MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'health data rights'. Sat, 03 Sep 2011 02:56:36 +0100 http://www.medworm.com/index.php?rid=3621681&cid=t_249409_87_f&fid=39187&url=http%3A%2F%2Fgetbetterhealth.com%2Fhealth-journalism-gems-you-shouldnt-miss%2F2010.06.02 A couple of health journalism gems you shouldn’t miss just because they were published over the holiday weekend: Natasha Singer of the New York Times had an important piece, “When Patients Meet Online, Are There Side Effects?,” about privacy concerns when social networking sites like CureTogether.com and PatientsLikeMe.com offer online communities for patients and collect members’ health data for research purposes. John Fauber of the Milwaukee Journal-Sentinel published another in his “Side Effects” series on conflicts of interest in healthcare. This one was about doctors vouching for the drug Multaq for treating atrial fibrillation without ever having seen all of the data. The Minneapolis Star Tribune began a “Too Much Medicine” series. Heal... Better Health blogs http://www.medworm.com/rss/comments.php?id=3621681 Wed, 02 Jun 2010 14:00:47 +0100 3621681 http://www.medworm.com/index.php?rid=2576525&cid=t_249409_87_f&fid=38368&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FDisruptiveWomenInHealthCare%2F%7E3%2F3nehSvGIZeo%2F This is a very difficult decision for me. I have not joined in the large group of friends, peers, and mentors in the health and tech world endorsing the draft of Health Data Rights as they currently exist. Here’s the current draft: http://www.healthdatarights.org/home Why not? It’s not a difficult question to answer, but the answer is difficult to share openly. This is my patienthood we’re talking about here. That has been, historically, a huge compositional element of my personhood in total. I can’t take this one lightly and start throwing smoke bombs at store windows without thinking it through very carefully. When I saw the first draft, I immediately began looking at other Bills of Rights, including the US Constitution. I thought about what Bills of Rights are su... Disruptive Women in Health Care blogs http://www.medworm.com/rss/comments.php?id=2576525 Mon, 06 Jul 2009 15:15:52 +0100 2576525 http://www.medworm.com/index.php?rid=2513149&cid=t_249409_150_f&fid=38374&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2FEPharmaSummit%2F%7E3%2FNA3r1Vbq5G0%2Fhealthdatarights-looks-to-help-patients.html (Source: ePharma Summit) ePharma Summit blogs http://www.medworm.com/rss/comments.php?id=2513149 Wed, 24 Jun 2009 21:13:00 +0100 2513149 http://www.medworm.com/index.php?rid=2523622&cid=t_249409_134_f&fid=34841&url=http%3A%2F%2Fwww.diabetesmine.com%2F2009%2F06%2Fgrassroots-upheaval-a-declaration-of-patients-rights-to-health-data.html A new initiative, launched today at HealthDataRights.org, brings together all manner of patients’ rights activists — doctors, researchers, software developers, writers, entrepreneurs, health economists, and of course, health and medical bloggers — calling for “the right to access all health data about ourselves, so we can make the most effective health decisions using the resources [...] (Source: Diabetes Mine) Diabetes Mine blogs http://www.medworm.com/rss/comments.php?id=2523622 Tue, 23 Jun 2009 01:02:00 +0100 2523622