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More Than 1 Million Young Caregivers Live In the United States, But Policies Supporting Them Are Still ‘Emerging’
Being a family caregiver today is a demanding responsibility. If caregiving is stressful for the “typical” caregiver—a 49-year-old woman—think how much more is at stake when the caregiver is a child or teenager. Yet more than a million youngsters ages 8–18 take on challenging tasks to help a parent, grandparent, sibling, or other relative. While that number is undoubtedly an underestimate, it does not even include an emerging subgroup—children whose parents are struggling with opioid addiction.
If we have limited information about the young people taking care of those with diabetes, cancer, and ...
Source: Health Affairs Blog - August 7, 2017 Category: Health Management Authors: Carol Levine Tags: Featured Population Health Public Health Quality Agnes Leu child caregivers family caregivers National Alliance for Caregiving Saul Becker United Hospital Fund Source Type: blogs
End-of-Life Healthcare Sessions at ASBH 2017
Conclusion: Patients with LEP had significant differences and disparities in
end-of-life decision-making. Interventions to facilitate informed
decision-making for those with LEP is a crucial component of care for this
group.
THU 1:30 pm: “But She’ll Die if You Don’t!”: Understanding and
Communicating Risks at the End of Life (Janet Malek)
Clinicians sometimes decline to offer interventions even if their refusal will
result in an earlier death for their patients. For example, a nephrologist may
decide against initiating hemodialysis despite a patient’s rising creatinine
levels if dea...
Source: blog.bioethics.net - July 26, 2017 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs
Choice: The Hidden Curriculum in Palliative Care
By Paul CarrThank you to Dr. Naheed Dosani and the excellent team at William Osler Health Centre for inspiring this post.What three words describe the essence of palliative care for you? When I asked my friends, family, and colleagues, the most common answers are: pain management, personal and spiritual support, and end of life planning. Those are all key components. But what quickly became apparent to me during my palliative care elective is that excellent palliative care providers embrace the role of enabling patients and families to make well-informed choices.I have taken a long and untraditional route to arrive in the ...
Source: Pallimed: A Hospice and Palliative Medicine Blog - July 17, 2017 Category: Palliative Care Tags: choice communication goals palliative paul carr Source Type: blogs
Palliative Care & CHF: PAL-HF trial
The main results of PAL-HF - a randomized, controlled trial of specialty palliative care team involvement in advanced heart failure patients - have just been published in the Journal of the American College of Cardiology (DOI: 10.1016/j.jacc.2017.05.030. Clinicaltrials.gov registration here). This is an important, well-done study, with encouraging results - specialty PC improved the quality of life of patients with HF. I ' ll discuss the results in more details in this post.The study was done by a multi-disciplinary team of palliative& cardiology investigators at Duke. This week ' s ...
Source: Pallimed: A Hospice and Palliative Medicine Blog - July 14, 2017 Category: Palliative Care Tags: chf heart failure research research issues rosielle Source Type: blogs
Dying from Dementia, Suffering Often Unnecessary
This discussion and research on Dying with Dementia and the unnecessary care that often accompanies the late stages of dementia is worth discussing and considering.ByAlzheimer's Reading RoomThis topic is often overlooked and avoided until it is too late.I believe these issues should be considered, and when possible,discussed in support groups. This information is worth sharing and discussing with family members.Learn More -Coping with Alzheimer'sSince individuals with advanceddementia cannot report their symptoms, these symptoms often are untreated, leaving them vulnerable to pain, difficulty breathing and various other co...
Source: Alzheimer's Reading Room, The - July 14, 2017 Category: Neurology Tags: Alzheimer's Dementia assisted living and memory care facility care homes for elderly with dementia care of dementia patients care of dementia patients at home dementia care elderly dementia care Source Type: blogs
Health Affairs – Advanced Illness & End-of-Life Care
The July 2017 issue of Health Affairs is a special issue on Advanced Illness & End-of-Life Care.
Advanced Illness And End-Of-Life CareAlan R. Weil
Advance Care Planning With Alzheimer’s: A Tortuous PathRebecca Gale
Epidemiology And Patterns Of Care At The End Of Life: Rising Complexity, Shifts In Care Patterns And Sites Of DeathMelissa D. Aldridge and Elizabeth H. Bradley
A National Profile Of End-Of-Life Caregiving In The United StatesKatherine A. Ornstein, Amy S. Kelley, Evan Bollens-Lund, and Jennifer L. Wolff
Medicare Beneficiaries With Advanced Lung Cancer Experience Diverse Patterns Of Care F...
Source: blog.bioethics.net - July 6, 2017 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs
We must address young patients ’ pain and suffering from the start of their cancer journey
When a child is diagnosed with cancer, overwhelmed parents and patients are often laser-focused on the path to cure. Even though parents do not welcome pain or discomfort for their child, they may feel that symptoms are a necessary cost of curative care. Likewise, it is easy for us, as pediatric oncologists, to accept symptoms and side effects of treatment as normal. Important new research challenges this assumption and challenges pediatric oncologists to work harder to ease children’s suffering and help families maintain quality of life from the very beginning of the cancer journey.
Recent research from St. Jude, publis...
Source: Kevin, M.D. - Medical Weblog - June 30, 2017 Category: General Medicine Authors: < a href="http://www.kevinmd.com/blog/post-author/jennifer-mack" rel="tag" > Jennifer Mack, MD, MPH < /a > Tags: Conditions Cancer Pediatrics Source Type: blogs
Health Affairs Briefing: Advanced Illness And End-Of-Life Care
Few areas of health
care are as personal, or as fraught, as care for people with serious
illnesses who are approaching death. At a point in their lives when their
needs are often as much social and spiritual as they are medical, people
are confronted with a fragmented, rescue-driven health care
system that produces
miraculous results but also disastrous failures.
As the nation’s population of individuals over the age of 65 is expected to
reach 84 million by 2050, addressing these challenges becomes increasingly
important, requiring coordination across multiple sectors and levels of
government. ...
Source: blog.bioethics.net - June 29, 2017 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs
Upstream Palliative Care and Dissecting Hope From Hype in Oncology
by Christian SinclairWorking in an outpatient cancer center, I frequently encounter the conversation about whether the next cancer treatment regimen is ‘worth it.’ Patients and families consider may interpretations of worth; financial being one of course, but also physical side effects, the emotional toll of investing faith into ‘one more treatment’ and hoping that it works. These conversations are challenging as they weigh biological, medi cal, spiritual, social, personal, emotional and other issues, so there is no neat equation which can easily tell you if the benefits or the risks are greater.These struggles wer...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 28, 2017 Category: Palliative Care Tags: sinclair tweetchat Source Type: blogs
Health Affairs Briefing: Advanced Illness and End-of-Life Care
Few areas of health care are as personal, or as fraught, as care for people with serious illnesses who are approaching death. At a point in their lives when their needs are often as much social and spiritual as they are medical, people are confronted with a fragmented, rescue-driven health care system that produces miraculous results but also disastrous failures.
As the nation’s population of individuals over the age of 65 is expected to reach 84 million by 2050, addressing these challenges becomes increasingly important, requiring coordination across multiple sectors and levels of government. Innovations are needed to p...
Source: Health Affairs Blog - June 28, 2017 Category: Health Management Authors: Health Affairs Tags: Elsewhere@ Health Affairs Featured Advanced Illness End-of-Life Palliative Care Source Type: blogs
Advance Care Planning and End of Life (ACPEL) Conference
Discussions: A Randomized Controlled Trial and Video Intervention - Maureen Douglas, University of Alberta 4. Identification of indicators to monitor successful implementation of Advance Care Planning policies: a modified Delphi study - Patricia Biondo, University of Calgary5. The economics of advance care planning, Konrad Fassbender, University of Alberta; Covenant HealthSession 2: Health Care Consent, Advance Care Planning, and Goals of Care: The Challenge to Get It Right in OntarioHealth Care Consent, Advance Care Planning, and Goals of Care: The Challenge to Get It Right in Ontario - Tara Walton, Ontario Pal...
Source: blog.bioethics.net - June 15, 2017 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs
Perusing ASCO 2017 - AKA Time for Lorazepam
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 8, 2017 Category: Palliative Care Tags: ASCO cancer oncology pallonc research research issues rosielle WaPo Source Type: blogs
Persuing ASCO 2017 - AKA Time for Lorazepam
Photo from ASCO Mediakit. © ASCO/Danny Morton 2017TheAnnual Meeting of the American Society of Clinical Oncology was last week. It ’s been my observation over the years that much of the best palliative-oncology and supportive-oncology research is presented at ASCO each year, before it’s actually published (if it ever gets published). So I always dig through the palliative/EOL/supportive/psychooncology abstracts each year to see what ' s happening. Below is a gently annotated list of the abstracts that caught my eye the most, for your perusal and edification. Undoubtedly, these are my idiosyncratic choices, ...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 8, 2017 Category: Palliative Care Tags: ASCO cancer oncology pallonc research research issues rosielle WaPo Source Type: blogs
Dichotomous Endings: A Physician ’ s Personal Reflection
My grandfather was the patriarch of his family, at the center of a tightknit Lebanese immigrant community in Toronto, Canada. Some of my warmest childhood memories are from Sundays at my grandparents’ home, where there was always family, community, and delicious food. Both in their mid-seventies, they remained exceptionally active and maintained an impressive social calendar. From my perspective as barely a teenager, it somehow seemed that family life would go on forever in this way. So, it is not surprising that I remember vividly when my grandfather first became ill. He had learned from his doctor that his kidneys were...
Source: Health Affairs Blog - June 8, 2017 Category: Health Management Authors: Ryan Van Wert Tags: End of Life & Serious Illness Quality advance care planning Cancer end-stage renal disease Hospice care Source Type: blogs
An Interview with Orthopaedic Oncologist Dr. Vincent Ng
Dr. Vincent Ng is an orthopaedic oncologist with the University of Maryland Greenebaum Comprehensive Cancer Center and an Assistant Professor or Orthopaedics with the University of Maryland School of Medicine. Dr. Ng specializes in treating bone cancer and soft tissue sarcoma. Below he answers common questions about orthopaedic oncology.
What is an orthopaedic oncologist? How do they differ from surgical oncologists?
“An orthopaedic oncologist specializes in bone and soft tissue tumors. I treat any adult or pediatric patient with any bone or soft tissue tumor/lesion/mass, whether benign or malignant, whether it is...
Source: Life in a Medical Center - June 2, 2017 Category: Universities & Medical Training Authors: UMMC Tags: Cancer Doctors bone cancer oncology orthopedics Source Type: blogs
