Lisa's HIV Blog
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Miracles,Blessings, and Stuff
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I haven't been around much over the last couple of months. It seems I can't sit in the chair for more than half an hour at most I can't tell if it is my attention span, writers block, or pre-occupation with mini microcosms of my own mechanation. Regardless of the reason, I really miss the banter and concern of the daily forums. I even bought one of those cool chair thingies that massages your back and legs, and has a heating element that just fits the lumbar region. I thought I could use the attraction as an incentive to help me sit here longer, but to no real measure. I have been reading more these days, but e...
Source: Lisa's HIV Blog - April 29, 2008 Category: HIV AIDS Source Type: blogs
Through the Years……
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Well, tomorrow will be my two (2) year anniversary. Again, I thought it would be monumental, but in truth, it just isn’t. I’m more excited about watching Survivor tomorrow night then I am about having lived with this virus for the past two years.
It’s just another day and no one will care or know so what real difference will it make in my life? None really.
Turns out for me at least, it is manageable and for the time being not very consequential, I know that I am VERY lucky to have good health, good numbers and be what my doctors refer to as being a “long term slow progressor.” I know there are others who don...
Source: Lisa's HIV Blog - February 21, 2008 Category: HIV AIDS Source Type: blogs
Update
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Happy New Year everyone. I hope that 2008 brings lots of joy, happiness and good health to you and yours.
I haven’t blogged in a while, mostly due to the fact that I was receiving some pretty “nasty comments” from people who were attacking my character, my status and me. Needless to say, they weren’t pretty.
Things have been going okay with me. Health is good, just had my blood drawn today and go back to the doctor on the 19th to find out my results. So far so good.
I’m working at a new place that I started in October. It is an incredible opportunity that fell in my lap with LOTS more money but most important...
Source: Lisa's HIV Blog - December 31, 2007 Category: HIV AIDS Source Type: blogs
Miracles,Blessings, and Stuff
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I haven't been around much over the last couple of months. It seems I can't sit in the chair for more than half an hour at most I can't tell if it is my attention span, writers block, or pre-occupation with mini microcosms of my own mechanation. Regardless of the reason, I really miss the banter and concern of the daily forums. I even bought one of those cool chair thingies that massages your back and legs, and has a heating element that just fits the lumbar region. I thought I could use the attraction as an incentive to help me sit here longer, but to no real measure. I have been reading more these days, but e...
Source: Lisa's HIV Blog - December 13, 2007 Category: HIV AIDS Source Type: blogs
Post Frisco
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This missive will likely be a short-to-the-point kinda entry. It is the strangest thing how my mind has been working. Despite the absolute miracle, and I do really mean to use the word miracle, of getting the opportunity to hug,hold, and kiss my compatriots in Frisco, I have renewed my love bond with some, and fallen in love all over again. A toast to the lovely people I had the honor of meeting this last AMG. Those special moments, and precious hours, have been etched in my mind forever. The beautiful, breathy grin of Michael(Sonoma), telling a story, or the gentle dulcet tones of Jeffrey. I was transfixed with the melodi...
Source: Lisa's HIV Blog - November 28, 2007 Category: HIV AIDS Source Type: blogs
I took the plunge.......And I think I'm Sinking
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I did it! For some strange reason, I decided to post a singles ad on Craig's List. Why I picked this medium I can't even explain.
I have to say that I was very pleasantly surprised by the responses. Yes, I did get responses, quite a few of them actually. Incredibly nice, caring and sweet responses. So far no psycho's but there's still time.
My biggest fear is to send them my picture. What if I know them??? What if they are some kind of whacko denialist who posts my picture on some website???
Now the hard part. Responding to the emails I received. Baby steps…..
Here is my ad:
Well, this sure isn't easy to do, but he...
Source: Lisa's HIV Blog - September 11, 2007 Category: HIV AIDS Source Type: blogs
More...More...More
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I’m not sure what to do. I’m over the “I was just diagnosed” phase of my virus. Lola is now a living breathing part of my life that I rarely think about anymore. So what excuse do I have now? I’ve used the “I’m fat” defense, vacillated with the “I’m not worthy” justification but none of it seems plausible any more.
So what do I do to kick start my life again? I could always do what my mom suggests……”take a class honey” “lots of men take classes you can meet someone there.” Uh, yeah………no.
I’m not just looking for a mate, I’m in need of some new friends. People I can hang out wit...
Source: Lisa's HIV Blog - September 5, 2007 Category: HIV AIDS Source Type: blogs
Just Another AIDS Day
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I belly up to the computer desk today with ambiguous feelings.
Over the last couple of months, I have realized some fairly heavy facts. While I have known all along that I have been suffering with ostensibly, what we have characterized as “brain fog” many times in the forums. I can remember many a time that we have had illuminating discussions, and compared notes on what anecdotal trials we have employed over the course of time. Once, a long time ago, a few of us were giving Alpha Lipoic Acid a good college try, but I truthfully never got any measurable benefit for myself.
I have rather been insidiously de...
Source: Lisa's HIV Blog - August 21, 2007 Category: HIV AIDS Source Type: blogs
I'm Ready.........Yes I'm Ready
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Well, I can’t believe I am saying this, but I think that I am actually ready to date again.
I noticed a couple of weeks ago that certain “feelings” were stirring up inside me that I haven’t felt in a VERY long while.
Now this could all be a big ruse, but I’m going to go with it regardless. I mean hell, it’s been a year and half! I’m pretty sure I’ve been re-virginized. My va-jj closed up shop on February 21, 2006 and the building inspector put a “not safe to enter” sign on it.
I’ve written previously about missing intimacy, and I do, I really do. I’m just not sure I know how to go about regaini...
Source: Lisa's HIV Blog - August 9, 2007 Category: HIV AIDS Source Type: blogs
Dykes on Bikes
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I went to my first gay pride this weekend.
My friend Shane came down from Wisconsin on Thursday to see me and take me to my first gay pride parade. So on Saturday, we headed off early to get good seats.
First we attended the parade which was a BLAST! The festivities were opened up by a group of motorcycle riders called “Dykes on Bikes.”
Evidently they are a big deal, because the crowd went wild! We waited in anticipation on the curbside spot we had staked claim to and all of the sudden, the roar of the engines could be heard, and then up they drove.
WOW! Some were old, some were young, but I have to say, as a ful...
Source: Lisa's HIV Blog - July 23, 2007 Category: HIV AIDS Source Type: blogs
It's the Little Things
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When life isn’t what you want it to be, it’s the little things that make it better right? And when I say little things, I mean like the grocery store having the ½ gallon half and half I like to buy, or your favorite coffee is on sale. Washing your car when it has been MONTHS of you looking at it saying “damn my car is dirty” or the satisfaction of clean sheets on your bed. You know the little things.
I’ve wanted to buy a new couch for a LONG TIME but everywhere I looked, everyone I sat on just wasn’t the “right one.” Craig’s List, furniture stores galore yielded not one couch that was comfortable, reaso...
Source: Lisa's HIV Blog - July 14, 2007 Category: HIV AIDS Source Type: blogs
Better Living Through Chemicals..........I hope
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Well, I took the plunge and started on antidepressants. I am taking Effexor and they had me start off slow and work my way up to 75mg a day.
The first two weeks were PURE HELL! I wish I had never read the pharmacy’s “precaution sheet” because I ended up having each and every one of them. WOW! This shit is POWERFUL!
The side effects have worn off, but I have yet to feel any sense of them working. I hear it takes a while, this is my first time. I just think it’s funny that I’m waiting to have a moment of euphoria or something. I’m actually not sure what to expect, whatever is supposed to happen, I just want it ...
Source: Lisa's HIV Blog - June 26, 2007 Category: HIV AIDS Source Type: blogs
The Numbers Game
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My body does not like this virus.
It’s all about the numbers. People say “don’t pay attention to the numbers” yet it’s the first question they ask. “What are your numbers?” I know there are others out there whose numbers are not as good as mine, but these are MY numbers. Good, bad or indifferent, I still get freaked out.
When I was first diagnosed, my t-cells were 968 and I was at 56%. Everyone I told was like “OMG! Those are GREAT numbers!” It made me feel like I was okay. In fact, when disclosing to my friends, it was one of the “tools” I used to make them feel better. “Don’t worry” I’d sa...
Source: Lisa's HIV Blog - June 2, 2007 Category: HIV AIDS Source Type: blogs
Hittin' the Fan
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Things have gone fairly downhill over the last few weeks. You can see that I haven't written much of anything since February. My son was in a nasty mva, his daughter was taken by DSS, and he has been living with me during the interim. Serenity went to foster care for a time, but has been living with my other son for the past month while Mike completes the ordered tasks. He gets to visit her once a week at the DSS offices, with supervision.
My whole world has been upended. This whole chain of events has affected me in more ways than I can effectively describe here. Things were much simpler when I only had myself and Swe...
Source: Lisa's HIV Blog - May 21, 2007 Category: HIV AIDS Source Type: blogs
Anger Issues..........Hell, I bought the subscription!
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While at work today, outside smoking with some guys from the warehouse, one of them said to me “You always look like your angry, unhappy. Is there something going on?”
WOW! I would not have imagined that simple little statement having such an affect on me! I had to step back and recover before I responded to him.
He is right. I am angry, unhappy, and miserable even. Who knew that it was so apparent that it showed on my face?
I realized that I rarely smile anymore. Laughing has become an event instead of a something that used to come naturally. And it’s not all about having HIV. HIV is something I rarely think ab...
Source: Lisa's HIV Blog - May 20, 2007 Category: HIV AIDS Source Type: blogs
Here's the "Skinny"
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I thought that HIV was the “skinny” virus.
I remember walking into my first support group and seeing all of the people sitting there, most of which were of larger stature.
I lost over 100lbs about a year and a half ago. Having always been a “big girl” whose weight was evenly distributed, losing that much weight made me reevaluate everything. People treat overweight people differently, it’s a fact. When I lost all of my weight, I noticed that sales people paid more attention to me. Maybe because they knew I would fit into the clothes they were selling in their stores. Who knows?
With all of the stress I was g...
Source: Lisa's HIV Blog - April 29, 2007 Category: HIV AIDS Source Type: blogs
This shit SUCKS!
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Man, this virus sucks big green donkey dicks! It pisses me the f. off.
I met TWO beautiful, young vibrant women this week who were recently infected. Both have young children, both were betrayed by the men they loved and both are devastated. They have been walking around with this virus not knowing their status. SUCKS
Why are we not shouting from the roof tops about this? Why is it not in the news more, why isn’t there mandatory testing? WHY-WHY-WHY?
I guess I shouldn’t rant, if I didn’t have IT, I wouldn’t think twice about someone who I didn’t know having it, but shit! If there was mandatory testing, we wo...
Source: Lisa's HIV Blog - April 10, 2007 Category: HIV AIDS Source Type: blogs
Intimacy
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The thought of sex……well, to tell you the truth, I haven’t thought about sex in a long time, a very long time actually.
What I do think about is the loss of intimacy in my life. I’m a “skin” girl. I love the smell of it, the feel of it and the taste of it. I’ve always liked to curl up against my man’s back and run by hand along his body, while my head was tucked in the nape of his neck breathing in his scent.
Or, sitting on the couch watching television and just having the slightest bit of body contact, but it’s there and it felt intimate. Putting my hand on his leg while waiting for a table at a restau...
Source: Lisa's HIV Blog - March 28, 2007 Category: HIV AIDS Source Type: blogs
Hibernating
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Some people may call it depression, I like to refer to it as “hibernation”. It’s such a kinder, gentler word.
You know, when you leave the house so rarely you can’t believe they put up a new stop sign on your main street? Yep, that really happened to me.
I was “off” work for four months. Well, let’s not get it twisted, I was fired for having HIV, but I can’t prove that.
I took care of business, grocery shopped, made sure Moe had food and litter and of course I always had cigarettes, but leaving the house was a major event. I showered, washed clothes but never put on make up and rarely did my hair.
I ...
Source: Lisa's HIV Blog - March 20, 2007 Category: HIV AIDS Source Type: blogs
What I need right now...............
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I want my mommy. I want to lay my head in her lap and have her run her fingers through my hair like she did when I was a little girl. I want her to tell me that everything is going to be okay. Because when your mom tells you it will be okay, you somehow think it will be.
Do you remember getting sick at school and having to go to the nurses office? They always called your mom, and when they did, they always gave you the phone so you could talk to her. Just hearing her voice made you feel sicker, cry harder and at the same time, you knew she would somehow come and rescue you.
I’m the baby of five, and my mom had me fairl...
Source: Lisa's HIV Blog - March 8, 2007 Category: HIV AIDS Source Type: blogs
Not all of us need to be 'saved'
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I attend a support group for women infected with HIV. I found it very early into my diagnosis. It’s a group of roughly 8-10 women, all of which have been living with this virus for a very long time. When I came along, I was somewhat of a novelty. It had been over 10 years since they had a new member join the group.
The women are very “eclectic” and come from all walks of life. I remember sitting there the first time I went thinking “WOW! These women have paved the way for me to live a better life.”
They have gone through the entire laundry list of medications that were available, experienced every side effect ...
Source: Lisa's HIV Blog - March 3, 2007 Category: HIV AIDS Source Type: blogs
Leaving Normal
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I went out on a date.
I responded to an ad on Craig’s List “men seeking women.” I liked what he had to say, he made me laugh while reading his ad and most importantly, he WAS NOT HIV+. He had his picture posted, not someone I would normally date, but hey, what’s normal for me anymore?
He answered my email and we started chatting via instant message. After about 10 minutes of chatting, I typed “there’s something you need to know about me.” I typed out the following:
“I was diagnosed in February of 2006 as HIV+, I was infected by my boyfriend of 3 years, I am healthy, on no medications, but it’s somethin...
Source: Lisa's HIV Blog - February 24, 2007 Category: HIV AIDS Source Type: blogs
It's all about the Moe-Joe
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Not sure how many of you have pets, but I was always the kid who brought home the ENTIRE box of puppies from outside the grocery store. I think that puppy breath should be bottled. I LOVE IT. Animals to me, are in most cases, MUCH better then people.
I've always gotten what my family refers to as "abnormally attached" to the pets I've had, whatever. I love them, if that's abnormal then bite me. So what that I let them eat off my fork, drink out of my glass and give tongue kisses......please!
I got Moe 2 years ago and he was so tiny when I brought him home, the remote control was bigger then he was. He was different then ...
Source: Lisa's HIV Blog - February 21, 2007 Category: HIV AIDS Source Type: blogs
here's another
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As I proofread my last entry a few minutes ago, it just now dawned on me that Sweetie and I have a shared interest.
I noticed how easy it was to say that I was happy to give her a good quality of life for an open ended period of time.
Just like me.
With the simple addition of a medication, she will have so many more days to playfully wallow on my bedspread in the sunlight that comes through the window.
A time or two more, like she had day before yesterday.
I made a really good batch of homemade chicken & dumplings. She knows when it is cooking in the house, and is usually more visible, and playful.(cauz there's...
Source: Lisa's HIV Blog - February 15, 2007 Category: HIV AIDS Source Type: blogs
critters n things
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The past several days have been busy, and my attention span has been all over the place. I may jump around a bit so I'll just go ahead, and apologize now, and get it out of the way.
While I am starting this on Valentine's Day, it may not appear until tomorrow, or even the next day.
Today has been an absolute rollercoaster ride of emotions. It all started out fairly well.
I called a few of the people I value to say Happy Valentine's Day, and then set out to acheive some mundane activities of daily living.
On this day for lovers, I have busied myself with tackling the mountain of laundry that I inevitably allow to accumul...
Source: Lisa's HIV Blog - February 15, 2007 Category: HIV AIDS Source Type: blogs
"Her name is Lola, she is my virus"
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Woo Hoo! I'm a BLOGGER! I am very excited to have the opportunity to do this. Being a "newly diagnosed" HIV+ heterosexual woman has been a challenge BIG TIME! Here is my story about my virus LOLA................that's what I've named her.
I look foward to keeping you all entertained with the trails and tribulations of my life........because there are so damn many!
So here it goes...........
On February 14th , 2006, I took my boyfriend of 3 years to the hospital. He couldn’t breathe, couldn’t catch his breath. Two weeks prior, he was diagnosed with walking pneumonia but antibiotics didn’t clear it up so off to the ...
Source: Lisa's HIV Blog - February 8, 2007 Category: HIV AIDS Source Type: blogs
Dear Son
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I will preface this blog with the message that this is a very personal issue that I have chosen to share because it has affected my wellbeing.
It is a letter written to my son in real time, and the discussion is from my heart.
Please respect the position I am in, without judgement.
XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
I have watched from afar, while you have struggled to keep some sense of sanity in your life since losing Christy. I understand the incredible pain, and lonliness, and the hole in your soul that will never be the same again. No one will ever come close to being as important as she i...
Source: Lisa's HIV Blog - January 15, 2007 Category: HIV AIDS Source Type: blogs
Where in the world.
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So much has happened. I haven't a clue where to begin, so I'll take the chronological approach.
For those of you who don't know much about my situation, I'll try to paint an overview.
In the fall and winter of 2002, I had become ever more increasingly weak, and found it harder, and harder to keep up with my work duties. I was coming home every day in tears, because the bottoms of my feet hurt so bad that it almost was unbearable. Home was not to be a restful place however, as I had by this time been living with my father for about three years. He was in his late seventies, a type two diabetic, and was on a home oxygen ma...
Source: Lisa's HIV Blog - January 9, 2007 Category: HIV AIDS Source Type: blogs
Walking in Circles
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Endless circles. For weeks now, I have been walking in circles. So many thoughts, and nothing is getting accomplished. It all feels like a bad Carpenters song……hangin’ around, like some kind of lonely clown”....."funny, but I always wind up in here with you".
I do well to keep my bills paid, but what about the mounting pile of laundry in the corner of my bedroom, that has nearly obscured the antique rocking chair? What about the fact that you can actually see the path of travel through the life size dust bunnies (read jackalopes) in the hallway. Oh, and how about the grubby patina of the kitchen floor? Let’s n...
Source: Lisa's HIV Blog - October 29, 2006 Category: HIV AIDS Source Type: blogs
My Montreal
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I arrived in Montreal on Thursday morning, around tenish. I knew that three of my compatriots would be arriving in the space of an hour or so, so I wandered around a bit, and found a bench on the sidewalk outside of the airport, so I could feed my nicotine habit. I began searching in earnest for my friends to arrive, and my anticipation heightened with each new group of people that straggled around the far corner of the room.
I carefully examined every face that made exit from the terminal. As I stood there, I was instantly excited beyond words to see Dan, and Jonathan walking towards me. Their faces were a long awaited...
Source: Lisa's HIV Blog - September 24, 2006 Category: HIV AIDS Source Type: blogs
Me & Ms. G.
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If you have ever heard the phrase ‘no good deed goes unpunished’, then you will recognize the irony of the truth behind the saying here.
Yesterday evening, my next door neighbor came by to ‘check’ on me, as she had not seen me out in several days. Bless her heart. We have formed a nice little budding friendship since the weather broke a few months ago. She and I, sit in the only two houses on this side of the street. On the other side of her house is a small open lot, and then an apartment complex., and I live at the end of the street.
As you all know, I am open about my HIV, and she has shared a funny story wi...
Source: Lisa's HIV Blog - June 19, 2006 Category: HIV AIDS Source Type: blogs
......the rest of the story.....
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.....as Paul Harvey would say,.....and now the rest of the story.
I began this saga at the twenty year ago mark, as it was when Ifirst learned that I had been exposed to HIV.
I felt a pang of whoopsie, when I read the latest edition of the AM newsletter, and the lead-in that Peter/Tim gave about my first learning that I was HIV positive. While not entirely untrue, it wasn't the real whole truth.
After processing the news dumped on me by dear Barney, I did the tuck-and-tackle maneuver for a significant period of time.
Actually, it was ten more years.
Let me explain.
I did a whole string of justifying, ignoring,deny...
Source: Lisa's HIV Blog - May 16, 2006 Category: HIV AIDS Source Type: blogs
Let's talk about drugs, and closets.
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HOO! gotcha ....
Yeah, I know. Pretty lame. He He He....
Now that I have your attention, ...... My ulterior motivation in writing this call, is to remind our community that I am still available to any person who may have some med to share, as well as any person who may find themself in need of a little something in a moment of without.
With the magnitude of our members, we can truly help each other.
I have been personal witness to profound miracles of giving here.
Sometimes there are people who change medicine, yet have a month+ of something to share, because no public representative will allow them to be used...
Source: Lisa's HIV Blog - April 29, 2006 Category: HIV AIDS Source Type: blogs
Jumbalaya
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Just had to come here, and say this.
There have been oodles of things going on. I am having a a raging moment of brain poof.
If you bear with me, I will tell the rest of the story. ....but I have been tentative of exposing my soul to the world at large.
I generally am quite social when I feel that I am amongst friends. I feel that here, and am a bit gun-shy, of truly revealing my belly.
I am affable, with an extra helping of 'round the block'.
I have literally started, and started over again, many things I wanted to share with you, but am dumbfounded by my own sudden onset of
I thought mybrain was functioning ...
Source: Lisa's HIV Blog - April 27, 2006 Category: HIV AIDS Source Type: blogs
Ryan Who?
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I know I said you would hear the rest of the HIV story, but I had an experience yesterday that opened my eyes.
As I've said before, I always find myself having to tell the story before the story, to get to my point. So here we go.
In my earlier blog about where my head was at, I tried to convey how mushy my brain was. I was having expressive speech problems, and my thoughts were halting, and probably hard to follow. I've gained a little headway since then, but far from my old self.
When I saw Rachel on March 7th, I was in a terrible state of mind. I couldn't tell whether my brain problems were a direct result of ground...
Source: Lisa's HIV Blog - March 24, 2006 Category: HIV AIDS Source Type: blogs
Twenty Years Ago
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.....or there about, I was a single working mom with three children entering kindergarten.
I had been divorced for two years from a man who had brutally beaten me on an almost daily basis for nearly five years. Despite the divorce, I was looking over my shoulder constantly, and still carry residual baggage from that time.
I was working at a long term care facility, as charge nurse. I met a man(Barney) who I thought was interesting, educated, witty, and charming. I allowed him to move into my home after 3, or 4 months, and we embarked on what I thought was a monogamous relationship.
We lived together for nearly a y...
Source: Lisa's HIV Blog - March 22, 2006 Category: HIV AIDS Source Type: blogs
Where I am right now
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I have wanted to come here over the last couple or so weeks for so many reasons
This is probably going to be difficult to read, as I have been a bit off lately. I am not able to think about form, substance, etc....as.......... My brain has apparently scrambled, in a moment of time.
As I sit here this evening, I am having to work really hard to stay focused on this task.
I have related the story about my ill fated drug interruption. I will reiterate the salient facts.
I had a singular moment of my disease history, that would allow me the postulated chance of a gamble to stop taking these meds.
I'll be honest with you. I...
Source: Lisa's HIV Blog - March 9, 2006 Category: HIV AIDS Source Type: blogs
The Fire Marshall
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Now that I have calmed down sufficiently, I can tell you of my latest adventure.
I’ll go ahead and warn you, that I seem to always feel compelled to tell you the story behind the story.
That being said, I’ll convey the mini tangent that was the precursor to the events of yesterday afternoon.
My little ball of fuzzy love (Sweetie), recently found a cool new game to play. She has full run of the house, and is usually a well behaved little love. She will occasionally go on attention getting adventures, that are designed to make some kind of noise, so that I can come find her, scoop her up, and invite her to play (which i...
Source: Lisa's HIV Blog - February 7, 2006 Category: HIV AIDS Source Type: blogs
Rejoice! Rejoice!
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Skippedy doo da, yippedy dee yay……
Lisa is rejoicing. Even if cautiously. It seems the aids gods, and the nausea fairies have convened a summit, and the popular vote was to release Lisa from the strangle hold of daily nausea. I suppose those extra couple of hours worshipping the porcelain gods worked for my benefit Thursday night.
Friday, I was feeling positively human. Hungry even………..needless to say, the diet has gone out the window. I’m talking everything edible that’s not nailed down, has at least been given a cursory sniff. I will shamelessly admit (just between us), that the greater portion of Saturday...
Source: Lisa's HIV Blog - February 5, 2006 Category: HIV AIDS Source Type: blogs
