MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'epatients'. Sat, 03 Sep 2011 02:54:27 +0100 http://www.medworm.com/index.php?rid=5057719&cid=t_206681_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fwhy-im-afraid-for-anyone-to-enter-the-healthcare-system-ever%2F2011.07.23 Alright, I admit that the title of this post is a little dramatic. But it really does seem that most people I know socially have had a bad experience with the healthcare system lately. Take for example my friend whose 3- year-old went to the hospital for a common pediatric procedure – the little girl was overdosed on a medicine, aspirated, got pneumonia, went into respiratory distress (noticed first by her mom) and remained in the pediatric ICU for several days. The hospital staff swept the overdose under the rug, and outright denied it happened when faced with direct questioning. As outrageous as that all is, my friend chose not to pursue action against the hospital and staff for their error and behavior. She just “let it go” because no permanent harm had occurred. Anoth... Better Health blogs http://www.medworm.com/rss/comments.php?id=5057719 Sun, 24 Jul 2011 01:18:24 +0100 5057719 http://www.medworm.com/index.php?rid=4997645&cid=t_206681_113_f&fid=34634&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FEmrAndHipaa%2F%7E3%2FcStNIo4rV5g%2F I hope that everyone is enjoying this wonderful Fourth of July. I know I’ve had a great day so far and we’re gearing up to head to KFC and enjoy some fireworks with friends. Should be a great evening if the kids don’t get too cranky along the way. It has been a great day for me to remember how lucky I am to live in this wonderful country. There are plenty of things that are messed up in this country, but over all the freedoms we enjoy and benefits of living in America far outweigh the down sides. As I typed in the title of this post, I wondered what other things do I wish had their freedom when it came to the EMR world. First thing that came to mind was data independence. How beautiful would it be if our healthcare data was independent. I’m sure the ePatients out t... EMR and HIPAA blogs http://www.medworm.com/rss/comments.php?id=4997645 Tue, 05 Jul 2011 01:04:08 +0100 4997645 http://www.medworm.com/index.php?rid=4992686&cid=t_206681_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fexaggerated-claims-can-be-found-in-respected-medical-journals%2F2011.07.02 e-Patients who want to collaborate with their physicians, and be responsible for their medical decisions, need to clearly understand what constitutes good evidence. It’s not always easy. Now Richard Smith, a 25 year editor of the British Medical Journal, has written another piece for the BMJ blog, citing a JAMA study showing “that of the 49 most highly cited papers on medical interventions published in high profile journals between 1990 and 2004 a quarter of the randomised trials and five of six non-randomised studies had been contradicted or found to be exaggerated by 2005.” What’s an e-patient to do?? Especially when we “patients who google” are so often sneered at by physicians who rely on these same journals. Well, we need to educate ourselves, and learn to speak calmly, ... Better Health blogs http://www.medworm.com/rss/comments.php?id=4992686 Sat, 02 Jul 2011 12:00:37 +0100 4992686 http://www.medworm.com/index.php?rid=4921422&cid=t_206681_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Ftreatment-success-depends-largely-on-patient-participation%2F2011.06.10 Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about which I’ll be writing soon. (Jessie is founder and president of the excellent Center For Advancing Health.) Jessie’s talk was so good it had me going nuts on Twitter – I couldn’t keep up with all the “tweet-worthy” things that came out of her mouth. Well, I’ve just re-read her text, and it brought back why I went nuts. I was going to write about it, but I’m just going to post the full text. For those who don’t know, last fall Jessie underwent surgery for her fourth cancer; she has some experience. (more&#8... Better Health blogs http://www.medworm.com/rss/comments.php?id=4921422 Fri, 10 Jun 2011 16:00:53 +0100 4921422 http://www.medworm.com/index.php?rid=4797773&cid=t_206681_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fpatient-education-at-its-best-an-example-from-griffin-hospital%2F2011.05.07 A vital aspect of participatory medicine is helping patients learn how to participate. This week I saw a great example of someone who’s doing it right. Here’s the story, including the patient aid for download. We hear a lot about “patient-centered”: patient-centered care, patient-centered thinking, everything. Frankly, a lot of it strikes me as patient-centered paternalism: people mean well, but patients sense that the thinking didn’t happen while standing in patients’ shoes, because the advice, policies, and publications just don’t hit home. It’s like somebody guessed what you want, instead of knowing (because they’re like you). A couple of years ago I learned about Planetree, a terrific, small organization in Connecticut that’s been thinking from the patient’s point... Better Health blogs http://www.medworm.com/rss/comments.php?id=4797773 Sat, 07 May 2011 20:00:15 +0100 4797773 http://www.medworm.com/index.php?rid=4214260&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F11%2F30%2Fthe-future-of-coding%2F In Wired magazine this month, Clive Thompson talks about his own experience in developing a mobile app.  Coding for the Masses is the new reality. In a way, many in the Web 2.0 world have been doing coding by creating blogs, wikis, communities such as Ning, with little or no technical training. Now tools for mobile apps allow for building tools for the handheld devices. He notes Scratch to Google’s App Inventor as the enablers of this new reality. Related is the book Program or Be Programmed by Douglas Rushkoff. The same concept of empowerment comes through. More once I read the book. Implications for healthcare? Obvious – epatients going beyond advocacy to become app developers. Physicians and nurses developing apps for their own use or for their patients. Check out this post abo... eHealth blogs http://www.medworm.com/rss/comments.php?id=4214260 Wed, 01 Dec 2010 03:34:00 +0100 4214260 http://www.medworm.com/index.php?rid=4013286&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F09%2F28%2Fsocial-media-season%2F It must be Fall because the conference season is ramping up. Two social media conferences going on at the same time: ePatient 2010 in Philadelphia with the likes of ePatient Dave and Susannah Fox Health Care Social Media Summit in Jacksonville, Fl Notable is the announcement by Radboud University Nijmegen Medical Centre in the Netherlands and the Mayo Clinic of a Global Social Media Health Network. All of this reflects the maturity of the healthcare social media, ePatient and Health 2.0 community.  A kind of convergence is occurring bringing technology to the focus on the patient with full participation of the epatient. Greater attention by mainstream media and the scientific community is only accelerating  the movement – see last week’s Scientific American Pathways artic... eHealth blogs http://www.medworm.com/rss/comments.php?id=4013286 Wed, 29 Sep 2010 02:50:02 +0100 4013286 http://www.medworm.com/index.php?rid=3671827&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F06%2F17%2Fcuring-cancer-clinical-trials%2F The Institute of Medicine has issued another groundbreaking report, this time on cancer clinical trials. An editorial about the report in the New England Journal of Medicine titled, Cancer Clinical Trials — A Chronic but Curable Crisis, makes some bold statements, such as, “the program is bloated, cumbersome, inefficient.” Slow approval processes with multiple layers and poor recruitment levels are symptomatic. Recommended changes include improving: the speed and efficiency of the design, launch, and conduct of trials; innovation in science and trial design; trial prioritization,selection, support, and completion; and incentives for patient and physician participation The full IOM report lays out participation of key stakeholders, particularly patients and physicians. The e... eHealth blogs http://www.medworm.com/rss/comments.php?id=3671827 Fri, 18 Jun 2010 02:55:13 +0100 3671827 http://www.medworm.com/index.php?rid=3632327&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F06%2F04%2Fpartnerships-with-online-communities-the-long-tail%2F Chris Anderson in writing Long Tail: Why the Future of Business Is Selling Less of More, popularized this concept particularly in viewing markets in the wired world. How does it apply to health care? Probably in many ways. But specifically it came to mind in thinking about the relationship of provider organizations like hospitals and online communities. While many online communities may attract large numbers, for instance, in diabetes and breast cancer, many more condition specific communities are relatively small even though they may have a national or international scope. Gilles Frydman of ACOR recognized this early by encouraging the proliferation of online communities through his listserv. Provider organizations are moving into social media but struggling to identify meaningful ways ... eHealth blogs http://www.medworm.com/rss/comments.php?id=3632327 Fri, 04 Jun 2010 21:20:53 +0100 3632327 http://www.medworm.com/index.php?rid=3556297&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F05%2Fdiabetes-blog-week-my-biggest-supporters.html Karen over at Bitter-Sweet blog has proclaimed this “Diabetes Blog Week.” For those who haven’t run into it yet, the idea is that the hundreds of us now blogging about diabetes participate in sort of an online rally.  With seven pre-defined topics to post about, we all “get a variety of unique insights on a [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3556297 Wed, 12 May 2010 13:00:48 +0100 3556297 http://www.medworm.com/index.php?rid=3552398&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F05%2F10%2Fthe-quantified-self-in-healthcare-part-2%2F This article from 2008 essentially proposes a solution for health information exchange without costly state or national initiatives. The combination of the quantified self and the patient as the platform can potentially create a future where rich information is controlled by the patient and shared with providers to enhance personal wellness and treat conditions. Adding social networking with like patients creates a powerful trio of technology for the e-patient. (Source: eHealth) eHealth blogs http://www.medworm.com/rss/comments.php?id=3552398 Tue, 11 May 2010 01:36:14 +0100 3552398 http://www.medworm.com/index.php?rid=3542691&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F05%2F07%2Ftrends-in-social-media-in-health-care%2F Yesterday I had two content successes. My article Social Media in Health Care: Barriers and Future Trends was published in the Perspectives section of this online newsletter. In it I propose 3 trends to watch for: Managing a conversation; Engaging e-patients; Convergence with personal health records; and Social media for providers I will be interested in your comments on this blog or via Twitter (@JohnSharp). Yesterday I also spoke at the J. Boye Conference in Philadelphia on Social Media in Health Care: Humble Beginnings to Patient Engagement. This conference is more intimate and interactive than most with specific tracks for each day. I spent the first day in the Higher Education track and found many similarities with the struggles we in health care experience. The second day had an e... eHealth blogs http://www.medworm.com/rss/comments.php?id=3542691 Fri, 07 May 2010 12:22:02 +0100 3542691 http://www.medworm.com/index.php?rid=3529870&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F05%2F03%2Fthe-quantified-self-in-healthcare%2F In the New York Times Sunday Magazine, an article by a Wired editor, talks about the growing trend of the Quantified Self, or the data driven life. Why is this becoming a real trend? “Four things changed. electronic sensors got smaller and better. people started carrying powerful computing devices, typically disguised as mobile phones. social media made it seem normal to share everything. we began to get an inkling of the rise of a global superintelligence known as the cloud.” While more people are creating catalogs of various aspects of their lives, some specific healthcare examples are cited including Medhelp.org “where more than 30,000 new personal tracking projects are started by users every month” and CureTogether. Also, in FastCompany, an article title Our ... eHealth blogs http://www.medworm.com/rss/comments.php?id=3529870 Tue, 04 May 2010 02:40:01 +0100 3529870 http://www.medworm.com/index.php?rid=3526905&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F05%2Fwhat-we-can-learn-from-other-chronics.html Something else that struck me from my recent interview with D-psychologist Jessica Bernstein was her observation that “we diabetics tend to not see ourselves as part of the larger chronic illness community — which is unfortunate because we miss out on a lot.”  I am sure she is quite right. And yet… It’s simply human nature [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3526905 Mon, 03 May 2010 13:00:40 +0100 3526905 http://www.medworm.com/index.php?rid=3519643&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F04%2F2010-diabetesmine-design-challenge-closing-for-entries-tonight.html The 2010 DiabetesMine Design Challenge closes for entries at midnight tonight!  What? You didn’t expect me to post about anything else today, did you? I’m afraid I can’t really think about anything else right about now.  Too excited to see what happens when the clock strikes twelve… So at the risk of sounding repetitive — in [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3519643 Fri, 30 Apr 2010 13:00:52 +0100 3519643 http://www.medworm.com/index.php?rid=3504983&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F04%2F25%2Ftime-to-revamp-clinical-trials%2F In an editorial today in the New York Times, the editors call for major changes in how cancer clinical trials should be run. Just two facts are enough to document the problem: The average time between developing the concept for a study and getting it started is about 2.5 years. about 40 percent of all advanced clinical trials sponsored by the Cancer Institute are never completed One of the recommendations is to reduce the number of cooperative groups and the levels of approval required. In a related post on The Medical Quack, there is discussion of the clinical trial experience for the patient with an excellent video below. In both cases what I hope we all come to realize soon is the lethal lag time – a articulate by e-patient White Paper – these long lead time for studies c... eHealth blogs http://www.medworm.com/rss/comments.php?id=3504983 Mon, 26 Apr 2010 03:05:46 +0100 3504983 http://www.medworm.com/index.php?rid=3494487&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F04%2Fdesign-challenge-five-minutes-with-our-venture-capitalist-judge.html A new addition to our DiabetesMine Design Challenge Judges’ Panel this year is John Steuart, Managing Director of Claremont Creek Ventures, a venture capital firm that invests in early stage information technology companies. John himself has spent the last 20 years building and investing in technology and life science companies, so you might say [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3494487 Thu, 22 Apr 2010 13:00:31 +0100 3494487 http://www.medworm.com/index.php?rid=3487176&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F04%2F19%2Frobotic-pancreas-beyond-home-monitoring-and-the-quantified-self%2F Just as home monitoring using medical devices is beginning to gain traction and be reimbursed, e-visits as well and the movement toward the Quantified Self, implanted devices are now added to the mix. In a new article in Wired Magazine, The Robotic Pancreas, One man’s quest to put millions of diabetics on autopilot, implanted devices move into the popular press. After a successful trial of 17 teens at Yale, the next step is FDA approval. Medtronic is supporting the effort. There is already approval in some European countries and the devices does have an low glucose suspend feature to protect the patient. The FDA is accelerating the availability of an artificial pancreas; will it really take the predicted 5 years for approval and broadened use? What will be the next device which combi... eHealth blogs http://www.medworm.com/rss/comments.php?id=3487176 Tue, 20 Apr 2010 02:12:57 +0100 3487176 http://www.medworm.com/index.php?rid=3433111&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F04%2Fsmall-but-mighty-mycareconnect-com.html It’s about time for another edition of our Small But Mighty series, profiling the many individual organizations out there powered by people passionate about helping PWDs. Today, we take a look at one such company addressing the complicated and stressful task of raising a child with diabetes… Most kids are gone from the house a [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3433111 Fri, 02 Apr 2010 13:00:31 +0100 3433111 http://www.medworm.com/index.php?rid=3425066&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2Fdesign-challenge-medgadget-editor-talks-medical-innovations.html Russian-born Michael Ostrovsky is a board certified anesthesiologist, practicing cardiac anesthesia here in the San Francisco Bay Area. He’s one of the few MDs who’s not only extremely web-savvy, but is actually part of the Health 2.0 and Social Media movement as co-founder of Medgadget.com, sort of the “Engadget” of the medical technology world. Lucky [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3425066 Wed, 31 Mar 2010 13:00:23 +0100 3425066 http://www.medworm.com/index.php?rid=3404079&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2Fdesign-challenge-a-chat-with-our-professor-of-health-design.html Peter Jones may have a common name, but he’s a rare animal. He’s one of the few academic design experts focusing specifically on the user experience in healthcare. And we are delighted to welcome him this year as one of our expert judges for the 2010 DiabetesMine Design Challenge! FYI, Peter has a PhD in Design [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3404079 Thu, 25 Mar 2010 13:00:16 +0100 3404079 http://www.medworm.com/index.php?rid=3378678&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2Fdesign-challenge-insights-from-last-years-big-winner.html I proudly present Samantha Katz as Exhibit A: the graduate student from Northwestern University who (along with project partner Erik Schickli) won last year’s DiabetesMine Design Challenge Grand Prize, and was subsequently hired by Medtronic Diabetes to help design their next-generation insulin pumps. (See yesterday’s big Medtronic announcement.) Samantha is living proof that “crowdsourcing” exercises [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3378678 Thu, 18 Mar 2010 13:00:03 +0100 3378678 http://www.medworm.com/index.php?rid=3354518&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2Fdesign-challenge-a-word-with-our-cde-judge-gary-scheiner.html As you all hopefully know, the 2010 DiabetesMine Design Challenge is ON. We opened for entries last Monday. I’m excited about community voting this year (y’all get to choose the competition finalists). I’m equally delighted to have such a wonderful panel of expert judges whose role will be to determine the winners from your list of [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3354518 Thu, 11 Mar 2010 13:00:05 +0100 3354518 http://www.medworm.com/index.php?rid=3327235&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2Fthe-%25e2%2580%259cpatient-centered-medical-home-too-good-to-be-true.html Those of you who follow me on twitter may know that I traveled to Washington DC late last week to take part in a “roundtable event” discussing paths to better diabetes care. Now, I’m no policy-maker, and certainly no expert on the crazy mixed-up reimbursement system in this country.  I was there, again, to talk [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3327235 Wed, 03 Mar 2010 13:00:38 +0100 3327235 http://www.medworm.com/index.php?rid=3322569&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F03%2F2010-design-challenge-get-your-posters-here.html More on the 2010 DiabetesMine Design Challenge today —in part because I can’t think about much else this week I almost forgot to mention the beautiful and very official contest fliers/posters we’ve prepared. They’re available for downloading and distributing in PDF format here, as you like. For interested universities and other organizations – we can [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3322569 Tue, 02 Mar 2010 13:00:05 +0100 3322569 http://www.medworm.com/index.php?rid=3298524&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F02%2Fgrowing-your-own-decision-tree.html To what degree is the state of our health really in our own hands? According to author Thomas Goetz, it very largely is. In his new book The Decision Tree, published last week, Thomas argues that since we live in a world where data on anything, including personal health, is abundant, [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3298524 Tue, 23 Feb 2010 13:00:04 +0100 3298524 http://www.medworm.com/index.php?rid=3294675&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F02%2F21%2Freview-of-chasing-medical-miracles%2F The subtitle of this 2009 book by Alex O’Meara is “The Promise and Perils of Clinical Trials.” O’Meara combines this personal experience of a clinical trial using stem cells for Type I Diabetes. He reviews the risky world of clinical trials beginning with large for-profit research centers who recruit healthy volunteers and stories of the volunteers who participate for a living or to supplement their income. Some questionable situations are noted including the recruitment of low income and alcoholic men in Indianapolis and elsewhere. He details some famous cases of unethical trials which landed in the courts including those involving genetics and conflicts of interest. Fortunately, some of these potential abuses are more carefully scrutinized. He spends two chapters ... eHealth blogs http://www.medworm.com/rss/comments.php?id=3294675 Sun, 21 Feb 2010 16:51:15 +0100 3294675 http://www.medworm.com/index.php?rid=3280148&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F02%2Fcalling-all-grassroots-diabetes-advocates-unite-to-get-noticed.html If you run a diabetes blog, web site, or small organization doing some kind of diabetes advocacy work, you will want to know about this: a new ‘Diabetes Advocates Program’ that can help you and your work get noticed. Basically, TuDiabetes founder Manny Hernandez and David Edelman of DiabetesDaily put on their thinking caps after last [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3280148 Wed, 17 Feb 2010 13:00:11 +0100 3280148 http://www.medworm.com/index.php?rid=3275866&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F02%2F15%2Fdecision-tree-and-the-quantified-self%2F The article in Wired on Decision Trees and the new book also by Thomas Goetz has generated a greater interest in participatory medicine and quantifying one’s life and health. The title of the first chapter says it all: Living by the Numbers – How alot of science and a little self awareness can give you control of your health. Brian Ahier addresses these issues as well in his post on “Data Not Drugs: Taking Control of Your Health in the Age of Genetics.” While pointing out the host of tools available to manage your health, everything from WolframAlpha to GetUpAndMove, he discusses earlier adopters who will lead the way, knowing not only their genetic risk but also quantifiy their daily health status. He notes that with few blockbuster drugs in the pipeline, perhap... eHealth blogs http://www.medworm.com/rss/comments.php?id=3275866 Tue, 16 Feb 2010 02:01:35 +0100 3275866 http://www.medworm.com/index.php?rid=3251342&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F02%2Fthe-real-pepsi-challenge-diabetes.html Isn’t it ironic that the multi-million-dollar companies that are most ‘part of the problem’ like to pretend that they’re ‘part of the solution’? That’s all I could think of when learning about Pepsi’s big social-media-based “goodwill campaign” surrounding the SuperBowl this weekend. The company hopes to wow the country by relinquishing those coveted SuperBowl TV ad [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3251342 Mon, 08 Feb 2010 13:00:13 +0100 3251342 http://www.medworm.com/index.php?rid=3231742&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F02%2Ffive-things-i-learned-about-lyme-disease.html I know, I know, this is a diabetes blog. But those of you who follow me regularly are probably aware that a new chronic illness has entered our lives — Lyme disease. My husband was diagnosed shortly after we returned from Germany last summer, and it’s turning out to be a much more formidable opponent [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3231742 Tue, 02 Feb 2010 13:00:42 +0100 3231742 http://www.medworm.com/index.php?rid=3182326&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2010%2F01%2Fwin-a-copy-of-diabetes-rising.html A little diabetes online fun for your Monday: Use your Noggin and three lucky readers will win a free copy of Dan Hurley’s new “epic” book, “Diabetes Rising.” First off, you may have heard a lot of buzz about this book lately. The full title is, “Diabetes Rising: How a Rare Disease Became a Modern Pandemic, [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3182326 Mon, 18 Jan 2010 14:00:13 +0100 3182326 http://www.medworm.com/index.php?rid=3175974&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F01%2F14%2Fhealth-data-rights-get-broader-national-attention%2F First, I need to applaud CNN for creating a place to focus on the Empowered Patient. And today a special article on a patient’s right to their own data and citing two prominent ePatients – Jen McCabe and Dave deBronkart. “Lack of information kills people” – the article details several anecdotal cases of how patients were injured or died as a result of lack of correct data and medical errors. The patient having their data certainly can add to patient safety – why not have more eyes looking at patient data, especially when it about one’s own body. Looking forward to more features in the Empowered Patient. (Source: eHealth) eHealth blogs http://www.medworm.com/rss/comments.php?id=3175974 Fri, 15 Jan 2010 02:33:49 +0100 3175974 http://www.medworm.com/index.php?rid=3146057&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2010%2F01%2F05%2Finterview-on-social-media%2F My interview by Hope Leman on the Significant Science blog just today was rediscovered on Twitter resulting in significant activity. The interview, titled ”Maneuvering Medical Institutions Through the Wild Waters of Social Media” and covered the range of activities in social media at the Cleveland Clinic. This interview emerged from my presentation at Medicine 2.0 “Hospital Adoption of Medicine 2.0: A Culture Change.” While social media strategy continue to evolve, new opportunities present themselves. Particularly significant shifts are toward participatory medicine and e-patients. As noted previously, I will continue to post about participatory research and the lethal lag time in research which may only change from patient-initiated advocacy. Thanks again to all ... eHealth blogs http://www.medworm.com/rss/comments.php?id=3146057 Wed, 06 Jan 2010 04:57:59 +0100 3146057 http://www.medworm.com/index.php?rid=3133760&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F12%2Fa-good-slide-into-2010.html In Germany, people wish each other a “Guten Rutsch” (or a “good slide”) into the new year. Here’s a little visual that might help with that expression Today, from the bottom of my diabetic heart — and my family’s — wishing you all a great slide into 2010. I did not get around to compiling a [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3133760 Thu, 31 Dec 2009 13:15:51 +0100 3133760 http://www.medworm.com/index.php?rid=3129555&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2009%2F12%2F29%2Fthe-quantified-self-epatients-and-participatory-medicine%2F Kevin Kelly has posted “The Quantified Self, Tools for knowing yourself and your body” which links to a more extensive paper entitled, “A Billion Little Experiments,” The concept of the Quantified Self points to patient empowerment and specifically ePatient activism which takes control of one’s health or illness by understanding one’s body and its processes. It seems that communities, such as, PatientsLikeMe and OrganizedWisdom, provide a real opportunity for quantifying life and sharing that life in real time. Quantifying the self opens the door to participatory medicine – by knowing yourself, you can engage your physician in a dialog on what you know about your body. We are a billion little experiments. I hope that the concept of the Quantified S... eHealth blogs http://www.medworm.com/rss/comments.php?id=3129555 Wed, 30 Dec 2009 03:46:20 +0100 3129555 http://www.medworm.com/index.php?rid=3124599&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2009%2F12%2F27%2Fupdated-blog-with-updated-thoughts%2F Thanks to my daughter, I have moved my blog to WordPress and have an updated skin. This will certainly encourage me to post more frequently in the new year. The focus of my posts in the coming year will include: e-Patients, participatory medicine and particularly the lethal lag time in research Health 2.0 specifically research related tools both for patients and providers eHealth and its convergence with Health 2.0, mHealth and telemedicine health policy issues including comparative effectiveness research and medical home, two key directions in research and policy What for changes to the blog as I get used to WordPress and add widgets which are helpful to my readers. Thanks for reading and share your thoughts about the new year in ehealth and Health 2.0. (Source: eHealth) eHealth blogs http://www.medworm.com/rss/comments.php?id=3124599 Mon, 28 Dec 2009 01:55:08 +0100 3124599 http://www.medworm.com/index.php?rid=3079519&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F12%2Flast-day-to-share-your-pre-holiday-stories.html I realize that we haven’t hit Christmas yet this year. And Hanukkah begins tonight at sundown — so maybe you haven’t yet experienced your Best or Worst of the Holidays with Diabetes for this year. But we’re asking anyway: share a story for a chance to win! The DiabetesMine ‘Tis the Season! Survival Sweepstakes closes for [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3079519 Fri, 11 Dec 2009 16:27:56 +0100 3079519 http://www.medworm.com/index.php?rid=3075714&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F12%2Fthe-fda-and-social-media.html Many of you know that the FDA held public hearings on the pharma industry’s use of Social Media mid-last-month.  There was much excitement going into this because to date, the FDA has pretty much dodged the subject, and left drugmakers in fear of retribution (see BusinessWeek’s summary here). Essentially, since there are no clear rules laid [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=3075714 Thu, 10 Dec 2009 13:00:02 +0100 3075714 http://www.medworm.com/index.php?rid=3026762&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2009%2F11%2F24%2Flethal-lag-time-concerns-possible-solutions.aspx%3Fref%3Drss In a follow up from yesterday's post, I came across an article in the Journal of the National Cancer Institute on a drug funding issue force one of the major cooperative oncology groups to modify how they approach clinical trials. The article, titled,"Costly Cancer Drugs Trigger Proposals To Modify Clinical Trial Design" notes a new drug costing up to $9000 per month per patient. In doing the economic analysis using formulas like Quality Adjust Life Years (QALYs), the real value of these treatments is being questioned.On the brighter side, two potential solutions to long lag times for research are a search tool and a predictive modeling tool.explorys is a new spin off from the Cleveland Clinic which "enables users to collaborate, search, and tag meaningful correlations from treatments and ... eHealth blogs http://www.medworm.com/rss/comments.php?id=3026762 Wed, 25 Nov 2009 13:23:24 +0100 3026762 http://www.medworm.com/index.php?rid=2984968&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F11%2Fthe-diabetes-technology-society-from-algorithms-to-adherence.html The Diabetes Technology Society held its annual meeting last Thursday through Saturday, which always takes place just about a mile and a half from my house. But guess what? This was the very first year that I found myself on the inside of this exclusive event, participating in a panel (the very last panel of [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2984968 Thu, 12 Nov 2009 13:00:52 +0100 2984968 http://www.medworm.com/index.php?rid=2981293&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F11%2Fwayback-wednesday-diabetes-appreciation.html Here’s a new theme idea for National Diabetes Awareness Month: making peace with your illness. For those of us who already have diabetes, expanded public awareness is nice to have, but doesn’t necessarily change anything.  This train of thought brought me back to my oldest daughter’s little challenge a few years ago… kids are wonderful [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2981293 Wed, 11 Nov 2009 13:00:27 +0100 2981293 http://www.medworm.com/index.php?rid=2967472&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F11%2Fadventures-in-primary-care.html In the years since my diagnosis, I’ve often wondered why I needed a primary care physician.  Since my health is all about controlling blood sugars and staving off D-complications these days, I literally have only seen our family doctor two or three times in the past six years.  And then recently, we got a letter [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2967472 Fri, 06 Nov 2009 13:00:58 +0100 2967472 http://www.medworm.com/index.php?rid=2931217&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F10%2Ftalking-to-pharma-online-and-offline.html There are so many great events around empowered patients and consumer-driven healthcare in the Fall. It also being soccer season, the kickoff of the school year, and time for nearly every existing Jewish holiday, I can’t possibly attend as many as I’d like to.  This makes me especially thankful to have some good D-blogger [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2931217 Tue, 27 Oct 2009 15:56:24 +0100 2931217 http://www.medworm.com/index.php?rid=2912397&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F10%2Fjournal-of-participatory-medicine-launches-today.html Academic and medical journals — yawn, right?  Not anymore. Today (at the Connected Health conference in Boston) marks the launch of a new kind of journal, which is marking a new kind of medicine, actually: the Journal of Participatory Medicine, an all-online pub that’s open and free-of-charge for all to read and enjoy. The content, which [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2912397 Wed, 21 Oct 2009 14:58:46 +0100 2912397 http://www.medworm.com/index.php?rid=2912294&cid=t_206681_113_f&fid=34631&url=http%3A%2F%2Fehealth.johnwsharp.com%2F2009%2F10%2F20%2Fjournal-of-participatory-medicine-launched.aspx%3Fref%3Drss The Journal of Participatory Medicine was lauched today with a webinar by ePatient Dave. The webinar, titled "How Great EHRs can Empower Participatory Medicine" included a quote from my blog post stating that "If you hav,  not read the e-Patient White Paper, you do not understand the future of medicine." On a related note, Roni Zeiger of Google Health posted on Huffington Post "Mission: Transform the Culture of Medicine." He notes that " Participatory Medicine is a new approach that encourages and expects active patient involvement in all aspects of care. In a more surprising development, ePatient Dave notes in today's post a quote by Marcia Angell, MD, previously of the New England Journal of Medicine, stating "It is simply no longer possible to believe much of the clinical research ... eHealth blogs http://www.medworm.com/rss/comments.php?id=2912294 Wed, 21 Oct 2009 11:52:32 +0100 2912294 http://www.medworm.com/index.php?rid=2876276&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F10%2Fhealth-20-the-buzzword-you-hate-to-love.html I know many of you are not keen on being overloaded with a bunch of “Health 2.0″ news. You just want to hear about things that effect your day-to-day existence with diabetes. Gotcha.  Nevertheless, it’s useful to know what’s happening in the “health revolution” outside our D-community.  You might be surprised. I spent a significant amount [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2876276 Thu, 08 Oct 2009 13:00:41 +0100 2876276 http://www.medworm.com/index.php?rid=2842729&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F09%2Fauthor-dan-hurley-on-diabetes-part-1-try-harder-is-not-enough.html Dan Hurley is a journalist and science writer who contributes regularly to the New York Times.  He’s also written for the Medical Tribune and Psychology Today.  And he’s one of us PWDs.  His new book, Diabetes Rising, is an exposé on the academic world of diabetes, coming out January. Have a look at last week’s [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2842729 Tue, 29 Sep 2009 13:00:33 +0100 2842729 http://www.medworm.com/index.php?rid=2814628&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F09%2Fcompliance-vs-compassion.html Of all the things I heard at the Transform symposium at the Mayo Clinic last week, there was just one notion that pierced the heart of all this healthcare reform talk, if you ask me. It was the statement by Christi Dining Zuber, Innovation Director at Kaiser Permanente, that healthcare needs to be about compassion [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2814628 Mon, 21 Sep 2009 13:00:37 +0100 2814628 http://www.medworm.com/index.php?rid=2649239&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F07%2Fpatient-bloggers-at-blogher-09.html Last week, d-bloggers hit social media scene in two ways. First, there was the Roche Diabetes Social Media Summit in Indianapolis… and immediately following that, patient-bloggers took on BlogHer ‘09 in Chicago! Kerri Morrone Sparling, author of Six Until Me, was a panelist on the BlogHer panel for patient-bloggers and Lee Ann Thill, from the [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2649239 Tue, 28 Jul 2009 15:20:01 +0100 2649239 http://www.medworm.com/index.php?rid=2630328&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F07%2Fwayback-wednesday-amys-tour-of-health-plans.html Talk about nothing changes! For this week’s trip back in time, I’m reprinting a post from September of 2005 about attempting to navigate the American healthcare system — and what a bumpy ride that is.  Just for confirmation that we’re all still struggling with this same baloney, check out #patientsfirst on Twitter.  Now, buckle up [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2630328 Wed, 22 Jul 2009 14:30:54 +0100 2630328 http://www.medworm.com/index.php?rid=2626226&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F07%2Fpharma-on-twitter-and-other-social-media-the-epatients-dilemma.html As the Diabetes Social Media Summit hosted by Roche approaches, I’ve been thinking and reading a lot about the question of Pharma engagement here.  Is Social Media destined to be just another forum for them to push marketing mantras and build brands?  Or can there really be valuable two-way interaction between the chronically drug-dependent (us [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2626226 Tue, 21 Jul 2009 15:08:35 +0100 2626226 http://www.medworm.com/index.php?rid=2611139&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F07%2Fthings-im-doing-this-summerfall.html A lot of exciting things are on the horizon, so time for a quick update on the Madness to Come: ♦ Countdown: One week until takeoff - YIPES! Next Wednesday I board a plane for Indianapolis to attend the first-ever Diabetes Social Media Summit hosted by Roche Diabetes Care. Can’t wait to meet a whole gaggle [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2611139 Thu, 16 Jul 2009 14:37:53 +0100 2611139 http://www.medworm.com/index.php?rid=2523619&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F06%2Fdiabetic-aesthetic.html A final run-through of our 150+ amazing submissions in this year’s DiabetesMine Design Challenge reveals some of the “prettiest” entries — those that obviously come from the world of artful design rather than medical utility. And why shouldn’t more medical devices be more aesthetic?!   PicoSulin mini insulin pump - weighs just 2 oz. and uses and [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2523619 Fri, 26 Jun 2009 13:00:23 +0100 2523619 http://www.medworm.com/index.php?rid=2523622&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F06%2Fgrassroots-upheaval-a-declaration-of-patients-rights-to-health-data.html A new initiative, launched today at HealthDataRights.org, brings together all manner of patients’ rights activists — doctors, researchers, software developers, writers, entrepreneurs, health economists, and of course, health and medical bloggers — calling for “the right to access all health data about ourselves, so we can make the most effective health decisions using the resources [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2523622 Tue, 23 Jun 2009 01:02:00 +0100 2523622 http://www.medworm.com/index.php?rid=2523623&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F06%2Four-online-healthdiabetes-toolbox-overfloweth.html Time again for an update on some of the myriad new online health tools that may actually add value to a PWD’s life: Need some help understanding and/or reducing the costs of your diabetes? Try this Diabetes Cost Calculator. It helps you break down what you’re spending on your diabetes now, and even offers tips [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2523623 Mon, 22 Jun 2009 13:00:56 +0100 2523623 http://www.medworm.com/index.php?rid=2405953&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F05%2Fblogging-about-our-doctors.html Is it OK for patients to chatter away about their doctors online, while those doctors remain under oath not to disclose patient information?  And yet, some doctors do blog about interactions with their patients. Last Friday, I was a guest on a Podcast hosted by Albert Maruggi, creator of the Social Media Throwdown series, on this [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2405953 Tue, 12 May 2009 13:00:18 +0100 2405953 http://www.medworm.com/index.php?rid=2376622&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F04%2Fhelping-roche-engage-with-the-diabetes-oc.html We bloggers and social network afficionados have been calling for the medical establishment to wake up and smell the Java, and recognize that we patients have a new place to congregate and a new communal voice on the web.  Why don’t they recognize us and engage with us, we ask? Well now I know that at [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2376622 Wed, 29 Apr 2009 20:12:13 +0100 2376622 http://www.medworm.com/index.php?rid=2376623&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F04%2Ftreating-illness-with-information.html Traditionally, a “prescription” meant a piece of paper that got you a vial of pills or other medication you were meant to take until your next meeting with your doctor. Today, health professionals increasingly recognize that LEARNING is part of the prescription -– if you want people to thrive with their condition, that is. The Health [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2376623 Tue, 28 Apr 2009 12:30:54 +0100 2376623 http://www.medworm.com/index.php?rid=2297361&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F03%2Fdiabetes-design-challenge-veenu-aulakh-on-involving-patients-in-care.html For the this year’s DiabetesMine Design Challenge, we are fortunate to have a judging panel that includes some highly influential individuals in healthcare and diabetes treatment. So who are these people? And what prompted them to get involved with a diabetes design contest? I’d like to take the opportunity to introduce these folks in [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2297361 Wed, 25 Mar 2009 13:00:26 +0100 2297361 http://www.medworm.com/index.php?rid=2297363&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F03%2Fa-way-of-life.html This weekend I stumbled upon a European diabetes teens site with a tagline that stopped me in my tracks. Under the site header, the text reads: “We wish that people would understand that diabetes is more than an illness. It is a way of life.” What an awesome statement. This is exactly what I’ve been [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2297363 Tue, 24 Mar 2009 13:00:50 +0100 2297363 http://www.medworm.com/index.php?rid=2240950&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F03%2Fdiabetes-reality-bites.html This week’s Diabetes Forum 2009 conference was two full days of presentations on policy and reform — a dizzying array of statistics and political jargon and acronyms like “four-tier formularies,” “SNPs” and “VBID” and “double-digit Medicare margin.”  Surely all very important stuff in the netherworlds of managed care and reimbursement administration.  But what the heck?!  [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2240950 Fri, 06 Mar 2009 19:09:07 +0100 2240950 http://www.medworm.com/index.php?rid=2232626&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F03%2Fand-now-we-are-epharma-consumers.html In our emerging world of web-based health offerings and Net-informed patients, it looks like the name-game is still heating up.  Recently I sounded off about whether we should be referred to now as patients or consumers, and don’t forget the term “ePatients” — along with eHeath Consumers, Cybercitizens, etc., etc. Now Manhattan Research, a highly respected [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2232626 Wed, 04 Mar 2009 13:00:13 +0100 2232626 http://www.medworm.com/index.php?rid=2222558&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F02%2Fusing-youtube-to-promote-insulin.html Following quickly on my post about Pharma companies warming up to social media, I got a call this week from some folks I know at Sanofi-Aventis. They are launching their very own YouTube channel to promote their Go-Insulin campaign aimed at offsetting the myths and misperceptions about insulin use among type 2 diabetics. So far, [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2222558 Thu, 19 Feb 2009 12:00:25 +0100 2222558 http://www.medworm.com/index.php?rid=1947174&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2008%2F11%2Fd-blog-day-2008-a-whole-new-world.html The diabetes online community has come a darn long way in just a few short years.  Today, Nov. 9, was dubbed the official “Annual Diabetes Blog Day” by Gina Capone of the Talkfest back in the “early days” of 2005. I can’t believe it’s been three whole years since I asked readers to “Talk to [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=1947174 Sun, 09 Nov 2008 11:00:27 +0100 1947174 http://www.medworm.com/index.php?rid=1927799&cid=t_206681_109_f&fid=34750&url=http%3A%2F%2Fpsychcentral.com%2Fblog%2Farchives%2F2008%2F11%2F02%2Fhow-well-do-psychiatrists-involve-patients%2F Not very, according to recently published research. Goss and her colleagues (2008) wanted to test how much psychiatrists involve patients in therapeutic decisions and to determine whether there were any defining characteristics (on either the patient’s or the psychiatrist’s part) that contributed to patient involvement. What’s so great about patient involvement? Well, previous research has shown that the more involved a patient is in the decision-making of their treatment, generally the better the outcomes for the patient. They tend to feel more better, sooner, than patients who are uninvolved in the process. Patients who are involved also report higher satisfaction rates with treatment. This is a small study of only 16 Italian psychiatrists, but the researchers exami... World of Psychology blogs http://www.medworm.com/rss/comments.php?id=1927799 Sun, 02 Nov 2008 12:16:55 +0100 1927799 http://www.medworm.com/index.php?rid=1876040&cid=t_206681_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2008%2F10%2Fgoogle-health-is-it-good-for-you.html Slowly but surely, using the Internet for your health needs is becoming as mainstream as shopping on the web: no longer futuristic, but is it for everyone?  And perhaps more importantly, are mainstream commercial health platforms from companies like Google and Microsoft really useful for people with specific chronic illnesses?  I thought it would be [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=1876040 Tue, 07 Oct 2008 13:00:51 +0100 1876040