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Advance care planning for patients with cancer and family caregivers in Indonesia: a qualitative study
Individuals ’ willingness to engage in advance care planning is influenced by factors such as culture and religious beliefs. While most studies on advance care planning in Asia have been performed in high-incom...
Source: BMC Palliative Care - November 22, 2022 Category: Palliative Care Authors: Diah Martina, Christina Yeni Kustanti, Rahajeng Dewantari, Noorwati Sutandyo, Rudi Putranto, Hamzah Shatri, Christantie Effendy, Agnes van der Heide, Carin C. D. van der Rijt and Judith A. C. Rietjens Tags: Research Source Type: research

Terminally Ill African American Elders' Access to and Use of Hospice Care.
Abstract The underuse of hospice care by terminally ill African American elders suggests they are suffering when hospice care could offer quality end of life care. Guided by the Behavioral Model for Vulnerable Populations, this study sought understanding of structural barriers faced when seeking access to hospice care and reasons for using it when access is possible. Data was collected through interviews with 28 African American hospice patients. Themes from directed content analysis provide insights into strategies used to overcome access barriers posed by income, health insurance and administrative procedure, as...
Source: The American Journal of Hospice and Palliative Care - January 10, 2014 Category: Palliative Care Authors: Noh H, Schroepfer TA Tags: Am J Hosp Palliat Care Source Type: research

Knowledge and Attitude Towards Organ Donation in Muslim Patients and Their Families in Hospice Care: A Pakistani Perspective (S780)
Organ donation occurs infrequently within palliative care. Cultural and religious beliefs may have a major impact on willingness to organ donation in hospice care.
Source: Journal of Pain and Symptom Management - January 25, 2015 Category: Palliative Care Authors: Waseem Raja, Muhammad Khan Source Type: research

Terminally Ill African American Elders' Access to and Use of Hospice Care
The underuse of hospice care by terminally ill African American elders suggests they are suffering when hospice care could offer quality end of life care. Guided by the Behavioral Model for Vulnerable Populations, this study sought understanding of structural barriers faced when seeking access to hospice care and reasons for using it when access is possible. Data was collected through interviews with 28 African American hospice patients. Themes from directed content analysis provide insights into strategies used to overcome access barriers posed by income, health insurance and administrative procedure, as well as the role ...
Source: American Journal of Hospice and Palliative Medicine - April 12, 2015 Category: Palliative Care Authors: Noh, H., Schroepfer, T. A. Tags: Original Articles Source Type: research

P048 Beliefs and Experiences of Patients Receiving Specialist Palliative Care, and Their Physicians, on the Use of Cannabis and Synthetic Cannabinoids
There has been much media coverage of the use of cannabis and synthetic cannabinoids for numerous ailments, as well as debate on legislation and prescribing. Some physicians prescribe cannabis or synthetic cannabinoids at their patients' request; others may recommend their use as part of symptom management.
Source: Journal of Pain and Symptom Management - November 30, 2016 Category: Palliative Care Authors: Amrish Joshi, Pippa Hawley Tags: Complementary Therapies and New Natural Analgesics Source Type: research

Abstract 151: End-of-Life Care for Left Ventricular Assist Devices: Differing Perspectives of Cardiology and Palliative Care and Hospice Providers Session Title: Abstract Poster Session I and Reception
Conclusion: Cardiology providers and palliative care/hospice providers collectively have different perceptions on management of end of life in patients with an LVAD. Bridging the gaps between these two disciplines is a critical first step in creating a more cohesive approach to end-of-life care for these patients—one that honors autonomy but respects individual provider comfort levels.
Source: Circulation: Cardiovascular Quality and Outcomes - February 26, 2016 Category: Cardiology Authors: McIlvennan, C. K., Wordingham, S. E., Allen, L. A., Matlock, D. D., Jones, J., Dunlay, S. M., Koepp, K. E., Swetz, K. M. Tags: Session Title: Abstract Poster Session I and Reception Source Type: research

Spirituality, Religion, and Medicine Education for Internal Medicine Residents.
CONCLUSIONS: Most internal medicine residents have positive attitudes toward spirituality, religion, and medicine. They do not have adequate knowledge or skill to care for patients in this area, however. Implementation of a curriculum in spirituality, religion, and medicine improved resident self-reported knowledge. Future work should focus on revising the curriculum to better improve resident knowledge and skill. PMID: 31462061 [PubMed - as supplied by publisher]
Source: The American Journal of Hospice and Palliative Care - August 27, 2019 Category: Palliative Care Authors: Piscitello GM, Martin S Tags: Am J Hosp Palliat Care Source Type: research

Law, Culture, and Fear: A Qualitative Study of Health Professionals' Perceptions of Narcotic Use Related to Cancer Pain.
This study aimed to explore health professionals' perspectives regarding opioid use for cancer patients in Qatar. Eight focus groups were conducted with physicians, pharmacists, and nurses. An eight-question topic guide framed discussions and targeted contextual barriers and cultural beliefs. Focus groups were audio-recorded and transcribed verbatim. Thematic analysis was used to identify the following themes: narcotic use process, patient-related factors, and healthcare professional-related factors. Laws and regulations were identified as major barriers to appropriate narcotic access, prescribing, and administration. Gove...
Source: Journal of Pain and Palliative Care Pharmacotherapy - February 25, 2020 Category: Palliative Care Tags: J Pain Palliat Care Pharmacother Source Type: research

IJERPH, Vol. 18, Pages 8081: The Relationship between Practitioners and Caregivers during a Treatment of Palliative Care: A Grounded Theory of a Challenging Collaborative Process
rozzi The possibility of coming to a “good death” is a challenging issue that crosses ethical and religious beliefs, cultural assumptions, as well as medical expertise. The provision of palliative care for relieving patients’ pain is a practice that reshapes the path to the event of death and gives form to a particular context of awareness, recalling the notion proposed by Glaser and Strauss. This decision redesigns the relationships between patients, practitioners and caregivers and introduces a new pattern of collaboration between them. Our study focuses on the implications of the collaboration between practiti...
Source: International Journal of Environmental Research and Public Health - July 30, 2021 Category: Environmental Health Authors: Paolo Rossi Matteo Crippa Gianlorenzo Scaccabarozzi Tags: Article Source Type: research

Continuation of Hemodialysis in a Patient With Global Hypoxic Brain Injury: Ethical Considerations and Factors That May Influence Decision Making
Survivors of an out-of-hospital cardiac arrest are at a high risk of mortality and morbidity especially when there is resultant global hypoxic brain injury. In these situations, the patient's degree of neurologic recovery may be uncertain and family decision making is often difficult. Decision making may also be complicated by the age of the patient and one's underlying cultural and spiritual beliefs stressing the importance of patient- and family-centered care. In this article, this clinical case demonstrates the challenges in decision making and highlights the importance of communication among the health care team and th...
Source: Journal of Hospice and Palliative Nursing - February 27, 2022 Category: Nursing Tags: Ethics Series Source Type: research

Burden of respiratory problems in low-income and middle-income countries
We report global estimates of respiratory problems amongst adults in LMICs and recent findings relating to community prevalence and impact of respiratory problems. We conclude by identifying research priorities for improved recognition and palliation of respiratory problems. Recent findings We report findings from 16 studies, highlighting key issues relevant to burden of respiratory problems in LMICs. COPD and associated symptoms are identified as important drivers of increasing respiratory problems in LMICs, with an estimated prevalence of 7.2%. Negative impacts of respiratory diseases include: reduced physical fun...
Source: Current Opinion in Supportive and Palliative Care - November 15, 2022 Category: Palliative Care Tags: RESPIRATORY PROBLEMS: Edited by Magnus Ekström and Morag Farquhar Source Type: research

A pilot study about female adolescent/young childhood cancer survivors' knowledge about reproductive health and their views about consultation with a fertility specialist.
This study aims to measure female CCSs' knowledge about their reproductive health and their exposure to and views about reproductive counseling (RC). Method: This is a cross-sectional, web-survey study of female CCSs aged 18 to 45 years who were diagnosed with cancer before age 21 years and currently had no evidence of disease. Results: Fifty-six CCSs participated (response rate = 48%; mean current age = 26). Knowledge about reproductive health after cancer treatment was severely limited within this sample of highly educated survivors (91% educated beyond high school), who provided correct answers only 32% of the time....
Source: Palliative and Supportive Care - October 24, 2014 Category: Palliative Care Authors: Kim J, Mersereau JE Tags: Palliat Support Care Source Type: research

Formative assessment of oncology trainees' communication with cancer patients about internet information.
Abstract Objective: Cancer patients and their caregivers often turn to the internet for information and support following a cancer diagnosis. Research shows a need for improvement in doctors' communication with patients about internet information. The purpose of this formative assessment was to evaluate oncology trainees' skills in talking about internet information with cancer patients. Methods: Thirty-nine oncology trainees were evaluated in a baseline standardized patient assessment as part of their participation in the Comskil Training Program. As part of the assessment, standardized patients were instructed t...
Source: Palliative and Supportive Care - November 11, 2013 Category: Palliative Care Authors: Bylund CL, Sperka M, D'Agostino TA Tags: Palliat Support Care Source Type: research

Talking about sensitive topics during the advance care planning discussion: A peek into the black box.
Abstract OBJECTIVE: Advance care planning (ACP) discussions are emphasized as a valuable way of improving communication about end-of-life care. Yet we have very little knowledge of what goes on during actual ACP discussions. The aim of our study was to explore how the sensitive topics of end-of-life decisions are addressed in concrete ACP discussions, with special focus on doctor-patient interactions. METHOD: Following a discourse-analysis approach, the study uses the concept of doctor and patient "voices" to analyze 10 directly observed and audiotaped ACP discussions among patients, relatives, and a physicia...
Source: Palliative and Supportive Care - June 2, 2015 Category: Palliative Care Authors: Andreassen P, Neergaard MA, Brogaard T, Skorstengaard MH, Jensen AB Tags: Palliat Support Care Source Type: research

Factors influencing communication and decision-making about life-sustaining technology during serious illness: a qualitative study
Conclusions A focus on more meaningful and productive dialogue with patients and families by (and between) each member of the healthcare team may improve decisions about life-sustaining technology. Work is needed to acknowledge and support the non-curative role of healthcare and build capacity for the interprofessional team to engage in effective decision-making discussions.
Source: BMJ Open - May 22, 2016 Category: Journals (General) Authors: Kryworuchko, J., Strachan, P. H., Nouvet, E., Downar, J., You, J. J. Tags: Open access, General practice / Family practice, Medical education and training, Palliative care, Patient-centred medicine, Qualitative research Source Type: research