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Palliative Care Is About Quality Of Life Throughout The Cancer Journey
A newspaper story last week caught my eye when it headlined: "Senators Revive Push for End-of-Life-Care Planning." It reported on new legislation making the rounds in Washington to address care planning for those with advanced illnesses.
You remember "end of life care planning," don't you? It was part of the Affordable Care Act debate several years ago, and quickly became translated into "death panels" where opponents made the argument that the government wanted to help people decide not to receive needed treatment. That was a moment that will live in my memory forever, and it's not a pleasant memory.
So here we are with t...
Source: Dr. Len's Cancer Blog - August 9, 2013 Category: Cancer Authors: Dr. Len Tags: Access to care Breast Cancer Cancer Care Cervical Cancer Colon Cancer Lung Cancer Media Other cancers Prostate Cancer Rectal Cancer Research Survivors Treatment Source Type: blogs
Give a hug to Kath-e: metastatic liver cancer patient 3 months in hospice
Please comment to give Kath-e a hug: being a metastatic liver cancer patient with primary non hodgkins lymphoma, she organized and shares her hospice experience: Hi Kaht-e here: I’m in this for three months since my prognosis and a brief update… Things changed since 3 months: I’m on morphine all day long … Funny thing […]
Source: Metastatic liver cancer - July 5, 2010 Category: Cancer Authors: Daughter SK Tags: Palliative care hospice hospice cancer Source Type: blogs
What ’s it like to be a child and your sibling is diagnosed with cancer?
By Christian Jarrett
When the dreadful news arrives that a child has cancer, understandably the focus of parents and health professionals turns to supporting the sick child as best they can. But also caught up in the nightmare are the child’s siblings. Not only will they likely be consumed by shock and fear, but they must adapt to the cancer journey the whole family has to embark on.
Official health guidance here in the UK and in the USA states that it’s important to provide support to the siblings of children with cancer. Yet the reality is we know relatively little about their experience. A new study in Cli...
Source: BPS RESEARCH DIGEST - September 14, 2016 Category: Psychiatry & Psychology Authors: researchdigestblog Tags: Cancer Health Positive psychology Qualitative Source Type: blogs
Reconceptualizing Health and Health Care: Why Our Cancer Care Delivery System Is In Crisis
Cancer Care System in Crisis
Americans fear cancer. In a poll for MetLife, when participants were asked which major disease they feared most, 41 percent said cancer, 31 percent said Alzheimer’s disease, and small percentages of other respondents said other diseases. Not surprisingly, The National Institutes of Health has a budget allocation of $4.9 billion for 2014 to The National Cancer Institute, far more than any other Institute and over 25 percent of the NIH’s total funding to study organ-based diseases ($19.2 billion).
Despite this longstanding commitment to cancer research, the Institute of Medicine (IOM) reporte...
Source: Health Affairs Blog - September 23, 2014 Category: Health Management Authors: Carolyn Payne and William Dale Tags: All Categories Chronic Care End-of-Life Care Health Care Costs Health Care Delivery Long-Term Care Source Type: blogs
Persuing ASCO 2017 - AKA Time for Lorazepam
Photo from ASCO Mediakit. © ASCO/Danny Morton 2017TheAnnual Meeting of the American Society of Clinical Oncology was last week. It ’s been my observation over the years that much of the best palliative-oncology and supportive-oncology research is presented at ASCO each year, before it’s actually published (if it ever gets published). So I always dig through the palliative/EOL/supportive/psychooncology abstracts each year to see what ' s happening. Below is a gently annotated list of the abstracts that caught my eye the most, for your perusal and edification. Undoubtedly, these are my idiosyncratic choices, ...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 8, 2017 Category: Palliative Care Tags: ASCO cancer oncology pallonc research research issues rosielle WaPo Source Type: blogs
Confronting Stigma From Opioid Use Diorder in Cancer Care
by Fitzgerald Jones, Ho, Sager, Rosielle and MerlinHave you ever been so distressed by a perspective piece that it kept you up at night? The type of rumination that fills you with so much angst that you have no choice but to act. This is exactly how we felt when we read theAAHPM Quarterly Winter 2020 Let ’s Think About It Again.1 (member paywall)The column, which is structured as a sort of written debate in which two authors argue a clinical question, describes a case of a 45-year-old man with severe substance use disorder (SUD) recently diagnosed with extensive-stage small-cell lung cancer. He was offered aggr...
Source: Pallimed: A Hospice and Palliative Medicine Blog - January 30, 2021 Category: Palliative Care Tags: ftigerald jones ho merlin rosielle sager Source Type: blogs
Confronting Stigma From Opioid Use Disorder in Cancer Care
by Fitzgerald Jones, Ho, Sager, Rosielle and MerlinHave you ever been so distressed by a perspective piece that it kept you up at night? The type of rumination that fills you with so much angst that you have no choice but to act. This is exactly how we felt when we read theAAHPM Quarterly Winter 2020 Let ’s Think About It Again.1 (member paywall)The column, which is structured as a sort of written debate in which two authors argue a clinical question, describes a case of a 45-year-old man with severe substance use disorder (SUD) recently diagnosed with extensive-stage small-cell lung cancer. He was offered aggr...
Source: Pallimed: A Hospice and Palliative Medicine Blog - January 30, 2021 Category: Palliative Care Tags: ftigerald jones ho merlin rosielle sager Source Type: blogs
The Dangers of Big Corporate Health Care: Deceptive Marketing of Cancer Treatments
A series of articles over the last few months, culminating in an investigative report by Reuters, provided the newest example of what can go wrong when corporations provide direct care to vulnerable patients. In this case, the vulnerable patients had cancer, and the corporation that provided them care was the Cancer Treatment Centers of America (CTCA). I will try to go through the case chronologically.As Rueters reported, CTCA "was founded in 1988 by Richard J. Stephenson, who has been chairman ever since."The Founder's Checkered PastA Misdemeanor As Reuters noted,A graduate of Northwestern University Law Schoo...
Source: Health Care Renewal - March 11, 2013 Category: Health Medicine and Bioethics Commentators Tags: deception crime marketing Cancer Treatment Centers of America hospital systems complementary/ alternative medicine Source Type: blogs
Part 6 - Why Is Cancer Pain So Special?
by Drew Rosielle (@drosielle)A Series of Observations on Opioids By a Palliative Doc Who Prescribes A Lot of Opioids But Also Has Questions.This is the 5th post in a series about opioids, with a focus on how my thinking about opioids has changed over the years. See also:Part 1 – Introduction, General Disclaimers, Hand-Wringing, and a Hand-Crafted Graph.Part 2 – We Were Wrong 20 years Ago, Our Current Response to the Opioid Crisis is Wrong, But We Should Still Be Helping Most of our Long-Term Patients Reduce Their Opioid DosesPart 3 – Opioids Have Ceiling Effects, High-Doses are Rarely Therapeutic, and Another Hand-Cr...
Source: Pallimed: A Hospice and Palliative Medicine Blog - October 6, 2019 Category: Palliative Care Tags: cancer opioids pain rosielle The profession Source Type: blogs
Stomach Cancer Stage 4 Treatment
Stomach cancer stage 4 is a complex diagnosis. It is the stage of cancer that requires specific treatment options.
Is surgery an option for patients with stomach cancer stage 4?
Stage 4 stomach cancer is characterized by rapid tumor growth, metastasizing to regional lymph nodes and distant organs (liver, bones, pancreas, less often lungs). With the development of metastases in other organs, characteristic symptoms occur such as jaundice and liver failure with liver damage, ascites with metastases in the peritoneum, bowel obstruction with metastases in the small intestine, etc.
Therefore, at the advanced stages, ga...
Source: PickTheBrain | Motivation and Self Improvement - January 22, 2021 Category: Consumer Health News Authors: Booking Health Tags: health and fitness self-improvement cancer stomach cancer treatment Source Type: blogs
Too many of us aging
We are getting older so will there be enough doctors to care for us? Especially for cancer care?And will we understand our options?Us baby boomers need to stop aging to doctors can catch up with us. We are reaching the, and I quote, 'tumor prone years' as a generation. (I hope I have already had my share of tumors, thank you.) In addition, oncology is a quickly evolving medicine these days - personalized medicine being on the forefront - as scientists are racing to find a cure for cancer. The doctors have lots to keep up on. Patients do too. They need to stay informed on their options and understand what treatments a...
Source: Caroline's Breast Cancer Blog - September 11, 2013 Category: Cancer Tags: aging cancer research cancer treatment treatment options Source Type: blogs
Why is cancer care failing?
The Institute of Medicine (IOM) recently released a report on the state of cancer care in the United States. The IOM generally knows what it’s talking about. It’s a non-profit, non-governmental advisory group essentially. To get on one of their advisory boards you have to be a national, if not international, expert in whatever field is being studied. According to the cancer advisory board, the state of cancer care in the United States is abysmal.
Among the problems are:
1. Doctors don’t know how to treat cancers, despite numerous guidelines for every conceivable type of cancer written by such groups as the Amer...
Source: Kevin, M.D. - Medical Weblog - September 19, 2013 Category: Family Physicians Tags: Conditions Cancer Source Type: blogs
The Clare Project and "What Matters Most?" to young people with advanced cancer
by Karen J. Wernli In the summer of 2014, my sister-in-law, a new mother, died of cancer after 11 years with her disease. Although doctors gave her the best care they could, as a health researcher focused in cancer care, I wanted to do better for people like Clare. Then, at a scientific conference that fall, I learned that others had the same desire. Representatives from the National Cancer Institute were asking for studies to improve care for adolescents and young adults, including at the end of life. On the plane home, I started working with my research ideas. I realized that to know what young people with advanced-stage...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 29, 2016 Category: Palliative Care Tags: cancer pediatrics tweetchat twitter young adult Source Type: blogs
The Clare Project and " What Matters Most? " to young people with advanced cancer
by Karen J. Wernli In the summer of 2014, my sister-in-law, a new mother, died of cancer after 11 years with her disease. Although doctors gave her the best care they could, as a health researcher focused in cancer care, I wanted to do better for people like Clare. Then, at a scientific conference that fall, I learned that others had the same desire. Representatives from the National Cancer Institute were asking for studies to improve care for adolescents and young adults, including at the end of life. On the plane home, I started working with my research ideas. I realized that to know what young people with advanced-stag...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 29, 2016 Category: Palliative Care Tags: cancer pediatrics tweetchat twitter young adult Source Type: blogs
Cancer Patients May Not Get The Rehab They Need: A Missed Opportunity To Consider
This blog post first appeared at: Curious Dr. George
Rehabilitation medicine is one of the best-kept secrets in healthcare. Although the specialty is as old as America’s Civil War, few people are familiar with its history and purpose. Born out of compassion for wounded soldiers in desperate need of societal re-entry and meaningful employment, “physical reconstruction” programs were developed to provide everything from adaptive equipment to family training, labor alternatives and psychological support for veterans.
Physical medicine and rehabilitation (PM&R) then expanded to meet the needs of those injured in Wo...
Source: Better Health - April 5, 2017 Category: American Health Authors: Dr. Val Jones Tags: Health Tips Opinion Cancer Rehab Oncology Physiatry PM&R Rehabilitating From Cancer Rehabilitation Medicine Source Type: blogs
