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Caregiver Perceptions of the Understanding of Death and Need for Bereavement Support in Adults with Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
What are staff perceptions of service users' conceptualizations of death, and how confident are they in their own ability to provide post-bereavement support? (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - November 9, 2009 Category: Disability Source Type: organizations

Access to Secondary Healthcare for People with Intellectual Disabilities A Review of the LiteratureEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
What are the barriers to access to secondary healthcare for people with learning disabilities, and what could help to remove them? (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - November 9, 2009 Category: Disability Source Type: organizations

Cause-specific mortality and death certificate reporting in adults with moderate to profound intellectual disabilityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
How do causes of death in people with moderate to profound learning disabilities compare with the general population? (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - November 9, 2009 Category: Disability Source Type: organizations

Trends in Down syndrome live births and antenatal diagnoses in England and Wales from 1989 to 2008Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Description of trends in numbers of Down syndrome live births and antenatal diagnoses in England and Wales from 1989 to 2008 through analysis of National Down Syndrome Cytogenetic Register (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 31, 2009 Category: Disability Source Type: organizations

Good Partnership Boards Making it happen for everyoneEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Guide providing best practice examples from around the country and proposed ways of working, based on evidence. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 22, 2009 Category: Disability Source Type: organizations

Supporting Learning Disability Partnership Boards to implement the National Carers StrategyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Guidance to Learning Disability Partnership Boards to help them ensure carers of people with learning disabilities, and carers with learning disabilities are: (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 22, 2009 Category: Disability Source Type: organizations

Transitions to Adult Services by Disabled Young People Leaving Out of Authority Residential SchoolsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Small scoping study looking at practice in transition planning for disabled young people in residential schools (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 22, 2009 Category: Disability Source Type: organizations

Prevalence of obesity among ambulatory children and adolescents with intellectual disability and how does it compare to general population prevalenceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Survey of 9 schools with children with intellectual disabilities in Scotland. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 19, 2009 Category: Disability Source Type: organizations

Impact of pilot project with three primary care practices on staff awareness working practices and health outcomes for people with learning disabilityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Pilot study in Essex regarding primary care settings for people with learning disabilities, and to consider training needs of primary care staff. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 19, 2009 Category: Disability Source Type: organizations

To what extent is deaf-blindness in people with intellectual disability undiagnosedEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Study to discover the extent to which deaf-blindness was undiagnosed in Austria. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - October 19, 2009 Category: Disability Source Type: organizations

Asthma smoking and BMI in adults with intellectual disabilities a community-based surveyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Investigation into the extent of smoking and higher than recommended BMI among adults with ID and a diagnosis of asthma. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - September 4, 2009 Category: Disability Source Type: organizations

Starting a New Job The Social and Emotional Experience of People with Intellectual DisabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Study examining people's perceptions when they start supported employment and how these change as they become established in the work place. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - September 4, 2009 Category: Disability Source Type: organizations

Staff attributions towards men with intellectual disability with a history of sexual offending and challenging behaviourEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Study in secure service for people with intellectual disabilities looking at how staff working with sexual offenders think about this sexual offending behaviour. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - September 4, 2009 Category: Disability Source Type: organizations

Meta analysis of effectiveness of individual intervention in controlled multisensory environmentEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Meta-analysis regarding significance of reduction of maladaptive behaviour and enhancement of adaptive behaviour relating to Snoezelen intervention. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - August 19, 2009 Category: Disability Source Type: organizations

Consensus Guidelines on the management of EpilepsyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Professional consensus process to establish pragmatic evidence-based guidance for key issues in the management of epilepsy in people with intellectual disabilities (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - August 10, 2009 Category: Disability Source Type: organizations

Coronary heart disease risk profile and a physical activityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Study to determine the CHD risk profile of adults with ID and the effect of a physical activity intervention (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - August 10, 2009 Category: Disability Source Type: organizations

What do women with mild to moderate learning disabilities understand about contraceptionEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
small scale study examining knowledge of contraception in women with mild to moderate intellectual disabilities (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - August 10, 2009 Category: Disability Source Type: organizations

Life in the CommunityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Final report of an action research project promoting citizenship for people with high support needs (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - July 30, 2009 Category: Disability Source Type: organizations

Recognising FathersEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
A national survey of fathers who have children with learning disabilities. Findings from 251 fathers who completed a questionnaire. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - July 30, 2009 Category: Disability Source Type: organizations

Valuing Employment NowEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Cross government employment strategy setting out a vision to increase the number of real jobs for people with learning disabilities (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - June 26, 2009 Category: Disability Source Type: organizations

Hearing from the Seldom HeardEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Resource Pack to support the development of listening culture in organisations supporting people with complex communication needs (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - June 26, 2009 Category: Disability Source Type: organizations

Alertness in individuals with profound intellectual and multiple disabilities - A literature reviewEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Literature review to identify problems faced by direct supporters in observing and determining alertness in individuals with profound intellectual and multiple disabilities (PIMD). 42 publications found. Two types of descriptions of alertness can be distinguished, one with focus on individual only and second with focus on interaction of individual and environment. Reliability of observations was core problem in most of the studies. Modifications of environment, interaction strategies, stimulation strategies and staff training found to have positive impact on ,alertness whereas studies about treatment activities led to conf...
Source: Learning Disabilities Specialist Library - May 28, 2009 Category: Disability Source Type: organizations

A review of empirical support for differential reinforcement of alternative behaviorEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Differential reinforcement of alternative behavior (DRA) is a common behaviour analytic intervention used to decrease unwanted behaviour. DRA literature from past 30 years reviewed to identify aspects that are thoroughly researched and those that would benefit from further emphasis. 116 empirical studies found. DRA has been successful at reducing behaviours on continuum from prelinguistic communication to life-threatening failure to thrive. DRA with and without extinction is well established for treating destructive behaviour of those with developmental disabilities, and to combat food refusal. (Source: Learning Disabiliti...
Source: Learning Disabilities Specialist Library - May 28, 2009 Category: Disability Source Type: organizations

Meta-Analysis of Early Intensive Behavioral Intervention for Children With AutismEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Systematic literature search for studies reporting effects of Early Intensive Behavioral Intervention identified 34 studies, 9 of which were controlled designs.Meta-analysis for two outcome measures: change in full-scale intelligence and/or adaptive behavior composite.Average effect size 1.10 for change in full-scale intelligence and 0.66 for change in adaptive behavior composite.Effect sizes generally considered to be large and moderate, respectively.Authors conclude that results support clinical implication that Early Intensive Behavioral Intervention should be an intervention of choice for children with autism. (Source:...
Source: Learning Disabilities Specialist Library - May 28, 2009 Category: Disability Source Type: organizations

Exogenous melatonin for sleep problems in individuals with intellectual disability - a meta-analysisEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Meta-analysis of placebo-controlled randomized trials of melatonin in individuals with intellectual disabilities and sleep problems between January 1990 and July 2008. Influence of melatonin on sleep latency, total sleep time, and number of wakes per night examined. Quality of trials assessed using Downs and Black checklist. Nine studies (total of 183 individuals with ID) showed melatonin treatment decreased sleep latency by mean of 34 minutes,increased total sleep time by mean of 50 minutes significantly decreased the number of wakes per night. Authors conclude that melatonin decreases sleep latency and number of wakes pe...
Source: Learning Disabilities Specialist Library - May 28, 2009 Category: Disability Source Type: organizations

Outcomes in different residential settings for people with Intellectual Disability - A systematic reviewEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Research survey, 1997 to 2007 on deinstitutionalisation and community living. 68 articles found. In 7 of 10 domains, majority of studies show community-based services to be superior to congregate arrangements. Variability found in results, suggesting factors other than basic model of care are important in determining outcomes. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - May 28, 2009 Category: Disability Source Type: organizations

Services for adults with autistic spectrum conditions good practice advice for primary care trust and local authority commissionersEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Good practice advice for PCT and local authority commissioners building on Better Services for People with an Autistic Spectrum Disorder. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - May 18, 2009 Category: Disability Source Type: organizations

Lord Bradley review of people with mental health problems or learning disabilities in the criminal justice systemEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This independent review was commissioned to examine the extent to which offenders with mental health problems or learning disabilities could, in appropriate cases, be diverted from prison to other services and the barriers to such diversion. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - May 6, 2009 Category: Disability Source Type: organizations

We Can Dream Ways of planning for the future for young people with autistic spectrum disordersEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Booklet for young people and their families, friends and supporters based on the stories of four young people leaving full-time education. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - May 1, 2009 Category: Disability Source Type: organizations

The Deprivation of Liberty Safeguards and YouEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
BILD publication explains the safeguards, the best interest process and the role of the representative. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 30, 2009 Category: Disability Source Type: organizations

Deprivation of Liberty Safeguards a Guide for Families and CarersEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
BILD publication, covers introduction of safeguards, to whom they apply, what to do if a family member is concerned about the deprivation of liberty, the role of Relevant Person’s Representative, the Independent Mental Capacity Advocate, the Court of Protection and the Code of Practice (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 30, 2009 Category: Disability Source Type: organizations

Assessing the pain of people with a learning disabilityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This article highlights the inequalities in health-care provision experienced by people with a learning disability, particularly the issue of pain and the barriers people with a learning disability face when trying to have their pain properly recognized and managed. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 29, 2009 Category: Disability Source Type: organizations

Community participation of people with an intellectual disability a review of empirical findingsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Authors conclude that because of lack of clear theoretical framework and validated instrument for measurement of community participation, there is little evidence-based knowledge on the community. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 29, 2009 Category: Disability Source Type: organizations

Making Choice a Reality - The Impact of the Mental Capacity Act on Young People in Transition to AdulthoodEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Impact study carried out over a 12 month period with nine young disabled people using three different services who were all facing significant decisions in their lives relating to transition to adulthood. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 28, 2009 Category: Disability Source Type: organizations

Ministry of Justice Guidance and Forms for Those Working with Mentally Disordered Offenders restricted patientsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Gidance covering work with restricted patients detained in hospital and those discharged into the community (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 27, 2009 Category: Disability Source Type: organizations

Staff attitudes towards the sexuality of people with learning disabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Review of articles on sexuality of people with learning disabilities (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 14, 2009 Category: Disability Source Type: organizations

Adults with intellectual disabilities prevalence incidence and remission of aggressive behaviour and related factorsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Longitudinal cohort study over 2-year period. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 14, 2009 Category: Disability Source Type: organizations

Physical Restraint of People with Intellectual Disability Review of Implementation Reduction and Elimination ProceduresEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Research supporting these approaches within community-based service settings are presented. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 14, 2009 Category: Disability Source Type: organizations

Instruments for the detection of depressive symptoms in people with intellectual disabilities A systematic reviewEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Systematic review of English-language diagnostic instruments for depressive disorders for adults with intellectual disability. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 14, 2009 Category: Disability Source Type: organizations

New research into general psychiatric services for adults with intellectual disability and mental illnessEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
review of references from 2003, where people with ID receive mental health care in general psychiatric services. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - April 14, 2009 Category: Disability Source Type: organizations

Health Action Planning and Health Facilitation for people with learning disabilities good practice guidanceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Updated guidance to support reduction of health inequalities experienced by people with learning disabilities. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 31, 2009 Category: Disability Source Type: organizations

Rapid Response Report resuscitation in mental health and learning disability settingsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This Rapid Response Report sets out actions for Medical or Nurse Directors providing mental health or learning disability care. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 27, 2009 Category: Disability Source Type: organizations

New Cochrane review on donepezil for dementia in people with Down syndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
This review identified one randomised controlled trial of donepezil in people with Down syndrome. This shows, at best, a modest, non statistically significant trend in favour of people with Down syndrome and Alzheimer's dementia who are able to tolerate donepezil. The trial was of good quality, but small. It is important to note that people with Down syndrome may often have other conditions which mean that the drug is not suitable for all. Further research is needed. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 27, 2009 Category: Disability Source Type: organizations

New Cochrane review on galantamine for dementia in people with Down syndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The drug galantamine has been reported to have benefits for people with mild to moderate Alzheimer's disease who do not have Down syndrome. However, people with DS tend to present with AD at a much younger age than the general population as well as being physically different in terms of size, metabolism and heart rate, and may therefore have different requirements. This review identified no randomised controlled trials of galantamine in people with Down syndrome. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 27, 2009 Category: Disability Source Type: organizations

New Cochrane review Memantine for dementia in people with Down syndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Memantine is thought to improve cognitive function and slow the decline of AD over time.The effects of memantine on AD are reported to be beneficial for people with moderate to severe AD in the general population, However, people with DS tend to present with AD at a much younger age than the general population as well as being physically different in terms of size, metabolism and heart rate, and may therefore have different requirements. Results from the one randomised controlled trial for the treatment of dementia in DS are not yet available (expected 2009). (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 27, 2009 Category: Disability Source Type: organizations

New Cochrane revew on amfetamine for attention deficit hyperactivity disorder in people with intellectual disabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The objective of this review was to assess whether amfetamine is effective in treating ADHD in people who also have an intellectual disability. We found only one study, which examined this question in a small group of participants.This did not find an effect, but we do not think this is enough evidence to draw conclusions about whether or not amfetamine is effective. More research in this area is urgently needed. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 27, 2009 Category: Disability Source Type: organizations

A systematic review on the effects of exercise programmes designed to improve strength for people with down syndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The authors conducted the review process with transparency, thus minimising the potential for error and bias. The narrative synthesis was appropriate given the differences between the studies. Although a formal validity assessment was carried out, the criteria were not relevant to all studies, which means that the true quality of this limited evidence base cannot be verified. Together with the fact that the review included only a small number of small-sized, heterogeneous and largely uncontrolled studies, this suggests that the authors' cautious interpretation of the results is justified. (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 27, 2009 Category: Disability Source Type: organizations

Six Lives Ombudsmen call for review of care for people with learning disabilitiesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
The report responds to complaints brought by the charity Mencap on behalf of the families of six people with learning disabilities who died whilst in NHS or local authority care between 2003 and 2005 (Source: Learning Disabilities Specialist Library)
Source: Learning Disabilities Specialist Library - March 24, 2009 Category: Disability Source Type: organizations