Effect and Process Evaluation of a Structural Health Intervention in Community Residences for Adults With Intellectual Disabilities
This study evaluated effectiveness of a structural health intervention, a study circle for paid carers aiming to improve health promotion work routines for residents, and explored barriers and facilitators in the implementation process. A quasi ‐experimental design was used. Eight municipalities with 84 community residences agreed to participate with 70 of these completing the study. A 26‐item questionnaire was used regarding staff work routines in three domains (general health promotion, food and meals, physical activity) and a total score to evaluate effectiveness. An inductive qualitative method was used to explore ...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 15, 2018 Category: Disability Authors: Liselotte S. Elinder, Elinor Sundblom, Zangin Zeebari, Helena Bergstr öm Tags: Original Article Source Type: research

The ELCIDD Project: An Audit of End ‐of‐Life Care in Persons with Intellectual Disabilities and Dementia
AbstractWith a rise in the life expectancy of people with intellectual disabilities in recent decades, there has been a related increase in rates of dementia. As a chronic, progressive condition dementia presents opportunities for provision of pre ‐planned end‐of‐life care. This audit focussed on the level of compliance with pre‐defined end‐of‐life care standards for a group of patients with intellectual disabilities and severe dementia. Compliance with pre‐defined end‐of‐life care standards was found to be highly variable. Areas of high compliance included all 32 patients having access to their primary c...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 15, 2018 Category: Disability Authors: Samuel Tromans, Hayley Andrews, Anu Wani, Satheesh Ganghadaran Tags: Brief Research Report Source Type: research

“It's Like Two Roles We're Playing”: Parent Perspectives on Navigating Self‐Directed Service Programs with Adult Children with Intellectual and/or Developmental Disabilities
AbstractPublicly funded self ‐directed budgets for purchasing community‐based long‐term services and supports for people with intellectual and/or developmental disabilities (IDD) have become a wide‐spread service model in the United States and internationally. The current study aims to understand parents' experiences in navigating self‐directed support programs with their adult child with IDD. We utilized qualitative content analysis of interviews with 26 parents of adult children with IDD enrolled in self‐directed budget programs in five U.S. states. Twenty‐four parents reported numerous programmatic barrie ...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 15, 2018 Category: Disability Authors: Melissa Brown, Melissa Harry, Kevin Mahoney Tags: Original Article Source Type: research

Issue Information
Journal of Policy and Practice in Intellectual Disabilities,Volume 15, Issue 3, Page 173-175, September 2018. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 7, 2018 Category: Disability Source Type: research

Caregiving Roles of Siblings of Adults With Intellectual and Developmental Disabilities: A Systematic Review
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 5, 2018 Category: Disability Authors: Chung eunLee , Meghan M.Burke Source Type: research

Occupational Therapy Empowering Support Workers to Change How They Support People with Profound Intellectual and Multiple Disabilities to Engage in Activity
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 28, 2018 Category: Disability Authors: David Haines , Jonathan Wright , Huguette Comerasamy Source Type: research

Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long ‐Term Services and Supports
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 24, 2018 Category: Disability Authors: Heather J. Williamson , Elizabeth A. Perkins , Oliver T. Massey , Julie A. Baldwin , Amie Lulinski , Mary I. Armstrong , Bruce L. Levins Source Type: research

Clinical Practices and Barriers to Best Practice Implementation of Psychologists Working with Adults with Intellectual Disability and Comorbid Mental Ill Health
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 24, 2018 Category: Disability Authors: Joyce Man , Maria Kangas , Julian Trollor , Naomi Sweller Source Type: research

The Use of Quality of Life Scores for Monitoring and Reporting, Quality Improvement, and Research
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 16, 2018 Category: Disability Authors: R. L.Schalock , A.Baker , C.Claes , J.Gonzalez , R.Malatest , J.van Loon , M. A.Verdugo , G.Wesley Source Type: research

Alignment between the Convention on the Rights of Persons with Disabilities and the National Core Indicators Adult Consumer Survey
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 16, 2018 Category: Disability Authors: Ren áta Tichá , Xueqin Qian , Roger J. Stancliffe , Sheryl A. Larson , Alexandra Bonardi Source Type: research

Reliability and Feasibility of Systematic Registration of Coercive Measures in Care for People With Intellectual Disabilities
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - August 10, 2018 Category: Disability Authors: Baukje Schippers , Brenda J. M. Frederiks , Maroesjka van Nieuwenhuijzen , Carlo Schuengel Source Type: research

Collaboration in Inclusive Research: Competencies Considered Important for People With and Without Intellectual Disabilities
Journal of Policy and Practice in Intellectual Disabilities, EarlyView. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - July 16, 2018 Category: Disability Authors: Petri J. C. M.Embregts , Elsbeth F.Taminiau , Luci ënneHeerkens , Alice P.Schippers , Geertvan Hove Source Type: research

Issue Information
Journal of Policy and Practice in Intellectual Disabilities,Volume 15, Issue 2, Page 91-93, June 2018. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 14, 2018 Category: Disability Source Type: research

Examining Family Quality of Life Within the Context of a Participant ‐Directed ASD Funding Program in British Columbia, Canada
Journal of Policy and Practice in Intellectual Disabilities,Volume 15, Issue 2, Page 110-123, June 2018. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 14, 2018 Category: Disability Authors: EmilyGardiner , GraceIarocci Source Type: research

Literacy Learning Outcomes in a Longitudinal Study of a Postschool Literacy Education Program for Young Adults With Intellectual Disabilities
Journal of Policy and Practice in Intellectual Disabilities,Volume 15, Issue 2, Page 155-165, June 2018. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 14, 2018 Category: Disability Authors: KarenMoni , AnneJobling , BernieBaffour Source Type: research