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Reducing Cancer Care Costs and Hospital Stays
There are two really irritating things about cancer care for me. (Well there are really lots of things that irritate me about cancer care. I could make a giant list of them if anyone really cared but today I am going to focus on two things.Cancer care is ridiculously expensive. You can take a drug for $100,000 that might increase your lifespan for a couple of months. A single chemo infusion can cost upwards of $20,000.And at the least sign of germs or low blood counts, you are sent to the emergency room where they admit you. That is a really stupid part. You feel like crap on a Friday night, you call your oncologist and th...
Source: Caroline's Breast Cancer Blog - November 13, 2016 Category: Cancer & Oncology Tags: cancer care cancer costs hospital Source Type: blogs

Post Cancer Survivorship
So Becky over at BC Becky blogged aboutdeveloping her post cancer survivorship plan. (Personally, I hate the S word but will suffer through it for this blog post, using it as Becky ' s word not mine.) Other people call it their new ' normal ' . I have found it very elusive. And basically think its a crock of sh*t. However this morning I started thinking (which is dangerous) while reading Becky ' s post.I have no way of reaching a new normal because I was living my new normal, post cancer since 1981. I have no way of knowing what it would be like to be an adult without cancer since I was 19 and in college at my first diagno...
Source: Caroline's Breast Cancer Blog - November 30, 2016 Category: Cancer & Oncology Tags: post cancer s-word Source Type: blogs

Breast Cancer Idiocy
First day of radiation treatment. I look like I ' m about to make a run for it which is accurate. Radiation is frightening to me. Something about not being able to see the laser, see the treatment and having this machine moving around you just scares me. I ' m sure I ' ll get used to it but right now.... I hate it. #radiation#radiationmondaysucks #stillfightinglikeagirlThis is a picture of Shannen Doherty, from ' 90210 ' , as she starts radiation for breast cancer. Why do I call this idiocy? Her business managers allowed her health insurance to lapse. She had to sue them. Can you believe that?What competent perso...
Source: Caroline's Breast Cancer Blog - December 2, 2016 Category: Cancer & Oncology Tags: breast cancer breast cancer bonds breast cancer treatment idiots Shannen Doherty Source Type: blogs

Talking About Cancer, Or Not
I have a lot of friends these days who have had cancer. And then I have friends who have not had cancer but sometimes we still talk about cancer or my health. But then I have friends who do not have cancer or any big ailments and don ' t really know about the disasters of my health so we talk about other things. Like life.Recently, through the wonders of social media, I reconnected with two old friends from high school who I hadn ' t seen in decades. I have sort of told them about all my health issues. But definitely not all of them. I have gotten together with one or both of them a few times.I got together with the one wh...
Source: Caroline's Breast Cancer Blog - December 13, 2016 Category: Cancer & Oncology Tags: cancer awareness quality of life Source Type: blogs

Living Without Cancer
I have had further thoughts on my post from the other day onNot Talking About Cancer and then more thoughts. As I wrote about enjoying not talking about cancer, it really made me think. What if you didn ' t even have to consider talking about cancer or not talking about cancer? Because you had never had cancer?I think this is the part that I am stuck on and really struggle with at times. I have never been an adult with out cancer. This is very difficult for me. I went from being a fun loving, college freshman to a cancer person. (This means if you got to know me after August 1981 you never knew the pre-cancer me.)If you ha...
Source: Caroline's Breast Cancer Blog - December 15, 2016 Category: Cancer & Oncology Tags: being a patient cancer diagnosis quality of life Source Type: blogs

Why I Don ' t Blog About Breast Cancer As Much Any More
I have been pondering this one for a long time, years. I used to blog about my breast cancer crap (and if it ' s cancer, it is crap) all the time. I mean, ALL the time. Because breast cancer was the center of my life. I was going through treatment and coping with diagnosis and all the fun stuff going along with it.So since I got through treatment and moved on to other ailments, I have not blogged about breast cancer as much. I have thought a lot about this. I have even considered renaming my blog.After a lot of thought, I have decided the reason I don ' t blog about breast cancer is that I am trying to bury all thoughts of...
Source: Caroline's Breast Cancer Blog - December 29, 2016 Category: Cancer & Oncology Tags: blogging breast cancer coping Source Type: blogs

Cancer Prevention (Or Why Me?)
I have a feeling I am bit cynical these days. This morning I found a post by Dana Farber ' s Insight blog on cancer prevention tips, which caught my cynical eye.I was 19 when I was first diagnosed with cancer. Okay, I admit to smoking some by then but I wasn ' t much of a drinker until I got to college (!!). I was pretty active. I was young. Any bad habits didn ' t have much time to turn into a cancer, or so I think. Then by my second diagnosis, 26 years later, I might have had a few more bad habits but I was pretty active and got check ups, wore sun screen and in good shape. This is my family history of cancer: ...
Source: Caroline's Breast Cancer Blog - January 2, 2017 Category: Cancer & Oncology Tags: aggravation cancer diagnosis cancer prevention frustration Source Type: blogs

How I Celebrate the New Year With Metastatic Breast Cancer
New Year’s Day 2017 found me in Panama City, Florida. The New Year was rung in by fireworks literally right outside my beach-front window. My husband and I had planned this last-minute trip on Christmas Day, and when we couldn’t get flights, we jumped in the car the next day and headed south from Michigan to Florida. Love them or hate them, New Year’s celebrations come every year. In the past, I sometimes enjoyed the night or, like many people, often found it a letdown: All of the excitement leading up to one moment, only to wake up the next day in the exact same circumstances you were in the year before. How Cancer ...
Source: Life with Breast Cancer - January 11, 2017 Category: Cancer & Oncology Authors: Kathy-Ellen Kups, RN Tags: Breast Cancer Source Type: blogs

News I Didn ' t Want To Hear or Dumb A$$ Cancer Cells
This isn ' t political news but it is really news that I didn ' t want to hear. Tamoxifen and AIs (Aromatase Inhibitors - Femara, Aromasin, etc) work by cutting off the supply of estrogen which feeds cancer cells. However thenew research (because we need new research forever) shows that cancer cells can evolve to develop their own food supply if it is cut off by the treatment." Approximately 70% of breast cancers are estrogen receptor positive which means they feed on the hormone estrogen. Breast cancer drugs such as tamoxifen and the aromatase inhibitors work by limiting access to estrogen thereby starving the cancer...
Source: Caroline's Breast Cancer Blog - January 25, 2017 Category: Cancer & Oncology Tags: breast cancer bonds breast cancer treatment Source Type: blogs

More Breast Cancer Treatment Side Effects
What good is a treatment if it could kill you in the end? A new study (because we all need more research) shows thatmore than half of breast cancer patients have severe or very severe side effects after treatment, especially after chemotherapy." Overall, 45 percent of participants reported severe or very severe forms of at least one of these side effects. When women got chemotherapy, the odds of severe side effects were twice as high, though the side effects were just 30 percent more likely when chemo was paired with radiation.“We did know that some of these side effects were associated with these treatments, but we did ...
Source: Caroline's Breast Cancer Blog - January 27, 2017 Category: Cancer & Oncology Tags: breast cancer treatment side effects Source Type: blogs

I Don ' t Care if People Know About My Cancer History
I used to hide the fact that I had cancer. There are people who knew me for decades before I told them about my thyroid cancer diagnosis. When I was diagnosed with breast cancer I was a bit more open about it but I still kept it private to an extent.I think I cared more about it when I was working full time. I didn ' t want any potential employer to know that I had cancer because, even though people are not supposed to discriminate they do. If you are looking at two potential employees who have the same credentials, the one with a history of cancer will probably not be selected because they might ' get sick again ' . This ...
Source: Caroline's Breast Cancer Blog - January 31, 2017 Category: Cancer & Oncology Tags: breast cancer cancer history thyroid cancer Source Type: blogs

Coping With Breast Cancer with Friends
After living with breast cancer for nearly 10 years, I have some thoughts about how we all cope with it. I know personally I have gone from total, sheer panic to somewhat calm acceptance with a large dose of humor.Humor has always been my ' go-to ' when coping with anything. If I am not cracking jokes, I am really stressed. I mean I sometimes crack really bad jokes when stressed but if I get to the point where I am too stressed, my sense of humor vanishes. That means trouble.I have noticed that most of my cancer friends do the same thing. We all have kept our sense of humor as we cope with life with breast cancer. We have ...
Source: Caroline's Breast Cancer Blog - February 2, 2017 Category: Cancer & Oncology Tags: breast cancer breast cancer bonds coping Source Type: blogs

The Bigger Problem Than Lack of New Cancer Treatments
I constantly read articles on the advent of new cancer treatments. I think they are wonderful. But they are not always instituted.In 2014, new guidelines started to recommend sentinel node biopsies instead of full axillary node dissections to detect cancer spread. They are told not to do axillary node dissections (AND) if the patients cancer is under 5 cm and if breast cancer was only found in one or two sentinel nodes." Sentinel node biopsies are done on early-stage breast cancer patients to stage their cancer and determine if it has infiltrated the lymph node system, a common signal of cancer spread. "Axillary node ...
Source: Caroline's Breast Cancer Blog - February 4, 2017 Category: Cancer & Oncology Tags: breast cancer treatment cancer research uncertainty with doctors Source Type: blogs

Every One ' s Cancer Is Different
I now know many women, dozens, probably more like hundreds, who have been diagnosed with breast cancer. Sadly not all are still with us.The one thing I have learned is that everyone ' s cancer is different and presents differently. A case in point is a friend went to see another friend who was newly diagnosed with stage IV breast cancer. Two months after her diagnosis she cannot walk with out a cane because of the mets in her hips and her arm is huge with lymphedema. Two months! Her first symptom was hip pain.I have a friend who was diagnosed with breast cancer at stage IV about four years ago and she was gone within 8 wee...
Source: Caroline's Breast Cancer Blog - February 12, 2017 Category: Cancer & Oncology Tags: breast cancer breast cancer treatment outcome Source Type: blogs

More Evil Cancer Cells
So I didn ' t know (or maybe I kind of knew and was pretending I didn ' t) that some cancer cells go hide in your body to come out later as metastases. However,current research has been working on this issue." ...researchers have discovered the conditions by which specific signals in primary tumors of head and neck and breast cancers can pre-program cancer cells to become dormant and evade chemotherapy after spreading. "How nice. Or actually how evil! I think it is pretty nasty when cancer cells hide so they can recur and try to kill you. The elude conventional treatments including chemotherapy.However I think its pretty d...
Source: Caroline's Breast Cancer Blog - February 14, 2017 Category: Cancer & Oncology Tags: breast cancer treatment cancer cells cancer recurrence cancer research Source Type: blogs