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Operationalization of the SAMHSA model of recovery: a quality of life perspectiveEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The SAMHSA consensus statement appeared to contain valid concepts for Chinese subjects. It presented new challenges for psychiatric rehabilitation and reminded the policy makers that there is much more psychiatric rehabilitation can achieve beyond symptom control and patient management. It also demonstrated that resolve and the commitment of resources to combat stigma, develop resilience, and foster patient empowerment were very much needed in Hong Kong and perhaps in Asia and elsewhere. Content Type Journal ArticleDOI 10.1007/s11136-009-9555-2Authors Marcus Y. L. Chiu, Hong Kong Baptist ...
Source: Quality of Life Research - November 18, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Psychometric properties of the Patient Activation Measure among individuals presenting for elective lumbar spine surgeryEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The PAM is a reliable, valid measure of patient activation for individuals undergoing elective lumbar spine surgery and may have clinical utility in identifying those at risk for poor engagement in postsurgical rehabilitation. Content Type Journal ArticleDOI 10.1007/s11136-009-9549-0Authors Richard L. Skolasky, The Johns Hopkins University School of Medicine Department of Orthopaedic Surgery Baltimore MD USAEllen J. Mackenzie, The Johns Hopkins University Bloomberg School of Public Health Department of Health Policy and Management Baltimore MD USALee H. Riley, The Johns Hopkins University S...
Source: Quality of Life Research - November 14, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Derivation and testing of an interval-level score for measuring locomotor disability in epidemiological studies of middle and old ageEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions An interval-level score for locomotor disability was created from five items of the PF-10 completed in a general population of adults aged 50 years and over. Further work is needed to assess the generalisability of this Rasch score to other populations and to determine a clinically meaningful change score. Content Type Journal ArticleDOI 10.1007/s11136-009-9553-4Authors Sara Muller, Keele University Arthritis Research Campaign National Primary Care Centre, Primary Care Sciences Keele Staffordshire ST5 5BG UKElaine Thomas, Keele University Arthritis Research Campaign National Primary C...
Source: Quality of Life Research - November 13, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Patient-reported outcomes instruments: bridging the gap between international copyright laws and common practice for developers and users—a case exampleEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Abstract Copyright laws are intended to protect the rights of authors in their literary, scientific, and artistic works. The recent controversy about the standardized version of the Asthma Quality of Life Questionnaire between Elizabeth Juniper and Eirini Grammatopoulou et al. is an example of the difficulties inherent to copyright faced by developers and users of patient-reported outcome (PRO) instruments. This brief communication presents the basics of international copyright laws (i.e., the Berne Convention), the facts behind the controversy, and our analysis of the case based on our experience as a distr...
Source: Quality of Life Research - November 13, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The Oxford Ankle Foot Questionnaire for children: responsiveness and longitudinal validityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The findings support the responsiveness and longitudinal validity of the scales. Changes in domain scores of, or exceeding, the MDC90 (6–8) are likely to be beyond measurement error; further work is required to refine the estimate of change that can be considered important. Content Type Journal ArticleDOI 10.1007/s11136-009-9550-7Authors Christopher Morris, University of Oxford Department of Public Health Old Road Campus Oxford OX3 7LF UKHelen Doll, University of Oxford Department of Public Health Old Road Campus Oxford OX3 7LF UKNeville Davies, University of Oxford Nuffield Department o...
Source: Quality of Life Research - November 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Intellectual property rights and good research practiceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Content Type Journal ArticleCategory EditorialDOI 10.1007/s11136-009-9551-6Authors Dennis A. Revicki, United Biosource Corporation Bethesda MD USACarolyn E. Schwartz, Delta Quest Foundation Inc. Concord MA USA Journal Quality of Life ResearchOnline ISSN 1573-2649Print ISSN 0962-9343 (Source: Quality of Life Research)
Source: Quality of Life Research - November 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Development and validation of a composite score based on clinically meaningful events for the opioid-related symptom distress scaleEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The OR-SDS CME-based composite score demonstrates evidence of construct validity and appears appropriate for use in evaluating patients’ opioid-related side effect burden in future postoperative clinical trials. Content Type Journal ArticleDOI 10.1007/s11136-009-9547-2Authors Kitty S. Chan, Johns Hopkins Bloomberg School of Public Health Department of Health Policy and Management 624 North Broadway, Room 633 Baltimore MD 21205 USAWen-Hung Chen, United BioSource Corporation Center for Health Outcomes Research Bethesda MD USAT. J. Gan, Duke University Medical Center Department of Anesthesio...
Source: Quality of Life Research - October 30, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Determinants of overall quality of life in women over the first year after surgery for early stage breast cancerEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions QOL domains and facets contributed differently to overall QOL at various time points across treatment in women with early stage breast cancer. Content Type Journal ArticleDOI 10.1007/s11136-009-9548-1Authors Brenda L. Den Oudsten, Tilburg University CoRPS - Center of Research on Psychology in Somatic Diseases, Department of Medical Psychology P.O. Box 90153 5000 LE Tilburg The NetherlandsJolanda De Vries, Tilburg University CoRPS - Center of Research on Psychology in Somatic Diseases, Department of Medical Psychology P.O. Box 90153 5000 LE Tilburg The NetherlandsAlida F. W. Van der Steeg, E...
Source: Quality of Life Research - October 28, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Same question, different answers: a comparison of global health assessments using visual analogue scalesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The EQ-VAS and PG-VAS scores are not interchangeable at the individual level. The EQ-VAS correlated more strongly with disease-specific and health-related quality of life measures, therefore, appears preferable. Content Type Journal ArticleDOI 10.1007/s11136-009-9546-3Authors Mark J. Harrison, The University of Manchester arc Epidemiology Unit Stopford Building, Oxford Road Manchester M13 9PT UKAnnelies Boonen, Maastricht University Medical Center Department of Internal Medicine, Division of Rheumatology P Debyelaan 25 6229 HX Maastricht The NetherlandsPeter Tugwell, University of Ottawa Ca...
Source: Quality of Life Research - October 24, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Does urinary incontinence affect quality of life of Greek women less severely? A cross-sectional study in two Mediterranean settingsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion Urinary incontinence is a frequent problem for women visiting PHC centers, affecting negatively their quality of life. Besides incontinence severity, Turkey as place of residence emerged as another essential predictor of impaired quality of life, suggesting that other social and cultural factors may also play an important role. Content Type Journal ArticleDOI 10.1007/s11136-009-9545-4Authors Stella Anifantaki, University of Crete Clinic of Social and Family Medicine, Faculty of Medicine Heraklion GreeceTuncay Muge Filiz, Kocaeli University Department of Family Medicine, Faculty of Medicine ...
Source: Quality of Life Research - October 22, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The association of survey language (Spanish vs. English) with Health Utilities Index and EQ-5D index scores in a United States population sampleEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion Health researchers studying health status of culturally diverse populations should be aware that different preference-based health indices may lead to different results. Content Type Journal ArticleDOI 10.1007/s11136-009-9544-5Authors Nan Luo, National University of Singapore Department of Epidemiology and Public Health & Centre for Health Services Research, Yong Loo Lin School of Medicine 16 Medical Drive, Block MD3 Singapore 117597 SingaporeYu Ko, National University of Singapore Department of Pharmacy, Faculty of Science Singapore SingaporeJeffrey A. Johnson, University of Alberta Departm...
Source: Quality of Life Research - October 15, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The association of body mass index and health-related quality of life in the general population: data from the 2003 Health Survey of EnglandEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions There is a significant association between BMI and HRQoL in men and women in the general population. Nearly all aspects of HRQoL are adversely affected by elevated BMI. Content Type Journal ArticleDOI 10.1007/s11136-009-9541-8Authors F. Søltoft, University of Copenhagen Faculty of Life Science, Institute of Food and Resource Economics Rolighedsvej 25 1958 Frederiksberg C DenmarkM. Hammer, Novo Nordisk A/S Krogshøjvej 55 2880 Bagsværd DenmarkN. Kragh, Novo Nordisk A/S Krogshøjvej 55 2880 Bagsværd Denmark Journal Quality of Life ResearchOnline ISSN 1573-2649Print ISSN 0962-9343 (S...
Source: Quality of Life Research - October 8, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Age trajectories of quality of life among older adults: results from the English Longitudinal Study of AgeingEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Younger old adults can be prepared for further ageing by increasing their network of friends and engaging with the wider community while they are able. Content Type Journal ArticleDOI 10.1007/s11136-009-9543-6Authors Paola Zaninotto, University College London Department of Epidemiology & Public Health 1-19 Torrington Place London WC1E 6BT UKEmanuela Falaschetti, UCL Institute of Child Health 30 Guilford Street London WC1N 1EH UKAmanda Sacker, University of Essex Institute for Social and Economic Research (ISER) Wivenhoe Park Colchester CO4 3SQ UK Journal Quality of Life ResearchOnlin...
Source: Quality of Life Research - October 6, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Assessment of the impact of eating disorders on quality of life using the disease-specific, Health-Related Quality of Life for Eating Disorders (HeRQoLED) questionnaireEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions As measured by the disease-specific HeRQoLED and generic instruments, QOL in patients with ED improved after 1 year of treatment, though it did not reach the values of the general population. Content Type Journal ArticleDOI 10.1007/s11136-009-9542-7Authors P. Muñoz, Ortuella Mental Health Center Department of Psychiatry Ortuella, Bizkaia SpainJ. M. Quintana, Galdakao-Usansolo Hospital-CIBER, Epidemiology and Public Health (CIBERESP) Research Unit Galdakao, Bizkaia SpainC. Las Hayas, Galdakao-Usansolo Hospital-CIBER, Epidemiology and Public Health (CIBERESP) Research Unit Galdakao, Biz...
Source: Quality of Life Research - September 29, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Qualitative research and content validity: developing best practices based on science and experienceEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions It is hoped this paper will stimulate further discussion regarding best practices for establishing content validity so that, as the PRO field moves forward, qualitative research can be evaluated for quality and acceptability according to scientifically established principles. Content Type Journal ArticleDOI 10.1007/s11136-009-9540-9Authors Meryl Brod, The Brod Group 219 Julia Avenue Mill Valley CA 94941 USALaura E. Tesler, The Brod Group 219 Julia Avenue Mill Valley CA 94941 USATorsten L. Christensen, Novo Nordisk A/S, Global Development Krogshøjvej 29 2880 Bagsværd Denmark Journa...
Source: Quality of Life Research - September 29, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The comparative responsiveness of the EQ-5D and SF-6D to change in patients with inflammatory arthritisEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The comparative responsiveness of the EQ-5D and SF-6D differs according to the direction of change. The level of mean change of the EQ-5D relative to the SF-6D has implications for cost-effectiveness analysis. Use of the SF-6D in patients with severe progressive disease may be inappropriate. Content Type Journal ArticleDOI 10.1007/s11136-009-9539-2Authors M. J. Harrison, The University of Manchester ARC Epidemiology Unit, Stopford Building Oxford Road Manchester M13 9PT UKL. M. Davies, University of Manchester Health Economics Research at Manchester, Health Methodology Research Group, Scho...
Source: Quality of Life Research - September 24, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Age and gender differences in health-related quality of life of children and adolescents in Europe: a multilevel analysisEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions For the first time, gender and age differences in children’s and adolescents’ HRQOL across Europe were assessed using a comprehensive and standardised instrument. Gender and age differences exist for most HRQOL scales. Differences in HRQOL across Europe point to the importance of national contexts for youth’s well-being. Content Type Journal ArticleDOI 10.1007/s11136-009-9538-3Authors Gisela Michel, University of Bern Department of Social and Behavioural Health Research, Institute of Social and Preventive Medicine Niesenweg 6 3012 Bern SwitzerlandCorinna Bisegger, University of Bern ...
Source: Quality of Life Research - September 23, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The Maastricht social participation profile: development and clinimetric properties in older adults with a chronic physical illnessEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The MSPP has good validity and acceptable reproducibility. Its distinguishing features are its focus on actual social participation and the possibility to calculate both diversity and frequency scores. Content Type Journal ArticleDOI 10.1007/s11136-009-9537-4Authors Godelief M. J. Mars, Maastricht University School for Public Health and Primary Care P.O. Box 616 6200 MD Maastricht The NetherlandsGertrudis I. J. M. Kempen, Maastricht University School for Public Health and Primary Care P.O. Box 616 6200 MD Maastricht The NetherlandsMarcel W. M. Post, Rehabilitation Centre De Hoogstraat Rembra...
Source: Quality of Life Research - September 20, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Measuring health-related quality of life in population-based studies of coronary heart disease: comparing six generic indexes and a disease-specific proxy scoreEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Generic indexes capture differences in HRQoL in population-based studies of CHD similarly to a score constructed from questions probing CVD-specific symptoms. Content Type Journal ArticleDOI 10.1007/s11136-009-9533-8Authors Noelle C. Garster, University of Wisconsin-Madison Department of Population Health Sciences WARF Office Building Room 707, 610 Walnut Street Madison WI 53726 USAMari Palta, University of Wisconsin-Madison Department of Population Health Sciences WARF Office Building Room 707, 610 Walnut Street Madison WI 53726 USANancy K. Sweitzer, University of Wisconsin Hospital and Cl...
Source: Quality of Life Research - September 17, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Impaired parent-reported quality of life in treatment-seeking children with obesity is mediated by high levels of psychopathologyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion Impaired parent-reported QOL in children and adolescents with obesity was attributable to their elevated levels of psychopathology. Content Type Journal ArticleDOI 10.1007/s11136-009-9535-6Authors Silje Steinsbekk, Norwegian University of Science and Technology (NTNU) Department of Psychology Dragvoll 7491 Trondheim NorwayThomas Jozefiak, St. Olavs Hospital Department of Child and Adolescent Psychiatry 7433 Trondheim NorwayRønnaug Ødegård, St. Olavs Hospital Department of Pediatrics Olav Kyrres gt 17 7030 Trondheim NorwayLars Wichstrøm, Norwegian University of Science and Technology (NTNU...
Source: Quality of Life Research - September 16, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Determinants of global quality of life before and after major cancer surgery: an exploratory studyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion Further work is needed to test these findings, but the results suggest that the global QOL scale in the QLQ-C30 is difficult to interpret and it should be considered within the context of other clinical and patient reported outcomes. Content Type Journal ArticleDOI 10.1007/s11136-009-9534-7Authors Martin Rutegård, Unit of Esophageal and Gastric Research (ESOGAR) Department of Molecular Medicine and Surgery, Karolinska Institutet Stockholm SwedenRachael Hughes, University of Bristol Department of Social Medicine, Canynge Hall 39 Whatley Road Bristol BS8 2PS UKPernilla Lagergren, Unit of Esop...
Source: Quality of Life Research - September 16, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Factors associated with health-related quality of life after successful kidney transplantation: a population-based studyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Among the studied variables, comorbidity and graft function were the main factors associated with the PCSc, and sociodemographic variables and graft function were the main determinants of MCSc. Despite comprehensive, the final regression models explained only a little part of the heath-related quality of life variance. Additional factors, such as personal, environmental and clinical ones might influence quality of life perceived by the patients after kidney transplantation. Content Type Journal ArticleDOI 10.1007/s11136-009-9536-5Authors Maristela Bohlke, Universidade Católica de Pelotas...
Source: Quality of Life Research - September 16, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The classification systems of the EQ-5D, the HUI II and the SF-6D: what do they have in common?Email this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion Although all three classification systems have a lot in common, they differ so much that EQ-5D, HUI II and SF-6D would produce different valuations even if these valuations were determined according to the same principle. Content Type Journal ArticleDOI 10.1007/s11136-009-9525-8Authors Uwe Konerding, University of Bamberg Trimberg Research Academy c/o Kapuziner Straße 16 96047 Bamberg GermanyJörn Moock, University of Greifswald Institute for Community Medicine Walther-Rathenau-Straße 48 17475 Greifswald GermanyThomas Kohlmann, University of Greifswald Institute for Community Medicine Walt...
Source: Quality of Life Research - September 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Gender-related traits, quality of life, and psychological adjustment among women with irritable bowel syndromeEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Findings may help elucidate psychosocial factors contributing to quality of life among women with IBS. Content Type Journal ArticleDOI 10.1007/s11136-009-9532-9Authors Sabrina C. Voci, University of Windsor Department of Psychology 401 Sunset Avenue Windsor ON N9B 3P4 CanadaKenneth M. Cramer, University of Windsor Department of Psychology 401 Sunset Avenue Windsor ON N9B 3P4 Canada Journal Quality of Life ResearchOnline ISSN 1573-2649Print ISSN 0962-9343 (Source: Quality of Life Research)
Source: Quality of Life Research - September 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Quality of life after dislocation of hip arthroplasty: a prospective cohort study on 319 patients with femoral neck fractures with a one-year follow-upEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions A recurrent dislocation of the hip arthroplasty in the treatment of patients with femoral neck fractures seems to result in a persisting deterioration in the HRQoL, while patients with a single dislocation seem to experience only a temporary deterioration. Content Type Journal ArticleDOI 10.1007/s11136-009-9531-xAuthors Anders Enocson, Stockholm Söder Hospital Karolinska Institutet, Department of Clinical Science and Education, Section for Orthopaedics 118 83 Stockholm SwedenHans Pettersson, Stockholm Söder Hospital Karolinska Institutet, Department of Clinical Science and Education, Stat...
Source: Quality of Life Research - August 28, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

SF-36 includes less Parkinson Disease (PD)-targeted content but is more responsive to change than two PD-targeted health-related quality of life measuresEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions SF-36 responsiveness was better than that of two PD-targeted measures, yet those measures had content that significantly explains PD patients’ HRQOL. Content Type Journal ArticleDOI 10.1007/s11136-009-9530-yAuthors Carlos A. Brown, UCLA/VA Greater Los Angeles Healthcare System Los Angeles CA USAEric M. Cheng, UCLA/VA Greater Los Angeles Healthcare System Los Angeles CA USARon D. Hays, UCLA Los Angeles CA USAStefanie D. Vassar, UCLA/VA Greater Los Angeles Healthcare System Los Angeles CA USABarbara G. Vickrey, UCLA/VA Greater Los Angeles Healthcare System Los Angeles CA USA Journal ...
Source: Quality of Life Research - August 28, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instrumentsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion The use of these search filters will contribute to evidence-based selection of measurement instruments in all medical fields. Content Type Journal ArticleDOI 10.1007/s11136-009-9528-5Authors Caroline B. Terwee, VU University Medical Center Department of Epidemiology and Biostatistics and the EMGO Institute for Health and Care Research van der Boechorststraat 7 1081 BT Amsterdam The NetherlandsElise P. Jansma, VU University Medical Library Amsterdam The NetherlandsIngrid I. Riphagen, VU University Medical Library Amsterdam The NetherlandsHenrica C. W. de Vet, VU University Medical Center Depar...
Source: Quality of Life Research - August 27, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

How sharp is the short QuickDASH? A refined content and validity analysis of the short form of the disabilities of the shoulder, arm and hand questionnaire in the strata of symptoms and function and specific joint conditionsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion The short QuickDASH can be recommended for a summary assessment of arm symptoms and function based on the total score in the daily clinical rush. For differentiated assessment of symptoms and function, e.g. for clinical studies, the full-length DASH provides more specific and sophisticated results. Content Type Journal ArticleDOI 10.1007/s11136-009-9529-4Authors Felix Angst, Schulthess Klinik Department of Upper Extremity and Hand Surgery Lengghalde 2 8008 Zurich SwitzerlandJörg Goldhahn, Schulthess Klinik Department of Upper Extremity and Hand Surgery Lengghalde 2 8008 Zurich SwitzerlandS...
Source: Quality of Life Research - August 25, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Somatization is associated with physical health-related quality of life independent of anxiety and depression in cancer, glaucoma and rheumatological disordersEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Since reported number of bodily symptoms is both associated with physical HRQOL and treatable in its own right, our findings suggest a possible new avenue to improve the HRQOL in patients with chronic physical disease. Whether this offers greater benefit than treatments for anxiety and depression needs further research. Content Type Journal ArticleDOI 10.1007/s11136-009-9527-6Authors Thomas Hyphantis, University of Ioannina Department of Psychiatry, Medical School 45110 Ioannina GreeceBarbara Tomenson, University of Manchester Psychiatry Research Group, Medical School Manchester UKVassilik...
Source: Quality of Life Research - August 22, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Predictive value of serial measurements of quality of life on all-cause mortality in prostate cancer patients: data from CaPSURE™ (cancer of the prostate strategic urologic research endeavor) databaseEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion This study demonstrated that several domains of HRQOL were significantly associated with survival in a large group of patients with localized prostate cancer. This association was maintained over the course of disease regardless of the time of the assessment. Results from our study have both research and clinical relevance. They could provide information that enable us to not only improve communication with patients and families, but also to develop interventions and treatments best suited for the patient. Content Type Journal ArticleDOI 10.1007/s11136-009-9526-7Authors Natalia Sadetsky, U...
Source: Quality of Life Research - August 21, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Developing a descriptive system for a new preference-based measure of health-related quality of life for childrenEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions This work has empirically developed a descriptive system for the dimensions of HRQoL identified in previous research. Further research is needed to test the descriptive system on a paediatric population and reduce the number of dimensions to be amenable to health state valuation. Content Type Journal ArticleDOI 10.1007/s11136-009-9524-9Authors Katherine Stevens, The University of Sheffield Health Economics and Decision Science, School of Health and Related Research (ScHARR) Regent Court, 30 Regent Street Sheffield S1 4DA UK Journal Quality of Life ResearchOnline ISSN 1573-2649Print ...
Source: Quality of Life Research - August 20, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The complexity of the relationship between chronic pain and quality of life: a study of the general Norwegian populationEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion These findings support the assumption of a complex and indirect relationship between chronic pain and GQOL. Content Type Journal ArticleDOI 10.1007/s11136-009-9515-xAuthors Astrid K. Wahl, University of Oslo Institute of Nursing and Health Sciences, Medical Faculty Pb.1153 Blindern 0316 Oslo NorwayTone Rustøen, Rikshospitalet–Radiumhospitalet Centre for Shared Decision Making and Nursing Research Oslo NorwayBerit Rokne, University of Bergen Department of Public Health and Primary Health Care, Medical Faculty Bergen NorwayAnners Lerdal, Buskerud University College Department of Health Scien...
Source: Quality of Life Research - August 18, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challengesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Cognitive interviews were critical for item refinement in the development of the PROMIS measure of sexual function. Efforts are underway to validate the measure in larger cancer populations. Content Type Journal ArticleDOI 10.1007/s11136-009-9523-xAuthors Alice K. Fortune-Greeley, Duke Clinical Research Institute Center for Clinical and Genetic Economics PO Box 17969 Durham NC 27715 USAKathryn E. Flynn, Duke Clinical Research Institute Center for Clinical and Genetic Economics PO Box 17969 Durham NC 27715 USADiana D. Jeffery, National Cancer Institute Division of Cancer Control and Populati...
Source: Quality of Life Research - August 12, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Prostate cancer-specific anxiety in Dutch patients on active surveillance: validation of the memorial anxiety scale for prostate cancerEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The structure and validity of the MAX-PC to quantify PC-specific anxiety were largely confirmed in Dutch patients. Content Type Journal ArticleCategory Brief CommunicationDOI 10.1007/s11136-009-9516-9Authors Roderick C. N. van den Bergh, Erasmus University Medical Center Department of Urology Room NH-227 P.O. Box 2040 3000 CA Rotterdam The NetherlandsIda J. Korfage, Erasmus University Medical Center Department of Public Health Rotterdam The NetherlandsGerard J. J. M. Borsboom, Erasmus University Medical Center Department of Public Health Rotterdam The NetherlandsEwout W. Steyerberg, Erasmus ...
Source: Quality of Life Research - August 9, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Concordance of cancer patients’ function, symptoms, and supportive care needsEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions About 50% of patients have similar classifications of their level of function, symptoms, and needs, but discordance was common among patients with deficits in at least one area, emphasizing the importance of assessing all of these outcomes as part of patient evaluations. Content Type Journal ArticleDOI 10.1007/s11136-009-9519-6Authors Claire F. Snyder, Johns Hopkins School of Medicine 624 N. Broadway, Room 657 Baltimore MD 21205 USAElizabeth Garrett-Mayer, Johns Hopkins School of Medicine Baltimore MD USAAmanda L. Blackford, Johns Hopkins School of Medicine Baltimore MD USAJulie R. Brahmer...
Source: Quality of Life Research - August 5, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Sampling in population-based cancer caregivers researchEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Using the formula based on the logistic regression analysis results, a number of certain groups of survivors to be recruited from state registry can be calculated in order to have a present number of caregivers to contact for participation into a caregiver study. This is practical and valuable information, which fosters research that uses state cancer registries and increases the generalizability of findings to multiple types of cancer and different stages of cancer. Content Type Journal ArticleDOI 10.1007/s11136-009-9518-7Authors Youngmee Kim, American Cancer Society Atlanta GA USADebora...
Source: Quality of Life Research - August 4, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Agreement of patient and physician ratings on mobility and self-care in neurological diseasesEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion Our study indicates that general organizational conditions can have an influence on the extent of agreement. Content Type Journal ArticleDOI 10.1007/s11136-009-9520-0Authors Erik Farin, University Medical Center Freiburg Department of Quality Management and Social Medicine Engelbergerstr. 21 79106 Freiburg Germany Journal Quality of Life ResearchOnline ISSN 1573-2649Print ISSN 0962-9343 (Source: Quality of Life Research)
Source: Quality of Life Research - August 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Differential item functioning was negligible in an adaptive test of functional status for patients with knee impairments who spoke English or HebrewEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Statistically significant DIF was identified in some items but represented negligible clinical impact. Results suggested no need to adjust items for DIF when assessing FS outcomes across groups of patients with knee impairments who answer the knee CAT items in English in the United States or Hebrew in Israel. These findings suggest negligible differences in cultural perceptions between English and Hebrew wording of these knee-specific CAT FS items. Content Type Journal ArticleDOI 10.1007/s11136-009-9517-8Authors Dennis L. Hart, Focus On Therapeutic Outcomes, Inc. P.O. Box 11444 Knoxville ...
Source: Quality of Life Research - August 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

The practical impact of differential item functioning analyses in a health-related quality of life instrumentEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Discussion Our scenarios suggest that translation differences in an item can result in small, but clinically important, differences at the scale score level. This is more likely to be problematic for observational studies than for clinical trials, where randomised groups are stratified by centre. Content Type Journal ArticleDOI 10.1007/s11136-009-9521-zAuthors Neil W. Scott, University of Aberdeen Section of Population Health, Institute of Applied Health Sciences Polwarth Building, Foresterhill Aberdeen AB25 2ZD UKPeter M. Fayers, University of Aberdeen Section of Population Health, Institute of Appli...
Source: Quality of Life Research - August 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Impact of mental disorders and chronic physical conditions in health-related quality of life among primary care patients: results from an epidemiological studyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Mood disorders and chronic pain negatively affect HRQOL of PC patients. Especial efforts should be made to detect and treat mental disorders and chronic pain at this level. Content Type Journal ArticleDOI 10.1007/s11136-009-9522-yAuthors Alejandra Pinto-Meza, Sant Joan de Déu-SSM, Fundació Sant Joan De Déu Barcelona SpainAnna Fernández, Sant Joan de Déu-SSM, Fundació Sant Joan De Déu Barcelona SpainMiquel Angel Fullana, Sant Joan de Déu-SSM, Fundació Sant Joan De Déu Barcelona SpainJosep Maria Haro, Sant Joan de Déu-SSM, Fundació Sant Joan De Déu Barcelona SpainDiego Palao, Cor...
Source: Quality of Life Research - August 3, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Impact of demographic factors, medication and symptoms on disease-specific quality of life in inflammatory bowel diseaseEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions In everyday practice, paying attention to and reducing patients’ symptoms and their impact on daily life is important when aiming at improving HRQoL. Special attention should be given to patients who have undergone surgery, and to newly diagnosed patients. Content Type Journal ArticleDOI 10.1007/s11136-009-9514-yAuthors Johanna Haapamäki, Helsinki University Central Hospital Department of Medicine, Division of Gastroenterology P.O. Box 340 00029 HUS, Helsinki FinlandUlla Turunen, Helsinki University Central Hospital Department of Medicine, Division of Gastroenterology P.O. Box 340 00029...
Source: Quality of Life Research - July 25, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Health utility scores of colorectal cancer based on societal preference in JapanEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions XELOX was generally considered a significantly preferable chemotherapy regimen compared to FOLFOX4 for CRC in Japan. Almost all Grade 3/4 AEs and stoma significantly decreased utility scores. These differences are dependent on the accuracy of the health state description and to confirm these results. In future research, it would be preferable that preference-based HRQoL measures are used directly in patients if utility scores are practically measurable by such method. Content Type Journal ArticleDOI 10.1007/s11136-009-9513-zAuthors Takeru Shiroiwa, The University of Tokyo Department of Dr...
Source: Quality of Life Research - July 25, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Negative and positive affect are independently associated with patient-reported health status following percutaneous coronary interventionEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Baseline negative and positive affect contribute independently to patient-reported health status 12 months post PCI. Positive affect moderated the detrimental effects of negative affect on overall health status. Enhancing positive affect might be an important target to improve patient-centered outcomes in coronary artery disease. Content Type Journal ArticleDOI 10.1007/s11136-009-9511-1Authors Henneke Versteeg, Tilburg University CoRPS—Center of Research on Psychology in Somatic diseases, Department of Medical Psychology P.O. Box 90153 5000 LE Tilburg The NetherlandsSusanne S. Peder...
Source: Quality of Life Research - July 22, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Reliability and validity of an instrument for assessing patients’ perceptions about medications for diabetes: the PAM-DEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The PAM-D has substantial reliability and validity in a low-income, inner-city population of Type 2 diabetes patients and may be valuable for understanding multidimensional perceptions driving patients’ treatment preferences. Content Type Journal ArticleDOI 10.1007/s11136-009-9510-2Authors Patrick O. Monahan, Indiana University School of Medicine Department of Medicine 410 W. Tenth Street, Suite 3000 Indianapolis IN 46202-3012 USAKathleen A. Lane, Indiana University School of Medicine Department of Medicine 410 W. Tenth Street, Suite 3000 Indianapolis IN 46202-3012 USARisa P. Hayes, Eli L...
Source: Quality of Life Research - July 21, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Responsiveness of the Harris Hip Score and the SF-36: five years after total hip arthroplastyEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion For long-term evaluation of THA patients, clinicians and health researchers should weight both measures equally and should also consider co-morbidities. Content Type Journal ArticleDOI 10.1007/s11136-009-9512-0Authors Hon-Yi Shi, Kaohsiung Medical University Graduate Institute of Healthcare Administration 100 Shih-Chun 1st Road Kaohsiung TaiwanLih-Wen Mau, Hennipen County Medical Center Chronic Disease Research Group Minneapolis MN USAJe-Ken Chang, Kaohsiung Medical University Hospital Department of Orthopaedics Kaohsiung TaiwanJun-Wen Wang, Kaohsiung Chang-Gung Memorial Hospital Department ...
Source: Quality of Life Research - July 21, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Psychometric validation of two patient-reported outcome measures to assess symptom severity and changes in symptoms in hereditary angioedemaEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The psychometric tests performed here provide evidence of the reliability and validity of the TOS and MSCS for evaluating symptom severity and change in HAE patients. The TOS and MSCS score provide an example of measurement methodology that may be used to precisely capture symptom severity and change in a disease characterized by acute attacks. Content Type Journal ArticleDOI 10.1007/s11136-009-9509-8Authors Margaret K. Vernon, Center for Health Outcomes Research United BioSource Corporation 7101 Wisconsin Avenue, Suite 600 Bethesda MD 20814 USAAnne M. Rentz, Center for Health Outcomes Res...
Source: Quality of Life Research - July 14, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Readability estimates for commonly used health-related quality of life surveysEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions All seven surveys have a substantial number of items with high readability levels that may not be appropriate for the general population. Content Type Journal ArticleDOI 10.1007/s11136-009-9506-yAuthors Sylvia H. Paz, UCLA School of Public Health Department of Health Services P.O. Box 951772 Los Angeles CA 90095-1772 USAHonghu Liu, UCLA Division of General Internal Medicine and Health Services Research UCLA Department of Medicine 911 Broxton Plaza Los Angeles CA 90095-1736 USAMarie N. Fongwa, UCLA School of Nursing 700 Tiverton Ave., 3-238 Factor Building P.O. Box 956917 Los Angeles CA 9009...
Source: Quality of Life Research - July 10, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Italian translation of the Manchester-Oxford Foot Questionnaire, with re-assessment of reliability and validityEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions The Italian version of MOXFQ is a valid and reliable instrument for evaluating foot pain and functional status in patients affected by hallux valgus. Content Type Journal ArticleCategory Brief CommunicationDOI 10.1007/s11136-009-9508-9Authors Andrea Marinozzi, Campus Bio-Medico University Department of Orthopaedic and Trauma Surgery Via Alvaro del Portillo, 200 00128 Rome ItalyNicolò Martinelli, Campus Bio-Medico University Department of Orthopaedic and Trauma Surgery Via Alvaro del Portillo, 200 00128 Rome ItalyManlio Panascì, Campus Bio-Medico University Department of Orthopaedic and Tr...
Source: Quality of Life Research - July 9, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Measuring pain in the context of homelessnessEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusions Results suggested that the majority of items were problematic for the homeless and require substantial modifications to make the pain impact bank relevant to this population. Additional recommendations include involving homeless in future item bank development, conducting research on the topic of pain and homelessness, and using cognitive interviewing in other types of health disparities research. Content Type Journal ArticleDOI 10.1007/s11136-009-9507-xAuthors Rebecca Matter, University of Washington Center for Technology and Disability Studies Box 357920 Seattle WA 98195-7920 USASusan K...
Source: Quality of Life Research - July 7, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals

Quality of life of palliative chemotherapy naive patients with advanced adenocarcinoma of the stomach or esophagogastric junction treated with irinotecan combined with 5-fluorouracil and folinic acid: results of a randomised phase III trialEmail this article to a colleague. Save this article to My Clippings. Discuss or comment on this article.
Conclusion There was a trend in favour of IF over CF in time-to-progression. The IF group also demonstrated a better safety profile than CF and a better QL on a number of multi-item scales, suggesting that IF offers an alternative first-line platinum-free treatment option for advanced gastric cancer. Content Type Journal ArticleDOI 10.1007/s11136-009-9493-zAuthors Desmond Curran, Omega Research 189 Shanliss Rd. Santry, Dublin 9 IrelandCarmelo Pozzo, Catholic University of Sacred Heart 00100 Rome ItalyJerzy Zaluski, Wielkopolskie Centrum Onkologii Poznan Poznan PolandMagdalena Dank, Semmelweis Universi...
Source: Quality of Life Research - July 1, 2009 Category: Health Management Tags: Quality of Life Research Source Type: journals