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national metastatic breast cancer awareness day: my statement
Here is the statement I made at today's press conference (see below for details). Thanks so much to Dr. Hedy Fry for introducing the Private Members' Bill and especially to the Canadian Breast Cancer Network for being a tireless advocate for women living with metastasis."Cate Edwards, daughter of the late Elizabeth Edwards has said, 'Before my mom was diagnosed with breast cancer, I assumed breast cancer patients fell into two categories: survivors and those who lost the battle.' Before my own diagnosis, I would have said the same thing.I learned I had breast cancer in 2006, when I was 38 years old, with two little ki...
Source: Not just about cancer - May 1, 2014 Category: Cancer Tags: brain metastasis breast cancer cancer blog community good stuff identity news show and tell Source Type: blogs
Cancer Is a Killer, Not a Lifestyle
Does cancer make you uncomfortable? Of course it does!
Disfiguring surgery. Treatments that make patients bald, pale and weak. Teeth falling out or turning brown. Missing fingernails. A large elastic bandage worn on the arm forever. Chronic pain. And on top of all that—for way too many—a death sentence.
Hey, what’s not to like?
It’s human nature to try to put aside what makes us uncomfortable. One way to do that is to assign blame.
Won’t happen to me because I did not perform in smoky nightclubs.
Won’t happen to me because I have a four-leaf clover.
Or—worse—won’t happen to me because I am [stage whisper...
Source: Donna Trussell - November 30, 2008 Category: Cancer Authors: admin Tags: Cancer Source Type: blogs
Meet Dakota Fisher-Vance…she didn’t let cancer derail her
Fasten your seatbelts. You’re about to meet Dakota Fisher-Vance. Cancer could have derailed the impact she’d have on the world, but it didn’t. She was preparing for Med School, interested in education and looking forward, perhaps, to a day she’d work with children with autism.
Then, came cancer. Specifically, Familial Adenomatous Polyposis. I won’t tell you what she found on the web, you can read it here and understand her frustration about what she found. Then, came a desmoid tumor, another very rare condition. Statistically, she’s one in four million.
Except in my book, where she’s one in a billion. In the ...
Source: Disruptive Women in Health Care - May 4, 2015 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Advocacy Cancer Innovation Source Type: blogs
When Are We Done Healing and Grieving After A Cancer Diagnosis?
Is there supposed to be a secret moment that you reach and realize that you are done healing and grieving after a cancer diagnosis? I know there are the five stages of grief or whatever where you end up at acceptance. But does that mean you are done healing and grieving and don ' t carry around your emotional and physical scars?I think probably after a good 20 or 30 years or so most surgical scars are pretty much invisible but I am not sure about the emotional ones. We carry those around a lot longer. We may reach acceptance but that doesn ' t mean we are emotional healed. The wounds run very deep.This summer marks 36 year...
Source: Caroline's Breast Cancer Blog - April 24, 2017 Category: Cancer & Oncology Tags: acceptance cancer bonds grief healing Source Type: blogs
More on Life After Breast Cancer
Beth Caldwell is another story about life after breast cancer. But the really sad kind. She was diagnosed with breast cancer at age 37, which is three years before she would have gotten a mammogram. Unfortunately she had a huge factor going against her with her diagnosis. She was diagnosed at stage IV.This is a very bad thing. This is not the good painted pink breast cancer. This is the really bad kind. This is the cancer that something like 7% (or so, I can ' t remember the exact number) diagnosis that women (and men) face.When you are diagnosed at stage IV, you are already past the point where everyone else is at and whe...
Source: Caroline's Breast Cancer Blog - November 5, 2017 Category: Cancer & Oncology Tags: blogging breast cancer bonds dying stage IV Source Type: blogs
Health IT and Cancer — #HITsm Chat Highlights
Topic One: What are the unique #HealthIT opportunities to improve cancer patients’ experience during treatment?
T1 Organizing treatment schedules/keeping up with appointments, staying connected with resources & support systems #HITsm
— Henrike (@HenrikeFH) May 24, 2013
T1: Communicating what to expect at each stage of treatment is v. important. #HealthIT makes it easier to do so #hitsm — Anshu Jindal (@AnshuBJindal) May 24, 2013
T1 Access to support networks and sustainability of before/during/after #cancer treatment #HITsm — Dr. Gia Sison (@giasison) May 24, 2013
A1: HIT offers opportunity to help foster sen...
Source: EMR and HIPAA - May 25, 2013 Category: Technology Consultants Authors: Katie Tags: Healthcare HealthCare IT #HITSM Cancer and Health IT mHealth Source Type: blogs
Breast cancer over hype
"...breast cancer has become the most heavily promoted disease in this country, women walk in with information, misinformation, strongly held beliefs, opinions, and frequently a literal army of supporters." I completely agree with this statement which came from this article which I found to have brought up many thought provoking points. There is no other ailment which has an army of patients, painting the world pink, with the best of intentions, and share good and bad information.The author, an oncologist with 30 years of practice, concludes with:"The point is that breast cancer patients are a particular entity, heavi...
Source: Caroline's Breast Cancer Blog - June 15, 2013 Category: Cancer Tags: hype breast cancer social media Source Type: blogs
Breast Cancer, Mastectomy and Breast Implants: A 20-Year History of Images and Attitudes
CBS Sunday Morning this week aired a segment looking at breast cancer and body image, especially women’s choices around reconstructive surgery and implants.
Artist and former fashion model Matuschka, whose self-portrait on The New York Times Magazine cover 20 years ago (Aug. 15, 1993) created a shock because it displayed her mastectomy scar where her right breast had been removed, describes her reasons for creating the image — wanting to start a conversation about breast cancer — and the backlash she received from readers who thought she brought shame to women.
The moment was compared to the reaction to ...
Source: Our Bodies Our Blog - August 20, 2013 Category: Health Medicine and Bioethics Commentators Authors: Rachel Tags: Breast Cancer Breast Implants Our Bodies Ourselves Source Type: blogs
Vascularized Lymph Node Transfer for Lymphedema
Vascularized lymph node transfer is the latest surgical option for the treatment of lymphedema. The procedure was first described several years ago and has continued to evolve since then. It is now gaining popularity for the treatment of arm lymphedema in breast cancer survivors that do not respond to conservative (non-surgical) therapy. The results have been quite exciting.
In the case of arm lymphedema caused by breast cancer surgery or radiation, a vascularized lymph node transfer moves healthy lymph nodes, usually from the upper-outer groin, to the underarm area (axilla). These healthy nodes compensate for the lymp...
Source: Breast Cancer Reconstruction Blog - August 30, 2013 Category: Cancer Tags: vascularized lymph node transfer breast reconstruction breast cancer arm lymphedema DIEP flap breast cancer surgery groin lymph nodes radiation Source Type: blogs
How do you envision your cancer?
When I was in chemo, I would think of the chemo drugs as Pac Man icons going along eating up all the bad cancer cooties in my system. The cancer itself was some dark looming elephant in the room. Well not an elephant but a big looming grim reaper with the scythe running all over from the good guys.I always thought that on a slide in the lab, they would be big and black. Always ugly, never pretty. Never able to become pretty.It looks like I was wrong."A University of British Columbia professor designed and created 10 dresses inspired by microscopic lab photos of cancer cells and other body systems for a project called "Fash...
Source: Caroline's Breast Cancer Blog - March 20, 2014 Category: Cancer Tags: art cancer cells image Source Type: blogs
The Picture With The Smile That Says So Much About Advances In Cancer Care
It was the picture (see below) that, to me, said it all: a 96 year old woman -- one of the first patients in the world to receive a brand new cancer drug--, and a large tumor on her neck had melted completely away. But it was the smile on her lips that you couldn't avoid noticing.
Let's set the stage: You have spent the last 5 days in a large convention center at the Annual Meeting of the American Society of Clinical Oncology in Chicago running from presentation to presentation and meeting to meeting. You have heard more information presented in more rapid fire sequence than any human being can possibly absorb. You h...
Source: Dr. Len's Cancer Blog - June 4, 2014 Category: Cancer Authors: Dr. Len Tags: Access to care Cancer Care Media Medicare Medications Melanoma Other cancers Research Survivors Treatment Source Type: blogs
A doctor shares the secrets of cancer survivors
Disclaimer: I have never had cancer. Therefore, at the most basic level, I do not have the right to pontificate about dealing with the dread disease. Rather, I have been the servant and support of those that struggle with cancer. I thought it might be of some assistance to share my observations from the other side of the bed rail. Perhaps, their secrets of survival may help you.
Cancer is a team sport; do not do this alone. Never show up to an important appointment by yourself. You are dealing with a physical impairment, as well as a complex mental challenge, at the same time that you are frightened and do not feel well. H...
Source: Kevin, M.D. - Medical Weblog - February 27, 2016 Category: Journals (General) Authors: James C. Salwitz, MD Tags: Conditions Cancer Source Type: blogs
Exercise for Memory???? Or Cancer Causes Stress.
A new study (because we all new more studies) says thatexercise can boost memory for breast cancer patients. What? I exercise and my memory is shot, getting worse every day. I don ' t believe it.The theory is that exercise alleviates stress and benefits women psychologically which improves their memory." A surprising finding is memory problems appear to be related to the high stress load cancer survivors experience, and may not be specific to chemotherapy or radiation treatments. "That ' s surprising? To me this is even more important than figuring out that exercise improves memory. Seriously, I could have told you that a ...
Source: Caroline's Breast Cancer Blog - August 26, 2016 Category: Cancer & Oncology Tags: exercise memory stress Source Type: blogs
Vascularized Lymph Node Transfer for Lymphedema
Vascularized lymph node transfer is the latest surgical option for the treatment of lymphedema. The procedure was first described several years ago and has continued to evolve since then. It is now gaining popularity for the treatment of arm lymphedema in breast cancer survivors that do not respond to conservative (non-surgical) therapy. The results have been quite exciting.
In the case of arm lymphedema caused by breast cancer surgery or radiation, avascularized lymph node transfer moves healthy lymph nodes, usually from the upper-outer groin, to the underarm area (axilla). These healthy nodes compensate for the lymph n...
Source: Breast Cancer Reconstruction Blog - August 30, 2013 Category: Cancer & Oncology Tags: arm lymphedema breast cancer breast cancer surgery breast reconstruction DIEP flap groin lymph nodes radiation vascularized lymph node transfer Source Type: blogs
Next Steps
Fighting cancer may be easier when you break it down into smaller steps. For breast cancer survivors the journey can be composed of multiple stays since radiation, chemo, and surgery may be involved. Alexis is a 39 year old mother … Continue reading →
Source: Being Cancer Network - February 17, 2013 Category: Cancer Authors: Dennis Pyritz Tags: Living with Cancer Bone marrow transplant Breast cancer Chemotherapy Radiation Source Type: blogs
