MedWorm provides a medical RSS filtering service. Over 6000 RSS medical sources are combined and output via different filters. This feed contains the latest medical blog items that have been tagged with 'iacc'. Sat, 03 Sep 2011 02:49:27 +0100 http://www.medworm.com/index.php?rid=3519641&cid=t_118241_133_f&fid=37107&url=http%3A%2F%2Fwww.aspieweb.net%2Flive-reporting-from-iacc%2F Autism Self-Advocate Alex Plank is at the Inter-agency Autism Coordinating Committee and he is reporting whats going on live to the internet!    Plank is best known as the founder of Autism Support Website Wrongplanet.net.  You can follow his live reporting on his twitter account.  To keep up to date on the latest Autism and Aspergers [...] (Source: AspieWeb.net) AspieWeb.net blogs http://www.medworm.com/rss/comments.php?id=3519641 Fri, 30 Apr 2010 16:08:36 +0100 3519641 http://www.medworm.com/index.php?rid=2111115&cid=t_118241_133_f&fid=37107&url=http%3A%2F%2Ffeedproxy.google.com%2F%7Er%2Faspieweb%2F%7E3%2F2slZT01_eD0%2F It appears Allison Singer has resigned from Autism Speaks as she voted against the organizations wishes at the Interagency Autism Coordinating Committee.  Autism Speaks released a statement about this, to which I edited to show the true story. Autism Speaks today decried like a baby wanting attention in regards to a vote by the Interagency [...] This is an excerpt from an article on AspieWeb.net, A blog writen by an Autistic Blogger. (Source: AspieWeb.net) AspieWeb.net blogs http://www.medworm.com/rss/comments.php?id=2111115 Fri, 16 Jan 2009 14:30:05 +0100 2111115 http://www.medworm.com/index.php?rid=2061069&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2FTFCtm7qFf4s%2F Discussion continues about autism legislation, and is going to continue here in the US under a new administration. One piece of federal autism legislation that has been passed here is the 2006 Combating Autism Act (CAA), under which the Interagency Autism Coordinating Committee (IACC) was charged to create a Strategic Plan for research in autism spectrum disorders. (Regarding how the CAA was voted on and passed, and on its unfortunate name, go here.) Over the past year-plus, the IACC has been developing a draft of the Strategic Plan. This draft was reviewed at the IACC’s November 21st meeting and, as review of the plan was not completed, the IACC met again on December 12th to continue review of the draft Strategic Plan and, per the agenda, to discuss cost estimates. The IACC will be ... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=2061069 Tue, 23 Dec 2008 07:59:08 +0100 2061069 http://www.medworm.com/index.php?rid=2033258&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2F43dWxgLWU5o%2F Earlier this week, mega-autism-organization Autism Speaks announced the appointment of three new board members, Artie Kempner, lead director for the NFL and NASCAR on FOX; Billy Mann, President of International A & R - Labels and President of Global Artist Management, EMI Music; and Jack Schneider, managing director of Allen & Co.. Kempner and Mann are both fathers of autistic children. It’s been noted (by Lisa Jo Rudy at About.com) that the new board members include no one who’s autistic. With the rise of self-advocacy organizations like ASAN, and also GRASP and many others, the absence of an autistic member on Autism Speaks’ board seems more and more puzzling. The Interagency Autism Coordinating Committee lists Stephen Shore, a self-advocate, on its roster, and ... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=2033258 Sat, 13 Dec 2008 07:51:20 +0100 2033258 http://www.medworm.com/index.php?rid=2033262&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2Fmrd9ldllxJQ%2F The Interagency Autism Coordinating Committee (IACC) is meeting today from 9am to 4pm, at the National Institutes of Health Neuroscience Center, Conference Room A (6001 Executive Boulevard, Rockville, MD 20892). You can listen in virtually via a webinar: Use this link: https://www1.gotomeeting.com/register/446892042 Or, you can attend via conference call at these numbers: USA/Canada Phone Number: 888-455-2920 International Phone Number: 212-287-1838 Access code: 3857872 The agenda for today’s meeting is to complete the review of the IACC Strategic Plan for ASD Research Strategic Plan. The Strategic Plan addressed six questions: 1) When should I be concerned? • What are the early warnings signs? • Are there typical characteristics that are part of an ASD diagnosis? • How much v... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=2033262 Fri, 12 Dec 2008 07:36:47 +0100 2033262 http://www.medworm.com/index.php?rid=2017841&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2FltH-dwmThgc%2F Next Wednesday, on December 10, from 2:00 p.m. to 5:30 p.m. ET, there will be a meeting of the Services Subcommittee of the Interagency Autism Coordinating Committee (IACC), to review public comments received in response to a completed Request for Information. When I attended the November 21st IACC meeting, a good part of the agenda was devoted to discussing services and the many needs of adults. You can view the meeting agenda and also see who is on the committee. The meeting is being held here: National Institutes of Health 9000 Rockville Pike Building 31 Conference Room 7 Bethesda, MD 20852 You can attend the meeting virtually via a webinar; to register and access it, go here: https://www1.gotomeeting.com/register/563207085 Or, to attend via a conference call, here’s the numbers: ... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=2017841 Fri, 05 Dec 2008 17:59:00 +0100 2017841 http://www.medworm.com/index.php?rid=1980897&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2Ft2YxqrfOdGU%2F If you weren’t able to listen in to yesterday’s meeting of the IACC meeting, this is a brief summary: In the morning, the committee members reviewed the draft of the Strategic Plan and “wordsmithed” various additions and revisions suggested by various members of the IACC. These revisions included: • the use of “may” or “can” in regard to describing the effects of Early Intervention • mention of “comorbid” and “co-occurring” (medical) conditions • a lengthy discussion about vaccines and about what science and evidence there is to refute or support a link (it was decided to include the statement “the weight of the available evidence does not support a link between autism and vaccines”—more details... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=1980897 Sat, 22 Nov 2008 05:01:30 +0100 1980897 http://www.medworm.com/index.php?rid=1980900&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2F_FoQ2GXr8XM%2F I’m on the train to Washington D.C., to attend a meeting of the Interagency Autism Coordinating Committee, which coordinates efforts concerning autism within the US Department of Health and Human Research. There’s a list of the federal and non-federal members of the IACC here; the committee has been overseeing the writing of the Strategic Plan for Autism Spectrum Disorders (ASD) Research. Over the past year, there have been numerous calls for input from “stakeholders”—from anyone concerned about autism—and other meetings of the IACC and of workgroups concerning various parts of the plan. I went to an IACC meeting just about a year ago and read this statement. While I wrote up and sent in a statement for today’s meeting, there apparently is not spac... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=1980900 Fri, 21 Nov 2008 11:37:24 +0100 1980900 http://www.medworm.com/index.php?rid=1837290&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2F-tslVH4zbL0%2F Tomorrow, September 30th, is the deadline to submit a comment regarding the Interagency Autism Coordinating Committee (IACC)’s Draft Strategic Plan for ASD Research. Feedback is sought from ASD stakeholders which means—as you’re reading this blog—you: individuals with ASD and their families, scientists, health professionals, therapists, educators, officials of state and local programs for ASD, and the public at large. The draft Strategic Plan can be accessed via this webpage (scroll down for a link to a PDF file). (The draft Strategic Plan does not include cost estimates for implementation; a workgroup has been formed to advise about the IACC budgetary requirements needed to fulfill the research objectives described in the draft Strategic Plan.) Responses to the pla... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=1837290 Mon, 29 Sep 2008 07:01:19 +0100 1837290 http://www.medworm.com/index.php?rid=1794453&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2FrP4_jcRG9Hw%2F At the risk of being repetitive: Be sure to get your feedback in to the Interagency Autism Coordinating Committee (IACC). Send in what you think about comments about autism services by September 19, and also your comments about the draft of the Strategic Plan for ASD Research by September 30. Also, you can go here to review the NIH’s Autism Spectrum Disorder Research Portfolio. Last year (FY 2007), the National Institutes of Health (NIH) devoted $127 million to research autism spectrum disorders through “grants, contracts, research projects conducted as part of the NIH Intramural Research Program, and other mechanisms of support.” In addition, NIH invested $3.9 million in the development of the National Database for Autism Research (NDAR). In FY 2006, $108 million was dev... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=1794453 Mon, 15 Sep 2008 16:42:30 +0100 1794453 http://www.medworm.com/index.php?rid=1720392&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2FCMVyfgFq-Ck%2F The Interagency Autism Coordinating Committee (IACC) coordinates research and efforts pertaining to autism spectrum disorder (ASD) within the Department of Health and Human Services (DHHS). On August 11th, the National Institute of Mental Health issued a Request for Information (RFI): Priorities for the IACC Services Subcommittee for Autism Spectrum Disorders (ASD): The purpose of this Request for Information (RFI) is to seek input from Autism Spectrum Disorders (ASD) stakeholders including individuals with ASD and their families, autism advocates, State officials, scientists, health professionals, therapists, educators, and the public at large about what they consider to be high-priority issues and concerns surrounding services and supports for children, youth, and adults with ASD. The IA... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=1720392 Wed, 20 Aug 2008 21:00:52 +0100 1720392 http://www.medworm.com/index.php?rid=1305361&cid=t_118241_133_f&fid=35096&url=http%3A%2F%2Ffeeds.b5media.com%2F%7Er%2Fb5media%2FAutismVox%2F%7E3%2F251876507%2F Today is the Ides of March, the 15th of March according to the Roman Calendar. On my own calendar, I had marked March 14th as the date of a meeting of the meeting of the Interagency Autism Coordinating Committee (IACC) in Washington, D.C.. I had attended the November meeting; here is the testimony of some who were at the meeting today: Joe Mele Alex Plank of Wrong Planet Ari Ne’eman of the Autistic Self-Advocacy Network Shakespeare highlighted March 15th in the phrase “Beware the Ides of March” in his play Julius Caesar, as the Roman ruler was indeed assassinated on the Ides of March in 44 B.C.. The date did not hold any sinister associations prior to that, though one of my students (who works as an EMT) proclaimed that larger than usual numbers of people in various sta... Autism Vox blogs http://www.medworm.com/rss/comments.php?id=1305361 Sat, 15 Mar 2008 09:17:48 +0100 1305361 http://www.medworm.com/index.php?rid=603683&cid=t_118241_133_f&fid=35083&url=http%3A%2F%2Fautismdiva.blogspot.com%2F2007%2F05%2Fsteering-autism-research-reprise.html A few months ago, in January, Autism Diva asked readers:Would you like to have a voice in how the National Institutes of Health (NIH) - National Institute of Mental Health (NIMH) spends it's autism research dollars?Autism Diva then gave some instructions on how one could send comments to the Interagency Autism Coordinating Committee regarding the state of autism research, telling them in which direction one would like to see it steered.Autism Diva was reading Michelle Dawson's QT board posts this morning and found that Michelle had shared news that the NIMH had just released a document called Evaluating Progress on the IACC Autism Research Matrix which includes a compilation of the feedback and directions they received from members of the public regarding how folks think that autism resear... Autism Diva blogs http://www.medworm.com/rss/comments.php?id=603683 Fri, 11 May 2007 06:56:00 +0100 603683