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Geneticist Highlights Limitations of Prenatal TestingEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Dr. Brian Skotko, a geneticist at Children's Hospital Boston, has published research showing a decrease in the number of babies being born with Down syndrome since the introduction of prenatal testing. With new prenatal testing options on the horizon, his research highlights the problem between getting test results, and getting accurate information. The test results - either from amniocentesis or CVS - are fairly straightforward. Getting accurate information about the diagnosis of Down syndrome, on the other hand, is far from straightforward. Dr. Skotko's research found that expectant parents who received a prenatal diagno...
Source: About.com Down Syndrome - October 31, 2009 Category: Disability Source Type: consumer

Resources of the Week: Breastfeeding and Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
There are a multitiude of reasons why breastmilk is better for a baby, and while a mother may have the best of intentions, babies don't always cooperate. Some infants learn to latch on easily, and others have a much more difficult time. In particular, babies with Down syndrome often have a difficult time breastfeeding due to hypotonia or low muscle tone, a poor suckling reflex, and more placid and sleepy nature. If you intend to breastfeed your baby with Down syndrome, you may want to checkout the websites below and consider a consultation with a lactation specialist. About.com's Breastfeeding Guide Site La Leche League ...
Source: About.com Down Syndrome - October 25, 2009 Category: Disability Source Type: consumer

Term of the Week - HypothyroidismEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Hypothyroidism - or an underactive thyroid gland - occurs quite frequently in people with Down syndrome. While some infants are born with hypothyroidism, called congenital hypothyroidism, others develop this disorder later in life. The symptoms of hypothyroidism - decreased growth rate, constipation, lethargy or tiredness, decreased muscle tone and dry skin and hair - can overlap with the symptoms of Down syndrome, making it more difficult to diagnose in this group. Because of this overlap, it is recommended that all people with Down syndrome have regular screening tests to detect this disorder. More on hypothyroidism and...
Source: About.com Down Syndrome - October 17, 2009 Category: Disability Source Type: consumer

Swine Flu, Down Syndrome and the VaccineEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Recently the CDC published their recommendations that all people with neurodevelopmental disorders, such as Down syndrome, receive the vaccine for the 2009 pandemic influenza A (H1N1) virus which causes swine flu. This recommendation is based on the increased risk for illness and complications among people with neurodevelopmental disorders. There are many reasons that people with neurodevelopmental disorders have an increased risk to get ill but there are steps that you can take to limit their risk. While it has been recommended that all people with Down syndrome, and other high risk groups, receive the H1N1 vaccine, thi...
Source: About.com Down Syndrome - October 10, 2009 Category: Disability Source Type: consumer

Swimming the Boston Harbor for Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
While I am frequently amazed at the inventive ways that parents raise awareness about Down syndrome, this story in the Boston Globe caught my eye for a different reason. Karen Gaffney,... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - October 7, 2009 Category: Disability Source Type: consumer

Driving, Determination and Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Kelly Fitzgerald, a young woman living in New Zealand, is an inspiration and a testament to the power of determination. Born 31 years ago with Down syndrome, her pediatrician advised... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - October 2, 2009 Category: Disability Source Type: consumer

Celebrate National Down Syndrome Month!Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Since 1981, October has been National Down Syndrome Awareness month and is part of a larger ongoing national effort to raise awareness about the abilities of people with Down syndrome. While... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 30, 2009 Category: Disability Source Type: consumer

Cheerleading and FootballEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
These two stories - one from the Chattanooga Press Free Times and the other from MSNBC Sports - speak to the power of inclusion. Anna Frierson, a 12 year old... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 22, 2009 Category: Disability Source Type: consumer

Adoption and Special Needs ChildrenEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The news that actress Katherine Heigl and her husband Josh Kelley, have adopted a child with special needs from Korea, has started a discussion about special needs adoptions. While little... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 14, 2009 Category: Disability Source Type: consumer

Down Syndrome, PDA's, and Assisted CommunicationEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
An article in the NY Times, Insurers Fight Speech-Impairment Remedy, discusses how people with a variety of disabilities are using new personal digital assistants or PDA's, such as the IPhone... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 8, 2009 Category: Disability Source Type: consumer

Down Syndrome, IPhones, and Assisted CommunicationEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
An article in the NY Times, Insurers Fight Speech-Impairment Remedy, discusses how people with a variety of disabilities are using new electronic devises, such as the IPhone, to help people... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 8, 2009 Category: Disability Source Type: consumer

Down Syndrome and H1N1 Vaccinations for Swine FluEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
I was recently reading the Center for Disease Control's (CDC) recommendations of who should be vaccinated against the swine flu which is caused by the H1N1 virus. According to... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 3, 2009 Category: Disability Source Type: consumer

Term of the Week - AdvocacyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
According to the Free Dictionary, advocacy is: The act of pleading or arguing in favor of something, such as a cause, idea, or policy; active support. When I think about advocacy, I... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - September 3, 2009 Category: Disability Source Type: consumer

White Shoes, Christmas and Labor DayEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Everyone has their pet peeves and one of mine is seeing Christmas items in the stores in August. It drives me insane. I believe the old mantra about white shoes... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 28, 2009 Category: Disability Source Type: consumer

Resource of the Week - New Parent InformationEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
While the Kennedy-Brownback bill, also known as S.1810 - Prenatally and Postnatally Diagnosed Conditions Awareness Act mandates that new and expecting parents be give up to date and accurate information... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 27, 2009 Category: Disability Source Type: consumer

Rest in Peace - Senator Ted KennedyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The disability community, and the Down syndrome community in particular, has lost a very effective advocate with the passing of Senator Ted Kennedy. Senator Kennedy, like his sister Eunice Kennedy Shriver,... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 24, 2009 Category: Disability Source Type: consumer

News from the 10th World Down Syndrome CongressEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The 10th World Down Syndrome Congress, held in Dublin Ireland, wrapped up over the weekend. According to the website, the theme for this meeting was: ...Lifelong Living and Learning. We have... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 24, 2009 Category: Disability Source Type: consumer

Swimmer with Big AmbitionsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Austin Hanson, a 36-year-old Wilmington man from North Carolina, will be competing in the upcoming Pier-2-Pier Swim at Wrightsville Beach in September. Hanson will be one of 400 people entering... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 23, 2009 Category: Disability Source Type: consumer

National Health Care and Down Syndrome - For Better or Worse?Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
I have to admit that I have been caught off guard by the controversy surrounding the proposed national healthcare plan. Having worked in a variety of medical settings over the... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 17, 2009 Category: Disability Source Type: consumer

Obstructive Sleep Apnea Common in Adults with Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
A new study published in the Journal of Clinical Sleep Medicine, reveals that obstructive sleep apnea (OSA) is much more common in adults with Down syndrome than previously suspected. Obstructive sleep... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 15, 2009 Category: Disability Source Type: consumer

Bike Riding and Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Bike-riding is one of the joys of childhood. An innovative camp at the University of Illinois, Lose the Training Wheels, helps children with autism and Down syndrome master the skills... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 10, 2009 Category: Disability Source Type: consumer

Loss of a Tireless Advocate - Eunice Kennedy ShriverEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The disability community lost a tireless advocate this morning with the passing of Eunice Kennedy Shriver. Mrs. Shriver was the founder of the Special Olympics and was inspired by her... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 10, 2009 Category: Disability Source Type: consumer

National Down Syndrome Congress Pueschel Award WinnerEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The National Down Syndrome Congress (NDSC) has awarded the prestigious 2009 Christian Pueschel Memorial Research Award to the Down Syndrome Research and Treatment Foundation. Dr. Sigfried Pueschel presented the award... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 10, 2009 Category: Disability Source Type: consumer

Every State Needs OneEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The University of Alabama just opened a new clinic for adults and adolescence with Down Syndrome. This new clinic, the first of it's kind in the state, puts Alabama ahead... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 9, 2009 Category: Disability Source Type: consumer

Most Active Blog: The Guinness Book of World Records PostEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
I was reviewing the comments made on various blog postings on this site and noticed that one blog generated more comments than all the others combined! By far, the blog posting... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 3, 2009 Category: Disability Source Type: consumer

Surfing for Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
I am always amazed at the initiative and ingenuity of parents when it comes to supporting their children. They come up with the most unusual and fun ways to show... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 2, 2009 Category: Disability Source Type: consumer

Definition of the Week – Trisomy 21Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Down syndrome is caused by the presence of an extra number 21 chromosome. Chromosomes are basically packages of genetic information – they hold all of our genes. Chromosome 21 has... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - August 2, 2009 Category: Disability Source Type: consumer

Term of the Week: TrisomyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Most human chromosomes are organized into pairs in humans - a condition known as disomy. Trisomy or the presence of three specific chromosomes can cause a variety of different syndromes... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 27, 2009 Category: Disability Source Type: consumer

Budget Cuts and Services for the DisabledEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Every day, I seem to read more about how state budget cuts will affect the special needs community. Last week, the Modesto Bee reported that the cuts made in the... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 26, 2009 Category: Disability Source Type: consumer

Term of the Week: HypotoniaEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Hypotonia, or low muscle tone, is one of the hallmark signs of Down Syndrome in an infant. Almost all babies with Down syndrome will have some degree of hypotonia which... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 17, 2009 Category: Disability Source Type: consumer

Sexuality and Down Syndrome in the NewsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The story of Otto and his quest to lose his virginity, was first published in the UK Telegraph over a month ago. I didn't feel comfortable covering it and it... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 16, 2009 Category: Disability Source Type: consumer

Resource of the Week: Welcome to HollandEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Sometimes you see something so often that you stop recognizing it's power. This is how I feel about Emily Perl Kingsley's poem Welcome to Holland. I was first introduced to... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 11, 2009 Category: Disability Source Type: consumer

Sarah Palin and What Any Five Year Old KnowsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
It is something that most of us learn in preschool - it is not nice to make fun of people. It really is a simple concept and yet it seems... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 9, 2009 Category: Disability Source Type: consumer

Tell Your Great Story to the National Down Syndrome SocietyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The National Down Syndrome Society, in collaboration with York and Chapel (a PR firm) has unveiled a new initiative - My Great Story. Designed to let people with Down syndrome tell... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 9, 2009 Category: Disability Source Type: consumer

Follow-Up Friday: Heneffer Going to All-Star GameEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
A couple of weeks ago, I told you the story of Brad Hennefer, a young man with Down syndrome who founded the Golf for Life Foundation. He started this foundation... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 8, 2009 Category: Disability Source Type: consumer

Term of the Week: Alzheimer's DiseaseEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Alzheimer's disease is a slowly progressive degenerative brain disease that causes memory problems, disorientation, and confusion. Alzheimer's progresses to dementia and eventually causes physical problems such as trouble with swallowing... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 2, 2009 Category: Disability Source Type: consumer

Resource of the Week: Reece's RainbowEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This article in the the Maryland Gazzette highlights the efforts of one proud mother of a child with Down syndrome. After her first son was born seven years ago with... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 2, 2009 Category: Disability Source Type: consumer

Historic Meeting and Consensus Statement on Prenatal TestingEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The University of South Carolina's Genetic Counseling Program and Center for Disability Resources hosted a meeting of The National Down Syndrome Society (NDSS), the National Down Syndrome Congress,the American College... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - July 1, 2009 Category: Disability Source Type: consumer

Columnist Counts Her BlessingsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Beverly Beckham, a columnist for the Boston Globe and grandmother to 6 year old Lucy who has Down syndrome, has written a heartwarming piece on her families adjustment to Lucy's... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 26, 2009 Category: Disability Source Type: consumer

Golfer with Down Syndrome and a Big HeartEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Brad Hennefer, a 20-year-old man with Down syndrome, travels around the country helping young children with Down syndrome get inspired to start golfing. As part of the Brad Hennefer Golf... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 24, 2009 Category: Disability Source Type: consumer

Off Topic Thursday - Prenatal Testing for Autism ControversyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
I have been following the news about a potential prenatal test for autism with great interest for several reasons. First, the autism community has reacted to the advent of a prenatal... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 20, 2009 Category: Disability Source Type: consumer

One Dad's Wish - I Hope You DanceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Paul Daugherty - a sportswriter for the Cincinnati Tribune - has penned a moving tribute to his daughter, Jillian Daughtery, who has Down syndrome. At her birth, Paul and his... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 19, 2009 Category: Disability Source Type: consumer

VIP Round-Up - GraduatesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
It's that time of year again - graduation day has arrived! This weeks VIPs are all graduates who happen to have Down syndrome. While we tend to focus on the graduate, graduation... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 19, 2009 Category: Disability Source Type: consumer

D.A.D.S. - Dads Appreciating Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
In honor of Father's day, I am highlighting a unique group of fathers and their organization. D.A.D.S. - Dads Appreciating Down Syndrome is a national action group with 30 chapters located... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 18, 2009 Category: Disability Source Type: consumer

JAMA Article Tackles Ethical Concerns About Non-Invasive Prenatal ScreeningEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
I was very happy to see that the Journal of the American Medical Association published an article highlighting the myriad of ethical concerns raised by the specter of noninvasive prenatal... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 15, 2009 Category: Disability Source Type: consumer

Medical Myths - Why We Believe What We BelieveEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Although it is slightly off topic, I found this article in Newsweek very interesting. I am always amazed at the die-hard nature of medical myths. People tend to cling to... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 14, 2009 Category: Disability Source Type: consumer

Resource of the Week - Dads Appreciating Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
In honor of Father's Day, I am highlighting a support group specifically for father's of children with Down syndrome - DADS. While alot of support groups focus on Mom or... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 10, 2009 Category: Disability Source Type: consumer

Third Graders Write Award-Winning Book About Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The third grade class at Gideon Elementary School in Gideon, MO worked collaboratively to write and illustrate a book for a Scholastic Kids are Authors contest. While this kind of... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 3, 2009 Category: Disability Source Type: consumer

Matthew - A Memoir of One Mother's DilemmaEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The story of Matthew Crosby, a young man born in the 1960's in the UK with Down syndrome, is painful to read. His mother, Anne Crosby, has written a memoir... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 3, 2009 Category: Disability Source Type: consumer

Term of the Week - Choroid Plexus CystsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Choroid plexus cysts are a very common ultrasound finding that unnecessarily strike fear into the hearts of parents everywhere. Choroid plexus cysts are small cysts, almost like blisters, found in... (Source: About.com Down Syndrome)
Source: About.com Down Syndrome - June 1, 2009 Category: Disability Source Type: consumer