MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'epatient dave'. Sat, 03 Sep 2011 02:52:11 +0100 http://www.medworm.com/index.php?rid=4921422&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Ftreatment-success-depends-largely-on-patient-participation%2F2011.06.10 Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about which I’ll be writing soon. (Jessie is founder and president of the excellent Center For Advancing Health.) Jessie’s talk was so good it had me going nuts on Twitter – I couldn’t keep up with all the “tweet-worthy” things that came out of her mouth. Well, I’ve just re-read her text, and it brought back why I went nuts. I was going to write about it, but I’m just going to post the full text. For those who don’t know, last fall Jessie underwent surgery for her fourth cancer; she has some experience. (more&#8... Better Health blogs http://www.medworm.com/rss/comments.php?id=4921422 Fri, 10 Jun 2011 16:00:53 +0100 4921422 http://www.medworm.com/index.php?rid=4742388&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthings-you-can-learn-from-a-bad-nurse%2F2011.04.21 My husband had a screening colonoscopy last Friday.  His nurse in the recovery is the only one I had issues with.  I, not my husband. All went well, but let me tell you he is not an ePatient Dave.  He did not read his instructions about when to quit eating and the prep.  I did.  I then reminded him along the way:  “Only clear liquids today.”  “You must take the Ducolax at 3 pm.  Do you want me to text you a reminder?” Sometimes the instructions we give patients are clear, but not always read. The staff at the front desk were very kind and organized.  Calls had been made the day before and I had insured the insurance information they had was correct.   I did not tell anyone I was a doctor.  I’m not sure if my husband did later or not. ….. When I was called back by th... Better Health blogs http://www.medworm.com/rss/comments.php?id=4742388 Thu, 21 Apr 2011 23:00:00 +0100 4742388 http://www.medworm.com/index.php?rid=4331016&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Ffirst-report-from-the-society-of-participatory-medicines-newly-appointed-public-policy-committee-chair-david-harlow%2F2011.01.10 In December, the Society for Participatory Medicine’s executive committee appointed health law attorney David Harlow to represent the Society in public policy matters. Regular readers of HealthBlawg::David Harlow’s Health Care Law Blog know what a patient-centered, participatory thinker David is. This is his first report. I am delighted to offer my first report as Public Policy Committee Chair for the Society of Participatory Medicine. I encourage all of you who are not yet Society members to join, and I encourage new and old members to consider volunteering to help with the wide range of public policy issues facing us today. Over the past couple of months, the Public Policy Committee has gotten its sea legs. We are beginning to add the Society’s voice to the national discourse on p... Better Health blogs http://www.medworm.com/rss/comments.php?id=4331016 Mon, 10 Jan 2011 14:00:15 +0100 4331016 http://www.medworm.com/index.php?rid=4055713&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fshould-patient-engagement-be-regulated%2F2010.10.11 Last month in Cambridge I met Twitter friend Bryan Vartabedian, M.D. (Twitter @Doctor_V) at a meeting at Vertex Pharmaceuticals. We’ll cross paths this fall on the conference speaking circuit. [Recently] on his blog he raised a rowdy, rough, but valid point: As e-patients (obviously including me) get into the business, should they/we be regulated? He said: Will industry be required to publicly list monies used for sponsorship, travel and swag support of high profile patients in the social sphere? Should high visibility patients who serve as stewards and advocates disavow themselves of contact with pharma just as many academic medical centers have begun? As is often the case, I don’t have an answer. I’m just raising the questions. Smart questions. My short answer: Fine with me if ... Better Health blogs http://www.medworm.com/rss/comments.php?id=4055713 Mon, 11 Oct 2010 18:00:46 +0100 4055713 http://www.medworm.com/index.php?rid=3980830&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2F3-things-that-make-a-better-doctor%2F2010.09.17 On Monday, NPR’s Scott Hensley posted: “Between the Internet and all the data insurance companies and the government collect on doctors, you’d think it would be a lot easier than it used to be to find a good one. But it’s not.” Sound familiar around here? See his thoughts: “3 Tips For Picking A Slightly Better Doctor.” (Thanks to friend Cindy Johnson for the tip.) *This blog post was originally published at e-Patients.net* (Source: Better Health) Better Health blogs http://www.medworm.com/rss/comments.php?id=3980830 Fri, 17 Sep 2010 17:00:10 +0100 3980830 http://www.medworm.com/index.php?rid=3957915&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fdealing-with-medical-error-together%2F2010.09.10 The “Running A Hospital” blog has another discussion of dealing with medical error. This time, the hospital has opened up an error of its own (a “wrong side” surgery) for examination by the Open School of the Institute for Healthcare Improvement (IHI). Sample comments: – From IHI’s Jim Conway: “Our systems are too complex to expect merely extraordinary people to perform perfectly 100 percent of the time. We as leaders must put in place systems that support great practice by people who suffer from being human and will make mistakes.” – From a patient who had two surgical errors in ten months: “After years of suffering through our incredibly brutal tort(ure) system I finally had the chance to talk to the surgeon. The most meaningful words he spoke ... Better Health blogs http://www.medworm.com/rss/comments.php?id=3957915 Fri, 10 Sep 2010 16:00:01 +0100 3957915 http://www.medworm.com/index.php?rid=3733085&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fwww.vimeo.com%2Fmoogaloop.swf%3Fclip_id%3D10444174%26amp%3Bserver%3Dwww.vimeo.com%26amp%3Bfullscreen%3D1%26amp%3Bshow_title%3D1%26amp%3Bshow_byline%3D0%26amp%3Bshow_portrait%3D0%26amp%3Bcolor%3D01AAEA ePatient Dave, who shared his story (video below) with my students in the “Internet in Medicine” course this semester, is about to publish his own book: “Laugh, Sing, and Eat Like a Pig: How an Empowered Patient Beat Stage IV Cancer.” Now three of his friends have written essays about this important issue: We who’ve worked on it hope it will provoke thought about how healthcare is changing because of what e-patients can contribute, empowered as individuals and enabled by the Internet. To start that process, we’re publishing the introduction. Three friends and mentors generously offered introductory essays. These essays they have little to do with my story, and everything to do with how e-patients can help heal healthcare: Part 1, by Dr. Danny Sands: Putting Informatio... Better Health blogs http://www.medworm.com/rss/comments.php?id=3733085 Wed, 07 Jul 2010 19:00:37 +0100 3733085 http://www.medworm.com/index.php?rid=3730100&cid=t_320925_150_f&fid=38374&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FePharmaSummit%2F%7E3%2FuZDndQLG01Y%2Fepharma-summit-value-add-beyond-pill.html ePharma Summit 2010 took place this past February in Philadelphia. If you were unable to make it, we will no be presenting a weekly video series featuring all of the sessions from our event. This week we will continue with presentation from SBrian O'Donnell, Executive Vice President, Interactive Services, Klick Pharma and guest speaker Dave deBronkart, "ePatient Dave", Spokesperson and Advocate for Patient Empowerment presenting "Value-Add Beyond the Pill - The Digital Opportunity to Generate Patient Advocacy and Build Meaningful Differentiation with HCPs."Click here to watch the video. The video is under the "video" portion of the interactive player on the ePharma Summit webpage. (Source: ePharma Summit) ePharma Summit blogs http://www.medworm.com/rss/comments.php?id=3730100 Tue, 06 Jul 2010 15:33:00 +0100 3730100 http://www.medworm.com/index.php?rid=3729878&cid=t_320925_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-cancer-journey-take-control-of-your-illness-and-treatment%2F2010.07.06 I love this – a website that could’ve ONLY been created by cancer patients. From ThinkAboutYourLife.org: Find empowerment: Anything you can do to feel like you are taking control of your illness and treatment will help you. Think About Your Life was developed by cancer survivors. We have used the tools on this website in our own experiences, and we hope to inspire you do the same. This website provides easy-to-use tools for each stage of the cancer journey to help you: Process your thoughts and feelings: Elizabeth shared the “Good Day, Bad Day” tool with her family to tell them how they could help her throughout treatment. Take control and make decisions: Amanda used her “One Page Profile” with her doctor to discuss the impact of treatment on her life... Better Health blogs http://www.medworm.com/rss/comments.php?id=3729878 Tue, 06 Jul 2010 12:00:00 +0100 3729878 http://www.medworm.com/index.php?rid=3259267&cid=t_320925_150_f&fid=38374&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FePharmaSummit%2F%7E3%2FzwX8oUo1kOk%2Fepharma-summit-2010-value-add-beyond.html (Source: ePharma Summit) ePharma Summit blogs http://www.medworm.com/rss/comments.php?id=3259267 Tue, 09 Feb 2010 16:14:00 +0100 3259267 http://www.medworm.com/index.php?rid=3133760&cid=t_320925_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F12%2Fa-good-slide-into-2010.html In Germany, people wish each other a “Guten Rutsch” (or a “good slide”) into the new year. Here’s a little visual that might help with that expression Today, from the bottom of my diabetic heart — and my family’s — wishing you all a great slide into 2010. I did not get around to compiling a [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3133760 Thu, 31 Dec 2009 13:15:51 +0100 3133760