Chinese and Belgian pediatricians ’ perspectives toward pediatric palliative care: an online survey
As pediatricians play a vital role in pediatric palliative care (PPC), understanding their perspectives toward PPC is important. PPC is established for a long time in Belgium, but has a shorter tradition in Ch... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 23, 2024 Category: Palliative Care Authors: Yajing Zhong, Alice Cavolo, Veerle Labarque, Bernadette Dierckx de Casterl é and Chris Gastmans Tags: Research Source Type: research
End-of-life care in Germany between 2016 and 2020 – A repeated cross-sectional analysis of statutory health insurance data
The Hospice and Palliative Care Act of 2015 aimed at developing and regulating the provision of palliative care (PC) services in Germany. As a result of the legal changes, people with incurable diseases should... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 20, 2024 Category: Palliative Care Authors: Katharina van Baal, Melissa Hemmerling, Jona Theodor Stahmeyer, Stephanie Stiel and Kambiz Afshar Tags: Research Source Type: research
Perspectives from patients with chronic lung disease on a telehealth-facilitated integrated palliative care model: a qualitative content analysis study
Chronic lung disease affects nearly 37 million Americans and often results in significant quality of life impairment and healthcare burden. Despite guidelines calling for palliative care (PC) integration into ... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 18, 2024 Category: Palliative Care Authors: Jeannette Kates, Carrie Tompkins Stricker, Kristin L. Rising, Alexzandra T. Gentsch, Ellen Solomon, Victoria Powers, Venise J. Salcedo and Brooke Worster Tags: Research Source Type: research
Continuous palliative sedation until death: a qualitative study of palliative care clinicians ’ experiences
The practice of continuous palliative sedation until death is the subject of much medical and ethical debate, which is reflected in the inconsistency that persists in the literature regarding the definition an... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 18, 2024 Category: Palliative Care Authors: Alexandra Guit é-Verret, Jessica Boivin, Andrew M. R. Hanna, James Downar, Shirley H. Bush, Isabelle Marcoux, Diane Guay, Diane Tapp, Julie Lapenskie and Bruno Gagnon Tags: Research Source Type: research
Patients ’ experiences with shared decision-making in home-based palliative care – navigation through major life decisions
This study addresses the issue of shared decision-making (SDM) in a Norwegian home-based palliative care setting. The significance of patient involvement in SDM is widely acknowledged, and many patients want t... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 17, 2024 Category: Palliative Care Authors: Sandra Jahr Svendsen, Ellen Karine Grov and Katrine Staats Tags: Research Source Type: research
Distinct experiences and care needs of advanced cancer patients with good ECOG performance status: a qualitative phenomenological study
Advanced cancer patients with good Eastern Cooperative Oncology Group (ECOG) performance status (score 0 –1) are underrepresented in current qualitative reports compared with their dying counterparts. (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 17, 2024 Category: Palliative Care Authors: Ping Chen, Mingfu Ding, Changlin Li, Yujuan Long, Deng Pan, Li Ma, Taiguo Liu and Cheng Yi Tags: Research Source Type: research
Optimizing breathlessness management in amyotrophic lateral sclerosis: insights from a comprehensive systematic review
Breathlessness is a prevalent symptom affecting the quality of life (QOL) of Amyotrophic Lateral Sclerosis (ALS) patients. This systematic review explored the interventions for controlling breathlessness in AL... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 16, 2024 Category: Palliative Care Authors: Catarina Bico Filipe, Nuno Reis Carreira and Paulo Reis-Pina Tags: Research Source Type: research
Assisted dying: principles, possibilities, and practicalities. An English physician ’s perspective
It seems probable that some form of medically-assisted dying will become legal in England and Wales in the foreseeable future. Assisted dying Bills are at various stages of preparation in surrounding jurisdict... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 13, 2024 Category: Palliative Care Authors: Robert Twycross Tags: Review Source Type: research
Building public engagement and access to palliative care and advance care planning: a qualitative study
Research evidence suggests that a lack of engagement with palliative care and advance care planning could be attributed to a lack of knowledge, presence of misconceptions and stigma within the general public. ... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 12, 2024 Category: Palliative Care Authors: Rachel Black, Felicity Hasson, Paul Slater, Esther Beck and Sonja McIlfatrick Tags: Research Source Type: research
“Being an informal caregiver – strengthening resources”: mixed methods evaluation of a psychoeducational intervention supporting informal caregivers in palliative care
Informal caregivers are key support for patients with progressive incurable diseases. However, their own needs often remain unmet. Therefore, we developed, manualised and implemented the intervention “Being an... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 11, 2024 Category: Palliative Care Authors: Tabea Thei ßen, Anneke Ullrich, Karin Oechsle, Julia Wikert, Carsten Bokemeyer and Aneta Schieferdecker Tags: Research Source Type: research
Misconception between palliative care and euthanasia among Thai general practitioners: a cross-sectional study
Palliative care lower medical expenses and enhances quality of life, but misconception with euthanasia delays timely care and makes inappropriate patient management. (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 11, 2024 Category: Palliative Care Authors: Lalita Chutarattanakul, Viriya Jarusukthavorn, Nisachol Dejkriengkraikul, Myo Zin Oo, Soe Sandi Tint, Chaisiri Angkurawaranon and Nutchar Wiwatkunupakarn Tags: Research Source Type: research
Impact of training on knowledge, confidence and attitude amongst community health volunteers in the provision of community-based palliative care in rural Kenya
Existing literature suggests multiple potential roles for community health volunteers (CHVs) in the provision of palliative care (PC) in low- and middle-income countries. In Kenya the role of CHV in the provis... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 11, 2024 Category: Palliative Care Authors: Hussein Elias, Evelyne Kisembe, Sarah Nyariki, Ivan Kiplimo, James Amisi, Juli Boit, Allison Tarus, Naseem Mohamed and Kenneth Cornetta Tags: Research Source Type: research
Quality of palliative and end-of-life care: a quantitative study of temporal trends and differences according to illness trajectories in Quebec (Canada)
Our aim was to assess temporal trends and compare quality indicators related to Palliative and End-of-Life Care (PEoLC) experienced by people dying of cancer (trajectory I), organ-failure (Trajectory II), and ... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 10, 2024 Category: Palliative Care Authors: Arnaud Duhoux, Emilie Allard, Denis Hamel, Martin Sasseville, Sarah Dumaine, Morgane Gabet and Marie-H élène Guertin Tags: Research Source Type: research
Experiences of patients with advanced cancer coping with chronic pain: a qualitative analysis
To gain insight into the perceptions, and beliefs of patients with advanced cancer coping with chronic pain and to identify their attitudes and demands on pain management. (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 10, 2024 Category: Palliative Care Authors: Wanting Xia, Meijun Ou, Yongyi Chen, Furong Chen, Mengyao Yan, Zhirui Xiao and Xianghua Xu Tags: Research Source Type: research
It ’s about living a normal life: parents’ quality of life when their child has a life-threatening or life-limiting condition - a qualitative study
Pediatric palliative care (PPC) seeks to enhance the quality of life (QoL) for both children and their families. While most studies within PPC have focused on the ill child ’s QoL, less is known about parents’ ... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 9, 2024 Category: Palliative Care Authors: Trine Brun Kittelsen, Vibeke Bruun Lorentsen, Charlotte Castor, Anja Lee, Lisbeth Gravdal Kvarme and Anette Winger Tags: Research Source Type: research
