Journal of Policy and Practice in Intellectual DisabilitiesThis is an RSS file. You can use it to subscribe to this data in your favourite RSS reader, such as GoogleReader, or to display this data on your own website or blog. Subscribe to this data using MyMedWorm.Subscribe to this data using GoogleReader.Subscribe to this data using Bloglines.Subscribe to this data using MyYahoo.

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ErrataEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Tags: Errata Source Type: journals

Understanding Learning Disability and Dementia: Developing Effective InterventionsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Christine Bigby Tags: Book Review Source Type: journals

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 19). A Brief Report on Research Activities at the Scientific Research InstituteEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Giorgio Albertini Tags: Original Articles Source Type: journals

Effects of the Changes in Legislation Governing Offenders with Intellectual Disabilities in Norway: A Descriptive StudyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
A recent change in legislation in Norway redefined which persons with an intellectual disability (ID) are considered as "offenders" within the judicial system. After that change, the number of adults with ID convicted of a crime and subject to forensic services decreased from 27 in 2002 to 13 in 2006. Crimes considered under the statue include those of a violent nature, sexual offenses, or life-threatening arson. Persons falling under provisions of the statue include those identified as non-responsible with intellectual functioning corresponding to moderate or severe ID (IQ < 55). The new statue includes a provision of sen...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Erik Søndenaa, Olav Martin Linaker, Jim Aage Nøttestad Tags: Original Articles Source Type: journals

Impact of Social Advocacy on Updating Incapacity Determination Procedures for People With Intellectual Disabilities in PolandEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors discuss the antecedents to recent changes in Poland's guardianship laws. These include a review of: (1) historical procedures in place for adjudicating incapacity; (2) research carried out in 2000 on the initiative of the Polish Association for Persons with Mental Handicap (PAPMH) on judicial practices in Polish courts with respect to adjudicating persons with intellectual disabilities (ID) as legally incapable; and (3) a successful lobbying campaign conducted by the PAPMH to institute changes in the law. The research involved a review by law students of 393 cases of capacity adjudications conducted between 199...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Anna Firkowska-Mankiewicz, Małgorzata Szeroczyńska Tags: Original Articles Source Type: journals

Autonomy Markers in Brazilian Adults With Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The objective of the study was to investigate the relationship between autonomy markers in adult people with intellectual disabilities (ID) and variables such as intelligence quotient (IQ), early aging, and literacy. Participants were 47 adults with ID (33 men; aged 28[ndash]58 years with nonspecific etiology, 34 literate). All participants were trainees at the Center for Training of Capacity and Orientation for Employment at Associação de Pais e Amigos dos Excepcionais de São Paulo, São Paulo State, Brazil. They were divided into two age groups: younger (n = 27, mean age 31.85; ±2.23), and older (n = 38, mean age 41....
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Flávia Heloísa Dos Santos, Silvana Maria Groth, Maria Luiza Machado Tags: Original Articles Source Type: journals

Diverse Conceptualizations of Deinstitutionalization as a Barrier to the Implementation of Discharge PoliciesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
There are various reasons why the regular movement of people with intellectual disabilities from the institution to the community has been impeded in the United Kingdom. Some of these include the lack of a formal national policy, the difficulty of forming joint planning groups, fiscal difficulties, the lack of appropriate accommodation, inadequate development of services in the community, and resistance from the community. Using a case study approach, the author undertook to identify the particular barriers that arose in one specific discharge program, and to produce guidelines for avoiding such difficulties in future proj...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Stavros K. Parlalis Tags: Original Articles Source Type: journals

Quality of Life of Australian Family Carers: Implications for Research, Policy, and PracticeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
As part of an international, multicentered project, the burden of care, health, and subjective well-being experienced by select Australian family carers supporting a relative with disability at home were investigated. Some 448 family carers residing in New South Wales and Tasmania completed a battery of instruments, including a self-report demographic survey, the Family Caregiver Burden Inventory, the General Health Questionnaire, and the Personal Wellbeing Index. Respondents were predominantly females (mean age = 48 years), married, and supporting a son or daughter with an intellectual disability (mean age = 18 years). Al...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Rosanne Burton-Smith, Keith R. McVilly, Marie Yazbeck, Trevor R. Parmenter, Takako Tsutsui Tags: Original Articles Source Type: journals

Current and Future Concerns of Older Parents of Sons and Daughters With Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Increasingly greater numbers of older parents are providing care at home for their sons and daughters with intellectual disabilities. As attention needs to be paid to the supports needed by such families to assist them with their caregiving activities, it is prudent to identify the types of supports that will be needed when the parents are no longer able to provide care. Working with a cohort of older parent carers in Prince Edward Island, Canada, the authors undertook to examine older carer concerns and planning issues. Using both qualitative and quantitative methods to explore the key issues that older parents of sons an...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Lori E. Weeks, Thomy Nilsson, Olive Bryanton, Albert Kozma Tags: Original Articles Source Type: journals

Psychosocial Factors Affecting Adults With Intellectual Disabilities With Psychiatric Disorders in Cali, ColombiaEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The objective of this study was to describe the psychosocial factors associated with the comorbidity between ID and psychiatric disorder of adults in the city of Cali, Colombia. Subjects were 50 dyads consisting of a carer and a person with ID. The Caregivers Questionnaire and the Integral Quality of Life Scale were adapted for use in the study. The analysis of information was based on three factors: person, family, and society. In the case of the personal factor, an adequate level of physical well-being and a good level of self-care were found in more than 60% of the adults with dual diagnosis, good adherence to treatment...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Miguel Ángel Verdugo, Leonor Córdoba, Angélica Maria Restrepo, Julian Cardona, Pilar Peña Tags: Original Articles Source Type: journals

Care and Service Trajectories for People With Intellectual Disabilities: Defining Its Course and Quality Determinants From the Client's PerspectiveEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Care and service trajectories are identifiable routes through service systems that consist of all steps that people with intellectual disabilities (ID) and their families have to take to realize the care and services they need. Trajectories are especially prominent during the transitions from children's services to adult services. Within a service system in Noord-Brabant (in the Netherlands), the authors examined the course of such trajectories and their main bottlenecks and sought to identify their quality determinants. The first research question was addressed by an exercise in document analysis and the holding of semist...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 31, 2009 Category: Disability Authors: Anna Barelds, Ien Van De Goor, Maria Bos, Guus Van Heck, Jos Schols Tags: Original Articles Source Type: journals

IASSID FellowsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Call for SubmissionsSpecial Issue on Transition & EmploymentEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Rosemary Lysaght Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Abstracts from the 2nd IASSID Asia-Pacific Regional Conference Singapore, June 24–27, 2009Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Challenging Behavior: A Barrier to Inclusion?Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Arguably, the most important outcome measure for services to people with intellectual disabilities is quality of life. Quality of life has been defined in numerous ways and may consist of many aspects, including physical, material, and emotional well-being, as well as interpersonal relationships, personal development, self-determination, social inclusion, and civic rights. However, the most important aspect is social inclusion. People with intellectual disabilities who show challenging behavior, however, often make other people uncomfortable so that social inclusion is more difficult, and evidence suggests that both childr...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Glynis Murphy Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Challenging the Myths and Redressing the Missteps in Family ResearchEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Families of children with disabilities have been the subject of a number of myths, some of which have been introduced and promulgated by researchers influenced by cultural norms that may incline them to ask questions in particular ways and which may result in the institutionalization of ideas and methods, rather than subjecting established beliefs and perspectives to scrutiny. Only relatively recently, for example, has the conviction that only negative consequences will be experienced by families with a child with a disability been challenged. Research questions and instruments or approaches must allow for positive experie...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Monica Cuskelly Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Possibilities for an Inclusive Society in Singapore: Becoming Inclusive WithinEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The envisioning of Singapore as an inclusive society has witnessed the most progressive systemic and policy developments concerning people with disabilities in recent years. The building of "heartware" in society (as in the will, values, and attitudes of its citizens) in order to realize the vision of an inclusive society, however, requires both change from within and change from without. For the vision of an inclusive society to be realized, an inclusive system needs to be upheld and supported by people who are inclusive within. The seeds for the possibilities of change in society toward inclusivity of diverse others (e.g...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Levan Lim Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Persons With Intellectual and Multiple Disabilities in JapanEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The author outlines the history, current situation, and the future of the care and support system for people with intellectual and multiple disabilities in Japan. He describes how the service system has been shaped from within by Japanese legislation dating back to the Child Welfare Act of 1947, and how international events such as the "International Year of Persons with Disabilities" have influenced both legislation and service development in Japan. The author also outlines how researchers and lecturers are contributing to the development of services and educating the workforce, which provides the critical supports for pe...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Shigeru Suemitsu Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Healthy Persons With Intellectual Disabilities in an Inclusive SocietyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Persons with intellectual disabilities (ID) have twice as many health problems than the general public. The author discusses evidence-based research on prevalence and best treatment of primary and secondary health problems in persons with ID. Citing the pan-European Pomona project, European data were collected on training for health professionals regarding health of persons with ID. International cooperation in research and transport of expertise through exchange of students and professionals in this field are recommended. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: H. M. J. van Schrojenstein Lantman-de Valk Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

The Aging Dilemma: Is Increasing Longevity Among People With Intellectual Disabilities Creating a New Population Challenge in the Asia-Pacific Region?Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The Macau Declaration on Ageing for Asia and the Pacific and the Plan of Action on Ageing for Asia and the Pacific provide a framework for defining the needs of the aging population in the Asia-Pacific region. It also served as a stimulus for planning and public commitment to addressing the needs of the region's elderly population, including the needs of each of the nation's adult and aging populations of persons with intellectual disabilities. Within the Asia-Pacific region, the diversity of cultural and economic interests often combines to define how services are provided to their aging populations and both how disabilit...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Matthew P. Janicki Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

ICF-CY: A Universal Tool for Documentation of DisabilityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The International Classification of Functioning, Disability and Health[mdash]ICF (ICF-CY) conceptual framework offers a new paradigm and taxonomy of human functioning disability, which can be used to guide holistic and interdisciplinary approaches to assessment and intervention. In settings serving children, youth, or adults with disabilities, the ICF-CY can provide comprehensive documentation of its involvement in special education and rehabilitation. Implementation of the ICF-CY in early intervention, special education, and habilitation settings should build on the adoption of the dimensional framework for practice and c...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 9, 2009 Category: Disability Authors: Rune J. Simeonsson Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Creating Possibilities for an Inclusive Society: A Commentary on the Second Asia-Pacific ConferenceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - May 31, 2009 Category: Disability Authors: Keith R. McVilly, Libby Cohen, Kenneth Poon, Balbir Singh Tags: Special issue: 2nd IASSID Asia-Pacific Regional Conference, Singapore, June 24 & #x2013;27, 2009 Source Type: journals

Diagnostic Manual-Intellectual Disability: A Textbook of Diagnosis of Mental Disorders in Persons With Intellectual DisabilityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Nehama T. Baum Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Person-Centered Planning and Care Management With People With Learning DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Robin Jackson Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Quality of Life: From Concept to Future Applications in the Field of Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors consider conclusions reached with respect to quality of life (QoL); these are examined in terms of both the past and present developments and within the context of three major areas. These three are (1) application of QoL through support and intervention; (2) the application to family QoL and the development of a working model; and (3) application of QoL for policy and evaluation. These conclusions are examined in relation to implications for public policy in terms of support and intervention, measurement and evaluation, with particular focus on a greater understanding and acceptance of the implications and str...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Miguel A. Verdugo, Robert L. Schalock Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Utility of Logic Models to Plan Quality of Life Outcome EvaluationsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Quality of life is widely accepted as an important concept in the evaluation of health and social services provided to persons with intellectual disabilities. While quality of life has been studied as a service outcome and measure of program improvement, its application to multiple levels of program delivery and evaluation remain unclear and can be difficult for community-based agencies that lack resources. An approach using program logic models and including program staff can build evaluation capacity. Logic models can be used to link service components with relevant quality of life outcomes at short-term, intermediate, a...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Barry Isaacs, Cinda Clark, Susana Correia, John Flannery Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Using Quality of Life to Evaluate Outcomes and Measure EffectivenessEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Evaluating the outcomes achieved by service providers who assist people with intellectual disabilities is extremely important in terms of ascertaining whether service providers achieve their goals. Furthermore, knowledge of the outcomes achieved by service providers better equips those charged with managing them to make strategic decisions to fulfill their accountability obligations for the best use of limited resources. The authors provide support for the emerging view that quality of life is an outcome measure that can be utilized to assess service providers' performance. To do this they modified a performance measuremen...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Ralph Kober, Ian R. C. Eggleton Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Family Quality of Life Before and After Out-of-Home Placement of a Family Member With an Intellectual DisabilityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The effect of out-of-home residential placement on families has been previously studied. However, no study has examined this issue through the lens of "family quality of life" (FQoL). The aim of this study was to produce a picture of FQoL among families with a member with an intellectual disability (ID) who has multiple diagnoses (i.e., an additional condition such as a behavioral or emotional disturbance). FQoL before and after residential placement was examined. Sixteen family carers with family members with an ID participated in an in-depth interview focusing on five areas of FQoL: stress, coping, emotional impact, fami...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Shirli Werner, Meaghan Edwards, Nehama T. Baum Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Family Quality of Life: Moving From Measurement to ApplicationEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Noting the absence of sound theoretical underpinnings for family quality of life (FQoL) research and work, the authors note that, to guide FQoL practice, research findings must be schematically organized so as to enable practitioners to implement empirical findings effectively. One way to meet this goal is to introduce a theoretical model that clearly displays and describes the relationships among variables that explain FQoL. Thus, the authors propose a theory of FQoL designed to explain how various concepts[mdash]systems, performance, individuals, and family units[mdash]influence variations in FQoL. In defining each of th...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Nina I. Zuna, Ann Turnbull, Jean Ann Summers Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Family Quality of Life Empowered by Family-Oriented SupportEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Professional services for persons with intellectual disabilities (ID) have begun to attach more importance to their environment. The concept of (family-related) quality of life proved to link very well with this idea and lent itself to constructing and evaluating services. One outcome was the emergence of equal partnerships between families, service providers, and other parties in the community. Within this context, the authors explored and described positive practices in supporting young adults with IDs by realizing their personal future plans based on partnerships, the concept of quality of life, and community support. N...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Alice Schippers, Marleen van Boheemen Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Choice as an Aspect of Quality of Life for People With Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Choice, a concept included in the quality of life approach, is frequently referred to in quality of life and related literature, but its components have not been described clearly. Drawing on conceptual considerations and research reports, the authors review and extend what is known about choice, and set out a conceptualization of its two main components: available opportunities and choice-making. The most important characteristics of opportunities are breadth and familiarity, and the most important characteristics of choice making are freedom, initiative, and skill. The authors consider the application of choice to suppor...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Ivan Brown, Roy I. Brown Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Survey Outcomes and Cross-National Comparisons of Quality of Life With Respect to People With Intellectual Disabilities in TaiwanEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
As studies of the quality of life (QoL) of adults with intellectual disabilities (ID) in Taiwan have been limited, the authors assessed how Taiwanese adults with ID experience their QoL, including comparisons with their counterparts in other countries. The study involved administering the Cross-Cultural QoL Indicators Survey and the Quality of Life Questionnaire in 2004 and 2005 to a total of 481 adults with ID who either were living with their family or residing within a facility. Results indicated that the domain of "social inclusion" was the lowest for both adults using residential services or living with family. In add...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Yueh-Ching Chou, Robert Schalock Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Quality of Life: Its Application to Persons With Intellectual Disabilities and Their Families—Introduction and OverviewEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors provide an overview of quality of life (QoL) conceptualization in the field of intellectual disabilities (ID), provide background information, and set an organizing framework for presenting concepts and concrete ideas for applying QoL. This framework is useful for three broad categories of application in the field of ID that form the application of QoL to individuals, groups of individuals, and to families. QoL thus can be used as a sensitizing notion that gives a sense of reference and guidance from the individual's perspective, focusing on the person and the individual's environment and provides a framework f...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 18, 2009 Category: Disability Authors: Roy I. Brown, Robert L. Schalock, Ivan Brown Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Guest Editorial on Quality of Life and Its ApplicationEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 1, 2009 Category: Disability Authors: Roy I. Brown Tags: Special Issue: Quality of Life and its Applications ROY I. BROWN, ROBERT L. SCHALOCK, AND IVAN BROWN, GUEST EDITORS Source Type: journals

Attitudes of Community Developmental Services Agency Staff Toward Issues of Inclusion for Individuals With Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This study highlights the need for education and training targeted at particular "at-risk" staff groups in order to ensure the successful implementation of the goals of the inclusion movement. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 27, 2008 Category: Disability Authors: Jessica Jones, Hélène Ouellette-Kuntz, Tania Vilela, Hilary Brown Tags: Original Articles Source Type: journals

Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanità (No. 18). A New Research Project in Rome Between San Raffaele Research Institute and Faculty of Education at the Università degli Studi Roma TreEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Giorgio Albertini, Claudia Condoluci, Anna Maria Favorini Tags: Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanit & agrave; (No. 18). A New Research Project in Rome Between San Raffaele Research Institute and Faculty of Education at the Universit agrave; degli Studi Roma Tre Source Type: journals

MinutesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Hélène Ouellette-Kuntz Tags: Minutes Source Type: journals

A Comprehensive Guide to Intellectual and Developmental DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Nancy Jokinen Tags: Book Review Source Type: journals

Brief Report: State of the Science Symposium on Aging and Developmental Disabilities1Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The overall goal of the 2007 State of the Science Symposium on Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living (held in Atlanta, Georgia, U.S.A.) was to increase the understanding and definition of how to improve the health, psychosocial well-being, and community participation of older adults with intellectual and developmental disabilities. The symposium consisted of four main tracks (neurodevelopmental conditions; health care services, health promotion needs, and health literacy; family support and intergenerational caregiving; and environment...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Tamar Heller, Matthew P. Janicki, Beth Marks, Joy Hammel, Alan Factor Tags: Brief Report Source Type: journals

Enhancing Personal Outcomes: Organizational Strategies, Guidelines, and ExamplesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Education and rehabilitation programs in the field of intellectual disabilities are developing specific strategies related to demonstrated personal outcomes, quality of life (QOL)-related services and supports, evidence-based practices, and quality improvement. The purpose of this article is to summarize key aspects of these strategies within a two-component framework: the concept of QOL and systems thinking. Based on our collective experiences and published literature, four specific strategies are presented and discussed: mental models, assessment, service delivery practices, and quality improvement (QI). Essential guidel...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Robert L. Schalock, Miquel A. Verdugo, Gordon S. Bonham, Fernando Fantova, Jos Van Loon Tags: Original Articles Source Type: journals

Colleagues' Perception of Supported Employee PerformanceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors investigated whether supported employees are perceived on an equal basis within the workplace by their nondisabled worker colleagues. Three types of social relationships were considered in a workplace context ("work acquaintances,""work friends," and "social friends") in order to examine whether the types of social relationships that develop between supported employees and their coworkers may reveal information regarding the level of equality between them and the level of integration enjoyed by the supported employees. Semi-structured interviews were held with coworkers of supported employees and were used to d...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Jane-Murray Cramm, Nelleke Tebra, Harry Finkenflügel Tags: Original Articles Source Type: journals

Psychologists' Clinical Practices in Assessing Dementia in Individuals With Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This study set out to examine the clinical practice of one key professional group, namely clinical psychologists. A national survey of clinical psychologists in ID services in the United Kingdom was undertaken. Detailed descriptions of clinical practice were obtained from 64 psychologists. Responses were further explored in focus groups. The results suggest marked variability in practice, assessment methods, and explanations clinicians give to service users and carers. Clinicians described struggling with the ethics and practicalities of how to present dementia assessments to individuals with ID and highlighted a need for ...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Ellen Auty, Katrina Scior Tags: Original Articles Source Type: journals

Relationship Between Mobility Limitations and the Places Where Older Adults With Intellectual Disabilities LiveEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
As the population ages, mobility limitations are associated with increased mortality and negative health-related states both in the general population and among people with intellectual disabilities. The influence of mobility limitations upon the lives and lifestyles of people with intellectual disabilities remains poorly understood. Specifically, the extent to which mobility limitations might limit residential options for individuals and families has not been evaluated. To determine the relationship between mobility limitations and place of residence for adults with intellectual disabilities, age 45 and older, a proxy-res...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Shaun Cleaver, Hélène Ouellette-Kuntz, Duncan Hunter Tags: Original Articles Source Type: journals

Adaptation of Flemish Services to Accommodate and Support the Aging of People With Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors attempted to find out to what extent and in which ways, in Belgium, have Flemish services for people with intellectual disability adapted to the specific needs of aging people. A study was undertaken and a questionnaire was developed to address the following research topics: (1) accommodations and personnel, (2) staff working methods, and (3) staff views and attitudes. The questionnaire was completed by 66 coordinating staff members in as many facilities. At the time of our study, these services supported 310 (27%) persons with Down syndrome age 40 years and older and 833 (73%) persons with intellectual disabil...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Bea Maes, Joris Van Puyenbroeck Tags: Original Articles Source Type: journals

Public Special Services Provided to People With Intellectual Disabilities in Sweden: A Life-Span PerspectiveEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This study describes public special services, support, and health care provided to an administratively defined county sample of people with intellectual disabilities from early childhood to adult age. Comparisons were made on the variables year of birth, sex, and assessed level of intellectual disabilities in 1974. Information was obtained from case files and included the period from year of birth of the participants (between 1959 and 1974) to 2005. All participants were provided public special services, support, and health care either periodically or throughout the study period. Changes in legislation were reflected in th...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Õie Umb-Carlsson Tags: Original Articles Source Type: journals

Relationships Among Risk, Sense of Coherence, and Well-Being in Parents of Children With and Without Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors studied the nature and function of the relationships of the comparative level of risk, sense of coherence (SOC), and well-being, over time, in mothers and fathers of preschool children with and without intellectual disabilities (IDs). The hypothesis that SOC functions as a moderator between risk and well-being was tested. Parents of children with IDs (mothers: n = 62 (46 at follow-up) and fathers: n = 49 (37 at follow-up)) and control parents (mothers: n = 178 (131 at follow-up) and fathers: n = 141 (97 at follow-up)) answered self-report measures on risk factors (i.e., child behavior problems, negative impact ...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 26, 2008 Category: Disability Authors: Malin B. Olsson, Pernilla Larsman, Philip C. Hwang Tags: Original Articles Source Type: journals

In Memoriam: Kenneth A. Day (1936–2008) Consultant PsychiatristEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 29, 2008 Category: Disability Authors: Michael Mulcahy Tags: In Memoriam Source Type: journals

Informational Digest Bulletin From San Raffaele Foundation and Tosinvest Sanità (No. 17). Electroencephalogram in Children and Adolescents With Down SyndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 28, 2008 Category: Disability Authors: Giorgio Albertini, Paolo Onorati Tags: Informational Digest Bulletin from San Raffaele Foundation and Tosinvest Sanit & agrave; (No. 17). Electroencephalogram in Children and Adolescents with Down Syndrome Source Type: journals

International Association for the Scientific Study of Intellectual Disabilities (IASSID) Meetings 2009Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 28, 2008 Category: Disability Tags: Announcements Source Type: journals