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Unmet Needs of Cancer People
Finally someone figured out that there might be unmet needs of people after a cancer diagnosis. A study was recently done:" Cancer[people*] face unmet needs. These are needs which lack enough service or support for survivors to achieve optimal well-being. Understanding the needs of cancer survivors can help guide services and support to meet the needs of [people*]. "To complete this study, they asked over 9000 people one question:" Please tell us about any needs you have now as a cancer [person*] that ARE NOT being met to your satisfaction " .Only one question. But they could answer how they wanted and ...
Source: Caroline's Breast Cancer Blog - September 3, 2016 Category: Cancer & Oncology Tags: cancer research post cancer Source Type: blogs

The human cost of breast cancer screening
This article originally appeared in Forbes. Image credit: Shutterstock.com Your patients are rating you online: How to respond. Manage your online reputation: A social media guide. Find out how.
Source: Kevin, M.D. - Medical Weblog - September 18, 2015 Category: Journals (General) Authors: Tags: Conditions Cancer Source Type: blogs

Continuing the Discussion on Genetic Testing for Breast Cancer
A few months ago, Angelina Jolie revealed that she had made the difficult decision to remove her breasts to combat the risk of familial breast cancer. We haven’t heard much about it since – Angelina has moved on. That’s how it should be.  The wonderful thing about having access to genetic testing for breast cancer is that the risk of breast cancer is determined early when it can be addressed and life can go on. I get a lot of emails and calls from women asking if they should get tested for the BRCA 1 or 2 genetic mutations for breast cancer. They have family members that were diagnosed and many of them have lost a m...
Source: Life with Breast Cancer - August 13, 2013 Category: Cancer Authors: Kathy-Ellen Kups Tags: Breast Cancer Source Type: blogs

Emotional Distress: It’s Inevitable When You Have Metastatic Breast Cancer
This has been a tough couple of months. I’m finding it a challenge to figure out how to have purpose and direction while living with an incurable disease. In fact, the biggest problem has been how to plan for the rest of my life when there might not be a “rest of my life.” For the most part, the cancer is under control. I have been fortunate to be asymptomatic, with only a few bouts of intolerable pain to deal with. The source of that pain was recently discovered on a CT scan, when the report showed that a fractured rib was healing. Until the doctor read that to me, I had no idea that I had fractured a rib. So be...
Source: Life with Breast Cancer - June 29, 2016 Category: Cancer & Oncology Authors: Kathy-Ellen Kups, RN Tags: Breast Cancer Source Type: blogs

Emotional Distress: It ’s Inevitable When You Have Metastatic Breast Cancer
This has been a tough couple of months. I’m finding it a challenge to figure out how to have purpose and direction while living with an incurable disease. In fact, the biggest problem has been how to plan for the rest of my life when there might not be a “rest of my life.” For the most part, the cancer is under control. I have been fortunate to be asymptomatic, with only a few bouts of intolerable pain to deal with. The source of that pain was recently discovered on a CT scan, when the report showed that a fractured rib was healing. Until the doctor read that to me, I had no idea that I had fractured a rib. So be...
Source: Life with Breast Cancer - June 29, 2016 Category: Cancer & Oncology Authors: Kathy-Ellen Kups, RN Tags: Breast Cancer Source Type: blogs

News I Didn ' t Want To Hear or Dumb A$$ Cancer Cells
This isn ' t political news but it is really news that I didn ' t want to hear. Tamoxifen and AIs (Aromatase Inhibitors - Femara, Aromasin, etc) work by cutting off the supply of estrogen which feeds cancer cells. However thenew research (because we need new research forever) shows that cancer cells can evolve to develop their own food supply if it is cut off by the treatment." Approximately 70% of breast cancers are estrogen receptor positive which means they feed on the hormone estrogen. Breast cancer drugs such as tamoxifen and the aromatase inhibitors work by limiting access to estrogen thereby starving the cancer...
Source: Caroline's Breast Cancer Blog - January 25, 2017 Category: Cancer & Oncology Tags: breast cancer bonds breast cancer treatment Source Type: blogs

You Can ' t Put A Big Bow On A Cancer Diagnosis
When acancer treatment commercial airs, the people are happy and smiling. The drug or medical center promises they will cure you and you will be back to yourself soon. They want you to believe that they will make it all better.They are full of bullshit." Patients and families are bombarded with the news that the country is winning the war against cancer. The news media hypes research results to attract readers. Drug companies promise  " a chance to live longer " to boost sales. Hospitals woo paying customers with ads that appeal to patients ' fears and hopes." I ' m starting to hear more and more t...
Source: Caroline's Breast Cancer Blog - April 27, 2017 Category: Cancer & Oncology Tags: advertising cancer treatment hype lies Source Type: blogs

Life After Breast Cancer Does Suck
Here ' s the truth. "The Secret Suckiness to Life After Breast Cancer" . Go read it. Judith Basya writes the truth. There is no new normal. Cancer lurks for ever. And life on some levels, really does suck after breast cancer. And they never told us about it and we don ' t get to talk about it.Judith raises some good points including this one which resonates with me most:" And why is my situation only to be discussed in therapy, while other people ’s job woes are acceptable dinner-table fodder? "Yes, really? Why don ' t we talk about post breast cancer suckiness in therapy and not at the dinner table? Our family members a...
Source: Caroline's Breast Cancer Blog - November 2, 2017 Category: Cancer & Oncology Tags: breast cancer bonds coping friends questions secrets Source Type: blogs

How The Post Cancer Brain Works
I have lots of aches and pain. This is a proven fact. You can ask any of my doctors. And I am also a klutz. And I have the battle scars to prove it.Last week, I tripped over my father ' s wheelchair in the waiting room of the chemotherapy department. How embarrassing. In front of maybe 40 people waiting for their appointments. They all noticed.This is what happened. We arrived at the hospital and my father grabbed a wheelchair. He has a bad leg so he pushes a wheelchair around instead of using a cane or walker. It ' s easier for him. He checked in for his appointment and we sat down to wait for him to be called. He parked ...
Source: Caroline's Breast Cancer Blog - February 20, 2018 Category: Cancer & Oncology Tags: brainless cancer bonds falls klutziness more pain Source Type: blogs

What if cancer treatment left you completely exhausted?
When I was 38, my life was turned upside down. As a healthy, happy wife and mother of two, I never could have imagined that I would be diagnosed with stage 2 breast cancer. Post-diagnosis was a whirlwind: I had a double mastectomy, chemotherapy, radiation, hormone therapy and more surgery.It took a long time to get my health back after treatment, but I discovered that the entire experience took a toll on my metabolism and muscle strength. When I ’d try to exercise, I’d just end up in a pool of tears due to pain and exhaustion.A friend told me aboutLIVESTRONG at the YMCA and it changed my life. Their exercise program fo...
Source: LIVESTRONG Blog - August 18, 2016 Category: Cancer & Oncology Authors: LIVESTRONG Staff Source Type: blogs

5 Truths Survivors of Suicide Loss Need to Know Right Now
In the wake of losing someone to suicide, there is much pain and confusion, to say the least. I want to list these five simple truths right up front for those who may need to hear them right away: It isn’t your fault. Do not be ashamed. Your grief is complicated. Healing is possible. You still have life. 1. It isn’t your fault. Losing someone to suicide can often fill us with very specific emotions: Guilt. Regret. Blame. But it is important to talk back to these feelings. It is important to realize and understand that you simply cannot carry the weight of someone else’s decision. Suicide is a very...
Source: World of Psychology - March 24, 2020 Category: Psychiatry & Psychology Authors: Bonnie McClure Tags: Depression Inspiration & Hope Stigma Suicide grief grieving Suicide Loss Survivor Guilt Source Type: blogs

Bring it
You may have noticed the rather obvious lack of regular updates until recently. It’s not for lack of things to say. Rather, I became tired of sharing my complaints. Complaints from others are actually giant pet peeves of mine. I don’t have much patience for what I often perceive as someone being a baby. But look at a bunch of posts I’ve written. Harsh negativity. Whining. Darkness. Pain. A big chunk of this blog is heavy, downer material. I didn’t want to keep adding to the never-ending noise of negativity already present in everyone else’s lives (whether personally or through media outlets)....
Source: Cancer, life, and me - January 6, 2015 Category: Cancer & Oncology Authors: Chris Tags: General Videos Source Type: blogs

Early Detection is Key: Recognize the Signs of Ovarian Cancer
I am the Executive Director of a small not for profit in the world of cancer. We provide many services: advocacy, patient navigation, education, financial support, education and more. My background is in community health education, so prevention education is one of the first programs I added to our mission 15 years ago when I started with the organization. One of the many cancer prevention and early detection topics I taught was—and continues to be—ovarian cancer. I often had a fear that someday someone I loved would face cancer. Four years ago I was visiting with my 40-year-old sister-in-law in Florida. Jen was tall,...
Source: Disruptive Women in Health Care - September 26, 2013 Category: Health Medicine and Bioethics Commentators Authors: dw at disruptivewomen.net Tags: Access Advocacy Cancer Patients Women's Health Source Type: blogs

The Promise of Death
My mother is dying. For her it is a slow and peaceful process. For me it is a painful one as I see her retreat more and more into another place where I can’t follow or find her. She is comfortable and pain-free and well taken care of; all the things anyone would want for a loved one in these circumstances. Still, she is my mother and I am struggling with letting go. She lived up to her married name of Elizabeth Taylor. Like the star whose name she shares, she was always so vibrant and beautiful, the star of every family holiday and the catalyst of most of the family drama. Surprisingly, being calm and peaceful suits her...
Source: Life with Breast Cancer - May 30, 2013 Category: Cancer Authors: Kathy-Ellen Kups Tags: Breast Cancer Source Type: blogs

The Secrets of Cancer Survivors
By JAMES SALWITZ, MD Disclaimer: I have never had cancer. Therefore, at the most basic level, I do not have the right to pontificate about dealing with the dread disease. Rather, I have been the servant and support of those that struggle with cancer. I thought it might be of some assistance to share my observations from the other side of the bed rail. Perhaps, their secrets of survival may help you. 1. Cancer is a team sport; do not do this alone. Never show up to an important appointment by yourself. You are dealing with a physical impairment, as well as a complex mental challenge, at the same time that you are frightened...
Source: The Health Care Blog - February 6, 2016 Category: Consumer Health News Authors: Simon Nath Tags: THCB James Salwitz Source Type: blogs