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Speech-Language Pathologists' Views About Aspiration Risk and Comfort Feeding in Advanced Dementia.
CONCLUSIONS: Speech-language pathologists have an important role within the interprofessional team in assessing swallowing in patients with advanced dementia, advising family and hospital staff about risks and benefits of oral feeding, and the safest techniques for doing so, to maximize quality of life for these patients near the end of life. Speech-language pathologists are often faced with balancing concerns about aspiration risk and recommending the more palliative approach of oral feeding for pleasure and comfort, potentially creating moral distress for the SLP. PMID: 31088132 [PubMed - as supplied by publisher]
Source: The American Journal of Hospice and Palliative Care - May 13, 2019 Category: Palliative Care Authors: Berkman C, Ahronheim JC, Vitale CA Tags: Am J Hosp Palliat Care Source Type: research

IJERPH, Vol. 19, Pages 11930: Failures in Reflective Functioning and Reported Symptoms of Anxiety and Depression in Bereaved Individuals: A Study on a Sample of Family Caregivers of Palliative Care Patients
Conclusions. Overall, the results of this study point out that the bereaved individuals who scored low on certainty about mental states reported more symptoms of anxiety and depression. Psychological interventions to prevent mental disorders and to promote psychological health in the context of palliative care should carefully consider these findings.
Source: International Journal of Environmental Research and Public Health - September 21, 2022 Category: Environmental Health Authors: Vittorio Lenzo Alberto Sardella Alessandro Musetti Maria Cristina Petralia Irene Grado Maria C. Quattropani Tags: Article Source Type: research

Depictions of 'brain death' in the media: medical and ethical implications
We examined the depictions of ‘brain death’ in major American and Canadian print media to gain insights into possible common sources of confusion about DNC and the relationship between expert and lay views on this crucial concept. Methods We gathered 940 articles, available in electronic databases, published between 2005 and 2009 from high-circulation Canadian and American newspapers containing keywords ‘brain dead’ or ‘brain death’. Articles were systematically examined for content (eg, definitions of brain death and criteria for determination of death) using the NVivo 8 software. Res...
Source: Journal of Medical Ethics - March 18, 2014 Category: Medical Ethics Authors: Daoust, A., Racine, E. Tags: End of life decisions (geriatric medicine), End of life decisions (palliative care), Artificial and donated transplantation, End of life decisions (ethics), Legal and forensic medicine Neuroethics Source Type: research

Understanding death with limited experience in life: dying children's and adolescents’ understanding of their own terminal illness and death
Purpose of review: An up-to-date summary of the literature on children's and adolescents’ understanding of their own terminal illness and death. Recent findings: Clinicians still find it difficult to speak with pediatric patients about death even though guidelines for facilitating communication on the topic exist. As a result, pediatric patients are less likely to develop a clear understanding of their illness and there is a disconnect between clinicians and parents about prognosis, even when clinicians have concluded there is no longer possibility for cure. Insufficient communication and poor understanding may increase ...
Source: Current Opinion in Supportive and Palliative Care - January 29, 2015 Category: Palliative Care Tags: SUPPORTIVE CARE AND PSYCHOLOGICAL ISSUES AROUND CANCER: Edited by Elie Isenberg-Grzeda and Janet Ellis Source Type: research

Fertility preservation and cancer: challenges for adolescent and young adult patients
Purpose of review: With increasing survival rates, fertility is an important quality of life concern for many young cancer patients. There is a critical need for improvements in clinical care to ensure patients are well informed about infertility risks and fertility preservation options and to support them in their reproductive decision-making prior to treatment. Recent findings: Several barriers prevent fertility from being adequately addressed in the clinical context. Providers’ and patients’ incomplete or inaccurate understanding of infertility risks exacerbate patients’ reproductive concerns. For female patients...
Source: Current Opinion in Supportive and Palliative Care - January 29, 2016 Category: Palliative Care Tags: SEXUAL AND REPRODUCTIVE HEALTH ISSUES IN CANCER: Edited by Janet Ellis and Elie Isenberg-Grzeda Source Type: research

Oncologists communicating with patients about assisted dying
Purpose of review Across all jurisdictions in which assisted dying is legally permissible, cancer is the primary reported underlying diagnosis. Therefore, oncologists are likely to be asked about assisted dying and should be equipped to respond to inquiries or requests for assisted dying. Because Medical Assistance in Dying was legalized in Canada in 2016, it is a relatively new end-of-life practice and has prompted the need to revisit the academic literature to inform communication with patients about assisted dying. Recent findings We reviewed applicable literature published in the past 5 years, pertaining to assist...
Source: Current Opinion in Supportive and Palliative Care - January 29, 2019 Category: Palliative Care Tags: COMMUNICATION IN CANCER: ITS IMPACT ON THE EXPERIENCE OF CANCER CARE: Edited by Elie Isenberg-Grzeda and Janet Ellis Source Type: research

Creation of a Nursing Intervention Model to Support Decision Making by Elderly Advanced Cancer Patients and Their Families About the Place of Death, and Evaluation of the Model's Appropriateness and Clinical Applicability
The objective of this research was to evaluate the appropriateness and clinical applicability of a nursing intervention model we developed to support decision making by elderly advanced cancer patients and their families about the place of death. We created the Nursing Intervention Model using the framework of the nursing intervention model reported by McEvoy and Egan (1979). Our survey was performed on 5 physicians and 9 nurses engaged in decision making about the place of terminal care and death for cancer patients. Focus group interviews were conducted to determine the appropriateness of the model. A content analysis te...
Source: Journal of Hospice and Palliative Nursing - November 1, 2021 Category: Nursing Tags: Ethics Series Source Type: research

"You cannot stop talking about palliative care:" Perspectives and Learnings from Providers on Communicating about Home-based Palliative Care to Patients and Physicians
Discussions lasted approximately 54 minutes, were guided by a semi-structured protocol, audio-recorded, and transcribed verbatim. Thematic analysis was used to identify themes and codes from the data.RESULTS: Twenty-five interdisciplinary HBPC staff members participated in a focus group. Most identified as white (76%), female (76%), and working in their current position for 5 years or less (56%). Three themes were identified from the data: (1) value of relationships; (2) communication do's and don'ts; and (3) need for education. Participants discussed actionable recommendations for each theme.DISCUSSION: Study findings hig...
Source: The American Journal of Hospice and Palliative Care - May 16, 2022 Category: Palliative Care Authors: Alexis Coulourides Kogan Anna Rahman Sindy Lomeli Susan Enguidanos Source Type: research

A Qualitative Exploration of End-of-Life Care Planning With Korean Americans: Awareness, Attitudes, Barriers, and Preferences
This study aimed to explore how Korean American older adults viewed and anticipated engaging in end-of-life (EOL) care planning. An exploratory qualitative research design was adopted for the study, and data were collected through 3 focus group interviews. A total of 30 Korean American older adults 65 years or older participated in the study. A total of 10 themes emerged and were organized into 5 categories: (1) awareness (varying experience in EOL care planning and insufficient understanding about advance directives), (2) attitudes (comfort with talking about EOL and favorable views toward EOL planning), (3) barriers (con...
Source: Journal of Hospice and Palliative Nursing - September 10, 2022 Category: Nursing Tags: International Series Source Type: research

Sources and types of online information that breast cancer patients read and discuss with their doctors.
Abstract Objectives: Most research examining the impact of patients seeking online health information treats internet information homogenously, rather than recognizing that there are multiple types and sources of available information. The present research was conducted to differentiate among sources and types of internet information that patients search for, intend to discuss with their doctors, and recall discussing with their doctors, and to determine how accurate and hopeful patients rate this information. Methods: We surveyed 70 breast cancer patients recruited from the waiting rooms of breast medical oncolog...
Source: Palliative and Supportive Care - November 4, 2013 Category: Palliative Care Authors: Maloney EK, D'Agostino TA, Heerdt A, Dickler M, Li Y, Ostroff JS, Bylund CL Tags: Palliat Support Care Source Type: research

Implementation status and explanatory analysis of early advance care planning for Stage IV non-small cell lung cancer patients
Conclusions Our results suggest that there is possible benefit from providing information on supportive care before first-line chemotherapy and informing patients about their prognosis in prolonging the duration of supportive care.
Source: Japanese Journal of Clinical Oncology - February 25, 2015 Category: Cancer & Oncology Authors: Tokito, T., Murakami, H., Mori, K., Osaka, I., Takahashi, T. Tags: Original Articles Palliative and Supportive Care Source Type: research

The psychosocial needs of students conducting research with patients and their families in advanced cancer and palliative care: A scoping review.
The objective of this article was to explore the extent of the scientific literature and evidence base about the psychosocial needs of students conducting research in the fields of advanced cancer and palliative care. METHOD: A scoping review was conducted in major scientific databases. English-language articles on the topic of interest were retained if they were published in peer-reviewed journals between 1995 and 2013. RESULTS: A total of 3,161 references were screened, and 7 were retained for analysis. Only two articles were empirical studies involving the collection of primary empirical data. The remaining on...
Source: Palliative and Supportive Care - July 14, 2016 Category: Palliative Care Authors: Penner JL, Stevenson M, Parmar MP, Bélanger E Tags: Palliat Support Care Source Type: research

G01-B A Qualitative Study of Palliative Care Physicians ’ Roles in Decision-Making About Euthanasia
The Canadian Society of Palliative Care Physicians recently listed potential roles for the specialty of palliative medicine in the context of decriminalized euthanasia. These roles included the reduction of harm to patients and to other individuals who may be negatively impacted, including physicians (CSPCP 2015). The aim of this ongoing qualitative study is to shed light on the roles that palliative care physicians play in decision-making processes about euthanasia in the post-decriminalization context in Qu ébec.
Source: Journal of Pain and Symptom Management - November 30, 2016 Category: Palliative Care Authors: Emmanuelle B élanger, Anna Towers, Golda Tradounsky, Roger Ghoche, David Wright, Mary Ellen Macdonald Tags: Workshops and Proffered Papers Source Type: research

A Model for Meaningful Conversation in Serious Illness and the Patient Preferences About Serious Illness Instrument
This article introduces a new model of meaningful conversation in serious illness and provides information about how the PASI can be used to support the challenging conversations that are important for patients facing serious illness. Case examples are presented to illustrate the value of the PASI in eliciting preferences.
Source: Journal of Hospice and Palliative Nursing - January 7, 2017 Category: Nursing Tags: Feature Articles Source Type: research