Riverbend Down Syndrome Parent Support Group
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Down Syndrome and Evidence of the Divine
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Children are wonderful and awesome portals. When we gaze upon them we can be transported to alternate states of consciousness. We can see glimpses of the divine spark - the essence of God. I have two sons. Grant is fifteen and Michael is six. Grant is a typical high school sophomore. (Notice how I didn't call him a "normal" high school sophomore - I'll explain later). Michael has Down syndrome and is as equally wonderful, loved and welcomed as his brother. Both have shown me glimpses of the divine. Each is unique and innocent in his own way and have many times over shown me pathways to God. (Source: Riverbend Down Syndrome...
Source: Riverbend Down Syndrome Parent Support Group - November 7, 2009 Category: Pediatrics Source Type: consumer
St. Louis Cardinals fan feels uplifted after fall
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Pujols, playing first base about 40 feet away, reached Tepas first. He knelt beside him. He urged him to lie down. Pirates first base coach Perry Hill arrived next. He grabbed Tepas' feet. Hill had never seen a fan suffer a fall like that. Stadium staff ran over. Trainers from both teams and paramedics crowded around Tepas. Pujols still knelt by his head. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - October 18, 2009 Category: Pediatrics Source Type: consumer
Counting a little blessing
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Blessed is a word I find myself saying a lot lately. How blessed I am. How blessed my family is. How blessed we are to have Lucy. Six years ago, I didn't feel blessed. Lucy, my first grandchild, my daughter's child, was 12 hours old when we learned she had Down syndrome. We wept. Three days later, we were told she had holes in her heart and would need surgery. We took her home and fed her and held her and rocked her and sang to her. And we prayed. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - October 18, 2009 Category: Pediatrics Source Type: consumer
'Look at her now': Collinsville girl brings home Special Olympics gold, silver for ailing father
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She brought home two medals. And she did it, in part, for her father. It's a tough time for Karrie. Her father, Richard Brown, is currently in hospice. Her mother, Sue Brown, said they weren't sure Richard would make it through the weekend while Karrie competed. "But he wanted her to go; we're doing this for Dad," Sue Brown said. Karrie has Down syndrome and mild autism. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - October 18, 2009 Category: Pediatrics Source Type: consumer
Down's Syndrome and Music
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This study aims to draw information from past research but also to begin original work in a modern day setting, acknowledging the current situations of people with Down's syndrome. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - September 30, 2009 Category: Pediatrics Source Type: consumer
Early Preventive Dental Care
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Early preventive dental care is very important to the health of children with Down syndrome. A child's first dental visit can cause anxiety for parents, the child and dentist alike. The purpose of this article is to explain why early dental care is important for children with Down syndrome, to describe the typical first dental visit for young children, and finally to give suggestions about what can be done to make a child's initial visit to the dentist a positive experience. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - September 14, 2009 Category: Pediatrics Source Type: consumer
Caring for the Teeth and Gums of Children with Down Syndrome
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This article will relate the problems children can develop, describe how Down syndrome can complicate the oral condition, and finally instruct children and families on how to care for the teeth at home. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - September 14, 2009 Category: Pediatrics Source Type: consumer
Play To Talk: A Practical Guide to Help Your Late-Talking Child Join the Conversation
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Book Review (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - March 8, 2009 Category: Pediatrics Source Type: consumer
Power and Powerlessness in Pentecostal Theology
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A Review Essay on Amos Yong's Theology and Down Syndrome: Reimagining Disability in Late Modernity (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - March 8, 2009 Category: Pediatrics Source Type: consumer
Down syndrome advocates praise new law
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CHESTERFIELD - When Missouri Sen. John Loudon and his wife, Gina, decided to adopt their third child, they knew three things: They wanted a little boy, they would name him Samuel and he would have Down syndrome. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - March 8, 2009 Category: Pediatrics Source Type: consumer
John and the Art of Learning
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When John was born in the fall of 1994, we were devastated with the diagnosis of Down syndrome. We were so scared about what kind of future he would have. Among the tons of literature we were given to help us understand Down syndrome, I found no silver lining, and I only became more fearful. Not only were there many negatives about the potential of a child with Down syndrome, but the literature also listed many frightful medical problems that the child might encounter. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - January 16, 2009 Category: Pediatrics Source Type: consumer
Birth - The Second Breakpoint in the Down Subject's Biological Balance: Confirmation and Implications
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In the biological history of a Down subject, apart from the critical moment of conception as the starting point for an organism affected by an extra chromosome 21, birth may be an event that can heavily influence many negative biological developments. An excess of compensatory glutathione peroxidase, alveolar pulmonary degeneration, myelination reduction, the greater risk of being affected by cerebral palsy, and accelerated reduction in visual cortex cells, all find their beginnings following birth. Four out of five of these events were certainly not present in the foetal stage. The most probable hypothesis is that the mat...
Source: Riverbend Down Syndrome Parent Support Group - January 9, 2009 Category: Pediatrics Source Type: consumer
The Walk
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Today was a beautiful spring day, but someone forgot to tell Sam that news. He woke up in his usual fashion, happy and more than willing to give a morning hug and kiss with an enthusiastic, "Goooood Morrrrning, Mommy". He even drank his juice (which for Sam consists of vitamins, coconut milk kefir and distilled water) which was requested beautifully with a "Mommy, I want juice please" but that is where the happiness ended. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - January 8, 2009 Category: Pediatrics Source Type: consumer
Dr. MacDonald's Program. Communicating Partners
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A series of circumstances lead us to a visit with Dr. Jim MacDonald, a professor emeritus of Ohio State University with over 30 years of experience "showing parents that they were their child's best language teachers." We went home with the assignment to imitate, take turns with them, and do this through their favorite activities. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 31, 2008 Category: Pediatrics Source Type: consumer
Eugenics and Down's Syndrome
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As society in general and medicine in particular lose the direction once provided by ancient morality in determining medical ethics, the void is being filled with a variety of arguments all of which, upon careful examination, are mostly sophistry in the interest of self. We must always be careful to avoid rationalizing thoughts that are basically hedonistic. Much of what passes for ethics are arguments of the haves against the have-nots. Humans always must be able to face the crisis created by a helpless cry and come away having matured and reasoned for rather than against the desperate, poor and needy of society. If the h...
Source: Riverbend Down Syndrome Parent Support Group - December 28, 2008 Category: Pediatrics Source Type: consumer
We still don't know what 'normal' really is
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In 1991, when my wife Janet was pregnant with our second child, we were told by her obstetrician that we might want to consider an amniocentesis - just to make sure. "Just to make sure of what?" we asked. "We had a sonogram, and we imagine that any serious problems would have shown up there." An amniocentesis would take genetic material from the fetus itself, the doctor explained, thus affording us a crystal-clear indication of any anomalies that might lead us to terminate the pregnancy. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 28, 2008 Category: Pediatrics Source Type: consumer
Let's change our focus regarding Down syndrome
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The constructive debate isn't about bringing such children into the world, but about helping them, and their parents, make their way in the world. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 28, 2008 Category: Pediatrics Source Type: consumer
Dennis Holton, Pioneer in Down Syndrome Education
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This is my tribute to Dennis Holton, who passed away April 10, 2007, in case you are interested in his role in the history of the Down Syndrome Program at the University of Washington 1971-1997. Dennis Holton, who was the first infant with DS that Val Dmitriev worked with and the first child I taught to read, died last Tuesday night, April 10, in his sleep, due to complications of diabetes. He was 39 years old. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2008 Category: Pediatrics Source Type: consumer
Inclusion - Practical Strategies
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My son has Down Syndrome. I have worked closely with his teachers to facilitate his integration, and I would like to share some practical strategies that made his time at school productive. I have focused on curriculum planning and behaviour because those seem to be the two most problematic areas. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2008 Category: Pediatrics Source Type: consumer
Continued Language Development into Adulthood
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Most people with Down syndrome experience some degree of communication impairment, although the extent can vary dramatically across individuals. Areas of communication that can cause difficulty include articulation (resulting in various degrees of intelligibility), fluency, and language. Interestingly, the functional and social uses of language appear to be a relative strength for people with Down syndrome, although some may experience difficulties arising from speech or language impairments. The focus of this article is the profile of language ability in people with Down syndrome, and recent evidence for continued learnin...
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2008 Category: Pediatrics Source Type: consumer
A Tired Old Cliche Revisited
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How many times have we, as parents of a child with Down syndrome, heard that worn out sentiment, "Children with Down syndrome are so loving"? And how many times, if you are like me, have you inwardly cringed and just smiled? I usually will say something trite, like "She has her moments." (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2008 Category: Pediatrics Source Type: consumer
SMFM: Learning Deficit Blocked in Mouse Model of Down's
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The learning deficits of mice with trisomy 21 appear to have been prevented with a peptide combination, investigators said here. After nine days of treatment, adult mice with the model of Down's syndrome navigated a water maze test as easily as a control group of animals and significantly better (P (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 25, 2008 Category: Pediatrics Source Type: consumer
Life lessons of parenting
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The doctor was talking about my unborn daughter and the results of an amniocentesis test. I know she said something else after that statement, but I don't remember what. I do remember returning home with my wife and crying on the sofa. I distinctly remember saying "I don't want this." I didn't want this situation. I didn't want this responsibility. I didn't want to become one of those parents - the parent of a child with a disability. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 25, 2008 Category: Pediatrics Source Type: consumer
Teaching Those with Down Syndrome
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Professional tennis instructors/coaches approach each new player they are charged with teaching as an individual. Each player has his individual strengths and areas needing improvement. Children and young adults who have Down syndrome are a special population market that teaching professionals are equipped to coach through to success as well, although you may not realize you have the skills. There are a few things to remember when teaching children and young adults with Down syndrome. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 25, 2008 Category: Pediatrics Source Type: consumer
Graduation: The Writing of a Success Story
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On May 22, 2007, Jonathan graduated from Sandalwood High School. He marched in to Pomp and Circumstances - student number 421 in a class of 848 - and sat with his peers in folding chairs on the floor of the Jacksonville Veteran's Memorial Stadium. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 25, 2008 Category: Pediatrics Source Type: consumer
Arthur Miller's Missing Act
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For all the public drama of Arthur Miller's career-his celebrated plays (including Death of a Salesman and The Crucible), his marriage to Marilyn Monroe, his social activism-one character was absent: the Down-syndrome child he deleted from his life. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 23, 2008 Category: Pediatrics Source Type: consumer
Can I Marry You?
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It came out of the blue. I wasn't expecting it at all. It's not the sort of question one prepares for. I'd had my share of proposals as a young woman. But I'm almost 58 and 22 years married. I just never expected my daughter to ask, "Mom will you marry me?" "Where do babies come from?", maybe. But "Will you marry me?," never. Molly proposed to me while we were taking a drive in the country last night with her Dad. She's fifteen now but she's developmentally delayed; she has Down syndrome. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 23, 2008 Category: Pediatrics Source Type: consumer
A pint-sized ambassador against misinformation
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This is what "internationally renowned" Sherman J. Silber, M.D., writes in his "completely revised and updated" book "How to Get Pregnant," published by Little Brown and Co. last August: "The biggest fear of most pregnant women is that their child will be abnormal, and the most common abnormality they worry about is Down syndrome.... These children are severely retarded mentally, and they usually die before their thirtieth birthday." (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 23, 2008 Category: Pediatrics Source Type: consumer
Prevention of obesity for children with Down syndrome
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A variety of factors put people with Down syndrome at risk of increased weight and obesity. As with everyone, the balance between food intake and physical activity can prevent or reduce obesity. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 23, 2008 Category: Pediatrics Source Type: consumer
Egypt and Alligators
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Did you know that mummies "live" in Egypt in pyramids that were built by hand? Do you know how to spell alligator? My 11-year-old daughter recently shared these and other facts with me. So what is the big deal, you ask? My daughter has Down syndrome and mild autism. You can only imagine my tears of pride when she told me her phone number, followed with, "So what you think of that?!" (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 23, 2008 Category: Pediatrics Source Type: consumer
Why Is Periodontal Disease More Prevalent and More Severe in People with Down Syndrome?
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Periodontal disease has been found to be significantly more prevalent and more severe in people with Down syndrome. A series of studies have reported a prevalence of between 58% and 96% for persons younger than 35 years of age. This phenomenon cannot simply be attributed to poor oral hygiene. The etiology of periodontal disease in persons with Down syndrome is complex. In recent years, much focus has been placed on the altered immune response resulting from the underlying genetic disorder. This paper presents an overview of contemporary knowledge on periodontal disease in patients with Down syndrome. (Source: Riverbend Dow...
Source: Riverbend Down Syndrome Parent Support Group - January 30, 2008 Category: Pediatrics Source Type: consumer
What General Educators Have to Say About Successfully Including Students with Down Syndrome in Their Classes
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The purpose of this study was to review the instructor and classroom management procedures of those general education teachers involved in the inclusion of children with Down syndrome who have been rated as successful by the children's parents. Using a parent affiliate list provided by the National Down Syndrome Society, 250 questionnaires were mailed to families in the United States. From this group, 195 parents indicated that they thought their children were included successfully, and they then forwarded questionnaires to their children's general education inclusion teachers. Of those, 189 teachers, from kindergarten thr...
Source: Riverbend Down Syndrome Parent Support Group - January 8, 2008 Category: Pediatrics Source Type: consumer
Stubborn Is... As Stubborn Does
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It is interesting, to me, how many people talk about their child's stubborn behavior as if it was part and parcel with having Down syndrome. It isn't. There are many people who are stubborn who do not have Down syndrome. In fact, in some situations being stubborn is seen as a positive trait. I have heard people say that the reason they came out as winners in a situation was because... "I was stubborn and no one was going to push me around." "They thought I would cave, but I was too stubborn to give up easily." (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2007 Category: Pediatrics Source Type: consumer
An All Inclusive Debate - Whether Academic Inclusion Best Serves Students' Social Development
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Say the word "inclusion" to any parent who has a child with Down syndrome and they will not be able to keep quiet. Whether it is grade school, middle school or high school, every parent has a strong opinion about the positive and negative sides of this hot topic. The main focus of the Down syndrome community has typically been academic inclusion-how children with Down syndrome are "mainstreamed" into curriculums and academic plans. But there is another facet to inclusion which has recently received a lot of attention-the social aspect. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2007 Category: Pediatrics Source Type: consumer
Theology and Down Syndrome: Reimagining Disability in Late Modernity
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Complicating salvation: intellectual disability and Down syndrome. Let us further inquire into the complications regarding classical Protestant soteriology from perspectives illuminated by the experience of intellectual disability. From a conservative Protestant point of view, "Persons who are profoundly retarded and have extremely low levels of comprehension are safe within God's saving grace. While the fact of salvation is a mystery in itself, what we do know about God is sufficient to know that His love encompasses those of a 'childlike' nature" (Nabi 1985:103). (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2007 Category: Pediatrics Source Type: consumer
What is the Home-Based Support Waiver for Children?
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The new Home-Based Support Waiver for Children will be a new Home and Community Based Medicaid Waiver 1915(c) for children with developmental disabilities in Illinois who are at risk of out-of-home placement. The waiver will provide services and supports to participating children to enable their families to keep them at home and avoid residential placement. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - December 26, 2007 Category: Pediatrics Source Type: consumer
Judo and Down Syndrome
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Whether judo in all its aspects is the right sport for people with Down syndrome is a question that is difficult to answer. Certainly if we want to see this question from all point of views. There's a risk factor that can't be ignored even the fact that important rule adaptations are made in order to avoid injuries. Judo is often declared as a combat game and opposites of the sport proclaim that intellectual disabled people should not to be encourage to 'fight'. Even insiders of the sport thought at the first introduction, that ID-athletes would not know the difference between sport enthusiasm and aggression. The athletes ...
Source: Riverbend Down Syndrome Parent Support Group - December 15, 2007 Category: Pediatrics Source Type: consumer
The False Motor Debility in Children with Mental Retardation
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This text started from the observation of a false motor debility in Downs where it exists mental retardation not referable to previous risk factors outside the chromosomal anomaly. Such motor debility always improves, in a short time (within 3-6 months), following a drug therapy that acts on modulation of stress reactions. Excluding the hypothesis of a vicarious substitution by other brain areas, the only possible explanation is that we are dealing with a dysfunctionality of the cells of the brain motor areas, with the result of a false debility by reduced functionality. Such false motor debility does not necessarily justi...
Source: Riverbend Down Syndrome Parent Support Group - November 15, 2007 Category: Pediatrics Source Type: consumer
Down's Syndrome and Communication with Others: A Case Study
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As seen in people with developmental disabilities, interpersonal communications often differ from those of their "normal" counterparts, and it has been reported that children with Down's syndrome typically have difficulties interacting with peers (Guralnick, 2002). However, much of the research on language and communications in people with Down's syndrome have focussed on young people, especially youth and children. Very few studies have focussed on communications in adults with Down's syndrome, thus, a case study involving an observation of an adult with Down's syndrome in a group home setting was performed to investigate...
Source: Riverbend Down Syndrome Parent Support Group - November 15, 2007 Category: Pediatrics Source Type: consumer
Children with Down Syndrome and the Foreign Language: A Concrete Possibility?
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In this second chapter I will deal with bilingualism as a situation experienced by children with Down syndrome. The analysis aims at demonstrating that the double exposure of a child to two different languages is not only a prerogative of typically developing children but also, surely with some slight differences worthy to be mentioned, a situation lived in several families with a trisomic child. As I am perfectly aware of the controversy surrounding bilingual education even when typically developing children are concerned, and in order to give as much up-to-date-information as possible about the cases of trisomic children...
Source: Riverbend Down Syndrome Parent Support Group - November 14, 2007 Category: Pediatrics Source Type: consumer
I Can't Talk With My Mouth Full Or... "The Confessions of a Home-Schooling Mom Who Eats Her Words"
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I am a home-schooling mom. We are a home-schooling family. Even now, mid way through year number two of this journey those words still get hitched in my throat when I profess it. "Why?" you ask. As you may know, home-schooling is very common nowadays and especially in the state of Washington, where by some accounts, there are upwards of 20,000 students learning at home. Washington's also one of the first states in the nation to legally support home-schooling (or home-learning as I like to call it), so what's the big deal if we add two more to their numbers? (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - November 8, 2007 Category: Pediatrics Source Type: consumer
Making the Grade
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Michael Berube Blog. When Jamie entered kindergarten nine years ago, my wife Janet and I worried that he wouldn't be ready. Our concerns were not unusual-but Jamie was: he would be the only child with Down syndrome in Westview Elementary. He was assigned a paraprofessional and "pullout" sessions for occupational and speech therapy: standard fare, these days, for "special needs" children of all kinds. But at the age of six, Jamie wasn't very verbal, and we had no idea how he'd adjust to a real classroom after four years of child care. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - November 8, 2007 Category: Pediatrics Source Type: consumer
PUNS Is No Joke: What Is It? Why Should the Down Syndrome Community Care?
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PUNS (Prioritization of Urgency of Need for Services) is a legislatively mandated database of all people with developmental disabilities in Illinois, of any age, who have unmet needs for services now or in the next 5 years. It is imperative that every single person with a developmental disability at any age stands up to be counted with PUNS. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - November 8, 2007 Category: Pediatrics Source Type: consumer
Orthodontic Possibilities for Children with Down Syndrome
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I. Common dental conditions and terminology associated with Down syndrome. II. Helping to make the dental (ortho) office feel comfortable and safe (supplemental questionnaire). III. Orthodontic study records. IV. Orthodontic Appliances useful to treat dental conditions of kids with Down syndrome. V. Frequently asked questions by parents and kids. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - October 7, 2007 Category: Pediatrics Source Type: consumer
Common Dental Conditions - January Meeting Recap
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In January, Orthodontists Dr. David Musich, Dr. Matt Busch and orthodontic assistant, Sherri Schultz, gave UPS for DownS a very informative presentation entitled: Orthodontic Possibilities for Children with Down Syndrome. Dr. Musich stated that nearly 100% of children with Down syndrome have major dental or orthodontic problems. Dr. Musich and his staff are committed to getting more taught in dental schools about treatment approaches for children with special needs. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - October 7, 2007 Category: Pediatrics Source Type: consumer
Intervention and Patients with Down Syndrome. The Role of Inclusion, Technology and Leadership
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Whereas dentistry and orthodontics have long been committed to the interdisciplinary team management of patients with cleft lip and palate, the dental/orthodontic commitment to patients with DS is less evident. A quick review of the two major orthodontic journals (American Journal of Orthodontics and Dentofacial Orthopedics and The Angle Orthodontist) illustrates the point-there have only been three articles published related to treatment of patients with DS in the last 25 years. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - October 7, 2007 Category: Pediatrics Source Type: consumer
The Recognition of Autism in Children with Down Syndrome - Implications for Intervention and Some Speculations about Pathology
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Although autism can occur in conjunction with a range of other conditions, the association with Down syndrome is generally considered to be relatively rare. Four young boys with Down syndrome are described who were also autistic. All children clearly fulfilled the diagnostic criteria for autism required by the ICD-10 or DSM-III-R, but in each case the parents had faced considerable difficulties In obtaining this diagnosis. Instead, the children's problems had been attributed to their cognitive delays, despite the fact that their behaviour and general progress differed from other children with Down syndrome in many importan...
Source: Riverbend Down Syndrome Parent Support Group - August 4, 2007 Category: Pediatrics Source Type: consumer
Premature Aging in Persons with Down Syndrome: MR Findings
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In summary, we have shown that persons with Down syndrome have features of premature aging that can be appreciated on simple inspection of routine spin-echo MR imaging sequences. Atrophic changes and white matter lesions are more prevalent and more severe in persons with Down syndrome as compared with age- and sex-matched control subjects. T2 hypointensity of the basal ganglia is also identified more frequently and at a younger age in persons with Down syndrome than in control subjects. This abnormal T2 hypointensity of the basal ganglia is often the earliest detectable marker of premature aging. (Source: Riverbend Down Sy...
Source: Riverbend Down Syndrome Parent Support Group - July 19, 2007 Category: Pediatrics Source Type: consumer
Changing Behavior... and Teaching New Skills
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Parents of children with Down syndrome and autistic spectrum disorder (DS-ASD) are especially in need of these tips because there is so little information available about this dual diagnosis for parents or professionals. As parents, you become comfortable accommodating your child's learning style based on information about Down syndrome and your own experiences. Then the latter diagnosis, autistic spectrum disorder, is superimposed on the first. At this point many parents are overwhelmed. They feel as though all hope for modification is lost. However, if you approach your child's behavioral difficulties that are often asso...
Source: Riverbend Down Syndrome Parent Support Group - July 9, 2007 Category: Pediatrics Source Type: consumer
Book, Multimedia, and Software Reviews
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This is one book in a series, "Topics in Down Syndrome," published by Woodbine House. The second edition, similar to the first edition, is well organized and easy to read. It was written to serve as a practical resource for both professionals and parents. Professionals can use the information to explain to parents what a child with Down syndrome can do at different stages of development, and to provide parents with activities to do at home that will help the child master emerging motor skills. Parents will be able to use the book to understand how the development of fine motor skills re affected by the characteristics of D...
Source: Riverbend Down Syndrome Parent Support Group - June 17, 2007 Category: Pediatrics Source Type: consumer
