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Crowdfunding for Cystic Fibrosis and Other Pediatric Rare Diseases Research Projects
Hi Everyone, I represent a small pharmaceutical company located in Barcelona, Spain, called SOM Biotech. We are a very young company dedicated to drug repostioning. Drug repositioning is the process of applying therapeutics, which already exist, towards new diseases. In our case, we are focused on drug repositioning for rare diseases. At the very present we are running a crowdfunding campaign to raise funds to start new scientific research projects in 5 pediatric rare diseases (diseases which affect a small portion of children worldwide). Cystic fibrosis is one of the projects included in our new initiative, which we ar...
Source: Cystic Fibrosis Community Initiatives Forum - December 7, 2015 Category: Respiratory Medicine Authors: SOM_Biotech Tags: Community Initiatives Source Type: forums

Cystic Fibrosis in a Physical Form
Hey guys! Ive made a concept of CF's physical form for my animation. What ya think? CFphy.jpg Attached Images CFphy.jpg (11.2 KB) (Source: Cystic Fibrosis Community Initiatives Forum)
Source: Cystic Fibrosis Community Initiatives Forum - August 31, 2015 Category: Respiratory Medicine Authors: AngelXMikey Tags: Community Initiatives Source Type: forums

Cystic Fibrosis Awareness Campaign
Please help us spread awareness with our Cystic Fibrosis campaign. Thank you. http://teespring.com/Cystic-fibrosis-Awareness (Source: Cystic Fibrosis Community Initiatives Forum)
Source: Cystic Fibrosis Community Initiatives Forum - August 17, 2015 Category: Respiratory Medicine Authors: kitoliwa Tags: Community Initiatives Source Type: forums

Looking for CF people interested in helping with an artwork!
Hi everyone, My name is Charlotte and I'm from Melbourne. I'm trying to reach a broad CF audience and I thought this might be a good spot! I have CF and I'm currently in my final semester of my Fine Art degree, working with the idea of the many forms of isolation experienced in CF. If anyone is willing to, contributions from CF sufferers would be very valued!! I'm collecting hand written responses (if you have a young child maybe they'd like to do a drawing?) so, an image of your hand written response of how you personally interpret isolation in CF in however long, short, literal or abstract as you like! They can ...
Source: Cystic Fibrosis Community Initiatives Forum - August 16, 2015 Category: Respiratory Medicine Authors: charken Tags: Community Initiatives Source Type: forums

Every Breath: CF Animation
Hey Guys LONG TIME NO SEE. Im youtube animator AngelXMikey. Several years back I said I was starting an animation about growing up with Cystic Fibrosis. I never stopped working on it, but I never got a lot done. But now Im ready to put alll my cards in and make it amazing. First I want to start by remaking the song so Im looking for singers, choreographers, and anything of the sort. I already have the choreographer from the original song, but this time I want more than one since a lot of you had input after I posted the song. Email me at mmstickfighter@yahoo.com with some samples of your stuff if you wanna join. Animatio...
Source: Cystic Fibrosis Community Initiatives Forum - August 10, 2015 Category: Respiratory Medicine Authors: AngelXMikey Tags: Community Initiatives Source Type: forums

Climbing for a Cure! Mt. Kilimanjaro 2015!
Hello everyone, I am trying to reach out to as many CF patients/families as possible! I am a mother of a cystic fibrosis patient who is fundraising for the Cystic Fibrosis Foundation. I am climbing Mt. Kilimanjaro in December of this year. I am traveling alone from Southern California and will be meeting with a group of climbers in Africa. I would love if people could help spread the word as I would like this to be a big fundraiser! Mt. Kilimanjaro is Africa's highest peaks at over 19,000 feet. I will be climbing for 7 days on the Machame route. I am very excited I am able to take part in such a big idea. Kaiser Permanen...
Source: Cystic Fibrosis Community Initiatives Forum - July 21, 2015 Category: Respiratory Medicine Authors: Bellithorp Tags: Community Initiatives Source Type: forums

Support CF Foundation! Fund drive has reached over 1000 hits per day.
Hello All, This thread is for feedback about a CF Foundation fund drive that I am participating in. We have reached 1000 unique hits per day and hope with this we can make a larger donation. Users shop online like they would anywhere else, and a percent of their purchase goes to the CF Foundation. Donating does not cost you anything extra. If you are planning on buying a Father's Day present online, this is a great time to buy it and help support a good cause. http://www.ayedeals.com Please provide feedback or suggestions. Products are available from Amazon, Best Buy, Walmart, Sears, Etsy, Sears, Microsoft, Rodale, New Ba...
Source: Cystic Fibrosis Community Initiatives Forum - June 10, 2015 Category: Respiratory Medicine Authors: ayedeals Tags: Community Initiatives Source Type: forums

Mom/Son with CF Have a Chance to Win- Please Vote!
Hi there, My son, with CF, now 18, had always received unhelpful nutritional advice from our CF docs. Through the years, I have found what works for him and helped him be a healthy weight (no dairy, good fats, and more). from this journey, we have developed dairy/gluten/soy free brownies packed with nutrient dense hemp that have been a huge hit and we have made it into a business, helping others with food allergies have good, healthy treats to enjoy. we are now in the running to win $100,000 from Chase. I am sure everybody out there can relate to how needed that money is. I have raised my son alone, ex-husband never paid...
Source: Cystic Fibrosis Community Initiatives Forum - June 5, 2015 Category: Respiratory Medicine Authors: Diana Blue Tags: Community Initiatives Source Type: forums

Vote for Tim's book...Help him win the prize...CF Awareness and a wonderful book!
Dear Jeanne, Hope all's well with you... I need your help please to win a book prize for my CF memoir How have I cheated death? (available in paperback, e-book and audiobook) The UK Peoples Book Prize 6th Awards black-tie ceremony is on 27th May 2015 at Stationers Hall, London, which will be broadcast live by SKY NEWS from 8.20 - 9pm. I need votes to help win before the 27th May to determine the Winners. Votes are carried forward from last year and those who voted before can re-vote or register and vote for the first time for my book via link below. Thanks very much if you can promote this via th...
Source: Cystic Fibrosis Community Initiatives Forum - May 19, 2015 Category: Respiratory Medicine Authors: Imogene Tags: Community Initiatives Source Type: forums

Cystic Fibrosis University project
Hi everyone! I'm from England and I'm 20. I lost my friend, Helen, to CF 2 years ago when she was 18 and another friend has recently had a lung transplant. I do some work for The Cystic Fibrosis Trust as a communications volunteer and I am doing my final year university project on The CF Trust charity. I am near to completing my degree in Public Relations and I am in the middle of the research stage of my year long project on Cystic Fibrosis. If anybody has a spare 5 minutes, please would you fill out my short survey regarding Cystic Fibrosis and the Cystic Fibrosis Trust. Thanks for your time!! Any responses are great...
Source: Cystic Fibrosis Community Initiatives Forum - February 28, 2015 Category: Respiratory Medicine Authors: olivia_chan12 Tags: Community Initiatives Source Type: forums

Locket to benefit CF research
Support Cystic Fibrosis Research. A portion of the proceeds from the sale of these lockets will be donated to the Cystic Fibrosis Foundation. Stainless steel locket, pictured charms: love., purple ribbon, rose, and your choice of one initial and one birthstone. Also includes pictured beads/rhinestones. Comes with free chain. After you buy, send us a message at littlebearlockets@gmail.com with your initial & birthstone choices. $30 with free shipping - Buy at this link: https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=N2UYEVBKUYRL6 Other lockets available at www.facebook.com/littlebearlockets ...
Source: Cystic Fibrosis Community Initiatives Forum - February 5, 2015 Category: Respiratory Medicine Authors: littlebearlockets Tags: Community Initiatives Source Type: forums

The Lego Walk for Cystic Fibrosis
We want this video to go viral to help raise funds and awareness for CF. My family and I put this together with the idea of the Lego Walk as sort of a new ice bucket challenge but for cystic fibrosis. It turned into something more meaningful and heartfelt. Please watch and SHARE!! Together we can find a cure! https://www.youtube.com/watch?v=gGgAA1Rk83Y (Source: Cystic Fibrosis Community Initiatives Forum)
Source: Cystic Fibrosis Community Initiatives Forum - October 14, 2014 Category: Respiratory Medicine Authors: littlemyth Tags: Community Initiatives Source Type: forums

Fundraiser
Hi I am a Independent Younique Presenter .A co worker of mine currently lost her brother to CF. I have decided to support her and the Cystic Fibrosis Foundation. I have set a CF fundraiser. I ask you to share with your friends and family! The following will be donated to the CFF $5 from each 3D Fiber Lash set sold 15% of all other sales You can make purchases at https://www.youniqueproducts.com/rox...ty/706065/view You can also follow me on Facebook www.facebook.com/youniquebyroxanne I'm not 100% knowledgeable about CF, but I'm learning. I hope they find a cure soon, I can't imagine those who live with CF must en...
Source: Cystic Fibrosis Community Initiatives Forum - October 13, 2014 Category: Respiratory Medicine Authors: Roxanne Dercola Tags: Community Initiatives Source Type: forums