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Clinician Self-Disclosure in Palliative Care: Describing a Taxonomy and Proposing a Communication Tool
Am J Hosp Palliat Care. 2023 Feb 3:10499091231154228. doi: 10.1177/10499091231154228. Online ahead of print.ABSTRACTWhile patient self-disclosure is expected and necessary in the clinical setting, clinicians generally minimize their own self-disclosure, a practice largely guided by the boundaries of the fiduciary relationship. At the same time, many clinicians can recall a time when they made a self-disclosure to a patient, and it seemed to benefit the treatment relationship, if not the treatment itself. We reviewed literature from a variety of fields describing opinions, theories and limited data about the effects of clin...
Source: The American Journal of Hospice and Palliative Care - February 3, 2023 Category: Palliative Care Authors: Indrany Datta-Barua Joshua Hauser Source Type: research
‘It’s taught me everything about living’: Rachel Clarke on delivering palliative care from the NHS to Ukraine
Ian Sample talks to Dr Rachel Clarke about her experience working in palliative care in the NHS and now with hospices in Ukraine. She tells him what dying can teach the living, what we can learn from the Covid pandemic, and reveals the anguish and defiance of trying to provide a dignified death in the midst of warClips: BBC, Al JazeeraContinue reading...
Source: Guardian Unlimited Science - June 6, 2023 Category: Science Authors: Presented by Ian Sample with Rachel Clarke, produced by Madeleine Finlay, sound designed by Joel Cox, and executive produced by Ellie Bury Tags: Ukraine Health Doctors Science Society Death and dying Source Type: news
Both Maintaining Hope and Preparing for Death: Effects of Physicians' and Nurses' Behaviors From Bereaved Family Members' Perspectives
Conclusion: About 20% of family members reported that they could neither “maintain hope nor prepare for death.” A recommended care strategy for medical professionals could include 1) discussing achievable goals and preparing for the future and pacing explanation with the family's preparation, 2) willingness to discuss alternative medicine, 3) maximizing efforts to maintain the patient's physical strength, and 4) avoid saying they could do nothing further for the patient.
Source: Journal of Pain and Symptom Management - November 19, 2012 Category: Palliative Care Authors: Akemi Shirado, Tatsuya Morita, Terukazu Akazawa, Mitsunori Miyashita, Kazuki Sato, Satoru Tsuneto, Yasuo Shima Tags: Original Articles Source Type: research
Care Strategy for Death Rattle in Terminally Ill Cancer Patients and Their Family Members: Recommendations From a Cross-Sectional Nationwide Survey of Bereaved Family Members' Perceptions
Conclusion: To decrease family-perceived distress, medical staff should alleviate patient symptoms and suffering with a comprehensive care strategy, try to decrease uncomfortable smells, and communicate with family members to address distressing interpretations and fears.
Source: Journal of Pain and Symptom Management - October 24, 2013 Category: Palliative Care Authors: Yoichi Shimizu, Mitsunori Miyashita, Tatsuya Morita, Kazuki Sato, Satoru Tsuneto, Yasuo Shima Tags: Original Articles Source Type: research
The role of palliative surgery in castration-resistant prostate cancer
Purpose of reviewAndrogen deprivation therapy with luteinising hormone releasing hormone (LHRH) analogues or antagonists represents the treatment of choice in men metastatic prostate cancer (PCA). Depending on the serum concentration of the prostate-specific antigen (PSA) nadir, the survival might vary between 11 and 78 months. About one-third of all patients without local treatment of the primary will develop significant complications of the lower and upper urinary tract because of local progression of PCA. It is the purpose of the review to inform the treating physician about palliative surgical options in men with castr...
Source: Current Opinion in Supportive and Palliative Care - September 1, 2014 Category: Palliative Care Tags: RENAL AND UROLOGICAL PROBLEMS: Edited by Fred Saad Source Type: research
Supportive and palliative care of children with metabolic and neurological diseases
This article aims to review literature relevant to this group of children, as well as provide a framework when considering specific palliative care needs.
SummaryPPC for children with metabolic and neurological diseases can lessen a child's physical discomfort and enhance parental certainty with decision-making. These areas along with other needs throughout the illness trajectory and bereavement are being increasingly met by the growing availability of PPC programmes.
Source: Current Opinion in Supportive and Palliative Care - September 1, 2014 Category: Palliative Care Tags: GENERAL SUPPORTIVE AND PALLIATIVE CARE: Edited by Eduardo Bruera Source Type: research
Continuing or forgoing treatment at the end of life? Preferences of the general public and people with an advance directive
Discussion
The fact that people with and without ADs have different preferences concerning different treatments and diseases stresses the importance of communication surrounding decision making at the end of life.
Source: Journal of Medical Ethics - July 24, 2015 Category: Medical Ethics Authors: van Wijmen, M. P. S., Pasman, H. R. W., Widdershoven, G. A. M., Onwuteaka-Philipsen, B. D. Tags: End of life decisions (geriatric medicine), End of life decisions (palliative care), End of life decisions (ethics), Psychology and medicine Source Type: research
The last days of life: symptom burden and impact on nutrition and hydration in cancer patients
Purpose of review: To examine the symptom burden in cancer patients during the last days of life, its impact on nutrition and hydration, and the role of artificial nutrition and hydration in the final days.
Recent findings: During the last days of life, cancer patients often experience progressive functional decline and worsening symptom burden. Many symptoms such as anorexia-cachexia, dysphagia, and delirium could impair oral intake. These, coupled with refractory cachexia, contribute to persistent weight loss and decreased quality of life. Furthermore, the inability to eat/drink and body image changes can result in emoti...
Source: Current Opinion in Supportive and Palliative Care - October 31, 2015 Category: Palliative Care Tags: CACHEXIA, NUTRITION AND HYDRATION: Edited by Aminah Jatoi and Florian Strasser Source Type: research
Validation of a model of family caregiver communication types and related caregiver outcomes.
This study illustrates the impact of family communication on caregiving and increases our knowledge and understanding about the role of communication in caregiver burden. The research provides the first evidence-based validation for a family caregiver communication typology and its relationship to caregiver outcomes. Future research is needed to develop and test interventions that target specific caregiver types.
PMID: 27032294 [PubMed - as supplied by publisher]
Source: Palliative and Supportive Care - March 31, 2016 Category: Palliative Care Authors: Wittenberg E, Kravits K, Goldsmith J, Ferrell B, Fujinami R Tags: Palliat Support Care Source Type: research
DNR Confusion Seen as Public Safety Risk
Confusion over living wills and 'Do Not Resuscitate' orders among doctors, nurses and paramedics has created a national public safety risk, a top medical researcher says.
The warning follows a Herald report on what one hospital executive called a 'misunderstanding' after an elderly man was labeled as DNR shortly before he died at Melrose-Wakefield Hospital.
'This is a nationwide - public safety concern,' said Dr. Ferdinando L. Mirarchi, emergency medicine director at the University of Pittsburgh Medical Center Hamot. 'My research today shows that essentially the documents are misunderstood and they're misunderstood on a ...
Source: JEMS Administration and Leadership - March 16, 2016 Category: Emergency Medicine Tags: News Administration and Leadership Source Type: news
Knowledge of pregnant women on mother-to-child transmission of HIV, its prevention, and associated factors in Assosa town, Northwest Ethiopia
Conclusion: Knowledge on MTCT and its prevention among women is low in the study area. We recommend more efforts to be exerted on improving women's knowledge of PMTCT of HIV.Keywords: pregnant women, mother-to-child transmission and prevention, Assosa
Source: HIV/AIDS - Research and Palliative Care - May 5, 2016 Category: Infectious Diseases Tags: HIV/AIDS - Research and Palliative Care Source Type: research
End-of-Life Care and Discussions in Japanese Geriatric Health Service Facilities.
CONCLUSION: Adequate practical staff education programs for EOL care including EOLDs may be crucial for quality of end-of-life care in aged care facilities.
PMID: 28279073 [PubMed - as supplied by publisher]
Source: The American Journal of Hospice and Palliative Care - December 31, 2016 Category: Palliative Care Authors: Kanoh A, Kizawa Y, Tsuneto S, Yokoya S Tags: Am J Hosp Palliat Care Source Type: research
