Health Informatics Journal
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Understanding business intelligence in the context of healthcare
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In today’s fast changing healthcare sector, decision makers are facing a growing demand for both clinical and administrative information in order to comply with legal and customer-specific requirements. The use of business intelligence (BI) is seen as a possible solution to this actual challenge. As the existing research about BI is primarily focused on the industrial sector, it is the aim of this contribution to translate and adapt the current findings for the healthcare context. For this purpose, different definitions of BI are examined and condensed in a framework. Furthermore, the sector-specific preconditions fo...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Mettler, T., Vimarlund, V. Tags: Article Source Type: journals
A strategic approach to m-health
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This article proposes a strategic framework or road map for sustainable m-health. The drivers and critical success factors of this framework are identified from the literature and a survey of the views of senior strategists in the New Zealand health sector. The success factors are associated with key tasks in the framework that identify suitable applications, channel development activity, and confirm activity by continued support of innovation whilst moving successful applications into the mainstream. The two most important outcomes from the research are that m-health has a crucial, even inevitable, role to play in future ...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Norris, A.C., Stockdale, R.S., Sharma, S. Tags: Article Source Type: journals
How does national culture affect citizens' rights of access to personal health information and informed consent?
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This article looks at the issue of informed consent internationally, and goes further to explain some of the inequalities across the world with respect to informed consent and patients’ rights legislation via an analysis of the take-up of key legislative attributes in patient consent. Specifically, the effect that national culture, as defined by the GLOBE variables, has on the rate and pattern of adoption of these consent elements is analysed using binary logistic regression to provide evidence of the existence or otherwise of a cultural predicate of the legislative approach. The article concludes by outlining the ch...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Cockcroft, S., Sandhu, N., Norris, A. Tags: Article Source Type: journals
New Zealanders' attitudes towards access to their electronic health records: Preliminary results from a national study using vignettes
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This article presents preliminary results from the first 1828 respondents. Respondents were most willing to share their information for the purpose of providing care. However, removing their name and address greatly increased the acceptability of sharing information for other purposes. (Source: Health Informatics Journal)
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Hunter, I. M., Whiddett, R. J., Norris, A. C., McDonald, B. W., Waldon, J. A. Tags: Article Source Type: journals
Paper-based versus computer-based records in the emergency department: Staff preferences, expectations, and concerns
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Although the potential benefits of computer-based records have been identified in different areas of the healthcare environment, in many settings paper-based records and computer-based records are still used in parallel. In this article, emergency department (ED) staff perspectives about the use of paper- or computer-based records are presented. This was a qualitative study in which data were collected using in-depth semi-structured interviews with the ED staff. The interviews were transcribed verbatim and data were analysed using framework analysis. In total, 34 interviews were undertaken. The study identified a number of...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Ayatollahi, H., Bath, P. A., Goodacre, S. Tags: Article Source Type: journals
Electronic software significantly improves quality of handover in a London teaching hospital
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The study compared paper-based and electronic-based medical handover with respect to quality of information transfer during hospital out-of-hours shifts, and analysed the caseload burden of the hospital night team. The participants were 1645 hospital patients transferred from the day team to the out-of-hours team over four months in 2006. Quality of information transfer was determined by clinical data handed over within pre-set fields, and caseload burden by the frequency of tasks required at handover. Handover information fields comprised patient’s demographics and location, primary diagnosis, current problem, plan ...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Raptis, D. A., Fernandes, C., Weiliang Chua, , Boulos, P. B. Tags: Article Source Type: journals
Redesigning digital dictation for physicians: A user-centred approach
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This article reports a study that employs a contextual inquiry method to study the prevailing dictation procedures and solutions in a hospital from the physician’s perspective. The goal was to empirically evaluate digital dictation and the other three currently used methods for making dictations, thereby eliciting information for supporting the hospital administration in their decisions concerning the further development of a dictation solution. The research indicated a number of user requirements for a dictation solution. The main conclusions were: (1) the currently used information systems need extensive improvemen...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Viitanen, J. Tags: Article Source Type: journals
The National Programme for IT in England: Clinicians' views on the impact of the Choose and Book service
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In England, the Choose and Book service, a main component of the England National Programme for IT (NPfIT), aims at empowering patients. Little research has been performed to evaluate clinicians’ perceptions of, and satisfaction with, the Choose and Book service. The aim of the research was to examine clinicians’ perceptions of, and satisfaction with, the Choose and Book service. A qualitative approach, using in-depth, semi-structured interviews, was used to collect data. Framework analysis was used to analyse the data. Twenty clinicians were interviewed, including 14 general practitioners (GPs) and six hospita...
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Rabiei, R., Bath, P. A., Hutchinson, A., Burke, D. Tags: Article Source Type: journals
Special Issue Editorial: The changing face of health informatics and health information management
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(Source: Health Informatics Journal)
Source: Health Informatics Journal - August 26, 2009 Category: Information Technology Authors: Bath, P. A. Tags: Article Source Type: journals
Patients' views of a multimedia resource featuring experiences of rheumatoid arthritis: pilot evaluation of www.healthtalkonline.org
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This study explored views of www.dipex.org/arthritis, a website based on, and featuring, clips from interviews about experiences of rheumatoid arthritis (RA). Thirty-seven rheumatology outpatients viewed the site and completed a questionnaire. Overall the website appeared relevant and understandable and could be recommended. Comments highlighted the need to update the site regularly with experiences of new treatments; to ensure positive and negative experiences are balanced; and to ensure information is easy to find. The site has since been updated with new experiences and rewritten summaries that present a better balance ...
Source: Health Informatics Journal - May 27, 2009 Category: Information Technology Authors: Newman, M. A., Ziebland, S., Barker, K. L. Tags: Article Source Type: journals
The role of home-based information and communications technology interventions in chronic disease management: a systematic literature review
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This article presents a systematic literature review done to evaluate the feasibility and benefits of home-based information and communications technology enabled interventions for chronic disease management, with emphasis on their impact on health outcomes and costs. Relevant articles were retrieved from PubMed and evaluated using quality worksheets with pre-identified inclusion and exclusion criteria. Of the 256 articles retrieved, 27 were found to concord with the study criteria. Evaluation of the identified articles was conducted irrespective of study design, type of home-based intervention or chronic disease involved....
Source: Health Informatics Journal - May 27, 2009 Category: Information Technology Authors: Gaikwad, R., Warren, J. Tags: Article Source Type: journals
Reflections on the use of electronic health record data for clinical research
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We describe the approaches taken to ensure compliance with the Health Insurance Portability and Accountability Act (HIPAA) and to leverage the vast stores of structured and unstructured data that are currently underused. We conclude by reflecting on what we would have done differently and by making recommendations to streamline the process. (Source: Health Informatics Journal)
Source: Health Informatics Journal - May 27, 2009 Category: Information Technology Authors: West, S. L., Blake, C., Zhiwen Liu, , McKoy, J. N., Oertel, M. D., Carey, T. S. Tags: Article Source Type: journals
System dynamics approach to immunization healthcare issues in developing countries: a case study of Uganda
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This article critically examines the challenges associated with demand for immunization, including the interplay of political, social, economic and technological forces that influence the level of immunization coverage. The article suggests a framework to capture the complex and dynamic nature of the immunization process and tests its effectiveness using a case study of Ugandan healthcare provision. Field study research methods and qualitative system dynamics, a feedback and control theory based modelling approach, are used to capture the complexity and dynamic nature of the immunization process, to enhance a deeper unders...
Source: Health Informatics Journal - May 27, 2009 Category: Information Technology Authors: Rwashana, A. S., Williams, D. W., Neema, S. Tags: Article Source Type: journals
Does a post-take ward round proforma have a positive effect on completeness of documentation and efficiency of information management?
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The post-take ward round (PTWR) involves the assessment of the latest intake of patients into the hospital. At a busy 400-bed city hospital it had been noted that PTWR notes had, in some cases, become overly brief and uninformative. Previous research had shown that proformas can improve the completeness of the records. So a new proforma was designed and introduced. Its impact on completeness of information was assessed by carrying out an audit of PTWR notes both with and without the proforma. The results showed statistically significant improvements in documentation when the proforma was used. They also showed an improveme...
Source: Health Informatics Journal - May 27, 2009 Category: Information Technology Authors: Wright, D. N. Tags: Article Source Type: journals
From pull to push: understanding nurses' information needs
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This article presents an analysis of 410 nurse—patient consultations and interviews with 76 primary care nurses, and explores nurses' information needs and their use of electronic information tools. The findings suggest that, if we wish to encourage nurses to use research information in clinical practice, we need to move from `pull' to `push' technology. (Source: Health Informatics Journal)
Source: Health Informatics Journal - May 27, 2009 Category: Information Technology Authors: Randell, R., Mitchell, N., Thompson, C., McCaughan, D., Dowding, D. Tags: Article Source Type: journals
The obstetrician and gynaecologist and the European Computer Driving Licence
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The objective of the study was to determine awareness of the ECDL amongst members of the Royal College of Obstetricians and Gynaecologists. An anonymous postal survey was conducted with members and fellows of the College in three UK regions. A total of 720 questionnaires were posted, and the response rate was 47.9 per cent. A fifth of all respondents were not aware of the ECDL at all, and only 10 per cent were trained in the ECDL. However, more than third had some other formal training in IT skills. Half the respondents suggested that the questionnaire had prompted them to train for the ECDL. Much needs to be done to incre...
Source: Health Informatics Journal - February 13, 2009 Category: Information Technology Authors: Desai, K., Dharmadhikari, D., Bhargava, S., Desai, A. Tags: Article Source Type: journals
Prescription for nursing informatics in pre-registration nurse education
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This article argues that nurses are not currently adequately prepared to work with information and technology through their pre-registration education. Reflecting the lack of nursing informatics expertise, it is recommended that all pre-registration nursing programmes should have access to a nursing informatics specialist. A prescription to meet the informatics needs of the newly qualified nurse is proposed. This places the areas that need to be included in pre-registration education into broad groups that both articulate the competencies that nurses need to develop, and indicate why they are needed, rather than providing ...
Source: Health Informatics Journal - February 13, 2009 Category: Information Technology Authors: Bond, C. S., Procter, P. M. Tags: Article Source Type: journals
A means to an end: a web-based client management system in palliative care
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This article reports on a large not-for-profit home-based palliative care service in Australia, which embarked on a project to develop an electronic data management system specifically designed to meet the needs of the palliative care sector. This web-based client information management system represents a joint venture between the organization and a commercial company and has been a very successful project. (Source: Health Informatics Journal)
Source: Health Informatics Journal - February 13, 2009 Category: Information Technology Authors: O'Connor, M., Erwin, T., Dawson, L. Tags: Article Source Type: journals
Usability and acceptability of a website that provides tailored advice on falls prevention activities for older people
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This article presents the usability and acceptability of a website that provides older people with tailored advice to help motivate them to undertake physical activities that prevent falls. Views on the website from interviews with 16 older people and 26 sheltered housing wardens were analysed thematically. The website was well received with only one usability difficulty with the action plan calendar. The older people selected balance training activities out of interest or enjoyment, and appeared to carefully add them into their current routine. The wardens were motivated to promote the website to their residents, particul...
Source: Health Informatics Journal - February 13, 2009 Category: Information Technology Authors: Nyman, S. R., Yardley, L. Tags: Article Source Type: journals
Mobile phone text messaging to promote healthy behaviors and weight loss maintenance: a feasibility study
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This study demonstrated early feasibility and acceptability of text messaging as a method for promoting healthy behaviors for weight maintenance. (Source: Health Informatics Journal)
Source: Health Informatics Journal - February 13, 2009 Category: Information Technology Authors: Gerber, B. S., Stolley, M. R., Thompson, A. L., Sharp, L. K., Fitzgibbon, M. L. Tags: Article Source Type: journals
Supporting nurse decision making in primary care: exploring use of and attitude to decision tools
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This article presents an analysis of 410 nurse—patient consultations and interviews with 76 primary care nurses, and explores the nature of the decisions that primary care nurses make and the impact of that on their use of and attitudes towards decision tools. (Source: Health Informatics Journal)
Source: Health Informatics Journal - February 13, 2009 Category: Information Technology Authors: Randell, R., Mitchell, N., Thompson, C., McCaughan, D., Dowding, D. Tags: Article Source Type: journals
A content analysis of mass media sources in relation to the MMR vaccine scare
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In light of the mass media coverage that the MMR (measles, mumps and rubella) vaccine received as a result of questions raised about its safety, a content analysis of mass media articles about the MMR vaccine was undertaken. The analysis examined 227 articles published in five different information sources in a 2 month period. The analysis looked at 94 content-based variables and the key attributes of these articles including word count and date of publication. Descriptive and analytical statistics relating to both article content and format were produced. The analysis showed that the content and format of articles between...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Guillaume, L., Bath, P. A. Tags: Article Source Type: journals
Mobile technologies and the holistic management of chronic diseases
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Ageing populations and unhealthy lifestyles have led to some chronic conditions such as diabetes and heart disease reaching epidemic proportions in many developed nations. This paper explores the potential of mobile technologies to improve this situation. The pervasive nature of these technologies can contribute holistically across the whole spectrum of chronic care ranging from public information access and awareness, through monitoring and treatment of chronic disease, to support for patient carers. A related study to determine the perceptions of healthcare providers to m-health confirmed the view that attitudes were lik...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Mirza, F., Norris, T., Stockdale, R. Tags: Article Source Type: journals
ProICET: a cost-sensitive system for prostate cancer data
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Cancer is the second most threatening disease in the world today, not only because of its mortality rate, but also due to the brutal changes it imposes on the patient's life, and the fact that its exact causes of progression remain to be discovered. Recent evolution in computer technology has resulted in the emergence of a combined approach to the diagnosis and prognosis process, with a data driven analytical approach complementing biomedical and clinical methods. Cost-sensitive learning is one such data mining method, particularly well suited for medical problems. This paper investigates the performance of a new system ba...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Vidrighin, C., Potolea, R. Tags: Article Source Type: journals
Action research in developing knowledge networks
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This paper describes the experiences of the Eastern Head Injury Study in creating a strategic regional head injury service framework using a collaborative action research methodology. The types of data, information and knowledge required to develop and support such a framework for both development and successful implementation are identified. This includes the identification of existing knowledge/information systems, the variability and gaps in these, and how the systems fit together, using a number of evidence-gathering and knowledge-sharing methods. The discussion debates the value of the action research approach and wha...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Seeley, H., Urquhart, C. Tags: Article Source Type: journals
Topic maps for exploring nosological, lexical, semantic and HL7 structures for clinical data
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A topic map is implemented for learning about clinical data associated with a hospital stay for patients diagnosed with chronic kidney disease, diabetes and hypertension. The question posed is: how might a topic map help bridge perspectival differences among communities of practice and help make commensurable the different classifications they use? The knowledge layer of the topic map was generated from existing ontological relationships in nosological, lexical, semantic and HL7 boundary objects. Discharge summaries, patient charts and clinical data warehouse entries reified the clinical knowledge used in practice. These c...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Paterson, G. I., Grant, A. M., Soroka, S. D. Tags: Article Source Type: journals
The strategic management of data quality in healthcare
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This research extends and tests principles to establish good practice and overcome practical barriers in the strategic management of data quality. The research explores the issues that define and control data quality in national health data collections and the mechanisms and frameworks that can be developed to achieve and sustain good data quality. The aim is to make the strategic management of data quality, and the prevention of persistent errors, everyday, `institutionalized' activities. Using action research methodology and a combination of interpretive and positivist data collection and analysis methods, this research ...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Kerr, K. A., Norris, T., Stockdale, R. Tags: Article Source Type: journals
Healthcare managers' decision making: findings of a small scale exploratory study
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This study considers how to integrate research knowledge effectively into healthcare managers' decision making, and how to manage and integrate information that will include community data. This first phase in a two-phase mixed methods research study used a qualitative, multiple case studies design. Nineteen semi-structured interviews were undertaken using the critical incident technique. Interview transcripts were analysed using the NatCen Framework. One theme represented `information and decisions'. Cases were determined to involve complex multi-level, multi-situational decisions with participants in practical rather tha...
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: MacDonald, J., Bath, P. A., Booth, A. Tags: Article Source Type: journals
Special Issue From research to development to implementation: challenges in health informatics and health information management
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(Source: Health Informatics Journal)
Source: Health Informatics Journal - November 13, 2008 Category: Information Technology Authors: Bath, P. A. Tags: Article Source Type: journals
Erratum
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(Source: Health Informatics Journal)
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Tags: Article Source Type: journals
The organizing vision of integrated health information systems
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The notion of `integration' in the context of health information systems is ill-defined yet in widespread use. We identify a variety of meanings ranging from the purely technical integration of information systems to the integration of services. This ambiguity (or interpretive flexibility), we argue, is inherent rather than accidental: it is a necessary prerequisite for mobilizing political and ideological support among stakeholders for integrated health information systems. Building on this, our aim is to trace out the career dynamics of the vision of `integration/ integrated'. The career dynamics is the transformation of...
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Authors: Ellingsen, G., Monteiro, E. Tags: Article Source Type: journals
When trust defies common security sense
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Primary care medical practices fail to recognize the seriousness of security threats to their patient and practice information. This can be attributed to a lack of understanding of security concepts, underestimation of potential threats and the difficulty in configuration of security technology countermeasures. To appreciate the factors contributing to such problems, research into general practitioner security practice and perceptions of security was undertaken. The investigation focused on demographics, actual practice, issues and barriers, and practitioner perception. Poor implementation, lack of relevant knowledge and i...
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Authors: Williams, P. A. H. Tags: Article Source Type: journals
Organizational effects of information and communication technology (ICT) in elderly homecare: a case study
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The use of information and communication technology (ICT) to support integrated healthcare services in elderly homecare is becoming more established. In particular, ICT can enable information exchange, knowledge sharing and documentation at the point-of-care (POC). The aim of this study was to explore these effects using the Old@Home prototype. Old@Home was perceived to contribute in developing horizontal links for communication between individuals who work together, independent of geographical distance or organizational affiliation, and to contribute to increased work efficiency. The prototype was further seen to reduce p...
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Authors: Vimarlund, V., Olve, N.-G., Scandurra, I., Koch, S. Tags: Article Source Type: journals
Information system needs in health promotion: a case study of the Safe Community programme using requirements engineering methods
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The international Safe Community programme was used as the setting for a case study to explore the need for information system support in health promotion programmes. The 14 Safe Communities active in Sweden during 2002 were invited to participate and 13 accepted. A questionnaire on computer usage and a critical incident technique instrument were distributed. Sharing of management information, creating social capital for safety promotion, and injury data recording were found to be key areas that need to be further supported by computer-based information systems. Most respondents reported having access to a personal compute...
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Authors: Timpka, T., Olvander, C., Hallberg, N. Tags: Article Source Type: journals
Patients' use of the Internet for health related matters: a study of Internet usage in 2000 and 2006
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This prospective questionnaire study investigated access to the Internet and use of the Internet for health related information. Patients attending the senior author's ENT clinic (204 in 2000; 209 in 2006) were asked two questions: do you have access to the Internet? Have you used the Internet to find health related information? Access to the Internet rose from 43 per cent (88) in 2000 to 70 per cent (147) in 2006, a significant increase (p < 0.001). The Internet was used for health related information by only 32 patients (16%) in 2000 but by 114 (55%) in 2006, a dramatic and significant increase (p < 0.001). Clearly...
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Authors: Trotter, M. I., Morgan, D. W. Tags: Article Source Type: journals
A study of undue pain and surfing: using hierarchical criteria to assess website quality
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In studies of web-based consumer health information, scant attention has been paid to the selective development of differential methodologies for website quality evaluation, or to selective grouping and analysis of specific `domains of uncertainty' in healthcare. Our objective is to introduce a more refined model for website evaluation, and illustrate its application using assessment of websites within an area of ongoing medical uncertainty, back pain. In this exploratory technology assessment, we suggest a model for assessing these `domains of uncertainty' within healthcare, using qualitative assessment of websites and hi...
Source: Health Informatics Journal - August 18, 2008 Category: Information Technology Authors: Lorence, D., Abraham, J. Tags: Article Source Type: journals
On the importance of intellectual property rights for e-science and the integrated health record
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An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale ele...
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: D'Agostino, G., Hinds, C., Jirotka, M., Meyer, C., Piper, T., Rahman, M., Vaver, D. Tags: Article Source Type: journals
The challenging nature of patient identifiers: an ethnographic study of patient identification at a London walk-in centre
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This article presents the findings of an ethnographic study of patient identification at a walk-in centre in the UK. We offer a view of patient identifiers as used in practice and show how seemingly simple data, such as a person's name or date of birth, are more complex than they may at first appear and how they potentially pose problems for the use of integrated health records. We further report and discuss a dichotomy between the identifiers needed to access health records and the identifiers used by practitioners in their everyday work. (Source: Health Informatics Journal)
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: Lichtner, V., Wilson, S., Galliers, J. R. Tags: Article Source Type: journals
Deploying a Culture Change Programme management approach in support of information and communication technology developments in Greater Glasgow NHS Board
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This article reports on the project management and Culture Change Programme adopted by the NHS Greater Glasgow Health Board to deliver an electronic patient record (EPR) to support cardiology and stroke clinical services. To achieve its vision for the EPR (`to "really make a difference" to patient care by providing to the right person, the right information, under the right safeguards') the Board recognized that attending to social and organizational issues is at least of equal importance to addressing strictly technical concerns. Consequently, an ICT Culture Change Programme (ICT CCP) was devised and implemented to assist...
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: Frame, J., Watson, J., Thomson, K. Tags: Article Source Type: journals
Reconfiguring the health supplier market: changing relationships in the primary care supplier market in England
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This article explores the changes in these relationships by drawing on comparisons with the previous system for procurement of primary care computing systems, which ran for much of the 1990s. The article also comments on characteristics of the CfH procurement/ contracting process, the differing responses of suppliers, and the role of the existing installed base as an actor in building a new infrastructure for health records. (Source: Health Informatics Journal)
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: Sugden, B., Wilson, R., Cornford, J. Tags: Article Source Type: journals
On the importance of intellectual property rights for e-science and the integrated health record
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This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record. (Source: Health Informatics Journal)
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: D'Agostino, G., Hinds, C., Jirotka, M., Meyer, C., Piper, T., Rahman, M., Vaver, D. Tags: Article Source Type: journals
Supporting grid-based clinical trials in Scotland
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A computational infrastructure to underpin complex clinical trials and medical population studies is highly desirable. This should allow access to a range of distributed clinical data sets; support the efficient processing and analysis of the data obtained; have security at its heart; and ensure that authorized individuals are able to see privileged data and no more. Each clinical trial has its own requirements on data sets and how they are used; hence a reusable and flexible framework offers many advantages. The MRC funded Virtual Organisations for Tria...
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: Sinnott, R.O., Stell, A.J., Ajayi, O. Tags: Article Source Type: journals
Special Issue Editorial Integrated health records: practice and technology
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(Source: Health Informatics Journal)
Source: Health Informatics Journal - May 13, 2008 Category: Information Technology Authors: Hartswood, M., Kennedy, J., Monteiro, E., Rouncefield, M., Martin, D. Tags: Article Source Type: journals
Homecare and the informal information grapevine: implications for the electronic record in social care
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This article explores informal information exchange in social care, and implications for formal monitoring with an electronic social care record (ESCR). Six homecare settings were studied over 14 months between 2001 and 2002. Participant observation methods were used with the recipients of homecare (n = 7) and in-depth interviews plus participant observation with formal care workers (n = 31). Allied healthcare professionals (n = 9) and homecare managers (n = 5) were interviewed, as were two family members. The findings show that assumptions about monitoring of care processes may be faulty, and that trust and negotiation ar...
Source: Health Informatics Journal - February 7, 2008 Category: Information Technology Authors: Cooper, J., Urquhart, C. Tags: Article Source Type: journals
A method to map heterogeneity between near but non-equivalent semantic attributes in multiple health data registries
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Health registries from multiple jurisdictions often include terms that are assumed to be semantically equivalent (e.g. fetal death and stillbirth). Closer examination reveals that such attributes have near — but non-equivalent — semantics. Thus their degree of semantic heterogeneity is an important indicator of uncertainty associated with data integration between registries. We build an OWL-encoded ontology which formalizes the relationships between similar perinatal concepts found in different databases. We also introduce the concept of ontology-based metadata as a means of contextualizing such terms and linki...
Source: Health Informatics Journal - February 7, 2008 Category: Information Technology Authors: Schuurman, N., Leszczynski, A. Tags: Article Source Type: journals
Group disparities and health information: a study of online access for the underserved
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The Internet is an oft-cited learning resource, useful to consumers who seek to educate themselves on specific technical issues or knowledge-intensive topics. Availability of public-access Internet portals and decreasing costs of personal computers have created a consensus that unequal access to information, or a "Digital Divide", presents a like problem specific to information for uninsured or under-insured healthcare consumers. Access to information, however, is now an essential part of consumer-centric healthcare management. To date little research has been done to differentiate levels of health information access on th...
Source: Health Informatics Journal - February 7, 2008 Category: Information Technology Authors: Lorence, D., Park, H. Tags: Article Source Type: journals
Use of health-related information from the Internet by English-speaking patients
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The aim of this research is to determine the kinds of health-related information that patients seek more often from websites written in English, and at which stages of the healthcare decisional process they use this information more intensively. A quantitative study was performed. Canadian English-speaking patients who have long-term diseases and who use the Internet completed an 18-item questionnaire online. Respondents were questioned about the categories of health-related websites they visit the most (scientific, general, commercial websites, or discussion groups) and the stages of the medical decisional process during ...
Source: Health Informatics Journal - February 7, 2008 Category: Information Technology Authors: Khechine, H., Pascot, D., Premont, P. Tags: Article Source Type: journals
Record linkage software in the public domain: a comparison of Link Plus, The Link King, and a `basic' deterministic algorithm
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The study objective was to compare the accuracy of a deterministic record linkage algorithm and two public domain software applications for record linkage (The Link King and Link Plus). The three algorithms were used to unduplicate an administrative database containing personal identifiers for over 500,000 clients. Subsequently, a random sample of linked records was submitted to four research staff for blinded clerical review. Using reviewers' decisions as the `gold standard', sensitivity and positive predictive values (PPVs) were estimated. Optimally, sensitivity and PPVs in the mid 90s could be obtained from both The Lin...
Source: Health Informatics Journal - February 7, 2008 Category: Information Technology Authors: Campbell, K. M., Deck, D., Krupski, A. Tags: Article Source Type: journals
A study of peer-to-peer information in a domain of uncertainty: the case of epilepsy
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As increasing amounts of complex health information become available via the Internet, providers frequently advise that it is important for health consumers to carefully consider the source of lay information, as well as discuss the clinical information they find with their healthcare provider. Beyond clinical indicators and standards, however, there exist few evaluative frameworks for assessing health information, especially within peer-to-peer networks. Traditional methods of analyzing online discussion content, such as keyword examination or network s...
Source: Health Informatics Journal - November 20, 2007 Category: Information Technology Authors: Lorence, D., Chen, L. Tags: Article Source Type: journals
Interventions for information systems introduction in the NHS
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This article provides a historical review of five long-term interventions which were undertaken within the NHS. The objective of the exercise was to examine how information systems (IS) were introduced into operational environments. The length of the interventions ranged from 9 months to almost 3 years. The five sites were all at different stages of system development and the research was carried out using a combination of participant observation and action research. The research question asks, `How can organizations think about and hence go about their information provision in such a way that successful IS are introduced?...
Source: Health Informatics Journal - November 20, 2007 Category: Information Technology Authors: Maguire, S., Ojiako, U. Tags: Article Source Type: journals
