemia Community Sites, FaceBook Groups and Forums Microblogging: Twitter and Friendfeed Leukemia Wikis Leukemia videos, animations and videocasts Mobile Applications Social Bookmarking Me... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3231734 Mon, 01 Feb 2010 19:38:58 +0100 3231734 http://www.medworm.com/index.php?rid=3208594&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2010%2F01%2F25%2Fstroke-and-web-2-0-selected-online-resources%2F Webicina, the first medical web 2.0 guidance service, just published Stroke and Web 2.0, a free comprehensive resource containing all the web 2.0 tools from quality blogs and communities to online slideshows and mobile applications. It was designed to help stroke patients and affected families find the best resources online. Please take a look at the table of contents: News and Information on Stroke Stroke in the Blogosphere Stroke Podcasts and Intrerviews Stroke Community Sites, FaceBook Groups and Forums Microblogging: Twitter and Friendfeed Stroke Wikis Stroke videos, animations and videocasts Mobile Applications Social Bookmarking Medical Search Engines Slideshows about Stroke PeRSSonalized Stroke is an easy-to-use, free aggregator of quality medical information that lets you select... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3208594 Mon, 25 Jan 2010 19:56:42 +0100 3208594 http://www.medworm.com/index.php?rid=3108505&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F12%2F20%2Fdad-delivers-baby-with-help-from-google%2F It was the strangest headline this week. Let’s see a case study focusing on how to promote a device carefully and how to deliver false message about the use of online health information. When Leroy Smith’s pregnant wife started going into labor, the desperate dad didn’t turn to the doctors, but to Google. Unsure of what do when his wife, Emma Smith, began having contractions at their home, and fearing that the midwife wouldn’t arrive in time, the dad-to-be grabbed his Blackberry and Googled “how to deliver a baby.” Leroy, a security guard, followed the step-by-step instructions he found on wikiHow, and successfully delivered his and his wife’s baby girl, Mahalia Merita Angela Smith. First, people should contact online health information resources i... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3108505 Sun, 20 Dec 2009 18:39:20 +0100 3108505 http://www.medworm.com/index.php?rid=3052327&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F12%2F03%2Fdoctor-patient-discussion-on-facebook-banned%2F There is an interesting article in E-Health Europe about how patients try to contact doctors on Facebook, the popular social networking site, and how doctors shouldn’t respond to them. In my “Medicine and Web 2.0” university credit course, we cover this important issue several times and I try to provide students with useful pieces of advice about how to avoid such problems. The Medical Defence Union said it was aware of a number of cases where patients have attempted to proposition doctors by sending them an unsolicited message on Facebook or similar sites. The medical defence body said it would be “wholly inappropriate” to respond to a patient making an advance in such a way. Dr Emma Cuzner, MDU medico-legal adviser, said the pitfalls posed to doctors using social ne... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3052327 Thu, 03 Dec 2009 11:07:03 +0100 3052327 http://www.medworm.com/index.php?rid=3033734&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F11%2F26%2Fmost-creative-presentation-ever%2F Kevin, MD has recently shared a video of Better Health’s Val Jones who is a fellow blogger of mine on Better Health Network, and who gave a presentation at the e-Patient Connections 2009 Conference. She used limericks to tell the stories of two e-patients. What is a limerick? Here is an example: The limerick packs laughs anatomical In space that is quite economical, But the good ones I’ve seen So seldom are clean, And the clean ones so seldom are comical. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=3033734 Thu, 26 Nov 2009 21:16:59 +0100 3033734 http://www.medworm.com/index.php?rid=2989396&cid=t_153075_147_f&fid=38117&url=http%3A%2F%2Fwww.engageinhealth.com%2F2009%2F11%2Fare_we_listening.html Heather Harper, who works with companies bringing innovations and resources to the e-patient community, gives some perspective from the patient community and highlights the benefits already being seen from widespread access to health information and engagement. There’s no denying it, the e-patient revolution has begun. And that movement sets an important context for today and tomorrow’s FDA hearings on social media usage by medical products manufacturers. As we digest the discussion and many interested people offer additional comments to the FDA, we must make sure we are informed by the robust patient-driven conversation that is already raging online. Patients – and many medical professionals – are not waiting for a perfect world of fair and balanced information. They are ... The Health Engagement Blog blogs http://www.medworm.com/rss/comments.php?id=2989396 Thu, 12 Nov 2009 19:17:15 +0100 2989396 http://www.medworm.com/index.php?rid=2924916&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F10%2F25%2Fvenahub-wirelessly-reports-health-data-compliance%2F Barbara Duck at The Medical Quack published an interesting article about new devices that help report health data compliance wirelessly. One example is the VenaHub device: (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2924916 Sun, 25 Oct 2009 01:41:50 +0100 2924916 http://www.medworm.com/index.php?rid=2851981&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F09%2F30%2Fjournal-of-participatory-medicine%2F I discovered the new Journal of Participatory Medicine in a guest post on E-Patients.net written by John Sharp of the Cleveland Clinic. Now comes the Journal of Participatory Medicine to fill a gap in journals which acknowledge the active role of the patient in current medical practice. While other journals publish articles on patient participation in health care and social media, but a single journal devoted to this topic will be a welcome addition and make the topic more officially sanctioned as a valid field of medical study. The editorial board is very impressive and lends an important boost to this new journal. The Society for Participatory Medicine is a growing organization devoted to promoting the concept of participatory medicine by and among patients, caregivers and their medical... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2851981 Wed, 30 Sep 2009 20:47:39 +0100 2851981 http://www.medworm.com/index.php?rid=2836301&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F09%2F27%2Fpatient-education-video-series-by-paul-levy-and-val-jones%2F Dr. Val Jones has recently uploaded 3 videos as a part of a long series of patient education and inspirational story videos. These feature hospital safety described by Paul Levy, author of Running a Hospital blog. “Paul Levy, President & CEO of Beth Israel Deaconess Medical Center in Boston, discusses his innovative approach to keeping patients aware of the safety record of his hospital. Produced by Dr. Val Jones.” Paul Levy, President & CEO of Beth Israel Deaconess Medical Center in Boston, discusses how patients can have a better hospital experience, by keeping themselves informed and having an advocate. Produced by Dr. Val Jones. Paul Levy, President & CEO of Beth Israel Deaconess Medical Center in Boston, discusses how to keep in touch with friends and family ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2836301 Sun, 27 Sep 2009 11:31:15 +0100 2836301 http://www.medworm.com/index.php?rid=2716139&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F08%2F19%2Fe-patients-are-empowered-equipped-engaged-educated%2F A nice video about the e-patient revolution. Who are they? They want to communicate with their doctors online, share stories about treatments or access medical records from home. They will revolutionize the way medicine is practiced and healthcare is delivered. I also try to help empowered patients by providing them with free web 2.0 collections on Webicina. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2716139 Wed, 19 Aug 2009 21:19:58 +0100 2716139 http://www.medworm.com/index.php?rid=2719785&cid=t_153075_113_f&fid=34634&url=http%3A%2F%2Fwww.emrandhipaa.com%2Femr-and-hipaa%2F2009%2F08%2F18%2Fupcoming-healthcare-it-conferences%2F Neil Versel posted a list of upcoming Healthcare IT conferences (a few aren’t just IT, but IT will be a large part of it) in the sidebar of his blog. Check out his list: Medical Device Connectivity (Sept., Boston) Medicine 2.0 (Sept. 17-18, Toronto) AHIMA (Oct. 3-8, D-FW) Health 2.0 (Oct. 6-7, SF) MGMA (Oct. 11-14, Denver) Connected Health Symposium (Oct., Boston) CHIME09 (Oct., Indian Wells, Calif.) E-Patient Connections (Oct., Phila.) NIH mHealth Summit (Oct. 29-30, DC) Inst. for Health Tech Transformation (Nov., LA) AMIA (Nov. 14-18, SF) That’s a lot of conferences. Were there any that we missed? That just goes through the end of the year. How do people stay up with all these conferences? I still haven’t made it to HIMSS, but am planning to go to Atlanta in March. I&#8... EMR and HIPAA blogs http://www.medworm.com/rss/comments.php?id=2719785 Tue, 18 Aug 2009 15:56:01 +0100 2719785 http://www.medworm.com/index.php?rid=2660868&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F07%2F31%2F23andme-on-video-meet-my-me-ome%2F Jen S. McCabe from Health Management RX shared her genomic results through a nice video. It’s a smart way to present how such a direct-to-consumer genetic company works, but I’m not sure Jen should publish such data. Here is how she collected the salive sample: I got a free kit from Navigenics a few months ago, and I shared my experiences, but not the results. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2660868 Fri, 31 Jul 2009 22:01:42 +0100 2660868 http://www.medworm.com/index.php?rid=2512321&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F06%2F23%2Fmayo-clinic-patient-stories%2F Mayo Clinic is one of the health institutes that has been open to web 2.0 for years now. Here is another reason for that, patient stories shared via Youtube. Lee Aase, manager of Syndication and Social Media for Mayo Clinic, will attend the Dutch event (one of the best health 2.0 events this year in Europe) on the 12th and 13th of October organized by Lucien Engelen. I will also be there. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2512321 Tue, 23 Jun 2009 20:03:55 +0100 2512321 http://www.medworm.com/index.php?rid=2512323&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F06%2F22%2Fpregnancy-2-0-a-free-web-guidance-package%2F Webicina, the first medical web 2.0 guidance service, launched Pregnancy 2.0, a free comprehensive resource containing all the web 2.0 tools from quality blogs and communities to online slideshows that women seeking pregnancy, pregnant women and new mothers can use in their health management. Please take a look at the table of contents: News and Information Pregnancy in the Medical Blogosphere Pregnancy Blog Carnivals Pregnancy Podcasts and Interviews Pregnancy Community Sites and FaceBook Groups Microblogging: Twitter and Friendfeed Pregnancy Wikis Pregnancy Videos, animations and videocasts Mobile Applications Social Bookmarking Medical Search Engines Slideshows about Pregnancy Next week, we will release a free eGuide containing several step-by-step tutorials about how to give present... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2512323 Mon, 22 Jun 2009 18:48:31 +0100 2512323 http://www.medworm.com/index.php?rid=2512330&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F06%2F18%2Fpew-internet-research-e-patients%2F Here is the latest Pew Internet Research report about online health information and the world of e-patients. A few excerpts: 61% of American adults look online for health information. In 2000, 46% of American adults had access to the internet, 5% of U.S. households had broadband connections, and 25% of American adults looked online for health information. Now, 74% of American adults go online, 57% of American households have broadband connections, and 61% of adults look online for health information. We use the term “e-patient” to describe this group. American adults continue to turn to traditional sources of health information, even as many of them deepen their engagement with the online world. A majority of e-patients access user-generated health information. (Source: Science... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2512330 Thu, 18 Jun 2009 17:29:05 +0100 2512330 http://www.medworm.com/index.php?rid=2473872&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F06%2F11%2Fteen-diagnoses-her-own-disease-being-empowered%2F Elizabeth Cohen published a fantastic article on CNN’s Empowered Patient column about a teenager who diagnosed her own Crohn’s disease. Her doctors, no matter how hard they tried, couldn’t figure out the cause of Jessica’s abdominal distress. In her Advanced Placement high school science class, she was looking under the microscope at slides of her own intestinal tissue — slides her pathologist had said were completely normal — and spotted an area of inflamed tissue called a granuloma, a clear indication that she had Crohn’s disease. Although Terry was relieved to finally get a diagnosis, it was also tough for her to hear that she has such a serious disease. Being empowered is a more than positive attitude, no matter what the majority of doctors thi... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2473872 Thu, 11 Jun 2009 20:09:05 +0100 2473872 http://www.medworm.com/index.php?rid=2424352&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F05%2F20%2Fhealth-information-online-how-to-check-the-quality%2F When I create Web 2.0 Guidance Packages on Webicina.com that contain all the web tools that focus on a specific medical condition or medical specialty, I always try to measure or determine the quality of health information. How can I do that easily? I have to find a third, neutral party that analyzes the quality of medical information website by website. This is the Health on the Net Foundation, or HONcode. They have a plugin that you can install on your Firefox or Internet Explorer so whenever you are on a website it will let you know whether that site is accredited by HONcode or not. Regarding this very important topic, I have 2 more articles and one slideshow to share with you: Patient’s Guide to HIPAA: How to Use the Law to Guard your Health Privac Trying to Measure the Quality... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2424352 Wed, 20 May 2009 18:21:56 +0100 2424352 http://www.medworm.com/index.php?rid=2415612&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F05%2F18%2Fneurology-2-0-a-free-guide-to-web-2-0-for-medical-professionals%2F Webicina, the first medical web 2.0 guidance service, just launched Neurology 2.0, a free comprehensive resource containing all the web 2.0 tools from quality blogs and communities to online slideshows and clinical cases that focus on the conditions and illnesses of the nervous system. We have already published several packages for patients such as Diabetes 2.0, Depression 2.0 or Cancer 2.0; but Rheumatology 2.0 is the first and Neurology 2.0 is only the second one designed for medical professionals. The table of contents: Neurology News and Information Neurology in the Medical Blogosphere Neurology Blog Carnivals Neurology Podcasts and Interviews Neurology Community Sites and FaceBook Groups Microblogging: Twitter and Friendfeed Neurology Wikis and Databases Neurology videos, animations... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2415612 Mon, 18 May 2009 15:57:51 +0100 2415612 http://www.medworm.com/index.php?rid=2405813&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F05%2F10%2Fcancer-2-0-a-free-online-guide-for-patients-and-their-doctors%2F Webicina, the first medical web 2.0 guidance service, just launched Cancer 2.0, a comprehensive resource where cancer patients and their healthcare providers can find all the web 2.0 tools that provide support or reliable health information about cancer management. The table of contents: Cancer News and Information Cancer in the Medical Blogosphere Cancer Blog Carnivals Cancer Podcasts and Interviews Community Sites and FaceBook Groups Microblogging: Twitter and Friendfeed Cancer Wikis and Databases Cancer Videos, animations and videocasts Second Life, the virtual world Social Bookmarking and Cancer Medical Search Engines Cancer Management On Mobile Slideshows about Cancer Next week, we will release the first Web 2.0 Guidance Package designed for medical professionals. The topic will b... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2405813 Sun, 10 May 2009 20:52:30 +0100 2405813 http://www.medworm.com/index.php?rid=2399050&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F05%2F08%2Fwebicina-com-new-design-new-mission%2F Webicina.com is my service that aims to help medical professionals and patients enter the web 2.0 era by providing them with e-courses, consulting and personalized packages. Now we created a new design in order to help patients and doctors where find the content they are really interested in. Webicina.com main page If you are a patient and looking for reliable health information and web 2.0 tools focusing on your medical condition, we built packages for you. Check out the Diabetes 2.0, Depression 2.0 packages and stay tuned for the next one, Cancer 2.0 that will be launched this Sunday. Webicina.com Patients' Page If you are a medical professional, you can check the services we can provide you with, follow the latest medical news with PeRSSonalized Medicine and we will also make our me... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2399050 Fri, 08 May 2009 17:00:46 +0100 2399050 http://www.medworm.com/index.php?rid=2349216&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F04%2F17%2F2009-diabetesmine-design-challenge-contest%2F Amy Tenderich at Diabetes Mine is one of the most famous diabetes bloggers worldwide. She also runs a fantastic contest: Welcome to the 2009 DiabetesMine™ Design Challenge, an online competition to encourage creative new tools for improving life with diabetes. Do you have an idea for an innovative new diabetes device or web application? This is your chance to win up to $10,000 to realize your design concept, and potentially help transform life with diabetes for millions of people. You can read more about the details here. And don’t forget about the Diabetes 2.0 Package on Webicina.com that helps you which web 2.0 tools can provide support or reliable health information, which communities to join and which quality blogs to read. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2349216 Fri, 17 Apr 2009 18:56:10 +0100 2349216 http://www.medworm.com/index.php?rid=2348732&cid=t_153075_113_f&fid=38236&url=http%3A%2F%2Fwww.healthcareitnews.com%2Fblog%2Finsurance-and-health-it-companies-tolerate-hundreds-thousands-deaths-year-protect-their-antiqua About two weeks ago, e-patient Dave sent me a link to his blog post about his Google Health information sucked out of the Beth Israel Deaconess Hospital in Boston. It finally made the Boston Globe this morning. (Source: Healthcare IT News Blog) Healthcare IT News Blog blogs http://www.medworm.com/rss/comments.php?id=2348732 Mon, 13 Apr 2009 20:25:50 +0100 2348732 http://www.medworm.com/index.php?rid=2349226&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F04%2F12%2Fwhat%25e2%2580%2599s-on-the-web-12-april-2009%2F Using eBay to set up a molecular biology lab: costs less than $1000! (The World’s Fair) 11 Excellent Twitter Improvement Ideas (Six Revisions) Serious Gaming With 3D Life Science (Future-Making Serious Games) Scammers Alive And Well In The Health Blogosphere (Better Health) Genomics and Silverlight from Microsoft working together for Great Visual Enhancement– BioMashUps (Medical Quack) Engaging Patients in Medical Decisions (Mayo Clinic) A wonderful story of participatory medicine (E-patients.net) E-visits turn computer into medical exam room “It’s not meant to replace a traditional doctor’s visit, but it’s a nice option for people who don’t want to take time off of work or just want to stay in bed. I think the patients who apprec... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2349226 Sun, 12 Apr 2009 19:03:36 +0100 2349226 http://www.medworm.com/index.php?rid=2295314&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F27%2Fe-patients-will-shape-the-future-of-medicine-slideshow%2F Here is the slideshow I presented at the AcuteZorg.nl Health 2.0 event in Nijmegen, The Netherlands on the 24th of March, 2009. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2295314 Fri, 27 Mar 2009 06:54:40 +0100 2295314 http://www.medworm.com/index.php?rid=2295320&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F26%2Fflutweet-and-twitter-tips-for-clinical-trial-recruiters%2F Discussion Twitter for Health and Medicine 10 Reasons Why I Use Twitter Tips and Tricks: Is Twitter reliable? Health Tweeple to Follow Twitter for Health and Medicine Omnee: An organic directory of Twitter users (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2295320 Thu, 26 Mar 2009 13:39:16 +0100 2295320 http://www.medworm.com/index.php?rid=2295332&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F25%2Fa-journey-of-a-real-e-patient%2F Yesterday, I attended the Health 2.0 event in Nijmegen and saw the presentation of Maarten Lens-FitzGerald who I wrote about a few months ago. His story is more than fascinating. I finished my slideshow with saying: E-patients will change the way medicine is practiced and healthcare is delivered. I believe, Maarten is the perfect proof for that: (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2295332 Wed, 25 Mar 2009 17:23:02 +0100 2295332 http://www.medworm.com/index.php?rid=2267516&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F14%2Fitrunsinmyfamilycom-create-your-family-history%2F ItRunsInMyFamily.com seems to solve a major problem in healthcare. When a patient visits a doctor, it always takes time to register proper family history. But what if patients do this job well before going to the doctor and medical professionals only have to check its accuracy? Genetics is known to play a significant role in many common diseases such as cancer, diabetes, and heart disease. Knowing your own family health history can help you determine your personal health risks.* Our family health history tool makes it easy to 1- build your family pedigree, 2- enter in diseases that run in your family, and then 3- share your family health history report with your doctor. The interface is clear and easy to use. The site provides patients with a secure tool. I’m also happy to announce... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2267516 Sat, 14 Mar 2009 16:44:56 +0100 2267516 http://www.medworm.com/index.php?rid=2267518&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F14%2Fbuild-your-x-ray-risk-report%2F You can calculate your X-Ray risk report on xrayrisk.com. Select what kind of scans you have ever had, select your gender, age and you get the exact dose, plus the possible cancer risk. Keep in mind, the overall lifetime risk of developing an invasive cancer is 37.5% (1 in 3) for women and 44.9% (1 in 2) for men regardless of imaging history. These statistics are averages and do not predict what is going to happen to you. They do not take into consideration individual risk factors including lifestyle (smoking, diet, exercise, etc), family history (genetics) or radiation exposure. The majority of cancers occur later in life and the average lifetime risk of dying from cancer is 25% (1 in 4). A nice tool that lets e-patients know more about what’s happening with them during medical tes... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2267518 Sat, 14 Mar 2009 15:09:41 +0100 2267518 http://www.medworm.com/index.php?rid=2260103&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F09%2Fwebicina-poll-which-web-20-guidance-package-next%2F Webicina.com is my service that aims to help medical professionals and patients enter the web 2.0 era by providing them with e-courses, consulting and personalized packages. A few days ago, we released the first free medical web 2.0 guidance package focusing on diabetes. As this is meant to be a collaborative effort where we are totally open to your suggestions, we would like to ask you to decide which medical condition to focus on next. View Poll Further reading: Webicina: Web 2.0 Guidance Package about Diabetes PeRSSonalized Medicine: Follow the latest PubMed articles easily PeRSSonalized Medicine: 5 New Resources PeRSSonalized Medicine: A free tool to track medical information PeRSSonalized Medicine: What are your favourite resources? The Bridge: Do you want to change healthcar... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2260103 Mon, 09 Mar 2009 22:14:14 +0100 2260103 http://www.medworm.com/index.php?rid=2249293&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F07%2Fnavigenics-what-my-genome-tells-me-to-do%2F A few months ago, Navigenics.com offered me to analyze my saliva sample and genome. I happily accepted the offer and was curious to see what they could tell me. After graduating from medical school, I will start PhD training in personalized genetics this September so I’m quite into this emerging field of medicine. I sent my saliva sample back to their laboratory this January and received the results in about 3-4 weeks. I clicked on View my results and saw what kind of risks I have for certain medical conditions such as glaucoma, heart disease, prostate cancer, Crohn’s disease or osteoarthritis (9 conditions all together). When I check one medical condition, I see something like that: They tell me my risk compared to the whole population. And how that medical condition is af... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2249293 Sat, 07 Mar 2009 19:15:28 +0100 2249293 http://www.medworm.com/index.php?rid=2249295&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F03%2F07%2Fdoctors-using-electronic-medical-record-video%2F I do clinical rotation now before graduating in August so I can see how healthcare works at least in Hungary from inside. I see how much administrative work a doctor must do day by day. And even if the switch might be painful, we need to use electronic medical records. Anyway I think e-patients will use personal health records sooner than doctors start using EMRs. (Via WSJ Health) (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2249295 Sat, 07 Mar 2009 15:42:46 +0100 2249295 http://www.medworm.com/index.php?rid=2222630&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F02%2F27%2F24-hours-with-diabetes%2F Kerri Morrone Sparling at Sixuntilme.com shared her normal day with us in her post 24 Hours with Diabetes. Such posts can help other diabetic patients around the world so much. Kerri sent me a lot of useful suggestions when creating the first Diabetes 2.0 package on Webicina. (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2222630 Fri, 27 Feb 2009 20:34:53 +0100 2222630 http://www.medworm.com/index.php?rid=2210640&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F02%2F24%2Fwebicina-web-20-guidance-package-about-diabetes%2F Webicina.com is my service that aims to help medical professionals and patients enter the web 2.0 era by providing them with e-courses, consulting and personalized packages. After weeks of hard work, I’m happy to announce we just made the first free patient package, Diabetes 2.0 Package, public. If you would like to know which web 2.0 tools can provide support or reliable health information, which communities to join and which quality blogs to read, I hope you will find Diabetes 2.0 Package interesting and useful. As this is a totally free service, please share your suggestions with us! Check out the table of contents: News and Forums Diabetes in the medical blogosphere Blog Carnivals Podcast Community Sites and FaceBook Groups Microblogging: Twitter and Friendfeed Wikis Videos, an... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2210640 Tue, 24 Feb 2009 22:48:30 +0100 2210640 http://www.medworm.com/index.php?rid=2190666&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F02%2F16%2Fonline-medical-symptom-checkers-examined-poll%2F ComputerWorld.com has a really comprehensive review of the online medical symptom checkers. Though they didn’t include my favourite one, Medgle.com. The final results of the review: So here’s the summary of how many clicks it took me to get a list of possible causes that included plantar fasciitis. These are the shortest routes I eventually found to get to the end result, often after several earlier attempts where questions were confusing and I ended on a page with no plantar fasciitis. WebMD: 12 clicks to get a list of 15 possible causes Revolution Health: 2 clicks to get a list of 13 possible causes MayoClinic.com: 5 clicks to get a list of 7 possible causes About.com: 9 clicks to get a list of 3 possible causes WrongDiagnosis.com: 1 click to get a list of 6 possible causes... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2190666 Mon, 16 Feb 2009 20:21:20 +0100 2190666 http://www.medworm.com/index.php?rid=2125358&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F01%2F22%2Ftwitter-and-health-20-a-visual-story%2F The VizEdu team did an excellent job when they tried to visualize the connection between medicine and twitter. And they included my profile in the special slideshow which I really appreciate. Check this flash/show out. They’re also open to new suggestions so feel free to add new thoughts to the presentation. Further reading: If you’re new to Twitter 10 Tips: How to filter discussions on Twitter? Twitterview: The Future of Medicine in 140 Characters The Youngest Twitterer and the Future of Health Management What you have to know about Twitter Twitter for Health and Medicine 10 Reasons Why I Use Twitter Tips and Tricks: Is Twitter reliable? Health Tweeple to Follow Twitter for Health and Medicine        (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2125358 Thu, 22 Jan 2009 17:53:15 +0100 2125358 http://www.medworm.com/index.php?rid=2074249&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2009%2F01%2F02%2Fdiabetes365-the-best-e-patient-project-ever%2F Kerri Morrone is one of the most famous e-patients nowadays. She runs the popular Sixuntilme blog that focuses on diabetes management and now finished a one-year-long project, the Diabetes365 (check the Flickr image collection out): Over the last 366 days (leap year added the extra challenge), I’ve lived my life with my camera at the ready, snapping photos of everything from CGM sensors to snacks … and the moments in between.  I thought that the Diabetes 265 project would make me feel like diabetes is an overwhelming facet of my life, but instead I’ve seen that diabetes truly does not define any of us.  We can grab pictures of our meters and our pump sites, but there’s also so much LIFE going on between all these moments of diabetes management. Why is it importan... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2074249 Fri, 02 Jan 2009 17:53:45 +0100 2074249 http://www.medworm.com/index.php?rid=2035829&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F12%2F14%2Fthe-youngest-twitterer-and-the-future-of-health-management%2F BoingBoing featured kickbee, probably the youngest Twitter user. His father, Corey Menscher, has designed a kick sensor which monitors his pregnant wife’s belly, and generates a fetal tweet whenever the baby kicks. Technical details and images here. Incredible idea! What might be the next step? I’m just wondering… A diabetic patient monitors his/her blood sugar and whenever there is a serious difference from normal values, the doctor receives a twit about it. An old patient with high blood pressure measures his/her blood pressure several times a day with an automatic device. When the value is too high, the doctor receives a twit about it. Pregnant women who are at risk for some reasons, can wear such sensors, and anytime the heart beat of the fetus decreases, the do... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2035829 Sun, 14 Dec 2008 22:20:19 +0100 2035829 http://www.medworm.com/index.php?rid=2017814&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F12%2F06%2Fonline-communities-diabetes%2F I’ve already written about a few diabetic community sites such as D-Life and TuDiabetes.Now I would like to share two other sites with you: Juvenation: A Type 1 Diabetes Community Diabetic Connect: If you want to know more about the role of web 2.0 tools in diabetes management, check my interview with Kerri Morrone. Please let me know if you happen to know or use other diabetes communities.        (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=2017814 Sat, 06 Dec 2008 20:01:05 +0100 2017814 http://www.medworm.com/index.php?rid=1927799&cid=t_153075_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2008%2F11%2F02%2Fhow-well-do-psychiatrists-involve-patients%2F Not very, according to recently published research. Goss and her colleagues (2008) wanted to test how much psychiatrists involve patients in therapeutic decisions and to determine whether there were any defining characteristics (on either the patient’s or the psychiatrist’s part) that contributed to patient involvement. What’s so great about patient involvement? Well, previous research has shown that the more involved a patient is in the decision-making of their treatment, generally the better the outcomes for the patient. They tend to feel more better, sooner, than patients who are uninvolved in the process. Patients who are involved also report higher satisfaction rates with treatment. This is a small study of only 16 Italian psychiatrists, but the researchers exami... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=1927799 Sun, 02 Nov 2008 12:16:55 +0100 1927799 http://www.medworm.com/index.php?rid=1888275&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F10%2F18%2Fi-am-a-good-patient-believe-it-or-not%2F Here is an article published in the British Medical Journal in 2003 by Alejandro R Jadad, Carlos A Rizo and Murray W Enkin. They mentioned what the good patient of the future would be like: Bring lists of questions to the consultation and will expect answers in clear terms Know how involved they want to be in decisions about their health care; most will choose to share decisions with their healthcare providers Have free access to their health record on paper or through electronic means and will use it or share it as they see fit Request and receive a second opinion whenever they face a major diagnosis or decisions about treatment Use telephone, internet, and other forms of communication to complement personal visits with members of the healthcare team They were absolutely right. The situ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1888275 Sat, 18 Oct 2008 18:57:25 +0100 1888275 http://www.medworm.com/index.php?rid=1769440&cid=t_153075_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHEALTH%2F%7E3%2F383877706%2F Conclusion My thanks to everyone that contributed articles — it’s been great hosting the Cancer Research Blog Carnival for a second time this year. Be sure to take a moment and let your fellow bloggers know this issue is available so that everyone’s hard work can be appreciated and enjoyed by all. The Cancer Research Blog Carnival is looking for future hosts. You can find both the hosting schedule and past editions at the Cancer Research Blog Carnival website. For more information on the U.S. investment in cancer research, you can read the NCI’s plan and budget proposal for fiscal year 2009. References Niederhuber JE. A look inside the National Cancer Institute budget process: implications for 2007 and beyond. Cancer Res. 2007 Feb 1;67(3):856-62. View abstract The ... Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=1769440 Fri, 05 Sep 2008 04:49:31 +0100 1769440 http://www.medworm.com/index.php?rid=1637814&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F07%2F19%2Fthe-e-patient%2F Jan Martens at Medblog.nl shared a more than interesting post with me. He mentioned Maarten Lens-Fitzgerald who should be considered one of the best examples of e-patients in the world. Why? This is the blog of the journey I started on June 4th 2008 when I found out I had a tumor between my lungs. Its a journal for all to read, to stay informed and for me to share. his X-rays are online he blogs about his ‘journey’ he twitters about his experiences inside and outside the hospital he makes pictures with his cellphone and puts these online through mobypicture he creates movies inside the hospital and he is interviewed by visitors you can make an appointment using a google online agenda Further reading: Original Dutch article Medblog.nl Why Health or Medicine 2.0? Doctors, webcams ... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1637814 Sat, 19 Jul 2008 09:26:34 +0100 1637814 http://www.medworm.com/index.php?rid=1622204&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F07%2F14%2Fwhy-health-or-medicine-20%2F Some interesting statistics have recently been published. According to Pharma 2.0: 99% of physicians are online for personal or professional purposes 85% of offices have broadband 83% consider the Internet essential to their practice At The Deloitte Center, you will find even more details about the web usage of health consumers. Yes, there will be much more patients who seek health-related information on the web and who want to communicate with their doctors via e-mail or Skype. And if a doctor thinks like that: being absent from the Web is the surest way of avoiding disclosure of personal information on the Web. How will he answer the questions about reliable medical online resources? No, the basics of practicing medicine will never change dramatically due to new technologies or the... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1622204 Mon, 14 Jul 2008 20:32:48 +0100 1622204 http://www.medworm.com/index.php?rid=1560911&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F07%2F01%2Fmedical-education-evolution-time-for-a-change%2F I just finished my last exams so now I’m officially in the last year of medical school. I believe I know exactly the problems of medical education as there are some of them even at the best universities. I believe medical education is still traditional while medicine is not traditional any more. Do you think today’s residents and physicians can answer the questions of e-patients? I know, medicine will never be an online service but there will be more and more e-patients who would like to contact their doctors through e-mail or Skype and would like to get some relevant/useful resources where they can find more information about their medical condition. Do you think today’s physicians can help these patients? If we do not change medical education, there will be a strange s... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1560911 Tue, 01 Jul 2008 09:56:28 +0100 1560911 http://www.medworm.com/index.php?rid=1538005&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F06%2F23%2Fdoctors-webcams-and-online-consultation%2F The most interesting thing I read this week was about the new doctor-patient paradigm. Because there is a new one: “The doctor-patient relationship has changed dramatically with the demise of ‘good ol’ doc’ and the explosion of medical technology,” says Paul M. Ross, an orthopedic surgeon in Pawlet, VT. “Today, patients are not only more knowledgeable, they’re more cynical. The increased use of physician extenders, hurried service, and overbooking have all contributed to the number of physician-patient relationships that are adversarial as opposed to collegial.” Practicing medicine is changing rapidly these days. Patients have more resources to get more information about their medical conditions but they also have more tools to contact their... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1538005 Mon, 23 Jun 2008 08:51:29 +0100 1538005 http://www.medworm.com/index.php?rid=1512206&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F06%2F12%2Fjay-parkinson-and-modern-healthcare%2F You know well who Jay Parkinson is. I’ve written plenty of posts about him (see below). Now he launched something that really can shape the future of healthcare. See his slides presented at HIMSS Summit.  This is one of the most important medical slideshows published ever on the web. WSJ Blog published an interview and Medgadet also covered the story. Further reading: Jay Parkinson and Hello Health Call Your Doctor Online: The Future of Medicine? Interview with Jay Parkinson, the web-savvy doctor From Doctor 2.0 to Patient 2.0: On Video (Source: ScienceRoll) ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1512206 Thu, 12 Jun 2008 17:30:43 +0100 1512206 http://www.medworm.com/index.php?rid=1503033&cid=t_153075_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHEALTH%2F%7E3%2F307940708%2F This article was published on Highlight HEALTH. Related articlesHEALTH Highlights - May 6th, 2008Health Highlights - March 3rd, 2008HEALTH Highlights - Monday, December 10thHEALTH Highlights - October 23rd, 2007HEALTH Highlights - August 9th, 2007 (Source: Highlight HEALTH) Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=1503033 Mon, 09 Jun 2008 11:02:05 +0100 1503033 http://www.medworm.com/index.php?rid=1497492&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F06%2F05%2Fjay-parkinson-and-hello-health%2F First, you know well who Jay Parkinson is and why he is an example for all of us in the health 2.0 world. Second, I’ve already presented some services that provide online medical consultation. Of course, the simplest conclusion is Jay must launch a similar service. And here is Hello Health. Let’s see what you have to do if you would like to see a doctor online: Join Hello Health. Make an appointment. You see your doctor. You feel better. You can choose video chat; IM; in-person visit or e-mail. Ok, despite all the dangers it can lead to, this is the future. I must state that medicine will never be an online service, but there will be more and more patients who want to have a GP who can be contacted online anytime it’s needed. And if you would like to hear more from Jay... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1497492 Thu, 05 Jun 2008 17:51:52 +0100 1497492 http://www.medworm.com/index.php?rid=1484929&cid=t_153075_131_f&fid=35008&url=http%3A%2F%2Fscienceroll.com%2F2008%2F06%2F01%2Fthe-power-of-e-patients%2F There is a whole blogosphere around the idea of transforming medicine into e-health. There are plenty of bloggers who often write about the IT opportunities of medicine and healthcare. But! What about patients? The consumers? Even if we have a Jay Parkinson, what can he do without patients who are ready to use his service? They are called e-patients, and without them there will be no change in the future of medicine. By taking advantage of new online health tools, e-patients and health professionals now have the ability to create equal partnerships that enable individuals to be equipped, enabled, empowered and engaged in their health and health care decisions. (The Health Care Blog) A new book from Tom Ferguson, MD analyzes the power of e-patients: Tom Ferguson was a strong proponent of de... ScienceRoll blogs http://www.medworm.com/rss/comments.php?id=1484929 Sun, 01 Jun 2008 21:24:28 +0100 1484929 http://www.medworm.com/index.php?rid=1083099&cid=t_153075_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHealth%2F%7E3%2F197960100%2F This article was published on Highlight HEALTH. (Source: Highlight HEALTH) Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=1083099 Mon, 10 Dec 2007 10:02:35 +0100 1083099 http://www.medworm.com/index.php?rid=971604&cid=t_153075_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHealth%2F%7E3%2F173822316%2F This article was published on Highlight HEALTH. (Source: Highlight HEALTH) Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=971604 Tue, 23 Oct 2007 13:45:54 +0100 971604 http://www.medworm.com/index.php?rid=966604&cid=t_153075_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHealth%2F%7E3%2F163733864%2F This article was published on Highlight HEALTH. (Source: Highlight HEALTH) Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=966604 Mon, 01 Oct 2007 14:34:05 +0100 966604