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Why you should be angry about changes to NHS patient data policy | Alice Bell
Our medical information will be uploaded to a central database. In some ways this makes sense, but the care.data project is cause for concern tooIf you live in England, a leaflet entitled "Better Information Means Better Care" should land on your doormat some time this month.It's from the NHS and announces changes to the way that health officials will handle confidential medical records. Health policy nerds may also know it as "care.data".From the spring, medical information about you that was previously only kept to help understand you as an individual – information from consultations, notes on prescriptions – will be...
Source: Guardian Unlimited Science - January 20, 2014 Category: Science Authors: Alice Bell Tags: Comment Data protection Data and computer security theguardian.com Privacy Health Health policy Society Technology Politics UK news NHS Science Comment is free Source Type: news

New Link in the Food Chain? Marine Plastic Pollution and Seafood Safety
Investigators are researching whether consumption of plastic debris by marine organisms translates into toxic exposures for people who eat seafood.© Alex RM/Alamy Different marine plastics resemble foods eaten at various trophic levels. These plastic bags look like the jellyfish eaten by turtles.© Norbert Wu/Minden Pictures/Corbis Plastic debris can travel far from its point of departure—this beach in Svalbard, Norway, for instance, is only about 600 miles from the North Pole. A 2014 study reported finding large quantities of microplastics frozen into Arctic ice.52© Ashley Coope...
Source: EHP Research - February 2, 2015 Category: Environmental Health Authors: Web Admin Tags: Featured Focus News Bisphenol A (BPA) Dioxins and Furans Ecology and Wildlife Endocrine Disruptors February 2015 Flame Retardants Food Safety and Regulation Marine and Coastal Science Nanomaterials Personal Care Products Phthalat Source Type: research

Bodily sense and sensibility: anosognosia, asomatognosia and anorexia
Aikaterini (Katerina) Fotopoulou PhD, is a Reader in Psychodynamic Neuroscience at the Psychology and Language Sciences Division, University College London. Funded by a Starting Investigator Grant from the European Research Council for the project ‘Bodily Self’, she runs KatLab, a group of researchers and students that conduct studies on topics and disorders that lie at the borders between neurology and psychology. See here for publications and our Lab's Campaign on further funding on ‘Body Image’ Neuroscientific Research: http://www.fotopoulou.com Katerina is also the Director of the London Neurops...
Source: Journal of Neurology, Neurosurgery and Psychiatry - August 13, 2015 Category: Neurosurgery Tags: Stroke, Eating disorders PRESENTATION ABSTRACTS - DAY 2 Source Type: research

Our Early Confusion About Airborne COVID-19 Transmission Still Haunts Us
Two years after the pandemic began, we finally have a good understanding of how COVID-19 is transmitted: some infected people exhale virus in small, invisible particles (aerosols). These do not fall quickly to the ground, but move in the air like cigarette smoke. Other people can get infected when breathing in those aerosols, either in close proximity, in shared room air, or less frequently, at a distance. But the journey to accepting the overwhelming scientific evidence of how COVID-19 spread was far too slow and contentious. Even today, the updated guidance and policies of how to protect ourselves remain haphazardly appl...
Source: TIME: Health - March 29, 2022 Category: Consumer Health News Authors: Linsey Marr and Jose-Luis Jimenez Tags: Uncategorized COVID-19 Source Type: news

Midwest Chapter: Sharing time and knowledge
By Merete Christianson Bismarck, ND I’m so thankful to have received the Student Outreach Award from the NN/LM GMR. Attending the Midwest MLA Conference was a terrific experience that allowed me to learn a lot and meet a number of great library professionals who were very generous sharing their time and knowledge. First on the to-do list at the conference was the CE Class “PubMed and the Evidence-Based Universe”, taught by Holly Ann Burt and Cleo Pappas. The world of evidence-based medicine is so vast and complex that it can be rather daunting at times trying to navigate it. But the course went a long way to help...
Source: The Cornflower - November 8, 2013 Category: Databases & Libraries Authors: Jacqueline Leskovec Tags: Conferences and Meetings Funding News from the Region Outreach Source Type: news

Deciding about fertility preservation after specialist counselling
STUDY QUESTION How do female patients experience fertility preservation (FP) consultation (FPC) with a specialist in reproductive medicine and subsequent decision-making on FP? SUMMARY ANSWER Most patients had positive experiences with FPC, but negative experiences were found to be associated with decisional conflict and decision regret. WHAT IS KNOWN ALREADY When confronted with a need for gonadotoxic treatment, girls and young women will have to make an irreversible decision with regard to FP. Patients may experience decisional conflict and develop regret about their decision during follow-up. Patients' opportunities t...
Source: Human Reproduction - July 10, 2014 Category: Reproduction Medicine Authors: Bastings, L., Baysal, O., Beerendonk, C. C. M., IntHout, J., Traas, M. A. F., Verhaak, C. M., Braat, D. D. M., Nelen, W. L. D. M. Tags: Psychology and counselling Source Type: research

Survey of 243 ART patients having made a final disposition decision about their surplus cryopreserved embryos: the crucial role of symbolic embryo representation
STUDY QUESTION In couples who have chosen and confirmed the fate of surplus frozen embryos, which factors influence their decision, with a special emphasis on their symbolic representation of the embryo(s)? SUMMARY ANSWER Embryo representation and gamete donation use significantly influence the fate of surplus cryopreserved embryos. WHAT IS KNOWN ALREADY Previous studies report difficulties for couples to decide whether or not to continue storing their frozen embryo(s) and different factors have been already highlighted which influence their decision, including embryo conceptualization, information and support provided b...
Source: Human Reproduction - June 9, 2016 Category: Reproduction Medicine Authors: Bruno, C., Dudkiewicz-Sibony, C., Berthaut, I., Weil, E., Brunet, L., Fortier, C., Pfeffer, J., Ravel, C., Fauque, P., Mathieu, E., Antoine, J. M., Kotti, S., Mandelbaum, J. Tags: Psychology and counselling Source Type: research

Female-partnered and single women's contact motivations and experiences with donor-linked families
STUDY QUESTION What are female-partnered and single mothers' motivations and experiences at one donor insemination (DI) program with regard to contacting other families who share the same sperm donor? SUMMARY ANSWER By and large, women reported seeking contact to obtain (i) support for their children and/or themselves, and (ii) information about shared traits and medical problems, ultimately describing a range of contact experiences, both positive (e.g. special bond created) and negative (e.g. uncomfortable encounters). WHAT IS KNOWN ALREADY There is a growing phenomenon of donor insemination families—parents and/o...
Source: Human Reproduction - May 19, 2015 Category: Reproduction Medicine Authors: Goldberg, A. E., Scheib, J. E. Tags: Psychology and counselling Source Type: research

Data Science and Visualization Institute for Librarians
Apply now!  The Data Science and Visualization Institute for Librarians is accepting applications from December 12, 2016 through January 27, 2017.  Applicants will be notified of their acceptance status no later than February 17, 2017. This institute qualifies  for NN/LM MCR Professional Development funding. The Institute will be held April 24 – 28, 2017 at the James B. Hunt Jr. Library, North Carolina State University in Raleigh, North Carolina. The Data Science and Visualization Institute for Librarians is a week-long course providing the opportunity for librarians passionate about research and scholarship to im...
Source: MCR News - December 19, 2016 Category: Databases & Libraries Authors: liaison Tags: Community College/Academic Libraries Data Science Funding Health Sciences Webinars and Training Source Type: news

Stand Up for Health: Health and Wellness Services for Your Community PLA Pre-Conference Workshop, Philadelphia, PA, March 20, 2018
Written for Midwest Matters by Sherri McConnell What happens when a roomful of librarians get together to talk, eat and breathe health and wellness for a day? You get enthusiastic conversation, lots of ideas and determination to create programming at their home libraries. On March 20 over 80 librarians from all over the country got together at a Public Library Association pre-conference workshop to learn about health information from knowledgeable NNLM staff and to learn from each other. Participating in the workshop and doing a little homework earned you the Consumer Health Information Specialist certification from the M...
Source: The Cornflower - April 10, 2018 Category: Databases & Libraries Authors: Bobbi Newman Tags: Public Libraries libs4health PLA2018 public libraries and health stand up for health Success Stories Source Type: news

Arterial stiffness and chronic kidney disease: lessons from the Chronic Renal Insufficiency Cohort study
Purpose of review: The purpose of this review is to highlight what the Chronic Renal Insufficiency Cohort (CRIC) study has taught us regarding arterial stiffness in chronic kidney disease. The CRIC study began in mid-2003 and enrolled more than 3900 people with chronic kidney disease. Recent findings: The recent findings from the CRIC study are covered in 10 lessons. Within the CRIC study, we enrolled about 2800 participants who underwent a pulse wave velocity measurement. At the time of initial funding, very little was known about the role of arterial stiffness in chronic, nondialyzed, kidney disease. The lessons span the...
Source: Current Opinion in Nephrology and Hypertension - December 4, 2014 Category: Urology & Nephrology Tags: CIRCULATION AND HEMODYNAMICS: Edited by Matthew R. Weir and Roland C. Blantz Source Type: research

Global Advocacy and Communications Effort Launched to Drive Action Against COVID-19 and Stop Future Pandemics
April 22, 2020, Seattle, WA – A network of leading international organizations announced today the creation of an advocacy initiative to ignite a global movement to help accelerate an end to the COVID-19 pandemic and enhance our preparedness to stop future pandemics. The Pandemic Action Network will advocate for policy changes and increased support and resources to ensure countries are better prepared to prevent, detect and respond to pandemic threats. This initiative will also host “For Humankind”, a new effort to promote accurate information to ensure people around the world understand what they need to do to prote...
Source: Johnson and Johnson - April 23, 2020 Category: Pharmaceuticals Tags: Innovation Source Type: news

Trends in lifetime risk and years of life lost due to diabetes in the USA, 1985–2011: a modelling study
Publication date: November 2014 Source:The Lancet Diabetes & Endocrinology, Volume 2, Issue 11 Author(s): Edward W Gregg , Xiaohui Zhuo , Yiling J Cheng , Ann L Albright , K M Venkat Narayan , Theodore J Thompson Background Diabetes incidence has increased and mortality has decreased greatly in the USA, potentially leading to substantial changes in the lifetime risk of diabetes. We aimed to provide updated estimates for the lifetime risk of development of diabetes and to assess the effect of changes in incidence and mortality on lifetime risk and life-years lost to diabetes in the USA. Methods We incorporated da...
Source: The Lancet Diabetes and Endocrinology - December 5, 2014 Category: Endocrinology Source Type: research

Cochlear Implantation Among Deaf Children With Additional Disabilities: Parental Perceptions of Benefits, Challenges, and Service Provision
This study examines perceptions among parents of deaf children with additional disabilities regarding satisfaction with service provision, benefits, and challenges of the CI process. This was a mixed-methods study, which included a survey and interviews. Twenty-three families of deaf children with additional disabilities participated in this study, and 17 of these parents participated in in-depth interviews regarding their child’s experience with the CI, including benefits and challenges. Interviews were analyzed through inductive thematic analysis. Parent-perceived benefits of cochlear implantation included children...
Source: Journal of Deaf Studies and Deaf Education - January 13, 2015 Category: Audiology Authors: Zaidman-Zait, A., Curle, D., Jamieson, J. R., Chia, R., Kozak, F. K. Tags: Empirical Manuscript Source Type: research

Family intentions and personal considerations on postponing childbearing in childless cohabiting and single women aged 35-43 seeking fertility assessment and counselling
This study also received funding through the Capital Region Research Fund. The authors have no conflict of interest. TRIAL REGISTRATION NUMBER Not applicable.
Source: Human Reproduction - October 14, 2015 Category: Reproduction Medicine Authors: Birch Petersen, K., Hvidman, H. W., Sylvest, R., Pinborg, A., Larsen, E. C., Macklon, K. T., Andersen, A. N., Schmidt, L. Tags: Psychology and counselling Source Type: research