MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'e patients'. Sat, 03 Sep 2011 02:05:37 +0100 http://www.medworm.com/index.php?rid=4872089&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthree-good-reasons-for-healthcare-professionals-to-use-social-networks%2F2011.05.27 Social networking allows doctors, nurses and other health professionals to deeply connect and engage with the community and their colleagues. “We are standing at the precipice of a new online revolution in health care. As more and more health experts embrace the Internet and increase their social media activity, health information seekers will undoubtedly benefit in profound ways.” [Source: Mashable] Dynamic health and medical professionals engaged in social networking, using Twitter, Facebook, Blogs and YouTube are on the front-line of new modern medicine. Today’s modern medicine is all about the patient.  Participating, partnering and developing a professional relationship is paramount. While many health consumers are searching the web for support, reassurance and specific health ... Better Health blogs http://www.medworm.com/rss/comments.php?id=4872089 Fri, 27 May 2011 21:00:03 +0100 4872089 http://www.medworm.com/index.php?rid=4575059&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fhow-e-patients-find-answers-and-each-other-online%2F2011.03.11 [Recently] NPR’s popular program “Talk of the Nation” covered something we discuss often: How e-patients find information and find each other online. Featured guests were Pat Furlong, mother of two boys with a rare disease who started an online community, and Susannah Fox of the Pew Internet and American Life Project, a frequent contributor here. The audio is here. It’s a good combination: Pat speaks from the heart about her own experience and her passion for community, and Susannah, as usual, speaks as an “internet geologist” — as she once put it, “A geologist doesn’t have opinions about the rocks, she just observes and describes them.” Susannah spoke about her newly-released report “Peer-To-Peer Healthcare,” about which she recently wrote here. L... Better Health blogs http://www.medworm.com/rss/comments.php?id=4575059 Fri, 11 Mar 2011 14:00:52 +0100 4575059 http://www.medworm.com/index.php?rid=4532207&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fyou-are-the-biggest-wasted-resource-in-health-care%2F2011.03.01 ABCNews.com has posted a great new piece by Dr. Roni Zeiger entitled, “The Biggest Wasted Resource in Health Care? You.” Subtitle: “How Your Internet Research Can Help Your Relationship With Your Doctor.” It’s well reasoned and clearly written, and continues the trend we cited a month ago, when Time posted Dr. Zack Meisel’s article saying that patients who Google can help doctors. Related notes: – Dr. Zeiger’s article title parallels what Dr. Charles Safran told the House Ways & Means Subcommittee on Health in 2004: Patients are “the most under-utilitized resource.” He was talking about health IT, quoting his colleague Dr. Warner Slack, who had said it many years earlier. I often quote it in my speeches for the Society for Participatory Medicine, assert... Better Health blogs http://www.medworm.com/rss/comments.php?id=4532207 Tue, 01 Mar 2011 16:00:16 +0100 4532207 http://www.medworm.com/index.php?rid=4424233&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fe-patient-goes-mainstream%2F2011.02.01 I have a Google alert for “e-patient,” and sometimes I’m surprised what it catches. [Recently] it was this: 3 Reasons Steve Jobs Will Be The Ultimate e-Patient Steve Jobs’ medical leave sets the stage for the upcoming revolution in the production and delivery of medical information at time of diagnosis. 3 things you need to know. So I’m thinking: “Oh, wow: Is the term ‘e-patient’ going mainstream?” That would be a hoot, because indeed the Society for Participatory Medicine is engaged in spreading the word. *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=4424233 Tue, 01 Feb 2011 22:00:04 +0100 4424233 http://www.medworm.com/index.php?rid=4382762&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Frealistic-medicine-the-kind-of-thinking-to-look-for%2F2011.01.21 There are several stages in becoming an empowered, engaged, activated patient — a capable, responsible partner in getting good care for yourself, your family, whoever you’re caring for. One ingredient is to know what to expect, so you can tell when things seem right and when they don’t. Researching a project today, I came across an article* published in 2006: ”Key Learning from the Dana-Farber Cancer Institute’s 10-Year Patient Safety Journey.” This table shows the attitude you’ll find in an organization that has realized the challenges of medicine and is dealing with them realistically: “Errors are everywhere.” “Great care in a high-risk environment.” What kind of attitude is that? It’s accurate. This work began after the death of Boston Globe healt... Better Health blogs http://www.medworm.com/rss/comments.php?id=4382762 Fri, 21 Jan 2011 22:00:29 +0100 4382762 http://www.medworm.com/index.php?rid=4355717&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fmedical-errors-should-doctors-always-fess-up%2F2011.01.16 From the Medscape Medical Ethics article entitled “‘Some Worms Are Best Left In The Can’: Should You Hide Medical Errors?“: Consequences aside, from a strictly ethical perspective, if a patient doesn’t realize that his physician made a mistake, should the physician fess up? Before you jump to conclusions (as I did), look at the article’s three parts. It’s about a survey. The title is on the inflammatory side; the article is a window into physicians’ views. The introduction continues: Evidence of the complex prisms through which physicians view these issues was apparent in the replies to four questions asked in Medscape’s exclusive ethics survey. More than 10,000 physicians responded to the survey in 2010. Subheads: – Mistakes that don’t harm p... Better Health blogs http://www.medworm.com/rss/comments.php?id=4355717 Sun, 16 Jan 2011 20:00:12 +0100 4355717 http://www.medworm.com/index.php?rid=4331016&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Ffirst-report-from-the-society-of-participatory-medicines-newly-appointed-public-policy-committee-chair-david-harlow%2F2011.01.10 In December, the Society for Participatory Medicine’s executive committee appointed health law attorney David Harlow to represent the Society in public policy matters. Regular readers of HealthBlawg::David Harlow’s Health Care Law Blog know what a patient-centered, participatory thinker David is. This is his first report. I am delighted to offer my first report as Public Policy Committee Chair for the Society of Participatory Medicine. I encourage all of you who are not yet Society members to join, and I encourage new and old members to consider volunteering to help with the wide range of public policy issues facing us today. Over the past couple of months, the Public Policy Committee has gotten its sea legs. We are beginning to add the Society’s voice to the national discourse on p... Better Health blogs http://www.medworm.com/rss/comments.php?id=4331016 Mon, 10 Jan 2011 14:00:15 +0100 4331016 http://www.medworm.com/index.php?rid=4302124&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fpractice-variation-essential-to-e-patient-awareness%2F2010.12.31 This is the first of the follow-up posts I hope to write from participating in the Salzburg Global Seminar titled “The Greatest Untapped Resource in Healthcare? Informing and Involving Patients in Decisions about Their Medical Care.” One of our purposes on this site is to help people develop e-patient skills, so they can be more effectively engaged in their care. One aspect is shared decision making, which we wrote about in September. A related topic, from August, is understanding the challenges of pathology and diagnosis. Both posts teach about being better informed partners for our healthcare professionals. I’ve recently learned of an another topic, which I’m sure many of you know: Practice variation. This is a big subject, and I’ll have several posts about it. It’s complex, ... Better Health blogs http://www.medworm.com/rss/comments.php?id=4302124 Fri, 31 Dec 2010 18:00:02 +0100 4302124 http://www.medworm.com/index.php?rid=4298620&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fabout-patient-autonomy%2F2010.12.29 Recently, I was involved in a discussion on an email list serve and decided to takes some of my comments on patient autonomy and blog about them. This arose following a debate about whether the term “patient” engendered a sense of passivity and, therefore, whether the term should be dropped in favor of something else, like “client” or something similar. Having participated in the preparation and dissemination of the white paper on e-patients, I don’t see the need for “factions” or disagreements in the service of advancing Participatory Medicine. As Alan Greene aptly stated: “This is a big tent, with room for all.” I want all of my patients to be as autonomous as possible. In my view, their autonomy is independent of the doctor-patient r... Better Health blogs http://www.medworm.com/rss/comments.php?id=4298620 Wed, 29 Dec 2010 22:00:00 +0100 4298620 http://www.medworm.com/index.php?rid=4277832&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fchronic-illness-and-%25e2%2580%259cthe-spoon-theory%25e2%2580%259d%2F2010.12.21 If you don’t truly understand how draining it can be to live with chronic illness, including chronic pain, go read The Spoon Theory right now. In five minutes it forever changed my own awareness of my wife’s arthritis and bone pain. On Twitter I saw “spoonies” raving about this months ago, but I finally took time to read it: 2,100 words and worth every second. Also, on Twitter follow @bydls – “But you don’t look sick!” – and explore their smart website, where they’re wisely selling posters of the story for doctors’ waiting rooms, and everything else imaginable in modern outreach through social media. These are smart people, and this is a powerful piece of writing. *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=4277832 Tue, 21 Dec 2010 20:00:16 +0100 4277832 http://www.medworm.com/index.php?rid=4230157&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fpatient-centered-outcomes-research-will-patients-be-involved%2F2010.12.05 A year ago Gangadhar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant issue through empowered, engaged research. As today’s guest post shows, he’s now actively engaged in thinking about healthcare at the level of national policy, as well – and he calls for all patients to speak up about this new issue. – Dave I recently came across a Pauline Chen piece in the New York Times, “Listening to Patients Living With Illness.” It refers to a paper by Dr. Wu et al, ”Adding The Patient Perspective To Comparative Effectiveness Research.” According to the paper and the NY Times article, Dr. Wu and his co-authors propose: Making patient-reported outcomes a more routine part of clinical studi... Better Health blogs http://www.medworm.com/rss/comments.php?id=4230157 Sun, 05 Dec 2010 19:00:34 +0100 4230157 http://www.medworm.com/index.php?rid=4197362&cid=t_209216_150_f&fid=35777&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FPharmalot%2F%7E3%2FU2jO9cXPUTo%2F The US Federal Trade Commission is being asked by four consumer and privacy watchdog groups to investigate what they describe as allegedly “unfair and deceptive advertising practices” that consumers confront when they attempt to gather health info online. The move comes as the FDA grapples with formulating rules for how the pharmaceutical industry can adopt social media. “Health consumers are being told that by using digital media services they have become empowered ‘e-patients,’ but they are not being informed about the privacy and potential health risks connected with the use of digital marketing of pharmaceuticals and health products,” according to the 144-page complaint filed today with the FTC by the Center for Digital Democracy, US PIRG, Consumer ... Pharmalot blogs http://www.medworm.com/rss/comments.php?id=4197362 Tue, 23 Nov 2010 18:20:17 +0100 4197362 http://www.medworm.com/index.php?rid=4172061&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Famia-board-%25e2%2580%259chold-harmless%25e2%2580%259d-clause-in-emr-contracts-is-unethical%2F2010.11.16 Last Friday the board of the American Medical Informatics Association (AMIA) published a position paper in its journal saying that the “hold harmless” clause is unethical. One of the paper’s authors is Dr. Danny Sands, currently President of the Society for Participatory Medicine. I hope to write more about it this week, after attending the AMIA conference in DC, but here’s the basic issue: – For ages, makers of electronic medical record systems (EMR) have insisted on a “hold harmless” clause in the contracts a system buyer must sign. It says, in essence, that if any harm comes to anyone because of a system problem, the buyer (the hospital) will hold the manufacturer harmless. – In other words, if anything goes wrong with the system and someone gets hurt, it’s not... Better Health blogs http://www.medworm.com/rss/comments.php?id=4172061 Tue, 16 Nov 2010 15:00:17 +0100 4172061 http://www.medworm.com/index.php?rid=4105668&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-lies-of-medical-science-whats-an-e-patient-to-do%2F2010.10.25 There’s an extraordinary new article in The Atlantic entitled “Lies, Damned Lies, and Medical Science.” It echos an excellent article in our Journal of Participatory Medicine (JoPM) a year ago by Richard W. Smith, 25-year editor of the British Medical Journal, entitled ”In Search Of an Optimal Peer Review System.” JoPM, Oct 21, 2009: “….most of what appears in peer-reviewed journals is scientifically weak.” The Atlantic, Oct. 16, 2010: “Much of what medical researchers conclude in their studies is misleading, exaggerated, or flat-out wrong.” JoPM 2009: “Yet peer review remains sacred, worshiped by scientists and central to the processes of science — awarding grants, publishing, and dishing out prizes.” The Atlantic 2010: “So why are doctors — to... Better Health blogs http://www.medworm.com/rss/comments.php?id=4105668 Mon, 25 Oct 2010 16:00:09 +0100 4105668 http://www.medworm.com/index.php?rid=3998987&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fdeceptive-health-websites-are-all-too-plentiful%2F2010.09.24 By Lisa Neal Gualtieri. (Her earlier much-commented post on this subject is here.) The Boston Globe reported this month on the sentencing of a former US Airways Express pilot, Stephen Sharp, “for selling a powdered drink mix over the Internet that he claimed was ‘100 percent’ effective in helping drug-using truck drivers, pilots, and train engineers pass federally mandated drug tests.” The ungrammatically-named “yourintheclear.com” no longer seems to exist. Mindful of ongoing debate by Gilles Frydman and others about indicators of health website credibility, I searched for other sites selling similar products (there is no shortage) and looked on sites like Craigslist where people post questions about how to pass drug tests and how to detoxify. Based on a quick perusal, I found ... Better Health blogs http://www.medworm.com/rss/comments.php?id=3998987 Fri, 24 Sep 2010 18:00:42 +0100 3998987 http://www.medworm.com/index.php?rid=3980830&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2F3-things-that-make-a-better-doctor%2F2010.09.17 On Monday, NPR’s Scott Hensley posted: “Between the Internet and all the data insurance companies and the government collect on doctors, you’d think it would be a lot easier than it used to be to find a good one. But it’s not.” Sound familiar around here? See his thoughts: “3 Tips For Picking A Slightly Better Doctor.” (Thanks to friend Cindy Johnson for the tip.) *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=3980830 Fri, 17 Sep 2010 17:00:10 +0100 3980830 http://www.medworm.com/index.php?rid=3957915&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fdealing-with-medical-error-together%2F2010.09.10 The “Running A Hospital” blog has another discussion of dealing with medical error. This time, the hospital has opened up an error of its own (a “wrong side” surgery) for examination by the Open School of the Institute for Healthcare Improvement (IHI). Sample comments: – From IHI’s Jim Conway: “Our systems are too complex to expect merely extraordinary people to perform perfectly 100 percent of the time. We as leaders must put in place systems that support great practice by people who suffer from being human and will make mistakes.” – From a patient who had two surgical errors in ten months: “After years of suffering through our incredibly brutal tort(ure) system I finally had the chance to talk to the surgeon. The most meaningful words he spoke ... Better Health blogs http://www.medworm.com/rss/comments.php?id=3957915 Fri, 10 Sep 2010 16:00:01 +0100 3957915 http://www.medworm.com/index.php?rid=3920839&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fpatient-safety-%25e2%2580%259care-you-safe%25e2%2580%259d-awareness-video%2F2010.08.31 Today [Aug 28] I’m participating in the workshop “Engaging Minority Communities in Safer Healthcare” organized by MITSS (Medically Induced Trauma Support Services), a Boston non-profit I’ve written about before. The current speaker is Lisa O’Connor, VP of Nursing at Boston Medical Center. She just showed this four-minute safety awareness video, produced by Quantros. Much of its content will be familiar to our readers here (the frequency of medical errors and hospital acquired infections), but I’m posting it because of its good, concrete, specific actions every patient should know. The part with specific actions for patients starts around 2:30. (My highlights are below.) (more…) *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=3920839 Tue, 31 Aug 2010 20:00:51 +0100 3920839 http://www.medworm.com/index.php?rid=3885342&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fmedical-self-care-and-the-doc-tom-interview%2F2010.08.19 Next in our series of posts about our founder Doc Tom. Previous time capsules: 1980 and 1985. Come, ye economics buffs and algebra fans: Get out your pencils and solve for x, n, and XX: Whatever else the year 19XX is remembered for, it will — without a doubt — go down in history as a record year for medical expenses here in the United States. All indications are that before the calendar year is out, Americans will have spent $x (n% of the Gross National Product) on drugs, X-rays, surgery, physicians’ fees, laboratory tests, hospital overhead, health insurance, etc. That’s up from the [$0.3x] ([.7n%] of GNP) just 13 years ago. Clearly, the medical establishment has become a threat to the average American’s budget (if not his health). Ready? That was…1978. Check the tiny numb... Better Health blogs http://www.medworm.com/rss/comments.php?id=3885342 Thu, 19 Aug 2010 23:00:15 +0100 3885342 http://www.medworm.com/index.php?rid=3865266&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fa-story-of-online-care-without-opennotes%2F2010.08.13 Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio. This item has nothing to do with OpenNotes itself –- it’s what I’m seeing now that I’ve started accessing my doctor’s notes. In short, I see the clinical impact of not viewing my record as a shared working document. Here’s the story.  ______ In OpenNotes, patient participants can see the visit notes their primary physicians entered. Note “primary,” not specialists. I imagine they needed to keep the study design simple. So here I am in the study, going through life. Five weeks ago I wrote my first realization: After the visit I’d forgotten something, so I logged in. (more…) *This blog post was originally published at e-... Better Health blogs http://www.medworm.com/rss/comments.php?id=3865266 Fri, 13 Aug 2010 16:00:13 +0100 3865266 http://www.medworm.com/index.php?rid=3763052&cid=t_209216_147_f&fid=39202&url=http%3A%2F%2Fnicolaziady.wordpress.com%2F2010%2F07%2F17%2Freview-of-us-healthcare-consumer-landscape%2F 60% of e-patients engage with social media Review of our emerging e-patient landscape :: 61% of total population – 83% of online population 64% of women; 57% of men 65% of whites; 51% blacks; 44% Hispanics 72% of 18-29-year-olds 71% of 30-49-year-olds 59% of 50-64-year-olds 27% of those 65 and older are e-patients Emerging e-patient activities :: 47% of adults have used the internet  to get information about doctors or other health professionals 41% have read someone else’s commentary or experience about health or medical issues on an online news group or blog 38% have gotten information about hospitals 33% have gotten information about how to lose or control their weight 27% have gotten information about health insurance 24% have consulted rankings or reviews online of... Nicola Ziady blogs http://www.medworm.com/rss/comments.php?id=3763052 Sun, 18 Jul 2010 00:12:35 +0100 3763052 http://www.medworm.com/index.php?rid=3750010&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F07%2Fmeaningful-use-and-cats-dogs.html By Matthew Holt More than a year or so of squabbling is (sort of) over and today HHS announced its criteria for the first phase of meaningful use. Essentially the 25 criteria for qualifying for “meaningful use” (in other words... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3750010 Mon, 12 Jul 2010 23:00:00 +0100 3750010 http://www.medworm.com/index.php?rid=3641021&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2F4-reasons-why-doctors-dont-use-linkedin%2F2010.06.08 Where are the doctors on LinkedIn? If you spend any time there, you’ll find that we are few and far between. Sure, there are the entrepreneurs, the physician executives, and the social wonks, but not many practicing physicians. Why not?   1. Physicians are hyperlocal. Most MDs live and work in relatively small, geographically defined locations. Their success is sustained through word of mouth and the cultivation of a limited number of personal relationships. The average practicing physician has no need to sell himself beyond his local market. The depth of their bio is irrelevant to their local success. 2. Physicians are static. Once established, physicians aren’t likely to pick up and move as other professionals might need to do. Many physicians spend their careers in a coupl... Better Health blogs http://www.medworm.com/rss/comments.php?id=3641021 Tue, 08 Jun 2010 12:00:46 +0100 3641021 http://www.medworm.com/index.php?rid=3621681&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fhealth-journalism-gems-you-shouldnt-miss%2F2010.06.02 A couple of health journalism gems you shouldn’t miss just because they were published over the holiday weekend: Natasha Singer of the New York Times had an important piece, “When Patients Meet Online, Are There Side Effects?,” about privacy concerns when social networking sites like CureTogether.com and PatientsLikeMe.com offer online communities for patients and collect members’ health data for research purposes. John Fauber of the Milwaukee Journal-Sentinel published another in his “Side Effects” series on conflicts of interest in healthcare. This one was about doctors vouching for the drug Multaq for treating atrial fibrillation without ever having seen all of the data. The Minneapolis Star Tribune began a “Too Much Medicine” series. Heal... Better Health blogs http://www.medworm.com/rss/comments.php?id=3621681 Wed, 02 Jun 2010 14:00:47 +0100 3621681 http://www.medworm.com/index.php?rid=3621620&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F06%2Fhealth-20-webinar-with-david-hale-ted-eytan-regina-holliday-marco-smit.html By Matthew Holt Tuesday's Health 2.0 Show with Indu & Matthew was (IMHO) the best we’ve done so far. For those of you who missed it, we had David Hale demoing talking about Pillbox—fascinating. Then Ted Eytan and Patient activist... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3621620 Tue, 01 Jun 2010 23:00:00 +0100 3621620 http://www.medworm.com/index.php?rid=3621686&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fsocial-health-and-patient-empowerment-are-we-in-a-bubble%2F2010.06.01 I regularly talk to my patients’ parents about social health. What parents do, what they think, and how they socially experience their child’s health problems has become an interest of mine. I can hear it now: “Of course patients won’t discuss their social health activities with you, you’re a doctor.” Perhaps, but I don’t think so. Actually, I’ve had some very interesting open dialog with a few of my long-term patient-parents. Many have children suffering with chronic diseases such as Crohn’s disease, eosinophilic enteropathy, and the like. The relationships I cultivate are open, and the nature of my dialog has been just as consistently open as other aspects of our relationship. Interestingly, while nearly all have used online search to understand their disease, mos... Better Health blogs http://www.medworm.com/rss/comments.php?id=3621686 Tue, 01 Jun 2010 16:00:21 +0100 3621686 http://www.medworm.com/index.php?rid=3610305&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F05%2Fregina-holiday-here-today-on-the-health-20-show-tuesday.html By Matthew Holt As we get closer to Health 2.0 Goes to Washington on June 7 (Monday) we'll be ramping up coverage of all kinds of things, and one is a big chance for you all to get to know... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3610305 Thu, 27 May 2010 23:00:00 +0100 3610305 http://www.medworm.com/index.php?rid=3563964&cid=t_209216_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-value-of-social-media-for-patients-doctors-and-nurses%2F2010.05.13 A patient apologized to me for asking so many questions. “There’s no need to apologize,” I said to the patient, “It’s wonderful that you have so many questions concerning your healthcare.” I mentioned to her that she is an “empowered and engaged patient,” and that’s a good thing. It’s no secret that health consumers are turning to the Internet for health information. In a recent article from MediaPost News, Gavin O’Malley writes that, according to new a study by Epsilon Strategic & Analytic Consulting Group, “40% of online consumers use social media for health information — reading or posting content — while the frequency of engagement varies widely. According to the study, individuals who use healthcare social media fall into two br... Better Health blogs http://www.medworm.com/rss/comments.php?id=3563964 Thu, 13 May 2010 16:00:53 +0100 3563964 http://www.medworm.com/index.php?rid=3556032&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F05%2Fthe-practical-consumer-vs-the-impratical-deb-peel.html By Matthew Holt So it’s time for a little rant about everyone’s favorite privacy advocate, and the way she gets treated in the press—including by people who should know better (yes, I mean you, Inga at HERTalk, even though I... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3556032 Tue, 11 May 2010 23:00:00 +0100 3556032 http://www.medworm.com/index.php?rid=3471732&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F04%2Fimportant-input-on-conusmer-meaningful-use-wanted-apr-20.html By Matthew Holt Josh Seidman, now running the meaningful use program at ONC, but formerly of the Center for Ix Therapy writes with an important request: The Meaningful Use Workgroup of the Health IT Policy/federal advisory committee that advises ONC)... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3471732 Wed, 14 Apr 2010 23:00:00 +0100 3471732 http://www.medworm.com/index.php?rid=3302274&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F02%2Fbentley-stanton-two-uk-docs-talk-about-health-20.html By Matthew Holt Last week in London I met with two of the brightest lights in the UK's community of physicians looking at Health 2.0. Annabel Bentley is the medical director and head of informatics at Bupa, the UK-based non-profit... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3302274 Wed, 24 Feb 2010 00:00:00 +0100 3302274 http://www.medworm.com/index.php?rid=3208309&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F01%2Facor-health-20-in-the-us-europe-gilles-frydman-tells-all.html By Matthew Holt Gilles Frydman is one of the leading ePatients. He started and runs ACOR (Association of Cancer Online Resources) and has discussed the role of engaged patients with rare diseases at the last few Health 2.0 Conferences. We'll... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3208309 Tue, 26 Jan 2010 00:00:00 +0100 3208309 http://www.medworm.com/index.php?rid=3139006&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2010%2F01%2Fthe-five-things-to-pay-attention-to-in-2010.html By Matthew Holt There’s no doubt that despite my thoughts that Obama wouldn’t (and shouldn’t) have pushed health reform in 2009, it was a very big year for health care. Death panels, public options et al—one hundred thousand visits to... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=3139006 Mon, 04 Jan 2010 00:00:00 +0100 3139006 http://www.medworm.com/index.php?rid=3075714&cid=t_209216_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F12%2Fthe-fda-and-social-media.html Many of you know that the FDA held public hearings on the pharma industry’s use of Social Media mid-last-month.  There was much excitement going into this because to date, the FDA has pretty much dodged the subject, and left drugmakers in fear of retribution (see BusinessWeek’s summary here). Essentially, since there are no clear rules laid [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3075714 Thu, 10 Dec 2009 13:00:02 +0100 3075714 http://www.medworm.com/index.php?rid=2984751&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F11%2Fregina-hollidays-mural-for-fred.html By Matthew Holt Regina’s story has been on THCB before—Fred’s Life & Death at 73 cents a page. But you may not have seen the mural. (From NPR) (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2984751 Thu, 12 Nov 2009 00:00:00 +0100 2984751 http://www.medworm.com/index.php?rid=2984749&cid=t_209216_86_f&fid=38272&url=http%3A%2F%2Flaikaspoetnik.wordpress.com%2F2009%2F11%2F11%2Frole-of-consumer-networks-in-evidence-based-health-information%2F Guest author: Janet Wale member of the Cochrane Consumer Network People are still struggling with evidence or modern medicine – clinicians, patients, health consumers, carers and the public alike. Part of this is because we always thought medicine was based on quality research, or evidence. It is not only that. For evidence to [...] (Source: Laika's MedLibLog) Laika's MedLibLog blogs http://www.medworm.com/rss/comments.php?id=2984749 Wed, 11 Nov 2009 22:44:31 +0100 2984749 http://www.medworm.com/index.php?rid=2924792&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F10%2Fregina-holliday-freds-life-death-at-73-cents-a-page.html By Matthew Holt If you ever wonder why the efforts to make it easier for patients and families to get information and be treated as equals in their care by the medical care system matter.... If you need convincing that... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2924792 Sat, 24 Oct 2009 00:00:00 +0100 2924792 http://www.medworm.com/index.php?rid=2923226&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F10%2Fhealth-20-tools-or-the-power-of-twitter.html By Matthew Holt The power of Twitter is real kids, and not for what you think. Used properly Twitter is an information filter. Exhibit A is what happened to the Von Schwebers who run PHARMASurveyor. They were a huge part... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2923226 Thu, 22 Oct 2009 23:00:00 +0100 2923226 http://www.medworm.com/index.php?rid=2899041&cid=t_209216_113_f&fid=38236&url=http%3A%2F%2Fwww.healthcareitnews.com%2Fblog%2Femergence-e-patients Fresh on the heels of the Health 2.0 conference in San Francisco, a renewed spotlight is shining on empowered “e-patients.” The convention was a showcase for a myriad of online and mobile tools which enable patients to engage in their health and their lives in ways not previously feasible. (Source: Healthcare IT News Blog) Healthcare IT News Blog blogs http://www.medworm.com/rss/comments.php?id=2899041 Fri, 16 Oct 2009 14:56:48 +0100 2899041 http://www.medworm.com/index.php?rid=2882992&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F10%2Fwhy-standards-matter-1-the-true-meaning-of-interoperability.html By DAVID C. KIBBE and BRIAN KLEPPER Americans are generally skeptical of words that otherwise intelligent and articulate people can't pronounce. "Interoperability," like nu-cu-lar, is one of these. After a while, these words can take on a mystique all their... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2882992 Sun, 04 Oct 2009 23:00:00 +0100 2882992 http://www.medworm.com/index.php?rid=2510465&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F06%2Fa-dream-of-reason.html By BRIAN KLEPPER and DAVID KIBBE The dream of reason did not take power into account...Modern medicine is one of those extraordinary works of reason...But medicine is also a world of power. -Paul Starr, The Social Transformation of American Medicine,... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2510465 Sun, 21 Jun 2009 23:00:00 +0100 2510465 http://www.medworm.com/index.php?rid=2389742&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F05%2Fan-open-letter-to-the-new-national-coordinator-for-health-it-part-3-certification-as-the-elephant-in.html By DAVID C. KIBBE and BRIAN KLEPPER In the first and second parts of this series we talked about how and why there is no universal definition for the term "EHR." Instead there is a legitimate, growing debate about the... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2389742 Tue, 05 May 2009 04:00:00 +0100 2389742 http://www.medworm.com/index.php?rid=2256115&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F03%2Fhealth-affairs-is-all-about-it.html By Matthew Holt Most of the Health care geek squad is in DC as I write, at a press conference conducted by Health Affairs which has an entire issue out today about IT in health care. Here’s the table of... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2256115 Tue, 10 Mar 2009 04:00:00 +0100 2256115 http://www.medworm.com/index.php?rid=2240411&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F03%2Fgoogle-health-sharing--simple-but-potentially-important.html By Matthew Holt Today late afternoon PST Google flipped the switch on an important change/add to Google Health. Recently they’ve been adding more and more little features, such as printing & graphing, and in the last month getting CVS retail... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2240411 Wed, 04 Mar 2009 05:00:00 +0100 2240411 http://www.medworm.com/index.php?rid=2092426&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2009%2F01%2Fshould-the-fda.html By Matthew Holt Over at DiabetesMine #1 health blogger Amy Tenderich has very important post. She and several fellow travelers are appealing to the FDA to strike a balance between safety and progress in allowing new diabetes treatments. The FDA... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2092426 Fri, 09 Jan 2009 05:00:00 +0100 2092426 http://www.medworm.com/index.php?rid=2046304&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F12%2Fepatient-dave-h.html By Matthew Holt One of the most remarkable people I’ve met this year is Dave deBronkart, better known as ePatient Dave (fourth from left on top of the e-Patients.net blog). Dave has had a remarkable recovery from cancer and has... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2046304 Thu, 18 Dec 2008 05:00:00 +0100 2046304 http://www.medworm.com/index.php?rid=2005299&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F12%2Ffact-or-fiction.html Note by Brian Klepper: Today the actuarial consulting firm Milliman is convening a town hall meeting in Seattle focused generally on health care reform, but specifically on Electronic Health Records (EHRs). The larger Seattle metropolitan area is a hotbed of... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=2005299 Mon, 01 Dec 2008 05:00:00 +0100 2005299 http://www.medworm.com/index.php?rid=1951428&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F11%2Fhealth-20s-impa.html By Gilles Frydman For too many years, I've witnessed the same thing. First, it was in the ACOR system. Then it occurred in many conferences about eHealth, e-Patients, and now Health 2.0 and the Connected Health symposium at Harvard Medical... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1951428 Tue, 11 Nov 2008 05:00:00 +0100 1951428 http://www.medworm.com/index.php?rid=1927799&cid=t_209216_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2008%2F11%2F02%2Fhow-well-do-psychiatrists-involve-patients%2F Not very, according to recently published research. Goss and her colleagues (2008) wanted to test how much psychiatrists involve patients in therapeutic decisions and to determine whether there were any defining characteristics (on either the patient’s or the psychiatrist’s part) that contributed to patient involvement. What’s so great about patient involvement? Well, previous research has shown that the more involved a patient is in the decision-making of their treatment, generally the better the outcomes for the patient. They tend to feel more better, sooner, than patients who are uninvolved in the process. Patients who are involved also report higher satisfaction rates with treatment. This is a small study of only 16 Italian psychiatrists, but the researchers exami... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=1927799 Sun, 02 Nov 2008 12:16:55 +0100 1927799 http://www.medworm.com/index.php?rid=1911335&cid=t_209216_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2008%2F10%2F27%2Fis-american-healthcare-in-a-bubble%2F Over at e-Patients.net, my colleague Alan Greene (who, with his wife Cheryl, runs the fantastic parenting and child resource site, DrGreene.com) writes an entry based upon a talk he gave at the second Health 2.0 conference in San Francisco this past week. (Health 2.0 is a conference that ostensibly seeks to help encourage the conversation amongst people seeking to help empower patients with their health care.) Dr. Greene believes that change is coming in the American health care system, which is currently in a bubble, because the current system is simply unsustainable: At one time, the dot.com bubble of the new economy and the more recent housing bubble looked to many like they would go up forever. The banking bubble grew in the marbled halls of century-old firms. But what looked so so... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=1911335 Mon, 27 Oct 2008 13:46:09 +0100 1911335 http://www.medworm.com/index.php?rid=1875791&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F10%2Fmicrosoft-healt.html By Amy Tenderich This post appeared originally on DiabetesMine. When Microsoft launched its HealthVault application last year — the first major commercial Personal Health Record (PHR) system on the open web — the Wall Street Journal reported that “Consumers are... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1875791 Wed, 15 Oct 2008 04:00:00 +0100 1875791 http://www.medworm.com/index.php?rid=1844436&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F10%2Fmatthew-gets-th.html By THCB Staff A New York times special section today includes a story about going online for health information. John Schwartz quotes all of our favorites, including Susannah Fox, Clay Shirky, Benjamin Heywood of Patients Like Me, Trusera and ACOR.... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1844436 Wed, 01 Oct 2008 04:00:00 +0100 1844436 http://www.medworm.com/index.php?rid=1791549&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F09%2Fthe-health-sear.html By Jane Sarasohn-Kahn Over the past couple of weeks, the eHealth world learned that RevolutionHealth engaged Morgan Stanley, the investment bank, to help assess the company's 'alternatives.' The early talk was to raise capital, but the tenor seems to have... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1791549 Mon, 15 Sep 2008 04:00:00 +0100 1791549 http://www.medworm.com/index.php?rid=1763800&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F09%2Fan-internationa.html By Neil Versel I'm here at the Medicine 2.0 Congress, a very international meeting put on by Dr. Gunther Eysenbach of the Centre for Global eHealth Innovation, a project of the University Health Network and the University of Toronto. The... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1763800 Fri, 05 Sep 2008 04:00:00 +0100 1763800 http://www.medworm.com/index.php?rid=1759696&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F09%2Fadam-bosworth-s.html By Matthew Holt After a long period of time I’ve finally wrestled Adam Bosworth to the floor and forced the microphone to his mouth. Adam of course is the software guru (he’s one of the originators of XML) who went... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1759696 Wed, 03 Sep 2008 04:00:00 +0100 1759696 http://www.medworm.com/index.php?rid=1749964&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F09%2Fkeep-tabs-on-yo.html By Susannah Fox Is it "disordered" behavior to Google your doctor? An article in JAMA suggests that doctors should be on their guard. The Journal of the American Medical Association recently published an article about how doctors should be aware... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1749964 Mon, 01 Sep 2008 04:00:00 +0100 1749964 http://www.medworm.com/index.php?rid=1723308&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fwhod-be-a-polls.html By Matthew Holt HSC says that the number of Americans going online for healthcare goes way up: In 2007, 56 percent of American adults—more than 122 million people—sought information about a personal health concern from a source other than their... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1723308 Fri, 22 Aug 2008 04:00:00 +0100 1723308 http://www.medworm.com/index.php?rid=1720218&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fpersonal-geneti.html By Sarah Arnquist Two direct-to-consumer genetic testing firms, 23andMe and Navigenics gained approval from California regulators this week to continue providing clients access to and interpretations of their personal DNA. The NY Times reports this morning that, "The licenses, granted... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1720218 Wed, 20 Aug 2008 04:00:00 +0100 1720218 http://www.medworm.com/index.php?rid=1716914&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fhealth-it-polic.html By Matthew Holt Some fur is flying in the rarefied world of health IT policy geeks this morning. Health Affairs has three articles. The first from Markle’s Carol Diamond, writing with Here Comes Everybody author and Internet guru Clay Shirky,... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1716914 Tue, 19 Aug 2008 04:00:00 +0100 1716914 http://www.medworm.com/index.php?rid=1711702&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fadam-bosworth-s.html After a long period of time I’ve finally wrestled Adam Bosworth to the floor and forced the microphone to his mouth. Adam of course is the software guru (he’s one of the originators of XML) who went to Google to... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1711702 Mon, 18 Aug 2008 04:00:00 +0100 1711702 http://www.medworm.com/index.php?rid=1704598&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fhello-health-op.html By Matthew Holt Hello Health, the clinic that Jay Parkinson has been promoting for a while, is open for business. If all the patients are as happy as the first patient, success is assured! The deal is that they’ve gone... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1704598 Wed, 13 Aug 2008 04:00:00 +0100 1704598 http://www.medworm.com/index.php?rid=1688853&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fviagra-prescrib.html By Matthew Holt Really? Can this be true? Well so says a bunch of academics writing in the Mayo Clinic’s journal. They looked at records of questionnaires taken and prescribing decisions made by a licensed, regulated online pharmacy called KwikMed... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1688853 Fri, 08 Aug 2008 04:00:00 +0100 1688853 http://www.medworm.com/index.php?rid=1686045&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2F75-percent-of-i.html By Susannah Fox The Pew Internet Project released the latest estimate for the e-patient population: 75 percent of internet users. Here are some details from the survey. My colleagues recently updated our top three trend charts: Who's Online, Internet Activities,... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1686045 Thu, 07 Aug 2008 04:00:00 +0100 1686045 http://www.medworm.com/index.php?rid=1674663&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F08%2Fcollabrx-hopes.html By Sarah Arnquist Harnessing the collective power of patients needing new treatments and therapies to speed up and lessen the cost of the development process drives a new venture called CollabRX. Jay M. Tenenbaum, Collab RX founder, learned he had... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1674663 Fri, 01 Aug 2008 04:00:00 +0100 1674663 http://www.medworm.com/index.php?rid=1665190&cid=t_209216_118_f&fid=36984&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHealthManagementRx%2F%7E3%2F349609829%2Ftake-look-at-whats-possible-when-youre.html This is what it's like to be an e-patient, uncut.Click here to see the latest in Maarten's "Patient 2.0 Journey," including a video interview.Maarten also shares scans showing Theo (his tumor) has shrunk 50% after the second round of chemo (Yeehaw and giddyup little doggy!), and in we find Mr. Maarten and family also has a snazzy new lime green swimming pool.Maarten, one question - when's the e-patient pool party? :) Do you have to be bald to get in? (I'm not beyond it, but don't think it would be as flattering a look for me...best of luck with going in for your next round! (Source: Health Management Rx) Health Management Rx blogs http://www.medworm.com/rss/comments.php?id=1665190 Tue, 29 Jul 2008 16:32:00 +0100 1665190 http://www.medworm.com/index.php?rid=1652188&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F07%2Fmedicine-meet-1.html By Jane Sarasohn-Kahn There's a new wiki in the health social media town, Medpedia. Among the most popular online sources for health information is Wikipedia. Millions of people search Wikipedia daily for insights into medical conditions, drugs, and procedures. Medpedia... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1652188 Thu, 24 Jul 2008 04:00:00 +0100 1652188 http://www.medworm.com/index.php?rid=1642537&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F07%2Fusing-professio.html By Daniel Hoch Dan Hoch is a neurologist based at Massachusetts General Hospital and an assistant professor at Harvard Medical School. An early developer of online resources for patients, Dan helped found Braintalk. Professional medical societies are not quite like... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1642537 Tue, 22 Jul 2008 04:00:00 +0100 1642537 http://www.medworm.com/index.php?rid=1605754&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F07%2Fhow-patients-ca.html By Susannah Fox What are the social and psychological factors that affect how people are treated -- or even their health outcomes? This question has popped up in my reading and in my work quite a bit this week, and... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1605754 Fri, 11 Jul 2008 04:00:00 +0100 1605754 http://www.medworm.com/index.php?rid=1546521&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F06%2Fparticipatory-m.html By Susannah Fox I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the National Institutes of Health we created a participatory... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1546521 Thu, 26 Jun 2008 04:00:00 +0100 1546521 http://www.medworm.com/index.php?rid=1546520&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F06%2Funiversal-acces.html By Sarah Arnquist Achieving universal Internet access may happen well before we see universal access to health care -- at least if the advocacy group Internet for Everyone has its way. The Mercury News reports that a "broad coalition of... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1546520 Thu, 26 Jun 2008 04:00:00 +0100 1546520 http://www.medworm.com/index.php?rid=1536412&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F06%2Fdiabetes-reload.html By THCB Staff To mark the advancements and ongoing journey in diabetic care, the Health 2.0 site DiabetesMine created this video. The theme, Diabetes Reloaded, stands for "redefining not only the role of technology in managing chronic diseases, but also... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1536412 Sun, 22 Jun 2008 04:00:00 +0100 1536412 http://www.medworm.com/index.php?rid=1507818&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F06%2Fpodcast-with-ma.html By Jen McCabe Gorman Marston Alfred, founder and chief architect of SugarStats.com chatted recently with me about his relatively new, Web-based program that allows diabetics to track their health statistics online. Alfred described SugarStats as a portable PHR specifically for... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1507818 Tue, 10 Jun 2008 04:00:00 +0100 1507818 http://www.medworm.com/index.php?rid=1477746&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F05%2Fanalyzing-the-b.html By John Grohol Two research papers were published this month on the Health 2.0 Web site, PatientsLikeMe. PatientsLikeMe is arguably the only "real" health social network online today, because it allows patients to share actual data that matters with one... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1477746 Fri, 30 May 2008 04:00:00 +0100 1477746 http://www.medworm.com/index.php?rid=1477745&cid=t_209216_87_f&fid=34470&url=http%3A%2F%2Fwww.thehealthcareblog.com%2Fthe_health_care_blog%2F2008%2F05%2Fe-patients-can.html By Susannah Fox By taking advantage of new online health tools, e-patients and health professionals now have the ability to create equal partnerships that enable individuals to be equipped, enabled, empowered and engaged in their health and health care decisions.... (Source: The Health Care Blog) The Health Care Blog blogs http://www.medworm.com/rss/comments.php?id=1477745 Fri, 30 May 2008 04:00:00 +0100 1477745 http://www.medworm.com/index.php?rid=1423657&cid=t_209216_147_f&fid=35750&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHealthCareVox%2F%7E3%2F284739640%2Facors_gilles_frydman_email_rem.html Earlier today, I came across an interesting post on one of my must-read blogs, e-patients.net. John Grohol wrote an interesting review of a report I wrote about recently, The Wisdom of Patients: Health Care Meets Online Social Media.  Grohol calls it a “nice overview of the current state of Health 2.0.”  However, he does feel one of the report’s implications, that “old-style virtual support groups didn't result in ‘practical solutions to chronic health challenges’” is really “off the mark.”  Jane Sarasohn Kahn, the author of the report said: “[i]ncreasing numbers of people are reaching out to others for more than the kind of support they might have found in the CompuServe health interest groups in the 1980s.&nbs... HealthCareVox blogs http://www.medworm.com/rss/comments.php?id=1423657 Tue, 06 May 2008 16:41:58 +0100 1423657 http://www.medworm.com/index.php?rid=1265531&cid=t_209216_107_f&fid=36585&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FHighlightHEALTH%2F%7E3%2F242820657%2F This article was published on Highlight HEALTH. Related articlesBill in Senate to Expand Public Access to Taxpayer-funded Research ScienceCures: Today’s Science, Tomorrow’s CuresElsevier’s Approaches to Public Access of Biomedical and Cancer ResearchHEALTH Highlights - January 14, 2008HEALTH Highlights - June 26th, 2007 (Source: Highlight HEALTH) Highlight HEALTH blogs http://www.medworm.com/rss/comments.php?id=1265531 Thu, 28 Feb 2008 17:07:05 +0100 1265531