MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'genetic information'. Sat, 03 Sep 2011 02:24:27 +0100 http://www.medworm.com/index.php?rid=3885345&cid=t_191048_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fthe-dna-dilemma%2F2010.08.19 Mary Carmichael of Newsweek had a great series of articles focusing on direct-to-consumer genetic testing. An excerpt: I’ve been following DTC genetics since 2007, when wide scanning first became available to the public. Since then, a number of writers have gotten wide-scale genetic tests and expounded on the results. Indeed, I sometimes wonder if I’m the last science reporter on earth with virgin genes. (Technical virgin: My doctor gave me a cystic fibrosis carrier test when I was pregnant.) Initially, I put off getting a full-genome scan because I wasn’t sure how useful such a test would be. I had no particular reason to take one, save curiosity. I wouldn’t expect to find anything serious and potentially life-altering like the Huntington’s disease gene in my results, because ... Better Health blogs http://www.medworm.com/rss/comments.php?id=3885345 Thu, 19 Aug 2010 16:00:08 +0100 3885345 http://www.medworm.com/index.php?rid=2415639&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F_lK0-s4kndM%2F People outside the United Kingdom may not be familiar with Chris Woodhead, but he was the Chief Inspector of Schools in the UK who reported in 195 that some 15,000 UK teachers were incompetent and should be replaced. Five years after, Woodhead resigned from his position after he had several altercations with the then Secretary of Education. Almost ten years later, Woodhead is stirring up new controversies in The Guardian interview and in his book “The Desolations of Learning”. Do genes dictate success in school? Woodland says that children have differing abilities that the current British school system do not take into account when putting children together in classes. So what happens? Smarter children do worse after 4-5 years because these children succumb to the peer pressure to be ... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=2415639 Sat, 16 May 2009 12:51:00 +0100 2415639 http://www.medworm.com/index.php?rid=2349271&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FKh3crT2YFwY%2F In recent years, more and more genetic tests and therapies have become available for patients, physicians and the interested individual. But how does one know which tests to take or are appropriate for one’s condition? And what do we do after we have the test results on our hands? Can our physician help us? Image: Newscom This March, the Genomic Medicine Institute was launched at El Camino Hospital in Monterey, California in response to the emerging opportunities and challenges that the genomic era has introduced. El Camino partnered with DNA Direct to become the first community hospital to integrate genomic medical services into its routine healthcare and provide El Camino physicians and their patients with access to leading edge genomic-based technologies. I had the pleasure of talking... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=2349271 Mon, 13 Apr 2009 03:40:00 +0100 2349271 http://www.medworm.com/index.php?rid=2295401&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F9HA-95gyzhk%2F Competition is certainly good for us. One by one, the big league universities in the Boston neighborhood are going OPEN ACCESS. Open access to publications. Image: sxc.hu Open access publishing means that research works can be read (online) and used freely by the public without paying subscription fees to journals and publishers. I know personally how expensive it is to subscribe to just one journal, and the information from abstracts are really so limited that having more open access journals is just good for the science. Last January, the University of California and publication giant Springer agreed to have articles written by UP-affiliated authors to be published immediately and in full, even if the rest of Springer’s articles remain subscription-only. In early February, Harvard Univ... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=2295401 Fri, 27 Mar 2009 20:49:14 +0100 2295401 http://www.medworm.com/index.php?rid=2232797&cid=t_191048_87_f&fid=35052&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FWomensBioethicsBlog%2F%7E3%2FPG-D0IS3VgY%2Fconference-announcement-living-in.html SAINT LOUIS UNIVERSITY SCHOOL OF LAW 21st Annual Health Law Symposium Friday, March 20, 2009 8 a.m. to 4 p.m. William H. Kniep Courtroom Advances in genetic technology raise a broad range of legal, social and ethical concerns. Fear of genetic discrimination remains an issue, as evidenced by the passage of GINA, the Genetic Information Nondiscrimination Act of 2008, which limited the use of genetic information by employers and health insurance providers. Other concerns include the meaning and uses of genetic knowledge in the face of uncertain choices; the significance of genetic information for ideas of self, family and community; and the challenges of genetic enhancement and personalized genomic medicine. This Symposium gathers leading experts and scholars from fields including law, med... Women's Bioethics Blog blogs http://www.medworm.com/rss/comments.php?id=2232797 Wed, 04 Mar 2009 21:26:23 +0100 2232797 http://www.medworm.com/index.php?rid=1870869&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2FdUNDxsv4sLk%2F Complete Genomics launched this week with an announcement to provide a person’s entire genetic sequence for $5,000 each. The company’s ultimate goal is to sequence 1 million complete genomes, or 1,000 people each in 1,000 disease studies, in the hopes of revealing the genetic basis behind major human diseases. From a scientist’s point of view, this is exactly the data and perhaps sample size we need to study the role of genetics on development and cause of disease. It would be a nightmare to analyze, but it won’t be for lack of data, if the sequence will be made available across different studies. But it’s another story from an individual’s point of view. Having a complete sequence of one’s genome will identify all the genetic mutations and alleles... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1870869 Sun, 12 Oct 2008 13:18:49 +0100 1870869 http://www.medworm.com/index.php?rid=1809923&cid=t_191048_129_f&fid=35709&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FUniqueButNotAlone%2F%7E3%2F396849200%2Flive-from-arlington-va.html I'm live from Arlington, VA at the Alpha-1 Foundation's Critical Issues Workshop: The Promise and Challenge of GINA: Is it time for Newborn Screening for Alpha-1? I was honored to have been invited... [[ This is a content summary only. Visit my website for full links, other content, and more! ]] (Source: Unique But Not Alone) Unique But Not Alone blogs http://www.medworm.com/rss/comments.php?id=1809923 Fri, 19 Sep 2008 02:53:00 +0100 1809923 http://www.medworm.com/index.php?rid=1531060&cid=t_191048_87_f&fid=34825&url=http%3A%2F%2Fwww.wesleyjsmith.com%2Fblog%2F2008%2F06%2Fgenetic-information-non-discrimination.html Little noted, but hopefully long remembered, the Congress passed and President Bush recently signed, the Genetic Information Non Discrimination Act of 2008. Given the ability now to quickly test the genetic makeup of each and every one of us--with or without permission--doing our best to make sure that the information thereby gained isn't abused is a matter of some urgent concern.Little has been reported about the contents of the bill. Now, a helpful article in the New England Journal of Medicine tells us what is included--and what isn't. From the article: What GINA does:- Prohibits group and individual health insurers from using a person's genetic information in determining eligibility or premiums- Prohibits an insurer from requesting or requiring that a person undergo a genetic test- Pro... Secondhand Smoke blogs http://www.medworm.com/rss/comments.php?id=1531060 Thu, 19 Jun 2008 15:37:00 +0100 1531060 http://www.medworm.com/index.php?rid=1461014&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F295870048%2F Thank you to Alyssa Friedland  from Genetic Alliance for this press release - a momentous occasion in the field of genetics.  I have decided to issue the press release in its entire form.  You may think me biased but the arguments put forward in the statement are cogent, well thought out and they echo my own opinions. What we need to do now is ensure that we take a responsible approach to this legislation and continue to ensure that the field of genetics is introduced into mainstream medicine ethically and to the highest clinical standards. Elaine Warburton   www.geneticsandhealth.com ******************************************************* President Bush Signs Landmark Genetic Nondiscrimination Information Act Into Law The Coalition for Genetic Fairness (http://www.geneticfairness.or... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1461014 Thu, 22 May 2008 14:42:12 +0100 1461014 http://www.medworm.com/index.php?rid=1461172&cid=t_191048_129_f&fid=35709&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FUniqueButNotAlone%2F%7E3%2F295520623%2Falpha-1-foundation-association.html Alpha-1 Foundation, Association Celebrate GINA signing; Plans Under Way to Discuss Implications, Opportunities for Alpha-1 Detection MIAMI – The Alpha-1 Foundation and Alpha-1 Association today... [[ This is a content summary only. Visit my website for full links, other content, and more! ]] (Source: Unique But Not Alone) Unique But Not Alone blogs http://www.medworm.com/rss/comments.php?id=1461172 Thu, 22 May 2008 03:23:00 +0100 1461172 http://www.medworm.com/index.php?rid=1454749&cid=t_191048_129_f&fid=35709&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FUniqueButNotAlone%2F%7E3%2F294185665%2Fgenetic-information-nondiscrimination.html President Bush will sign the Genetic Information Nondiscrimination Act (GINA) into law tomorrow. One of my Alpha-1 pals, Dennis, who actively lobbied for this historic legislation will be in... [[ This is a content summary only. Visit my website for full links, other content, and more! ]] (Source: Unique But Not Alone) Unique But Not Alone blogs http://www.medworm.com/rss/comments.php?id=1454749 Tue, 20 May 2008 10:54:00 +0100 1454749 http://www.medworm.com/index.php?rid=1439988&cid=t_191048_129_f&fid=35709&url=http%3A%2F%2Ffeeds.feedburner.com%2F%7Er%2FUniqueButNotAlone%2F%7E3%2F289408459%2Fin-home-stretch.html The following article will appear in an upcoming issue of the Alpha-1 News. Please enjoy this advance copy. Alpha-1 Association copyrights apply. On two recent beautiful spring days, the "Ayes" went... [[ This is a content summary only. Visit my website for full links, other content, and more! ]] (Source: Unique But Not Alone) Unique But Not Alone blogs http://www.medworm.com/rss/comments.php?id=1439988 Tue, 13 May 2008 12:12:00 +0100 1439988 http://www.medworm.com/index.php?rid=1426503&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F285268125%2F   Scientists and policy developers at the Translating ELSI, Ethical Legal Social Implications of Human Genetics Research conference have been mulling over the myriad of ethical arguments over testing and storing our kids’ DNA. The biggest driver for the advancement of genetic testing is the ‘early detection improves outcomes’ argument and if an individual is found to be at risk of a particular disease then life-long surveillance is a remedy. However, consider the scenario that you’ve just discovered that your 9 year old daughter has a risk of developing breast and ovarian cancer and your 6 year son is at risk of early-onset Alzheimer’s.  Where do you go for advice? What can you do? Another unique consideration is what happens to the biobank samples in... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1426503 Wed, 07 May 2008 10:15:58 +0100 1426503 http://www.medworm.com/index.php?rid=1426504&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F285259938%2F Following my recent article on ethical guidelines for informed consent in genomic studies, a group of scientists met at the Translating ESLI conference in Cleveland to debate this whole ethical argument. This issue is particularly critical for genome-wide association studies and in establishing and using large biobanks. It was universally acknowledged that consent forms are difficult to read for participants who do not have reading skills beyond middle school or high school, for example. As a result, these paticipants may be unaware of what exactly the research could mean to them. Laura Beskow, a researcher at Duke University’s Institute for Genome Sciences and Policy worked with the Association of American Medical Colleges to start a working group on informed consent issues and what ... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1426504 Wed, 07 May 2008 09:57:34 +0100 1426504 http://www.medworm.com/index.php?rid=1411868&cid=t_191048_136_f&fid=36032&url=http%3A%2F%2Fblog.healthtalk.com%2Fbreast-cancer%2Flife-with-breast-cancer%2Fgenetic-information-nondiscrimination-act-passed%2F This bill has been 10 years in the making, but last week all the time and effort from those that support the Genetic Information Nondiscrimination Act paid off. I have written extensively about BRCA genetic testing for breast cancer and how it saved my sister’s life and helped me to decide on a prophylactic mastectomy. I have also encouraged other survivors to get tested. One of the major stumbling blocks for many (justifiably) was the genuine concern that knowing they had a predisposition to breast cancer would also mark them for discrimination from health insurance companies and employers. That fear, my dear friends, is no longer a threat. The passing of this bill means that employers cannot ask for this information, and neither can health insurance providers. In the recent past, if yo... Life with Breast Cancer blogs http://www.medworm.com/rss/comments.php?id=1411868 Wed, 30 Apr 2008 23:21:21 +0100 1411868 http://www.medworm.com/index.php?rid=1369701&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F269835053%2F   The Washington Post featured a series of thought-provoking articles in ‘The Science Century’ section of the newspaper.  Here are some of my favourites: The Post’s Joel Achenbach writes about how “the most important things happening in the world today…[will] be happening in laboratories — out of sight, inscrutable and unhyped until the very moment when they change life as we know it.” http://www.washingtonpost.com/wp-dyn/content/article/2008/04/11/AR2008041103328.html Ronald M. Green, the author of “Babies by Design: The Ethics of Genetic Choice,” asks, “Why should we think that the human genome is a once-and-for-all-finished, untamperable product? All of the biblically derived faiths permit human beings to improve on nature us... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1369701 Mon, 14 Apr 2008 06:56:29 +0100 1369701 http://www.medworm.com/index.php?rid=1367939&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F268841505%2F G&H’s INTERVIEW WITH NAVIGENICS Navigenics approached Genetics and Health for an interview. With so much written about similar genomics companies such as 23andme, Knome, deCODE genetics, I was intrigued to learn more about this company.  In particular, Navigenics appears to be the only company within this industry genre who provides a comprehensive wellness model – a healthcare model that Opaldia, the genetic screening and health surveillance company I founded, endorsed whole-heartedly.  I interviewed Navigenics’ Medical Director Dr Michael A Nierenberg MD, clinical professor of medicine, emeritus at Stanford University to find out what makes Navigenics stand out amongst its competition.  He was most candid in his responses and the company has been open and transparent in ... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1367939 Sat, 12 Apr 2008 08:00:08 +0100 1367939 http://www.medworm.com/index.php?rid=1366717&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F268355754%2F Concluding G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the challenges faced by Navigenics to integrate its genomic services into mainstream medicine …  When founding my old company Opaldia, probably the single most challenging aspect of early adoption of genetic testing was physician barriers.  Mostly this was borne out of a genuine lack of understanding about the field of genetics but also concerns that testing was too much in its infancy and tests had not been subject to rigorous clinical evaluation.  Time and again the phrase ‘not undergone prospective trials’ was used as a defense against bringing genetic testing into mainstream medical practice.  I was interested to learn how Navigenics proposed to ove... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1366717 Fri, 11 Apr 2008 13:00:29 +0100 1366717 http://www.medworm.com/index.php?rid=1366718&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F268294755%2F Continuing G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the whole issue of privacy, insurance, GINA and ethics….. One of the main consumer concerns is that of privacy of information, both in terms that a genetic test has been undertaken but also that the results of the test are kept private and out of the public domain.  At the time of writing, the controversial GINA (Genetic Information Non-discrimination Act) is being passed by the US Senate which will enable genetic testing information to be kept private and not be used to discriminate against an individual, particularly by the insurance industry.  The insurance industry is understandable against the Bill.  Dr Nierenberg. Navigenics’ Medical Director, ad... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1366718 Fri, 11 Apr 2008 08:00:40 +0100 1366718 http://www.medworm.com/index.php?rid=1349624&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F263545811%2F Icelandic company deCode Genetics has announced it has signed a Letter of Intent to offer its genetic testing products to US Preventative Medicine customers. US Preventative Medicine is a Dallas based company. The company has developed a suite of prevention, early detection and chronic condition management products and services that improve health outcomes while reducing health care costs.  It’s products are as follows: “The signing of the letter of intent with DeCode is significant because we will be the first entity in the US and internationally to offer a full continuum of geographically dispersed, comprehensive solutions for personalized medicine,” Christopher Fey, chairman and CEO of US Preventive Medicine, said in a statement. Elaine Warburton www.geneticsandhealth.com Ta... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1349624 Thu, 03 Apr 2008 20:24:25 +0100 1349624 http://www.medworm.com/index.php?rid=1314161&cid=t_191048_131_f&fid=34989&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FGeneticsHealth%2F%7E3%2F254276298%2F Following my recent article titled “Genetic testing - ‘recreational genomics’ or the future of diagnostics”, I queried why doctors were finding it challenging to provide their patients with adequate information on genetic testing and I questioned whether there should be increased availability of training courses to help support doctors. On cue, a report published in JAMA concludes just that … although doctors know quite a bit about genomic medicine, it is still not being integrated into their clinical practice.  The report also argues that genomic medicine should be a part of the risk assessment and treatment of common chronic diseases such as cardiovascular disease, diabetes mellitus, and cancer. In this systematic review, Dr Maren T. Scheuner, M.D., M.... Genetics and Health blogs http://www.medworm.com/rss/comments.php?id=1314161 Wed, 19 Mar 2008 13:13:21 +0100 1314161